Living with Severe Brain Damage and Loving Sisters

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  • Опубликовано: 22 ноя 2024

Комментарии • 2,1 тыс.

  • @teshuvatolchin5938
    @teshuvatolchin5938 2 года назад +6455

    thank you chris! ezri had so much fun filming with you and so did all of us. thank you for giving disabled people an opportunity to have real and respectful representation. We love you guys!

    • @SpecialBooksbySpecialKids
      @SpecialBooksbySpecialKids  2 года назад +714

      Thank you so much for inviting me into your home. I had such a wonderful time with Ezri and everyone else. I hope out paths cross again!

    • @SaraE465
      @SaraE465 2 года назад +308

      And thank you for sharing your beautiful, diverse, jewish family!

    • @katherineknapp6604
      @katherineknapp6604 2 года назад +55

      Y'all rock!!!!!

    • @ladonnajean7543
      @ladonnajean7543 2 года назад +76

      You have a beautiful family. God's love shines so brightly in all of you.

    • @chequeplease
      @chequeplease 2 года назад +41

      Your kids are all so lovely, Ezri seems like such an extravert 😊

  • @motsyb.2682
    @motsyb.2682 2 года назад +1950

    Shout out to the youngest sister. She is so sweet to Ezri! I love her personality so much! Everyone else is also so loving and nurturing to him. It makes me happy to see.

    • @rrpearsall
      @rrpearsall 2 года назад +71

      Agree, She has a lot of charisma, spunky personality. Bet money she'll be a lead her school musicals

    • @yukiefromoz2573
      @yukiefromoz2573 2 года назад +60

      She seems to be most in tune with him. I think she'd be good with kids or helping kids with learning disabilities.

    • @jadejames7965
      @jadejames7965 2 года назад +8

      Yesss she is awesome with him

    • @bluelight8664
      @bluelight8664 2 года назад +25

      she reminded me of Chris the way she interacted with him!

    • @dorna2325
      @dorna2325 2 года назад +5

      how old is she?

  • @ekfarley14
    @ekfarley14 2 года назад +1888

    Yo, to the sister who said “I talk to him like an adult because he is one”
    Yazzzz! As a person with a disability I want to give you a round of applause for GETTING IT! That’s AWESOME that you figured that out!!!
    Every disabled person has the right to their adulthood and often times that is taken from us. Thank you for acknowledging our adulthood.

    • @neindanke3420
      @neindanke3420 2 года назад +80

      I agree. I was a caregiver for disabled adults for about 12 years and always spoke to them the same way I would speak to my friends and family and colleagues. It would bother me when other caregivers would use baby talk with them. I know their intentions were good but it felt disrespectful to me.

    • @155chipmunkz
      @155chipmunkz 2 года назад +35

      I’m 27 but don’t feel like it because I’m autistic.

    • @morgankirkendall5829
      @morgankirkendall5829 2 года назад +26

      I have been a pca to many people with a variety of disorders and diagnoses.... i dont baby talk but i do choose to keep things on a simple basis especially if neurologically they are a great deal younger then their physical age.

    • @screechingmoths
      @screechingmoths 2 года назад +7

      I do appreciate it most times but when I open up to people more I do tend to act very childish (I’ve grown up way too fast and I want to be a little kid again)

    • @lilnugget5961
      @lilnugget5961 2 года назад +31

      @Emma
      She said that and then baby talked him immediately after....lol. But I get that completely

  • @edenoknin7760
    @edenoknin7760 2 года назад +1459

    Wow I used to nanny for this family!! Can’t even put into words how happy I am to see you interviewed them they are amazing! It’s crazy to see how they’ve all grown up. Ezri is one of the most spiritual kids I’ve ever met. Sending love to the family (hope you guys see this!)

    • @krystalharwood6359
      @krystalharwood6359 2 года назад +23

      i could see why he laughs at a baby's cry. thats a new life being born

    • @Blox117
      @Blox117 2 года назад +7

      being a disabled male must be truly sad. getting a girl for the average guy is already difficult, so you know they will never get any. meanwhile a disabled girl will still have guys willing

    • @aahpuuh
      @aahpuuh 2 года назад +159

      @@Blox117 why did you feel the need to comment this? as you've never met the family or ezri and wouldn't know if he'd even like that. you're also commenting on a message from their previous nanny!

    • @Blox117
      @Blox117 2 года назад +2

      @@aahpuuh because i feel bad for him? do you have any empathy for men?

    • @Cosmic_Cookies_774
      @Cosmic_Cookies_774 2 года назад +88

      @@Blox117 that’s not what the video is about, if you’re going to comment something like that don’t do it as a reply to the nanny???

  • @tylerholman7239
    @tylerholman7239 2 года назад +806

    The youngest sister is so adorable, she’s the most attentive with Ezri and seems to have kind of a special relationship with him. What a blessing for the parents to have gotten a daughter like her

    • @keishquiche
      @keishquiche 2 года назад +11

      nice profile pic 😂

    • @NateEmail
      @NateEmail 4 месяца назад

      I agree. Their relationship seems really special

  • @lucilleavakian833
    @lucilleavakian833 2 года назад +1863

    My heart goes out to Ezri's mom because of the pediatrician dismissing the concerns about Ezra. Valuable time was lost. That part is so heartbreaking. I have had problems with not being taken seriously by doctors as well, and receiving incorrect diagnoses leading to inappropriate treatments and medications which further increased the severity of my problems rather than improving my condition. It is lovely to see Ezri with his sisters and to hear his father speak about Ezrais affinitty for Jewish religeous services. Yom Kippur is challenging for anyone to sit for 6 hours. Even if you go with the simplistic notion that God is love, it's easy to see Ezri's connection to love in his family and so spiritually encouraging to hear that he recognizes that love in the practices of Judaism.

