I am glad you mentioned that about how some people seem crazy before the testing came out. And now I really think that doctors are too quick to diagnose for fibromyalgia before they test for SFN, which is so important since the symptoms are almost the same.
This is an informative video, thank you! I’m a young, healthy 29 year old but have had nonstop tingles and flickers in my legs for the last 2.5 years… about a year ago it came into my arms. I was diagnosed with SFN a few months ago and am trying to learn as much about it as possible. Apparently the cause of mine was B6 toxicity! I had very high levels of B6 (probably for a long time bc B6 is in almost every energy-related drink) and also had low copper levels. I’ve since stopped all B6 intake and started taking copper supplements. The pain drives me absolutely NUTS and I hope my nerves will heal themselves.. although not sure how or if they will anytime soon. Anyone else have a similar story or have any suggestions? For others out there struggling to find answers, get your B6 levels checked!
Hi Natalie! Interesting! I’m a super fit, super athletic 59 year old and started with internal vibrations two and a half years ago and then burning in my feet six months ago and now hands. Saw neurologist a couple of weeks ago and diagnosed as SFN, but he didn’t do punch biopsy or any diagnostics and just wanted to put me on hard psycho pharm drugs and I’m a psychotherapist and know what they can do and not much interested in going that route for me. I’ve taken it upon myself to do a bunch of bloodwork including gene testing, b’s, copper testing, gluten, auto immune testing, inflammation markers, ..etc. I have no inflammation in my body and gluten negative, but my B12 came back off the charts high at 1252! I’ll get the rest of my B results back next week. I love the science in all of this as well as what the body signals to us through illnesses and disease, just not when it’s my body and or people are suffering. I’ll stay on the high levels of B research and you do the same and let’s stay in touch! Best of luck!
@@mariatafuri2852 A high B-12 is an odd combination. I read Vitamin B12 deficiency is among the leading causes of secondary small fiber neuropathy. My B 6 was off the charts high and D3 was very low. There is a list of drugs that are known to cause SFN, You should check your prescription list against it
I think I am past pain, Now falling; can't feel feet. Went to vestibular therapy to relearn how to work. Going to John's Hopkins in March. I got diagnosed by cell punch biopsies of legs
My pain comes exclusively by pressure (on the feet sole, back, butt, etc), while Intraepidermal nerve density is lower.. No ideas on the cause. No one cares to check further, just treating symptoms with Amitriptylin, Duloxetin, Carbamazepin, etc. I am a healthy, active Person otherwise (low on iron at times, plus hashimoto with normal tsh and t3/t4) - it's diving me nuts that I can't stand for 5 minutes or ride a bike for 10 without massive pain.
I do have some pain and irritation by too much pressure, I have it in my hands and feet. If I'm on my feet for more than a half hour to an hour they get extremely uncomfortable 😞 in my hands I believe it may have come from my gaming for hours at a time. So pressure on my hands is uncomfortable, I've been tested for carpal tunnel via an EMG last year and test results came back normal but I'm still having tingling and pain in my hands and feet so it has to be small fiber neuropathy. I'm looking for advice on this as well.
Hey I just started feeling these exact same symptoms this week, and I was sent to the skin biopsy test, we'll see. I have a burning pain that comes by pressure on back, butt, neck. But I also feel burning sensation in my feet close to the knees. How are you doing with this condition? How long have you been like this? Is there anything that you find helpful?
@@infinityloop88 i've had some esoteric blood work done. TGF beta is high, indicative of inflammation , VeGF is low same indication. having Mitochondria genetic testing done and various lesser examined metabolic eval. See what your small LDL and medium LDL is, mine is high. Binding agents can work for lowering medium and small LDL along with the inflam-markers. i have just started that. The nature of your pain could be related to small vessel occlusions, but why? Starting to think it's mine and related to elevated small and medium LDL. That stuff clogs your small capillaries giving hypoxia. LDL on its own is useless it comes down to the Small and Medium sized particles
@@rufuspennypacker1893 Hey, you wrote a lot of things here, bottom line - what do you suggest me to test? Do you think my vessels are clogged? I am 33 , with good bmi, I work out regularly and eating good, not overweight.. I am not sure im the typical profile for what you mentioned. I would also say that the symptoms I described above decreased with time, it was acute during the begining of the cold weather, and slowly decreased since . Also my skin biopsy returned negative..
