My Lupus Diagnosis Journey
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- Опубликовано: 5 апр 2018
- Hi Everyone!
I've been wanting to share this story about my Lupus diagnosis journey for a while. It's so easy to feel like you are alone when you have Lupus, or any autoimmune disease (or even just think you may have one) and that's just not true.
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I cried when my doctor said, "You're not crazy."
I wanted to go back to quite a few & say. I told ya!
I was diagnosed 40 years ago and still going strong!
Tickling on hands can be lupus?
U still taking medicine
Hello my name is kizza I am in ouganda Africa I am really like your video I think you're gonna help me bcz I have the same thing like that and it is lupus mine is really disturbing my lungs so much I have olso this lupus reash it is so so much fatigue is gonna keell me my dear help me
My name is kizza
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My thirty year old daughter was just diagnosed. She’s always a stage 5 kidney damage from the lupus. She’s lost Almaty all her long beautiful hair. They have her in 22 different meds already and that’s just from the kidney doctor. She goes to see her rheumatologist this week. She’s on 80mg prednisone and 100mg of the cancer chemo meds. I’m being worried sick for her. They are checking her liver next. They said she’s probably had it since and been undiagnosed she delivered her stillborn son almost 11 years ago. All I do is watch RUclips videos so I know all I can possibly know any now and the fit for her. Thank you for this video.
Sorry about the typos. I was multitasking. She’s already a stage 4+ with lupus related to her kidneys and the scar damage is a stage 5 already. She’s lost almost all her beautiful hair. Has anyone else had success in getting their hair back after they got regulated on their meds?
Hope shes better..
I don't know if i have lupus but is hard going to doctors and everyone telling you they don't know whats wrong with you. They cant tell me why I'm weak all the time, why i feel sick or throw up after eating, all the rashes. I'm at a loss i don't know what else to do . Very discouraged. Thank you for this video. Hopefully one day someone will be be able to tell me whats wrong.
sexitrinima...... I can advise you to go to a dermatologist and insist that a few areas of your rash be biopsied looking specifically for lupus.... that's how I got my first acknowledgement of my diagnosis. Hoping you find your answer. ... and praying it not be Lupus at the same time. BLESSINGS, Latina 💜
@@lacondesalatina thanks for that tip because there are times I think I have it just not on face yet or hopefully ever
Hi, have you had an ANA blood test yet? If not askfor (ANA 12Plus Profile, Do All RDL). 💓
Great video. Same feelings, glad you did this.
Thank you! My SLE has been life-threatening at times, but I've finally learned to ignore people who don't understand.
Thank you for this video, GORGEOUS lady!😍💞
Oh this just breaks my heart!! I can totally understand what you are going through. Thank you for making this video, we are not alone!!
be strong sweetheart, thank you for sharing your story
“Hey, we have a solution for your problem”. Relief. 😅Then shock. 😱 Yep.😟. “It’s going to get better.” 🙏
Thank you.
Sounds like you have been through a lot and have learned so much. You are so resilient in that you are reaching out to others like me.💗
Ive had the symptoms since I was 8..I am now 61.. grew up with chronic mouth sores ,sore throats and always in pain. My mother just told me to stop faking.. In 2000 they said I had fibromyalgia..had the gall bladder out and hurt so bad. Doctors told me I needed prayer. I have had all the symptoms,lost my friends,then it went away for 20 years..it was only hiding and waiting.. my pain has been horrible the past 3 years..I found out that the last year before my mother died, that her Lupus was dormant at 89 years old. After it destroyed her heart,kidneys and eyes,I found out that she was in a flare up when she carried me and I was in one when I carried my daughter,that about killed me. Last night the pain was over the top,but I refuse to see another doctor..now I suck it up..I just take otc..I now worry about my daughter 😞. Your journey is encouraging..God bless.
I was just diagnosed yesterday. I don't even know where to start.
Your journey sounds very very similar to mine but I'm just starting the diagnosis process... they have diagnosed me with so much since I was 19 I'm now 30 and this would make so much sense and is so bittersweet. And I got the lupus rash comment on my hands as well and my reaction to it was the same as you. Thank you so much for sharing what your going through! This is so new to me it makes me realize I'm not alone!
I just found this channel. I was diagnosed with Lupus on August 6th. It has been literal hell. I had never shown any symptoms other then joint pain when over worked. Well the rheumy decides to put me on plaquenil.. after 9 days I began having symptoms so was told to stop it. Within days I began having a lupus flare.. started with a sore throat and ear pain ,low grade fever.. then turned into nausea blood feeling hot, EXTREME FATIGUE .. to where I felt like passing out. My rheumy was not answering my calls at this point. After three visits to the ER my primary put me on 40mg of prednisone. The flare itself began to subside BUT I am currently having exaggerated RAPID HEART beat & Shortness of breath. The rheumy moved me down from 40 mg to 10 mg of prednisone which I’m thinking that will cause a reaction as well. Was ordered to do a CT scan of my heart but because my heart beats too quickly they were unable to get a good CT. I will have to go again tomorrow. I can’t sleep a long time without waking up and having my blood feel hot and I begin to shake. It’s been 10 days since it started, 5 trips to the ER and I am exactly where I started. Having to take Naproxen with only the 10mg of prednisone to try n get it controlled. My toes and fingers are always cold . I feel like I’m trying to get comfort and my Drs aren’t caring about me as a patient. I also have anxiety and the flare has caused the anxiety to be at an extreme of panic .
Oh man. I'm so sorry you are going through this. I will be praying for you! Big hugs! Hang in there! The flare up will pass! Have hope!
