Living with a Rare Childhood Stroke Disease (Moyamoya)

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  • Опубликовано: 12 ноя 2024

Комментарии • 642

  • @themillerfam
    @themillerfam Год назад +1067

    So thankful for this video. Our 7 year old son, Lincoln, has MoyaMoya & CP as well and he is the most joyful, wonderful child. Thank you guys for sharing your story. ❤️❤️ You are amazing, Titus! His belly laugh is sooooo sweet!

    • @heyyothisisfire3687
      @heyyothisisfire3687 Год назад +24

      My favorite family on RUclips ❤❤❤❤❤❤❤❤

    • @mylittletent3460
      @mylittletent3460 Год назад +28

      My son is 15 and he has MM also.

    • @gb1914
      @gb1914 Год назад +29

      I immediately thought of Lincoln when I saw moya moya in the video title.

    • @themillerfam
      @themillerfam Год назад +21

      @@gb1914 we clicked so fast. ❤️❤️

    • @gaiagreco2954
      @gaiagreco2954 Год назад +20

      Thought of you and Linky immediately. You guys are doing such a great job raising and supporting these kids ❤

  • @avarice8770
    @avarice8770 Год назад +601

    It’s really nice and heartwarming to hear that his mom says she won the lottery with him. I am autistic, and I have felt like a burden for A LOT of my life. And we’re not. I’m not, and he’s not. It is simply not right that human beings, human lives - are seen as more or less valuable based on our income and productivity. What is more productive than bringing joy to others?

    • @paulagrant1073
      @paulagrant1073 Год назад +29

      All life is valuable. All are irreplaceable miracles of God, made in His image and like ness and have a unique purpose in this world. All life is precious.❤️❤️🙏🙏⚘️⚘️

    • @annagitana1
      @annagitana1 Год назад +21

      So well said. Everyone brings something of value to the world. This kid brings light and love.

    • @catness1809
      @catness1809 Год назад +13

      You're 100% right! Creating joy in your own and other's lives is one of the best things a person can do, and Titus does that everyday 💯💯💯

    • @ruth6833
      @ruth6833 Год назад +8

      Well said👍

    • @ruth6833
      @ruth6833 Год назад +6

      @@annagitana1 These special children bring the best out of people!

  • @MsPiinkFllamingo
    @MsPiinkFllamingo Год назад +178

    He honestly has a million dollar smile. 🎉

  • @jessicaraelene5276
    @jessicaraelene5276 Год назад +112

    Titus has the most contagious laugh. Such a beautiful little boy. He could totally be in child clothes ads. I love this family.

    • @educatorally3875
      @educatorally3875 Год назад +3

      this was my thought too!!! He could definitely model!

  • @doraneal5265
    @doraneal5265 Год назад +197

    Oh my 🥹 I just realized I was smiling through the whole video 😊
    This boy is such a blessing to the world.
    And his little laugh when Chris is "falling" is just adorable 😂😂😂🥰

    • @SUPERSPAZD
      @SUPERSPAZD Год назад +2

      My.Sentiments.EXACTLY.❤️

    • @daniellewallace1996
      @daniellewallace1996 10 месяцев назад

      I thought that Titus would pass out from laughing so hard. What a joyful little man.

  • @ridiculousman1664
    @ridiculousman1664 Год назад +352

    Wow, this kid is awesome, and so are his siblings. I smiled the whole way through.

    • @jeremiahallyn4603
      @jeremiahallyn4603 Год назад +14

      His laugh is just everything, so contagious and so cute 🙌👏

    • @TBIhope
      @TBIhope Год назад +5

      His family reminds me of the Swiss Family Robinson!