I do have all those symptoms but no pain. Electric shocks all over my body, i have been seen three neurologist and they said that everything is in my head.
Same With me. I believe you. I had it onset after my Covid vaccine. I had an adverse reaction and went to the hospital. They treated me like a liar, antivaxxer, and even drug tested me. Now there are tons of studies confirming it. Trust yourself.
Extreme leg pain , started in right leg and now in left leg . It gets worse with the cold . I’m a year in , it started 3 days after first Moderna jab . My GP thinks it’s my anxiety , and I’m my head . The pain os excruciating . I go to the gym everyday , get on the bien and go through my workout . Past 2 weeks , pain os nonstop . Quality of life sucks , idk if it’s this or something else . I have a beautiful 2 year old daughter , beautiful wife and great business . I am pre diabetic , I don’t think it would cause this much pain. I’m taking oxy 15 mg for pain .5 mg Xanax for anxiety
Sorry to hear. Find a new GP, for it is unethical not to believe and respect your patient. The neuropathy has not progressed to your upper limbs? Oxy is not a neuropathic pain medication. It can be used along side an anticonvulsant, although the effects wain and increasing dosage can be dangerous. Possibly see a neurologist.
@@mikemakke9821 Try cannabis. You have to find the mix of CBD and THC that works for you. Unlike the drugs neurologists give you, which have hideous life-altering side effects for many, cannabis can really help with pain and mood without major side effects. If you choose a low THC version you will only be a little stoned for half an hour. then get some pain relief. Try it Mike...it could help, it helped me. Good luck
Dr. Saperstein, My SFPN is confirmed by skin biopsy. Pain in feet, back, thigh and on face is unbearable sometime. Having difficulty getting appointment to see right specialist. My local neurologist has tried and failed to get right Dr. Can you help me and see me so I get right treatment before its too late. I do not have any underling health condition other than SFPN. My local neurologist suspect its autoimmune and was talking about SCIg. Please let me how do I start process to see you. I am wiling to fly out there from Florida. thank you.
Thank you for your inquiry. Yes, we can see you. However, due to HIPAA, can you please contact us on our website where you can text us via Klara; a HIPAA-compliant way to communicate or you can email us using the Contact Us form. bit.ly/LearnMore_CCN
I believe I have this and that it has developed over years with NSAID use.. I was reading a research paper that associated Advil with capillary bleeding ... after watching this vidio...it got me thinking why not small nerve fibers...fyi - the pharma companies that develop these drugs will never tell you this.
I am italian, I had SFN as long covid symtom. I have been treating it with alpha lipoic acdi, vitamin b12, b6, b1, acetil l carnite and I have had little improvement in 3 months. I hope in the long run to get rid of this pain
Hello, from Italy as well, as a doctor. I am trying to help some patients and recovering more info from other patients across the Country. How are you today? What's your reference center? Did you experience COVID-related worsening? were you vaccinated before? Were you also diagnosed late, after being considered psychiatric?
@@robertaa8891 I have been dignosed positive with biopsy in Ospedale di Parma . Fist syntoms occured after covid in march 2022 and worsened after an other covid in nov 2022. Now I am little bit better, I have improved pain in my hands by 40%. Not significant improvement in my feet
I have trimenigel (sp?) small nerves sensory neuropathy that creates pin prick pain on face, chest, armpits,and groin which comes and goes without my known triggers yet change in temperature externally, stress and heat from sunshine always triggers the pain otherwise! Where would a punch biopsy be taken when the pain is not in extremities, arms or legs? Medication minimizes it a little but the severity and frequency just walking to my mailbox brings it on. My facial hair if moved creates it and I can actually locate the specific hair, remove it, and pain stops. Other non-hair areas if I press & rubbed the spot it reduces the pain. I have POTS and CP which complicate coping w/ causation, symptoms and triggers for this pain. Would waxing face and body areas affected make the neuropathy worse?