Leah Drey yes!! Well my first rheumy put me on plaquenil without having sever symptoms or without having any flares. She’s the one that lowered it from 40 to 10. My primary put me on 40 cause I had a really really bad first time flare and the rheumy wouldn’t answer my calls. Then when I saw her she went from 40 to 10 over night. N yes on 40 my heart and shortness of breath was HORRIBLE. I couldn’t even sit up without my heart beating fast. I didn’t like how the Dr worked. I am currently waiting to see my new Dr on October 3rd.
Right now I’m just on 10 mg of prednisone. Still. But I’m still on n off with the flare. Although it isn’t as severe as in the beginning I still feel fetigued, or my finger tips or bottom of my feet or back with burn. I feel like the symptoms jump around. One day I can be ok but real sleepy n the next I’ll feel flu ish like but not sleepy.
Don't stop the hydroxy. Sounds as if you were heading into a flare. Coincidence
Hey wow thank you so much for your words. Ive been going through a flare up and Im missing so much work, and I love my job! Boss thinks Im crazy..... Anyways...its really hard to find anything that actually cheers me up. And then I found your video. Please keep making videos, you ARE GREAT!! AND SO ENCOURAGING. ox-Ani
thank you for these videos,
Thanks for sharing your story.
Thank you soo much for sharing! When are you going to make more videos? I hope you are doing good!
I have SLE lupus and it isn’t a burden. Y’all who feel lonely, don’t, we may not have the exact same lupus but we can all relate. I’m 14 almost 15 (ey quince coming). I was diagnosed Last year in November so it’s only been three months and yea the blood work, tests, doctor appointments are annoying and the pain,and flares are tough, but you are stronger. It’s your positive attitude and will to live that will get you far. For me it was hard but it’s God’s gift. God can not give pain you can’t handle. And if you feel in a dark place, there is always someone. :3 :3
Thank you so much for this ...this makes me stronger
Wow so courageous
Polished Piggy: You are the operational definition of a "good human being" .... thanks!!
I can relate to you sooo much !
Thank you for your story. I love to know about your medication, supplement and diet. Really appreciate this!!!
Me too. Thanks
Before i write an essay about lupus i did not know anything about it. But now i know a lot and understand your condition. Fatigue, anemia, joints and muscle pain. May God bless you
My daughter and I have Lupus, it is so hard to see my daughter,go thru Drs look at her like she is crazy, I don't care about myself just her to be happy, lupus has effected her kidneys, thyroid, heart, gastrointestinal, pain unbearable at times, several operations, we both are on Plaquenil and Methotrexate, Pain meds, Etc., God has given us a great Rheumatologist and PCP, thank u for this video, feels good to know you are not alone, I don't mean I want you sick, just someone that understands, may God continue to strengthen you. God bless
Me to my skin my kidney
Thank you for sharing. Most people think I'm full of it, but ANA levels, butterfly rash, and chronic fatigue don't lie. Don't get me started on the mouth and nose sores, liver damage, and the feeling of being "sunburned" all the time. And Hashimodos. 😑
I think I’m having liver involvement too. Waiting for my initial rheumatologist appointment in October for confirmation on SLE. I’ve had several blood workups done and everytime I’m ANA positive, my bilirubin and albumin is high. Are your liver enzymes also high?
OMG I just found out I have lupus. . .and feel alone
But you're not. Millions of people have it.
Me too😭lupus anticuagulant Im scare 😭
You are not alone.. just hug on there.. they may not understand.. me either. Most of my friends refuse to call me. Cause I couldn't campany of them. But, i make self busy.. just one day at the time..
I know it feels that way. And you don't "look sick." But we're here. We don't want pity. Just to be understood. We aren't lazy. I push workouts and work as a correction officer 40 - 60 hours a week. Sometimes it takes an entire day of sleep to recover. My vomiting, coworkers claimed I was "bulimic." And just wanted attention. 🙄
I have been struggling with lupus-like symptoms for 20 years now (since I’m 13). They never found anything and I gave up on medicine. But recent events (permanent damage to the eye) have made me take up the search again, since also medicin has advanced. I had my first appointment with a reumatologist last week and am so disheartened. I fear that they will again not be able to diagnose me, and I fear the diagnosis. It’s been 20 years of picking myself up and pushing through, hoping for the best, hoping everything on the inside still works kinda fine. And I am tired and feel really lonely. As if none of these doctors are listening. Sending my love to all of you out there feeling alone.
Thanks for taking the time to share your story! I have lupus for 25 years now. Mine kicked in after the birth after my 2nd child was born. My life has still been full. I work full time and just kind of go with it. I subscribed💜
Rest when you need to is my best advice!
hi nice to hear it .r u taking any medicine?
I can relate to this so much. My doctors haven’t given me a diagnosis yet but I feel like every day I get a new symptom. It started with a pain near my elbows... they felt like they were burning and my shoulders felt like they were coming unhinged. It happened after a big fight with my mom so the doctor said I had tense muscles due to anxiety. Then I felt sick for a while and my GP told me my sugars were high and that there was protein in my urine, so I went on treatment for diabetes and thought I was going to get better. However, even after getting my sugars under control I was feeling so sick. Muscle pain everywhere, then I got chest pain that wouldn’t go away and that would radiate into my back. I started getting bad headaches every single day, and then I got GI problems and just pain all over my abdomen and acid reflux. All the chest x rays, CBC, and liver function tests have come out normal but I know there’s something wrong. I feel so sick and throughout all of this I feel like no one believes me and it’s the most isolating experience ever
Sheeda Syed Hey girl! Did you ever receive a diagnosis? I’ve gotten like 4 urinalysis done & 1 blood test so far.. only abnormality: slightly over average protein count in urine. These past two weeks I go to bed and wake up with lower back pain. Right now its concentrated in my chest area and yesterday it was my abdomen. My grandma has lupus so I know its in the genes..
