Thanks for being brave and sharing your story. My first lesions appear in the infant layer of my brain, likely caused by a severe mmr reaction at 9 months old. Essentially I’ve had it my entire life and I’m 56. The last 15 yrs have been rough. I just started Kesimpta and it’s the first med not giving me bad side effects. I’m very hopeful now. Be hopeful everyone. The science is starting to catch up. I can be scary, frustrating, and lonely but being pro active is the way to empower yourself. MILLIONS of Americans have this disease. We need to find out why. My dr suspects over vaccination and viruses as a major causes, along with many other researchers. The fatigue issue is huge! You feel so lazy, unproductive. One day at a time is all you can do.
Thank you! I am currently waiting to start Kesimpta, and being told I need to get the MMR vaccine first, then wait a month. I hope the vaccine doesn't cause any issues for me.
I developed MS last year while living in Spain. My first symptom was a burning sensation in my left leg, loss of balance, and leg pain/difficulties walking. I went to an urgent care thinking I had injured my back while moving recently. The doctor at the urgent care sent me to internal medicine. That doctor sent me for an MRI. I got the results back from the MRI and read there were 14 lesions found. I googled brain lesions and panicked when I read it's brain damage. I went to a different urgent care because I was scared, couldn't walk well, and half my face was paralyzed. That doctor called an ambulance. I spent a month in the hospital before being diagnosed. Shortly after being released from the hospital I apparently fell down a flight of stairs and someone took me to the ER. I spent 2 months in the ER but have very little memory of it. Because the lesions were on my frontal lobe I started to experience visual hallucinations and aggression. The US embassy had to get involved and two of my family members flew out to remove me from the country. It's gonna be a rough road ahead but we'll make it
I’m so sorry for all that you have gone through! 🙏🏼🙏🏼 I can’t even begin to imagine having all these symptoms! I’m hoping you find some healing, hopefully with medicine advancing and new studies we can get some progress in healing MS! I hope you have a lot of support in your life to endure the challenges ahead ❤️
@@MaSa-qv7pi the emotional aspects are the biggest struggle, for sure. The younger you are at diagnosis, the harder. The toughest for me is when I’m determined to accomplish something and my body just won’t let me. Fatigue is a tough battle to win. I’m glad you are doing better physically! That’s huge! I started Kesimpta last month after 13 years no treatment (Betaseron previously), and it actually has me feeling better. I didn’t expect to feel better. Accomplishing a great deal right now and very grateful for this newer drug. On the emotional struggle, please don’t get down on yourself about that. I think that’s what makes it toughest, we get on to ourselves for things like feeling lazy, not accomplishing enough, or just getting tired of being sick so often. Know you are not alone and millions of us struggle too. Thanks for being brave and talking about it and don’t forget, Laughter is the best medicine for an MS’er. Sending Love your way.
Thank you so much for making this video . Diagnosis in July 2022 . This is so comforting, better than any therapy session I have had since July . A total sense of wow yes she understands and it saying it out loud for me to validate myself and all these things I’m going thro with MS . No one In my family has MS , every therapist/ counselor I got to looks at me like I have 3 heads , no help at all from them , I keep searching for someone who understands, and here you are . Thank you 🙏 ❤
Thank you for telling your life with ms. I have it too and I’m praying that I can get some relief from the specialist. I’m still at a loss while I’ve endured a lot in the past few months
Arrived here searching for technical DJI infos, and then heard your remarkable statement about "what will make someone to a victim", which applied very much with a narcissistic person I came too close to. Though the context doesn't seem the same, I find your words universal, and I want to thank you for reminding me to have made the right decision to part 💚 A very good friend was diagnosed with a serious disease too, and she shows the same strength like you, carrying the same first name, Julia Westlin ✨
Thank you so much Thomas ❤️ I want to thank you for taking the time to share this, made my day! I wish your friend a lot of health and happiness, and many great friends like you 🙏🏼
When you say numbness do you mean you literally couldn’t feel anything touching your skin or more of a tingling sensation that some people call numbness when it’s not really true numbness?
I just found your channel and had a very similar experience to yours at diagnosis. I’m also very interested in where you found reliable info on the supplements you take? I really struggle with fatigue and that feeling of lack of motivation.
I had a consultation with a Nutrologists, a doctor that checks all your vitamin and hormonal levels, then I custom made my vitamins in a lab prescribed by the doctor, made a huge difference
Has anyone tried low dose Naltrexone (LDN) for their autoimmune disease? It is a compounded prescription that is an antagonist that doesn't work on just one part but instead tries to help your body regain homeostasis.