    • @julievanderleest
      @julievanderleest Год назад +5

      Me too! Smiled and cried.❤️

    • @openminds8765
      @openminds8765 Год назад +8

      AWESOME Family - so caring toward each other and all living in the Fullness of Humanity. Playing the cards that are dealt to them to the best of their ability and loving it all the best they can. Great Parenting. Titus is a true gift to y'al with many blessings to all he meets along his journey... Thanks for sharing your lives with us what an example to us all (let's find ways to pass on their love to others in some way big or small the best we can)

  • @DudeWhoSaysDeez
    @DudeWhoSaysDeez Год назад +74

    Their family seems to have a really good perspective regardless of their circumstances

  • @saml4004
    @saml4004 Год назад +32

    “You don’t have to have certain abilities or be able to do certain things to be worthy of love and acceptance” - mama PREACH!! My time as an aide and therapist for kids and adults with special needs taught me that school taught me NOTHING about unconditional love and acceptance. It’s a special thing to know and love someone with special needs that words can’t explain.
    Titus is adorable and obviously so well loved! Also, his laugh is absolutely contagious. My sides hurt from laughing with him so much. Thank you for sharing his story!

  • @JoBenny67
    @JoBenny67 Год назад +167

    What a gorgeous child. And that laugh! It fills my heart knowing he will be surrounded by such love all of his life

  • @positivelastaction3957
    @positivelastaction3957 Год назад +73

    What a beautiful on this child. Chris Ulmer really should get awarded.

    • @peachxtaehyung
      @peachxtaehyung Год назад +1

      Are you saying Chris has a beautiful smile or Titus? Lol

    • @positivelastaction3957
      @positivelastaction3957 Год назад +1

      @@peachxtaehyung Titus 😀

    • @peachxtaehyung
      @peachxtaehyung Год назад +2

      @@positivelastaction3957 ah ok sorry I was confused cuz you said what a beautiful smile and then you said Chris should be awarded so I took it as you were saying Chris had the beautiful smile so I was lost 😂

  • @strisselstudios3932
    @strisselstudios3932 Год назад +159

    Makes me so happy that he has such loving siblings. You're heaven sent Chris. Thank you for exposing me to such a wide array of individuals.

  • @balaam_7087
    @balaam_7087 Год назад +101

    You are a sweet little boy with a smile that can light up the room, Titus. Looks how happy you make your brother and sisters🥰

  • @imawake4532
    @imawake4532 Год назад +123

    Chris, I want you to know what your channel has done for me. Im aware of so many things now I wasn’t before and I’m a better person seeing these amazing people on your channel. Thank you and God bless you and every person you interview.

    • @SqeeG
      @SqeeG Год назад +1

      Amen! I agree! Same here!

  • @jsokalski123
    @jsokalski123 Год назад +86

    I love how Chris interacts with the kids and plays with them instead of interviewing the parents and that it. Thanks for putting your time talking and playing with the kids ❤ love you chris

    • @aleksjenner677
      @aleksjenner677 Год назад +3

      Of course he’s not going to ignore the kids, he was literally a special ed teacher before his current gig…

  • @7timsch
    @7timsch Год назад +13

    The answer to "why is Titus so happy?" is that he is well and truly loved.

  • @jeremiahallyn4603
    @jeremiahallyn4603 Год назад +141

    That little guy is simply adorable! He is so full of happiness and joy, and he is loved so much by his awesome family. Brings a smile to my face for sure 🙂✌️

  • @bileigh8675
    @bileigh8675 Год назад +57

    Beautiful family. The mom is one of the most articulate people you've interviewed regarding disability.

    • @ruth6833
      @ruth6833 Год назад +7

      Yes I too found her words very insightful!

  • @Shibbylovess
    @Shibbylovess Год назад +34

    Titus’ laugh and smile makes me smile so hard, and brings happy tears to my eye. What a cute kiddo

  • @mandymartinez4083
    @mandymartinez4083 Год назад +63

    What a wholesome family dynamic. You can really see the pure love they have for each other, and especially for Titus! His smile is heavenly, and for sure contagious! 🥰😁

  • @MrsTessWren
    @MrsTessWren Год назад +29

    “You don’t have to perform.” This really hit me as my stroke left me feeling like I’m constantly performing and always get the yips unless I’m totally comfortable with set & setting.
    Beautiful mom & son. I wish you guys all the best♥️

  • @Diana_5398
    @Diana_5398 Год назад +88

    He is so sweeettt! His laughter melted my heart! 🥰

    • @thelizzievb
      @thelizzievb Год назад +11

      his laugh made me laugh too!

