i've had epilepsy since i was 5 and it's been a difficult journey. i've dealt with everything from partial seizures, night seizures, to full on grand mal. in other words, it's been a battle. most of my life i've kept it a secret because, like you, it was easy to forget...unless i had a major one. once i got to college, they got worse. i would have them in class, in the lunch hall, skiing, and even in restaurants. a few months ago i was straightening my hair and had a seizure and dropped my flat iron. when i woke up i had third degree burns and had to get surgery. i think it's great people are sharing their journey through epilepsy treatment because it's hard to empathize. people will never understand who don't have it.
Do the night seizures feel like sleep paralysis? I’m wondering if I had internal seizures at a young age a few times. Like one time in class. And then later as a young adult I experienced a trauma and started having sleep paralysis. So curious if it’s similar
@ Melissa It is very important for you to stay away from skiing or any amusement park rides as these may be so joyful but later these can cause a serious partial seizure. Always keep a cold water bottle with you as this is the first liquid which will relieve the pain of a partial seizure. Keep yourself away from smoking and consuming any chemicals which will affect the brain. Be away from chemical factories. Do not keep the news that you have epilepsy away from your doctor and make sure you don't miss the medication prescribed to you. If you continue to have weakness after having a partial seizure then drink a frappe or something ice blended as this will relieve the pain of a seizure. Always keep a cold water bottle with you wherever you go especially by your bed as you will need to drink cold water immediately after you are stable enough to drink water. If you ignore taking care of yourself from the seizures, they will worsen as you age. It's never too late to start taking care of the seizures. Good luck and I hope you stay well.
@@kirstiejane8896 I'd like to answer this. There are a couple of reasons which causes partial seizures. 1) stress 2) smoking or consumption of anything that can affect your body and brain 3) amusement park rides. These may be fun but later these can cause partial seizures 4) missing meals, sleep and medication 5) not informing your doctor the exact symptoms which you experience during, before or after having a partial seizure. Example, feeling stiffness in your body as you have a partial seizure Advice for you. Always drink a glass of cold water after your seizure. If you still have weakness after having a partial seizure, drink a smoothie or frappe. Always stay calm after having a partial seizure. Watch a comedy program which will help relieve stress and worries
Hey Annie, if you still check for comments. Hi. I just found your videos and I hope you are well. Everything you said here is so true. I been a long journey and it's so hard to find anyone who really understands what we go through. I've had 2 surgeries for epilepsy. The really frustrating part is ,as the epileptologist explained. I will always be an epileptic. Even if the surgery is a success there will always be a chance it will come back. My surgery was 4 month ago and so far no seizures. My brain is rewiring and other neurological issues have surfaced but just as part of the healing process. It takes a year to get back to what is considered your baseline neuro function levels. But to know it could happen again is tough to deal with. Hope you are well.
Thank you for sharing your stories. I started having seizures about 2 years ago and no doctor has agreed on the cause. And yes! Stress and lack of sleep is what triggers mine.
There are a couple of things that you can do. After having a seizure, immediately drink cold water as this will cool your brain and body. If you are still unwell, drink a frappe or something ice blended as this will further relax your body. Eat fish and greenery vegetables Don't miss your full day meals Get proper sleep. Watch a comedy program to reduce stress Always keep a cold water bottle with you as this is the first liquid which you will need. Avoid: Smoking or anything that affects the brain Going on amusement park rides as this can worsen seizures Being around Chemical factories Over stressing. Good luck and I hope you stay well
Hi Annie. What you explain about the nervous and anxiousness when you get the dejavu is exactly what I get. I understand it so well, and yes, just because it doesn't go into a big or any seizure, it doesn't mean that it is less important. People don't understand this though and they sometimes make me wonder, if what I going through is really so bad. Other epileptics have it so much worse and thank God I don't, but why I am struggling to overcome such 'small' seizures. My seizures are 100 times better than before and my aura's don't tend to become a bigger seizure. I do however have a trend where every month for a week, I get up to 15 aura's a day, spread throughout the day. The more aura's I get, the more tired, scared and sick I get. I also usually wake up feeling 'not so good' and knowing, today might be a seizure day. By 3pm in the afternoons after all the aura's, I feel terrible, have a massive headache, am confused and struggle to think and speak. I think these aura's are simple partial seizures and because there are so many in a day, I get really sick and recovery takes extremely long. Has anyone else exprienced something similar? Aura's not going into bad seizures, but having a number of aura's in a day? What side effects do you experience with aura's?
Same as you,I have partial seizures and before I get one I dont feel so good and you think is this going to be the day,I am on medication which has helped and now I only get the odd one. Had a seizure today walked through it,went to the cash desk to pay,I had a complete blank,couldn't remember my pin and that was worse than the seizure itself. The tiredness afterwards is awful,I just wanted to lie down and yawning nonstop.
Natasha Stoltz I sometimes have these at work so I’ve let them know. They didn’t look too deeply into it because apparently ‘aren’t that big of a deal’ as they are not like big Seizures.
Natasha, yes this is exactly what used to happen with me. I had what I thought were panic attacks, particularly in monthly clusters that lasted about a week. Hard to describe but I would get this overwhelming sense of deja vu, then tingling all over, tunnel vision, then I would usually vomit. Doctor thought they were panic attacks, too, so put me on all sorts of anxiety meds that didn’t help. Then I went backpacking in the mountains at high altitude and had four grand mal seizures. Turns out, I had been anemic due to large fibroids and severe endometriosis, which was exacerbated by the high altitude, which led to the grand mals. I had an emergency hysterectomy and went on Keppra. Four years later, I’ve not had a grand mal or “panic attack” (aka partial seizure) since! We’ve since determined that the monthly spell for about a week of these partial seizures likely occurred in the days leading up to, and the first three or four days of, my period. Go figure! I hope you’re doing well now, a year since you posted your comment!
@@maggspaine5419 I get exactly the same as you I have temporal lobe epilepsy and my seizures are the exact same as yours and that same incident accures with me every single day with the ATM machine I get that happen all the time where I can go to the ATM machine and I always forget my pin all the time
Hi Natasha, I have written a detailed description about the partial seizures below the video. Please read that. In the partial seizures and weakness you are facing, just drink a glass of cold water immediately after you have had any seizure because this will just calm the brain and body immediately. If you still feel very weak, drinking something with blended ice is very helpful like a smoothie or a frappe. This will relax your brain and body and keep you well. If you eat seafood, a fresh fish meal is helpful and eat greenery vegetables
I liked that you touched base on this topic I'm epileptic too and I have a friend who has partial seizures and sadly sometimes people think she is lying about her epilepsy. I feel like there is not much education on epilepsy this video gets the message out there for people who don't know the nature of epilepsy.
