Kyle, i’m sorry to hear this is happening to you. I had Guillen beret syndrome when I was 18 years old. That was in 1969. I had a very rough time too much information to put in this comment. Of course now I just turned 69 years old and I’ve been riding bicycles steadily after my recovery in 1970. I would like to talk to you about my experience I think you’ll find it encouraging. I’ve been watching your videos for some time now and enjoy them and find them extremely helpful.
Right on brother Travis! I believe it'd be good for both of you. I can't say "I know how it feels:" But I'm certain that some of us have our more than our share of disabilities. It was good to hear of your recovery, and I pray the same for Kyle.
Boy do I agree with this comment!!!! Your INSTINCTS are something that is more important to listen to than any doctor or tests. Numerous times in my family we have been through medical situations where instincts disagree with what doctors were saying. Like for example they can't find anything wrong. But, our instincts kept telling us otherwise. With much persistence, and like in this story, sometimes eventually things go so bad they can't be ignored. Well Done Kyle! You are much more aware of your body than average people, and you listened to your instincts!!!!!
It’s a terrible, scary feeling when you know something is wrong with you and you don’t know what it is. Medical professionals telling you it’s “all in your head” just adds to the frustration. I wish you all the best in your recovery. Keeping a good thought for you. Your videos are helpful to many people.
Hang in there brother...Your lucky you have the resources you have, half the country would never be able to figure out what was happening to them...Keep fighting...
Oh my gosh. As I was watching this, before you mentioned Guillain-Barre I thought "dang, it sounds like what I went through." I traveled to Nigeria in 1986 and overnight woke up with limited ability to walk, like my whole nervous system was confused. I couldn't walk, my balance was off. My mind was fine, but I was exhausted and slurring words, I couldn't even form them without looking like I was grimacing within a few days. They had to fly me back to the US with a DR, and here they did spinal taps, CT scans, everything. After 3 months I was walking almost normal and could start to write again, but I had to learn how to do my handwriting over. You are in my thoughts and prayers! I made a full recovery after around 9-12 months. 6 months in I could walk, almost dance like normal, and my handwriting didn't look too bad. The Drs had no idea how to treat it so it was all guesswork. The CDC called me every year for years to follow up to see how it was progressing, how I was doing, because they didn't have much experience with it. I had to go to occupational therapy and one of the biggest frustrations was my short term memory. I knew I knew a word, but couldn't get it. They did all kinds of memory tests but told me it was fine, but they didn't understand that it wasn't like before! I can tell you this, and everyone has a different experience, but for me even now, 36 years later, when I get overtired my speech can slur a bit, I battle memory issues off and on, but I refuse to worry or let it stop me. Everything else recovered. I found you because after all that time, I am riding a bike again and LOVING IT! I never tried until a few weeks ago. And I am looking at getting a Blackbird. So yes, there is HOPE. I hope and pray this is the case for you as well. Well done for posting this!
We hear you brother. As a disabled veteran, I can relate to A lot of the symptoms and unfortunately a lot of the tests… but we keep going and say “Hmmmmmm “ to what ever is trying to slow you down. I’ve got my ebike and love it. For you… add a third wheel if it keeps you going(it’s only temporary)
Sadly, finding Dr's that are willing to listen as well as have any ideas that dont jump out in Lab results.. I suffered for years with Psuedo Tumor Cerebri before I struck the Lotto randomly by going to the ER on the right day at the right time (After 20-30 or more visits) to take all information and put it together. Glad you have answers, that was the hardest part for me!
Wow, what an incredible story. Wishing you as full a recovery as possible. We’ve got similar stories, the worst part is not having a diagnosis. Still trying to figure it out.
Hypothyroidism…. Chronic pancreatitis…. Both of these induce severe fatigue. Goldenhar Syndrome, with partial deafness. A number of mental and neurological disabilities. (What I live with.)
I understand how you're feeling I've been trying to get back on my bike after a second brain tumour last year. I've got to learn to walk again. While I was I'm hospital in rehab I met a young guy who developed GBS after covid vax . I'm slowly getting there. I've got a bbshd and a Trek fuel for it to go on so I'll be on the trails soon. You're young and determined and that's a good place to be ,thanks for all the uploads they've helped me through my recovery.
It is frustrating, difficult, and a bit scary when the medical people don't know what's happening to you. Thankfully you have a diagnoses and a treatment plan. Not to mention a good attitude and people that care about you. You have always been very giving of your knowledge on ebikes and now you are being so open about your illness. This will help others too in ways you can't imagine now. I wish you a speedy recovery, be well.
Very sorry to hear! I wish you a speedy recovery. In Canada a man just won a lawsuit for injury from the government. That's the first step in them admitting a problem because you're not the only person I know by far suddenly getting gbs.
I had a stroke 10 years ago (in my 40's) and I'm 98% back to normal. During my recovery I was fascinated to observe how the body can heal itself. My balance isn't perfect so my sister bought me one of your excellent Galaxy trikes this past Christmas. Hopefully you'll be able to start riding one soon. I hope you have a speedy recovery, and please keep us updated on your progress.
Sorry to hear about your situation. The lack of a solid diagnosis is a real concern and when you feel that the doctors where you are do not get it, then it is time to spend the money and the time to get yourself to a teaching hospital affiliated with a high ranked med school or one of the clinics like The Mayo Clinic or the Cleveland Clinic. The Mayo has a branch in Scottsdale, AZ. These clinics have lots of experience with unusual medical situations of which yours is clearly that. I am sure that there are excellent facilities in LA or San Francisco. Best of luck in your recovery!
Kyle, thank you for sharing your personal story. I’m very sorry that your road has been so difficult of late, but I’m glad there seems to be a diagnosis and that you’re recovering. I’m not surprised that you’ve already thought of a way to scratch your cycling itch and to keep your ever-active mind moving forward. It’s clear from your work that you enjoy enriching others’ lives and I’ve no doubt that your velomobile and other efforts will give you yet another avenue to help folks in similar circumstances. I wish you a full and speedy recovery. Thanks for the content and inspiration. Best.
GBS is a known adverse reaction to the covid vaccines. My best friend was vaccine injured as well. Hope you can recover from this condition as soon as possible. Godspeed.
That sounds like when I was 30 and had a stroke. I went to the fridge and got so dizzy and could not keep my balance and then it came back. I went to the ER and they said I was fine and they could not see anything and they were not going to call in a Dr. for an MRI so told me to come back to the hospital in the morning for an MRI. I woke up twice in the night and could not keep myself for falling over. I waited for the appointment in the morning and went in and got a cat scan not an MRI as the machine was needed for an accident victim. After they did a cat scan they saw there was a problem and sent me to another hospital for an MRI and they found out I had a stroke. It was a horrible feeling and I feel for your story when you know something is wrong but Drs say you are fine. It can be psychologically damaging to your trust in Drs. I am glad you are safe and I really hope you get recovered. I still deal with meatal health issues realizing I'm not invincible and could die at any moment. Hugs man!!
