Living with Severe Brain Damage and Loving Sisters
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- Опубликовано: 27 апр 2022
- Ezri lives with severe brain damage that was caused by encephalitis as a newborn. Now almost an adult, he is surrounded by sisters who plan to care for him throughout life. Together the family describes themselves as "open, connected and atypical in a good way".
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thank you chris! ezri had so much fun filming with you and so did all of us. thank you for giving disabled people an opportunity to have real and respectful representation. We love you guys!
Thank you so much for inviting me into your home. I had such a wonderful time with Ezri and everyone else. I hope out paths cross again!
And thank you for sharing your beautiful, diverse, jewish family!
Y'all rock!!!!!
You have a beautiful family. God's love shines so brightly in all of you.
Your kids are all so lovely, Ezri seems like such an extravert 😊
I love the dad’s response of: “Do you always know what you’re trying to express?”.
That’s a great response to the question.
Yes that really struck me! Very poignant.
Honestly it sounded like the dad misunderstood Chris' question, which was how it feels for you as his parent the times when you cannot recognize Ezri's words? Maybe the dad is used to getting a question about how does Ezri feel when he cant communicate, and thats the answer he uses to challenge people to relate to Ezri, which is really cool.
It is very jewish to answer a question with a question! (I say this as a Jew.) It made me smile
@@jpm5042 Interesting! Thanks for that anecdote.
Exactly this!
Yo, to the sister who said “I talk to him like an adult because he is one”
Yazzzz! As a person with a disability I want to give you a round of applause for GETTING IT! That’s AWESOME that you figured that out!!!
Every disabled person has the right to their adulthood and often times that is taken from us. Thank you for acknowledging our adulthood.
I agree. I was a caregiver for disabled adults for about 12 years and always spoke to them the same way I would speak to my friends and family and colleagues. It would bother me when other caregivers would use baby talk with them. I know their intentions were good but it felt disrespectful to me.
I’m 27 but don’t feel like it because I’m autistic.
I have been a pca to many people with a variety of disorders and diagnoses.... i dont baby talk but i do choose to keep things on a simple basis especially if neurologically they are a great deal younger then their physical age.
I do appreciate it most times but when I open up to people more I do tend to act very childish (I’ve grown up way too fast and I want to be a little kid again)
@Emma
She said that and then baby talked him immediately after....lol. But I get that completely
Wow I used to nanny for this family!! Can’t even put into words how happy I am to see you interviewed them they are amazing! It’s crazy to see how they’ve all grown up. Ezri is one of the most spiritual kids I’ve ever met. Sending love to the family (hope you guys see this!)
i could see why he laughs at a baby's cry. thats a new life being born
being a disabled male must be truly sad. getting a girl for the average guy is already difficult, so you know they will never get any. meanwhile a disabled girl will still have guys willing
@@Blox117 why did you feel the need to comment this? as you've never met the family or ezri and wouldn't know if he'd even like that. you're also commenting on a message from their previous nanny!
@@aahpuuh because i feel bad for him? do you have any empathy for men?
@@Blox117 that’s not what the video is about, if you’re going to comment something like that don’t do it as a reply to the nanny???
Shout out to the youngest sister. She is so sweet to Ezri! I love her personality so much! Everyone else is also so loving and nurturing to him. It makes me happy to see.
Agree, She has a lot of charisma, spunky personality. Bet money she'll be a lead her school musicals
She seems to be most in tune with him. I think she'd be good with kids or helping kids with learning disabilities.
Yesss she is awesome with him
she reminded me of Chris the way she interacted with him!
how old is she?
Aw, Ezri looks like he's having a really good time. He definitely has a very, very good sense of what is going on around him -- and he was lovely, supportive sisters. What a wonderful and beautiful family.
Agreed!!🥰❤👏👍
@@specjalistapatologii3315 I understand you feel disturb but remember you need to stay united & try your best to give people born with issues a normal life.
Yeah, agreed
@Sime4e1 Question how do you know this not to sound rude BTW?
@Sime4e1 he clearly does have a sense of his surroundings. you can tell how excited he gets when he’s understood and communicated with, plus he can express what he wants clearly to his family. i think it’s very unfair of you to assume he’s not functioning just because he’s different.
3:50 I'm fascinated by how well the youngest sister knows how to ask him a this/that question. I get the vibe from this that she has her own distinct way of understanding and interacting with him because she's further in age from him than the other two younger sisters are. She's never known anything other than a much older disabled sibling. As an age gap older sibling, I really do believe that siblings who are further apart in age have a much different relationship than siblings who are closer in age.