Thanks so much for sharing this. My husband suffers from epilepsy, just diagnosed 2 yrs ago at 55 years old. We as a couple have committed to keeping seizure journals and increasing our understanding of this. John has simple and complex focal seizures....we used to call them his “moments” before we understood what was happening. Again, thank you! 💕
Thank you Annie Bean. I used to gran mal in 2006, then had partial focal seizures 2009-2011 and then again a few weeks ago. I went 8 years seizure free with new medicine but last week wasn't fun for me. - I wish you the best of health always. I know it can be frustrating and i understand when people forget you have epilepsy because we look "normal". Nice is when i forget.
I've had partial seizures 6 years now after I had the stroke with it I lost my taste and feeling. After 3 years I could taste again but regained my feeling partially. But it is nice to know I'm not alone because my friends and family don't really understand how it feels but they support me and seeing these video's helps
I am epileptic and I have experience all you have mentioned. Initially, I rejected it that I was epileptic. It is about 10 years I have been diagnosed to be epileptic and I have come to accept it. I have experience most of the symptoms you have had.
Sugar, stress, alcohol, exercise, lack of sleep, and situations that make me nervous triggeres my seizures. Basically anything that makes my heart beat faster. Really sucks
So glad I found you this has had us stumped and no health insurance. I cried watching your videos about this because for the most part sounds like it. My fiancé has been dealing with this since about his twenties out of no where. It started as just deja vu before that. Now when it happens. He has a full on panic attack (what it looks like) and is sweating a lot and then will go from that to freezing with a few moments and then it happens multiple times. He forgets major events as well. In that moment he forgets everything and spouts out very odd things sometimes. It’s very scary. He’s also uncontrollably coughing and dry heaving/puking. I have to explain to him over and over until he comes out of the episode which last from 15- longer periods of time. He’s also started having incontinence during a few of these which is a new onset. He’s very confused and scared. I’m calling a neurologist after the weekend is up. Thank you and please keep posting! ❤️
Thanks so much for your video until I found you i though I was alone its a difficult journey and I don't think people understand i had my first siezure at 45 years old everyday i try to live my life as normal as I can thank you
I was diagnosed with Photosensitive Epilepsy when I was 2. Luckily my Seizures were only caused by a Brain Tumor that I had surgically removed when I was 8.
I keep telling my doctor's but they down play it, Walking around with fear all day, Body gets heavy while walking but it's that uh OH feeling I get upset when it happens cause there's nothing can be done about it. I just have to remember I took my meds already
I'd like to give you an advice. If you are facing a partial seizure, the best you can do is say a prayer in your mind stay calm and immediately have a cold glass of water. If that doesn't help then have a fruit smoothie or a frappe. This will relax your brain immediately. Sometimes eating a fresh fish meal is a better choice Partial seizures are quite dangerous if not informed to doctors and taken care of. It's true - this is not a migraine or a headache. This hurts in a specific spot in the brain very badly
Can you drive? Or do you choose to? How long from when you feel aura till you have one? Thank you for sharing your story. Your words are so familiar. I'm not alone!
I don't know the terms used to label each kind of seizure. The aura, or the felling that comes before , I'm 56. They have changed the names of these kinds of seizure twice in my life, so far. I have grand mall , peti mall, staring spells , siesures when I'm aware, and when I'm unaware. I think I have had them all. My wife is my super hero. I don't need to know how to diagnose Epilepsy, I need help , doing something about this. If I can somehow lower my stress level, I will lower the number of seizure that I have.
Check with a doctor and have an MRI done. Keeping a track of seizures is very important. You should drink cold water immediately after you have a seizure as this will immediately cool your brain and body. If you are still feeling weak, you should drink a frappe or smoothie as this will further relax your body. Eat a full day meal and add vegetables and fish in your meals. Watch a comedy program to reduce stress Avoid: Smoking or anything that affects the brain Amusement park rides as this can worsen seizures Being around Chemical factories because you may feel difficulties in breathing and this can cause seizures
I can totally relate to this. I'm currently pregnant and undiagnosed but I truly believe in my gut that this is what I'm experiencing. I'm scared to bring it up at my doctor but know that I must.
Please bring this up to your Obstetrician. Seizures are serious and can be dangerous for an unborn child specifically during the 2nd and 3rd trimester.
Please make sure you are drinking cold water immediately after you have a seizure. This is going to relax your body faster than anything else. Make sure you are away from any Chemical factories, smoking areas or any sort of smell that can cause a seizure An advice is to watch a comedy program which will reduce your stress or any worries, make sure you always tell your doctor that you have epilepsy, make sure you don't miss your meals, sleep and most importantly your medication. Another advice is always keep a cold water bottle with you incase you feel you will have a seizure. Good luck and I hope you stay well
I'm sick of being undiagnosed with my seizures, exhaustion definitely triggers it more. But for the 20+ years I have had them and not one doctor has given me an answer, so i can't be treated.
Sorry to hear this, hope they are better now. No one believed me neither at first until I was on the bus and had one as soon as I took a step down exiting the bus, next thing I knew I was surrounded by cops and back in the seat. They probably thought I was a drunk black woman or on drugs, they just let me go afterwards as the people on the bus were complaining about getting where they need to be.. Thankfully my doctor referred me to a neurologist after that.