    • @charliewegner
      @charliewegner 2 года назад +42

      i was ignored for a while about my concerns about having adhd, which resulted in me not getting diagnosed til i was 16, and then being diagnosed with high functioning autism this year (19). explained a lot.

    • @magical571
      @magical571 2 года назад +19

      @@charliewegner my best friend had to wait till 25 for her right diagnosis, it can be hard

    • @marieelisa1
      @marieelisa1 2 года назад +36

      How is this so common in the USA, are most doctors and nurses THIS incompetent??

    • @jeanieolahful
      @jeanieolahful 2 года назад +57

      Unbelievable that he had bleeding and they just dismissed it! Then they way the nurse behaved, just terrible!

    • @jeanieolahful
      @jeanieolahful 2 года назад +17

      He’s definitely a very special young man, and I imagine he finds the services soothing in their ceremony and the calm and predictable way the messages are conveyed. His behavior is a reminder to never pigeonhole anyone, they may just end up surprising you.

  • @EStramel09
    @EStramel09 2 года назад +1805

    I love the dad’s response of: “Do you always know what you’re trying to express?”.
    That’s a great response to the question.

    • @courtneyr214
      @courtneyr214 2 года назад +54

      Yes that really struck me! Very poignant.

    • @rickwrites2612
      @rickwrites2612 2 года назад +91

      Honestly it sounded like the dad misunderstood Chris' question, which was how it feels for you as his parent the times when you cannot recognize Ezri's words? Maybe the dad is used to getting a question about how does Ezri feel when he cant communicate, and thats the answer he uses to challenge people to relate to Ezri, which is really cool.

    • @jpm5042
      @jpm5042 2 года назад +88

      It is very jewish to answer a question with a question! (I say this as a Jew.) It made me smile

    • @courtneyr214
      @courtneyr214 2 года назад +12

      @@jpm5042 Interesting! Thanks for that anecdote.

    • @TheOctabreaker
      @TheOctabreaker 2 года назад

      Exactly this!

  • @kileysimon955
    @kileysimon955 2 года назад +1224

    This one made my heart happy. I’m not a religious person, but for whatever reason the spirituality of this family hits home for me. This family is so incredibly full of love for each other. It doesn’t feel forced. It’s genuine love and care for each other.

    • @MC-8
      @MC-8 2 года назад +11

      Your comment touched my heart

    • @sidneygreenglass106
      @sidneygreenglass106 2 года назад +28

      See you said it ,the spirituality of the family. Not just a religious faith but the love and caring for each other.

    • @angmoulton8528
      @angmoulton8528 2 года назад +1

      Yes I completely agree ❤️❣️

    • @MenkoDany
      @MenkoDany 2 года назад +4

      Highly religious kid with literal brain damage is a heartwarming and charming example, and probably not the example religious people would want to highlight I think xD

    • @155chipmunkz
      @155chipmunkz 2 года назад

      @@MenkoDany He’s 18, not a kid.

  • @ceegee5724
    @ceegee5724 2 года назад +136

    The father when he pointed out NONE of us can ALWAYS express exactly what we are trying to say or how we feel ! So true

  • @jessicamundia4699
    @jessicamundia4699 2 года назад +354

    Did anyone notice that ezri gets up and walks away when people start talking about a)how he got sick and b)the difficulties in taking care of him.

    • @pringletoast6825
      @pringletoast6825 2 года назад +40

      Well spotted.

    • @yoongitrash2699
      @yoongitrash2699 2 года назад +35

      its not really fair to him :/

    • @itzellluna5079
      @itzellluna5079 Год назад +38

      He’s really smart he understands what they’re saying.

    • @davoid96
      @davoid96 Год назад +40

      It must be extremely frustrating trying to express yourself but you just can’t.

    • @mikeysbae7
      @mikeysbae7 10 месяцев назад +1

      Yea,I noticed it too

  • @sabisabi.
    @sabisabi. 2 года назад +1732

    Aw, Ezri looks like he's having a really good time. He definitely has a very, very good sense of what is going on around him -- and he was lovely, supportive sisters. What a wonderful and beautiful family.

    • @jodyariewitz7349
      @jodyariewitz7349 2 года назад +5

      Agreed!!🥰❤👏👍

    • @mrcocoloco7200
      @mrcocoloco7200 2 года назад +8

      @@specjalistapatologii3315 I understand you feel disturb but remember you need to stay united & try your best to give people born with issues a normal life.

    • @faloves
      @faloves 2 года назад +4

      Yeah, agreed

    • @mrcocoloco7200
      @mrcocoloco7200 2 года назад +5

      @Sime4e1 Question how do you know this not to sound rude BTW?

    • @d.olluwu
      @d.olluwu 2 года назад +14

      @Sime4e1 he clearly does have a sense of his surroundings. you can tell how excited he gets when he’s understood and communicated with, plus he can express what he wants clearly to his family. i think it’s very unfair of you to assume he’s not functioning just because he’s different.

  • @HarroKitteh
    @HarroKitteh 2 года назад +872

    It's crazy cool how all the sisters seem to have a unique approach with how they interact with Ezri, they all have a special bond :)

    • @bloodngloss
      @bloodngloss 2 года назад +22

      Agreed. They are all so sweet.

    • @Blox117
      @Blox117 2 года назад +2

      my reaction would be running away

    • @FLOWERSSSSSsSssSs
      @FLOWERSSSSSsSssSs 2 месяца назад +1

      ​@@Blox117...