Robin Rose i was tested for lupus and it came back negative :( still don’t know what’s wrong and starting to have really bad digestive issues. Hope they figure out what’s going on with you though!!
Sheeda Syed Well that’s good its not lupus! I know its scary not to know what’s going on & you almost want a diagnosis just so you can have some peace and have more of a handle on what you’re battling.. keep self-advocating, take care of yourself & eat right! That’s all you can do until the pain goes away or you receive a diagnosis. ♥️
I got ill with lupus when I was 12 years old and I can relate to the no one believing you’re actually ill thing as well. Lost most of my friends because of it as well.
So sorry for all you have been through. I’ve been similar with chronic pain issues and no support from family and friends. They don’t understand, and unless someone goes through it they do not know.
I've been spending lots of money weekly on buying the popular Supplements just to suppress my Lupus outbreaks as prescribed to me in the hospital. Anyone who has LUPUS can attest this, with all the pains and embarrassing symptoms. Unfortunately, I have found out that those hospital recommended products are frequently not effective at taking care of the problem but rather make you spend all your money. Until I met DR.AVE UDUOGIE, the Herbalist. His herbal remedy will get to the root of the cause and cure you permanently rather than suppress outbreaks with Medical pills which Causes serious damage to the body. And you will be happier, healthier, and outbreak free. He also has herbal remedies that can cure HIV, HPV, hepatitis and so on. Contact DR.AVE UDUOGIE on his email Curingstdswithherbs@gmail.com or WhatsApp/Call +1(978)4896010. You can contact him and get a permanent cure to your genital and oral Herpes,HIV Aids, Lungs cancer,HPV,Lupus,Cold sore, Blood Cancer,Diabetics,Herpes virus E.T.C.
Hey, are you able to balance work and lupus? That is currently my biggest problem. Thank you x
Sorry for you Sweety . You are Adorable. take care .
Hi I have Lupus my daughter is 12 and she is going through the same exactly wow with the teachers at school
We all have good and bad days any ways. Yes I understand thanks. Yes I have Lupus too. 🌹🌹
yep after my gallbladder surgery everything went downhill....I was 25(now 30) n no the feeling
Thank you for the video! So, what type of medications are you on and the side effects?
I have lupus. Just recently diagnosed. Doctors have not understood or even believed me.
I've been spending lots of money weekly on buying the popular Supplements just to suppress my Lupus outbreaks as prescribed to me in the hospital. Anyone who has LUPUS can attest this, with all the pains and embarrassing symptoms. Unfortunately, I have found out that those hospital recommended products are frequently not effective at taking care of the problem but rather make you spend all your money. Until I met DR.AVE UDUOGIE, the Herbalist. His herbal remedy will get to the root of the cause and cure you permanently rather than suppress outbreaks with Medical pills which Causes serious damage to the body. And you will be happier, healthier, and outbreak free. He also has herbal remedies that can cure HIV, HPV, hepatitis and so on. Contact DR.AVE UDUOGIE on his email Curingstdswithherbs@gmail.com or WhatsApp/Call +1(978)4896010. You can contact him and get a permanent cure to your genital and oral Herpes,HIV Aids, Lungs cancer,HPV,Lupus,Cold sore, Blood Cancer,Diabetics,Herpes virus E.T.C.
I was diagnosed 3 yrs ago .
You should check out dr. Brooke Goldner. I'm following her diet and have an appointment with her next week. She had lupus and was put on chemo for 2 years. She's now in remission after changing her diet. She's amazing.
Could you please do a video on the vitamins you take?
I’ve been having so many symptoms past two years. It started out as a rash than I got night sweats and muscle pain. The pain was so bad I had to build up the courage to move. I have so many swollen lymph nodes. At first they thought I had a infection and they just passed my rash off as eczema. After two years dealing with this pain I finally decided to push my doctors into doing something. At first they thought I had lymphoma because my symptoms was just like that so I went through 3 cts, mri, fine needle biopsy, pet scan and surgery biopsy. My pet scan lit up every single lymph node. I have about 14 enlarged lymph node. They took out 3 recently. The hematologist did a autoimmune disease blood work. 3 markers came back positive for lupus, inflammatory came back positive and antibodies. My biopsy showed that my immune system is attacking itself. My first appointment with the autoimmune doctor is this Friday. I also have sweets disease on my legs and my rash appears when I’m in the sunlight.
I have the same story but still didnt diynos yat am very sik I hav ana positive but say I have no lupus
Thanks for sharing. Is this your only Lupus video?
I'm getting referred to rheumatologist, I had positive ANA test with homogeneous pattern and my IGH was really high.
I’m panicking! My ANA is high, I have a lot pain and got a doctors appointment for 10/6 only!!
Did you take naproxen for pain???
Herpes can be cured because it truly has a complete cure. I’m a living witness of it because I recently got rid of my HSV-2 within just 11 days. And as i speak right now!!! I’m perfectly cured from the herpes disease. There is a cure and it's called herbalH medicine. I'm so glad to have come in contact with Herbal doctor Idumebolo who is also known as the 11 days healer of herpes virus. Doctor Idumebolo got me cured completely from my long term genital herpes (HSV-2) with the help of his powerful and effective herbal medication which I took for only 11 days, and I got a good result being cured from the herpes disease. If you are out there diagnosed or suffering from the herpes virus you can reach out to doctor Iduembolo for help in getting rid of your herpes virus forever just the way he helped me got rid of mine; His email address is dr.idumeboloherbalremedyhome@gmail.com or for his quick response to you, you can reach him on WhatsApp with +2348084774197. The medical industry/Big Pharmacies make huge profits off treatments and modern drugs/medicines that can't even get the herpes virus cured. That's why they don't want you to know the cure. Aaron Traywick had a cure for HIV and herpes and he turned up dead like a week later, even Nipsey Hussell was murdered along with Lisa Left Eye Lopez by the US Government simply because these people were doing a research on how Dr Sebi makes herb for the cure to herpes virus and HIV. The Doctor Sebi in question was also killed by the US Government just because he was having the cure to herpes and HIV. Don't you find that fishy?