  • @libra_asmr
    @libra_asmr Год назад +30

    Chris is so good with every person he interviews. His kindness never fails to make me smile🥺

  • @maddiexsaurus
    @maddiexsaurus Год назад +4

    “You don’t have to perform in order to be lovable” LOUDER FOR THE PEOPLE IN THE BACK 😂❤❤❤

  • @steveo2046
    @steveo2046 Год назад +50

    His laugh is so contagious! Love this little guy and wish him nothing but the best going forward!

  • @thomaslynch9858
    @thomaslynch9858 Год назад +13

    Chris is so clumsy falling off the couch 🙃 No wonder there were so many giggles!

  • @jordan100
    @jordan100 Год назад +41

    This whole family has my heart 🥲 Amazing people!

  • @bsbznumber1fan
    @bsbznumber1fan Год назад +137

    This boys smile and laughter just brought me so much joy. I've been really depressed the holidays and being alone has been hard. But Titus just melted my heart. What a lovely family. Seeing how much his siblings love him and include him in things is just so amazing. And i love seeing chris goofing around with titus making him smile and laugh so heartwarming to see. We need more people in the world like chris because he's an angel sent from above(that's my honest opinion) and being different and having bipolar borderline personality disorder severe anxiety and ptsd i always feel so alone but since i found this Channel a few years ago it's really helped me and made me realize just because I'm different doesn't mean i don't deserve to be loved and don't deserve to be treated as an equal because i do deserve it(everyone does no matter how different you may be or what you look like ect you still deserve kindness💜so thank you chris for making me realize that.

    • @beth6288
      @beth6288 Год назад +5

      I hope your doing well and feeling a bit better 💕

  • @thankyourself
    @thankyourself Год назад +9

    He need no words, he speaks through our mind, the direct way. Happiness is pure Love !!! Nothing happens without you can notice your own distance to god. God is so close when you let happiness be your guide. 🥰🥰🥰 The boy is like god, pure love. His disease makes it so clear. 💗❤❣

  • @abigaillabar8877
    @abigaillabar8877 Год назад +26

    That sharp inhale laugh is too great I could listen to that for hours, what a cure for my depression, thank you titus

  • @Bexar2204
    @Bexar2204 Год назад +37

    I know a lot of people with paralisis of different kinds, and throughout the whole video I had one huge smile on my face

  • @saraht5319
    @saraht5319 Год назад +13

    I love when his sister said they pray for him a lot. Bless this beautiful family

  • @bigboredthing
    @bigboredthing Год назад +3

    at 4:38 if you listen closely, you can hear Titus say "again" to Chris to communicate he wants to throw the ball!

  • @sweeperboy
    @sweeperboy Год назад +6

    One thing is for sure, that little guy is *always* going to be looked after. The other kids, the parents, they're truly wonderful as is he of course too with his winning smile

  • @canadasweetie
    @canadasweetie Год назад +23

    Beautiful close knit family- kids are so well mannered and loving towards each other. Titus is so sweet and beautiful

  • @allieh3444
    @allieh3444 Год назад +15

    What a cutie! His laugh and joy made my day. I wish every child had such a loving family.

  • @nancyayotte2297
    @nancyayotte2297 Год назад +39

    Snuggly, amazing smile, sweet , funny , and that gut laugh is the best!! I can feel the love radiating from this beautiful family. ✝️💜

  • @justmee2477
    @justmee2477 Месяц назад

    Good for his sister teaching people that he is not a baby. He is surrounded by such a supportive family.❤

  • @Lyraa357
    @Lyraa357 Год назад +7

    It is true. Titus's smile would crack the most hardened heart. Heaven bless this loving family always!

  • @nandarox528
    @nandarox528 Год назад +4

    His precious little laugh & smile is absolutely contagious. What a beautiful lil guy.

  • @lucaacharya5788
    @lucaacharya5788 Год назад +14

    What a beautiful smile!!!

