update on my brain tumour diagnosis + suspected blood clot | 11 weeks after surgery
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- Опубликовано: 1 фев 2024
- It's been almost 3 months after my craniotomy getting my brain tumour removed and here's where I'm at in my health care journey to get back to normal + finally get some answers! (hopefully a tumour diagnosis soon)
If you're dealing with a tough time, a health journey yourself or brain surgery please please leave me whatever questions you have in the comments below. I will try my best to answer them all asap 😊
Thank you so much for your endless support throughout this time ❤️
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www.youtube.com/@JenniferLauren 🖤 Be the Jen lol
WHAT IS THIS
stop it you're so sweet thanks for the love 🖤🖤🖤 it's too much for my black heart
@@jenlauren_ You stop it! I don't believe for a second that you have a black heart. I bet your heart is rainbow-unicorn-colored and covered in sparkly glitter! We all need a Jen! #bethejen
90 percentage of the time the brain cancer reappears it’s impossible to remove all the cancer cells , in your case eireann I hope I’m wrong
@@Paralyzer don't make this girl scared with false info: "Chances of Brain Tumor Recurrence
Research shows that meningioma has a 24 - 32% chance of recurring within 15 years. However, some studies have indicated a recurrence rate of as low as 5% for resectable meningiomas within five years of the first treatment."
Doctor: Have you been feeling stressed lately?
Brain tumor patient:
I've developed panic disorder because I cannot keep my mind quiet when I get despair or my symptoms that turn out to be nothing but stress related. I admire this young woman. I wish all the best to her.
yes, she gave me strength when I had none.
God bless you, I was praying to God to bring me to channels that need to hear the gospel.
The rapture of the church is about to take place, the final 7 years is about to begin when this event takes place, please call upon Jesus name and you will be saved and sealed with his Holy Spirit he gave up on the cross. Please get saved ✝️🕰
1 Corinthians 15
King James Version
15 Moreover, brethren, I declare unto you the gospel which I preached unto you, which also ye have received, and wherein ye stand;
2 By which also ye are saved, if ye keep in memory what I preached unto you, unless ye have believed in vain.
3 For I delivered unto you first of all that which I also received, how that Christ died for our sins according to the scriptures;
4 And that he was buried, and that he rose again the third day according to the scriptures:
It is unacceptable that they don't keep you up to date with how the process of your results is coming along. I understand that they may have no news at all but they have to get in your shoes and TALK to you each and every week even just to say "sorry no news". People waiting for a diagnosis are always stressed. We doctors have to understand that and give them at least 5 minutes a week to make them feel better.
Yep, but TBH at this point there is probably a lot of people involved.
never heard of a path on a biopsy taking this long
Continued thoughts of healing well to you.
That’s how it works in Ontario, Canada. You’d be lucky to get diagnosed w/stage 4 cancer within 16 months here. Stretched to the max
i am wondering if the tissue sample/s has been lost and they dont want you to know. tissue has been sent through so many hands it could have been misplaced or ruined
Good morning Éireann. Just a few pounds to put towards a Valentine's Day treat for you and your partner (and Teddy!). I really hope you have a good day, despite everything. We're all here for you and thinking of you every day and praying for your recovery. Stay strong. Rob 🙏
Thank you so so much Rob. This is too kind honestly!! Happy Valentine’s Day I hope you have a lovely day 😊
@@diaryofeireann Thank you very much. We had a good day - just a takeaway and a couple of glasses of bubbly! You deserve all the kindness in the world and everyone’s prayers. Take care, Rob x🤞🙏
The "anxiety" diagnosis is the "hysteria" diagnosis from the 1900s. This medical gaslighting is atrocious. When I was going through my autoimmune disease diagnosis you bet I made a pain in the butt of myself. It's your health!
Sometimes, I forget my brain tumor. But I gave him a name in the beginning.
I called him Willy. I pray that he is a nice guy that will not grow anymore.
I gave my brain tumor the name Herbert. But i gave him the name at the time before surgery. Before i never really thought about him.