Congratulations on 100k ! Speed bumps in health happens. Hopefully you can make this an opportunity for other adventures to possibly help you and others with disabilities to enjoy your visions. Keep fighting🤙🏼
Sorry to hear about your experience, but I am happy that you have made progress toward recovery. I am appalled when doctors say it's all in your head. It usually just means the doctor doesn't know what the issue is. Even if it were true, it's something you're experiencing and needs addressing.
There's nothing worse than them telling you everything that's not wrong, and never what is. 50 yrs of deterioration with type 1 diabetes has taught me just what you're doing. Keep positive and do what you can, and life will be as fulfilling as it can be! I wanna see that new build.
So sorry to hear about your troubles. When I listened to your story I thought you had Lyme disease. I didn't know anything about Gillain Barre syndrome. The problem with modern medicine today is they run on an assembly line mentality. They use tests to determine diagnosis and once you fit into a set of symptoms your treatment is automatic...Next Case! I am guessing you never developed a long term relationship with a primary physician. That IMO is what is missing. If you had had one, he/she would know that you are not just making up a story and would have taken your case more seriously. Do take care of yourself first. We can wait for the next video...:-)
OH Kyle, I'm so very sorry that you've gone through this (and still are !) I'm holding on to positive thoughts for you to get back to 100% and really believe that you will ! Thank goodness that you have a good attitude and support. Yes, for now, it gives you time to work on these other projects. Hey, I can tell that , yes, your brain is truly working at that 110% and I think that in the space that it will take for you to get back to normal, you're gonna be super busy!
Glad to hear that you are doing better, having diabetic neuropathy and having the similar pains as you, with the tingling and "pins and needles" everywhere, I have a good idea of how you are feeling. I struggle to this day with riding my RadRunner Plus, if it weren't for e-bikes I would never had been able to get back to riding at all, I just wish I had found velomobile e-bikes before I got the RadRunner+. Better still to had found your shop before then. GOD Bless and heal you Kyle, I pray for your speedy recovery. I hope to see you cameo in more of the videos of reviews, even if you have other employees assist you in them...
I have diabetic neuropathy too, despite very well controlled diabetes If someone asked me to design a torture chamber to extract secrets, it would be a neuropathy simulator Sucks to be just sitting there and suddenly crippled by some random pain.
Admire your courage and candor in sharing your story. Like many, I was concerned when you were gone for a while. I echo the admiration that you applied the same problem solving determination you've used to build the company to your health.
Never give up on recovery. Even if people someday tell you that your recovery has gone as far as possible, don't accept that. Keep working, keep exploring new avenues. On another note: when I lost the ability to ride a bike, in addition to recovery efforts, I bought a recumbent trike. It isn't a bike, but I could still pedal, and it has its own joys. (I see you're already thinking along those lines! Good-o.) Good fortune to you and yours.
As someone with nerve issues (undiagnosed), I can understand the frustrations of doctors not having answers (or even believing there is a problem). It's very scary to lose feeling in your hands and feet. I haven't felt 50% of my left foot for over a decade now. A couple years ago, I started losing some feeling in my right foot and left hand. Progressed to my right hand. I get completely drained of energy very easily. What has made a huge improvement for me is cutting out carbohydrates and processed foods. Like CUTTING THEM OUT... not just reducing them. Between that, near infrared therapy, sublingual B12, NAC, and a very good probiotic (Seed), I am starting to see improvements. As you have discovered, you have to be your own advocate. Keep doing your research and question your doctors (respectfully). Wishing you a full recovery!
Wow - a fellow GBSer with an ebike ! I got gbs at 58. Started in my feet and went straight up - paralyzed and on a vent in 48 hours. God awful experience, months in hospital and more months in Rehab. BUT after about a year symptoms resolved an was able to walk out of the rehab. After more months, strength and most feeling returned. Last week I bought an ebike ! I still have some tingling and a bit of neuropathy so I have to be extra careful, but it’s doable even for an old goat like me. I’m 78. I learned a lot from your channel (thx) and I know like most gbsers near full recovery is possible . It just takes time and patience. Again thanks and I know soon you’ll be back on your bike.
my heart goes out to you. I got an ebike because I had a pretty bad knee injury and I lost a lot of my mobility. It was tough for me to cope with the fact I 'couldn't ride a bike'. I found your videos as I was learning about ebikes.Having an ebike has gotten me to a place where I'm better today and I'm so grateful for it. I've gone through the chronology of your videos and am just finding this video now. I'm so sorry, in a very small small way I know how you must feel. The human spirit and body is so resilient. So I'm looking forward to your recovery and you getting back to where you were. I'm your fan and in your corner. I hope you know you've probably motivated so many people with your videos to take back life. You will too, I know it. Much love.
Sorry to hear, Kyle. I was performing some tests on my Lancer, (different sized wheels (2.25" width), different styles of riding, and other tweaks and riding variables) to see if they made any difference in riding distance, comfort etc.... I'm not sure if you're up to my babbling yet! Stay strong, and I wish you a speedy recovery.
You’re always helpful and upbeat even with your illness. Life certainly throws curveballs. I see a real ripper of a trike in your future. At least temporarily. You might have to widen your test trail.
My health started going down over 5 years ago. My situation was a bit different as they would find one thing and we'd spend months on that treatment only to find there was something else as well. Its amazing how much we can treat, but frustrating how long and difficult it can be to get the treatment we need. I'm still working to get back to normal. Glad you were able to figure out whats going on and start treatment. Best of luck to you!
I’m so sorry you’re having to deal with this, Kyle. Sounds positive that you’re on the road to recovery. Keep your head up. Healing thoughts are coming your way. Godspeed.
Wow! Thanks for sharing. I know the worst part is knowing that something is wrong with you but no one can tell you what’s wrong. I’m glad the prognosis is optimistic! Take all the time you need. We’ll be there for you! Get well! 🥰
I'm so sorry Kyle. Your attitude is amazing! Thank you for your calm explanation of what has been happening to you. Blessings to you and best wishes for you to stay strong and continue improving.
Sorry to hear your struggle Kyle. Hopefully it works out for you . I love your videos and have learned so much from them...I am a big fan of yours..and you are appreciated.
Sorry to hear this, I hope you get better soon, my uncle died from this, it took only a couple of weeks and he was gone, it was tough to see him, he could barely move or talk, it took all of us by surprise, Im glad you cought it before it got worse...my best wishes to you.
Dear Kyle, I am shocked...and saddened to hear of your plight. I know of those nerve tests had many over a course of months if not years and 6 related surgeries. But unlike you I didn't have GB. My heart goes out to you and your struggles. I will certainly look for the Short Channel and look forward to your return to a happy and healthy life that you can achieve. I hope it's 100%. All my Best to you and yours, Red.
I hope you fully recover Kyle and soon. I have been watching your videos for a while now and they've filled me in on many aspects, problems and solutions for E Bikes. In short you have been a world of help in my quest for E Bike knowledge. Keep fighting and godspeed in recovery.
