What does it mean to become a bone marrow donor?
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- Опубликовано: 25 мар 2018
- One man opens up about his journey and decision to become a bone marrow donor, and Dr. Jennifer Ashton appears live on "GMA" to answer questions about what becoming a donor involves.
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It’s been almost 3 years since I was called to donate for a patient in need. All this time later and I am so glad I stayed with it. Not only did I save someone’s life, but I got a lifelong friend as well.
Sir any long term complications?
Sumit singh Bais Nope! No short or long term complications. You may be sore for a day after the PBSC donation due to the Neupogen injections, but that goes away pretty fast.
@@mldw172 thanks I am looking forward to register at DATRI bone marrow donor register in India
Hey I know this video is really old but if you’re still on RUclips, I had a question. I assume by lifelong friend you mean the receiving patient. So why are some anonymous and how did you get to meet your match? Either way I want to do it, BUT I would sooo much rather get to meet who would be receiving it! Thanks!
@@karalantz6520 I am for sure still on RUclips! So you remain anonymous for the first year post-donation because they want to make sure everything goes alright, and that the patient is recovering to some degree before introducing people. My recipient wanted to meet me and vice versa so we met. He’s since passed away and I have donated to a second patient in September. I’m not sure if they will want to meet me one day, but they have written to me and expressed gratitude. Meeting up is all on a case by case basis, and I usually say this, if the recipient wants to meet, meet. They are the one who went through the ringer. I definitely think you should sign up - it is worth it.
I donated. Didn't hurt. No long term problems. All it took was some of my time. A small price in order to save a life. All I had to do was sit in chair for two days. Thanks to the medical staffs, the volunteers who run the registration drives and everyone else involved.
How much did they pay you? Please!
This is awesome 🙌
Did they offer to fly you to the destination ? I’m from Hawaii and am curious to how that works ..
A high school principal just died from complications of donating bone marrow
Nel Nel ; tell me more please! I’m going to be donating my bone marrow for my sick brother.
I am a mother to two kids who need me very much. I was told a week ago they found me a donor after searching millions on the register for years, but one wasn't found until a few weeks ago. At this point in time, I can't know who my donor is, but I would love to thank her for making the decision to save my life. I will be going in for my transplant the beginning of November 2019 and coming out with a cure. Whoever my donor is, God bless you for taking the time and doing this for me. One day I hope to meet my donor and thank her. She will be family for life. xxx
We want to donate our bone marrow but we need some money
How are you feeling dear?
Please
God help
@@Vynessa48 thank you
I just got called about a patient with leukemia. Im nervous but i think im going through with it..
That's wonderful! Best wishes!
My father needs a bone marrow transplant. He was just put on the list.
Please go through with it. You’ll be saving someones life. Thank You! 🙏🏼💕
I'd love to hear an update!
You should
You won the Lottery, Leo! I pray you get through all the medical checks and are fit and healthy to become the donor who saves the life of this person in need. You will be his or her hero for sure.
I didn’t realize how easy it was to donate. I’m so glad they are educating us on this
The injections can be really annoying, gonna be honest most people act as if it’s amazing, idk if it’s different as I’m in Scotland and this vid was shot in the US. Other than that it isn’t too bad
i always thought they pulled it by injecting you and pulling it from your spine...
@@emanuelzhimrules in some cases they take it from your hip bone, but its rare and you obviously have to consent
Just sent in my swab... I hope I qualify and match with someone..
I know I'd be nervous about donating but I keep asking myself this question
*is my temporary discomfort more important than saving a life?*
No.
So if you are nervous about doing something like this just ask yourself this question. It always makes me feel better about following through.
Thank you! When I told a few people that I ordered a swab kit to be placed on Be The Match to donate bone marrow, literally everyone commented on how badly they heard the procedure hurt. Like is some pain and a little discomfort that much of an inconvenience for you that you would decide not to save someone's life? If I turn out to be a match for someone, I would be so nervous and scared but if it means I can save someone's life, then it is well worth it.
It took them a long while to send me an email / call me I almost forgot I signed up.
Just sent mine in!
yes
Honestly I always thought it was a surgical procedure to remove the marrow to be donated. I didnt realize it was just like giving blood. Definetely more excited to get my call now.