  • @cynthiaconnors183
    @cynthiaconnors183 2 года назад +429

    The one sister that speaks to
    Ezri like the adult he is, is a smart young lady. It is respectful to Ezri and will likely help with his communication skills and behaviors as well. Great job! Wonderful family with wonderful faith.

    • @summer10567
      @summer10567 2 года назад +5

      The other sisters seem to bother him because he understands

    • @Blox117
      @Blox117 2 года назад +1

      he's not an adult he can't even think for himself

    • @acidburnt5687
      @acidburnt5687 2 года назад +20

      @@Blox117 bro dont be ableist

    • @karicherrycola
      @karicherrycola 2 года назад +16

      @@acidburnt5687 don't even bother with this guy, he's all over the comments saying super rude and dehumanizing things so i'm thinking he's a troll

  • @triplefresh3339
    @triplefresh3339 2 года назад +226

    Having a Jewish family in the SBSK family being represented makes me so happy and feel so welcome. Kol Hakavod (good job in Hebrew)! Beautiful family

    • @donnakenny3974
      @donnakenny3974 8 месяцев назад +5

      Shalom, friend ❤🎉 I second that; love all my goys & shiksas!!
      (Boys & gals who are non-jews, but in Yiddish) . Haha 😊😁😉😇

    • @YW2324
      @YW2324 4 месяца назад

      Yes same 😄

  • @musiconly9813
    @musiconly9813 2 года назад +115

    I have an aunt with severe autism. My gran (her carer) sadly died from cancer when my aunt was in her 40's. Before my gran died, my other aunt offered to become her carer. Both my aunts are in their 70s now, and still coping very well together. It's so nice to hear this sister offering to take her brother in

    • @YourCapyFrenBigly_3DPipes1999
      @YourCapyFrenBigly_3DPipes1999 2 года назад +8

      That was fortunate. I always wonder what will become of the profoundly non-functional when a family isn't around. I don't know how it is in the UK but other than psychiatric facilities, I don't know what kinds of fulltime care facilities exist here. Not that many I don't think.

  • @__lemonade
    @__lemonade 2 года назад +1405

    3:50 I'm fascinated by how well the youngest sister knows how to ask him a this/that question. I get the vibe from this that she has her own distinct way of understanding and interacting with him because she's further in age from him than the other two younger sisters are. She's never known anything other than a much older disabled sibling. As an age gap older sibling, I really do believe that siblings who are further apart in age have a much different relationship than siblings who are closer in age.

    • @155chipmunkz
      @155chipmunkz 2 года назад +30

      I’m 2 years older than my sister but people think she’s older because I’m disabled. It makes me so mad.

    • @CrystalCat24
      @CrystalCat24 2 года назад +17

      @@155chipmunkz lol don't let it make you mad!! You'll see as you get older than being younger is better!! 😉😉😆😆

    • @krystalharwood6359
      @krystalharwood6359 2 года назад

      @@CrystalCat24 he probably means they think he has the mental age of a child

    • @danacaro-herman3530
      @danacaro-herman3530 2 года назад +15

      @lemonade. I lost my beautiful sister who was a little over a year older than me. My oldest sister grieved but it was the most difficult thing I have ever been through. Rest in peace 🕊️ my beautiful Carlisa.🙏❤️

    • @bkitteh6295
      @bkitteh6295 2 года назад

      @@danacaro-herman3530 😢 💔 💐

  • @Coopermaee
    @Coopermaee 2 года назад +452

    I love the discussions on the intersection of Judaism and disability. It’s wonderful to see how different religions and cultures embrace disability. Seeing disability so engrained in deep spiritual belief is really encouraging to see

    • @blatinobear
      @blatinobear 2 года назад +17

      I agree, this discussion really blew my mind about how things could be done better by everyone and anyone

  • @1stdaughter
    @1stdaughter 2 года назад +905

    I've seen this thread throughout several of the videos on this channel where a sister, generally an older sister, already knows without a doubt that her disabled sibling is going to be part of her household as an adult. I'm so moved by the sentiment and certainty they possess, and of course, the love, adoration, and care they bestow on their sibling.

    • @Missjoyme
      @Missjoyme 2 года назад +43

      very true. i intend to do the same for my youngest sister who is severely disabled

    • @dori2513
      @dori2513 2 года назад +19

      yup its so sweet and cute. this comment specifically reminded me of April and her sister Rachel who said the same thing. would love to see /know where they're at rn

    • @michellecox1742
      @michellecox1742 2 года назад +9

      Agreed! I am in recovery for an ED and PTSD. Anywho it's super hard for me to express how I feel.

    • @heyitsjustme.680
      @heyitsjustme.680 2 года назад +27

      Every time I have a fight with my boyfriend my older sister will tell me "Sis. The doors always open. Forever. No matter what. Amd no matter how long. I'd love you to be here"
      My sister is the best sister in the history of sisters.

    • @ayceleijae
      @ayceleijae 2 года назад +9

      Yes! I have 2 autistic sons and my 4 other children know that when their dad and I for whatever reason can’t take care of them anymore, they will most definitely welcome them into them into their homes. We don’t know who is going to take who yet because they are all still young but they know what to do when it’s time!

  • @Honey_hivez
    @Honey_hivez 2 года назад +123

    Seeing a disabled person and a Jewish family is so lovely to me. I am personally Jewish, raised that way and practicing now, and seeing this family and their love for their son and brother as well as their love for their religion is lovely to me. This was a heartwarming interview and I adore Ezri. They all seem so lovely to be around. Judaism is a loving and caring religion and seeing it being practiced in this way makes my heart warm with the love of my community and my religion.

    • @dankenhaus
      @dankenhaus 11 месяцев назад

      Evil parasites.