What do any of you do if you have had a seizure. I'm sorry if you are not being treated by the hospital. If you have a partial seizure, the first step is to drink a cold glass of water immediately. If you are still feeling very weak afterwards, drink a frappe or something ice blended. Sometimes eating a fresh fish meal is a better choice and greenery vegetables. 1) Your first medicine should be to stay happy. Watch a comedy program ( who's line is it anyway) that's a great show. 2) Have a hobby, painting, playing an instrument or whatever you like as a hobby What can trigger a partial seizure: 1) smoking or anything that affects the brain 2) being around a Chemical factory 3) stress 4) amusement park rides 5) extra work ( if you have many tasks, don't over tire yourself ) 6) delaying epilepsy medication or missing them 7) If you have 2 doses, make sure they are exactly 12 hours apart or as your doctor advises Amusement park rides might be joyful but later in the day you can get a severe partial seizure. Good luck all of you
i’ve had a weird war with epilepsy i’ve never told anyone about it but i remember getting them when i was young like preschool and them they stopped and at about 7th grade they started again worst than ever and it was happening like 5 times a day for months and right now i’m in 9th grade and i haven’t had one for many long time since easter and i know that for a fact because i keep a chart of what days they happen on and the weird think is i went from having al least 1 a day or at max like up to 10 a day to all of a sudden none for about 8 months
I can feel it coming in my head, like a pressure feeling , so I relax, and prepare myself to loose control over my body, I lie or sit down otherwise am going to fall, it feels as if am drawing back into my self, i feel like am in the Center of my head while it becomes dark around me. It takes all my energy away while its happening. I feel panicky and scared. I can feel it in my head at first it’s like a some sort of pressure coming down and consuming me. My brain starts to shut of and I am very sleepy . I get very sleepy and tired when it’s happening. My head falls down to side when am laying down or forward if am sitting up straight, and my eyes close I start saying prayers in my head because I get anxious. I can hear things happening around me so am conscious but at the same time I am detached. I can’t talk while it’s happening nor can I respond to anyone or move my body, my body feels limp and weak.. i get a rising feeling in my stomach like when you are in a roller coaster and it’s going down fast, also i get this feeling of nauseousness in my stomach. I start to swallow a lot during it and for abit more after it. It last for about minute and a half max or 15 secs minimum, then I come back again slowly to myself. I feel weak and tired after it. I feel fine 10 minutes later When it’s for 15 sec or so less symptoms present themselves and when it longer like a min or so then all the symptoms show. Or Annabelle Lande what is witnessed exactly if you you don’t mind sharing hun x This is what I experience below I get a warning that it’s going to happen, the warning feels like am going to blackout. some sort of sensation comes down from my brain and consumes my head and body. It’s very hard to explain I get a feeling of extreme dread and fear. I have started to relax now, and prepare myself to loose control over my body, so I lie or sit down, when it is happening. (My last one I didn’t have a warning ) The next stage feels as if am drawing back into myself as if am fainting, while my eyes become dark so I close them. Am still aware of what’s happening, I dont loose consciousness. This experience takes all my energy away. My brain starts to shut of and I get very sleepy and beyond exhausted while it’s happening and afterwards aswell. My head falls down to side. I tell my self to be calm and that it will be over soon (in my head) I feel very anxious and fearful during it, a feeling like am about to die. I get a feeling like when your stomach drop when you are on a really fast rollercoaster going downward. It’s aaccompanied with a feeling of nausea. I start to swallow rapidly during the episode and also a while after it has finished. I can’t talk while it’s happening nor can I respond to anyone or move my body, and I don’t have the ability to snap out of it my body feels limp and weak I can’t lift my arms or legs and I can only stare blankly. I don’t have control over my body so I have to let it run its cause. As am going more and more into this state, any noises, eg tv, any small talk, cars, radio or whatever else quietens down and for split second I dont hear anything at all but before long they start to pick up the volume again as am coming back to myself. It lasts for about minute max and 30 secs min I am aware of everything happening from start to finish I come back again slowly to my normal self. I feel weak, sleepy and tired after it.
Saying prayers is excellent during this difficult seizure. It is best to sit down and stay relaxed as you are aware of the seizure or have a seizure. Always keep a water bottle with you because after your seizure and after you have control of your body, you should drink cold water immediately to relax your brain and body. As you mentioned feeling weak through out the day, you should drink a frappe or something ice blended to further relax your body. You should: eat fish meals and greenery vegetables. Watch comedy programs to reduce your stress Sleep well Eat your full day meals Always keep a water bottle with you. Keep a 12 hour gap for your medication if you take 2 tablets for the day. You should avoid: Smoking or anything that affects the brain. Amusement park rides as this can worsen seizures. Being around chemical factories. What has your doctor said ? You should ask for a medicine called lamotrigine or Lamictal as this medication is more effective for epilepsy. Good luck and I hope you stay well
Can I ask if anyone here gets episodes where they are vacant, dilated pupils, can’t move or respond, can’t Hold own head up or keep eyes open sometimes, but they are still aware of what’s going on. I can feel them coming but sometimes it leads to nothing. Other days I’m just not right. I’m currently in the process of finding out what’s going on and I’m honestly scared and although I have lots of support I feel very alone. Currently waiting for MRI results. Im 33 they last between 1minute and close to 4 minutes for my biggest one.
I recently decided to start an exercise regime, but after 2 weeks I had a cluster of strong seizures. It took a while for things to calm back down. The trigger is getting puffed for any length of time. It could be as short a time as ten minutes. I can do a bit of yoga, because it doesn't involve heavy breathing. It's really frustrating. Does anyone else have problems with devices like tablets and computer screens, and films with special effects or shaky camera work? I can't watch Eurovision since they started using those floor and background screens, I'm guaranteed to have a seizure.
I've had epilepsy for 7 years now. My seizures aren't that bad. But I do relate to having problem with screens and such. Flashing lights doesn't trigger seizures for me personally but staring at screens does. If I'm too focused on something like for example a digital device I get a seizure. I also have problems in class because of focusing for too long.
Hi I know this video is old and I’m so sorry this is happening to you my sister has been diagnosed with epilepsy and I’m trying to find helpful videos to send to her because I know she’s so scared abs already stressed abs wondering why is this happening.
What symptoms does your sister feel and which sort of epilepsy does she have ? Partial seizure is when you have severe pain in one part of the brain and you become stiff. This can last anywhere from 5 seconds to 10 seconds or more depending on the health situation. Is this what she experiences ?
Hi, I hope your sister is doing well. I would like to share some information which can be helpful. After she has a seizure, she should drink cold water immediately as this will cool the brain and body immediately. If she still has weakness, she should drink a frappe or something ice blended as this will further cool the brain and body. She should: Eat fish and greenery vegetables Eat the full day meals Get proper sleep Watch a comedy program to reduce stress Always keep a water bottle as this is the first liquid to cool the brain after a seizure. She should avoid: Smoking or anything that affects the brain Being around Chemical factories Amusement park rides as this can worsen seizures. Over stressing. Missing medication. Ask your sister to talk to her neurologist about a medication called Lamictal or lamotrigine as this medication is more effective to reduce seizures. Good luck.
My doctor is currently running a lot of test and looking to rule out MS, neuropathy as well as complex partial seizures. I have read that complex partial seizures can be caused by trauma and I have had so much trauma and have CPTSD. I have dealt with years of mental abuse from my mom as well as an instance of sexual abuse and years of physical abuse from my dad. my dad has told me that they were between five and 10 times where he had punched me in my head putting several blows to my head each time. I have also read that complex partial seizures can be mistaken for the disassociation. I definitely have CPTSD and I recently started with a new trauma therapist and she said my disassociation is very bad I’m wondering if sometimes it can be that I’m having a complex partial seizure and that disassociation is caused by it. It’s just really frustrating because I’m not sure if the symptoms I’m experiencing or mental or physical. It actually would be kind of better if they were a result of my PTSD because I’m already being treated for that.
Hi Nicholas, Partial seizures can be caused by trauma which a person has had in the younger age to any age. The partial seizure which you have is also a result from the abuse which you had. If your body becomes stiff and your brain is feeling heavy painful pressure on any side of your head means you are going through a partial seizure. If you can exactly write your symptoms which you have, it will be easier to guide you. Example: 1) Your eyes begin seeing the tube lights very bright to you, even if it's not all that bright 2) Your body becomes very weak that it's difficult for you to even walk properly 3) You have difficulty breathing If you have any of these symptoms, it's very important for you to drink cold water immediately after you have a partial seizure. If your body still feels unwell, it's better for you to drink a blended drink like a smoothie or frappe. You must always stay calm after you have a partial seizure and make sure your body is stable. Keep away from chemical factories and consuming anything that can affect your body and brain.