??
You are funny! Great outlook!
I am lupas pesant 1 years.thanks for video
Thanks dear. I am going in for blood work on Mon. I have a rash that won't go away. Prone to pleurisy. Cannot stand the sunlight. Very weak. Oh well, will find out. Subbed. oh and the Drs
gave me prednisone that hurt me...so watch out for that..........................I had one year...yes a yr! of extreme stress. And now I am very ill...now I know it will take time, but my mom went to a nursing home after I nursed her here at home and my son went through the most horrible divorce..so yes, I am really down there, but am taking: 3000 mg of Vitamin C daily and probiotics as well.
They take 7 tubes of blood from me every 2-3 months i feel you
I have had Myasthenia Gravis for almost 9 years but just recently found out that I also have Lupus as well. I am currently in my early 60's and probably had Lupus my whole life and didn't even realize it. I was a national class cross country and track athlete when I was in my 20's but always had way more difficulty with workouts and recovering from fatigue than my colleagues. Are you going to post any more videos? I am curious to see how you are doing and what kind of lifestyle changes you have had to make to deal with the heat, sun exposure, and flareups. I am currently on medication. It seems to help but I still have really bad days more often then not. I have a lot of joint pain as well as breathing issues. I work as a system engineer and programmer. It is really tough to meet deadlines when the body is always tired or I am mentally fatigued. It would be nice if you could provide some advise. I'm probably old enough to be your grandfather but I don't have too many people that I can talk to that understand what I am going through so if you can respond, it would really be helpful. Aloha!
I've been spending lots of money weekly on buying the popular Supplements just to suppress my Lupus outbreaks as prescribed to me in the hospital. Anyone who has LUPUS can attest this, with all the pains and embarrassing symptoms. Unfortunately, I have found out that those hospital recommended products are frequently not effective at taking care of the problem but rather make you spend all your money. Until I met DR.AVE UDUOGIE, the Herbalist. His herbal remedy will get to the root of the cause and cure you permanently rather than suppress outbreaks with Medical pills which Causes serious damage to the body. And you will be happier, healthier, and outbreak free. He also has herbal remedies that can cure HIV, HPV, hepatitis and so on. Contact DR.AVE UDUOGIE on his email Curingstdswithherbs@gmail.com or WhatsApp/Call +1(978)4896010. You can contact him and get a permanent cure to your genital and oral Herpes,HIV Aids, Lungs cancer,HPV,Lupus,Cold sore, Blood Cancer,Diabetics,Herpes virus E.T.C.
@@belvinsmith1891 Thank you so much for responding. I certainly appreciate your advice and will get in touch with Dr. Uduogie and see what herbal treatments are available. 😊👍
@@mindright9771 you are welcome
In 2014 after having my baby i went to the beach when he was like 4 months old and i was in the sun.. i got a rash on my face, chest arms. I felt so sick like the sun was poisoning me.. i thought i just became allergic after having a baby.. from then on it has just got worse i get so tired my joints hurt so bad and i litteraly just a few days ago had what i figure to be a kidney flair. Hurt so bad. My friend with lupus told me to go to the doctor asap. Hope they can figure it out.
Please keep making videos. We are out here. It may take a while for viewers to find you, but eventually they will. Hope you are doing well. I am in the midst of a flare and your encouragement is appreciated!
Great.
The great pretender can also be types of Porphyria that go undiagnosed, urine is some can darken the sample in the Sun but not all will change colors, it also has to be taken in flares or acute times like abdominal pains etc. It does not have to become purple what porphyria is in
Greek. Some are Allergic to the Sun & UV Lights & some types need an increase in certain vitamins/minerals, some types do not all need high carb intakes & Glucose/sucrose...All types have genetic tests, Invitae does the full panel one...Also, urine, blood, stool tests are carried out to
protect the samples from light in black bags or aluminum foils...Sun types need clothing to cover up x x hugs x x Aidan x x
My Lupus is very active now. 😭 Probably the most active it has been since my initial explosion of symptoms two years a go. I’m trying to repeatedly tell myself that it won’t always be this way and that it will settle down again!! It doesn’t feel that way though! Fellow Lupie’s in passing: what medications are you taking and do they help you? I take: Hydroxychloroquine and Mycophenolate (Cellcept) and I’m currently also taking Predisolone (steroids) and painkillers for this flare. ❤️
Yes same here but it's been two years i haven't taken any medication and iam started my full time job God heals me all my reports turn negative now till now my lupus is not flare up everyone please give your full trust in God 🙏
Mam plz suggest me also how to maintain accurately....
I have autoimmune it gears Lucas looks like Lucas but all my tests come back nebula I have a rash on face and Flare all the time and my skin breaks out in patches that are very red if Iam in sun . What do you take for your Lupus? That works well ? I’ve try? Methotrexate Areva and numerous natural remedies I’m getting ready to start Enbrel.please let me know ?
Nobody understands me when I explain there I am in a lot pain. Some doctors have asked me if I have lupus, but until now nobody have done anything. In this days I am feeling so bad and the only thing I want to do is sleep all the time. My joints hurts a lot, I have had a rash in the past and the doctor didn’t discovered what was, all my friends disappear because they think I just pretend been sick.