  • @LilMoco
    @LilMoco 2 года назад +297

    Ezri seems like so much fun! And he's definitely got an amazing set of sisters to accompany him along for his journey!

  • @SaraE465
    @SaraE465 2 года назад +323

    Beautiful family! Sweet sisters with very different personalities, all with their special relationships with their brother!

  • @GrimlynGaming
    @GrimlynGaming 2 года назад +400

    I like how he gets excited being bossy, not because someone does what he says but because they listened and understood, especially with a stranger. He's definitely blessed to have such a loving family, and I'd say the way they feel, they're blessed to have him.

  • @ChrisstineLynnn
    @ChrisstineLynnn 2 года назад +156

    Ezri has a VERY infectious smile... I found myself unconsciously smiling whenever he did. Thank you to the whole family for letting us into your home and hearts to share in this happiness. :)

  • @MrsWeaver
    @MrsWeaver 2 года назад +90

    Ezri is wonderful. Reminds me of our Noah who lived 32 years on this earth. I was so blessed to have been his Momma.
    His brothers and sisters were like Ezri's sisters. Very close to their brother. When she talked about memorizing his favorite book..we did that too!😄
    Such a wonderful family for Ezri❤ He is well loved.

  • @rosannacellini2158
    @rosannacellini2158 2 года назад +77

    I feel bad that, Ezri went through so much as an infant, poor baby. How upset his parents must have been, to see they're baby son so
    sick. God bless this sweet young man, with the best smile, and his loving and nurturing, family. Thanks for sharing Chris. 👍😎❤️😇🙏

  • @phyllismandelbaum5550
    @phyllismandelbaum5550 2 года назад +398

    First of all, this family has huge respect from me. I work as a special instructor for infants and toddlers and see children when they are first diagnosed when possible. I can't help but be angry at the pediatricians that didn't put a newborn into the hospital within the first 24 hours after seeing Ezri. He could have been medically supported sooner and possibly less brain damage could have occurred. Outrageous!! Secondly, Ezri and his siblings were a joy to behold. Many siblings feel put upon for helping out and these 5 sisters showed such an outpouring of love and respect for him. Kol Hakavod!!
    Thirdly, thank you Chris for showing religious Jews in such a good light. My heart was truly full to see my fellow brothers and sisters shine brightly.
    Finally, May HaShem bless this family with much Yiddishe nachas from all of their children. The story of Ezri and davening actually brought tears to my eyes. May Moshiach come quickly!!

    • @teshuvatolchin5938
      @teshuvatolchin5938 2 года назад +62

      thank you so much! your comment means so much to me and my family. -teshuva (ezris short haired sister)

    • @fayeromero7258
      @fayeromero7258 2 года назад +3

      Amen❣️🙏

    • @yzar007
      @yzar007 2 года назад

      Amen!

    • @peaceNlove132
      @peaceNlove132 2 года назад +3

      amen! sending blessings from Jerusalem

    • @dorna2325
      @dorna2325 2 года назад

      @@teshuvatolchin5938 how old are they? xx

  • @carolyncook2333
    @carolyncook2333 2 года назад +27

    Ezri is a gift from God !! I was born a-ok. I was in a coma one week later. I had Encephalitis. the sleeping sickness. That was 69 years ago. There i.s alot that flies overl my head. I cannot understand many things but Bless his heart ❤. EZRI HAS BEAUTIFUL EYES!!!

  • @danhughes3626
    @danhughes3626 2 года назад +86

    Breaks my heart..I have severe brain injuries
    No one knows what it's like until it happens to you or your family...you can't go back
    I'm glad he is happy most of time.

    • @alucardnolifeking789
      @alucardnolifeking789 2 года назад +1

      Is he concious? Like does he know he exists? Iam confused.

  • @mcpartridgeboy
    @mcpartridgeboy 2 года назад +28

    aww that youngest girl with the hair tied back is so sweet, you can tell she really loves her brother just by how she looks at him,they all are such a nice family.

  • @serenatsukino5252
    @serenatsukino5252 Год назад +185

    I'm mad that the nurse/doctor didn't take the mom seriously when she called about Ezri not being nursed. I'm surprised they didn't even get alarmed when she said there's blood in his diapers!

    • @smollilbean
      @smollilbean Год назад +6

      A lot of medical professionals are like that. Some of them are way too proud of their knowledge and in bad way wherein they don't listen properly, disregard patients experience, misdiagnose and do not take them seriously. Not all obviously but it's like a pattern that exists in many of them.

    • @araego6235
      @araego6235 Месяц назад

      Ya...they had him circumcised by the rabbi ....not at the hospital....they have a dirty little secret

  • @kyra5067
    @kyra5067 2 года назад +253

    I’m so entranced by Erzi’s aura. This young man has a really comforting energy!

    • @Everyoneisanartist776
      @Everyoneisanartist776 2 года назад +9

      Yeah, I adore him, his like a sweet angle

    • @elchinitofeliz1699
      @elchinitofeliz1699 2 года назад +10

      No, he's annoying

    • @dolph8008
      @dolph8008 2 года назад +9

      @@elchinitofeliz1699 saying what everyone is too nice to say

    • @thatsonyou6093
      @thatsonyou6093 2 года назад +23

      @@dolph8008 or yall are just horrible people 💀 likd no were not all thinking this

    • @plicketyplunk
      @plicketyplunk 2 года назад +6

      He is chaotic and disruptive. Not his fault but I would not want to have him in my life. And no, I am not a terrible person. I am a realist.