Can I give an advice to all of you in this chat. If you are facing a partial seizure, do not ignore this. The best you can immediately do is read a prayer in your mind and drink a cold glass of water and if that doesn't help, drink a fruit smoothie. I prefer frappe which immediately relaxes my brain because it's an iced drink. This really helps, believe me. It is extremely important to tell your doctor your situation because in the partial seizure a specific area in the brain will be hurting badly as the brain waves will be bumping to each other and it seems like an electric shock. This is not a severe headache or a migraine. This is an epilepsy and should not be ignored. Always take a cold water bottle with you whether you are driving, going for a walk or are suddenly unable to breathe. If you are driving just go to the lane where cars are moving slower and if needed pull over and park your car on a safe spot so you can relax. Some things to be aware of which can cause a partial seizure: 1) Smell of cigarettes and smoking 2) smell of detergent or any smells related 3) petrol ( as in factories ) 4) missing a meal 5) missing dosage Good luck all of you and I hope you all have good health
I haven't had anything in almost two months but the last one lasted more than 35 minutes. I had two partial seizures first. They have upped my medication and I am getting more sleep. Also, I have to be careful how much I drink.
Did you know Deja vu is a focal seizure? Mines has stopped now, my medication, Mysoline has been stopped. It's such an old drug, but I couldn't live with the side effects of the others, I have to buy a generic brand now. Um
Identical symptoms I have. 12 years now caused by brain aneurysm. Feelings of dread and fear.....strange smell...deja vu.....shuddering almost orgasmic total body tension, goose bumps .....nausea.....washed out for a while after. Never lose consciousness or black out. Always aware of what’s going on. The whole things takes about 5 to 10 minutes, then I’m back to normal. Anticonvulsants work up to a point but I have to watch alcohol, stress, fatigue, etc. Side effects of meds aren’t nice.
How is your health now ? I would like to add a few points to you. You should avoid: 1) anything that can harm the brain like cigarettes as well. 2) amusement park rides as this can worsen seizures 3) missing a full day meal (breakfast, lunch and dinner) 4) being around Chemical factories You should: 1) always keep a cold water bottle with you as this is the first liquid which will relieve your body pain. 2) drink a frappe or smoothie as this will cool your brain and body 3) watch a comedy program because this will take away stress 4) take your medicine on a scheduled time 5) eat fish as this is a great source of nutrition You should ask your doctor about a medicine called lamotrigine and Lamictal as this is a great medicine for epilepsy people.
I am on a waiting list for getting diagnosed for epilepsy the docotors put down as faint for 2 years coming up 3 years in September but finally they looking in to it
I have epilepsy and no one to really talk to that understands. I haven’t had any seizures in a while and I had 5 of them back to back yesterday! Now I’m scared I’m going to have some more n scared to be left alone I have all types of those seizures I fell on my face I bit off my nail yesterday now I can’t chew it’s horrible having epilepsy 💔
There are a couple things you can do to relax your body if you experience any sort of seizures. After having a seizure, drink a cold glass of water as this will cool your brain and body immediately If you are still in any difficulty during the day, then you should drink a frappe or something ice blended as this will relax your brain and body Watch a comedy program which will take away stress Eat your full day meals. Get proper sleep. Keep away from smoking or consumption of anything that can affect your brain Keep away from chemical factories as the smell will worsen a seizure Avoid amusement park rides as this also results having a seizure. Good luck and I hope you stay well
I would like an update as well. I understand that it might be a depressing topic to bring up, but... Annie (if you see this reply comment lol), you're such an inspiration to me. Your videos show you living your best life and it makes me hopeful and pushes me to be braver in my own life. Please, do share an update or any tips you may have for us.
I wasn't sure if people would like it... but decided to do a live Q&A on instagram on Epilepsy Awareness day 26th March at 6.30pm... join me instagram.com/itsanniebean
I think you might be describing an aura. Some people have warning signs before a seizure and some don't. An aura helps, because it gives you some time to make yourself safe before the seizure happens, if you need to.
What did your doctor advise ? There are a couple things you can do to relax your body if you experience any sort of seizures. Always drink a cold glass of water as this will cool your brain and body immediately If you are still in any difficulty then it's a great choice to drink an iced drink like a frappe as this will add cooling your brain and body better Watch a comedy program which will take away stress Keep away from smoking or consumption of anything that can affect your brain Keep away from chemical factories as the smell will worsen a seizure Avoid amusement park rides as this may be fun but this also results having a seizure. Make sure you don't miss your meals Good luck and I hope you stay well
2 to 3 times every month i have a partial seizure its very difficult for me because i have a work...sometimes i didn't know i collapse in the ground...please help me how can avoid of this situation😔😔
I have also complex partial seizure and in my side i control my seizure to avoid foods trigger seizures and we have to pray always that God guide us always specially during seizure attack and try to avoid stress and relax your mind
@@germanburgos2993 nuts,beans,spinach,squid,beef,seasoning like monosodium glutamate,oatmeal,soya,ice cream,softdrinks try to avoid do you take anti seizure medicine
@@germanburgos2993 you have to consult neurologist so that you can have medications in your case you have to take medicine for now i am taking trileptal for my medication
i've had epilepsy since i was 5 and it's been a difficult journey. i've dealt with everything from partial seizures, night seizures, to full on grand mal. in other words, it's been a battle. most of my life i've kept it a secret because, like you, it was easy to forget...unless i had a major one. once i got to college, they got worse. i would have them in class, in the lunch hall, skiing, and even in restaurants. a few months ago i was straightening my hair and had a seizure and dropped my flat iron. when i woke up i had third degree burns and had to get surgery. i think it's great people are sharing their journey through epilepsy treatment because it's hard to empathize. people will never understand who don't have it.
Do you think it's stress related???????
Do the night seizures feel like sleep paralysis? I’m wondering if I had internal seizures at a young age a few times. Like one time in class. And then later as a young adult I experienced a trauma and started having sleep paralysis. So curious if it’s similar
@ Melissa
It is very important for you to stay away from skiing or any amusement park rides as these may be so joyful but later these can cause a serious partial seizure.
Always keep a cold water bottle with you as this is the first liquid which will relieve the pain of a partial seizure.
Keep yourself away from smoking and consuming any chemicals which will affect the brain.
Be away from chemical factories.
Do not keep the news that you have epilepsy away from your doctor and make sure you don't miss the medication prescribed to you. If you continue to have weakness after having a partial seizure then drink a frappe or something ice blended as this will relieve the pain of a seizure.
Always keep a cold water bottle with you wherever you go especially by your bed as you will need to drink cold water immediately after you are stable enough to drink water.
If you ignore taking care of yourself from the seizures, they will worsen as you age.
It's never too late to start taking care of the seizures.
Good luck and I hope you stay well.
@@kirstiejane8896 I'd like to answer this.
There are a couple of reasons which causes partial seizures.