Thats funny because I named mine too. 😂. I call it the monkey named Dude. Dude causes so much pain and i also say the monkey is acting up. Haha
I had a uterine polyp I named "Peany." Peany the polyp. LoL
don't personalise the cancer. never call it 'my' or 'mine', that's the biggest thing i took from relatives/friends who survive it. they always kept the cancer outide themselves, not an enemy, just as something that never belonged to them. by making it 'yours', you attach yourself to it, and it to you. don't. if my comment irritates you there's a good chance you've personalised/attached to it.
I totally understand naming it, it's also super common. I was about to name mine, but then i realized, i want it dead as hammer, so i skipped the naming it part.
I feel we should do that gives us peace and strength. For some people its naming it, for others its a bit different.
you're amazing Eireann.. these hospitals should call back the cancer patients-even if they don't have the results. that should be considered part of the treatment so you don't feel so alone.
Love this idea! ❤
I've had some serious health issues. Sometimes when I was trying to remain relentlessly positive the stress would manifest in my body in other ways and leave me in emergency. I found it helpful to set aside half an hour every day or two to actually think about everything I was worried about head on -- I would write the worries down and then move on. A positive mindset is so helpful, but I now try to keep an eye on myself to make sure I'm not using positivity to suppress the full range of feelings that anyone would feel in a difficult situation. I also found it helpful to reframe stress as a natural human response, rather than a negative.
I wish all the best for you, and I hope everything goes well. If you ever need somebody to talk to, then feel free to come back to this comment whenever, even if it's a long time in the future, and reply to me so that I can give you some ways to contact me
You have so much patience. I get annoyed when an amazon delivery is late.
You’re coping with such grace Eireann, amazing! Sending so much love and prayers. ❤🙏🏻
Eireann you are so beautiful! Thank you for sharing your beautiful story! You will help so many others ❤
Has the possibility come up that the brain surgery could have caused inadvertent *injury to a part of the brain that is involved in regulating natural breathing?*
That might be more consistent with an abrupt change than the catch-all of "stress", which of course was probably present both before and after the surgery.
I've noticed that doctors have a tendency to effectively gaslight and cover for themselves, whether intentionally or not, by attributing to mental causes anything that they don't otherwise have an immediate explanation for.
My dad died from a Glioblastoma in 2012. He was diagnosed in July and passed 3 months later. I can't believe they haven't given you a diagnosis yet. Will continue to pray. 🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼 Just remember you have to be your own health advocate if it was me, I would be camped out at my Dr's office lol
FFS I'm sure Éireann will enjoy reading about your depressing story.
possibly ask about the medicines you are on for seizure - they could also be contributing to how you feel.
Heaven is the place where all the dogs you've ever loved come to greet you!!! Be happy my dear!!!! You are going to a wonderful place!!!
Your tumor is getting the grand tour of Canada at this rate.. hope you're keeping well, good luck for Thurs, keep on keeping 👍
Having faith and Trust in your surgeon is the most import thing when it comes to these type of issues!!!
You’re very patient Eireann, I’d have camped outside his office!! ❤ Sending good vibes to you for the week ahead!
Stay strong, wishing all the best, I'm with you !
Just so happy to see you!
Of course you are stressed. It’s been 3 months with no official pathology report. You’re just so sweet and lovely that it doesn’t show. Your positive thinking helps but they need to do better and keep you informed, even if there’s nothing new. 🙏🏻 for answers soon.
Love how positive you are!
sending lots of prayers for good news!
Stay strong. You are a bright shining light!
Keeping the prayers going for you, sweet girl. ❤️
Eireann, thank you for the update. Wishing you good health and many blessings!
Keep it up, little by little you're getting closer to answers and recovery dude! We love ya!
So happy to hear an update and that you're feeling positive! You've got this!
you’re doing so amazing dealing with all this and the waiting ❤❤
So glad you don’t have a blood clot. Hoping you get a great biopsy report soon. You are all in my prayers.
Sending healing vibes and good energy for a swift recovery
You have so much resilience. You're a warrior. Keep it up! 💪🏻
The gratitude texts are a great idea 💡
I wish you the best and happiest news coming soon!!
Thank you so much for sharing your journey, continuing to wish you all the best! ✨
We are all with you on this journey.
