my brain tumour diagnosis | MRI, treatment options and where we're at...
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- Опубликовано: 18 фев 2024
- After 79 days of waiting, I was told that I have a grade 2 diffuse glioma with braf mutation brain tumour. We've had a few appointments since then to the cancer clinic, the blood lab, 3 month MRI and over the phone to the hospital. In this video I'm just catching you up to where we're at.
Things have been a wee bit tough emotionally during this time but I continue to be grateful every single day. I appreciate every single prayer, message and comment.
If you're also going through this right now I'm here for you ❤️ If you want to chat please feel free message me on instagram @diaryofeireann
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I wish I could keep up with every single comment. Thank you so much for being there. Thank you for the hope and kind messages 😊❤
Hey, I'm 24, I just went through 10 months of chemo, 28 days of radiation and a surgery. I had a tumor on my spine, very different than glioma but if you want to talk, feel free to reach out (contact info in my channel description). Following along, stay strong!
Praying for the best for you. I have had a lot of different cancers in my family and Cancer is something I really hate. I do believe keeping that positive attitude will help you a lot. ❤
I had Head and neck cancer. The treatment was harsh. That was in 2012. We are in 24 now its never come back.
I had a 2nd cancer nothing to do with the first one. It was in my uterus. They gave the old open you up and take everything out way. Im fine now xx
Im praying for you x
I was diagnosed with triple negative breast cancer in may. It's a rarer, more aggressive form of breast cancer with the least amount of treatment options. But, there's constant advances in treatments that are making such a difference, so try not to see the current stats as something definite. I've completed 5 months of chemo followed by surgery in January, due to restart chemo and immunotherapy soon. I'm only 31 and definitely the youngest person in the clinic.
You are a trooper! Keep the positive attitude & plans to get home to Ireland for some soul food & love 💚🍀🙏 wishing you & the family the very best ❤️ xxx
I was 23 when i was diagnosed, grade 3. I did all the treatment. Its been almost 9 years with no recurrence. Stay cute and stay positive 😉
That's AMAZING!!! You're so so strong I'm so happy for you. Thank you for giving me so much hope 😊 If you feel comfortable sharing (it's 100% okay if not) would you mind letting me know what type you had?
I was 22yrs when my brain tumor changed my life (astrocytoma IDH1 mutation). I’m now 34yrs! Soooo happy to hear this! Thank you 😊
@@diaryofeireann You're extremely brave. Please Look up the carnivore diet (for cancer)
..Jordan Petersons wife beat (terminal) cancer. But look up the likes of
Doc Anthony Chaffee Doc Berry
Mikhaila Peterson etc etc many people who are doing this for both health but many to fight against/prevent reoccurring cancer.
God Bless and sending positive healing thoughts energy and prayers from London ☯️⚛️♾️🕉️✝️🙏🏴🇬🇧
@@diaryofeireannLook up Paul Stamets Turkey tail mushrooms for cancer and also Doctor Anthony Chaffee andCarnvivore diet for cancer. ❤️☯️⚛️♾️🕉️✝️🙏🏴🇬🇧
This. I love this! ❤
Even if the glioma would be re-occurring in five years' time, by then the possibilities of modern medicine would already be tenfold what they are now. Especially in treating gliomas, new protocols are emerging every year. Worry not, my stunning Eireann. You will be here on RUclips talking to us even after you have grand children 💚
This comment almost made me cry lol thank you so so much for this ❤️
💚💚@@diaryofeireann
This comment made me tear up. ❤️
THAT is almost a given. Life expectancy by then will have skyrocketed
That's exactly what I was thinking......Donna LeComte Leone,R.N.❤
When I was 18 I was diagnosed with cancer. They said my 5 year survival rate was 60%. 60 is a great number but that was my chance of living only five years, so not really that great. That was 40 years ago. Ignore the numbers and keep positive.
Im a girl from far away Russia and i got randomly recommended your first tumor video on yt and watched your jorney ever since. I said about you to my mom and showed her your videos and translated it for her and now she asks me every time "how your Elvish lady is doing?". This is a nickname she gave you because you remind her an elf (and also because she can't pronounce foreign names probably 😅). Just know that there're people from all around the world who are rooting for you, admiring your strength and believing that you can beat all struggles!
Her name basically translates to ирландка in Russian. The English version of the name is "Erin", which would probably be "Эрин" in Russian. Easier to pronounce, if you're looking for a way out. But elvish lady sounds badass, so I wouldn't change it.
Привет, земляк!
She absolutely could've played an elvish woman in Lord of the Rings. She has those amazing crystal, ice blue eyes, golden blonde hair, and sharp facial features. So very beautiful. God bless her.
Take care there in Russia ❤ times are tough
What a wonderfully worded message. 😊 We are all on a journey thru this ‘life’ and never know who or what will appear next. Sharing our path can draw in the exact soul we need at that very moment, helping us and encourage us onward. Your comment has sent a spark of positive love and it will continue to grow as more read it. Just knowing others care enough to mention us to their loved ones is very powerful for healing.
Eireann, you'll beat this. You absolutely will. As I've mentioned in comments on other video updates you've done, my 16-year-old nephew had (HAS!) a glioma that was inoperable and couldn't be removed. He underwent chemo and radiation. That was 15 YEARS AGO! He's over 30 now and living a healthy, busy and active life. Don't let those awful prognosis lists scare you. Every single person is different, every single case is different. You will beat this and we will be here throughout your journey and then when you come out the other side and back to your former goofy life again! Deep breaths, girl. We love you and we're supporting you every step of the way. God bless you xxx
This was such a wonderful comment ❤
we live in reality unfortunately, terminal is terminal, not possibly terminal.
since she mentioned GBM i assume astrocytoma as well like me. as that has 100% chance it WILL become GBM one day, not "maybe", 100%
@@winifixwell said !my thoughts exactly
@keira-stickybuns
You don't know if she'll beat it.Dont give false hope
@@PatriciaMartinez-kn6ud And you don't know that she won't! Don't be overly negative and pessimistic to someone who is going through such a sensitive and frightening point in their lives! Jeez.
@eireann, Please take this to heart. My wife had a Glioma that was removed 18 years ago with no re-occurrence. She did have surgery, radiation and chemo (BTW, the chemo is pill form for brain cancer and not covered by MSI). Stay Positive and live everyday with the attitude that you can can totally beat this.