I have not encountered a relationship between hairs and neuropathy pain. I do not know what waxing would do, but I would worry it could be very irritating. ~Dr. Saperstein
Hi Dr Saperstein, Hi, I am 56 years old and felled down from a ladder with my foreheads hitting the floor resulted TRO cervical spinal cord C5-C6 injury and both hands has no strength at all. After a neurosurgery on my neck, both my hands strength and sensory recovering well but I have burning sensation on my feet immediately and spread upwards up to my stomach in 2-3 months. I am also a diabetes patient but my past 10 years HbA1c was monitored quarterly averaging 6.2. Despite my neurosurgeon suspect that the burning sensation could be due to diabetes peripheral neuropathy pain, I doubt it's due to diabetes as before my accident I have no burning sensation sensation on my feet at all. What do you think is the cause of my burning sensation?
Due to the number of questions being asked by our social media followers, Dr. Saperstein doesn't have time to answer all the questions being asked. Therefore, we suggest you sign up for the Q&A session on April 22, 2023, where you can ask him your question.
Hey Dr. a person I know was floxed by Cipro a couple a years ago. This year she developed pneumonia and was treated with alot of steroids, she is now experiencing pain all over body, radiating from the head down, tachycardia, burning sensations on skin and many more symptoms like this. She has been with every doctor I can think of and it’s always the same diagnostic.... “it’s all in your head, you’re brain is making it up”... Can this be SFN??
We cannot comment on a patient who is not ours; however, seeing a neurologist and having nerve and muscle testing might be the first step. But yes, it could be small fiber neruopathy.
@@centerforcomplexneurology I had an EMG test done last year cause I thought I had carpal tunnel in both of my hands. The results came back normal but I still feel a tingling and sensation in both hands and forearms although not nearly a severe but it's still there. My neurologist gave me Lyrica to try and I unfortunately had to stop within a few days because of the side effects. So do you think I should mention to him to actually have me tested another way via biopsy or something and find out what's actually going on with me?
Small-fiber neuropathy has been described as an adverse effect of ciprofloxacin Further, Drugs like Metronidazole (Flagyl) as well have black box warnings for neuro-toxic adverse reactions. Doctors will not want to say they may have caused this or, they failed to recognize it, as in my case I finally had a symptom that sent me to a qualified Neuro-ophthalmologist who again found nothing but gave me a referral to a Multiple Sclerosis and Neuroimmunology Center.My Neuro ruled out MS and immediately identified my condition and confirmed by biopsy As SFN with Autonomic interference.
I was on Flagyl and had a chiropractor adjustment the same week and my feet bladder and face are numb. Do you have a good doctor you recommend zz my local neuro isn’t helping:(
Maybe. We do know that a significant percentage of people with EDS have small fiber neuropathy. However, we do not know if the neuropathy is from the EDS itself of due to other condutions that occur frequently with EdS, such as POTS or MCAS. - Dr. Saperstein
I have been diagnosed with SFN post-covid. It's prompted now by auto-immune complications. My only question here is; is this a permanent condition?? I am 26 y.o. Thank you so much, Dr!
Does the environment/weather or certain foods cause this to get worse? I have electric shocks in my back and legs. My feet are always cold and in so much pain. From the minute I wake up and my feet hit the ground it feels like I'm walking on bone. Of course I have pain everywhere due to Fibromyalgia, but now my lungs might hurt, or my chest. But my face is the worst. It gets to where I have a hard time talking. My neck, and scoliosis, cyphosis, and osteoporosis at a young age contribute to the pain as well. I'm on tramadol. It takes the edge off. I also take diazepam, and Cymbalta for pain and anxiety. I don't sleep good so I take Ambien at night if needed. Clonodine has helped too. I feel like I'm on a pharmacy but it's how I can walk my dog otherwise I'd be bedridden. My new RA says I could have this and EDS, once blood work has been completed we will know. She said there is other meds to treat my condition. I was 76 lbs and now recovered from Anorexia. My nutrition counselor believes in beauty at all sizes, against dieting, and believes intuitive eating makes the difference. I'm genetically and naturally curvy, extra limber. I asked her if there is anything I could be eating that could contribute to this, and she said that there is no scientific evidence that food causes these issues. Is this true?