I’ve followed you for a few years, Kyle. I’m a 66 yr old mtbr and ebikes. I’m keeping you in my prayers, dear. Please keep us updated and don’t feel pressured to do too much. I, for one, will not stop watching. You’ve presented yourself and medical hurdles very well. I look forward to anything you have to share with us. God bless you and your family - and staff at the shop.
Thank you for sharing your story Kyle. I understand your struggles in getting a diagnosis when you know something is wrong. You have to be your own advocate in the healthcare system. I struggled navigating the heath-care system for 10 years and endured 4 nerve conductive studies before I was able to get my diagnosis from a neurologist who went further to test my muscles. I am happy to hear that you are on your way to recovery and I look forward to seeing you ride again, hopefully soon. Unfortunately for me I am no longer able to ride a non-assist bike and I will lose my ability to ride my e-bike over the next few years as my VCP disease slowly takes away my ability to ride altogether.
Listening to your story made me tear up. Also immediately made me realize how ungrateful I've been about my blessings. Taking for granted so many things. even the ability to walk, to talk, to use my hands. I've been on life support this whole time and it's in hearing experiences like yours that really makes me realize that. Thank you and may God grant you healing and forgiveness.
Thank you Kyle. You are working your way back to health in a step by step process that will lead you to a full recovery. I found myself in a similar situation when I had to live in a hospital or a medical training facility for nineteen months before I was able to go back home. Recovery always takes longer than we want but recovering is a slow and methodical process that will move you to a healthy life again.
Sorry to hear about your condition, Kyle. Get better soon! I was going to suggest a recumbent bike that you could try and do some riding on, but it looks like the Velo bike is probably what that is. I had two accidents last summer on my e-bike, The second one given me an AC separation. Bad luck and stupidity on my part, but recumbent bikes might be safer for me in the future as well. Rest up, get well and Godspeed, Kyle!
Jings....I just commented to you today on the last video about bike racks.....saw this little thing saying you were not riding....Brother, we will no doubt never meet, but I among many who wish you a speedy recovery and ensuing good health.....Illness is never to be dismissed, when something in our body lets us know, we must be thankful. Seems you are heading on the right direction, but accept it may take time.....best wishes
May God bless you with a speedy recovery and blessings to your family brother🙏🏾🙏🏾🙏🏾. After I'd purchased my first ebike, you was my go to guy for all information regarding electric bike. I miss your commentary about all things electric bike.
Sorry to hear this mate. Glad you're on the mend getting to grips with it. I can sympathize completely having suffered acute labyrinthitis causing damage to my inner ear which broke my balance. It can be very frustrating having something wrong with you and you still looking ok to other people. It's taken a long time for me to feel ok enough to get back biking again (I just got an ebike and have been watching your really helpful vids). Hang on in there, take your time and I'm sure you'll be ok again. Good luck and take care.
So sorry to hear of your health struggles Kyle! Take care of yourself and please be careful until you are 100%. WIll be looking forward to seeing more on your velomobile project!
I have been wondering where you have been. Thank you for the update. GBS is a very tough disease. One of my best friends went through it a few years back. She eventually made a complete recovery. I hope and pray that you will experience the same result. You are blessed to have a supportive wife who can help you with your daily activities. Good luck in the future and keep your spirits up!
Your story hits home very much with me; very personally…. Appreciate your sharing & being brave ….. I am fighting to recover from leukemia (and the treatments). I understand completely how the physical and physiological changes effect our daily lives, especially when we are active people. You will prevail & inspire/help others. After all, that is our purpose(s) for this life!!! 🤙🏽
Hey Kyle - We're all praying for you here at Hopkins Ebike, Your voice and entire energy changed in the video when you started speaking on the project you were working on.. That is a GREAT SIGN, your an all or nothing guy - just slow down a bit, work on things you really get the most joy out of - and like me - I know you love to design and forge ahead in making this sport we love - a more fulfilling experience , I can just read it in your body language that is still going strong and we all look forward to a full recovery and a few well thought out innovative, "Kyle Style" solutions and innovations along your healing Journey! Dave Hopkins
Kyle, I'm very sorry to hear about this. You are an excellent ambassador for the e-bike community, and I really enjoy and have learned a lot from watching your channel. I wish you a speedy recovery, and wish you and your family all the best!
I just found your Channel wanting to find out about E-Bikes, Love your content and its already helping me to decide what Bike I want and can afford, Ive had 14 surgeries on my left Knee including 2 partial replacements and 2 total replacements so your videos are a big help. I hope you get through this with a full recovery. Get well soon buddy.
Kyle I just started watching your channel a cple weeks ago and have learned a great deal. I am 63 and wondering if I could start riding an e-bike ( had several spinal surgeries) and since I'm more rural what type to get. Nevertheless, Its been a month since you made this video. I just said a prayer to our Great God for you and will keep you in my prayers buddy. Remember, God is the greatest physician of all brother. Its through God's grace that Doctors are able to do great things. Have faith and get 120% Kyle. 👍🙏
I'm so sorry you're dealing with this...autoimmune is no joke. SO frustrating when you're having such serious health issues and no one seems to understand/believe it's the real deal. So good to hear you finally got doctors to listen and respond. There is no test for them to know what triggered this but it sure would be good to understand. Wishing you a full and speedy recovery.
I'm just now watching this video. So sorry for your bad medical news Kyle. Very good news that you caught the problem and stopped it from getting worse. Praying for your full recovery from your GBS, and return to normal life. Best wishes to our fellow RUclips e-bike friend. 🙂🚴
So sorry to hear about this mate. Having a longterm illness myself that took a while to get sorted I can relate to how unsettling this all is. Keep going the human body is amazing ad can suprise even the doctors. (I was never expected to move around again without sup. oxygene..now walk 1.6mls in 22 minutes without anything) Speedy recovery and keep us informed
We're so rooting for you Kyle. You're such a great communicator and have helped so many like me who share your passion for ebikes. I'm really taken by your news. Around the same time as your first signs of something not being right, my wife was also sensing a mysterious out of sortsness about herself. Eventually multiple myeloma was the diagnosis. So likewise we are engaged in a long and slow treatment aimed at a recovery which only time will tell. Hang in there and let's hope slow and steady wins this race.😊👍🚴♂️
Thanks for sharing your story. As a passionate e-bike rider who suffered an injury, I can appreciate the frustration of not being able to get out and feel the experience of biking. The fact that this syndrome was hard to identify and uncertainness of the disease must be heart wenching. I Wish You Strength through this ordeal. You mean a great deal to your viewers and the e-bike community. I join the army of viewers who pray for your a full and fast recovery.
Best of luck with a quick recovery. Also if there is a lot of soldering going on at your shop. Make sure you get tested for lead poisoning. A lot of low quality solders contain lead and exposure over time can build up. It’s often overlooked. When the solders containing lead are heated up they become vapor & it can enter your body through your lungs and build up that way. But hopefully your doctors can give you a definitive diagnosis very soon
So sorry for what you are going through, sounds like you are on the right path now, good luck. I sometimes have dizzy spells due to a medication I take. I have for several years now ridden a catrike with electric assist. I feel perfectly safe, can’t tip over and if my legs give out I can throttle my way home. It’s not a MTB, but is still a lot of fun to ride. Best wishes on your recovery!