I’m 2 years older than my sister but people think she’s older because I’m disabled. It makes me so mad.
@@155chipmunkz lol don't let it make you mad!! You'll see as you get older than being younger is better!! 😉😉😆😆
@@CrystalCat24 he probably means they think he has the mental age of a child
@lemonade. I lost my beautiful sister who was a little over a year older than me. My oldest sister grieved but it was the most difficult thing I have ever been through. Rest in peace 🕊️ my beautiful Carlisa.🙏❤️
@@danacaro-herman3530 😢 💔 💐
The youngest sister is so adorable, she’s the most attentive with Ezri and seems to have kind of a special relationship with him. What a blessing for the parents to have gotten a daughter like her
nice profile pic 😂
This one made my heart happy. I’m not a religious person, but for whatever reason the spirituality of this family hits home for me. This family is so incredibly full of love for each other. It doesn’t feel forced. It’s genuine love and care for each other.
Your comment touched my heart
See you said it ,the spirituality of the family. Not just a religious faith but the love and caring for each other.
Yes I completely agree ❤️❣️
Highly religious kid with literal brain damage is a heartwarming and charming example, and probably not the example religious people would want to highlight I think xD
@@MenkoDany He’s 18, not a kid.
It's crazy cool how all the sisters seem to have a unique approach with how they interact with Ezri, they all have a special bond :)
Agreed. They are all so sweet.
my reaction would be running away
Did anyone notice that ezri gets up and walks away when people start talking about a)how he got sick and b)the difficulties in taking care of him.
Well spotted.
its not really fair to him :/
He’s really smart he understands what they’re saying.
It must be extremely frustrating trying to express yourself but you just can’t.
Yea,I noticed it too
The father when he pointed out NONE of us can ALWAYS express exactly what we are trying to say or how we feel ! So true
💯💯💯
My heart goes out to Ezri's mom because of the pediatrician dismissing the concerns about Ezra. Valuable time was lost. That part is so heartbreaking. I have had problems with not being taken seriously by doctors as well, and receiving incorrect diagnoses leading to inappropriate treatments and medications which further increased the severity of my problems rather than improving my condition. It is lovely to see Ezri with his sisters and to hear his father speak about Ezrais affinitty for Jewish religeous services. Yom Kippur is challenging for anyone to sit for 6 hours. Even if you go with the simplistic notion that God is love, it's easy to see Ezri's connection to love in his family and so spiritually encouraging to hear that he recognizes that love in the practices of Judaism.
i was ignored for a while about my concerns about having adhd, which resulted in me not getting diagnosed til i was 16, and then being diagnosed with high functioning autism this year (19). explained a lot.
@@charliewegner my best friend had to wait till 25 for her right diagnosis, it can be hard
How is this so common in the USA, are most doctors and nurses THIS incompetent??
Unbelievable that he had bleeding and they just dismissed it! Then they way the nurse behaved, just terrible!
He’s definitely a very special young man, and I imagine he finds the services soothing in their ceremony and the calm and predictable way the messages are conveyed. His behavior is a reminder to never pigeonhole anyone, they may just end up surprising you.
I've seen this thread throughout several of the videos on this channel where a sister, generally an older sister, already knows without a doubt that her disabled sibling is going to be part of her household as an adult. I'm so moved by the sentiment and certainty they possess, and of course, the love, adoration, and care they bestow on their sibling.
very true. i intend to do the same for my youngest sister who is severely disabled
yup its so sweet and cute. this comment specifically reminded me of April and her sister Rachel who said the same thing. would love to see /know where they're at rn
Agreed! I am in recovery for an ED and PTSD. Anywho it's super hard for me to express how I feel.
Every time I have a fight with my boyfriend my older sister will tell me "Sis. The doors always open. Forever. No matter what. Amd no matter how long. I'd love you to be here"
My sister is the best sister in the history of sisters.
Yes! I have 2 autistic sons and my 4 other children know that when their dad and I for whatever reason can’t take care of them anymore, they will most definitely welcome them into them into their homes. We don’t know who is going to take who yet because they are all still young but they know what to do when it’s time!
Having a Jewish family in the SBSK family being represented makes me so happy and feel so welcome. Kol Hakavod (good job in Hebrew)! Beautiful family
Shalom, friend ❤🎉 I second that; love all my goys & shiksas!!