On rare occasions a surgical withdrawal of bone marrow is necessary (and even that is just using a needle to extract the marrow from your hip, not opening up your body a bunch like for heart surgery or anything) but the blood draw method shown in this video is much more common. It depends on the patient's needs.
If they have to use a needle to withdrawal from the bone, they numb the area beforehand so you won’t feel a thing
Yeah I didn't realize typically it's just a really long blood donation. I had this horror movie scene in my head as far as what I thought had to happen to donate. If I had known it was this easy I would have signed up years ago.
thats exactly what I thought !
Just found out I'm a match for a boy who's only 18. I joined just little over a year ago....I am feeling so blessed and overwhelmed with happiness to be able to give someone the chance at life. I can't wait to do this!
I just got called about a patient with leukemia and I’m so nervous about donating, but I’m going through with it. I couldn’t live with myself if someone died because I didn’t want to help. Pray for me and the patient 🙏🏽
Can we have an update?? 💖💖
free
I signed up for the registry about 7-8 years ago when I was in college. I just got the call last week that I matched with a patient who has Leukemia. The first few years on the list I was fearful of getting the call, not knowing how I would feel if I matched. Then I completely forgot about it, but when I got the call I was happy because it means I can save a life.
My son is doing his donation tomorrow. He signed up for be the match in 2018 when Andrew Smith passed away from Butler. Eric has matched with a lady that he will be donating his Stem cells for her. Our son is a hero and what a selfless act to do this. ABC maybe you would like to do a story on him as well, He is also in his 3rd Year of Pharmacy School
I've gotten to donate twice. First time was the old way where they knocked you out and drew the bone marrow from you with a long needle. The second time was the newer procedure and took 3 days. I'm hoping to be a match for a third person which they said is incredibly rare.
Can you tell me more about your experience, particularly with the needle? Did they put you completely out? Did it hurt afterwards? Have you experienced any long term affects?
I love that you said you've "gotten" to donate twice. God bless you!
Have you had any long term effects?
Bless you.
God bless you Man
i had a dream last night my beother who passed away from cancer recovered and this morning i saw an ad for Be The Match and i truly fee like it was a sign
My sister had leukemia 6 years ago. And was just diagnosed with another form of leukemia. She was treated without a bone marrow transplant. Now that she has got leukemia a second time. The doctors believe she needs a bone marrow Transplant. I hope I’m a match.
Update
Costeno 714 she’s doing really well😊 she had a few hiccups with transplant, her liver acted up, she got a disease got Veno-Occlisive Disease but thankfully got over it😊
It's great to know that men
I'm in preparation to receive a bone marrow transplant for my AML , and I'm beyond grateful for my donor and for all the amazing people who are on the registry to donate. From donating your stem cells to just donating blood at a blood drive, my life and countless others have been saved many times. So thank you thank you. :)
Lost my sister to AML cancer 10/22/2022 a great loss to the family she had a match for her bone marrow but they took to long for my sister to get it and she came out of remission and couldn't get it in time she develop pneumonia which helped her pass congratulations to the one's whom as a second chance of life .
I am sorry for your loss. My father passed away on October 22, 2022 as a result of complications of pneumonia. He had been battling MDS, a type of blood cancer for almost 9 years. He was not a candidate for bone marrow transplant due to his age.
I just signed up, my swab kit is on its way! My blood type is O+ and I donate blood is often as I can. I’m more than willing to help any brothers and sisters out there.
Just registered
My brother was diagnosed with leukemia last week...i hope and pray im a match.
love&light luv
So sorry. I hope you are but if you're not I hope I am! Blessings
Bexy Rae thank you!
Thank you 💖
May I have an update?
How is your brother?
Got matched this week. Looks like I'll be donating soon
@KimuTone It went well! I was fully recovered in about 2-3 weeks
Seth Gremmert how come it took so long to recover? I thought it would only take a day to maybe a few days to get over bruising/aching ?