  • @DavidWainwright
    @DavidWainwright 2 года назад +110

    He is WONDERFUL and those are INCREDIBLE sisters. I love this family. ❤️

  • @lisamcilvain4992
    @lisamcilvain4992 2 года назад +91

    Beautiful family! The stories about Ezri speaking Yiddish and sitting quietly thru Yom Kippur is on another level!

    • @natanshaashua9935
      @natanshaashua9935 Год назад +6

      This reminds me of what the Lubavitcher Rebbe said, that people with disabilities are not as involved with what's going on in this world because they are busy with G-d in spirituality. (Paraphrasing)

  • @sanniwartinen3595
    @sanniwartinen3595 2 года назад +104

    Wow, that gave me chills hearing the family talk about Ezri's spirituality.
    What an amazing spirit this young man has, he just such a positive, happy, and rambunctious personality that shines so bright.♥️

    • @krystalharwood6359
      @krystalharwood6359 2 года назад

      its like my friend's daughter Becky with autism. she may not be educationally smart but when our pastor would randomly ask a question during his sermon she would always answer correctly

    • @KrystalHarwood-z1b
      @KrystalHarwood-z1b Год назад

      and average americans should learn from this family concerning treating EVERYONE equally. they all say the r word when it comes to people like Ez. it's sickening

  • @grassmelon
    @grassmelon Год назад +102

    as a speech-language pathologist, I can't help but think that Ezri would really benefit from AAC, whether it be a pointing system or an electronic device. I really wonder how much he'd be able to express!

    • @SapphireFein
      @SapphireFein Год назад +7

      SLP here too, literally just scrolled down to comment this!

    • @EmmaSigers
      @EmmaSigers Год назад +15

      My daughter has an aac and I was thinking the same thing. It would open a whole new world for him especially since he wants to communicate so much and really intentionally just doesn't have the motor skills to speak the words.

    • @ellioni5883
      @ellioni5883 Год назад +1

      Yess

  • @semantick
    @semantick 2 года назад +149

    The way the dad talks about his son, I wish everyone could know understanding from a man like that.

  • @oceanstaiga5928
    @oceanstaiga5928 2 года назад +419

    What a cheerful guy Ezra is. I’m sure having such lovely sisters and parents must be great!

    • @DrDestructoBlade
      @DrDestructoBlade 2 года назад +17

      *Ezri

    • @SorryImSam
      @SorryImSam 2 года назад +9

      If only every family could feel the love and support of such a family

    • @juliamclane8319
      @juliamclane8319 2 года назад +5

      Yes it must be

    • @catbirdler
      @catbirdler 2 года назад +1

      @@DrDestructoBlade "Ezri" is just the diminutive form of "Ezra", a popular boy's name. It means "help" in Hebrew.

  • @JenJean1234
    @JenJean1234 2 года назад +32

    I LOVE this beautiful family! I worked with people with developmental disabilities for over 40 years. I have seen every type of family from those who can't accept or cope with the disability, to families that love and support. I agree with the dad when he says, I believe he sees angels. I believe they do too, and spending 40 years in this work, I have seen it over and over again. God-bless you! You are a wonderful family!❤

  • @kiarasimone123
    @kiarasimone123 Год назад +86

    He definitely is a character😂 his sister trying to act normal while he was shaking the camera took me OUT! I already know he’s chaotic on purpose sometimes and I’m here for it! He’d be so fun to hangout with❤

    • @everlasting9292
      @everlasting9292 Год назад +10

      He’s mischievous!! That had me cracking up, too!

  • @mospina222
    @mospina222 2 года назад +59

    They are so patient, kind and loving sisters.

  • @kazutoraapologist
    @kazutoraapologist 2 года назад +44

    When the youngest sister started telling the story and he started getting really excited, I legit cried oh my gosh it was so adorable!

  • @liddlemountain7245
    @liddlemountain7245 2 года назад +67

    Its honestly such an honour to witness all this love Ezri is surrounded by. These siblings all seem super cool. I especially enjoyed how Ezri likes to sing, you can see what they say about him having a special connection to spirit.

  • @paprikapepper4765
    @paprikapepper4765 2 года назад +327

    Whoa, this video was like looking in a black mirror episode with my family 🤯 it was kinda hard to relate with other children growing up because it was hard to explain that your sibling needed more attention and your family life had to adjust outside of the norm to raise them. Religion played a huge part too. We Unfortunately got kicked out of a church or two because my brother was having a tantrum or sensoryoverload but we eventually found a church with server members who were absolute angels. God bless this family and your channel for sharing their story ❤️

    • @flxmkr
      @flxmkr 2 года назад +44

      I worked with special needs in a church. It didn't take me long to realize, when our Sunday school class was a closet of broken and discarded desks, that the church's goal was not to teach them...but to hide them from mainstream. I went to the copastor and told him it was a disgrace, and they were just as worthy of a regular classroom as everyone else. When I mentioned my suspicions, "So, you don't care what I teach them, you just want me to hide them", his response was, "Basically?...Yes!" They were the only reason I didn't leave that church, then and there.
      I'm so glad you found a loving church who accepts him as a member of the human race. ❤️
      We need more churches who are loving and accepting instead of comparing and judging.