(Boys & gals who are non-jews, but in Yiddish) . Haha 😊😁😉😇
I'm mad that the nurse/doctor didn't take the mom seriously when she called about Ezri not being nursed. I'm surprised they didn't even get alarmed when she said there's blood in his diapers!
A lot of medical professionals are like that. Some of them are way too proud of their knowledge and in bad way wherein they don't listen properly, disregard patients experience, misdiagnose and do not take them seriously. Not all obviously but it's like a pattern that exists in many of them.
The one sister that speaks to
Ezri like the adult he is, is a smart young lady. It is respectful to Ezri and will likely help with his communication skills and behaviors as well. Great job! Wonderful family with wonderful faith.
The other sisters seem to bother him because he understands
he's not an adult he can't even think for himself
@@Blox117 bro dont be ableist
@@acidburnt5687 don't even bother with this guy, he's all over the comments saying super rude and dehumanizing things so i'm thinking he's a troll
I love the discussions on the intersection of Judaism and disability. It’s wonderful to see how different religions and cultures embrace disability. Seeing disability so engrained in deep spiritual belief is really encouraging to see
I agree, this discussion really blew my mind about how things could be done better by everyone and anyone
as a speech-language pathologist, I can't help but think that Ezri would really benefit from AAC, whether it be a pointing system or an electronic device. I really wonder how much he'd be able to express!
SLP here too, literally just scrolled down to comment this!
My daughter has an aac and I was thinking the same thing. It would open a whole new world for him especially since he wants to communicate so much and really intentionally just doesn't have the motor skills to speak the words.
Yess
Seeing a disabled person and a Jewish family is so lovely to me. I am personally Jewish, raised that way and practicing now, and seeing this family and their love for their son and brother as well as their love for their religion is lovely to me. This was a heartwarming interview and I adore Ezri. They all seem so lovely to be around. Judaism is a loving and caring religion and seeing it being practiced in this way makes my heart warm with the love of my community and my religion.
Evil parasites.
I like how he gets excited being bossy, not because someone does what he says but because they listened and understood, especially with a stranger. He's definitely blessed to have such a loving family, and I'd say the way they feel, they're blessed to have him.
First of all, this family has huge respect from me. I work as a special instructor for infants and toddlers and see children when they are first diagnosed when possible. I can't help but be angry at the pediatricians that didn't put a newborn into the hospital within the first 24 hours after seeing Ezri. He could have been medically supported sooner and possibly less brain damage could have occurred. Outrageous!! Secondly, Ezri and his siblings were a joy to behold. Many siblings feel put upon for helping out and these 5 sisters showed such an outpouring of love and respect for him. Kol Hakavod!!
Thirdly, thank you Chris for showing religious Jews in such a good light. My heart was truly full to see my fellow brothers and sisters shine brightly.
Finally, May HaShem bless this family with much Yiddishe nachas from all of their children. The story of Ezri and davening actually brought tears to my eyes. May Moshiach come quickly!!
thank you so much! your comment means so much to me and my family. -teshuva (ezris short haired sister)
Amen❣️🙏
Amen!
amen! sending blessings from Jerusalem
@@teshuvatolchin5938 how old are they? xx
He definitely is a character😂 his sister trying to act normal while he was shaking the camera took me OUT! I already know he’s chaotic on purpose sometimes and I’m here for it! He’d be so fun to hangout with❤
He’s mischievous!! That had me cracking up, too!
I have an aunt with severe autism. My gran (her carer) sadly died from cancer when my aunt was in her 40's. Before my gran died, my other aunt offered to become her carer. Both my aunts are in their 70s now, and still coping very well together. It's so nice to hear this sister offering to take her brother in
That was fortunate. I always wonder what will become of the profoundly non-functional when a family isn't around. I don't know how it is in the UK but other than psychiatric facilities, I don't know what kinds of fulltime care facilities exist here. Not that many I don't think.
I love Teshuva's style 🔥
She looks like the cool kid from a family sitcom
thank you so much! ezris a bit cooler then me tho lol
@@teshuvatolchin5938 I see Ezri's sitcom character as the older brother prankster. Like he pulls off an elaborate ruse that works perfectly. All the sisters say "EZRIIII" and he just kinda smiles at the camera as a bass guitar plays a transition.