You will be fine chris try to exercise even if it is 15 minutes a day. My friends dad turned 89 yrs has had ms since in his 20s. Stay away from added sugar😎
Our story is very similar!! I’m amazed how similar. Even the foreign country. The only difference is I’m still at 20% of energy after a year of diagnosis, maybe I have to ask my doctor about my metabolism. Are you on any DMT?
Yes lady you are beautiful Lawrence Hofer here from Dinsmore Saskatchewan Canada yes for the past 50 years getting 50 BILLION DOLLARS IN donations per year and today they still don't have Anything to help us so Dr.ayomide from Nigeria telling me that he can fix the damage that MS has done to my body in 14,yes 14 days for small fee of 300 US dollars shipping included we here in North America need the scientific to look at our Lord's meds Herbs
Thank you for telling your life with ms. I have it too and I’m praying that I can get some relief from the specialist. I’m still at a loss while I’ve endured a lot in the past few months
Thanks for being brave and sharing your story. My first lesions appear in the infant layer of my brain, likely caused by a severe mmr reaction at 9 months old. Essentially I’ve had it my entire life and I’m 56. The last 15 yrs have been rough. I just started Kesimpta and it’s the first med not giving me bad side effects. I’m very hopeful now. Be hopeful everyone. The science is starting to catch up. I can be scary, frustrating, and lonely but being pro active is the way to empower yourself. MILLIONS of Americans have this disease. We need to find out why. My dr suspects over vaccination and viruses as a major causes, along with many other researchers. The fatigue issue is huge! You feel so lazy, unproductive. One day at a time is all you can do.
Thank you! I am currently waiting to start Kesimpta, and being told I need to get the MMR vaccine first, then wait a month. I hope the vaccine doesn't cause any issues for me.
Get a homeopath
@@whoosh_angelGet a homeopath
I developed MS last year while living in Spain. My first symptom was a burning sensation in my left leg, loss of balance, and leg pain/difficulties walking. I went to an urgent care thinking I had injured my back while moving recently. The doctor at the urgent care sent me to internal medicine. That doctor sent me for an MRI. I got the results back from the MRI and read there were 14 lesions found. I googled brain lesions and panicked when I read it's brain damage. I went to a different urgent care because I was scared, couldn't walk well, and half my face was paralyzed. That doctor called an ambulance. I spent a month in the hospital before being diagnosed. Shortly after being released from the hospital I apparently fell down a flight of stairs and someone took me to the ER. I spent 2 months in the ER but have very little memory of it. Because the lesions were on my frontal lobe I started to experience visual hallucinations and aggression. The US embassy had to get involved and two of my family members flew out to remove me from the country.
It's gonna be a rough road ahead but we'll make it
I’m so sorry for all that you have gone through! 🙏🏼🙏🏼 I can’t even begin to imagine having all these symptoms! I’m hoping you find some healing, hopefully with medicine advancing and new studies we can get some progress in healing MS! I hope you have a lot of support in your life to endure the challenges ahead ❤️
FYI, you developed MS long before symptoms appeared. I hope you are doing better!
@@selecttravelvacations7472 I'm for sure physically better. Now just have to try to navigate the emotional aspect of it all
@@MaSa-qv7pi the emotional aspects are the biggest struggle, for sure. The younger you are at diagnosis, the harder. The toughest for me is when I’m determined to accomplish something and my body just won’t let me. Fatigue is a tough battle to win. I’m glad you are doing better physically! That’s huge! I started Kesimpta last month after 13 years no treatment (Betaseron previously), and it actually has me feeling better. I didn’t expect to feel better. Accomplishing a great deal right now and very grateful for this newer drug. On the emotional struggle, please don’t get down on yourself about that. I think that’s what makes it toughest, we get on to ourselves for things like feeling lazy, not accomplishing enough, or just getting tired of being sick so often. Know you are not alone and millions of us struggle too. Thanks for being brave and talking about it and don’t forget, Laughter is the best medicine for an MS’er. Sending Love your way.
Get a homeopath
This is so kind of you to share your story🧡 It can be scary to get your diagnosis, but this community is so great, and very supportive.
Thank you so much Dr 🥰🥰 it really is a supportive community
You are so beautiful and strong! I hope nothing but the best for you.
