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Polished Piggy
Добавлен 5 апр 2018
My Lupus Diagnosis Journey
Hi Everyone!
I've been wanting to share this story about my Lupus diagnosis journey for a while. It's so easy to feel like you are alone when you have Lupus, or any autoimmune disease (or even just think you may have one) and that's just not true.
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Website- www.polishedpiggy.com
I've been wanting to share this story about my Lupus diagnosis journey for a while. It's so easy to feel like you are alone when you have Lupus, or any autoimmune disease (or even just think you may have one) and that's just not true.
Instagram- polishedpiggy
Facebook- polishedpiggy
Website- www.polishedpiggy.com
Просмотров: 41 142
Did you ever get ANA tests? I have all the symptoms, no butterfly rash though, and no ANA.
The doctors simply do not know. Lupus mimics. I just had a flare. Lasted 4 months. Disappeared as fast as it showed up. Lots of tests...did absolutely nothing.
Are you on predisalone?did you get like a moon face n did you put on wheight
Please visit Dr Brooke Goldner. You CAN reverse Lupus. Just with the right diet, by eliminating the foods making you sick and and by adding the right foods to heal you. She helped thousands of people after reversing her own Lupus, after 12 years of suffering
What kind brand vitamins do you take ?
Thank you! My SLE has been life-threatening at times, but I've finally learned to ignore people who don't understand.
How did you get diagnosed blood test-wise?
The great pretender can also be types of Porphyria that go undiagnosed, urine is some can darken the sample in the Sun but not all will change colors, it also has to be taken in flares or acute times like abdominal pains etc. It does not have to become purple what porphyria is in Greek. Some are Allergic to the Sun & UV Lights & some types need an increase in certain vitamins/minerals, some types do not all need high carb intakes & Glucose/sucrose...All types have genetic tests, Invitae does the full panel one...Also, urine, blood, stool tests are carried out to protect the samples from light in black bags or aluminum foils...Sun types need clothing to cover up x x hugs x x Aidan x x
I’m sorry you were treated that way.
What did you rash look like? This is my 3rd rash this year and on steroids to get rid of it .
Ive had the symptoms since I was 8..I am now 61.. grew up with chronic mouth sores ,sore throats and always in pain. My mother just told me to stop faking.. In 2000 they said I had fibromyalgia..had the gall bladder out and hurt so bad. Doctors told me I needed prayer. I have had all the symptoms,lost my friends,then it went away for 20 years..it was only hiding and waiting.. my pain has been horrible the past 3 years..I found out that the last year before my mother died, that her Lupus was dormant at 89 years old. After it destroyed her heart,kidneys and eyes,I found out that she was in a flare up when she carried me and I was in one when I carried my daughter,that about killed me. Last night the pain was over the top,but I refuse to see another doctor..now I suck it up..I just take otc..I now worry about my daughter 😞. Your journey is encouraging..God bless.
Untreated lupus erhthematosis is a SERIOUS DISEASE. It leads to irreversible autoimmune damage to kidneys and heart. An MD PhD Rheumatologist points out that with Lupus there is a 70 fold increase in a cardiovascular event (stroke, heart attack). 70 fold = 70X =7,000% increased risk. And kidney damage is irreversible leading to kidney failure and dialysis.. because brain, heart and kidney cells don't "grow back".
Polished Piggy: You are the operational definition of a "good human being" .... thanks!!
Could you please do a video on the vitamins you take?
Thank you for your story. I love to know about your medication, supplement and diet. Really appreciate this!!!
Me too. Thanks
What gallbladder tests did you get done
Omfg I'm stressing out so bad. I just got my blood done today to see if I have lupus. I have to wait 7-10 days for results and I have anxiety 😭😭😭😭
Your journey sounds very very similar to mine but I'm just starting the diagnosis process... they have diagnosed me with so much since I was 19 I'm now 30 and this would make so much sense and is so bittersweet. And I got the lupus rash comment on my hands as well and my reaction to it was the same as you. Thank you so much for sharing what your going through! This is so new to me it makes me realize I'm not alone!
I was diagnosed 40 years ago and still going strong!
Tickling on hands can be lupus?