This is beautiful!! My son, 7, donated his bone marrow to his baby sister who’s 9 months old on April 10th. My baby girl was diagnosed with high risk AML at 5 months old and is one step closer to this horrible journey being over!!! Thank you for spreading awareness on what it means being a bone marrow donor. My son is truly his sisters keeper ❤
I just registered to donate. Our friend passed away at 27 years olds and left 3 daughter behind, The pain of loosing someone so close and knowing there is something I can do has stock with me since and today I took that decision. I pray to god that I am a match to save someones life 🙏🏻❤️
I am a perfect match for my brother, and im currently in SLC, Utah @ Huntsman Cancer Institute. All Glory to God that im able to Donate.
I just got called Monday after being on the donor list for 17 years, that I am match for someone I am going to do it, and already have the 1st step scheduled next week to test my blood.
a little late but how did it go
@@tommydied I did the blood test said I was a perfect match, but didn't go through it because the patient was responding to other treatments and never heard back from be the match coordinator
Bone marrow donor here! My recipient is doing great!
My mom just did a transplant and is still in the hospital and is doing good it looks to be a possative out come I thought about sighting up myself the marrow came from and anonymous donor may god bless this person who donated to my mom we will probably never find out who this person was but have no idea I can’t thank this donor enough it’s amazing what can be done these days with the help of all the ppl working together
Henry Miller kkkkk
I've been registered for a few months now and I just got contacted.. I'm so excited and I hope I get to donate.
So how did it go?
What a great guy. What an amazing way to help.
I’m a donor, I got a call, then an email right after. I’m in the beginning stages of the blood screenings to save a 6 year old little boy. If I’m a match, I’ll tell them to take as much as they need. I’m not afraid of anything but spiders. (Literally. I work in a prison, nothing scares me anymore.) I donated blood for the first time when that country concert in Vegas got shot up and they told me my O+ blood saved a life. So I feel really great full that I’m healthy enough to help others.
How did it go?
My sister tried but we have cancer in family and her health wasn’t great! I got a donor! ! In fact 17th was my 3 year anniversary! Wish you all well
Man this is amazing!!! ❤
Wow this woman is so beautiful after cancer. I manifest that my mother will be just as beautiful after a match and donation. If it is I, this will be the beginning of great health and family bonding.
Saving a life from a brink of death is the gratest deed a human can do...god bless them the most
About to search on how to register ♥️
After being on the registry for 6 years I got an email saying that I matched with a woman with leukemia. I need ti go through the questionnaire and blood work first! I am so nervous but so ready and hope that I can get passed all this so I can help her!!! It feels like such a unique and amazing opportunity to help someone in need.
I’m about to mail in my swabs. Not gonna lie, I’m nervous but this did reassure me.
The chance to save someone’s life trumps the discomfort I may feel if I match.
I’m supposed to receive my letter from the Be a Match yesterday but for some reason i didn’t get it in the mail
I just found an old "Be The Match" flyer I picked up at a college fair over 5 years ago. At the time I was not ready to commit to a cheek swab, right there in between classes lol. But I'm glad I never threw away that flyer! Definitely going to send in my cheek swab ASAP
My cousin has recently diagnosed with leukemia. I might be a match. I watch this kind of videos to see how it works and what is involved.
The list of sideeffects are worth it, as it might safe his life.
Edwin van den Akker I hope your cousin gets better.
Edwin van den Akker same situation, my brother has lymphoma and I’m a very high match for donating stem cells, good luck to your family man!
I’m on the registry for Be the Match, DKMS and the Gift of Life
God bless you all....
Can i ask help regarding bone marrow transplant.
Robin is amazing!
I haven’t gotten a call yet and I’ve been on the registry for 3 years, but when that call comes in I will definitely go through with it. My fears (if I even have any) are nowhere near as close as the dying person who needs my stem cells.
Until then it’s donating blood 💪
Proud of you stranger 💪
It took 4 years amd I got a letter since my number had changed
Good job madam
Thanks a lot for uploading it
How often can you donate?
I signed up to be a donor and waiting for my kit !!
So I registered a few years ago but moved and changed number and email and don't remember the logins for my original account so I just registered again under a new account. I hope they remove my old account and old contact info since they won't be able to contact me through it.
I just got my be a match swab to day in the mail. I proclaim god going to heal somebody. Thrue me amen.
I have a random question, if I donate mine to someone and now they are fully in good health, can they donate theirs?