I am going through hives right now and the rash on my face showed up yesterday for 1st time. How do you get through a day positively
Just found your channel I have symptoms of Lupus my haematologist thinks I may have it but because I am on anticoagulants they can’t get true result.The symptoms I get is chest pain chronic fatigue joint pain migraines I can’t tolerate sun,fevers,infections and stomach upsets.However I don’t get a butterfly rash
Vanessa Hart Did you get a diagnosis? It does sound like lupus. I have it and don't get the butterfly rash either. I do get crazy rashes on my hands though.
Just wanted to let you know to be extra careful about infections with lupus. They can turn into sepsis more quickly with us--I found out the hard way. Turns out it's a leading cause of death in those with lupus. Look up symptoms and always bring it up with the doctor if you believe you have an infection, just so they can check.
Good luck on your journey!
I also get Raynaud’s phenomenon on feet and hands where they go ghostly white in patches and freeze literally , then blue and red as the temp comes back
please can you tell me which medications worked well for you ? thanks !
Im 14 and just found out i have lupus in july right before my birthday so i was 13 when i was diagnosed i have lupus,eczema,and epilepsy.. I feel so alone nobody feels my pain and they are like just take Tylenol and im like that doesnt work so at school im not aloud to wear hoodies so the sun peeps through the windows and ill just break out
Hi Randi. You need to let your teachers know about yourcondition. Do research online on how,to heal your lupus naturally or at least make it better. The problem starts in the gut. Check online how to heal the gut. This is what I do: Nutrition, juicing vegetables, eating as close to nature as possible, no processed foods, vitamins d, k, , minerals, iron, omega 3. Quercetin and glutamine to heal the gut, soil based probiotics. Raw goats milk kefir, sauerkraut.... research is key
I am not an Attorney but I am confident that you will find, by a Google Search of ADA (Americans with Disabilities Act) a guide that lists all protected persons and activities. The Guide also lists the names and phone numbers of Federal Agencies waiting to help you.
An armchair overview is that any person who has a condition that limits a major life activity is protected under the Act. It is difficult to imagine how not being able to be exposed to the Sun would NOT be considered as limiting a major life activity. Both Public and Private Schools are considered “Public Accommodations and are covered under the ADA. Therefore they most make “Reasonable Accommodations” or possibly face Federal Fine(s).
I wish you all the best.
Waiting on results now and I'm pretty sure this is it though this is not at all what I was expecting.
Herpes can be cured because it truly has a complete cure. I’m a living witness of it because I recently got rid of my HSV-2 within just 11 days. And as i speak right now! I’m perfectly cured from the herpes disease. There is a cure and it's called herbalH medicine. I'm so glad to have come in contact with Herbal doctor Idumebolo who is also known as the 11 days healer of herpes virus. Doctor Idumebolo got me cured completely from my long term genital herpes (HSV-2) with the help of his powerful and effective herbal medication which I took for only 11 days, and I got a good result being cured from the herpes disease. If you are out there diagnosed or suffering from the herpes virus you can reach out to doctor Iduembolo for help in getting rid of your herpes virus forever just the way he helped me got rid of mine; His email address is dr.idumeboloherbalremedyhome@gmail.com or for his quick response to you, you can reach him on WhatsApp with +2348084774197. The medical industry/Big Pharmacies make huge profits off treatments and modern drugs/medicines that can't even get the herpes virus cured. That's why they don't want you to know the cure. Aaron Traywick had a cure for HIV and herpes and he turned up dead like a week later, even Nipsey Hussell was murdered along with Lisa Left Eye Lopez by the US Government simply because these people were doing a research on how Dr Sebi makes herb for the cure to herpes virus and HIV. The Doctor Sebi in question was also killed by the US Government just because he was having the cure to herpes and HIV. Don't you find that fishy?
??
I've been spending lots of money weekly on buying the popular Supplements just to suppress my Lupus outbreaks as prescribed to me in the hospital. Anyone who has LUPUS can attest this, with all the pains and embarrassing symptoms. Unfortunately, I have found out that those hospital recommended products are frequently not effective at taking care of the problem but rather make you spend all your money. Until I met DR.AVE UDUOGIE, the Herbalist. His herbal remedy will get to the root of the cause and cure you permanently rather than suppress outbreaks with Medical pills which Causes serious damage to the body. And you will be happier, healthier, and outbreak free. He also has herbal remedies that can cure HIV, HPV, hepatitis and so on. Contact DR.AVE UDUOGIE on his email Curingstdswithherbs@gmail.com or WhatsApp/Call +1(978)4896010. You can contact him and get a permanent cure to your genital and oral Herpes,HIV Aids, Lungs cancer,HPV,Lupus,Cold sore, Blood Cancer,Diabetics,Herpes virus E.T.C.
Would love to know what medications, supplements that have helped you. Also did you get an official diagnosis of SLE lupus or was it based off of hitting certain # of symptoms? I have had lupus for about 5 years.
Hydroxychloraqine and pain management helped me function again.
Did you ever get ANA tests? I have all the symptoms, no butterfly rash though, and no ANA.
Omfg I'm stressing out so bad. I just got my blood done today to see if I have lupus. I have to wait 7-10 days for results and I have anxiety 😭😭😭😭
I had to drop out of school because of my lupus but at the time when I dropped out I didnt know I had lupus.
Same they put me in homebound and i hated it i feel like im not normal i wanna be like everyone else and i feel alone..