U still taking medicine
Hello my name is kizza I am in ouganda Africa I am really like your video I think you're gonna help me bcz I have the same thing like that and it is lupus mine is really disturbing my lungs so much I have olso this lupus reash it is so so much fatigue is gonna keell me my dear help me
My name is kizza
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gall bladder holds bile that aids in digestion
I cried when my doctor said, "You're not crazy."
I wanted to go back to quite a few & say. I told ya!
Thank you for sharing. Most people think I'm full of it, but ANA levels, butterfly rash, and chronic fatigue don't lie. Don't get me started on the mouth and nose sores, liver damage, and the feeling of being "sunburned" all the time. And Hashimodos. 😑
I think I’m having liver involvement too. Waiting for my initial rheumatologist appointment in October for confirmation on SLE. I’ve had several blood workups done and everytime I’m ANA positive, my bilirubin and albumin is high. Are your liver enzymes also high?
I've been spending lots of money weekly on buying the popular Supplements just to suppress my Lupus outbreaks as prescribed to me in the hospital. Anyone who has LUPUS can attest this, with all the pains and embarrassing symptoms. Unfortunately, I have found out that those hospital recommended products are frequently not effective at taking care of the problem but rather make you spend all your money. Until I met DR.AVE UDUOGIE, the Herbalist. His herbal remedy will get to the root of the cause and cure you permanently rather than suppress outbreaks with Medical pills which Causes serious damage to the body. And you will be happier, healthier, and outbreak free. He also has herbal remedies that can cure HIV, HPV, hepatitis and so on. Contact DR.AVE UDUOGIE on his email Curingstdswithherbs@gmail.com or WhatsApp/Call +1(978)4896010. You can contact him and get a permanent cure to your genital and oral Herpes,HIV Aids, Lungs cancer,HPV,Lupus,Cold sore, Blood Cancer,Diabetics,Herpes virus E.T.C.
I've been spending lots of money weekly on buying the popular Supplements just to suppress my Lupus outbreaks as prescribed to me in the hospital. Anyone who has LUPUS can attest this, with all the pains and embarrassing symptoms. Unfortunately, I have found out that those hospital recommended products are frequently not effective at taking care of the problem but rather make you spend all your money. Until I met DR.AVE UDUOGIE, the Herbalist. His herbal remedy will get to the root of the cause and cure you permanently rather than suppress outbreaks with Medical pills which Causes serious damage to the body. And you will be happier, healthier, and outbreak free. He also has herbal remedies that can cure HIV, HPV, hepatitis and so on. Contact DR.AVE UDUOGIE on his email Curingstdswithherbs@gmail.com or WhatsApp/Call +1(978)4896010. You can contact him and get a permanent cure to your genital and oral Herpes,HIV Aids, Lungs cancer,HPV,Lupus,Cold sore, Blood Cancer,Diabetics,Herpes virus E.T.C.
I have SLE please tell me about yr medc and supplements.My muscles my joints hurt...love from Hungary.
I've been spending lots of money weekly on buying the popular Supplements just to suppress my Lupus outbreaks as prescribed to me in the hospital. Anyone who has LUPUS can attest this, with all the pains and embarrassing symptoms. Unfortunately, I have found out that those hospital recommended products are frequently not effective at taking care of the problem but rather make you spend all your money. Until I met DR.AVE UDUOGIE, the Herbalist. His herbal remedy will get to the root of the cause and cure you permanently rather than suppress outbreaks with Medical pills which Causes serious damage to the body. And you will be happier, healthier, and outbreak free. He also has herbal remedies that can cure HIV, HPV, hepatitis and so on. Contact DR.AVE UDUOGIE on his email Curingstdswithherbs@gmail.com or WhatsApp/Call +1(978)4896010. You can contact him and get a permanent cure to your genital and oral Herpes,HIV Aids, Lungs cancer,HPV,Lupus,Cold sore, Blood Cancer,Diabetics,Herpes virus E.T.C.
@@belvinsmith1891 Thank you but I live in Europe so its difficult to contact him.:(
@@juditkadar3975 NO, just email him ,his definitely gonna reply back.
Waiting on results now and I'm pretty sure this is it though this is not at all what I was expecting.