Hope you make good progress, stuff happens. About a year ago, I took off on my daily 10 mile ride. I woke up hours later in the emergency room with a rhino rocket up my nose and some road rash. Don't know what happened. Thought I was fine, but it turns out I have a massive tear in my left rotator cuff. Bike had a broken brake lever, no other damage. Makes me kinda nervous on my daily ride and I stay off the streets as much as I can. But I gotta ride anyway. Hang in there.
So sorry to hear bro. So glad they found your problem been dealing with nerve damage from a bike accident and can't find out why I get migraines but riding my bike helps hope all goes well, I hope you are back on the bike soon.
Man I'm so sorry this happened to you, that sounds horrible. I've heard GBS is a side effect popping up very frequently post jab. If that's the case, I hope you report it to VARS. That system necessitates self-reporting. I hope you recover quickly.
Thoughts, and prayers to you, and your family. May you be back in full health real soon, been watching your videos for the past 3 years since I got into ebikes passionately, all thanks to the knowledge you share to the community.
Ugh, dizziness is the worst...I have a different immune disease and indeed, sucks. It sucks as well trying to describe all the issues and symptoms and how fine but not fine i am day to day. But you've done a great job here. Take care man!
I just started my ebike journey and your videos have given me a lot of insight on things to think about (and not think about). Thank you for that. Get well soon ok?
Found your channel by chance when looking for reviews of motorized bikes, which I'm shopping for due to my own chronic/unexplained illness/debility. It's important that awareness be raised, and the voices of people in situations like yours or mine be heard, especially as so often (as in your story) our concerns are dismissed, and diagnosis and treatment delayed or even denied until things have progressed much farther than they had to. Thank you for sharing your story. Blessings of renewed health to you.
Hi Kyle. I have been enjoying your channel for several months and you helped me decide to get an ebike. I appreciated how helpful your videos are and the unbiased information you provided on your channel. I decided to pick Area 13 to deal with because of you and your content never realizing that area 13 was very close to where I live. I ended up going to area 13 and found that is a great place and the your staff is very helpful and competent. I bought something there that was the same price I would pay online. I pray that you can make a full recovery and can continue your life as before. 30 years ago I had a friend that lived in the Nevada City area that I rode to work with every day that came down with your malady. He was much older than you when he came down with it and it hit him much faster and harder than you. He recovered after about 8 months or so and started riding to work with us again and continued to improve to a full recovery.
Great job at informing people about this syndrome. Get well soon. Because of you and a few others I was able to convert an ebike with pas only to one with throttle control. I am an old guy with some medical experience and a working knowledge of electronics. I have also been aware of some GB syndrome patients with 100 percent recovery within about 1 year. Seems to me that your speech is pretty clear and wish the best and a speedy recovery. I am glad you had the where with all to be persistent with doctors and the hospital. Best wishes. And by the way this was an excellent well conceived video.
Hi Kyle. I've been watching your videos for sometime. I've experienced very similar feelings for many years until finally after 7 years a neurologist figured out that I had CIDP. It is nerve damage to the Myelin sheath that protects the nerves in your peripheral nervous system. It is considered a autoimmune disease and basically is like MS but doesn't attack the CNS. Anyway, I listened to many of your symptoms which resembled much of what I experienced over the years. It is a relief to find out what our problems stem from and I can totally relate to your experiences. No, what we are experiencing is real and we aren't crazy which is a relief in itself to get a diagnosis. My disease is not curable but treatable and it has let my mind be at ease somewhat knowing what I am dealing with. Good luck to you and there is some hope for us all.
Hi Kyle, wishing you a speedy recovery from your condition. You are not alone in your journey to full recovery. My wife has been battling with an undiagnosed auto immune condition for many years now. We pray her condition can be identified so the right treatment plan be followed. Stay strong and look forward to future videos.
Kyle, so sorry for you buddy. You will get better in time. I ordered a BlackBird from you and just before delivery I started having dizzy spells and could no longer ride a bike. I had to cancel my BlackBird with you, I was so sad about that. I am 74 now, life is cruel some time. Your family will keep you going.
Im glad you are still fighting. As long as your are on this side of the grass, there is always a possibility of it being a great day. I have many of the same symptoms that you described. I had my break in April of 2022. I went into to hospital not being able to talk or able to walk/stand. I spent 3 days in the hospital and then sent home. It took 5 months and 5 Neurologists to diagnose my disability. The worst part was at first being told the same thing until specialist got involved. When I got my formal diagnosis, we found outthatI have F.N.D. (Functional Neurological Disorder). In my case it mimicks 8 of ten markers of a stroke. I am only 50yrs old. Took speech therepy and physical therapy. Up until January of this year I could only speak 3 to 4 words at a time. My body no longer regulates heat well. But i am still above ground and I luv to ride. So as long as I am still breathing, i will try to hit the pedals. Keep up the fight. Im rooting for you! Thank you for sharing your story with us.
I am so glad they manged to help you early enough. Well done the Docs and their team. A friend of mine past away about 10 years ago here in the UK from what was described as a "nerve degenerative disorder". I did not press his wife, who was still very sad, for too many details. They kept it hidden where they could from most of those they knew. He had one and a half years from onset, it is a tough way to go for sure. It is heartwarmingly impressive how much our medical science has advanced in some areas
Kyle, i’m sorry to hear this is happening to you. I had Guillen beret syndrome when I was 18 years old. That was in 1969. I had a very rough time too much information to put in this comment. Of course now I just turned 69 years old and I’ve been riding bicycles steadily after my recovery in 1970. I would like to talk to you about my experience I think you’ll find it encouraging. I’ve been watching your videos for some time now and enjoy them and find them extremely helpful.
Right on brother Travis! I believe it'd be good for both of you. I can't say "I know how it feels:" But I'm certain that some of us have our more than our share of disabilities. It was good to hear of your recovery, and I pray the same for Kyle.
It's a wise decision when you know you're in pain and nobody else is listening to be your own advocate .. Best wishes Sir !
Boy do I agree with this comment!!!! Your INSTINCTS are something that is more important to listen to than any doctor or tests. Numerous times in my family we have been through medical situations where instincts disagree with what doctors were saying. Like for example they can't find anything wrong. But, our instincts kept telling us otherwise. With much persistence, and like in this story, sometimes eventually things go so bad they can't be ignored. Well Done Kyle! You are much more aware of your body than average people, and you listened to your instincts!!!!!
It’s a terrible, scary feeling when you know something is wrong with you and you don’t know what it is. Medical professionals telling you it’s “all in your head” just adds to the frustration. I wish you all the best in your recovery. Keeping a good thought for you. Your videos are helpful to many people.
Hang in there brother...Your lucky you have the resources you have, half the country would never be able to figure out what was happening to them...Keep fighting...
