I just wanted to say thank you so much for these videos. I'm currently in a flare of BPS and working my way through this playlist! I've had it for about 17 years and the amount of docs I speak to that havent even heard of IC/PBS is ridiculous. They used to tell me to drink cranberry juice and give me antibiotics even though there was no infection. Your videos have given me more knowledge into what's happening with my body than anyone I've seen in the last 17 years. So THANK YOU!!
I couldn't agree more. The last time I saw a genitourinary specialist, he did a cystoscopy. Ironically, even though I'd been in a flare for months, a week or so before my appointment the pain 100 percent left me, and the cystoscopy was totally normal 😱🙄 Therefore, once again, he didn’t diagnose me with anything, even though all of my symptoms align with BPS. Even worse, although I had no signs of infection on the day of the consultation or even previously when my GP has tested, the consultant's wondrous advice to my GP was that if symptoms return I should apparently 'drink cranberry juice' and GP should 'prescribe antibiotics.' This pain has gone on for years now. Thank God for pelvic physios like yourself Jilly. I've learnt so much from you, and if it wasn't for your videos I'd still be in horrible pain right now. As it is, I've felt well-informed enough to get myself a pelvic wand and do my own home therapy, which has helped enormously. I've also enlisted the help of a wonderful pelvic physio. For the first time ever, I have conversations with a professional who listens and who gets it, and gives wonderful advice. I can't thank you physiotherapists enough. Thanks Jilly for what you do, it's immensely important work, and you really are changing people's lives, I can testify to that.
I didn't find the answer within your video unfortunately. How and where to massage? Can I do it myself? I'm male and got a spasming pain now for two weeks. Edit - mine turned out to be a UTI. Luckily.
This is it! I do internal PT on myself and there are no triggers but still I get relief in just massaging these muscles a minute or two every other day. Forget about stretches etc. doing them for 6 months without any relief whatsoever. Massage these muscles!
Hey Jilly, I am based out in India and facing this issue since from 15 years or so..During stress condition the pelvic muscle gets automatically tightened...Is there in trigger point injection can help? Please help
Need your help. Have had for over 10 years (every symptom downstairs). Diagnosed as prostatitis for 9 years, doctors just tried to feed me medication even tho i always tested negative for bacteria. Finally diagnosed by new uro with pelvic floor. I’m starting internal PT hopefully within the next couple months can I expect relief? I’m active for a profession I’m a fitness and football trainer. Feeling hopeless 10 years in and symptoms progressing. Rectal pain started recently (within 2 years). Is there anyway to message or connect with you? Desperately searching for answers
hello ma'am ! do you have any online consultations ? if there is any is it possible to find my trigger points without palpation ? are there any filial clinics in Central Asia ? I need help with my spasmodic tightened like zippers unlocked anal sphincter muscles
Nice video Jilly. Glad you aknowledge that 'trigger points' as classically defined might not exist. Many pelvic physios still cling to this. What would you suggest to someone like me who has no palpable internal trigger points, but a lot of urinary difficulty, prostatic, bladder, and genital pressure and pain? Typical pelvic physio approaches and suggested stretches do nothing to help.
1) It's important to get a full medical examination first to ensure everything is checked out fully. Then I would say go and read Explain Pain Supercharged, watch Lorimer Moseley's TED talks (and other things on here), look at "Tame the Beast", NOI Group work and get your understanding of modern pain science up. Then look at your threats, stressors and slowly follow a graded exposure process to see if you can improve your symptoms. It's just about applying what we do with back pain etc to the pelvic organs, easy! Find a physio to work with who knows what graded exposure and graded motor imagery are. Failing that, keep watching my videos and I'm sure you can work a lot of it out for yourself. You're your own best expert. (But make sure you seek out professional help when you need it and with any new/funny symptoms!)