    • @Hellohihey670
      @Hellohihey670 2 года назад +16

      Wow I’m sorry. Your brother deserves love and attention just like everyone else. I know Jesus will accept your brother no matter what. I’m glad you found accepting people. Have a wonderful day and God bless 🤍
      “Come to Me all who are weary and burdened, and I will give you rest”
      Matthew 11:28

  • @lilbutterfly6977
    @lilbutterfly6977 2 года назад +30

    He has such beautiful happy blue eyes! Love the relationship his sisters have with him. His oldest sister said she was his primary care giver but I think she means his protector because she was 4 when he was born & able to form that bond they needed.
    His parents cracked me up when his dad felt the need to clarify when he drinks... I don't think any of us thought his mom was referring to alcohol.
    Love this family & knowing that he'll forever have someone to love & take care of him if anything were to happen to his parents.
    I'm not Jewish, I'm Wiccan; I love how spiritual this young man is & how he is calmed in any synagogue by angels he may see or even by God. No matter the difference in our spiritual beliefs I pray that he & his family always be blessed by both their God & my Goddess. Blessed be beautiful souls

  • @lisasaims3007
    @lisasaims3007 2 года назад +35

    My brother lives with us, he’s profoundly disabled, he’s nonverbal I understand! Thank You for taking such good care of him! It’s really a joy, I feel blessed to have Gregg

  • @MizzRos1
    @MizzRos1 2 года назад +45

    The love his sisters have for him is amazing. He has wonderful parents and its easy to see why he's such a ray of light. I wish this family lots of blessings and good health 💙

  • @MaybeitsmeJulia
    @MaybeitsmeJulia 2 года назад +42

    Thank you Ezri for absolutely giving Chris the musical chairs treatment, that was fun to watch! And thanks so much to all his gorgeous sisters who all have their own way to interact with their brother.

  • @juliacapuano2062
    @juliacapuano2062 2 года назад +84

    Beautiful , lovely and supportive family , Ezri is sweet and lucky to have all of you guys❤

  • @lizs7827
    @lizs7827 2 года назад +40

    What an incredible family. Their unwavering love, support and dedication to their brother is just so inspiring and makes me so emotional. Thank you for filming this.

  • @beckwil0852
    @beckwil0852 8 месяцев назад +3

    I love this family. But, even more, I wish I could hug every single one of those beautiful sisters. Dear God, the love they each exude for Ezri and the whole family is almost contagious. Thank you for sharing this and that young man is a gem❤

  • @hopeadler507
    @hopeadler507 2 года назад +45

    Shabbat Shalom to Ezri.
    Love hearing about other disabled Jewish folks. I’m disabled and Jewish too. Love Ezris kippot 🥰

    • @hasiajackson-un7zb
      @hasiajackson-un7zb Год назад +1

      It is nice to meet a fellow Jew on here! 🎉😊
      I will keep you in my prayers. 🙏
      May G-D bless you.
      Shalom.

    • @Shelovesthearsenal
      @Shelovesthearsenal 2 месяца назад

      ❤❤❤❤❤❤❤

  • @aghoulinthewhould
    @aghoulinthewhould 2 года назад +47

    They all seem to have great communication with Ezri in their own individual ways. Teshuva seems to have a gift for observation and communication. Wish there was a little more info on his diagnosis but I understand. Seems like a lovely family. Thanks for sharing🥰

  • @Deer548
    @Deer548 2 года назад +55

    The sisters are such incredible, beautiful girls ! You can tell how much they love, support and protect their brother. How amazing to see the love and communication between them all. I could barely listen to the story the mother told about the discovery of Ezri’s condition. 😭 You can tell how special and amazing he is listening to the story the dad told about Ezri in temple. Such a wonderful, loving family. ❤️

  • @lisaweakley7883
    @lisaweakley7883 2 года назад +17

    The father is amazing. I love how he responds to Chris asking if it's frustrating when they struggle to understand their son's vocalizations.

  • @cigarsmoker8628
    @cigarsmoker8628 Год назад +17

    He's lucky to have nice sisters that will take care of him🥰

  • @FashNFash
    @FashNFash 2 года назад +150

    I love Teshuva's style 🔥
    She looks like the cool kid from a family sitcom

    • @teshuvatolchin5938
      @teshuvatolchin5938 2 года назад +69

      thank you so much! ezris a bit cooler then me tho lol

    • @FashNFash
      @FashNFash 2 года назад +35

      @@teshuvatolchin5938 I see Ezri's sitcom character as the older brother prankster. Like he pulls off an elaborate ruse that works perfectly. All the sisters say "EZRIIII" and he just kinda smiles at the camera as a bass guitar plays a transition.

    • @thetruthdatedr.4766
      @thetruthdatedr.4766 2 года назад +4

      @@teshuvatolchin5938 Aww Hiii! 🥰🥰🥰

    • @designer-mama
      @designer-mama 2 года назад +4

      She is so stylish!!

    • @CrystalCat24
      @CrystalCat24 2 года назад +5

      @@FashNFash yessss!!!! Lol

  • @janetgeller7272
    @janetgeller7272 2 года назад +35

    It must be such a joy to Ezri to know he can go to any synagogue and know what he and everyone around him is going to do. He is sharing and communicating with LOTS of people at one time - and for a really extended time for some services!

  • @lovingmayberry307
    @lovingmayberry307 2 года назад +40

    What a lovely family!
    Love the story of him in synagogue, "He's seeing the angels." 💙👍

  • @skeshavarz60
    @skeshavarz60 2 года назад +34

    I just love this family! They all seem so kind- hearted!

  • @ellej.winsett3701
    @ellej.winsett3701 Год назад +26

    the youngest sister has crazy theater kid energy and i love her for it!