Some people are heat sensitive and others cold. Mine gets really bad when it starts to get cold out. I was diagnosed via skin biopsy about 5 years ago. Cause undetermined. Not diabetic, autoimmune tests can back negative. I did have heavy metals toxicity and went through chelation therapy which did seem to help a little. I believe everything has a cause and I’m determined to find it before it gets worse. Started in right foot and has now affected the whole leg and right hand. It’s getting really hard to do my job. As far as diet, my doctor recommends an anti-inflammatory diet for any chronic pain condition. My husband had severe COVID pneumonia and has long COVID symptoms still. They’ve drastically improved since changing diet. Food plays a huge role in any illness. I see a functional MD and don’t take any meds for this. I try to do everything natural if possible. Chronic pain can really take a toll, especially when it’s a disability others can’t physically see. Sometimes I get the feeling people don’t think it’s real. Hang in there! (In case you’re wondering about my name, I let my son use my acct to post some videos and he wanted a “cool” name) 😂
Check by using a cold bath. and see if your pain increases,add warm water to see if it helps. Be sure you vitamin B 6 and 12 and D3 are in normal ranges. AVOID energy drinks!!! they screw those B vitamins up. Of course stress is a huge factor. Beware of food that causes fluid retention .those High in salts, For your feet, I wear santa cruz crocs they are a loafer with a croc insert. I recommend
Small-fiber neuropathy has been described as an adverse effect of ciprofloxacin (Cipro) and Metronidazole oral tablets and capsules (Flagyl) have a black box warning from the FDA including neuropathy
Can SFN present as bilateral muscle pain, without pins/needles/burning? Post Covid the muscles in my arms and legs are achey, weak, and tired -- my legs feel like they're going to give out if I'm on them for 15+ minutes.
@@sandywhat2429 i have actually come to learn that it is the lyrica that is causing all the problems with my legs. I am slowly going off it, but the withdrawal is pretty bad. The good news is i do not have SFN or any nerve diseases.
Hi doctor I'm diagnostic sfn end I'm allergic to wcheup liquid atinq is caused but do all test is nigatif I'm still saffrig ican stand or halldig having tingh can help please
Iist ssmall fiber neuropathie polyneuropathie heilbar oder wird man irgendwann im.rollstuhl sitzen. Bei mir führt die zu bluthochdruck wenn ich spreche hab ich verstärkte schnerzen rede aus den nerven es zieht
I am glad you mentioned that about how some people seem crazy before the testing came out. And now I really think that doctors are too quick to diagnose for fibromyalgia before they test for SFN, which is so important since the symptoms are almost the same.
Thanks nice to know I am not the only one. Real strong pain in both feet.
You should mention trophic, autonomic and imune role of small fibers as the pain and sensations are just a part of symptoms.
This is an informative video, thank you! I’m a young, healthy 29 year old but have had nonstop tingles and flickers in my legs for the last 2.5 years… about a year ago it came into my arms. I was diagnosed with SFN a few months ago and am trying to learn as much about it as possible. Apparently the cause of mine was B6 toxicity!
I had very high levels of B6 (probably for a long time bc B6 is in almost every energy-related drink) and also had low copper levels.
I’ve since stopped all B6 intake and started taking copper supplements.
The pain drives me absolutely NUTS and I hope my nerves will heal themselves.. although not sure how or if they will anytime soon.
Anyone else have a similar story or have any suggestions?
For others out there struggling to find answers, get your B6 levels checked!
Hi Natalie! Interesting! I’m a super fit, super athletic 59 year old and started with internal vibrations two and a half years ago and then burning in my feet six months ago and now hands. Saw neurologist a couple of weeks ago and diagnosed as SFN, but he didn’t do punch biopsy or any diagnostics and just wanted to put me on hard psycho pharm drugs and I’m a psychotherapist and know what they can do and not much interested in going that route for me. I’ve taken it upon myself to do a bunch of bloodwork including gene testing, b’s, copper testing, gluten, auto immune testing, inflammation markers, ..etc. I have no inflammation in my body and gluten negative, but my B12 came back off the charts high at 1252! I’ll get the rest of my B results back next week. I love the science in all of this as well as what the body signals to us through illnesses and disease, just not when it’s my body and or people are suffering. I’ll stay on the high levels of B research and you do the same and let’s stay in touch! Best of luck!