Thank you SO much for sharing this with me ❤️ You and your wife are so strong and she literally killed it 💪 This has given me hope. Do you know what grade she had by any chance? (no worries if you don't want to share that I understand)
What kind of glioma was it? There are low grades, which grow slowly...and there are high grades. There are some that intertwine into the brain like spaghetti in a colander. Did it have any mutations?
@diaryofeireann it was deemed a low grade 3/high grade 2 because it had 2 different types cells.
@@diaryofeireann keep in mind...it doesn't sound as if it had any kind of mutation.
@@chadsmith946 It is so kind of you to share this. It's always comforting to hear that someone else had it and beat it.
My oncologist told me to not think about survival rates as those are averages across a population of cancer patients. He said each cancer case is unique in many ways. And that I should approach my cancer as an individual case with optimism that I will be a survivor. My cancer has a 5 year survival rate of 34%. I will hit the 5 year anniversary of diagnosis this fall. So far I’ve had no evidence of disease since my treatment, so I plan on beating the odds. I want you to beat the odds as well! I think you are smart to work with doctors back home to get another perspective. Cancer is a complex disease. Treatments are always changing based on new knowledge. It takes a lot of courage to put your situation on RUclips for the world to see. I can tell you receive lots of good psychological support from all the people whose lives you have touched through your RUclips stories. You are an amazing young woman and I wish you the best as you move forward. You probably don’t realize what an inspiration you are to others!
Yup, I've said this in my comment as well. Most people with cancer are pretty old. It's not unlikely not to live forever, even if the cancer doesn't return. But for the statistics, you still haven't survived if you die from natural causes after treatment. Those statistics are a basic indicator for something, nothing more. Many times the sample size for them is tiny. I've seen a statistic for a special kind of cancer based on about 60 patients. That's next to nothing for conclusions about new cases.
Best of luck to you, but sounds like it's looking very good for you!
It is also important to consider the age, as cancer usually happens in older patients that have a weaker immunity than younger people. I am not very sure how they even tell if a death was due to cancer at certain age - for instance if an 80 year old person dies of a heart attack and also has an advanced cancer, would it be a cancer death?
@@analogueapples your highlighting the challenges with medical statistics. The problem you stated was also a problem with Covid death statistics. Many people who died while having Covid were incorrectly categorized as a Covid death when the death was caused by some other disease process. I would guess there’s a fair amount of statistical errors in analyzing the deaths of people who have cancer. A lot depends on how the death certificate is filled out and what the primary, secondary and tertiary causes of death are shown to be. Metastatic cancers cause organ failures, which ultimately are the cause of death. However if one did not have cancer, then the organs wouldn’t have failed. A death can also be caused by cancer treatments. A surgical infection. Or from the side effects of radiation or chemo. I believe 5 year survival rates are driven by the assessment of is the patient dead or alive 5 years after diagnosis? Without too much assessment of actual cause of death - perhaps with the exception of accidental death. This is why statistics are so hard to believe unless you know exactly what is behind the analysis.
My husband was diagnosed with grade 2 low grade glioma right frontal lobe 6 cm tumor at age 23. Similar to your case they didn’t want to use radiation due to his age and leave it for later use in case he needed it in the future. His tumor board at the time decided to do wait and watch approach ( they were able to do total resection during surgery) since again at his age chemo also wasn’t the best choice. We were told the exact same words you described that it will come back , chances of survival etc. it’s been 7 years and no return of tumor so far. He just graduated nursing school and we are about to plan for a kid.
Just wanted to say that please don’t live in fear and anxiety . Stats are just stats. I learned the hard way and was quite anxious in the beginning. But 7 years out it’s a whole different experience.
You got this! Feel free to reach out if you ever have questions since we have been through what you are going through. Also, there is Facebook page for grade 2 tumors that we found helpful in the beginning. You will be okay :)
Dear Éireann, I am so sorry to hear of your diagnosis, and thank you for the bravery you have shown in recording this video and sharing it with us. I suppose one must be grateful that it is not a far more serious grade IV but nonetheless, it is a cruel blow and I cannot tell you how upset I am that you are going through this. You are loved by so many people now on here and, as I've said before, we will be by your side, even if we're not geographically close. A comment just below mine has caught my eye and I think sums things up well: "you are a beautiful person inside and out and so articulate". You truly are, and your compassion and concern for others despite your own challenges is inspirational. I hope and pray that as you battle to defeat this disease, the research continues and the pioneering treatments which are showing real promise will mean that your prognosis will ultimately be very much better than it might appear to be right now. With love and very best wishes, Rob xx (PS: A few pounds enclosed to put towards something nice to help keep your spirits up!)
Rob this made me cry. Thank you for your endless support and kindness but please don't donate anything else I feel so so bad. You have been an incredibly kind person throughout this process even me, my ma and Devin were chatting about your kind words the other day. Thank you so much again I really appreciate your support xx
@@diaryofeireann I'm so humbled you even noticed that I'd donated before and that you remembered my other messages! Devin looks a great guy from your videos and very grounded and it's so good that you have his support and that of your parents. Having that nucleus of close family and friends is worth far more than anything the rest of us can offer but it's such a privilege to be a small part of your life too and offer a little bit of long-distance support. I'm sure many others on RUclips would say the same. Don't ever feel bad about any donations you get from anyone - you deserve every penny. You're an amazing person and your optimism and strength of character will help get you through these dark days. God bless you, Rob xx
@@robcodsallwow, what an amazing person you are to donate and also your eloquent comments of love and support! ❤ you are a reminder of the good people in this world, we need more like you! Much love ❤💖💝
@diaryofeireann I believe in all of the statistics being quoted here. My 23 year old daughter, is one of them. (I'll tell you about her sometime, maybe.) Definitely, accept the donations with NO guilt whatsoever. It's the only way that we can send the "love" that we'd rather be giving in the form of a huge hug! ❤🤗 You can also take solace in the fact that there's still plenty of decent people in the world who want to see you, Devin, and the pets get back home. 😊
@@Sunnyflower67 AMEN! I couldn't agree more with everything you said! I'm sorry to hear your daughter has been struggling. Sending my love to you both! 💖🙏💖🙏💖
Sweetheart, I am 74 years old and I know only one thing for sure, and that is that God cares deeply about what is going on with you. Draw close to Him, and He will draw close to you.
