Harnessing The Power of Citizen Research By Mcfinn Lovere and Dave Shulman

McFinn Lovere was diagnosed with ALS in 2006 at UCSF, Mcfinn was only able to move his head and two fingers. His spirituality and team of caretakers gave him HOPE and he is documented as the 42nd "ALS Reversal" by Dr. Bedlack. At EverythingALS, he aims to bring meaning, hope, and an uplifting atmosphere to a community that
He knows very intimately and one that needs it most.
Diagnosed in 2023 with limb onset ALS, Dave Shulman has quickly plugged into the ALS landscape and uses his strategic and commercial experience to push for faster, more efficient, progress towards better outcomes for all ALS families. Dave has no medical training whatsoever, but has picked up a few things as an ALS research ambassador, ALS international patient fellow, and person living with ALS. He lives in Summit, New Jersey with his wife, two children and new puppy.
Michael Thayer is from Brockton, MA. 66 year old singer/actor, insurance salesman, Tile business owner. Also, husband of Pamela for 42 years residing now in Attleboro, MA. Michael’s ALS journey began in Aug 2021 involving left finger weakness when playing his guitar.
Janie Gobeli serves as an advisory committee member for the HEALEY ALS Platform Trial and the QurAlis/CISCRP Global Patient Advisory Board, an ALS Research Ambassador for the Northeast ALS Consortium (NEALS), and a reviewer for the Les Turner ALS Foundation’s educational materials and programs. She was diagnosed with ALS in 2021. As a former elementary education teacher and licensed cosmetologist, she is proud to work as an ALS educator, advisor, and speaker because it allows her to be a voice for all ALS warriors and follow her lifelong passion for learning and educating others.
Learn more: www.everythingals.org/events