What is the Chop/Levine Protocol for POTS?

The Levine or Chop protocol is an exercise prescription commonly used for individuals with Postural Orthostatic Tachycardia Syndrome (POTS). However, we really need to know the underlying mechanisms behind the symptoms, rather than solely treating deconditioning. For some individuals with POTS, the compensatory tachycardia may not respond to exercise, as the problem lies in the body's underlying physiological issues.
The approach should focus on understanding the specific mechanisms causing the physiological failures and tailoring the treatment accordingly, rather than solely relying on exercise to improve cardiovascular fitness.
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[@allyirvine7537]

This is an important and fundamental distinction we need to bear in mind. Deconditioning, while sustaining POTs, is an effect and not the cause. There is very limited provision for dysautonomia treatment in the U.K. Because of this and not knowing what else to do, I have been physically rehabilitating myself. While there have been some improvements in function with exercise, I still have the blue legs, dizziness, erratic heart and many other symptoms. If only you were in the U.K or Europe (somewhere accessible by land.) Thank you for what you do.

[@DaBongo89]

Yes get passed from pillar to post . No one wants to know . Greetings from 🏴󠁧󠁢󠁳󠁣󠁴󠁿. Ps I think there are clinics in London but it needs to be a special referral if you are not local to the clinic.waiting times of years I imagine

[@DaBongo89]

Totally agree with this. The problem people don’t understand is that you are prescribing patients to do “ more exercise “ which is the exact thing g that makes them worse. It’s like saying to someone with a severe headache I will treat you but your headache will get worse 🤪

[@lichtsier1306]

Greetings from Russia. Thank you for sharing this information, thank you for letting know what exactly we as POTS patient are going through

[@allyirvine7537]

I struggle with flying and driving, as well as travelling by boat. It would be good to understand why this is. Many thanks.