I am blown away by your bravery and optimism. Do not give up! My cousin beat glioma at the age of 12. He is 40+ right now.
I’ve posted about my granddaughter before, eight and a half yrs at diagnosis.in 2013 with one of the worst of recurrence glioblastoma, it bears repeating she is now nineteen and a half attending her second semester of college. She had the standard of care (SOC) treatment radiotherapy, chemotherapy,, and an oral trial drug. She is the miracle I prayed for. I couldn’t imagine life without her. All I had was prayer, to turn it over to God. Watching how my GD handled this taught me to remember each day is the only day we are given. To be mindful to live now. I don’t want to spread false hope, yet something to think about. The Drs have to give you the statistics about this disease. They can’t tell you about the survivors. There are survivors. Lastly hope and attitude are everything. Tears are healing, if you cry doesn’t mean it’s a bad day. Cry for strength. You are in my prayers, I will light a candle for you, Peace Be With You.
Wow what a story. Glioblastomas are absolutely no joke. Amazing that everything worked out so well for her. Best of luck for her other 80 years of life.
Amazing and inspirational. Fingers crossed for your granddaughter. It sounds like she’s doing well.
What a beautiful comment! Prayers for your granddaughter! 💛🙏
Hello here Marco from Germany. Sorry for my bad English. I'm a few days older (now 37) and had my first operation 2 years ago. Astrocetoma grade 2 with mutation...I'm now getting my next one after 2 years, this time with chemo and radiation...I don't want any pity, I just want to tell you: you're not alone, my love and I'm thinking of you!!!! stay strong, that's the most important thing!!!
My mother (who would have been 105 were she with us) had 3 occurrences of her non-malignant glioma. Her first was some 35 years ago, and successfully removed. Her recurrences were pretty consistent 6-7 years. She received radiation but not chemo.
Your surgery & treatments are so much better & less invasive, causing far less neurological injury. She was in her 60's, and even then, she did really well.
You have the advantage of youth, good health and incredible medical advances. I am sending my wishes for you to be the patient to prove them wrong.
I did not know about the recurring issue until watching your videos.
May all the strength of your friends around the world just pour into you.
Blessed be
I have Stage 4 Gliosarcoma diagnosed since September. 11-18 month survival. No biggie, just killing it with positivity, diet and activity. No changes in my MRI, which is excellent. You got this!
While you have captured many peoples hearts already, I hope you continue your channel so that you may grow it past this season in your life. You are a beautiful person inside and out and so articulate. I love listening to you.
This is so so kind of you to say. Thank you for such lovely words ❤️ I started this channel to capture my memories with friends and family so I would love to move back to that and stay positive 😊
Wishing you lots of love xxx
In 2012 my husband was diagnosed with stage 4 follicular NHL, with one of many, a mass behind his left eye, His eye surgeon later confessed he wasn't sure that he would survive. Now in 2024 his cancer, although uncurable is and has remained in remission, his vision in tact. In 2012 there weren't any good treatments for secondary recurrence but now there are great secondary treatments. So should his cancer come out of remission now, he has treatments to take for it. So I am praying the same for you. God is no respector of persons. What He did for my husband, He can do for you. Time is on your side, put your trust in God and he will lead you through this. Also research a healthy diet for fighting cancer and water ph. Also keep in mind that sugar is cancers favorite food. 🙏❤️
Research metabolic treatments using intentional ketosis and other things to shrink tumors.
It's hard watching anyone suffer from the evil that is cancer, but for me it's especially hard when it is someone so young.
I'm praying for you, and I know you'll beat this! Say strong!
Thank you so so much for such kindness ❤️
Hello Eireann, 12 months ago I got a diagnosis of a Grade 2 Astrocytoma (also called a low grade diffuse glioma). It took 6 weeks. It is not the BRAF mutation but an IDH mutant. The main concern with these types of tumors is a IDH wild type which has a very high rate of recurrence as a higher grade tumor later on. In Australia, it is common for there to be a watch and wait approach after a “gross resection” for a grade 2 Glioma and now chemo/radiation is not as common front line as it would be if Grade 3… I had a fantastic surgical team and had no recurrence in the follow up MRIs, but always have “scanxiety”about the results. No one from the neurosurgeons team has ever given me a prognosis. Please learn the term N=1. Your outcome is not predetermined by statistics - your tumor is unique. I now say live your best life, and always make sure the first thing on your bucket list is “don’t kick the bucket”
I'm in radiology and things like CED and proton beam therapy are newer, state of the art forms of treatment and they are GAME CHANGERS. Remember your healthcare team is always there for you. Don't be afraid to ask like 100 questions if you need to. Don't be afraid to ask them for their opinion or for reassurance or for a hand to hold or anything. They've got your back, their entire job is to focus on you right now. You got this.
Such lovely words of encouragement x
I loved reading this.
Could you please say something more about that proton beam therapy? My partner recently had a glioblastoma stage 4, and I am trying to get any information that can be helpful to him. What exactly should I search for?
@@abiblabla I hope this person sees your question. Sometimes we miss them & they go unanswered. Maybe looking thru medical studies will bring forth the info. Also try the words mentioned in the comment on ALL possible search engines. I’ve noticed there were fewer choices with one or the other. So now I make sure I search Google, Duck, Bing etc. Also remove any restrictions on your searches. Good luck. 👍🏼
@@abiblabla proton beam therapy is a targeted form of radiation therapy that has less potential to harm tissues surrounding the tumor. Some oncologists will use this advantage to increase the dosage of radiation. Another thing to look into is cyberknife therapy. It is a similar form of targeted radiation therapy that uses robotics to irradiate the tumor with incredible precision. It has some advantages over proton beam therapy, but it depends on several factors, such as where the tumor is, its size, and possible contraindications based on co-morbidities. Your partner has gone to the hospital and has an oncologist and a healthcare team working on their case, right? Your partner's doctor should be able to decide what the best treatment plan is for them. If they haven't discussed it yet, don't be afraid to insist on an appointment with the oncologist and ask about these treatment plans.