  • @mizboo9243
    @mizboo9243 2 года назад +70

    My brother had the same thing that Everett has and only his sisters could understand him and he was also special to our family and he just passed from covet February the 8th of 21 I love you all sharing y'all story with us and he's so handsome and beautiful God bless your family 👍

  • @Nora-p6b
    @Nora-p6b 2 года назад +90

    So sweet! I have epilepsy, OCD, Anxiety, eye problems and I am getting tested for autism. Thanks for letting kids like me get on your show! I’m so thankful

    • @molls127
      @molls127 2 года назад +16

      there's a list somewhere of all the resources girls trying to get an autism diagnosis should use, good luck nora, it may take a while. you actually may find out you don't have ocd and you were just thrown a diagnosis because of the lack of information on autism in girls... though maybe not, who knows

    • @supitsamber_
      @supitsamber_ 2 года назад +12

      I have anxiety, ADHD, tics, and autism.
      I just felt like I relate to you when I read your comment. Good luck with everything ☺️

    • @Nora-p6b
      @Nora-p6b 2 года назад +7

      I wasn’t expecting this much likes 😅

    • @155chipmunkz
      @155chipmunkz 2 года назад +10

      I’m autistic and if anyone tells you that autism is bad, don’t listen. Autism is wonderful.

    • @venkkooo
      @venkkooo 2 года назад

      @@155chipmunkz no. Autism is not a good thing.

  • @sarac.3259
    @sarac.3259 2 года назад +61

    What a lot of fun and laughter this family share - and love, obviously. Thank you, Ezri and your loving sisters and parents, and Chris, of course, for telling us about your life and your values. Ezri, you have the most wonderful smile! Interesting to hear how spiritual Ezri is.

  • @ceatonbusch
    @ceatonbusch 2 года назад +17

    I kinda love that she used the word trapped. My boyfriends son is 6, and can't walk or talk, and I always explain his behavioral issues come from the fact that he feels trapped. He can't express himself and that's frustrating. So when he swings, it's not that he wants to hurt someone, he just wants to get his point across, and his siblings ignore him so much sometimes, that he resorts to hitting to get attention, even if it's negative. I just hope the other kids grow up and can be more apart of helping him, because a lot of the time, he gets frustrated because he just wants to do what his siblings are doing.
    These videos really have helped me become a better parent to my two special needs kids, and I can't thank you enough for giving these people a voice.

    • @ceatonbusch
      @ceatonbusch 2 года назад

      Lmao I love the youngest, she's so funny. She reminds me of me. I also try not to give in and let my youngest get whatever he wants. He can destroy something within a second, so there's things he's not allowed to play with, and it upsets him, but he has gotten so much better at accepting no as an answer. He knows that I will give him whatever he wants that's his, but he can't have his siblings tablets or certain toys like Legos, and of course, those are the things he wants most lmao. But it's really good to give him some limits because he is learning to accept no and find something else.

  • @mariannick9418
    @mariannick9418 2 года назад +14

    Ezri is such a beautiful name! The entire family is so pretty and they all seem so kind, smart and loving. ☺️

  • @septixskeptix1107
    @septixskeptix1107 2 года назад +280

    The Dad's (I'm sorry, I never caught his name) body language indicates to me that he has a really good sense of humor and they are all so charismatic, especially Ezri.

    • @155chipmunkz
      @155chipmunkz 2 года назад +5

      @@hi-ve1cw Then why do they bully me on Quora?

    • @krystalharwood6359
      @krystalharwood6359 2 года назад +16

      @@155chipmunkz what??

    • @happyfacefries
      @happyfacefries 2 года назад +9

      @@155chipmunkz what does that have to do with this?

    • @theshortslav2639
      @theshortslav2639 2 года назад +3

      @@155chipmunkz Man you must be fun at parties- A jewish guy

    • @155chipmunkz
      @155chipmunkz 2 года назад +2

      @@krystalharwood6359 They call me a “goy”.

  • @jenniferpittleman9124
    @jenniferpittleman9124 2 года назад +8

    Beautiful video! So special to see a religious Jewish family featured here. And the stories about how he can't speak English but can say things like Shabbat Shalom and loves sitting by the chazzan in shul are just wow. What a beautiful soul. Every person is truly made be'tzelem elokim. ♡

  • @Christian_Girl120
    @Christian_Girl120 2 года назад +22

    Bless his heart! He tries so hard. It's wonderful that his sisters are so attentive and can understand what he's trying to say. Bless all of you!!!

  • @cchico41
    @cchico41 2 года назад +4

    I really enjoyed watching this family and the way each sister bonds with Ezri! I know that eye speak communication devices really help people that are not verbal just by watching this channel. This family is amazing! Loved watching this video and what the family shared about him sitting quietly in their religious service watching angels. So beautiful. 😭😭😭❤️🙏🏽

  • @davoid96
    @davoid96 Год назад +7

    The younger sister is so adorable, she’s such a beautiful soul. I wish her the best in life. I love when she sings songs to her brother.

  • @discobikerAndRosie
    @discobikerAndRosie 2 года назад +23

    Ezri is a sweetheart. His sisters are so sweet & lovely.

  • @PansyF
    @PansyF 2 года назад +53

    When my son was little he had delays due to being a preemie and issues at birth. He would get so frustrated when we couldn't figure out what he wanted. It was so heartbreaking as a parent to not know what I needed to do to keep my baby content. He caught up as he got older, thankfully. I can't imagine the lifelong struggle for Ezri. I am glad he has a great support system.

  • @tieiatalks
    @tieiatalks 2 года назад +39

    These sisters are amazing! The unconditional love they have for him is so beautiful. The parents have done a fantastic job raising them!

  • @bridget2197
    @bridget2197 2 года назад +3

    I am so happy they are so loving and involved with Ezri in their own way. It's a blessing and God put together an amazing family! Thank you for sharing his story with us. God bless you all. 🤗💗🙏

  • @rainbowoah3922
    @rainbowoah3922 2 года назад +3

    Not ezri playing with the camera lol. He seems like a nice person and deserves more in life. I love how kind his sisters are to him and the way he communicates is crazy!! We all support you ezri!!!