@@teshuvatolchin5938 Aww Hiii! 🥰🥰🥰
She is so stylish!!
@@FashNFash yessss!!!! Lol
I’m so entranced by Erzi’s aura. This young man has a really comforting energy!
Yeah, I adore him, his like a sweet angle
No, he's annoying
@@elchinitofeliz1699 saying what everyone is too nice to say
@@dolph8008 or yall are just horrible people 💀 likd no were not all thinking this
He is chaotic and disruptive. Not his fault but I would not want to have him in my life. And no, I am not a terrible person. I am a realist.
Ezri is wonderful. Reminds me of our Noah who lived 32 years on this earth. I was so blessed to have been his Momma.
His brothers and sisters were like Ezri's sisters. Very close to their brother. When she talked about memorizing his favorite book..we did that too!😄
Such a wonderful family for Ezri❤ He is well loved.
Ezri seems like so much fun! And he's definitely got an amazing set of sisters to accompany him along for his journey!
Beautiful family! Sweet sisters with very different personalities, all with their special relationships with their brother!
YUP
Breaks my heart..I have severe brain injuries
No one knows what it's like until it happens to you or your family...you can't go back
I'm glad he is happy most of time.
Is he concious? Like does he know he exists? Iam confused.
I feel bad that, Ezri went through so much as an infant, poor baby. How upset his parents must have been, to see they're baby son so
sick. God bless this sweet young man, with the best smile, and his loving and nurturing, family. Thanks for sharing Chris. 👍😎❤️😇🙏
aww that youngest girl with the hair tied back is so sweet, you can tell she really loves her brother just by how she looks at him,they all are such a nice family.
The way the dad talks about his son, I wish everyone could know understanding from a man like that.
Whoa, this video was like looking in a black mirror episode with my family 🤯 it was kinda hard to relate with other children growing up because it was hard to explain that your sibling needed more attention and your family life had to adjust outside of the norm to raise them. Religion played a huge part too. We Unfortunately got kicked out of a church or two because my brother was having a tantrum or sensoryoverload but we eventually found a church with server members who were absolute angels. God bless this family and your channel for sharing their story ❤️
I worked with special needs in a church. It didn't take me long to realize, when our Sunday school class was a closet of broken and discarded desks, that the church's goal was not to teach them...but to hide them from mainstream. I went to the copastor and told him it was a disgrace, and they were just as worthy of a regular classroom as everyone else. When I mentioned my suspicions, "So, you don't care what I teach them, you just want me to hide them", his response was, "Basically?...Yes!" They were the only reason I didn't leave that church, then and there.
I'm so glad you found a loving church who accepts him as a member of the human race. ❤️
We need more churches who are loving and accepting instead of comparing and judging.
Wow I’m sorry. Your brother deserves love and attention just like everyone else. I know Jesus will accept your brother no matter what. I’m glad you found accepting people. Have a wonderful day and God bless 🤍
“Come to Me all who are weary and burdened, and I will give you rest”
Matthew 11:28
the youngest sister has crazy theater kid energy and i love her for it!
She's amazing. So good with her brother 😍
Wow, that gave me chills hearing the family talk about Ezri's spirituality.
What an amazing spirit this young man has, he just such a positive, happy, and rambunctious personality that shines so bright.♥️
its like my friend's daughter Becky with autism. she may not be educationally smart but when our pastor would randomly ask a question during his sermon she would always answer correctly
and average americans should learn from this family concerning treating EVERYONE equally. they all say the r word when it comes to people like Ez. it's sickening
The Dad's (I'm sorry, I never caught his name) body language indicates to me that he has a really good sense of humor and they are all so charismatic, especially Ezri.
He seems to have a very typical jewish sense of humour, after all jews are known for having a wonderful sense of humor!
@@hi-ve1cw Then why do they bully me on Quora?
@@155chipmunkz what??
@@155chipmunkz what does that have to do with this?
@@155chipmunkz Man you must be fun at parties- A jewish guy
What a cheerful guy Ezra is. I’m sure having such lovely sisters and parents must be great!
*Ezri
If only every family could feel the love and support of such a family
Yes it must be
@@DrDestructoBlade "Ezri" is just the diminutive form of "Ezra", a popular boy's name. It means "help" in Hebrew.
They are so patient, kind and loving sisters.