Omg Éireann can I just say you make me so proud to be an Irish gal. The way in which you come off is honestly like you’re one of my friends from back home. You’ve the purest wee heart & I’m telling you now that you’ll never be a stat, just alone that the people in the oncology hospital were much older than you shows that the studies that have been done are probably not within your age range so you’re looking at a very very long life. Sending you loads of love and prayers ❤
aw thank you so so much this is such a kind message this has really made me feel better today ❤️ I'm hoping and praying you're right 😊 Also if you're still at home I'm soooo jealous lol please go have a wee bag of tayto for me today 😂
@@diaryofeireann you got this hunnay. I moved to London 7 years ago but I go back every other month. So if you get home before me have a bag of tayto for me. Sending you all the love ❤️
Dear sweet girl, this Grandma will continue my prayers for you. You are amazingly strong and I know you have the strength to beat this disease. Prayers from Tennessee, USA
Since 2011 I’ve had a “low grade 2 glioma (Astrocytoma) IDH mutation.” I was 22 years old when finding out. These past years I’ve had 3 brain surgeries, chemo/radiation and a new type of chemo for brain tumors.
In January 2024 about a month ago, I found out my brain tumor was back again at a higher level. I was lucky that my MRI was taken a month before. Right away started radiation and chemo (my second time) but this time I only did 10 treatments.
Despite all that, I have my son who is 6 years old and he’s my world.
A positive attitude always helped me with what I’ve been going through these past many years.
Eireann, thank you for sharing. I really wish we could talk. Please feel free to reach out to me ❤️
Sending you all the positive healing thoughts energy and prayers for full recovery and remission! God Bless from London ❤️☯️⚛️♾️🕉️✝️🙏🏴🇬🇧
new type of chemo? i only know of Temodar / Temozolomide - what did you use?
very odd for them to use radiation on someone so young, as it can only be done once in your life, and once done your neuro-plasticity stops working - so your broken brain is broken for life.
@@AB-C1 Thank you so much 🤗🩶✨
@@winifix This new treatment is called Tibsovo (Ivosidenib). For radiation, you can only be treated once in that exact area but can be treated in a different area. I didn’t do it exactly the same as last time and it was much harder. I’m planning to start my RUclips channel on brain cancer and everything I’m been through. I’m happy to help or if you have any questions 🙃
My mum has the same tumour hers is called a oligodendroglioma she got 15 years before recurrence. She is now 3 years stable from the second tumour. Don't worry too much about averages you can be a long term survivor and there's new treatments out all the time. We are from Northern Ireland x
I've been following your story and I wanted to share something that I hope will reassure you that you can beat this. My grandfather had a massive heart attack when he was in his forties. The doctors told him to go home and get his affairs in order and that he wasn't going to survive the week. My grandpa decided that he wasn't ready to go and completely changed his diet and lifestyle. He defied the odds and his body built a secondary vascular system. They didn't even know that could be done. I know that's different than a cancer diagnosis, but he got a death sentence at forty, twenty years before I was born, but he fought. He was my best friend and lived to be an old man approaching his 80's. Doctors are wrong all the time. You keep fighting and I have no doubt that you'll get to see your grandchildren grow up like my grandpa did. We're all rooting for you, beautiful lady. Best of luck. ❤
You're a stronger person than I'll ever be. Stay positive, you've got this!
This is so kind of you honestly I would never expect this. Thank you so much ❤️
Wow! You are an amazing lady. So brave and considerate in the face of such difficulty. Once I heard about your ordeal and how you reached out to help others, I was hooked. Thank you so much for sharing your story. I will pray for you as often as I remember to. All who know you must be thankful to be part of your life, for your incredible character and giving spirit. That’s how I feel about you.
Hey there, lovely. Thanks for the update. Prognosis is the the art of informed guesswork.
I was told that I had 2 years to live decades ago.
Lots of love ❤
Thank you for sharing that with me it gives me so much hope ❤I hope you're all happy and healthy and clearly you're so strong so thank you again
❤🙏🏼
Hi Eireann, My son was diagnosed with a brain tumour like yours in 2018. His tumour was on the his brain stem. He had a type of tumour that usually only little children get. He lived 2 years from his diagnosis, which was only 10% of people with his type of cancer live to see 2 years. Your cancer is obviously not as aggressive as my son's was and is likely a different type of brain cancer from his. Be very careful around flashing lights, as they can put you into a seizure. My son had to be very careful, even Xmas lights were hard on him. I am glad you have a projected life span of 10 to 15 years. It means there is time for them to find a cure to your type of cancer. They are making strides every day on finding new and more successful treatments for cancer. Hopefully, they will find a cure for yours. Take good care of yourself. I will be saying a prayer for you and your loved ones, that the cure for your type of cancer comes soon.
Im so sorry to hear that:(
I'm so sorry for the loss of your boy darl...❤
Come Lass, give it the good try, do the best you can~ no matter what happens, your beautiful soul will be alright. Praying for you every day, sending you positivity and love and care.
Today I learned my mom's bladder cancer is back~ she's beaten it back 5 times before....even though she's 88 soon, she refuses to give in and she's fought it for 48 years. Most days she doesn't remember conversations of a month ago, but does remember things when she was but a little girl as clear as day. But still she gives it her all and I have no doubt she will beat it this time too.
You never know what you can achieve until you give it everything you've got~ I'm rooting for you ❤
Just came across your story and have followed the videos through your journey. I'm so sorry you're going through this!! I wish I could give you a big hug ❤ sending you healing thoughts and vibration energy!! You will be the rare case that it doesn't come back!! You are so strong, compassionate and positive!!
Hello Eireann, i’ve just recently binge watched all of your videos and let me tell you, your ability to capture others is absolutely incredible. I’m a medical student and i’ve always been passionate about brain tumors literature and just neurosurgery in general, and after listening to your story i think there are almost no questions on what i’m gonna do. I know it’s very hard to keep a positive mindset when you get a diagnosis like that, but, you absolutely have to try not to focus on the statistics. Every case is unique, a friend of mine had a metastatic rabdomyosarcoma 6 years ago and he was told he only had few months to live; he doesn’t have a single cancerous cell in his body and he’s living a brilliant life. You’re clearly having a very healthy lifestyle since you’re in an amazing shape and absolutely stunning, so trust me, you’ll have plenty more to live than just 10-15 years. God bless you, prayers are coming from Italy as well🇮🇹❤️
This is such a kind comment and has made my heart fill up with hope. Thank you so so much ❤ I'm so happy your friend is doing amazing so thank you for sharing 😊
God love you, I am a retired oncology nurse and you have a difficult road ahead, but you have many people praying for you 🙏🙏🥰
Thank you so much I appreciate every prayer 😊❤
@@diaryofeireann I COMMAND COMPLETE HEALING NOW ! IN CHRIST MIGHTY NAME ! KINGDOM IS NIGH ! LOVE YOU SIS. 😇🤍
this is true, Amen, even if one does not believe, that spirit is still there, cancer CAN be crushed, ALL forms. Even if many times with the help of others.