@@mariatafuri2852 A high B-12 is an odd combination. I read Vitamin B12 deficiency is among the leading causes of secondary small fiber neuropathy. My B 6 was off the charts high and D3 was very low. There is a list of drugs that are known to cause SFN, You should check your prescription list against it
Hi Natalie! Did you see already an improvement with your SFN?
@@mariatafuri2852 Were your internal vibrations constant during the time or was it intermittent where you had days without any vibration?
@@None-vk4wm related to lyme
I think I am past pain, Now falling; can't feel feet. Went to vestibular therapy to relearn how to work. Going to John's Hopkins in March.
I got diagnosed by cell punch biopsies of legs
I’m sorry to read that 😢hug from across the big pond 🇬🇧
@maureenhosie3407: I hope you are doing better.
My pain comes exclusively by pressure (on the feet sole, back, butt, etc), while Intraepidermal nerve density is lower.. No ideas on the cause. No one cares to check further, just treating symptoms with Amitriptylin, Duloxetin, Carbamazepin, etc. I am a healthy, active Person otherwise (low on iron at times, plus hashimoto with normal tsh and t3/t4) - it's diving me nuts that I can't stand for 5 minutes or ride a bike for 10 without massive pain.
Anyone feels the same and has tips?
I do have some pain and irritation by too much pressure, I have it in my hands and feet. If I'm on my feet for more than a half hour to an hour they get extremely uncomfortable 😞 in my hands I believe it may have come from my gaming for hours at a time. So pressure on my hands is uncomfortable, I've been tested for carpal tunnel via an EMG last year and test results came back normal but I'm still having tingling and pain in my hands and feet so it has to be small fiber neuropathy. I'm looking for advice on this as well.
Hey I just started feeling these exact same symptoms this week, and I was sent to the skin biopsy test, we'll see. I have a burning pain that comes by pressure on back, butt, neck. But I also feel burning sensation in my feet close to the knees. How are you doing with this condition? How long have you been like this? Is there anything that you find helpful?
@@infinityloop88 i've had some esoteric blood work done. TGF beta is high, indicative of inflammation , VeGF is low same indication. having Mitochondria genetic testing done and various lesser examined metabolic eval. See what your small LDL and medium LDL is, mine is high. Binding agents can work for lowering medium and small LDL along with the inflam-markers. i have just started that. The nature of your pain could be related to small vessel occlusions, but why? Starting to think it's mine and related to elevated small and medium LDL. That stuff clogs your small capillaries giving hypoxia. LDL on its own is useless it comes down to the Small and Medium sized particles
@@rufuspennypacker1893 Hey, you wrote a lot of things here, bottom line - what do you suggest me to test? Do you think my vessels are clogged? I am 33 , with good bmi, I work out regularly and eating good, not overweight.. I am not sure im the typical profile for what you mentioned.
I would also say that the symptoms I described above decreased with time, it was acute during the begining of the cold weather, and slowly decreased since . Also my skin biopsy returned negative..
I do have all those symptoms but no pain. Electric shocks all over my body, i have been seen three neurologist and they said that everything is in my head.
Same
With me. I believe you. I had it onset after my Covid vaccine. I had an adverse reaction and went to the hospital. They treated me like a liar, antivaxxer, and even drug tested me. Now there are tons of studies confirming it.
Trust yourself.
They have no idea of how it develops and how severe pain can be - their solution more pharmaceuticals. I believer the B VITAMINS could be helpful.
shouldn't you get more tests ?
Extreme leg pain , started in right leg and now in left leg . It gets worse with the cold . I’m a year in , it started 3 days after first Moderna jab . My GP thinks it’s my anxiety , and I’m my head . The pain os excruciating . I go to the gym everyday , get on the bien and go through my workout . Past 2 weeks , pain os nonstop . Quality of life sucks , idk if it’s this or something else . I have a beautiful 2 year old daughter , beautiful wife and great business . I am pre diabetic , I don’t think it would cause this much pain.
I’m taking oxy 15 mg for pain
.5 mg Xanax for anxiety
Sorry to hear. Find a new GP, for it is unethical not to believe and respect your patient. The neuropathy has not progressed to your upper limbs? Oxy is not a neuropathic pain medication. It can be used along side an anticonvulsant, although the effects wain and increasing dosage can be dangerous. Possibly see a neurologist.