  • @ontherocksjojo
    @ontherocksjojo Год назад +15

    I am a minute and a half into this video currently, and I just can't help but have a massive smile on my face when I see Titus's smile 🥰

  • @bethroesch2156
    @bethroesch2156 Год назад +13

    I just bumped into an old friend from school last week. He's 62ish. Asked how he's been and he told me that he has this disease. He didn't get diagnosed with it until 10 years ago and he's already made plans for his care. It took them months to figure out what was wrong with him and this is a rare disease. Unless a child has a stroke or something else neurological happens, some are very lucky and don't find out until they're much older.
    That precious child is loved greatly and it shows

  • @debbieschultz9768
    @debbieschultz9768 Год назад +32

    Such a beautiful family. This little boy is beyond adorable. ❤️🙏🙏❤️

  • @zivaziva147
    @zivaziva147 Год назад +9

    I just love his smile

  • @SNOOPYFAN4LIFE2022
    @SNOOPYFAN4LIFE2022 Год назад +13

    OMG!!!! That laugh of his is infectious! It just made my day! He is a baby doll!

  • @Mrs.witwer
    @Mrs.witwer Год назад +8

    His smile and laugh is so infectious! He's such a beautiful little boy and the joy he exudes is amazing.

  • @carolinedowdeswell4897
    @carolinedowdeswell4897 Год назад +9

    What a sweet little guy, found myself smiling back at him, so much love in that family.

  • @FaizaAhmedOfficial
    @FaizaAhmedOfficial Год назад +2

    Makes me cry! Yet Happy that he has a great family! my husband suffered from Moyamoya and had a stroke! Pray that Titus have a great life!

  • @Matjestatar
    @Matjestatar Год назад +49

    Thanks for increasing awareness for Moyamoya. Despite being very rare especially outside of east Asia I already have seen several cases some newly diagnosed with us despite being out of med school only for two years. I personally believe that it is way more common than we think today and I suppose many people stay undiagnosed not getting the right therapy like vascular surgery if needed etc.

    • @meahdahlgren6537
      @meahdahlgren6537 Год назад +1

      Right

    • @laceydavidson6184
      @laceydavidson6184 Год назад

      I had the bypass for this when I was 14. I just left a comment addressing my confusion because when my mom and dad took me to the hospital, I had months and months and months of tests. Until they came to this conclusion that I had Moya Moya and needed the surgery. I guess I’m just confused how they didn’t get him the surgeries he needed? If they knew about it? Just this whole thing confuses me

    • @laceydavidson6184
      @laceydavidson6184 Год назад

      @@foolishlyfoolhardy6004 I’m not accusing or judging dude, lol I literally say multiple times I was just really confused. Stop trying to stir an argument 👍🏼

    • @laceydavidson6184
      @laceydavidson6184 Год назад

      @@foolishlyfoolhardy6004 lol who are you to police what someone comments or to tell someone how to feel? 😂
      I understand he had the strokes at a young age but the majority of the patients who have moya moya are that age. I’m not putting blame on the parents. But rather why the doctors didn’t look into it further. Down’s syndrome or not, strokes are not normal. So yeah. I’m still confused why this wasn’t looked into further lol go comment gatekeeper somewhere else love

    • @laceydavidson6184
      @laceydavidson6184 Год назад

      @@foolishlyfoolhardy6004 lol okie dokie keyboard warrior 😂

  • @efflorescentivory
    @efflorescentivory Год назад +7

    His laugh is so contagious

  • @katerachel-boslem3153
    @katerachel-boslem3153 Год назад +16

    Titus does indeed Light up the World...what a HANDSOME young man he is and his laugh is simply insatiable...couldn't but help Smiling through this video Chris...keep on helping to Advocate for all the many people you meet, film and introduce to the World💙Thank you💙

  • @samibeachboysandfullhousef8765
    @samibeachboysandfullhousef8765 Год назад +3

    His giggles are adorable

  • @maxinepreston7601
    @maxinepreston7601 Год назад +14

    Watching this little man with his brother and sisters was an absolute delight. They are a lovely family. 🇬🇧