Hey Eireann, I've been following your journey as well scince the first video (sorry for my english). Your story reminded me of the one of my grandma. She had the same cancertype you are now dealing with. Only back then the treatment options where very limited. The she got surgery but the doctors told her that, because its already advanced, there is no much hope that she will stay cancer free. One doctor told her that if he is optimistic she has maybe 5 years left to live. My lovely grandma was 31 when she got her diagnosis. And she lived until she was 78. She got 2 Kids and 4 grandchildren after her surgery, the cancer never came back and she outlived the doctor who told her she has no much time left by far. Every christmas she told us that story and she laughed hole heartedly. She was a strong lady, and she took life like a warrior. I am taking great inspiration in her. You are a wonderfull person and you will beat this like my grandma did! Im sending so much love to you -
A 27 year old gal from germany ♡
Eireann, I don't know why, I know we're internet strangers, but I feel a connection to you. What an amazing young lady you truly are, that even though you're going through something so reprehensible, you're thinking of ways you can support others! I do not have a brain tumor or cancer, but I have some other health issues (too much to explain in this comment.) so I know I can't possibly understand fully what you're going through, but I will tell you the ups and downs, good and bad days are normal. I admire your positive attitude, but be gentle with yourself, allow yourself to feel all the different emotions that I'm sure come with this! On a side note, I'm happy to hear you're moving home. Not only am I horrified by the medical treatment and experiences you've had, I think having the support of your family and friends will be a tremendous comfort to you. In the meantime, you have my love and support! Keeping you in my prayers and sending you love and light! ❤💖🌹
I’m so sorry you didn’t get better news. About the seizure meds; my husband had a brain tumor & he really struggled with the meds. First one made him so sick, next one made him a zombie, next one could never reach therapeutic levels so he had seizures. Thank God we finally found an Epileptologist (epilepsy Dr) who got him on the right medicine. But it takes so long bc you have to wean off one while slowly building therapeutic levels of the new one. I’m in Texas, so we can go to whatever Dr we want - not sure how that works with socialized health care. Anyway - you have to be your own advocate & insist on a different med if you’re not doing well with what you’re on.
Blessings to you & your family. 🫶
I’m going into healthcare after university in Canada and I am committed to making this system so much better for patients/humans like you. I know you you’ve encountered a lot of amazing practitioners but there is no doubt that you have also deserved better care and treatment. I think about you every day and even keep my family and friends updated about you😊 .. I can only imagine how lonely and scary this journey must feel for you but I want you to know that you are being held and cherished by so many. Thank you for sharing your story on here. We believe in you❤
You will continue to be in my prayers 💕
Thank you so much for your kindness 😊❤️
Thanks for this update. Sorry to learn of the news. Regarding the specimen (tumor): Don't travel with it or take it from the pathologist. If you want a second opinion, contact the person (e.g. pathologist at your home country) to study your operation, imaging, pathology, neurologist consultation reports etc. As a patient, you can go to your hospital and do a patient access to information request for your clinical notes, MRI reports and blood analysis, the pathologist report that was sent to your surgeon who called you and have it printed out or copied to CD (it may take a few days to prepare it). You can also go to the radiology department and get your scans burned to a CD or DVD. Take this with you when you go home or send it to someone you know in Ireland who can do a second opinion. If the pathologist at your home country wants to try and grade that tumor, they can communicate directly with the pathology department in Canada, to determine what additional work can be done to get a better diagnosis, if possible. Once you take the specimen away, you are potentially removing any possibility of someone else who is qualified in Canada, to have a second look. I do understand the tumor represents a lot of uncertainty to you, but at the same time, it is very valuable to clinicians and researchers in understanding the nature of this glioma. Your specimen will remain protected in the pathology department and you can discuss this with your surgeon. For all these reasons, I do agree with the hospital that the specimen should remain with them for now. Wishing you the very best.
Yes, this is excellent advice! 💛🙏
@@skiyogagirlFYI, in decades ago in my 20's I collected cancer tumors from pathology departments, for cancer researchers. They were used to develop new markers for cancers and methods of early diagnosis. So these tumors have a lot of hidden secrets and are very important for clinicians and researchers. But they must often be kept frozen or in solutions.
Hi I am diagnosed with a brain tumour too and I really believe God can heal you I will pray for you.
Crying is healthy, shouting is healthy, breaking stuff on purpose is healthy (and so powerful). Let it all out, never feel bad for it, don't apologise for normal reactions to a tough situation, your emotions need to be expressed and released. It's their right, it's your right. Keep following your intuition. I don't have cancer, but my life health was shattered four years ago and won't have quality of life ever again. I'm so sorry that you have to go trhough such a tough process, no one deserves it. I hope the very best for you. Hugs from Catalonia ❤
Over the past 8 months I had 2 MRIs and a ct scan. I found out a few weeks ago it’s a brain lesion in my right ventricle. They are watching it and I need another MRI in September. Your videos helped me- accept my uncertain situation. I need to say thank you! And that you made me happy. When you are down, it’s good to see a person who makes you want to be a better person to deserve whatever life you have left. It helps you reconsider things and feel less sorry for yourself. Thanks for being that person for me.
Hope you are well, have you had any symptoms?? How large is your lesion??
We're with you on this journey. Even though I don't know you, I think about you a lot. My Dad was diagnosed with a glioblastoma on the 1st of January last year and passed away on the 7th of March. He was 56, and it just blows my mind how cruel the world can be that this is happening to someone 30 years younger. Whichever way this goes for you, you're in my thoughts, and I send you alllll the virtual strength and positivity I can muster!!!!!