Thank you so much🙏🏼❤️❤️
Thank you so much for making this video . Diagnosis in July 2022 . This is so comforting, better than any therapy session I have had since July . A total sense of wow yes she understands and it saying it out loud for me to validate myself and all these things I’m going thro with MS . No one In my family has MS , every therapist/ counselor I got to looks at me like I have 3 heads , no help at all from them , I keep searching for someone who understands, and here you are . Thank you 🙏 ❤
This warms my heart! I wish you a lot of health and strength to go through this❤
Thank you for telling your life with ms. I have it too and I’m praying that I can get some relief from the specialist. I’m still at a loss while I’ve endured a lot in the past few months
🙏🏼🙏🏼 I hope that you can get well soon!🫶
Such a beautiful video, thank you for sharing your journey and including tips at the end. I hope you’re feeling better now!
Arrived here searching for technical DJI infos, and then heard your remarkable statement about "what will make someone to a victim", which applied very much with a narcissistic person I came too close to.
Though the context doesn't seem the same, I find your words universal, and I want to thank you for reminding me to have made the right decision to part 💚
A very good friend was diagnosed with a serious disease too, and she shows the same strength like you, carrying the same first name, Julia Westlin ✨
Thank you so much Thomas ❤️ I want to thank you for taking the time to share this, made my day! I wish your friend a lot of health and happiness, and many great friends like you 🙏🏼
Thank u for sharing ❤️ proud of u my beautiful friend 😘
I’m so grateful we have each other for support❤️ ily 🥰
When you say numbness do you mean you literally couldn’t feel anything touching your skin or more of a tingling sensation that some people call numbness when it’s not really true numbness?
Tingling sensation but my overall sensation perception reduced
Thank you for being so honest and helpful. Be well.
Thank you 🤍🌹
You covered a lot in a short time and did it very well! Thank you for sharing!
so proud of you 🤍
🥰 ILY
I just found your channel and had a very similar experience to yours at diagnosis. I’m also very interested in where you found reliable info on the supplements you take? I really struggle with fatigue and that feeling of lack of motivation.
I had a consultation with a Nutrologists, a doctor that checks all your vitamin and hormonal levels, then I custom made my vitamins in a lab prescribed by the doctor, made a huge difference
I just got MS AS well, got blind left eye was my start, then same AS you ,mri and lumbag punktion. I had in brain and spinalpunktion
Sorry to hear! Hope you feel better🙏🏼
It's sounds counter productive, but I've found additional exercise helps negate my fatigue. Also ask you Dr about provigil to help with feeling tired.
Thanks for sharing your story Julia.
thanks for sharing your story 🥰 did you try aip diet? if so, did you find it helpful?
Has anyone tried low dose Naltrexone (LDN) for their autoimmune disease? It is a compounded prescription that is an antagonist that doesn't work on just one part but instead tries to help your body regain homeostasis.
Where do buy it? I Always hear ppl talking about it but i dont know where Can i find . IS it possible to buy it online?
Júlia, grave um vídeo em português da sua história e o diagnóstico 🥹🙏🏼
Vou gravar então 🥰
Thank you for sharing... Mam r so strong ☺
🥰🥰 thank you🙏🏼🙏🏼
Thank you for sharing your story.
Get pins nedels off balance weakness headache, blear vision, chest pain like hugs crash in , and more , plus my nan and uncle had ms
You will be fine chris try to exercise even if it is 15 minutes a day. My friends dad turned 89 yrs has had ms since in his 20s. Stay away from added sugar😎
Our story is very similar!! I’m amazed how similar. Even the foreign country. The only difference is I’m still at 20% of energy after a year of diagnosis, maybe I have to ask my doctor about my metabolism. Are you on any DMT?
I got all my vitamins and hormones prescribed by the dr after checking it, made a big difference
Did I suffer from any accidents.
Yes lady you are beautiful Lawrence Hofer here from Dinsmore Saskatchewan Canada yes for the past 50 years getting 50 BILLION DOLLARS IN donations per year and today they still don't have Anything to help us so Dr.ayomide from Nigeria telling me that he can fix the damage that MS has done to my body in 14,yes 14 days for small fee of 300 US dollars shipping included we here in North America need the scientific to look at our Lord's meds Herbs
Has anyone tried cannabis oil?
Medication??
I chose for now copaxone, but there are a couple of options, you Dr can tell you
Always tied as well , stiff mussels,
Mossels...
Get a homeopath.
Thank you for telling your life with ms. I have it too and I’m praying that I can get some relief from the specialist. I’m still at a loss while I’ve endured a lot in the past few months
It is a lot to deal with! I hope the best for you and that you can find strength in your loved ones to go through it 🙏🏼❤️