🌞🧚♀️💕
You're doing such a great job and I admire your attitude in all this. Glad you have a good friend to lean on every day.
Keep the positive vibes going on. You're very inspiring ❤
Thank you for the update, sending positive energy your way. Your pup is adorable 🥰
Thank you for your update
Still praying for you
Stay stress free it’s amazing what it does
🙏🏻 praying for good results of all the tumor tests!
You are such a kind soul, and are managing this post surgery result reveal so well.
you are so amazing Eireann. so postive!!!! your puppy is so cute! God bless you girlie!
Thinking of you and praying for you every day, Éireann. Take care. ☺
wishing for a speedy and positive result. cant imagine how stressful this can be
Your positivity and optimism are truly inspiring 🥹❤️🙏🏻
Glad to see you are doing well relatively speaking, I saw your first video yesterday.
i've been researching a lot about anxiety complications, since my tumor got diagnosed, because my body immediately changed a LOT .
Shortness of breath is definitely a possible consequence of anxiety, Its abundantly documented.
Anxiety is no joke... but certainly when you know what causes it its a lot better than when you dont.
I would not exclude this possibility, just make sure you exclude all the critical stuff, witch sounds sounds like you are doing, witch is grand.
You keep on shinning you magnificent diamond you! You got this!
The unlikely thing here is probably that anxiety would account for a sudden problem after surgery that wasn't there before, not that stress couldn't cause breathing trouble in principle. Doctors can have a dangerous tendency to say "it's your mind" (in more polite words) when they don't have enough of a clue to look impressive enough right away otherwise (and I have found that out the hard way, but that's not the point now).
One thing that might account for the specific onset after surgery might be a *brainstem injury affecting autonomous breathing*. That would be an important thing not to overlook by assuming too easily that anxiety was the root cause.
I'm not trying to argue with you, just to get a dangerous easily overlooked issue into the discussion somehow even though comments I post tend to drop near the bottom of a "top comments" sort. If a host of possibilities could all get mentioned in a thread that she would see, that might be good. I am not claiming that I know what the actual issue is, just one thing it might be that would be potentially disastrous to write off.
As a person who has major anxiety, it feels like there is someone sitting on your chest and you can’t take a deep breath. Of course continue to make sure it isn’t something like your heart but it is possible to have anxiety after dealing with the unknowns and what the medical system keeps doing ❤ I wish you well.
@@Innocent_Villain I think we are all positive people.
I totally understand your point, I feel like you completly missed mine, and also that you are confusing anxiety and stress.
Anxiety is real and > 70% of post-op gases have it. It literaly feels like your chest is heavy or that you cant breathe properly.
Protocol appears to be to eliminate immediately fatal physical scenarios.
Then move on to emotion complications witch are incredible common.
Certainlly given the location of the tumor and that the only symptom is dificulty breathing, breain stem insury probability has to be very low. I underst fluid have to be brained in many surgerys, but surely brain stem damage probability is less than 70%.
The point of my comments was to exclude lungs and heart, and after that accept that mental disorders are very real and equality detrimental to your health, anxiety at the extreme can even be fatal. Being aware of it is a MAJOR step forward, as it enevitably leads to one finding ways to cope. For me for examply Im learning breathing exercises to do when things get bad, it helps massively.
Getting the result of my lung and heart tests also.. almost instatly releaved my symptoms... you know.. everyone and everycase is diferent.
My 5 cents were simply that mental disorters are absurdly common, in fact the most common complication we can find from brian surgery for tumor patients is anxiety. I could not find any other complication with an incident rate > 70% ( tho mobidity and letargy are arround the same as axiety, but are also emotional disorders)
I dont think there is a physical complication with an higher probability. And at least for me, acknowledging what my fight is gives me strenght and peace. Sometimes, while looking for the urgent we forget other things. It's important that when the urgent is done, work continues to find the cause. That was all.
for example, It very easy to forget how much effort we put into looking brave or good for others, and suddenly we are wondering why we feel so tired, as it all felt so natural.
Just a tough really. Everyone is diferent, I can only share my experience and personal research.