  • @LoveFitsAll
    @LoveFitsAll Год назад +25

    Such a charming, happy, beautiful, and saccharine Little Titus.
    Brother made me 😭❤️❤️❤️
    Edit: THAT FAMILY IS PURE LOVE AND GOD

  • @nxtvane
    @nxtvane Год назад +15

    His smile and laugh is really contagious 🥰

  • @newchapterasmr
    @newchapterasmr Год назад +8

    What a sweet and, I have to say, insanely good looking family! And the way Titus laughs when Chris is playing with him is so precious. I was smilling all the way through.

  • @robinblanc8208
    @robinblanc8208 Год назад +5

    Titus’s laugh and smile is a gift from God. His laugh is soooooooo contagious. I could feel all the love he exudes even through this video. 😘

  • @jtrantham8674
    @jtrantham8674 Год назад +1

    This young man has the best laugh ever, brings such joy in the world.

  • @berf9445
    @berf9445 Год назад +15

    This made me smile and tear up ❤

  • @Abby_cadabby_cares
    @Abby_cadabby_cares Год назад +34

    Oh my goodness!! I’ve been waiting so long for you to make this video. I have moyamoya disease too and it is so rare most people have never heard of it. Thank you Chris for sharing and making people more aware. This is a beautiful video. So much love!!💙

  • @collette2990
    @collette2990 Год назад +28

    Oh, my goodness ❤ what a beautiful smile! Titus is pure light and joy. Such an amazing family..all of them are so loving. Thank you Chris for another wonderful video. Bringing awareness to the world, once again, is so important. 😊

  • @laramaaike3050
    @laramaaike3050 Год назад +8

    I'm in love with his smile 😍 But his laughter, that is just so amazing to hear 🥰

  • @fredrik1164
    @fredrik1164 Год назад +5

    Hi Titus, nice to meet you!😊

  • @kristenhart4984
    @kristenhart4984 Год назад +4

    Parents must be proud of their children. Amazing people

  • @Joy21090
    @Joy21090 Год назад +4

    Thank you all for making my day with this video.

  • @tinabarrette963
    @tinabarrette963 Год назад +15

    His joy is beautiful 🙏🏻❤️

  • @Bumblebeatrice_q
    @Bumblebeatrice_q Месяц назад

    That laugh is absolutely heart warming. Brings such a big smile to my face!

  • @martocasp
    @martocasp Год назад +1

    ❤️ when he smiles

  • @ambermarielewis9353
    @ambermarielewis9353 Год назад +8

    Chris would be an amazing dad!. He’s so good with kids. And little man is adorable, when he smiled I smiled

  • @Mouseg576
    @Mouseg576 Год назад +6

    OMG, those eyes and that laugh!! His siblings are awesome🥰🥰

  • @ailsamallison3061
    @ailsamallison3061 Год назад +1

    What a GOREGOUS little boy ❤

  • @maryannhope8276
    @maryannhope8276 Год назад +9

    The family is beautiful on the inside and outside.
    Chris your going to make such an incredible father.

  • @missqueen2437
    @missqueen2437 Год назад +1

    Omg ❤ his laugh is so gorgeous and infectious!! He is a darling!!

  • @meannormajean8418
    @meannormajean8418 Год назад +4

    His big smile and laughter is precious!😁💕

  • @mxgickm
    @mxgickm Год назад +6

    What a sweet family and Titus is such a joyous beam of light

  • @donnadoyle6939
    @donnadoyle6939 Год назад +3

    The way Chris can connect with people is such a rare gift. What a great family. 🤓

  • @theparrotrescuer3042
    @theparrotrescuer3042 Год назад +9

    What a beautiful family...they emulate love 💕

  • @FreddieCuellar-p2l
    @FreddieCuellar-p2l 5 месяцев назад

    That smile can light up the universe!!! Cute little guy! What a beautiful family.