1) stress
2) smoking or consumption of anything that can affect your body and brain
3) amusement park rides. These may be fun but later these can cause partial seizures
4) missing meals, sleep and medication
5) not informing your doctor the exact symptoms which you experience during, before or after having a partial seizure.
Example, feeling stiffness in your body as you have a partial seizure
Advice for you. Always drink a glass of cold water after your seizure. If you still have weakness after having a partial seizure, drink a smoothie or frappe.
Always stay calm after having a partial seizure. Watch a comedy program which will help relieve stress and worries
Hey Annie, if you still check for comments. Hi. I just found your videos and I hope you are well. Everything you said here is so true. I been a long journey and it's so hard to find anyone who really understands what we go through. I've had 2 surgeries for epilepsy. The really frustrating part is ,as the epileptologist explained. I will always be an epileptic. Even if the surgery is a success there will always be a chance it will come back. My surgery was 4 month ago and so far no seizures. My brain is rewiring and other neurological issues have surfaced but just as part of the healing process. It takes a year to get back to what is considered your baseline neuro function levels. But to know it could happen again is tough to deal with. Hope you are well.
Thank you for sharing your stories. I started having seizures about 2 years ago and no doctor has agreed on the cause. And yes!
Stress and lack of sleep is what triggers mine.
There are a couple of things that you can do.
After having a seizure, immediately drink cold water as this will cool your brain and body.
If you are still unwell, drink a frappe or something ice blended as this will further relax your body.
Eat fish and greenery vegetables
Don't miss your full day meals
Get proper sleep.
Watch a comedy program to reduce stress
Always keep a cold water bottle with you as this is the first liquid which you will need.
Avoid:
Smoking or anything that affects the brain
Going on amusement park rides as this can worsen seizures
Being around Chemical factories
Over stressing.
Good luck and I hope you stay well
Hi Annie. What you explain about the nervous and anxiousness when you get the dejavu is exactly what I get. I understand it so well, and yes, just because it doesn't go into a big or any seizure, it doesn't mean that it is less important. People don't understand this though and they sometimes make me wonder, if what I going through is really so bad. Other epileptics have it so much worse and thank God I don't, but why I am struggling to overcome such 'small' seizures.
My seizures are 100 times better than before and my aura's don't tend to become a bigger seizure.
I do however have a trend where every month for a week, I get up to 15 aura's a day, spread throughout the day. The more aura's I get, the more tired, scared and sick I get. I also usually wake up feeling 'not so good' and knowing, today might be a seizure day. By 3pm in the afternoons after all the aura's, I feel terrible, have a massive headache, am confused and struggle to think and speak. I think these aura's are simple partial seizures and because there are so many in a day, I get really sick and recovery takes extremely long.
Has anyone else exprienced something similar? Aura's not going into bad seizures, but having a number of aura's in a day?
What side effects do you experience with aura's?
Same as you,I have partial seizures and before I get one I dont feel so good and you think is this going to be the day,I am on medication which has helped and now I only get the odd one. Had a seizure today walked through it,went to the cash desk to pay,I had a complete blank,couldn't remember my pin and that was worse than the seizure itself. The tiredness afterwards is awful,I just wanted to lie down and yawning nonstop.
Natasha Stoltz I sometimes have these at work so I’ve let them know. They didn’t look too deeply into it because apparently ‘aren’t that big of a deal’ as they are not like big Seizures.
Natasha, yes this is exactly what used to happen with me. I had what I thought were panic attacks, particularly in monthly clusters that lasted about a week. Hard to describe but I would get this overwhelming sense of deja vu, then tingling all over, tunnel vision, then I would usually vomit. Doctor thought they were panic attacks, too, so put me on all sorts of anxiety meds that didn’t help. Then I went backpacking in the mountains at high altitude and had four grand mal seizures. Turns out, I had been anemic due to large fibroids and severe endometriosis, which was exacerbated by the high altitude, which led to the grand mals. I had an emergency hysterectomy and went on Keppra. Four years later, I’ve not had a grand mal or “panic attack” (aka partial seizure) since! We’ve since determined that the monthly spell for about a week of these partial seizures likely occurred in the days leading up to, and the first three or four days of, my period. Go figure! I hope you’re doing well now, a year since you posted your comment!
@@maggspaine5419 I get exactly the same as you I have temporal lobe epilepsy and my seizures are the exact same as yours and that same incident accures with me every single day with the ATM machine I get that happen all the time where I can go to the ATM machine and I always forget my pin all the time
Hi Natasha,
I have written a detailed description about the partial seizures below the video. Please read that.
In the partial seizures and weakness you are facing, just drink a glass of cold water immediately after you have had any seizure because this will just calm the brain and body immediately.
If you still feel very weak, drinking something with blended ice is very helpful like a smoothie or a frappe.
This will relax your brain and body and keep you well.
If you eat seafood, a fresh fish meal is helpful and eat greenery vegetables
I liked that you touched base on this topic I'm epileptic too and I have a friend who has partial seizures and sadly sometimes people think she is lying about her epilepsy. I feel like there is not much education on epilepsy this video gets the message out there for people who don't know the nature of epilepsy.
i had a support worker who thought I was faking my epilepsy which she always she knows alot about epilepsy which i found out later that she doesn't.
Thanks so much for sharing this. My husband suffers from epilepsy, just diagnosed 2 yrs ago at 55 years old. We as a couple have committed to keeping seizure journals and increasing our understanding of this. John has simple and complex focal seizures....we used to call them his “moments” before we understood what was happening. Again, thank you! 💕
Thank you Annie Bean. I used to gran mal in 2006, then had partial focal seizures 2009-2011 and then again a few weeks ago. I went 8 years seizure free with new medicine but last week wasn't fun for me. - I wish you the best of health always. I know it can be frustrating and i understand when people forget you have epilepsy because we look "normal". Nice is when i forget.
Wish I had partials, tonic clonics have destroyed my body and life :( my longest lasted 24 hours and I had to go on life support in intensive care.
I've had partial seizures 6 years now after I had the stroke with it I lost my taste and feeling. After 3 years I could taste again but regained my feeling partially. But it is nice to know I'm not alone because my friends and family don't really understand how it feels but they support me and seeing these video's helps
When im tierd or stressed. I get seziures
Amy Drew John has indeed realized that stress andlack of good sleep can make him very vulnerable to seizure activity.
Me also
So stress is the trigger. Calm. Remove yourself.
I am epileptic and I have experience all you have mentioned. Initially, I rejected it that I was epileptic. It is about 10 years I have been diagnosed to be epileptic and I have come to accept it. I have experience most of the symptoms you have had.
Thank you for sharing! My wife has that same feeling of fear and dread. "Wobble" is a good term.
Finally a channel with useful information!!
Glad you think so!
Sugar, stress, alcohol, exercise, lack of sleep, and situations that make me nervous triggeres my seizures. Basically anything that makes my heart beat faster. Really sucks
Stress and alcohol are the biggest factors
That's a good list of have less of and have more of. Take the tip. Smart body.