Doing a great job keeping upbeat Eireann. It's perfectly natural to be stressed in this situation. Sending best wishes and hioping you get proper results soon.
Glad you're doing so well 🥰 Your vlogs are amazing! I hope you start doing them again 🎉
You are such a lovely person. I hope you get some answers soon. Your patience is amazing!
It was so good to hear from you, I literally have been looking for an update for you for the last couple of days and I'm so glad to finally have seen it. Your courage and strength inspire me so much but one thing that inspires me even more is your patience and kindness. It's good that you have been dealing with good people, but it must be hard to always be patient and understanding and grateful. Sending you loads and loads of love and strength, thinking about you.
Sending you so so much love and hugs I’m so so sorry for everything you’ve been through and are going through 🩷🩷🩷💕💕💕💕
Grateful to hearyou are doing well and remaining very positive. Thank you for the update. Stay positive and have a great weekend! ❤🙏
Hi Éireann, hope you're having a reasonable day. I'm keeping my fingers crossed that you'll soon be able to get on with your life and put this difficult period behind you. Sending love and prayers.
Im wishing you great health and more great news to come for it! Thank you for the reminder about being grateful. You are an inspiration for me to be positive, patient, and brave in very dire situations Eireann! Have a wonderful day!
Great to see you and thanks for the update. . Love from Edinburgh 🏴 ❤
Stay strong girl,i love your videos ❤🫶
I can't believe it is taking this long!!!!!!!!!!! I hope you get some good answers soon and that you experience a full and lasting recovery!
Love the update, you're looking very healthy. It's lovely to see. Wishing the best, have a lovely weekend!
Thank you for your updates! I am still praying for you and sending positives vibes!! I hope you get your results soon!! You are doing a great job of staying calm and trying to be patient!!💗
I've only commented once before, But I do watch all your updates and I'm team Eireann and root for your speedy recovery and good test results. I admire your patience. I would have been cursing and screaming by now. I hope it is stress and nothing to do with your heart. Though stress is no joke, You never realize you're stressed till the stress leaves. But a way better problem than the heart. Positive vibes only for you. You are so amazing.
Thank you for update! ❤
Continuing prayers for a great outcome. 🙏🙏🙏
You got this. Most amazing result ASAP insallah. Much love
So glad that lovely girl took the time to help you to learn more about what is going on. Your patient, sweet spirit is so inspiring, wishing you all the best!
Sending you ❤️ love and prayers. 🙏 ❤ by the way, you have such a great attitude! I really enjoy your videos!
Hopefully, you are close to a diagnosis. Your positive energy is just amazing.
Your beautiful soul shines so brightly through your words and emotions. You are helping so many more than you will ever know. You are doing GREAT.
Continued prayers. Teddy is adorable. ❤
Thank you the update, I am sure it's going to be as you say, grand the next update! Also, such a lovely little doggo
so glad you have a friend who contacts you every day ❤ - many of us don’t have such a thing 😢
I’m sending you so much love, healing prayers and positive results ❤🙏xxx
I love your attitude!! You're doing well with the awful wait, but it won't be long now! It will be soon, and with GREAT news! You're a lovely person. Prayers and love sent across the miles. ❤🙏❤️
You are such a lovely person. So graceful. I know this is going to be great for you!!!
Sending love and healing vibes to you dear Eireann ! You are so loved 🤍we are with you thank you for sharing. everything is gonna be just fine! the hard part has already passed and you are extremely powerful!
I’m full of admiration for the grace in which you are traveling through this journey. All the the best on your journey 🙏
U are such a fighter! Sending love to you and ure cuuuute Mr. dog 🍀
Thank you for sharing the latest updates. We all are positive about your test result, it will be all fine, sister. Take care.
Eireann ❤ you are so awesome ! I don’t care what you talk about, just keep putting out the videos !!
You are such an inspiration to us all. Sending love and best wishes.