  • @gamingtherapy8763
    @gamingtherapy8763 2 года назад +31

    Family support at its finest. Ezri is a blessed soul you guys are lucky to have him

  • @ghost_to_a_ghost
    @ghost_to_a_ghost 2 года назад +46

    Wonderful family right there. Thanks for everything you do, Chris ♥️😎

  • @momof2momof2
    @momof2momof2 2 года назад +21

    The sisters are adorable. Ezri is very blessed to have such a caring family

  • @edithgonsalez1529
    @edithgonsalez1529 2 года назад +10

    These sisters are worth gold 🥹❤️

  • @AbraMacabreXx
    @AbraMacabreXx 9 дней назад

    Beautiful family. Such well-spoken, patient and proud sisters. When the one sister gave him the two options to choose from whether Chris sat by him or in the chair is such an amazingly simple way to allow him to communicate by touching the hand associated with the option he wants.

  • @cindyjofaithful4469
    @cindyjofaithful4469 2 года назад +19

    Dad seems in charge and very protective of Ezri. He's so blessed to have his sisters to help him along.......also his wonderful parents. Great video.

  • @kitandsons173
    @kitandsons173 2 года назад +56

    Ezri loved bossing you around Chris, so funny! What a nice family. He is a lucky guy to have so much love and support. Also, doctors need to listen to their patients.. Mothers know when their is something wrong with their babies.

    • @joymorrison6614
      @joymorrison6614 2 года назад +6

      I think he was bossing Chris around because he liked him! Chris is an awesome guy. God does nt make too many like Chris.
      This was a beautiful family. I really enjoyed this video.

    • @krystalharwood6359
      @krystalharwood6359 2 года назад

      its just like me. i had hydrocephalus and the dr's wrote me off as braindead cause the had little knowledge if the disease. (80's)

  • @ashleygassett252
    @ashleygassett252 2 года назад +117

    Amazing family support.

  • @janesays7894
    @janesays7894 10 месяцев назад +2

    I love this beautiful family so so much. This is one of my favorites on SBSK. The love Ezri and his sisters share is beyond words.

    • @Анжелочка-ы7м
      @Анжелочка-ы7м 9 месяцев назад

      Я не понимаю, о чём они говорят, но девочка, которая пела с ним, ( наверное, младшая сестра) просто очаровательна! ❤️

  • @jessicapabstconrad
    @jessicapabstconrad 2 года назад +4

    This is so incredibly touching. They need an Amazon wish list for the whole family. If anyone deserves it, it’s this family. It’s 💯 % genuine and you can tell!

  • @franz643
    @franz643 2 года назад +43

    Beautiful story having a loving family is all one really needs to feel at home something i yearn for happy for yah ezri

  • @jadedoe9966
    @jadedoe9966 2 года назад +35

    I feel like mama was definitely blessed with so many girls for a reason 🧡

  • @BornAgainFarmGirl
    @BornAgainFarmGirl 2 года назад +63

    It sounds like a wonderful family doing a superior job raising their family.

  • @kariburch3858
    @kariburch3858 2 года назад +2

    The commitment , loyalty, and LOVE this family has, is inspiring! If everyone in the world showed love and compassion and spoke truth like this family, our world would be so beautiful! Amazing family! ❤

  • @ayomidel
    @ayomidel 2 года назад +28

    I'm a big fan of this channel but this is the 1st time I've sensed anxiety from the youngest sister. Sometimes we forget about the struggle this life presents for the siblings. I hope my comment came off as respectful because that's how I meant it. She seems sweet but fiesty.

  • @1800hwzmybr
    @1800hwzmybr 2 года назад +6

    Fascinating…. Like so many other people with disabilities… he seems to understand the words and what’s going on.
    But can’t communicate because of his disorder.
    Trapped inside mind and body.
    God bless this ezri

  • @krististevens54322
    @krististevens54322 2 года назад +23

    Those sisters are so wonderful to him and show him so much love and attention! What a blessing they are.

  • @brittlizzzzzz
    @brittlizzzzzz 2 года назад +28

    This really seems like an absolutely wonderful family!

  • @tiatitanic9302
    @tiatitanic9302 5 месяцев назад +3

    When you ask about the jewish faith & disabilities meant a lot to me too as a disabled jewish person. The questions asked & the answers truly give insight into a curious life ×2 (diabilities/religion/family). Thank you. G-d is my all. 🕊

    • @dustygatrell-ru7tg
      @dustygatrell-ru7tg 2 месяца назад

      What exactly do you beleive in I'm just curious?

  • @misterscruffle
    @misterscruffle 2 года назад +10

    All those sisters of his are just super awesome! Really intelligent and loving sisters

  • @ryan.9275
    @ryan.9275 2 года назад +13

    What a beautiful family, Ezri is a lucky guy to have such loving sisters!

  • @dylanjones4277
    @dylanjones4277 2 года назад +8

    This has brought me to tears, not in the way that I feel sorry for them but in the way that it's soo beautiful. These 5 people must have such a refreshing outlook on life in general and would live to have these kinds of people in my life.

  • @ariadams3290
    @ariadams3290 2 года назад +28

    What a beautiful loving family...since it's almost Friday, Shabbat Shalom Ezri and chaverim!

  • @MaryAnderson.MarBear
    @MaryAnderson.MarBear Год назад +1

    Ezri is incredibly sweet and happy! He clearly has such a special relationship with his sisters. What a loving and supportive family! God bless them. ❤❤

  • @Mary-po4ti
    @Mary-po4ti Год назад +5

    Ezri is priceless.
    BEAUTIFUL sisters
    And parents.