@@randithesavage4662
I know how you feel. Sadly everyone who has Lupus is different. Even though I have my family, I feel extremely alone. I watch this video and wonder how she did her hair, make-up, nails Etc. Because just taking a shower takes everything out of me. I almost wonder if she has borderline lupus? I feel so bad for you. Keep your head up and keep fighting. I always tell myself the same thing you do.
"I wish I was normal" or "If I was normal"
We will find a way. 💗
What kind brand vitamins do you take ?
Are you on predisalone?did you get like a moon face n did you put on wheight
hey! let me know if you want to be part of a lupus awareness vid i'm putting together :)
Angela Arcinas I’m a lupus patient that had strokes as well ! I’d love to !
I have lupus too. I also have Ehlers Danlos Syndrome, Chronic Lyme Disease, and a few other things. I have a pretty interesting and unique story. I'd be in your video if you want. I am wanting to start a RUclips channel but I'm still learning and practicing.
What did you rash look like? This is my 3rd rash this year and on steroids to get rid of it .
Omg...i had a lupus too.. 2017 when i was diagnose..but, i can't accept when doc told me..but the symptoms is coming one by one.. it seems you had a flu.. very tired and all your joints getting painful.. then you asking your self where all of this coming from.. it's very difficult rise up in the bed.. 2018- 2019 i started seeking for real professional help from the doc.. due of my i had a carpal tunnel syndrome, arthritis.. then 3 different hospital i went to ... until all the test i got .. they told me ..i was positive to Lupus.. so, hard cause other people don't understsnd our situation. Telling you that looks fine! But dont knew that you make struggle just to get up into your bed. 😓😓
I've been spending lots of money weekly on buying the popular Supplements just to suppress my Lupus outbreaks as prescribed to me in the hospital. Anyone who has LUPUS can attest this, with all the pains and embarrassing symptoms. Unfortunately, I have found out that those hospital recommended products are frequently not effective at taking care of the problem but rather make you spend all your money. Until I met DR.AVE UDUOGIE, the Herbalist. His herbal remedy will get to the root of the cause and cure you permanently rather than suppress outbreaks with Medical pills which Causes serious damage to the body. And you will be happier, healthier, and outbreak free. He also has herbal remedies that can cure HIV, HPV, hepatitis and so on. Contact DR.AVE UDUOGIE on his email Curingstdswithherbs@gmail.com or WhatsApp/Call +1(978)4896010. You can contact him and get a permanent cure to your genital and oral Herpes,HIV Aids, Lungs cancer,HPV,Lupus,Cold sore, Blood Cancer,Diabetics,Herpes virus E.T.C.
I'm struggling with Lupus myself and I was recently diagnosed and I struggle so much everyday and I have no idea how to deal with it.
Hi, lupus starts in the gut. Research on the net how to heal leaky gut. Fix the gut and hopefully you should be fine. That's my personal opinion. Stapples I use are sauerkraut, goats milk kefir, one onion a,day for quercetin,l glutamine, multivitamin an d multimineral. You need magnesium oil (chloride), magnesium malate orally, serrapeptase for inflamation 250 k strength (5 tablets daily on empty stomach). Do your reseach. Healing your gut csn be a full time job but once its done, allergies go, pain goes, inflamation goes.... medication is no needed, supplementatoon drcreases....
Flora Ringler well also the autonomics in brain which is often why gut slows down. So repairing brain important for lasting recovery . Healing gut is extremely difficult for many people so it’s not like flipping a switch. Some may only heal with fecal transplants which they won’t give u for autoimmunity yet.
@@floraringler nonsense have 4 autoimmune diseases, one is lupus, no gut problems, everybody is different
@@floraringler no gneneralising
I also have lupus its really hard to but i tackle to it through diet n pranayam, white tea which boost immunity system also we have to avoid so many harmful diet and needed rest ,it feel the same how you feel mam
I have this to but no diynos
What has worked for you? Thanks!
I’m sorry you were treated that way.
How did you get diagnosed blood test-wise?
What gallbladder tests did you get done
I have the same symptoms and just got my gallbladder removed . I’m waiting to see rheumo but that was like a reassurance that I’m not craY
I am lost. Just found out
,SOS! No clue as what to do on my end
Hope you are well, Keep up with your doctors appointments and always get copies of tests results, so you have your history with you always...when seeing new doctors oxo
Hi, lupus starts in the gut. Research on the net how to heal leaky gut. Fix the gut and hopefully you should be fine. That's my personal opinion. Stapples I use are sauerkraut, goats milk kefir, one onion a,day for quercetin,l glutamine, multivitamin an d multimineral. You need magnesium oil (chloride), magnesium malate orally, serrapeptase for inflamation 250 k strength (5 tablets daily on empty stomach). Do your reseach. Healing your gut csn be a full time job but once its done, allergies go, pain goes, inflamation goes.... medication is no needed, supplementatoon drcreases....
I have SLE please tell me about yr medc and supplements.My muscles my joints hurt...love from Hungary.
I've been spending lots of money weekly on buying the popular Supplements just to suppress my Lupus outbreaks as prescribed to me in the hospital. Anyone who has LUPUS can attest this, with all the pains and embarrassing symptoms. Unfortunately, I have found out that those hospital recommended products are frequently not effective at taking care of the problem but rather make you spend all your money. Until I met DR.AVE UDUOGIE, the Herbalist. His herbal remedy will get to the root of the cause and cure you permanently rather than suppress outbreaks with Medical pills which Causes serious damage to the body. And you will be happier, healthier, and outbreak free. He also has herbal remedies that can cure HIV, HPV, hepatitis and so on. Contact DR.AVE UDUOGIE on his email Curingstdswithherbs@gmail.com or WhatsApp/Call +1(978)4896010. You can contact him and get a permanent cure to your genital and oral Herpes,HIV Aids, Lungs cancer,HPV,Lupus,Cold sore, Blood Cancer,Diabetics,Herpes virus E.T.C.