I’m a pelvic PT in the US. I love a holistic approach and learning more about pain science all the time. Question for you or thoughts: knots and tension are normal everywhere as you talk about. I can have one in my shoulder but it doesn’t bother me until I press on it, so it’s not limiting my activities or motion and no pain unless touched. Say someone comes in with pelvic pain and you do touch on an area of increased tension and it reproduces their pain experience. How are these two situations different. Still an area of tension, one produces pain only when touched. The other in the pelvic floor reproduces patients symptoms of pain that they have say when sitting in a chair. Is it different only because the nervous system has chosen that to be more of a threat than the tension in the shoulder? I’m just trying to clarify some of what you are saying.
Thank you so much for your videos, Jilly! They're exetremely helpful. Could you also talk about how PFT could help avoiding flare-ups after intercourse? Or just a video about how PBS damages one's ability to pleasantly engage into having intercourse and ways to cope with it by doing PFT.
Hello jilly I just had one question. When you are trying to get rid of the trigger points can you inhale to expand the pelvic floor and stretch it and then contract it as you exhale, kind of like a kegel? I’ve been doing this while in a deep squat and it seems to help but I just want to know if I’m doing the right thing. Please let me know.
I am IC patient. I am 53 years old lady. I feel very very pain in or near left side vaginal and anus. I showed many doctors nobody know whats wrongs. Pain comes and go. Pain during urinate and urin is very difficultly come. I can‘t sit long time. I can‘t sleep too. Please help me what can i do. If you have video please give me the link. I am from Switzerland. If know any pelvic floor physiotherapy please give me the address. 🙏🏽🙏🏽🙏🏽 help me.
I just wanted to say thank you so much for these videos. I'm currently in a flare of BPS and working my way through this playlist! I've had it for about 17 years and the amount of docs I speak to that havent even heard of IC/PBS is ridiculous. They used to tell me to drink cranberry juice and give me antibiotics even though there was no infection. Your videos have given me more knowledge into what's happening with my body than anyone I've seen in the last 17 years. So THANK YOU!!
Thanks Jodie, that's lovely to hear. I hope you feel better soon.
I couldn't agree more. The last time I saw a genitourinary specialist, he did a cystoscopy. Ironically, even though I'd been in a flare for months, a week or so before my appointment the pain 100 percent left me, and the cystoscopy was totally normal 😱🙄
Therefore, once again, he didn’t diagnose me with anything, even though all of my symptoms align with BPS. Even worse, although I had no signs of infection on the day of the consultation or even previously when my GP has tested, the consultant's wondrous advice to my GP was that if symptoms return I should apparently 'drink cranberry juice' and GP should 'prescribe antibiotics.' This pain has gone on for years now.
Thank God for pelvic physios like yourself Jilly. I've learnt so much from you, and if it wasn't for your videos I'd still be in horrible pain right now. As it is, I've felt well-informed enough to get myself a pelvic wand and do my own home therapy, which has helped enormously. I've also enlisted the help of a wonderful pelvic physio. For the first time ever, I have conversations with a professional who listens and who gets it, and gives wonderful advice. I can't thank you physiotherapists enough. Thanks Jilly for what you do, it's immensely important work, and you really are changing people's lives, I can testify to that.
Thank you for this video. I went to my first visit with a pelvic physical therapist today. Both she and you helped me be less afraid.
You are soooo helpful thank you very much
Jilly, thank you so much for everything you do.
Jilly, you’re a life saver
I didn't find the answer within your video unfortunately. How and where to massage? Can I do it myself? I'm male and got a spasming pain now for two weeks.
Edit - mine turned out to be a UTI. Luckily.
Discuss using a pelvic wand (Intimate Rose) with your therapist. ❤
This is it! I do internal PT on myself and there are no triggers but still I get relief in just massaging these muscles a minute or two every other day. Forget about stretches etc. doing them for 6 months without any relief whatsoever. Massage these muscles!