Great question i dont think they can.
sadly not.
I just got ask to do this can't wait to do it
I will be donating my marrow this May, just 2 years after being added to the list, I can't begin to say how honored I am to save my recipient!
How was it? xx
Unfortunately the day before my appointment, I received a call saying we would have to postpone, and then it was cancelled completely. Which breaks my heart, because that meant my match lost their battle. Hopefully I can help someone one day.
Meressa Darling oh my goodness, that’s awful. It’s amazing that you were prepared to donate, and one day I’m sure you will get that call again and save someone’s life!
I’m in the process of becoming a donor I need to get my kit first, but I’m so excited! 😆
To all the True Heroes who Donate Bone Marrow, Real Heros by any standard!!! You are true life savers!!!!! Thank You!!!!
Please register to donate. You’ll be saving someones life.
Great 👍
Registered 🙌
I just had my swabs received and it’s killing me that it takes up to 6-8 weeks for them to process and type and match. I really, really hope I can be someone’s match as quickly as possible because I have what someone needs- why not give it? I wish I had known about this sooner. I would have donated so, so much sooner.
I want to donate to this friend of mine who is sickle just to change his Genotype. I love him so much and wish to see him live long and healthy. I pray I’m his match 😊
My jiggly butt just signed up and became a donor took 10 minutes was very easy waiting on my Q-tip swab to come in the mail. I have an a negative blood type I don't know if that means anything but I know that they really want my blood at the blood center. If you have herpes simplex 2 could you still be a donor? Not sure my friend has it and wants to know if she should sign up even though she has herpes but it's dormant she doesn't get breakouts or anything but if it saves a life I think it shouldn't matter as long as it's not a death threatening disease
Ur "friend"
Being a negative blood type usually means you can donate to more people. An o- can give to everyone, but an o+ can only give to all positive blood types. But it also depends whether your blood type is a, b, or o.
I also want to donate , how to register ?
Hi GMA my name is rudra and I suffering from PNH clone last 2 year in India ... Indian dr. Say America available pnh clone medicine.. Can u help me GMA
Guys give give give there is no better feeling in life but giving
I just signed up to donate yesterday at Fort Drum.
I pray I am chosen. To be able to help someone is the greatest gift you can give someone.
crying.
how much blood do they collect? takes two days?
I just signed up yesterday for BeMyMatch .
Today they emailed me and said the cheek swab kit is being mailed .
I'm going through my collection process tomorrow for my dad. I'm ready to do it!
How'd it go? I scared to even send in the swab.
I been wanting to but dont know how to sign up
Cameron sikes make an account on be the match and they’ll walk you through it
wait... they don’t do the hip thing? it’s just donating blood?! i always thought they went into your hip with like an ice pick like thingy... omg this changes a lot wow
They are 2 possibilities. You can either do it as a blood donation (they basically filter your blood and pick only stem cells) or have the same cells taken from your hip bone. Nowadays roughly 90% of donations are done through blood filtering, but some donors either request or require the hip procedure.
Uhhhh ... I didn't realize you weren't given anesthesia for this. I just got my kit today and I'm gonna send it off tomorrow but this is kinda scaring me now. I read somewhere they DID put you under. Does donating make you feel lightheaded at all? That's what I'm scared of the most, is getting faint and passing out. Does anyone also know if you can still donate if you're anemic? I'm anemic, and I've read you still can, but now I'm doubting that bc of the differing info on what I've read about the donation process.
They don’t put u asleep anymore that was the old way
I think ur supposed to take some iron pills too
I got the call that I was a match a couple weeks ago. I'm currently in the process of getting my health checked out. it would be amazing to be able to donate! please if you have the opportunity, register! and follow through!
So how do I donate
Thank you for explaining the donation process. It's a lot less scary than I thought. Unfortunately my country won't accept donors over 30 :(
Going to register
Just signed up to be a donor last week watching videos about this made me go ahead and sign up
bless yoU
I just found out that heart transplant patients can't donate bone marrow, so unfortunately I can't donate. But hopefully more people decide to do this!
How did donate in 6 weeks ?
I’ve never heard about this until now
Is it done in sessions or 8 hours at a stretch ? I mean what if you have to go to the toilet in between the donation ?