Don't consume anything that can affect your body and brain. With age, the seizures will worsen and be dangerous for your health
So glad I found you this has had us stumped and no health insurance. I cried watching your videos about this because for the most part sounds like it. My fiancé has been dealing with this since about his twenties out of no where. It started as just deja vu before that. Now when it happens. He has a full on panic attack (what it looks like) and is sweating a lot and then will go from that to freezing with a few moments and then it happens multiple times. He forgets major events as well. In that moment he forgets everything and spouts out very odd things sometimes. It’s very scary. He’s also uncontrollably coughing and dry heaving/puking. I have to explain to him over and over until he comes out of the episode which last from 15- longer periods of time. He’s also started having incontinence during a few of these which is a new onset. He’s very confused and scared. I’m calling a neurologist after the weekend is up. Thank you and please keep posting! ❤️
♥️
Thanks so much for your video until I found you i though I was alone its a difficult journey and I don't think people understand i had my first siezure at 45 years old everyday i try to live my life as normal as I can thank you
Are you seizure free now ?
I was diagnosed with Photosensitive Epilepsy when I was 2.
Luckily my Seizures were only caused by a Brain Tumor that I had surgically removed when I was 8.
I keep telling my doctor's but they down play it, Walking around with fear all day, Body gets heavy while walking but it's that uh OH feeling
I get upset when it happens cause there's nothing can be done about it.
I just have to remember I took my meds already
dude i feel this, currently what i am going thur
I'd like to give you an advice. If you are facing a partial seizure, the best you can do is say a prayer in your mind stay calm and immediately have a cold glass of water. If that doesn't help then have a fruit smoothie or a frappe. This will relax your brain immediately. Sometimes eating a fresh fish meal is a better choice
Partial seizures are quite dangerous if not informed to doctors and taken care of.
It's true - this is not a migraine or a headache. This hurts in a specific spot in the brain very badly
Can you drive? Or do you choose to? How long from when you feel aura till you have one? Thank you for sharing your story. Your words are so familiar. I'm not alone!
I’ve. Had epilepsy. For. 12 years
Love the vids!!!!!!
I don't know the terms used to label each kind of seizure. The aura, or the felling that comes before , I'm 56. They have changed the names of these kinds of seizure twice in my life, so far. I have grand mall , peti mall, staring spells , siesures when I'm aware, and when I'm unaware. I think I have had them all. My wife is my super hero. I don't need to know how to diagnose Epilepsy, I need help , doing something about this. If I can somehow lower my stress level, I will lower the number of seizure that I have.
Check with a doctor and have an MRI done. Keeping a track of seizures is very important.
You should drink cold water immediately after you have a seizure as this will immediately cool your brain and body.
If you are still feeling weak, you should drink a frappe or smoothie as this will further relax your body.
Eat a full day meal and add vegetables and fish in your meals.
Watch a comedy program to reduce
stress
Avoid:
Smoking or anything that affects the brain
Amusement park rides as this can worsen seizures
Being around Chemical factories because you may feel difficulties in breathing and this can cause
seizures
We're a little late to the party. Thanks for creating this and raising awareness for Epilepsy
I can totally relate to this. I'm currently pregnant and undiagnosed but I truly believe in my gut that this is what I'm experiencing. I'm scared to bring it up at my doctor but know that I must.
Please bring this up to your Obstetrician. Seizures are serious and can be dangerous for an unborn child specifically during the 2nd and 3rd trimester.
@@sepporahk6102 thank you. I'm going to bring it up tomorrow at my appointment
Please make sure you are drinking cold water immediately after you have a seizure. This is going to relax your body faster than anything else.
Make sure you are away from any Chemical factories, smoking areas or any sort of smell that can cause a seizure
An advice is to watch a comedy program which will reduce your stress or any worries, make sure you always tell your doctor that you have epilepsy, make sure you don't miss your meals, sleep and most importantly your medication.
Another advice is always keep a cold water bottle with you incase you feel you will have a seizure.
Good luck and I hope you stay well
Wow those people have that I know I hope they fell better and stronger
I'm sick of being undiagnosed with my seizures, exhaustion definitely triggers it more. But for the 20+ years I have had them and not one doctor has given me an answer, so i can't be treated.
Can you find the triggers. Do you crave calm??????
@@kirstiejane8896 usually exhaustion or if I'm unwell
Sorry to hear this, hope they are better now. No one believed me neither at first until I was on the bus and had one as soon as I took a step down exiting the bus, next thing I knew I was surrounded by cops and back in the seat. They probably thought I was a drunk black woman or on drugs, they just let me go afterwards as the people on the bus were complaining about getting where they need to be.. Thankfully my doctor referred me to a neurologist after that.
@@jeanyluv5106 oh sorry to hear that x did they give you answers?
What do any of you do if you have had a seizure.
I'm sorry if you are not being treated by the hospital.
If you have a partial seizure, the first step is to drink a cold glass of water immediately.
If you are still feeling very weak afterwards, drink a frappe or something ice blended.
Sometimes eating a fresh fish meal is a better choice and greenery vegetables.
1) Your first medicine should be to stay happy. Watch a comedy program ( who's line is it anyway) that's a great show.
2) Have a hobby, painting, playing an instrument or whatever you like as a hobby
What can trigger a partial seizure:
1) smoking or anything that affects the brain
2) being around a Chemical factory
3) stress
4) amusement park rides
5) extra work ( if you have many tasks, don't over tire yourself )
6) delaying epilepsy medication or missing them
7) If you have 2 doses, make sure they are exactly 12 hours apart or as your doctor advises
Amusement park rides might be joyful but later in the day you can get a severe partial seizure.
Good luck all of you
i’ve had a weird war with epilepsy i’ve never told anyone about it but i remember getting them when i was young like preschool and them they stopped and at about 7th grade they started again worst than ever and it was happening like 5 times a day for months and right now i’m in 9th grade and i haven’t had one for many long time since easter and i know that for a fact because i keep a chart of what days they happen on and the weird think is i went from having al least 1 a day or at max like up to 10 a day to all of a sudden none for about 8 months
Are you on medication...
Did you bring your epilepsy condition with a doctor ?
Epilepsy isn't something to be ignored.
I can feel it coming in my head, like a pressure feeling , so
I relax, and prepare myself to loose control over my body, I lie or sit down otherwise am going to fall, it feels as if am drawing back into my self, i feel like am in the Center of my head while it becomes dark around me. It takes all my energy away while its happening. I feel panicky and scared.
I can feel it in my head at first it’s like a some sort of pressure coming down and consuming me. My brain starts to shut of and I am very sleepy . I get very sleepy and tired when it’s happening. My head falls down to side when am laying down or forward if am sitting up straight, and my eyes close
I start saying prayers in my head because I get anxious.