@@belvinsmith1891 Thank you but I live in Europe so its difficult to contact him.:(
@@juditkadar3975 NO, just email him ,his definitely gonna reply back.
What is meditation
I hate typing or txting lol I wish there was a video txt option 😊 I think I might have lupus. I was asked a couple years ago to get tested for it out of nowhere from my doctor but I didn’t have the money to do all that at the time. Since then I have had nothing but problems and thought I was crazy or people think I’m lying or full of it. There are so many times I can’t get out of bed or do anything. Just feels like it takes everything out of me. Last year I started to get the White almost “dead” feeling in ties and now my fingers have started and it happens on and off with cold weather. I do know I was told I had early arthritis of my hips. I had a BAD pancreatitis attack about 1 1/2 years ago. A couple of months ago I got really dizzy when I stood up and everything went black and quiet and the next thing I knew I was on the floor cuts and bruises from my fire place and my youngest daughter shaking me crying wondering what was wrong and what happened. It happened right in front of her. I don’t remember anything it was like a foggy dream. I have also had hardcore fatigue and bouts of nausea and vomiting for no reason for what felt like a whole month of laying on the couch not eating and feeling horrible. I started recently noticing the rash across my nose and cheeks. When I have to go out and run errands I come home completely depleted and want to sleep for a whole day! I know there is more I’m not thinking about. Oh wait.. lol the brain fog and forgetfulness is something else that drives me crazy because I have a family to take care of and it’s hard to remember certain things. I know there is more but I can’t type anymore but I was wondering if any of this sound familiar to you? Or what you think? Glad you found out and can help yourself to somewhat feel okay. 😊 sending my vibes to you!
Thanks for the story. I have seen doctors that acknowledge there is something wrong with me but they have not been able to make a diagnosis. For almost two years I have been suffering from severe headaches and what appear to be allergic reactions and severe sensitivity to lights. My hands and face turn bright red and become extremely heated, almost burning. I was tested for a variety of illnesses that cause flushing but nothing conclusive. Recently I have developed the butterfly flush pattern on mt face. The pattern comes and goes but is distinctly butterfly shaped. I still need to be diagnosed but I am convinced I have Lupus. I can tolerate all my symptoms except the severe headaches. The headaches have been almost constant for almost two years. Can the headaches be treated?
Personally sleep is all that works for me . No painkillers work for me
Could you tell us about your tests? Did it show positive for Lupus? Or your diagnosis was only through the signs you were showing up?
I hope you are doing well! Take care!
Yes, I am curious about your tests. I have flare ups that consist of the facial rash, crushing fatigue, aching muscles, ankle and wrist swelling and a constant desire to sleep ..at the height of my flare ups I often feel like I should be in a wheel chair. And I've had RCC on the right kidney and two stents put in following a cardiac event! Yet my ANA is negative and my RA texts are negative, which leaves my GP being dismissive. In retrospect I've been dealing with this for years! Not sure what to do.
Iike your video are you still making videos. Are you ok?
Please help, my ex girlfriend has lupus and even reached of having her stomach bigger than a 9-months pregnant woman. Is it still a lupus symptoms? How serious the situation is? And what would be the best thing we gotta do? PLEASE HELP :'( I want her to live :'(
Is she on steroids/prednisone for lupus? Extreme weight gain in the face, back and stomach are major side effects of this medication.
Hi what meds do you take for lupus.
I've been spending lots of money weekly on buying the popular Supplements just to suppress my Lupus outbreaks as prescribed to me in the hospital. Anyone who has LUPUS can attest this, with all the pains and embarrassing symptoms. Unfortunately, I have found out that those hospital recommended products are frequently not effective at taking care of the problem but rather make you spend all your money. Until I met DR.AVE UDUOGIE, the Herbalist. His herbal remedy will get to the root of the cause and cure you permanently rather than suppress outbreaks with Medical pills which Causes serious damage to the body. And you will be happier, healthier, and outbreak free. He also has herbal remedies that can cure HIV, HPV, hepatitis and so on. Contact DR.AVE UDUOGIE on his email Curingstdswithherbs@gmail.com or WhatsApp/Call +1(978)4896010. You can contact him and get a permanent cure to your genital and oral Herpes,HIV Aids, Lungs cancer,HPV,Lupus,Cold sore, Blood Cancer,Diabetics,Herpes virus E.T.C.
you are drop dead gorgeous
New sub
Can I do color in my hair if I have lupus
I dont
You are so beautiful
lol yep I have undiagnosed lupus
Did you get sore's on your head ?
Tiffany Lopez I do is that a sign of lupus?
No cure for lupus. Do u have uveitis too?
I've been spending lots of money weekly on buying the popular Supplements just to suppress my Lupus outbreaks as prescribed to me in the hospital. Anyone who has LUPUS can attest this, with all the pains and embarrassing symptoms. Unfortunately, I have found out that those hospital recommended products are frequently not effective at taking care of the problem but rather make you spend all your money. Until I met DR.AVE UDUOGIE, the Herbalist. His herbal remedy will get to the root of the cause and cure you permanently rather than suppress outbreaks with Medical pills which Causes serious damage to the body. And you will be happier, healthier, and outbreak free. He also has herbal remedies that can cure HIV, HPV, hepatitis and so on. Contact DR.AVE UDUOGIE on his email Curingstdswithherbs@gmail.com or WhatsApp/Call +1(978)4896010. You can contact him and get a permanent cure to your genital and oral Herpes,HIV Aids, Lungs cancer,HPV,Lupus,Cold sore, Blood Cancer,Diabetics,Herpes virus E.T.C.