Well, you get the option to do the toilet before the donation, most people including myself don’t drink/eat much before it so it never comes to that, it’s usually a 5hr process and can last 2 days (5hrs on each day)
@@kilIing thanks for the clarification , hopefully once pandemic is over and it's safe , would definitely consider bone marrow donation.
I just found out today my uncle needs one I’m 13 and I really wanna do this if he’s sister isn’t a match
I’m 15 and I donated stem cells to my brother a few days ago, your gonna have to be prepared cause it really is a long and hard process, I had to stay in hospital overnight and stuff, good luck on your donation though, the actual procedure is very easy
I want to do this as many times as I can.
This pain doesn't really intimidate me. I love embracing discomfort.
It makes you grow.
People might as well benefit from my ways of life.
Is there anything that disqualifies you other than the obvious std and cancer stuff?
I drink often but that's it. How long do I have to not drink before I qualify?
I'm was a bone marrow years ago where a 3 yrs old and I was in surgery marrow years ago and it wasn't to bad. He now adult.
That’s it? What happened to the drill to the leg and the excruciating pain as they extract bone marrow? Some one educate me please
Frank Herrera It's no longer as common to do a bone marrow transfer (which involves an injection under anesthesia on your pelvic bone). Instead, almost all donations these days are direct stem cell transplants as explained here. Risks/side effects are minimal with this current method, and you would be helping save a life!
Ava G thank you!
My daughter and I both are registered.
One of my coworkers sisters actually died because they couldn’t get a bone marrow transplant for her. It was sad to watch it . Even worse, she had very young children to top it off during her final hours. She was the white, 2% of patients that have bad reactions to the painkillers. She ended up completely out of her mind and attacked her own children hours before she died, she had to be transferred to a hospice facility. It was horrible so now her children last memories of her above her completely out of her mind and saying in pain, I feel very badly for them and her. . I also watched my mother die a horrendous death, so I really big people to think about that if they can prevent it in either anyway.
Just requested my Be the match kit to join. I've donated blood plenty of times before and this is uncharted territory for me.
Would the side effects go away after the donation? Are there any long term side effects to this?
Side effects do go away with in a week after donation
No long term side effects
I have been a donor 2 times and both times have gone smoothly 😊
@@Jessica-jb3zd Thank you so much for sharing your experience
what short term side effects did you experience?
Do this right now. Through Be the Match. Covid has changed the process a bit. I will say the side effects are discomforting but it's worth it to help someone.
What are the side effects? Is it just soreness and lethargy for a couple days?
I just got called because I matched a patient, still in the early days. But im passionate about of saving a life. Ps i signed up 9 years ago and completely forgot I signed up lol
Would being anemic with low vitamin D count disqualify my application ?
They have the medical guidelines on bethematch.org. As far as I can tell, the only form of anemia that would make you ineligible is aplastic anemia. And get on some vitamin D supplements lmaoo.
I had low iron and vitamin D and I still donated to my brother, aslong as your on supplements (prescribed) you’ll be fine
Sent in my swab kit just two days ago. Nothing on this blue planet will stop me from donating if I match someone and get the go ahead. If I get matched with someone, then to save their life is the reason I was put on this floating marble.
I want to donate bone marrow and blood (I have a very rare blood type) but I'm not old enough yet.
I registered in 2015 and just got matched. Anyway two shots a day is too much I’ll just go through anesthesia and have them collect through spine
Just another reason to go to single payer. If I knew I would be taken care of if something went wrong, I wouldn’t hesitate. But things happen...if I don’t have health insurance, I’m not taking that chance
Anyone know if you can donate if breastfeeding?
Missy Richert I've heard you can but you might need a more detailed evaluation
Yeah you can donate breast milk. I would call your local hospital or NICU to find out how to do this.
My son was in the NICU for 11 days after he was born. He was hooked up to all these machines made.it difficult to breastfeed and some of the nurses even discouraged it. He was given donated breast milk I was so thankful for that.
@@bexxyrae but isn't that difficult if she has her own kid? Also she was asking about donating bone marrow
Sent my swabs in, now I wait. Hopefully I can help someone out!