❤❤
Éireann, you must be one of the bravest people I have seen on this platform. To be so young and still have so much ahead of you yet you've gotten this dreadful news - I can't even begin to imagine. I just want to also say that as a final year medical student ready to start work as a junior doctor this summer, your story has inspired me to always be curious with my future patients and never settle. I truly hope that you get only the best news from here on out and that you live the most fulfilling and beautiful life possible. All the best, Adrian
Adrian this is such a kind message. Well done on being in your last year that's incredible!! Thank you for saying that and I'm so grateful because I know your future patients will appreciate it and be so lucky. Thank you so much again 😊
The fact you manage to take time out of your busy and stressful life to update the thousands of unknown people on your ups and downs speaks volumes about you and your character. You are a wonderful person and I’m sure, with your tenacity and valour you will come through the other side and prosper.
There’s a chance they’ll never reoccur. I had a low grade glioma at 13. It’s been 12 years and I’ve had no change. There is hope that nothing will happen. Don’t think negative. You’ve got this.
Donating to the animals travel funds. You are strong as hell, girl. I believe your life will unfold in a magical and joyous way, beyond any statistics. I believe this will all just be a learning lesson and a foggy dream someday soon. I believe you will be well and have a long full life. ❤
Oh I don’t have the words 😭 this is far too kind of you. Thank you so so much I would never ever expect this ❤️ You’re an angel I swear ❤️
Eireann, I’m so sorry you’re going through this. My first visit to a cancer clinic (for myself) was 33. I was so overwhelmed. I remember crying at the realization that cancer could happen to me.
I know you know this, but I want to reaffirm that there are people all over the world praying, hoping, manifesting and sending nothing but love and healing for you.
We live in a time where science and treatments are changing and growing so much, I believe you will benefit from those treatments like people haven’t before.
I look forward to your every video, and in between every video I think of you often. You have too much beauty, love and laughter to add to the world in the many many years to come, I truly believe that.❤️❤️❤️
I’ve worked in pathology in the US for 10+ yrs, and here the other hospital can request the slides and/or blocks and they will send them to them. Sending good vibes ❤
You are the same age as my daughter. Your words touch me and I want you to be well. Everyone here wants you to be well. Bless you Eirann❤
You’re a really strong woman! Emotionally and physically! You remind me of my mother I’m only 18 but my dad has had 3 strokes and needed to have brain surgery and I think the stress and anxiety made me have shortness of breath and feeling so weak. But my mom told me that we’re stronger than this. I’m sending my luck ❤ 🍀 to you and love 😊.
I’m so sorry. I’m praying it never comes back and if so I hope they find a cure before. ❤
Thank you I really appreciate every single prayer ❤️
Sending you love and prayers ❤️
Love and prayers from me too.❤
I am what you would call an “elderly” person (60) that are amazed by your strength to share your story. I listened to one of your first videos and have been following you ever since. Please keep on shining when you feel you can, I am sure it’s a med in itself both for you and your loved ones. I will give him, up there, a chat tonight.
Your gorgeous we will all chat call Jesus tonight and every night praying for her healing.your a lovely women yourself for your kind words for this gorgeous young eiren.
First time I had cancer, thyroid, I was 30. Second, breast cancer at 46. I’m 55 now and keep going knowing each day they come up with more and more cures! You’ve got this!!! I’ll be praying for you and sending love!!!💕💕💕
My heart is breaking for you. What a huge psychological and emotional situation, especially at 26. Sending healing love and energy.❤❤❤
You are truly such a special person. You speak so eloquently and have such a way about you that is so incredible special. I am honestly so sorry you’re going through this, it’s so deeply unfair.
You are an insanely strong girlie, and we’re just all routing for you. I don’t know anyone of any age who would have such insight and could speak about it the way you do. It’s a very powerful, strong trait. Keep doing you and being the positive light you are. We’re all behind you every step of the way ❤️
Thank you so much for such lovely words 😊❤
Positive thoughts and healing wishes winging their way. The thing with statistics is, no matter what the percentage is, some people do fall into the good side of them - there’s nothing to say you won’t. You can do this. ❤
Dear girl, be gentle with yourself. It's a tough diagnosis, but you are tough too. I'm glad that you're enjoying every good day. All the best to you.
Ah, sweet girl, I'm so sorry you have to walk through this, but you're doing it with such grace. You're an inspiration, and I'm keeping you and your loved ones in my prayers and sending you all the good vibes I can do. ❤
Thank you so much for such a kind message I appreciate every single prayer ❤
Hi Éireann, I'm really sorry you didn't get better news. I've been following your videos and have greatly admired your capacity to cope with such a difficult situation with such grace. I hope you will get home soon where I'm sure the support of family and friends will be a great help. Sending love from Cork, Ireland xx
Thank you so much for such a kind message 😊xx
You will come through this and you will beat this. The stats they’re giving you are for those people who were all at least 30 years older than you - tumours behave differently in young people and your outlook and trajectory are likely to be a lot more favourable. And medicine, especially in this field, is advancing at an exponential rate. There’s a huge amount of targeted therapies coming out and these will only get better and more effective. It’s rough news to hear but have hope ❤ we are rooting for you every step of the way!
Dear Éireann, your kindness and positive attitude is inspiring. Seeing how you handle the situation so calmly and the grace you have while sharing it, is… somehow comforting. They found something in my brain too, and it has to be checked every few months. Usually this kind of tumor doesn’t grow and is not malignant, but in 3-5% it is. So every checkup is kinda scary. If it ever goes bad… I want to handle it like you do. I’m a 100% sure you’ll battle it. Medicine is evolving and improving so fast. You have a long life before/in front of you. I’m glad you have so a great Dad and boyfriend. Their company will make the fight bearable. There’s a quote, it’s kinda silly, but sometimes it’s my mantra: Life is tough, but so am I. I’ll think of you and keep following your journey. Everything will be okay! Jasmin
Jasmin this broke my heart. Honestly far too kind of you so thank you so so much ❤️ I’m so sorry that you’re dealing with that and going through that stressful time. I will definitely say a wee prayer for you and send all the positive vibes your way. I know you’re going to be grand so please don’t worry. If you ever need someone to chat to I’m always here. (On Instagram I never miss a message) Thank you so much for sharing such lovely words I’m so grateful ❤️
Thanks for the update Eirann, as someone who is also a 26 years old diagnosed with a brain tumor, these videos have been very helpful for understanding how things can go (Although, they say the prognosis is positive, I'm still nervous waiting for my results). I admire your character and transparency. You inspire me. I hope all the best for you and hopefully you get to live a long and happy life. I'm praying for you.