I kinda love that she used the word trapped. My boyfriends son is 6, and can't walk or talk, and I always explain his behavioral issues come from the fact that he feels trapped. He can't express himself and that's frustrating. So when he swings, it's not that he wants to hurt someone, he just wants to get his point across, and his siblings ignore him so much sometimes, that he resorts to hitting to get attention, even if it's negative. I just hope the other kids grow up and can be more apart of helping him, because a lot of the time, he gets frustrated because he just wants to do what his siblings are doing.
These videos really have helped me become a better parent to my two special needs kids, and I can't thank you enough for giving these people a voice.
Lmao I love the youngest, she's so funny. She reminds me of me. I also try not to give in and let my youngest get whatever he wants. He can destroy something within a second, so there's things he's not allowed to play with, and it upsets him, but he has gotten so much better at accepting no as an answer. He knows that I will give him whatever he wants that's his, but he can't have his siblings tablets or certain toys like Legos, and of course, those are the things he wants most lmao. But it's really good to give him some limits because he is learning to accept no and find something else.
Ezri is a gift from God !! I was born a-ok. I was in a coma one week later. I had Encephalitis. the sleeping sickness. That was 69 years ago. There i.s alot that flies overl my head. I cannot understand many things but Bless his heart ❤. EZRI HAS BEAUTIFUL EYES!!!
Ezri has a VERY infectious smile... I found myself unconsciously smiling whenever he did. Thank you to the whole family for letting us into your home and hearts to share in this happiness. :)
I feel like mama was definitely blessed with so many girls for a reason 🧡
I'm a big fan of this channel but this is the 1st time I've sensed anxiety from the youngest sister. Sometimes we forget about the struggle this life presents for the siblings. I hope my comment came off as respectful because that's how I meant it. She seems sweet but fiesty.
Beautiful family! The stories about Ezri speaking Yiddish and sitting quietly thru Yom Kippur is on another level!
This reminds me of what the Lubavitcher Rebbe said, that people with disabilities are not as involved with what's going on in this world because they are busy with G-d in spirituality. (Paraphrasing)
When the youngest sister started telling the story and he started getting really excited, I legit cried oh my gosh it was so adorable!
My brother lives with us, he’s profoundly disabled, he’s nonverbal I understand! Thank You for taking such good care of him! It’s really a joy, I feel blessed to have Gregg
I believe (?) this is the first openly Jewish family on sbsk and it feels great to see others in my community. Ezri, his sisters, and his parents, I hope you continue to bring joy to those around you
I'm a Muslim and I thought damn he's just like my dad 😂
So sweet! I have epilepsy, OCD, Anxiety, eye problems and I am getting tested for autism. Thanks for letting kids like me get on your show! I’m so thankful
there's a list somewhere of all the resources girls trying to get an autism diagnosis should use, good luck nora, it may take a while. you actually may find out you don't have ocd and you were just thrown a diagnosis because of the lack of information on autism in girls... though maybe not, who knows
I have anxiety, ADHD, tics, and autism.
I just felt like I relate to you when I read your comment. Good luck with everything ☺️
I wasn’t expecting this much likes 😅
I’m autistic and if anyone tells you that autism is bad, don’t listen. Autism is wonderful.
@@155chipmunkz debatable.
He is WONDERFUL and those are INCREDIBLE sisters. I love this family. ❤️
The father is amazing. I love how he responds to Chris asking if it's frustrating when they struggle to understand their son's vocalizations.
My brother had the same thing that Everett has and only his sisters could understand him and he was also special to our family and he just passed from covet February the 8th of 21 I love you all sharing y'all story with us and he's so handsome and beautiful God bless your family 👍
So sorry about your brother, Miz Boo. 💙🙏
So sorry for your loss
Wishing him blessed with Paradise!
Ezri
Shabbat Shalom to Ezri.
Love hearing about other disabled Jewish folks. I’m disabled and Jewish too. Love Ezris kippot 🥰
It is nice to meet a fellow Jew on here! 🎉😊
I will keep you in my prayers. 🙏
May G-D bless you.
Shalom.
He has such beautiful happy blue eyes! Love the relationship his sisters have with him. His oldest sister said she was his primary care giver but I think she means his protector because she was 4 when he was born & able to form that bond they needed.
His parents cracked me up when his dad felt the need to clarify when he drinks... I don't think any of us thought his mom was referring to alcohol.
Love this family & knowing that he'll forever have someone to love & take care of him if anything were to happen to his parents.