Can you message me about meds/supplements that have worked for you please?
It's never lupus
I've been spending lots of money weekly on buying the popular Supplements just to suppress my Lupus outbreaks as prescribed to me in the hospital. Anyone who has LUPUS can attest this, with all the pains and embarrassing symptoms. Unfortunately, I have found out that those hospital recommended products are frequently not effective at taking care of the problem but rather make you spend all your money. Until I met DR.AVE UDUOGIE, the Herbalist. His herbal remedy will get to the root of the cause and cure you permanently rather than suppress outbreaks with Medical pills which Causes serious damage to the body. And you will be happier, healthier, and outbreak free. He also has herbal remedies that can cure HIV, HPV, hepatitis and so on. Contact DR.AVE UDUOGIE on his email Curingstdswithherbs@gmail.com or WhatsApp/Call +1(978)4896010. You can contact him and get a permanent cure to your genital and oral Herpes,HIV Aids, Lungs cancer,HPV,Lupus,Cold sore, Blood Cancer,Diabetics,Herpes virus E.T.C.
You don't have Lupus or Celiac, you have "Leaky Gut Syndrome" and a weak Mucosal layer that's allowing LPS endotoxins to cross the epithelial cell line and get directly into the bloodstream, which is a low to medium grade sepsis. All these autoimmune diseases are exact same disease - leaky gut!
Can be caused from one round of antibiotics that kills off the acid producing bacteria in your colon, which allows the environment to become more alkaline, which promotes the growth of alkaline loving pathogens like CANdida.
Another popular way of acquiring an autoimmune diseases is by not eating enough resistant starches and FIBER! These cannot be digested in the small intestines, so they make their way all the way down to the distal colon where the bacteria ferment/digest them. Their waste products are short chain fatty acids, one of specific importance is butyrate, which just so happens to be the primary fuel source of the ONE CELL layer thick epithelial lining, but also the goblet cells within that structure that are responsible for producing mucus. That mucosal layer is the ONLY thing separating bacteria and pathogens in the gut from us!
If you don't feed those acid producing bacteria in the distal colon enough fiber, they begin feeding on the glycoprotein/carbohydrate rich mucosal layer, and when they get it eaten down enough they are now in direct contact with the epithelial cells, which sets off a VERY STRONG immune response and sepsis.
Here Dr. Rhonda Patrick interviews the Sonnenburg's (Stanford Microbiome Researchers) explaining this phenomenon of bacteria in the distal colon switching to the mucosa as a fuel source if you don't eat enough fiber.
This is Dr. Rhonda Patrick and the Sonnenburg's (Stanford Microbiome Researchers) discussing this.You may want to listen a few times, you'll pick up stuff you didn't the first. Do NOT miss this, it is a real eye opener!!!
ruclips.net/video/gOZcbNw7sng/видео.html
All of these autoimmune diseases are caused by gut dysbiosis and a weak mucosal layer due to a lack of fiber in the western diet. Eat your beans and make sure your pets are getting enough fiber!
Check your face book messages, I will send you a link that will prove all this, it will blow your mind. I've had Dermatomyositis for 20 years. I've studied these autoimmune diseases to find the root cause and cure, and it is leaky gut. I cured myself literally in ONE MONTH with the info you'll see at this link. It is the cause of ALL these diseases and I'm going to send you a link with experts talking about it.
I cannot post the link here because RUclips sensors FB links, but when you see it, please share it on your channel to help others.
For those of you who want to know how leaky gut starts and how to fix it that aren't able to get the link, look up Microbiologist 'Kiran Krishnan' here on YT, he has MANY videos. He literally teaches this to Functional Medicine Doctors all over the world.
Here's just one of his videos. He eventually breaks out a graphic and shows you exactly how this happens and how to fix it.
ruclips.net/video/lgYzhVnnLyM/видео.html
You are sooooo right on! Been through the ringer and am stable now. Couldn't even walk two years ago. All natural approach after rounds of heavy meds that tore me up! Lost half my hair and full body rash was so inflamed I was sent to head dermatologist at University of WA. STAT! 100% agree on its all leaky gut!!!! Discovered resistant starch which I choose only sweet potatoes and yams. 1 tablespoon of aloe vira and 1 tablespoon colidal silver at 10 parts per million to keep any infections at bay and soothes the intestines! this also helped with my severe constipation along with upping all my good oils - olive oil, lemon cod liver oil. I am looking forward to looking at links you posted!!! Finally someone who REALLY gets it. high fiber people with optimal vit D! All organic! Be prepared to spend hours in the kitchen food prepping. Intermittent fasting - keto - once or twice a week. Carry on .
Why do you laugh so much while telling your story? Lupus is not a joke. It may sound like I'm coming down on you, but I'm not. Also a lot of what you read on the internet is true. A lot of us Lupus fighter's have dealt with it or are dealing with it now. There not "Lupus Wives Tales" ?? I have a couple questions for you? What medication are you on? Do you get ready in full makeup, hair, nails and dress up everyday or was it done just for the video? This is just my opinion, but it seems like your doing a scripted commercial instead of a true life story.?
If a medication is making things to where you have zero symptoms at times and feel completely normal a lot. I need that medicine. It sounds like a miracle drug or combination of meds and vitamins. I just said it sounds like a miracle drug, but for me fighting Lupus with a husband and 2 kids. It would be a miracle.
You can't tell someone how to feel about their own journey who di you think you are shes the one going through it if she wants to laugh or needs to laugh shut up
Lmao another case of "because you don't do things the way I do them you're wrong." 🙄