  • @adrianalisitza5543
    @adrianalisitza5543 Год назад +3

    He has the most beautiful smile I've ever seen. This whole family is so loving, it's really an inspiration.

  • @educatorally3875
    @educatorally3875 Год назад

    Titus is such a CUTIE!!! I know this is off topic but he could seriously be a model! His laughter just warms my soul. What an amazingly loving and caring family.

  • @laurenmyrman5249
    @laurenmyrman5249 Год назад +5

    What a handsome boy! His smile is contagious! You guys have such a beautiful family. Sending love and good vibes your way!!!

  • @garymotley8196
    @garymotley8196 Год назад +7

    Wow, such a great sibling group these kids make. The parents must nurture a lot of love and respect in their home. BTW, Titus and his brother look like twins. Its so special when you get to see the reflection of yourself with someone that you are that close to. Thank you for profiling Titus and his family.

  • @estebanod
    @estebanod Год назад

    He’s so adorable
    I wish he’ll enjoy every seconds of his life

  • @angelblue7779
    @angelblue7779 Год назад +4

    Titus’s smile and laugh is contagious ❤! What a sweet happy child and such a beautiful family. ❤

  • @babadook3380
    @babadook3380 Год назад +3

    What a sweet boy and a loving family! Titus is so adorable. His laughs and smiles are so beautiful

  • @odetakaniauskaite7862
    @odetakaniauskaite7862 Год назад +6

    What a beautiful little family! Titus is amazing!

  • @K1M347Y
    @K1M347Y Год назад +5

    I love how kind and accepting you are to so many different people around the world with disabilities. It’s so sad most people will judge them without even knowing their stories just because they look and act differently then others and need some assistance with things.

  • @dayramagdaleno9646
    @dayramagdaleno9646 Год назад +1

    His laugh is so sweet! You can tell his family loves him very much. What a lucky kid!

  • @claudiakrizay
    @claudiakrizay Год назад

    This world needs more people who laugh so much!

  • @dawnrex3712
    @dawnrex3712 Год назад +3

    What a beautiful boy. So happy, his smile just lights up the whole world. 🥰

  • @astridgsw
    @astridgsw Год назад +2

    I'm so proud of Chris for doing what he knows is right, even though he sometimes acts goofy. It takes courage to do something like this.

  • @mnicholl93
    @mnicholl93 Год назад

    Oh Titus, your smile and laughter brightens up a very dull and foreboding world.

  • @CornbreadOracle
    @CornbreadOracle Год назад +2

    Every kid should have a family that puts a smile on their face like Titus has.

  • @ΈλεναΤζωρτζακη
    @ΈλεναΤζωρτζακη 2 месяца назад

    ALL MY LOVE TO YOUR FAMILY
    YOU HAVE FOUR ANGELS IN YOUR HOME. BLESS YOU
    ALL❤❤❤❤❤

  • @SippinOnSumSweetTeaa
    @SippinOnSumSweetTeaa Год назад +5

    I smiled the entire video 💕
    There was a moment where Chris looked at Titus and you could just feel the love and enjoyment he was having while hanging out with him. And the Dad playing kung fu, just precious. I loved this so much. Thank you so much Chris.

  • @samsammysammy
    @samsammysammy Год назад +1

    It never ceases to amaze me how good Chris is with everyone he meets. Especially the kiddos. They always laugh and warm up to him. Love to see it.

  • @sewamazing4498
    @sewamazing4498 Год назад +4

    He's soooo adorable 😍❤😍❤😍

  • @betsydunbar2799
    @betsydunbar2799 Год назад +1

    Titus looks so much like my brother who had CP and brain disabilities. I've spent the whole episode smiling. Thank you Titus sisters and brother and mom and dad for sharing your joy and love.

  • @pupe9983
    @pupe9983 Год назад +7

    Titus is a ray of sunshine! His laugh and joy are so contagious. Also, what a beautiful, loving family he has. Just a beautiful video to watch as always, thank you, Chris! 💚🧡✨

  • @eadaoinomalley4966
    @eadaoinomalley4966 Год назад

    His laugh is the most heartwarming thing ❤