Oh my gosh. As I was watching this, before you mentioned Guillain-Barre I thought "dang, it sounds like what I went through." I traveled to Nigeria in 1986 and overnight woke up with limited ability to walk, like my whole nervous system was confused. I couldn't walk, my balance was off. My mind was fine, but I was exhausted and slurring words, I couldn't even form them without looking like I was grimacing within a few days. They had to fly me back to the US with a DR, and here they did spinal taps, CT scans, everything. After 3 months I was walking almost normal and could start to write again, but I had to learn how to do my handwriting over.
You are in my thoughts and prayers! I made a full recovery after around 9-12 months. 6 months in I could walk, almost dance like normal, and my handwriting didn't look too bad. The Drs had no idea how to treat it so it was all guesswork. The CDC called me every year for years to follow up to see how it was progressing, how I was doing, because they didn't have much experience with it. I had to go to occupational therapy and one of the biggest frustrations was my short term memory. I knew I knew a word, but couldn't get it. They did all kinds of memory tests but told me it was fine, but they didn't understand that it wasn't like before!
I can tell you this, and everyone has a different experience, but for me even now, 36 years later, when I get overtired my speech can slur a bit, I battle memory issues off and on, but I refuse to worry or let it stop me. Everything else recovered.
I found you because after all that time, I am riding a bike again and LOVING IT! I never tried until a few weeks ago. And I am looking at getting a Blackbird. So yes, there is HOPE.
I hope and pray this is the case for you as well. Well done for posting this!
God speed Kyle. Praying for a speedy and complete recovery 🙏🏼✝️
We hear you brother. As a disabled veteran, I can relate to A lot of the symptoms and unfortunately a lot of the tests… but we keep going and say “Hmmmmmm “ to what ever is trying to slow you down. I’ve got my ebike and love it. For you… add a third wheel if it keeps you going(it’s only temporary)
Sadly, finding Dr's that are willing to listen as well as have any ideas that dont jump out in Lab results.. I suffered for years with Psuedo Tumor Cerebri before I struck the Lotto randomly by going to the ER on the right day at the right time (After 20-30 or more visits) to take all information and put it together.
Glad you have answers, that was the hardest part for me!
Wow, what an incredible story. Wishing you as full a recovery as possible. We’ve got similar stories, the worst part is not having a diagnosis. Still trying to figure it out.
My story is similar too, and yes trying to get a diagnosis was sheer hell. I hope you get to the bottom of it.
@@db7948 Me too DB
Really sorry to hear man, crazy autoimmune stuff. At least now you know and you caught it early, hope for the best.
Hypothyroidism…. Chronic pancreatitis…. Both of these induce severe fatigue. Goldenhar Syndrome, with partial deafness.
A number of mental and neurological disabilities.
(What I live with.)
I understand how you're feeling I've been trying to get back on my bike after a second brain tumour last year. I've got to learn to walk again. While I was I'm hospital in rehab I met a young guy who developed GBS after covid vax . I'm slowly getting there. I've got a bbshd and a Trek fuel for it to go on so I'll be on the trails soon. You're young and determined and that's a good place to be ,thanks for all the uploads they've helped me through my recovery.
It is frustrating, difficult, and a bit scary when the medical people don't know what's happening to you. Thankfully you have a diagnoses and a treatment plan. Not to mention a good attitude and people that care about you. You have always been very giving of your knowledge on ebikes and now you are being so open about your illness. This will help others too in ways you can't imagine now. I wish you a speedy recovery, be well.
Very sorry to hear! I wish you a speedy recovery. In Canada a man just won a lawsuit for injury from the government. That's the first step in them admitting a problem because you're not the only person I know by far suddenly getting gbs.
I had a stroke 10 years ago (in my 40's) and I'm 98% back to normal. During my recovery I was fascinated to observe how the body can heal itself. My balance isn't perfect so my sister bought me one of your excellent Galaxy trikes this past Christmas. Hopefully you'll be able to start riding one soon. I hope you have a speedy recovery, and please keep us updated on your progress.
Sorry to hear about your situation. The lack of a solid diagnosis is a real concern and when you feel that the doctors where you are do not get it, then it is time to spend the money and the time to get yourself to a teaching hospital affiliated with a high ranked med school or one of the clinics like The Mayo Clinic or the Cleveland Clinic. The Mayo has a branch in Scottsdale, AZ. These clinics have lots of experience with unusual medical situations of which yours is clearly that. I am sure that there are excellent facilities in LA or San Francisco. Best of luck in your recovery!
Goodness! Sorry to hear, Kyle. Stay strong, and I wish you a speedy recovery.
Kyle, thank you for sharing your personal story. I’m very sorry that your road has been so difficult of late, but I’m glad there seems to be a diagnosis and that you’re recovering. I’m not surprised that you’ve already thought of a way to scratch your cycling itch and to keep your ever-active mind moving forward. It’s clear from your work that you enjoy enriching others’ lives and I’ve no doubt that your velomobile and other efforts will give you yet another avenue to help folks in similar circumstances. I wish you a full and speedy recovery. Thanks for the content and inspiration. Best.
GBS is a known adverse reaction to the covid vaccines.
My best friend was vaccine injured as well.
Hope you can recover from this condition as soon as possible.
Godspeed.
Well he's a California libby so thoughts and prayers I guess
You never know what life. Can throw at you. Your in my prayers for a full recovery. You can lick this, your a good man.
That sounds like when I was 30 and had a stroke. I went to the fridge and got so dizzy and could not keep my balance and then it came back. I went to the ER and they said I was fine and they could not see anything and they were not going to call in a Dr. for an MRI so told me to come back to the hospital in the morning for an MRI. I woke up twice in the night and could not keep myself for falling over. I waited for the appointment in the morning and went in and got a cat scan not an MRI as the machine was needed for an accident victim. After they did a cat scan they saw there was a problem and sent me to another hospital for an MRI and they found out I had a stroke. It was a horrible feeling and I feel for your story when you know something is wrong but Drs say you are fine. It can be psychologically damaging to your trust in Drs. I am glad you are safe and I really hope you get recovered. I still deal with meatal health issues realizing I'm not invincible and could die at any moment. Hugs man!!
Congratulations on 100k ! Speed bumps in health happens. Hopefully you can make this an opportunity for other adventures to possibly help you and others with disabilities to enjoy your visions. Keep fighting🤙🏼
Good luck in your recovery. As they say here in Boston, Stay Boston Strong !! For you, Stay Area 13 STRONG !!!
Praying for you Kyle. We have a family friend that has just gone through this recently. It knocked her for a loop. Still recovering at this point.
Sorry to hear about your experience, but I am happy that you have made progress toward recovery. I am appalled when doctors say it's all in your head. It usually just means the doctor doesn't know what the issue is. Even if it were true, it's something you're experiencing and needs addressing.
There's nothing worse than them telling you everything that's not wrong, and never what is. 50 yrs of deterioration with type 1 diabetes has taught me just what you're doing. Keep positive and do what you can, and life will be as fulfilling as it can be! I wanna see that new build.