Great things are boiling regarding cancer research. Its just a matter of time. The future is bright. As long as it doesnt progress further you have time to wait for the new treatment options. Or we can pray you are the rare exception that doesnt regrow. Seeing how lovely your personality seem, you must have some angel that owes you 😊
thank you so so much for such a lovely message ❤️ I hope you're right. I'm feeling hopeful 😊
@@diaryofeireann the good thing about getting cancer young, is you are stronger. I bet many of your oncologist patients, that you said lives 10-15 years are older. So take everyday as they come and and enjoy time with your fam! 😇
It’s much easier for your doctors office when you get home to request your slides, and then they will be responsible for returning them.
I’ve been following your journey and sending up prayers for you every day. I’m a cancer survivor times two, my last recurrence was 26 years ago. You’ve got this!
Hi Eireann, I was 28 when I was diagnosed with a brain tumour. Mine was completely different, not cancerous…but very large. I had to have surgery, and there was a moderate chance that half my face would be paralyzed. Thankfully, my face turned out fine. Although I have lost my hearing because of the tumour. I understand your pain, I understand being young and experiencing something that seems foreign. However, you are strong and capable of handling this massive challenge. It’s okay to feel sad, anxious, fearful and frustrated with the unknown. Don’t give up hope. Remain grounded in knowing that you CAN get through this. ❤
You are incredibly brave. I cannot thank you enough for making this video. My heart aches for you, you as you say, are only 26. But my goodness your whole entire family must be so very very proud of you.
I'm so sorry. I also have a low grade glioma, but I have opted out of all treatment because it is incureable and terminal. I have accepted that I have a shortened life span, and I try to make the most of it every single day until I cannot anymore.
Don't give up hope, and with respect, don't suggest to Éireann that there is no hope. While there is life there is always hope. Those who are young and strong and otherwise healthy, like her, will be on the right side of statistical averages. And such figures are often unhelpful in any case. Treatments are improving all the time and AI should also help in this. I wish you luck in your fight against this distressing disease.
@@robcodsall oh, I'm sorry for the misunderstanding. I definitely wasn't suggesting that there was no hope. We know this cancer impacts life expectancy, but I meant that we should cherish the time that we do have.
@@RR-wy4lz Hi. Thanks for the reply. Don't apologise - I shouldn't be telling you how to deal with what you are facing - I just don't want Éireann to feel more downhearted than she needs to be. You're quite right: let's all cherish the time we have left, however long or short that may be. Take care and good luck. Rob
With certain types of cancer, almost 80% of oncologists stated that they would not take treatment. Nobody has the right to tell someone how much time they have. We ALL are going to die. It’s a fact. Sometimes, miraculous things happen and our existence here is just our introduction to acknowledging our senses. The power of your fate is more in your hands than you realize. Chemo is brutal. I wish you positive vibes, clarity and go where your heart and mind tells you to.
I feel for you. I have stage 4 ovarian cancer and the outlook for me is also not so great. I have a breathing issue which cannot be diagnosed-I've had a heart ultrasound and I've been checked out by Pneumologie. I've been referred to physiotherapy and it's great. We are no sitting doing breathing exercises! We are working out what i need to live my life with this breathing issue. So i would recommend physiotherapy.I think its ok to not be grateful. I am grateful for for the diagnosis that led to the treatment and I'm so grateful for the treatment- but i hate it too. I'm not that my diagnosis was mixed fit so long when i was neck and forward to the doctor with symptoms. But I'm glad to be alive. Last spring and summer i literally smelt the flowers. I started painting too. But i have days when I'm just not grateful. It is what it is.
Best wishes!
THE GOD OF ISRAEL IS THE ONLY GOD! Read The Bible! And repent! ONLY HE CAN HEAL you, IF HE WANTS!
Yeshua Is The Messiah!
Sending you so much love Eireean❤ you’ve got this. You’re so strong and you’re going to be grand xx
You will beat the odds, I’m speaking it into existence for you ❤ you’re young, strong, and we love you and I’m keeping you in my thoughts!!
You're an angel honestly ❤ Thank you so so much 😊
Yesss, girl! Ms. Éireann is extraordinary. She’s got this ❤
You will get through this! I’ve had health issues a lot traveling to get to people to help and all that which is stressful. Mine I know is not even close to as bad as a tumor. But I’m only 12 no one can figure out what’s wrong with me with my non stop headaches and eye pain stomach pain it goes on and on. But someday somehow it will get better, we all have our prayers for you and take your time uploading because we know it’s hard filming while trying to process what’s happening.
You are very brave! Thanks for sharing so others can learn from your experience.
Thank you so so much ❤️
Like a couple of other people said on here, medical advancements are moving exponentially. The way things look now are nothing like what they will look like 5-10 years in the future. Although not quite as serious I got a diagnosis of a precancerous blood disorder this year more in line with people 20 to 30 years older than me, and I know it doesn't feel good. Just know you're not the only one. I don't know you but you seem like such a strong person and I know you can beat this! Keep positive as much as you can, even though it doesn't seem easy. How brave of you to even come on here and talk about it. I'm 10 years older than you but I'm looking up to you right now! Love and prayers ❤
Eireann, i think the fact that it was difficult for them to get a diagnosis, might just be a good thing. It might not act like other Glioma's and the reaccurence rate might not be as bleak as you think. I'll cross fingers for you that a second opinion will bring better news. Thinking of you from Denmark.
@pinkpanther70, I have a medical background and worked in the oncology field for 5 years. I am blown away that 3 or 4 facilities couldn’t provide a diagnosis. That’s the oddest thing I’ve ever heard. I’m begging her to get out of Canada and go to the US. I’m completely thrown because I have sit through hundreds of tumor boards and case studies and the way this is being handled is not right.
You are so strong! Bless you Eireann, you're in my prayers.