I can hear things happening around me so am conscious but at the same time I am detached. I can’t talk while it’s happening nor can I respond to anyone or move my body, my body feels limp and weak.. i get a rising feeling in my stomach like when you are in a roller coaster and it’s going down fast, also i get this feeling of nauseousness in my stomach. I start to swallow a lot during it and for abit more after it. It last for about minute and a half max or 15 secs minimum, then I come back again slowly to myself. I feel weak and tired after it.
I feel fine 10 minutes later
When it’s for 15 sec or so less symptoms present themselves and when it longer like a min or so then all the symptoms show.
Or
Annabelle Lande what is witnessed exactly if you you don’t mind sharing hun x
This is what I experience below
I get a warning that it’s going to happen, the warning feels like am going to blackout.
some sort of sensation comes down from my brain and consumes my head and body.
It’s very hard to explain
I get a feeling of extreme dread and fear.
I have started to relax now, and prepare myself to loose control over my body, so I lie or sit down, when it is happening.
(My last one I didn’t have a warning )
The next stage feels as if am drawing back into myself as if am fainting, while my eyes become dark so I close them. Am still aware of what’s happening, I dont loose consciousness. This experience takes all my energy away.
My brain starts to shut of and I get very sleepy and beyond exhausted while it’s happening and afterwards aswell.
My head falls down to side.
I tell my self to be calm and that it will be over soon (in my head) I feel very anxious and fearful during it, a feeling like am about to die. I get a feeling like when your stomach drop when you are on a really fast rollercoaster going downward. It’s aaccompanied with a feeling of nausea.
I start to swallow rapidly during the episode and also a while after it has finished.
I can’t talk while it’s happening nor can I respond to anyone or move my body, and I don’t have the ability to snap out of it
my body feels limp and weak I can’t lift my arms or legs and I can only stare blankly. I don’t have control over my body so
I have to let it run its cause.
As am going more and more into this state, any noises, eg tv, any small talk, cars, radio or whatever else quietens down and for split second I dont hear anything at all but before long they start to pick up the volume again as am coming back to myself.
It lasts for about minute max and 30 secs min
I am aware of everything happening from start to finish
I come back again slowly to my normal self. I feel weak, sleepy and tired after it.
Saying prayers is excellent during this difficult seizure.
It is best to sit down and stay relaxed as you are aware of the seizure or have a seizure.
Always keep a water bottle with you because after your seizure and after you have control of your body, you should drink cold water immediately to relax your brain and body. As you mentioned feeling weak through out the day, you should drink a frappe or something ice blended to further relax your body.
You should:
eat fish meals and greenery vegetables.
Watch comedy programs to reduce your stress
Sleep well
Eat your full day meals
Always keep a water bottle with you.
Keep a 12 hour gap for your medication if you take 2 tablets for the day.
You should avoid:
Smoking or anything that affects the brain.
Amusement park rides as this can worsen seizures.
Being around chemical factories.
What has your doctor said ?
You should ask for a medicine called lamotrigine or Lamictal as this medication is more effective for epilepsy.
Good luck and I hope you stay well
I am suffering from complex partial seizure from age 12 ( now i am 29) but i have still seizure time and again.
Can I ask if anyone here gets episodes where they are vacant, dilated pupils, can’t move or respond, can’t Hold own head up or keep eyes open sometimes, but they are still aware of what’s going on. I can feel them coming but sometimes it leads to nothing. Other days I’m just not right. I’m currently in the process of finding out what’s going on and I’m honestly scared and although I have lots of support I feel very alone. Currently waiting for MRI results. Im 33 they last between 1minute and close to 4 minutes for my biggest one.
Look up Atonic Seizures...
I recently decided to start an exercise regime, but after 2 weeks I had a cluster of strong seizures. It took a while for things to calm back down. The trigger is getting puffed for any length of time. It could be as short a time as ten minutes. I can do a bit of yoga, because it doesn't involve heavy breathing.
It's really frustrating.
Does anyone else have problems with devices like tablets and computer screens, and films with special effects or shaky camera work? I can't watch Eurovision since they started using those floor and background screens, I'm guaranteed to have a seizure.
I've had epilepsy for 7 years now. My seizures aren't that bad. But I do relate to having problem with screens and such. Flashing lights doesn't trigger seizures for me personally but staring at screens does. If I'm too focused on something like for example a digital device I get a seizure. I also have problems in class because of focusing for too long.
I have to turn my brightness down, on my phone all the way,,
because its just to much for me, it bothers me.
Hi I know this video is old and I’m so sorry this is happening to you my sister has been diagnosed with epilepsy and I’m trying to find helpful videos to send to her because I know she’s so scared abs already stressed abs wondering why is this happening.
What symptoms does your sister feel and which sort of epilepsy does she have ?
Partial seizure is when you have severe pain in one part of the brain and you become stiff. This can last anywhere from 5 seconds to 10 seconds or more depending on the health situation.
Is this what she experiences ?
Hi,
I hope your sister is doing well.
I would like to share some information which can be helpful.
After she has a seizure, she should drink cold water immediately as this will cool the brain and body immediately.
If she still has weakness, she should drink a frappe or something ice blended as this will further cool the brain and body.
She should:
Eat fish and greenery vegetables
Eat the full day meals
Get proper sleep
Watch a comedy program to reduce stress
Always keep a water bottle as this is the first liquid to cool the brain after a seizure.
She should avoid:
Smoking or anything that affects the brain
Being around Chemical factories
Amusement park rides as this can worsen seizures.
Over stressing.
Missing medication.
Ask your sister to talk to her neurologist about a medication called Lamictal or lamotrigine as this medication is more effective to reduce seizures.
Good luck.
My doctor is currently running a lot of test and looking to rule out MS, neuropathy as well as complex partial seizures. I have read that complex partial seizures can be caused by trauma and I have had so much trauma and have CPTSD. I have dealt with years of mental abuse from my mom as well as an instance of sexual abuse and years of physical abuse from my dad. my dad has told me that they were between five and 10 times where he had punched me in my head putting several blows to my head each time. I have also read that complex partial seizures can be mistaken for the disassociation. I definitely have CPTSD and I recently started with a new trauma therapist and she said my disassociation is very bad I’m wondering if sometimes it can be that I’m having a complex partial seizure and that disassociation is caused by it. It’s just really frustrating because I’m not sure if the symptoms I’m experiencing or mental or physical. It actually would be kind of better if they were a result of my PTSD because I’m already being treated for that.
Hi Nicholas,
Partial seizures can be caused by trauma which a person has had in the younger age to any age.
The partial seizure which you have is also a result from the abuse which you had.
If your body becomes stiff and your brain is feeling heavy painful pressure on any side of your head means you are going through a partial seizure.
If you can exactly write your symptoms which you have, it will be easier to guide you.
Example:
1) Your eyes begin seeing the tube lights very bright to you, even if it's not all that bright
2) Your body becomes very weak that it's difficult for you to even walk properly
3) You have difficulty breathing
If you have any of these symptoms, it's very important for you to drink cold water immediately after you have a partial seizure. If your body still feels unwell, it's better for you to drink a blended drink like a smoothie or frappe.