I hear you brother 61 blown out spine nerve issues for 15 years
So sorry to hear about your troubles. When I listened to your story I thought you had Lyme disease. I didn't know anything about Gillain Barre syndrome. The problem with modern medicine today is they run on an assembly line mentality. They use tests to determine diagnosis and once you fit into a set of symptoms your treatment is automatic...Next Case! I am guessing you never developed a long term relationship with a primary physician. That IMO is what is missing. If you had had one, he/she would know that you are not just making up a story and would have taken your case more seriously. Do take care of yourself first. We can wait for the next video...:-)
OH Kyle, I'm so very sorry that you've gone through this (and still are !) I'm holding on to positive thoughts for you to get back to 100% and really believe that you will ! Thank goodness that you have a good attitude and support. Yes, for now, it gives you time to work on these other projects. Hey, I can tell that , yes, your brain is truly working at that 110% and I think that in the space that it will take for you to get back to normal, you're gonna be super busy!
Sorry to hear that, man. I hope recovery comes quickly to you!
Glad to hear that you are doing better, having diabetic neuropathy and having the similar pains as you, with the tingling and "pins and needles" everywhere, I have a good idea of how you are feeling. I struggle to this day with riding my RadRunner Plus, if it weren't for e-bikes I would never had been able to get back to riding at all, I just wish I had found velomobile e-bikes before I got the RadRunner+. Better still to had found your shop before then. GOD Bless and heal you Kyle, I pray for your speedy recovery.
I hope to see you cameo in more of the videos of reviews, even if you have other employees assist you in them...
I have diabetic neuropathy too, despite very well controlled diabetes
If someone asked me to design a torture chamber to extract secrets, it would be a neuropathy simulator
Sucks to be just sitting there and suddenly crippled by some random pain.
The little devil with a needle pitch fork jabbing at your pinky or big toe working his way up your foot while your trying to sleep? Yea its brutal
Admire your courage and candor in sharing your story. Like many, I was concerned when you were gone for a while. I echo the admiration that you applied the same problem solving determination you've used to build the company to your health.
Never give up on recovery. Even if people someday tell you that your recovery has gone as far as possible, don't accept that. Keep working, keep exploring new avenues.
On another note: when I lost the ability to ride a bike, in addition to recovery efforts, I bought a recumbent trike. It isn't a bike, but I could still pedal, and it has its own joys. (I see you're already thinking along those lines! Good-o.)
Good fortune to you and yours.
Very strange. Get well soon. Hope to see you riding your bikes soon.👍
As someone with nerve issues (undiagnosed), I can understand the frustrations of doctors not having answers (or even believing there is a problem). It's very scary to lose feeling in your hands and feet. I haven't felt 50% of my left foot for over a decade now. A couple years ago, I started losing some feeling in my right foot and left hand. Progressed to my right hand. I get completely drained of energy very easily. What has made a huge improvement for me is cutting out carbohydrates and processed foods. Like CUTTING THEM OUT... not just reducing them. Between that, near infrared therapy, sublingual B12, NAC, and a very good probiotic (Seed), I am starting to see improvements. As you have discovered, you have to be your own advocate. Keep doing your research and question your doctors (respectfully). Wishing you a full recovery!
Wow - a fellow GBSer with an ebike ! I got gbs at 58. Started in my feet and went straight up - paralyzed and on a vent in 48 hours. God awful experience, months in hospital and more months in Rehab. BUT after about a year symptoms resolved an was able to walk out of the rehab. After more months, strength and most feeling returned. Last week I bought an ebike ! I still have some tingling and a bit of neuropathy so I have to be extra careful, but it’s doable even for an old goat like me. I’m 78.
I learned a lot from your channel (thx) and I know like most gbsers near full recovery is possible . It just takes time and patience. Again thanks and I know soon you’ll be back on your bike.
my heart goes out to you. I got an ebike because I had a pretty bad knee injury and I lost a lot of my mobility. It was tough for me to cope with the fact I 'couldn't ride a bike'. I found your videos as I was learning about ebikes.Having an ebike has gotten me to a place where I'm better today and I'm so grateful for it. I've gone through the chronology of your videos and am just finding this video now. I'm so sorry, in a very small small way I know how you must feel. The human spirit and body is so resilient. So I'm looking forward to your recovery and you getting back to where you were. I'm your fan and in your corner. I hope you know you've probably motivated so many people with your videos to take back life. You will too, I know it. Much love.
Sorry to hear, Kyle. I was performing some tests on my Lancer, (different sized wheels (2.25" width), different styles of riding, and other tweaks and riding variables) to see if they made any difference in riding distance, comfort etc.... I'm not sure if you're up to my babbling yet! Stay strong, and I wish you a speedy recovery.
You’re always helpful and upbeat even with your illness. Life certainly throws curveballs. I see a real ripper of a trike in your future. At least temporarily.
You might have to widen your test trail.
Kyle, I'm sorry to hear what you are going through. Hoping you have a speedy recovery, God Bless and stay strong.
My health started going down over 5 years ago. My situation was a bit different as they would find one thing and we'd spend months on that treatment only to find there was something else as well. Its amazing how much we can treat, but frustrating how long and difficult it can be to get the treatment we need. I'm still working to get back to normal. Glad you were able to figure out whats going on and start treatment. Best of luck to you!
I’m so sorry you’re having to deal with this, Kyle. Sounds positive that you’re on the road to recovery. Keep your head up. Healing thoughts are coming your way. Godspeed.
Wow! Thanks for sharing. I know the worst part is knowing that something is wrong with you but no one can tell you what’s wrong. I’m glad the prognosis is optimistic! Take all the time you need. We’ll be there for you! Get well! 🥰
I'm so sorry Kyle. Your attitude is amazing! Thank you for your calm explanation of what has been happening to you. Blessings to you and best wishes for you to stay strong and continue improving.
Thanks for sharing this - I'm sure it wasn't/isn't easy. I admire your courage and wish you a speedy 100% recovery.
Sorry to hear your struggle Kyle. Hopefully it works out for you . I love your videos and have learned so much from them...I am a big fan of yours..and you are appreciated.
Sorry to hear this, I hope you get better soon, my uncle died from this, it took only a couple of weeks and he was gone, it was tough to see him, he could barely move or talk, it took all of us by surprise, Im glad you cought it before it got worse...my best wishes to you.
Dear Kyle, I am shocked...and saddened to hear of your plight. I know of those nerve tests had many over a course of months if not years and 6 related surgeries. But unlike you I didn't have GB. My heart goes out to you and your struggles. I will certainly look for the Short Channel and look forward to your return to a happy and healthy life that you can achieve. I hope it's 100%. All my Best to you and yours, Red.
I hope you fully recover Kyle and soon. I have been watching your videos for a while now and they've filled me in on many aspects, problems and solutions for E Bikes. In short you have been a world of help in my quest for E Bike knowledge. Keep fighting and godspeed in recovery.