Thankyou for the advice. So in men the only way is to do this is through the back passage I guess? I'm suffering with chronic pelvic pain
I'm a bit hard of hearing, is she say watching my videos on sub threat treatment? Thank you
Are knots trigger points
Hey Jilly, I am based out in India and facing this issue since from 15 years or so..During stress condition the pelvic muscle gets automatically tightened...Is there in trigger point injection can help? Please help
Need your help. Have had for over 10 years (every symptom downstairs). Diagnosed as prostatitis for 9 years, doctors just tried to feed me medication even tho i always tested negative for bacteria. Finally diagnosed by new uro with pelvic floor. I’m starting internal PT hopefully within the next couple months can I expect relief? I’m active for a profession I’m a fitness and football trainer. Feeling hopeless 10 years in and symptoms progressing. Rectal pain started recently (within 2 years). Is there anyway to message or connect with you? Desperately searching for answers
Hey hope you are feeling better
hello ma'am ! do you have any online consultations ? if there is any is it possible to find my trigger points without palpation ? are there any filial clinics in Central Asia ? I need help with my spasmodic tightened like zippers unlocked anal sphincter muscles
Nice video Jilly. Glad you aknowledge that 'trigger points' as classically defined might not exist. Many pelvic physios still cling to this.
What would you suggest to someone like me who has no palpable internal trigger points, but a lot of urinary difficulty, prostatic, bladder, and genital pressure and pain? Typical pelvic physio approaches and suggested stretches do nothing to help.
1) It's important to get a full medical examination first to ensure everything is checked out fully. Then I would say go and read Explain Pain Supercharged, watch Lorimer Moseley's TED talks (and other things on here), look at "Tame the Beast", NOI Group work and get your understanding of modern pain science up. Then look at your threats, stressors and slowly follow a graded exposure process to see if you can improve your symptoms. It's just about applying what we do with back pain etc to the pelvic organs, easy! Find a physio to work with who knows what graded exposure and graded motor imagery are. Failing that, keep watching my videos and I'm sure you can work a lot of it out for yourself. You're your own best expert. (But make sure you seek out professional help when you need it and with any new/funny symptoms!)
I’m a pelvic PT in the US. I love a holistic approach and learning more about pain science all the time. Question for you or thoughts: knots and tension are normal everywhere as you talk about. I can have one in my shoulder but it doesn’t bother me until I press on it, so it’s not limiting my activities or motion and no pain unless touched. Say someone comes in with pelvic pain and you do touch on an area of increased tension and it reproduces their pain experience. How are these two situations different. Still an area of tension, one produces pain only when touched. The other in the pelvic floor reproduces patients symptoms of pain that they have say when sitting in a chair. Is it different only because the nervous system has chosen that to be more of a threat than the tension in the shoulder? I’m just trying to clarify some of what you are saying.
Pelvic floor muscles in a spasm can press on the pudendal nerve that’s why.
From stress ?
Thank you so much for your videos, Jilly! They're exetremely helpful. Could you also talk about how PFT could help avoiding flare-ups after intercourse? Or just a video about how PBS damages one's ability to pleasantly engage into having intercourse and ways to cope with it by doing PFT.
Did you find an answer to this? This is just what I need too!
I dont know ! Maybe see a Dr. would be the best answer.
Hello jilly I just had one question. When you are trying to get rid of the trigger points can you inhale to expand the pelvic floor and stretch it and then contract it as you exhale, kind of like a kegel? I’ve been doing this while in a deep squat and it seems to help but I just want to know if I’m doing the right thing. Please let me know.
Please respond soon it would help a lot!
I am IC patient. I am 53 years old lady. I feel very very pain in or near left side vaginal and anus. I showed many doctors nobody know whats wrongs. Pain comes and go. Pain during urinate and urin is very difficultly come. I can‘t sit long time. I can‘t sleep too. Please help me what can i do. If you have video please give me the link. I am from Switzerland. If know any pelvic floor physiotherapy please give me the address. 🙏🏽🙏🏽🙏🏽 help me.
I can recommend the book ," a headache in the pelvis" - Wise Anderson
Wow, I used a Wand today & I felt a trigger point on the 9 & 10 o'clock spots (on my left side) and she's right, I feel a little sense of relief..