You must always stay calm after you have a partial seizure and make sure your body is stable.
Keep away from chemical factories and consuming anything that can affect your body and brain.
Can I give an advice to all of you in this chat.
If you are facing a partial seizure, do not ignore this.
The best you can immediately do is read a prayer in your mind and drink a cold glass of water and if that doesn't help, drink a fruit smoothie. I prefer frappe which immediately relaxes my brain because it's an iced drink. This really helps, believe me.
It is extremely important to tell your doctor your situation because in the partial seizure a specific area in the brain will be hurting badly as the brain waves will be bumping to each other and it seems like an electric shock.
This is not a severe headache or a migraine. This is an epilepsy and should not be ignored.
Always take a cold water bottle with you whether you are driving, going for a walk or are suddenly unable to breathe.
If you are driving just go to the lane where cars are moving slower and if needed pull over and park your car on a safe spot so you can relax.
Some things to be aware of which can cause a partial seizure:
1) Smell of cigarettes and smoking
2) smell of detergent or any smells related
3) petrol ( as in factories )
4) missing a meal
5) missing dosage
Good luck all of you and I hope you all have good health
I haven't had anything in almost two months but the last one lasted more than 35 minutes. I had two partial seizures first. They have upped my medication and I am getting more sleep. Also, I have to be careful how much I drink.
Great information thank you
....I do this weird thing where I roll my eyes to the back of my head and I get dizzy and black out for a few seconds...
I’ll pray for you 🙏🏾
Did you know Deja vu is a focal seizure? Mines has stopped now, my medication, Mysoline has been stopped. It's such an old drug, but I couldn't live with the side effects of the others, I have to buy a generic brand now. Um
Identical symptoms I have. 12 years now caused by brain aneurysm. Feelings of dread and fear.....strange smell...deja vu.....shuddering almost orgasmic total body tension, goose bumps .....nausea.....washed out for a while after. Never lose consciousness or black out. Always aware of what’s going on. The whole things takes about 5 to 10 minutes, then I’m back to normal. Anticonvulsants work up to a point but I have to watch alcohol, stress, fatigue, etc. Side effects of meds aren’t nice.
How is your health now ?
I would like to add a few points to you.
You should avoid:
1) anything that can harm the brain like cigarettes as well.
2) amusement park rides as this can worsen seizures
3) missing a full day meal (breakfast, lunch and dinner)
4) being around Chemical factories
You should:
1) always keep a cold water bottle with you as this is the first liquid which will relieve your body pain.
2) drink a frappe or smoothie as this will cool your brain and body
3) watch a comedy program because this will take away stress
4) take your medicine on a scheduled time
5) eat fish as this is a great source of nutrition
You should ask your doctor about a medicine called lamotrigine and Lamictal as this is a great medicine for epilepsy people.
@@furqaniqbal7223 Doing great Iqbal. I do avoid those things an I’m getting along just fine. Mashallah.
@@furqaniqbal7223 Hope you are well also Furqan.
@@stephenmcginn6872
Masha-Allah that's great.
I hope you stay well and healthy
@@stephenmcginn6872
Alhamdulilah I'm well. Thanks for asking
I hate the feeling of deja vu and kind of closing in. That's a dead give away that something is coming for me.
I am on a waiting list for getting diagnosed for epilepsy the docotors put down as faint for 2 years coming up 3 years in September but finally they looking in to it
What are the results of your treatment ?
I hate deja-vus. I also smell and taste things that are not there ... very creepy.
I have epilepsy and no one to really talk to that understands. I haven’t had any seizures in a while and I had 5 of them back to back yesterday! Now I’m scared I’m going to have some more n scared to be left alone I have all types of those seizures I fell on my face I bit off my nail yesterday now I can’t chew it’s horrible having epilepsy 💔
Have you seen a doctor ?
How is your health now ?
There are a couple things you can do to relax your body if you experience any sort of seizures.
After having a seizure, drink a cold glass of water as this will cool your brain and body immediately
If you are still in any difficulty during the day, then you should drink a frappe or something ice blended as this will relax your brain and body
Watch a comedy program which will take away stress
Eat your full day meals.
Get proper sleep.
Keep away from smoking or consumption of anything that can affect your brain
Keep away from chemical factories as the smell will worsen a seizure
Avoid amusement park rides as this also results having a seizure.
Good luck and I hope you stay well
What meds do you take?
hi annie are you doing a nw q and a . and how is your epilepsy now ?
I would like an update as well. I understand that it might be a depressing topic to bring up, but...
Annie (if you see this reply comment lol), you're such an inspiration to me. Your videos show you living your best life and it makes me hopeful and pushes me to be braver in my own life. Please, do share an update or any tips you may have for us.
I wasn't sure if people would like it... but decided to do a live Q&A on instagram on Epilepsy Awareness day 26th March at 6.30pm... join me instagram.com/itsanniebean
I will look out for this Annie xx 😘
Thank you so much! I'll add a reminder to my calendar ^_^
I get seizure once a month.
Are you from the UK?
I am ☺️💐
When you are talking is it possible to get feeling you are going to have a fit.
I think you might be describing an aura. Some people have warning signs before a seizure and some don't. An aura helps, because it gives you some time to make yourself safe before the seizure happens, if you need to.
I've had epilepsy since age 12
What did your doctor advise ?
There are a couple things you can do to relax your body if you experience any sort of seizures.
Always drink a cold glass of water as this will cool your brain and body immediately
If you are still in any difficulty then it's a great choice to drink an iced drink like a frappe as this will add cooling your brain and body better
Watch a comedy program which will take away stress
Keep away from smoking or consumption of anything that can affect your brain
Keep away from chemical factories as the smell will worsen a seizure
Avoid amusement park rides as this may be fun but this also results having a seizure.
Make sure you don't miss your meals
Good luck and I hope you stay well
Anyone can reply to me if you have problem with receiving epilepsy meds.
2 to 3 times every month i have a partial seizure its very difficult for me because i have a work...sometimes i didn't know i collapse in the ground...please help me how can avoid of this situation😔😔
I have also complex partial seizure and in my side i control my seizure to avoid foods trigger seizures and we have to pray always that God guide us always specially during seizure attack and try to avoid stress and relax your mind
@@winchylsalimbangon1450 thanks maam...😊 😊 😊 hmmm...what kind of foods???
@@germanburgos2993 nuts,beans,spinach,squid,beef,seasoning like monosodium glutamate,oatmeal,soya,ice cream,softdrinks try to avoid do you take anti seizure medicine
@@winchylsalimbangon1450 thanks maam...but i don't have take any medicine..you??
@@germanburgos2993 you have to consult neurologist so that you can have medications in your case you have to take medicine for now i am taking trileptal for my medication
Dennis seizure