I’ve followed you for a few years, Kyle. I’m a 66 yr old mtbr and ebikes. I’m keeping you in my prayers, dear. Please keep us updated and don’t feel pressured to do too much. I, for one, will not stop watching. You’ve presented yourself and medical hurdles very well. I look forward to anything you have to share with us. God bless you and your family - and staff at the shop.
Thank you for sharing your story Kyle. I understand your struggles in getting a diagnosis when you know something is wrong. You have to be your own advocate in the healthcare system. I struggled navigating the heath-care system for 10 years and endured 4 nerve conductive studies before I was able to get my diagnosis from a neurologist who went further to test my muscles. I am happy to hear that you are on your way to recovery and I look forward to seeing you ride again, hopefully soon. Unfortunately for me I am no longer able to ride a non-assist bike and I will lose my ability to ride my e-bike over the next few years as my VCP disease slowly takes away my ability to ride altogether.
Sorry to hear that! I hope you get more years of riding than expected.
Listening to your story made me tear up. Also immediately made me realize how ungrateful I've been about my blessings. Taking for granted so many things. even the ability to walk, to talk, to use my hands. I've been on life support this whole time and it's in hearing experiences like yours that really makes me realize that. Thank you and may God grant you healing and forgiveness.
You take all the time you need sir! We will be here, and thank you for your time!
Thank you Kyle. You are working your way back to health in a step by step process that will lead you to a full recovery. I found myself in a similar situation when I had to live in a hospital or a medical training facility for nineteen months before I was able to go back home. Recovery always takes longer than we want but recovering is a slow and methodical process that will move you to a healthy life again.
Sorry to hear about your condition, Kyle. Get better soon! I was going to suggest a recumbent bike that you could try and do some riding on, but it looks like the Velo bike is probably what that is. I had two accidents last summer on my e-bike, The second one given me an AC separation. Bad luck and stupidity on my part, but recumbent bikes might be safer for me in the future as well. Rest up, get well and Godspeed, Kyle!
Jings....I just commented to you today on the last video about bike racks.....saw this little thing saying you were not riding....Brother, we will no doubt never meet, but I among many who wish you a speedy recovery and ensuing good health.....Illness is never to be dismissed, when something in our body lets us know, we must be thankful. Seems you are heading on the right direction, but accept it may take time.....best wishes
May God bless you with a speedy recovery and blessings to your family brother🙏🏾🙏🏾🙏🏾. After I'd purchased my first ebike, you was my go to guy for all information regarding electric bike. I miss your commentary about all things electric bike.
Sorry to hear this mate. Glad you're on the mend getting to grips with it. I can sympathize completely having suffered acute labyrinthitis causing damage to my inner ear which broke my balance. It can be very frustrating having something wrong with you and you still looking ok to other people. It's taken a long time for me to feel ok enough to get back biking again (I just got an ebike and have been watching your really helpful vids). Hang on in there, take your time and I'm sure you'll be ok again. Good luck and take care.
Kyle...best wishes for a full recovery! Looking forward to seeing you get back to your old self.
So sorry to hear of your health struggles Kyle! Take care of yourself and please be careful until you are 100%. WIll be looking forward to seeing more on your velomobile project!
Take care, I’m pulling for you!
Prayers sir that your journey to recover continue. 🙏🙏 So many kind words said by so many… I don’t know what more to say. Your in my prayers 🙏
Kyle….I am so sorry you’ve been going through this…..I am praying for you and your wife to be able to work through this.
I have been wondering where you have been. Thank you for the update. GBS is a very tough disease. One of my best friends went through it a few years back. She eventually made a complete recovery. I hope and pray that you will experience the same result. You are blessed to have a supportive wife who can help you with your daily activities. Good luck in the future and keep your spirits up!
Your story hits home very much with me; very personally…. Appreciate your sharing & being brave ….. I am fighting to recover from leukemia (and the treatments). I understand completely how the physical and physiological changes effect our daily lives, especially when we are active people.
You will prevail & inspire/help others. After all, that is our purpose(s) for this life!!! 🤙🏽
Hey Kyle - We're all praying for you here at Hopkins Ebike, Your voice and entire energy changed in the video when you started speaking on the project you were working on.. That is a GREAT SIGN, your an all or nothing guy - just slow down a bit, work on things you really get the most joy out of - and like me - I know you love to design and forge ahead in making this sport we love - a more fulfilling experience , I can just read it in your body language that is still going strong and we all look forward to a full recovery and a few well thought out innovative, "Kyle Style" solutions and innovations along your healing Journey! Dave Hopkins
Kyle, I'm very sorry to hear about this. You are an excellent ambassador for the e-bike community, and I really enjoy and have learned a lot from watching your channel. I wish you a speedy recovery, and wish you and your family all the best!
I just finished watching your RUclips video on your condition. I am so sorry for what you are going through. Sending my prayers for a speedy recovery.
I just found your Channel wanting to find out about E-Bikes, Love your content and its already helping me to decide what Bike I want and can afford, Ive had 14 surgeries on my left Knee including 2 partial replacements and 2 total replacements so your videos are a big help. I hope you get through this with a full recovery. Get well soon buddy.
Kyle I just started watching your channel a cple weeks ago and have learned a great deal. I am 63 and wondering if I could start riding an e-bike ( had several spinal surgeries) and since I'm more rural what type to get. Nevertheless, Its been a month since you made this video. I just said a prayer to our Great God for you and will keep you in my prayers buddy. Remember, God is the greatest physician of all brother. Its through God's grace that Doctors are able to do great things. Have faith and get 120% Kyle. 👍🙏
I'm so sorry you're dealing with this...autoimmune is no joke. SO frustrating when you're having such serious health issues and no one seems to understand/believe it's the real deal. So good to hear you finally got doctors to listen and respond. There is no test for them to know what triggered this but it sure would be good to understand. Wishing you a full and speedy recovery.
I'm just now watching this video. So sorry for your bad medical news Kyle. Very good news that you caught the problem and stopped it from getting worse. Praying for your full recovery from your GBS, and return to normal life. Best wishes to our fellow RUclips e-bike friend. 🙂🚴
So sorry to hear about this mate. Having a longterm illness myself that took a while to get sorted I can relate to how unsettling this all is. Keep going the human body is amazing ad can suprise even the doctors. (I was never expected to move around again without sup. oxygene..now walk 1.6mls in 22 minutes without anything) Speedy recovery and keep us informed
My heart goes out to you, bro. I'm pulling for you and wishing you the very best! Keep pushing!
Kyle, thanks for sharing your story and struggle. I sure it will help other with similar symptoms. I hope you have a speedy recovery.
Oh wow 100k!!!! Congratulations to you and your team!! 🎊🍾
We're so rooting for you Kyle. You're such a great communicator and have helped so many like me who share your passion for ebikes. I'm really taken by your news.
