Thank you so much for this video! We are preparing for my son's FCD resection in the coming months and this was invaluable! Definitely have come away with more knowledge and with great questions for our neurosurgeon.
@@ScottBradley-fi3xc well, interestingly enough we had two other opinions from Boston Children’s and The Cleveland Clinic and while doing inpatient scans at TCC he never had one seizure. He’s either grown out of them or his epidiolex is working and holding them back. So we never had the surgery. Still an option if seizures return through.
This was very very helpful as my 17 y/o son is scheduled for surgery to remove the abnormal tissue for this type of epilepsy at Nicklaus Children’s hospital. Thank you
This is a very helpful presentation, thank you! Have there been any major break through developments in the 3 years since this was produced? Better imaging facilitating more precise location of the abnormalities, improvements with the lasers, etc?
Hi. Very helpful presentation. I am doing research on Focal Cortical Dysplasia Type 2. Do you have any resource for number of patients diagnosed annually US or OUS? Thanks very much! Do you know CPT codes or ICD10 if available also?
I am from phillippines my daughter findings that she have a focal cortical dysplasia she is 13yrs old now she always has a dizziness and cramps of her arm and feet ..also her left feet is un right position...can i ask what is the treatment to my daughter she need to take?
Sir, I am from INDIA, My brother is 35yr old, he has focal cortical dysplasia in right mid inferior frontal gyrus. The diagnosis was made 2 years back. He is currently on 4 antiepileptic medications, but seizures are persistent. What mode of treatment would be suitable for frontal lobe? And where could I get it done? Please can you help and guide me sir. I will be highly obliged.
Thank you for the detailed information Doctor. Also, I saw few comments from conmans for herbal medicines. If you are managing the video through a team, please instruct them to remove these comments as they make a business out of parents hope to cure their child.
Thank you so much for this video! We are preparing for my son's FCD resection in the coming months and this was invaluable! Definitely have come away with more knowledge and with great questions for our neurosurgeon.
Hi Laura, we also preparing our son for surgery and would love to hear how was your son's case ..
@@ScottBradley-fi3xc well, interestingly enough we had two other opinions from Boston Children’s and The Cleveland Clinic and while doing inpatient scans at TCC he never had one seizure. He’s either grown out of them or his epidiolex is working and holding them back. So we never had the surgery. Still an option if seizures return through.
Very helpful presentation thank you
This was very very helpful as my 17 y/o son is scheduled for surgery to remove the abnormal tissue for this type of epilepsy at Nicklaus Children’s hospital. Thank you
I hope your son did well. My nephew was just diagnosed, he's 24 and devastated. Would love to hear your story.
Hope he's seizure free :)
@@jackiesenich2622 Hi Jacki .. we also preparing our 1 yo son for surgery and would love to hear how was your nephew's case ..
This is a very helpful presentation, thank you! Have there been any major break through developments in the 3 years since this was produced? Better imaging facilitating more precise location of the abnormalities, improvements with the lasers, etc?
Hi. Very helpful presentation. I am doing research on Focal Cortical Dysplasia Type 2. Do you have any resource for number of patients diagnosed annually US or OUS? Thanks very much! Do you know CPT codes or ICD10 if available also?
I am from phillippines my daughter findings that she have a focal cortical dysplasia she is 13yrs old now she always has a dizziness and cramps of her arm and feet ..also her left feet is un right position...can i ask what is the treatment to my daughter she need to take?
Sir,
I am from INDIA,
My brother is 35yr old, he has focal cortical dysplasia in right mid inferior frontal gyrus.
The diagnosis was made 2 years back.
He is currently on 4 antiepileptic medications, but seizures are persistent.
What mode of treatment would be suitable for frontal lobe?
And where could I get it done?
Please can you help and guide me sir.
I will be highly obliged.
Bhai meri sister ko bhi hai gyrus ka problem hai iska koi solution batao aap ka no. Mil sakta hai
Thank you for the detailed information Doctor. Also, I saw few comments from conmans for herbal medicines. If you are managing the video through a team, please instruct them to remove these comments as they make a business out of parents hope to cure their child.
Most danger viruses epilepsy complete removed option no in the world please research this subject expect