@@tfoxen7518 no
@@mikemakke9821 Try cannabis. You have to find the mix of CBD and THC that works for you. Unlike the drugs neurologists give you, which have hideous life-altering side effects for many, cannabis can really help with pain and mood without major side effects. If you choose a low THC version you will only be a little stoned for half an hour. then get some pain relief.
Try it Mike...it could help, it helped me. Good luck
Dr. Saperstein, My SFPN is confirmed by skin biopsy. Pain in feet, back, thigh and on face is unbearable sometime. Having difficulty getting appointment to see right specialist. My local neurologist has tried and failed to get right Dr. Can you help me and see me so I get right treatment before its too late. I do not have any underling health condition other than SFPN. My local neurologist suspect its autoimmune and was talking about SCIg. Please let me how do I start process to see you. I am wiling to fly out there from Florida. thank you.
Thank you for your inquiry. Yes, we can see you. However, due to HIPAA, can you please contact us on our website where you can text us via Klara; a HIPAA-compliant way to communicate or you can email us using the Contact Us form. bit.ly/LearnMore_CCN
Can damage to the ulnar nerve progress to non length dependent small fibre neuropathy ?
I believe I have this and that it has developed over years with NSAID use.. I was reading a research paper that associated Advil with capillary bleeding ... after watching this vidio...it got me thinking why not small nerve fibers...fyi - the pharma companies that develop these drugs will never tell you this.
I am italian, I had SFN as long covid symtom. I have been treating it with alpha lipoic acdi, vitamin b12, b6, b1, acetil l carnite and I have had little improvement in 3 months. I hope in the long run to get rid of this pain
Are you taking the R type of alpha lipoic acid?
Hello, from Italy as well, as a doctor. I am trying to help some patients and recovering more info from other patients across the Country. How are you today? What's your reference center? Did you experience COVID-related worsening? were you vaccinated before? Were you also diagnosed late, after being considered psychiatric?
@@robertaa8891 I have been dignosed positive with biopsy in Ospedale di Parma . Fist syntoms occured after covid in march 2022 and worsened after an other covid in nov 2022. Now I am little bit better, I have improved pain in my hands by 40%. Not significant improvement in my feet
I have trimenigel (sp?) small nerves sensory neuropathy that creates pin prick pain on face, chest, armpits,and groin which comes and goes without my known triggers yet change in temperature externally, stress and heat from sunshine always triggers the pain otherwise! Where would a punch biopsy be taken when the pain is not in extremities, arms or legs? Medication minimizes it a little but the severity and frequency just walking to my mailbox brings it on. My facial hair if moved creates it and I can actually locate the specific hair, remove it, and pain stops. Other non-hair areas if I press & rubbed the spot it reduces the pain. I have POTS and CP which complicate coping w/ causation, symptoms and triggers for this pain. Would waxing face and body areas affected make the neuropathy worse?
I have not encountered a relationship between hairs and neuropathy pain. I do not know what waxing would do, but I would worry it could be very irritating. ~Dr. Saperstein
This is very real , similar experience
Mayo Clinic diagnosed me with Small Fiber neuropathy. Yet they offer no treatment path. Can you help?
Thanks, Grizz
Chad Braden
Yes, please reach out to our office via our website using Klara and we can discuss it further. bit.ly/LearnMore_CCN
I have small fiber neuropathy and my physician only did a regular blood sugar. Should i have a glucose tolerance test as well?
Hi Dr Saperstein, Hi, I am 56 years old and felled down from a ladder with my foreheads hitting the floor resulted TRO cervical spinal cord C5-C6 injury and both hands has no strength at all.
After a neurosurgery on my neck, both my hands strength and sensory recovering well but I have burning sensation on my feet immediately and spread upwards up to my stomach in 2-3 months. I am also a diabetes patient but my past 10 years HbA1c was monitored quarterly averaging 6.2. Despite my neurosurgeon suspect that the burning sensation could be due to diabetes peripheral neuropathy pain, I doubt it's due to diabetes as before my accident I have no burning sensation sensation on my feet at all. What do you think is the cause of my burning sensation?