I'm not Jewish, I'm Wiccan; I love how spiritual this young man is & how he is calmed in any synagogue by angels he may see or even by God. No matter the difference in our spiritual beliefs I pray that he & his family always be blessed by both their God & my Goddess. Blessed be beautiful souls
Those sisters are so wonderful to him and show him so much love and attention! What a blessing they are.
Its honestly such an honour to witness all this love Ezri is surrounded by. These siblings all seem super cool. I especially enjoyed how Ezri likes to sing, you can see what they say about him having a special connection to spirit.
Amazing family support.
I just love this family! They all seem so kind- hearted!
These sisters are worth gold 🥹❤️
It must be such a joy to Ezri to know he can go to any synagogue and know what he and everyone around him is going to do. He is sharing and communicating with LOTS of people at one time - and for a really extended time for some services!
What a lovely family!
Love the story of him in synagogue, "He's seeing the angels." 💙👍
This is like watching my favorite childhood book “All-of-a-Kind Family” brought to life in the 21st century. A loving Jewish family living in/near New York with 5 sisters and 1 brother where the sisters play a role in caring for the brother? It’s perfect! I hope they all read it as kids and enjoyed it as much as me and my sister did :)
I loved those books!
I LOVED that book!
Ezri is such a beautiful name! The entire family is so pretty and they all seem so kind, smart and loving. ☺️
Thank you Ezri for absolutely giving Chris the musical chairs treatment, that was fun to watch! And thanks so much to all his gorgeous sisters who all have their own way to interact with their brother.
When my son was little he had delays due to being a preemie and issues at birth. He would get so frustrated when we couldn't figure out what he wanted. It was so heartbreaking as a parent to not know what I needed to do to keep my baby content. He caught up as he got older, thankfully. I can't imagine the lifelong struggle for Ezri. I am glad he has a great support system.
I will say I'm pretty upset about the doctors who didn't take this mom seriously. 😤 It's very annoying that that's a story that constantly comes up when I see videos like this. On the up side, Ezri has a beautiful family who loves him and his personality really shines through.
What an incredible family. Their unwavering love, support and dedication to their brother is just so inspiring and makes me so emotional. Thank you for filming this.
Please do more videos with families who have children with severe mental impairments such as this family. People saying things like suggesting ASL, as though a family wouldn't know about ASL or has not thought of it, when you have this much brain damage you are literally physically cognitively wired differently including your physical functioning, which makes processing different, and I don't mean "different" in the very "soft" way that our society is getting adjusted to, it's full on processes that are debilitated. And also don't you think a family who spends so much time with him, and takes care of him, would already know whether or not ASL is an option, given that ASL is not anything new or rare. People really don't understand this level of brain damage, mental impairment, etc.
I'm a speech therapist. I say he can definitely learn some basic signs even with this level of brain damage to express wants and needs. Of course not the entire ASL system but SOME. He also can use a communication board like pointing to simple symbols to communicate words like "eat", "drink", and "bed".
I share your sentiments - that the family would know (with professional guidance) what was best for their son. Out of interest, do other countries use Makaton (sign language for those with special needs or learning difficulties etc)?
Ezri is a sweetheart. His sisters are so sweet & lovely.
Fascinating…. Like so many other people with disabilities… he seems to understand the words and what’s going on.
But can’t communicate because of his disorder.
Trapped inside mind and body.
God bless this ezri
As someone studying to be a nurse, it's awful what he went through, and how it could've easily been prevented if they just took the parents seriously. If I heard there was blood in his diaper, that's an immediate red flag, and I'm not even halfway through nursing school.
I'm honestly so sick of hearing about chronically disabled folks becoming that way due to doctors not taking them seriously or assuming they're overreacting or something instead of just listening and getting to the bottom of the issue; I mean, what are they there for if not to do that?!
When I'm a nurse I'm going to listen to my patients and be there for them, regardless of how easy it is for them to communicate with me. I'm there for them - the money's fine, sure, but I'm there to get to know my patients and their stories, either so I can better help and advocate for them, or so I can use that information to notice the signs in others sooner so serious complications like sepsis can be prevented.
I'm definitely gonna have my work cut out for me with the medical system here being the way it is, especially in the southern US…
To be fair the parents should have taken him in immediately.
In my experience nurses are the best advocates for the patients. Not saying doctors aren't great but nurses are generally more involved with them so they will see things the doctors don't. It's been really helpful having great nurses that do that and really listen to me and include me as a part of my daughter's medical "team" instead of acting like I don't know what I'm talking about.