Sending love and hope for you. Stay positive and it’s great that you’re documenting this to help others who are going through it too. All the best ❤
Stay strong Eireann, I am sure everything is going to be ok
God bless you. My brother at 16 was diagnosed with testicular cancer which then spread to his lungs. He had someting like 13 tumours between 2 lungs. My parents did not tell him that it spread to his lungs to keep him as positive as possible. He had his testicle removed and got chemo treatments but he also went to a faith healer. My mother told me the doctors were shocked because when he went for his next scan all the tumours had disappeared. My brother told me he was given specific prayers to say at night from the faith healer. He was also told that he has to believe and have faith or it will not work. That was a bit over 10 years ago and it has not returned since. I'll keep praying for your full recovery thanks for sharing 🙏
Wow, that's amazing for your brother. I believe in the power of the subconscious mind.
Praying for you❤ you are so strong and positive and I just thank you for being so open about this whole process because this is such an incredibly hard thing to go through. I wish I could give you a hug
They say it *could* come back, it doesn't have to. Younger people often have a better prognosis. Have a really great diet with lots of cancer-fighting foods (blueberries, raw cabbage-family veggies, shiitake mushrooms) and your prognosis shoots up some more. Never lose hope, keep going, keep fighting. You can absolutely win this fight. ❤❤❤
I will pray for you, I am a man of faith and believe, I don't know if it will be of any comfort but your in my prayers.
I'm so thankful to hear about the good bits of news but deeply sorry about the not so good news, and that your dad wasn't able to be there when you got the call, that must've been so hard. I think properly processing news like this is vital, and going through a kind of grieving process to come to terms with what's ahead can be a strengthening step in some ways (for some people).
But doctors always have to give us the worst case, and too often the best case scenarios are overlooked!! Your choice to stick to the positive path is one that will win many battles, and I really believe you'll get through this victoriously. Stay strong Éireann!! (but also know it's totally ok not to be.) Sending a ton of thoughts, prayers and hugs your way. You are the sunshine of RUclips 🌻🌞💛✨
Your amazing! Keep you head high you will get through this ❤
Bless you, honey, thank you for the update, you do what ever you need to do to get through this and don't be afraid to advocate for yourself,even if it means questioning everything .
sending hugs and prayers your way xxx
You are a very brave and beautiful (inside and out) young woman. Although, the news is not what anyone would want to hear, please don’t ever give up hope! Everyone is different and no one can predict the future. The medical field changes constantly and new things are always being discovered and developed and no one knows what is going to happen next week let alone the next year or 5 years. There are a lot of people pulling for you and I hope that brings you peace and strength! God bless you and keep you in his care. I pray for you every day. 🩷🌷
Thank you so much for such a lovely message ❤ This has made me feel so much more hopeful and I appreciate every single prayer so thank you again 😊
@@diaryofeireann You are very welcome!! 😊
Continuing to pray for you, Éireann. This is a tough road. God bless you. Loads of love, 💖
I hope this young beautiful young lady all the luck. My mom and grandmother fought cancer for 20 years before they passed.
Awww Eirean. I’m so sorry to hear your news. Take as much time as you need through videos, you don’t owe us anything. Sending you so much love all the way from South Africa ❤
You’re so inspiring ❤ My Dad had a glioblastoma and lived about 7 months past his diagnosis. He was strong and brave just like you but he hid his feelings from us kids. I feel really guilty now for not being there enough for him. I was 18 and leaving home at the time (Mum encouraged me to leave and move to a university in another town, so I only saw him in my holidays) I did what my Mum told me to do, but I have felt guilty. Sometimes our brains can’t grasp the enormity of situations and mine definitely can’t. I just carry on as usual. I also had no idea that the radiation he had caused brain damage!
I am so glad you’ve got some kind helpers in your partner, family and hospital staff. Glad you’re taking your pets home with you too! Those fur babies are very lucky to have you. Sending positive vibes to you, that you will have the best possible outcome and the strength and peace to rise up to all challenges. Love from NZ ❤
Such a sweet message 💕
I'm so sorry about your dad. I understand the regret of being away at that time and you feeling uncertain. Few make all the right decisions in troubled times. Remember he is always right there beside you forevermore. 😇
Thank you Abigail! That means a lot! I know he would forgive me, and I’ll help further his legacy by remembering him and sharing his story!! ❤ It’s very kind of you to reach out to me. X
What you can't forget about the 10-15 year lifespan is that most people with cancer are pretty old. If you get the glioma at 70, having a 15 year lifespan is pretty good. The mutation is also a very good thing. BRAF mutation can be exploited very well. Steps in treatment have been huge over the last couple of years. I've had to look into all of that before and the development in cancer therapy is taking huge steps. There might already be a new treatment out at the time something returns, if it decides to do so.
Just want to say that you are one of the few channels that I actually subscribe to! I love your positivity even when going through this challenging time. I have a very good feeling that you will defy any negative prognosis! Please stay strong and continue to keep us updated as you can. Good luck with the move, so glad you are able to take pup and bun with you!❤
Prayers for you Eireann, for your recovery and strength for the journey ahead.
Oh Eireann, you really have been given a LOT to digest. And, I can't imagine holding it together at MY age, much less when I was 26. I definitely agree that you should get a second opinion on your pathology results. I know I told you about my little chihuahua and the difficulties we had in getting her diagnosis. And, there is a part of me that still isn't quite sure we have the correct diagnosis; I think that's a somewhat natural reaction when the diagnosis was so hard to nail down, and was ultimately one that was very rare. We are all rooting for you and holding you in prayer. Your positivity is so inspiring. Keep the faith and we will be with you every step of the way. Hugs to you!
You are very brave, girl. Thank you for sharing the update. Sending lots of love 💜
thank you ❤️
I am so sorry you are going through this, Éireann! I'm so glad you have family support, and we, your online community, are here for you as well. xx
Let me start by saying that you are a really inspiring person! Going through this tough time but still being so polite and caring for others who might be in a same situation! I'm very sorry that you are going through this and I am sending you all my positive thoughts and love from Greece ❤. I'm sure that many will have mentioned it by now, but I think that one more will do no harm: medicine is progressing super fast and each year new studies bring promising new treatments to light. You definitely got this!
I admire your courage to opening your heart and thoughts to the public that much! By your videos, you will help other people, who are struggling with illness of any kind, so much! I will pray for health for you! ❤
thank you so much for your kindness 😊❤
Keeping you in my thoughts and prayers. I hope going home helps heal your heart and lifts your spirits. ❤️🩹
Thank you ❤