Due to the number of questions being asked by our social media followers, Dr. Saperstein doesn't have time to answer all the questions being asked. Therefore, we suggest you sign up for the Q&A session on April 22, 2023, where you can ask him your question.
Hey Dr. a person I know was floxed by Cipro a couple a years ago. This year she developed pneumonia and was treated with alot of steroids, she is now experiencing pain all over body, radiating from the head down, tachycardia, burning sensations on skin and many more symptoms like this. She has been with every doctor I can think of and it’s always the same diagnostic.... “it’s all in your head, you’re brain is making it up”... Can this be SFN??
We cannot comment on a patient who is not ours; however, seeing a neurologist and having nerve and muscle testing might be the first step. But yes, it could be small fiber neruopathy.
@@centerforcomplexneurology I had an EMG test done last year cause I thought I had carpal tunnel in both of my hands. The results came back normal but I still feel a tingling and sensation in both hands and forearms although not nearly a severe but it's still there. My neurologist gave me Lyrica to try and I unfortunately had to stop within a few days because of the side effects. So do you think I should mention to him to actually have me tested another way via biopsy or something and find out what's actually going on with me?
the most dangerous thing a floxed person can do is taking a steroid. It makes floxing 10 times worse
Small-fiber neuropathy has been described as an adverse effect of ciprofloxacin Further, Drugs like Metronidazole (Flagyl) as well have black box warnings for neuro-toxic adverse reactions. Doctors will not want to say they may have caused this or, they failed to recognize it, as in my case I finally had a symptom that sent me to a qualified Neuro-ophthalmologist who again found nothing but gave me a referral to a Multiple Sclerosis and Neuroimmunology Center.My Neuro ruled out MS and immediately identified my condition and confirmed by biopsy As SFN with Autonomic interference.
I was on Flagyl and had a chiropractor adjustment the same week and my feet bladder and face are numb. Do you have a good doctor you recommend zz my local neuro isn’t helping:(
Can you get small fiber neuropathy from ehlos danlos? Not sure if that is how it is spelled.
Maybe. We do know that a significant percentage of people with EDS have small fiber neuropathy. However, we do not know if the neuropathy is from the EDS itself of due to other condutions that occur frequently with EdS, such as POTS or MCAS. - Dr. Saperstein
I have been diagnosed with SFN post-covid. It's prompted now by auto-immune complications. My only question here is; is this a permanent condition?? I am 26 y.o.
Thank you so much, Dr!
It is not necessarily permanent. However, that is a possibility. There is no way to know. Complications of covid can be unpredictable.
I am being diagnosed with possible SFN post covid as well. Did you do a punch biopsy?
@@ChrisMiller35 Unfortunately it's not available in Egypt where I live right now. Did you do it? How are you feeling now?
Same!!
@@ChrisMiller35 same!!
Does the environment/weather or certain foods cause this to get worse? I have electric shocks in my back and legs. My feet are always cold and in so much pain. From the minute I wake up and my feet hit the ground it feels like I'm walking on bone. Of course I have pain everywhere due to Fibromyalgia, but now my lungs might hurt, or my chest. But my face is the worst. It gets to where I have a hard time talking. My neck, and scoliosis, cyphosis, and osteoporosis at a young age contribute to the pain as well. I'm on tramadol. It takes the edge off. I also take diazepam, and Cymbalta for pain and anxiety. I don't sleep good so I take Ambien at night if needed. Clonodine has helped too. I feel like I'm on a pharmacy but it's how I can walk my dog otherwise I'd be bedridden. My new RA says I could have this and EDS, once blood work has been completed we will know. She said there is other meds to treat my condition. I was 76 lbs and now recovered from Anorexia. My nutrition counselor believes in beauty at all sizes, against dieting, and believes intuitive eating makes the difference. I'm genetically and naturally curvy, extra limber. I asked her if there is anything I could be eating that could contribute to this, and she said that there is no scientific evidence that food causes these issues. Is this true?