Around the same time as your first signs of something not being right, my wife was also sensing a mysterious out of sortsness about herself. Eventually multiple myeloma was the diagnosis. So likewise we are engaged in a long and slow treatment aimed at a recovery which only time will tell. Hang in there and let's hope slow and steady wins this race.😊👍🚴♂️
Thanks for sharing your story. As a passionate e-bike rider who suffered an injury, I can appreciate the frustration of not being able to get out and feel the experience of biking. The fact that this syndrome was hard to identify and uncertainness of the disease must be heart wenching. I Wish You Strength through this ordeal. You mean a great deal to your viewers and the e-bike community. I join the army of viewers who pray for your a full and fast recovery.
Best of luck with a quick recovery.
Also if there is a lot of soldering going on at your shop. Make sure you get tested for lead poisoning. A lot of low quality solders contain lead and exposure over time can build up. It’s often overlooked. When the solders containing lead are heated up they become vapor & it can enter your body through your lungs and build up that way.
But hopefully your doctors can give you a definitive diagnosis very soon
So sorry for what you are going through, sounds like you are on the right path now, good luck. I sometimes have dizzy spells due to a medication I take. I have for several years now ridden a catrike with electric assist. I feel perfectly safe, can’t tip over and if my legs give out I can throttle my way home. It’s not a MTB, but is still a lot of fun to ride. Best wishes on your recovery!
Hope you make good progress, stuff happens. About a year ago, I took off on my daily 10 mile ride. I woke up hours later in the emergency room with a rhino rocket up my nose and some road rash. Don't know what happened. Thought I was fine, but it turns out I have a massive tear in my left rotator cuff. Bike had a broken brake lever, no other damage.
Makes me kinda nervous on my daily ride and I stay off the streets as much as I can. But I gotta ride anyway. Hang in there.
So sorry to hear bro. So glad they found your problem been dealing with nerve damage from a bike accident and can't find out why I get migraines but riding my bike helps hope all goes well, I hope you are back on the bike soon.
Man I'm so sorry this happened to you, that sounds horrible. I've heard GBS is a side effect popping up very frequently post jab. If that's the case, I hope you report it to VARS. That system necessitates self-reporting. I hope you recover quickly.
Sorry to hear that. Been following you for a while. Positive vibes going your way.
Thoughts, and prayers to you, and your family. May you be back in full health real soon, been watching your videos for the past 3 years since I got into ebikes passionately, all thanks to the knowledge you share to the community.
Prayers for a full recovery man!
Don’t waste his time
He's not.
Ugh, dizziness is the worst...I have a different immune disease and indeed, sucks. It sucks as well trying to describe all the issues and symptoms and how fine but not fine i am day to day. But you've done a great job here. Take care man!
I am so sorry that you're going through this. I will keep you and your family in my prayers.
I just started my ebike journey and your videos have given me a lot of insight on things to think about (and not think about). Thank you for that. Get well soon ok?
Found your channel by chance when looking for reviews of motorized bikes, which I'm shopping for due to my own chronic/unexplained illness/debility.
It's important that awareness be raised, and the voices of people in situations like yours or mine be heard, especially as so often (as in your story) our concerns are dismissed, and diagnosis and treatment delayed or even denied until things have progressed much farther than they had to.
Thank you for sharing your story. Blessings of renewed health to you.
Hi Kyle. I have been enjoying your channel for several months and you helped me decide to get an ebike. I appreciated how helpful your videos are and the unbiased information you provided on your channel. I decided to pick Area 13 to deal with because of you and your content never realizing that area 13 was very close to where I live. I ended up going to area 13 and found that is a great place and the your staff is very helpful and competent. I bought something there that was the same price I would pay online. I pray that you can make a full recovery and can continue your life as before. 30 years ago I had a friend that lived in the Nevada City area that I rode to work with every day that came down with your malady. He was much older than you when he came down with it and it hit him much faster and harder than you. He recovered after about 8 months or so and started riding to work with us again and continued to improve to a full recovery.
Great job at informing people about this syndrome. Get well soon. Because of you and a few others I was able to convert an ebike with pas only to one with throttle control. I am an old guy with some medical experience and a working knowledge of electronics. I have also been aware of some GB syndrome patients with 100 percent recovery within about 1 year. Seems to me that your speech is pretty clear and wish the best and a speedy recovery. I am glad you had the where with all to be persistent with doctors and the hospital. Best wishes. And by the way this was an excellent well conceived video.
Hi Kyle. I've been watching your videos for sometime. I've experienced very similar feelings for many years until finally after 7 years a neurologist figured out that I had CIDP. It is nerve damage to the Myelin sheath that protects the nerves in your peripheral nervous system. It is considered a autoimmune disease and basically is like MS but doesn't attack the CNS. Anyway, I listened to many of your symptoms which resembled much of what I experienced over the years. It is a relief to find out what our problems stem from and I can totally relate to your experiences. No, what we are experiencing is real and we aren't crazy which is a relief in itself to get a diagnosis. My disease is not curable but treatable and it has let my mind be at ease somewhat knowing what I am dealing with. Good luck to you and there is some hope for us all.
Kyle, praying for a complete recovery! 🙏Keep a positive attitude! The mind is an incredible internal healer. 👍
Hi Kyle, wishing you a speedy recovery from your condition. You are not alone in your journey to full recovery. My wife has been battling with an undiagnosed auto immune condition for many years now. We pray her condition can be identified so the right treatment plan be followed. Stay strong and look forward to future videos.
Kyle, so sorry for you buddy. You will get better in time. I ordered a BlackBird from you and just before delivery I started having dizzy spells and could no longer ride a bike. I had to cancel my BlackBird with you, I was so sad about that. I am 74 now, life is cruel some time. Your family will keep you going.
Im glad you are still fighting. As long as your are on this side of the grass, there is always a possibility of it being a great day.
I have many of the same symptoms that you described.
I had my break in April of 2022. I went into to hospital not being able to talk or able to walk/stand. I spent 3 days in the hospital and then sent home. It took 5 months and 5 Neurologists to diagnose my disability.
The worst part was at first being told the same thing until specialist got involved. When I got my formal diagnosis, we found outthatI have F.N.D. (Functional Neurological Disorder). In my case it mimicks 8 of ten markers of a stroke. I am only 50yrs old. Took speech therepy and physical therapy. Up until January of this year I could only speak 3 to 4 words at a time. My body no longer regulates heat well.
But i am still above ground and I luv to ride. So as long as I am still breathing, i will try to hit the pedals.
Keep up the fight. Im rooting for you!
Thank you for sharing your story with us.
So sorry to see what is happening. I hope you will have a full recovery. God bless from my family.
Sorry to hear, Kyle. Stay strong, and I wish you a speedy recovery.Keep fighting!💪💪💪
Very sorry to hear what is happening to you. Keep the positivity and hope you get better soon.
I just randomly came across your post.
Such a tough story
I hope you make a full recovery in short order.
I am so glad they manged to help you early enough. Well done the Docs and their team.
A friend of mine past away about 10 years ago here in the UK from what was described as a "nerve degenerative disorder". I did not press his wife, who was still very sad, for too many details. They kept it hidden where they could from most of those they knew.
He had one and a half years from onset, it is a tough way to go for sure.
It is heartwarmingly impressive how much our medical science has advanced in some areas