They all seem to have great communication with Ezri in their own individual ways. Teshuva seems to have a gift for observation and communication. Wish there was a little more info on his diagnosis but I understand. Seems like a lovely family. Thanks for sharing🥰
awww thank you for ur kind words
Ezri loved bossing you around Chris, so funny! What a nice family. He is a lucky guy to have so much love and support. Also, doctors need to listen to their patients.. Mothers know when their is something wrong with their babies.
I think he was bossing Chris around because he liked him! Chris is an awesome guy. God does nt make too many like Chris.
This was a beautiful family. I really enjoyed this video.
its just like me. i had hydrocephalus and the dr's wrote me off as braindead cause the had little knowledge if the disease. (80's)
Absolutely beautiful family.
All those sisters of his are just super awesome! Really intelligent and loving sisters
These sisters are amazing! The unconditional love they have for him is so beautiful. The parents have done a fantastic job raising them!
The sisters are such incredible, beautiful girls ! You can tell how much they love, support and protect their brother. How amazing to see the love and communication between them all. I could barely listen to the story the mother told about the discovery of Ezri’s condition. 😭 You can tell how special and amazing he is listening to the story the dad told about Ezri in temple. Such a wonderful, loving family. ❤️
I love seeing a Jewish family on this channel😊😊😊
They really show the Jewish family dynamic and bond
I love this family. Ezri is such a bright light
The love his sisters have for him is amazing. He has wonderful parents and its easy to see why he's such a ray of light. I wish this family lots of blessings and good health 💙
I LOVE this beautiful family! I worked with people with developmental disabilities for over 40 years. I have seen every type of family from those who can't accept or cope with the disability, to families that love and support. I agree with the dad when he says, I believe he sees angels. I believe they do too, and spending 40 years in this work, I have seen it over and over again. God-bless you! You are a wonderful family!❤
The family is so laid back. He is so loved. I really liked this family and how awesome they are.
This is so incredibly touching. They need an Amazon wish list for the whole family. If anyone deserves it, it’s this family. It’s 💯 % genuine and you can tell!
It sounds like a wonderful family doing a superior job raising their family.
Beautiful , lovely and supportive family , Ezri is sweet and lucky to have all of you guys❤
I am Julia too
@@juliamclane8319 Hi❤
His whole family is so supportive and adorable 🥺💜
The younger sister is so adorable, she’s such a beautiful soul. I wish her the best in life. I love when she sings songs to her brother.
What a beautiful family, the parents should be so proud of their daughters and the love and affection they have for Ezra. Also, a little silly but seeing the younger daughter with her red heart earrings, and here I am born in the early 70"s and wearing the same pair 😅♥️
Funky earrings forever lol!
My friends brother has brain damage from illness as a little child too. What I know is they are just as important as all of us to get to know. What an amazing family, and young man. Each sister is so amazing to their brother, and he is blessed with a great family!
Such a loving and understanding family. I love this. How sweet.
One of my favorite videos from this channel in a while. It’s heartwarming seeing how caring and loving his sisters are
Bless his heart! He tries so hard. It's wonderful that his sisters are so attentive and can understand what he's trying to say. Bless all of you!!!
Ezri is surrounded by angels, seen and unseen
What a lovely family. It's obvious how much they love and care for Ezri.
This is such a great interview, every single member of this family has such a bright personality and it’s so nice seeing them all just interact! They’re all so interesting, they’re the kind of people you just want to get to know.
Going through behavioral health classes working towards a psych degree, I’ve learned that within 100% of communication between 2 people only 7% of it is verbal. 93% is all internal and we do not even know how to process that fully. I challenge myself everyday to make sure that 7% counts. Love his spirit and I will be challenging myself to be as positive and uplifting as him. And for car rides!!
The sisters are adorable. Ezri is very blessed to have such a caring family
Ezri is a happy young man and he's blessed to have such kind, patient, and loving family to support him!
This entire family gives THE BEST vibes ever. I could watch over and over (and I do)! Phenomenal family!
так радостно, что у него есть такие сестрички ❤️ его состояние похоже на моего сына после родовой травмы 💔
Your much loved..👍 be strong
I’m sorry about that, I hope you and your son do well. I wish you all the best for your future and God bless you! ❤️
“Cast all your anxiety on Him because He cares for you” 1 Peter 5:7
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