You are remarkable in the way you are dealing with all this and sharing with us. I love watching your videos. You’re so lovely and upbeat and such an inspiration in how to deal with difficult times in life. I also love your accent and could listen to you for hours. I especially loved this one with your little doggie. Thanks for the update. I was looking for one yesterday and was glad to see one today, except I wish you had all great news and didn’t have to wait any longer. You are in my prayers. Hang in there. ❤Kristina
So happy to know it's not a blood clot. Looking forward to seeing your videos, they'll make you relaxed too 😊
You're a joy to hear on your updates! Would love to see more of Teddy, little sweetheart! Sounds like there's some momentum with scans and meetings. You really are a great advocate for anyone stressed in a similar position. I'm a lot older and it was hard for me doing an MRI on my brain (after brain bleed). I checked out his face and expression (the Dr who scanned) because I knew if they let me home I'm good! No yes or no on the scan, but hey I was grateful to go home! Sending you all the very best, you can do this xx
It must be so hard to experience all that you are going through now, yet you can remain positive. Just incredible. May God kindly continue to give you strength. God bless you, Éireann!
So happy for you that it wasn’t a blood clot! Hopefully there is nothing wrong with your ❤! Your Teddy is incredibly cute 🐾❤️
It's very windy here in North Wales today, so I'm hoping it will carry lots of positivity and love your way!
keeping you in my thoughts, hope all goes well
Hi Eireann, Thanks for the update, you seem truly in good spirits. I can see the holy spirit in you. You are loved soooo much. great video to start our weekend.!!!!!
Thank you for the update. I've been curious/worried for you. It may not seem like progress, but knowing what it's not (a blood clot) is progress. Still praying for you and a great outcome. Thanks for sharing your story and stay positive.
You are an inspiration!!
Thank you for your update🙏. I’m glad you mentioned abt 3 things you are grateful for with ur friend. My daughter is waiting on results of a kidney tumor and I’m sure she is stressed but she never shows it. We live over a thousand miles away so we only call or text. So I may try to do that with er. I would love to follow your video of your daily or weekly life bc I’ve never been out of the US. You are so positive and upbeat. Prayers for you continue.
Still holding my thumbs for you and I know everything will go well!
Good morning, Éireann. The sun is shining here on a cold, frosty day in north-east Wales. I'm hoping the sun will shine for you today both literally and metaphorically. I'm keeping my fingers crossed you're going to turn the corner and get the good news you deserve. Always holding you in thoughts and prayers.
Real glad you got the test.
Hope the scan process goes well next week.
That was kind of the woman to attempt to track down some answers for you.
UofT hospital is kind that way.
The system lost my specialist so I started there to find him after my GP couldn't.
Keep us posted and adore your fur baby ❤
Hello! You have such a beautiful soul & lovely spirit! Not sure how I came across your videos, but enjoy hearing your updates! Stay positive ❤
Thank you for posting so honestly and displaying such amazing maturity and level-headedness in the face of something that must be really quite terrifying.
I feel for you and your husband. Five years ago my partner was diagnosed with the very rare disease CTEPH. This disease causes blockages in the arteries of the lungs and the back pressure that this creates distorts the heart and leads to heart failure. By the time she was finally diagnosed she was already in a wheelchair and was experiencing extreme difficulty in breathing not unlike what you feel with this heaviness on the chest but at the time she needed the assistance of oxygen to remain conscious.
Although an incurable disease, there are treatments to help manage the progression of the disease and thankfully my partner has exceeded her prognosis and it's still with me five years on. We battle it together. But I can appreciate what your husband is going through as it tears your part inside. But it makes you stronger and certainly makes you appreciate every single day you have together.
I wish you both well, sending positive vibes and love. ♥️
You´re so calming. I don´t know why but watching you in this video makes me think of sunny spring and tiny flowers in the grass. Thanks for that :) Be well soon.
Your gp is certainly taking you serious, that's a good thing. The pain felt after the brow thing is nerves going buzzing, you've had open brain surgery and just by cutting the skin (where there are nerves everywhere) the nerves will be affected. They are now growing out, trying to find their path. Nerves can also give reffered pain, meaning if a pinched or damaged (cut) nerve, it can give pain else where than the actual place being pinched or damaged. Thanks for the update, hopefully soon you'll have an answer and able to fully relax. Stress can reveal itself in very different shapes. Have a great weekend! 🌸
You're amazing wow. So positive!!