My symptoms started exactly when temperature dropped. I guess cold weather makes it worse
Some people are heat sensitive and others cold. Mine gets really bad when it starts to get cold out. I was diagnosed via skin biopsy about 5 years ago. Cause undetermined. Not diabetic, autoimmune tests can back negative. I did have heavy metals toxicity and went through chelation therapy which did seem to help a little. I believe everything has a cause and I’m determined to find it before it gets worse. Started in right foot and has now affected the whole leg and right hand. It’s getting really hard to do my job. As far as diet, my doctor recommends an anti-inflammatory diet for any chronic pain condition. My husband had severe COVID pneumonia and has long COVID symptoms still. They’ve drastically improved since changing diet. Food plays a huge role in any illness. I see a functional MD and don’t take any meds for this. I try to do everything natural if possible. Chronic pain can really take a toll, especially when it’s a disability others can’t physically see. Sometimes I get the feeling people don’t think it’s real. Hang in there! (In case you’re wondering about my name, I let my son use my acct to post some videos and he wanted a “cool” name) 😂
Check by using a cold bath. and see if your pain increases,add warm water to see if it helps. Be sure you vitamin B 6 and 12 and D3 are in normal ranges. AVOID energy drinks!!! they screw those B vitamins up. Of course stress is a huge factor. Beware of food that causes fluid retention .those High in salts,
For your feet, I wear santa cruz crocs they are a loafer with a croc insert. I recommend
Thanks. Could chronic use of Phenytoin lead to a small fiber neuropathy?
Yes, it is possible. ~Dr. David Saperstein
Could sfn lead to any other nerve disorders? Such as Ms ?
SFN does not lead to other conditions. However, it can occur along with other conditions. There is no specific link between SFN and MS.
Can SFN induced by antiboics regenrate ?
We have sent your question to Dr. Saperstein. Please allow him time to respond.
Yes. But we do not know how to predict who will improve and who will not. - Dr. Saperstein
Lyme disease over treatment cause this tons of antibiotics
Does Cipro and flygyl cause small fiber neuropathy?
Ciprofloxin does that's how we think I got small fiber neuropathy
Small-fiber neuropathy has been described as an adverse effect of ciprofloxacin (Cipro) and Metronidazole oral tablets and capsules (Flagyl) have a black box warning from the FDA including neuropathy
Flagyl also causes it. That's how I got mine.
Can SFN present as bilateral muscle pain, without pins/needles/burning? Post Covid the muscles in my arms and legs are achey, weak, and tired -- my legs feel like they're going to give out if I'm on them for 15+ minutes.
Yes, SFN can cause muscle pain without typical symptoms such as pins/needles or burning.
Yeah, I have this all too. Pain in arms and legs and weakness, generell weakness and neuropathy. Got it all after a vaccine. My doctors suspect SFN.
@@cherryblossom8282covid vaccine ?
@@lfernando29 yes
Could long term use of Suboxone cause SFN?
Not to my knowledge. ~David Saperstein, M.D.
PROBABLY. Stopping medications can also cause severe neuropathy. Many prescribed medications can cause nerve damage.
@@sandywhat2429 i have actually come to learn that it is the lyrica that is causing all the problems with my legs. I am slowly going off it, but the withdrawal is pretty bad. The good news is i do not have SFN or any nerve diseases.
@@YellowPineappleHoyas well let's hope it disappears after. Sometimes it doesn't. Good luck. ❤️
@@YellowPineappleHoyas I have bad neuropathy weaning off a benzo.
Hi doctor I'm diagnostic sfn end I'm allergic to wcheup liquid atinq is caused but do all test is nigatif I'm still saffrig ican stand or halldig having tingh can help please
i have electric shocks through my entire legs and arms after vaccine, would this eventually go away if it’s just an immune response?
how r u now
Can one neuropathy lead to another neuropathy?
yes, you can have Erythromelalgia (which has nerve pain as a component), caused by a small fibre neuropathy.
Ok but how can you find out if one led to another?
Sometimes. Or sometimes there can be more than one problem going on. ~Dr. Saperstein
Small fiber neuropathy connected to connective tissue disease
What if the cause is a chronic disability with no cure
TS-HDS
Thanks covid!! 🙃🙃
Iist ssmall fiber neuropathie polyneuropathie heilbar oder wird man irgendwann im.rollstuhl sitzen.
Bei mir führt die zu bluthochdruck wenn ich spreche hab ich verstärkte schnerzen rede aus den nerven es zieht
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