Herpes can be cured because it truly has a complete cure. I’m a living witness of it because I recently got rid of my HSV-2 within just 11 days. And as i speak right now! I’m perfectly cured from the herpes disease. There is a cure and it's called herbalH medicine. I'm so glad to have come in contact with Herbal doctor Idumebolo who is also known as the 11 days healer of herpes virus. Doctor Idumebolo got me cured completely from my long term genital herpes (HSV-2) with the help of his powerful and effective herbal medication which I took for only 11 days, and I got a good result being cured from the herpes disease. If you are out there diagnosed or suffering from the herpes virus you can reach out to doctor Iduembolo for help in getting rid of your herpes virus forever just the way he helped me got rid of mine; His email address is dr.idumeboloherbalremedyhome@gmail.com or for his quick response to you, you can reach him on WhatsApp with +2348084774197. The medical industry/Big Pharmacies make huge profits off treatments and modern drugs/medicines that can't even get the herpes virus cured. That's why they don't want you to know the cure. Aaron Traywick had a cure for HIV and herpes and he turned up dead like a week later, even Nipsey Hussell was murdered along with Lisa Left Eye Lopez by the US Government simply because these people were doing a research on how Dr Sebi makes herb for the cure to herpes virus and HIV. The Doctor Sebi in question was also killed by the US Government just because he was having the cure to herpes and HIV. Don't you find that fishy? ??
I've been spending lots of money weekly on buying the popular Supplements just to suppress my Lupus outbreaks as prescribed to me in the hospital. Anyone who has LUPUS can attest this, with all the pains and embarrassing symptoms. Unfortunately, I have found out that those hospital recommended products are frequently not effective at taking care of the problem but rather make you spend all your money. Until I met DR.AVE UDUOGIE, the Herbalist. His herbal remedy will get to the root of the cause and cure you permanently rather than suppress outbreaks with Medical pills which Causes serious damage to the body. And you will be happier, healthier, and outbreak free. He also has herbal remedies that can cure HIV, HPV, hepatitis and so on. Contact DR.AVE UDUOGIE on his email Curingstdswithherbs@gmail.com or WhatsApp/Call +1(978)4896010. You can contact him and get a permanent cure to your genital and oral Herpes,HIV Aids, Lungs cancer,HPV,Lupus,Cold sore, Blood Cancer,Diabetics,Herpes virus E.T.C.
Hi what meds do you take for lupus.
I've been spending lots of money weekly on buying the popular Supplements just to suppress my Lupus outbreaks as prescribed to me in the hospital. Anyone who has LUPUS can attest this, with all the pains and embarrassing symptoms. Unfortunately, I have found out that those hospital recommended products are frequently not effective at taking care of the problem but rather make you spend all your money. Until I met DR.AVE UDUOGIE, the Herbalist. His herbal remedy will get to the root of the cause and cure you permanently rather than suppress outbreaks with Medical pills which Causes serious damage to the body. And you will be happier, healthier, and outbreak free. He also has herbal remedies that can cure HIV, HPV, hepatitis and so on. Contact DR.AVE UDUOGIE on his email Curingstdswithherbs@gmail.com or WhatsApp/Call +1(978)4896010. You can contact him and get a permanent cure to your genital and oral Herpes,HIV Aids, Lungs cancer,HPV,Lupus,Cold sore, Blood Cancer,Diabetics,Herpes virus E.T.C.
“Hey, we have a solution for your problem”. Relief. 😅Then shock. 😱 Yep.😟. “It’s going to get better.” 🙏 Thank you. Sounds like you have been through a lot and have learned so much. You are so resilient in that you are reaching out to others like me.💗
I have lupus. Just recently diagnosed. Doctors have not understood or even believed me.
I've been spending lots of money weekly on buying the popular Supplements just to suppress my Lupus outbreaks as prescribed to me in the hospital. Anyone who has LUPUS can attest this, with all the pains and embarrassing symptoms. Unfortunately, I have found out that those hospital recommended products are frequently not effective at taking care of the problem but rather make you spend all your money. Until I met DR.AVE UDUOGIE, the Herbalist. His herbal remedy will get to the root of the cause and cure you permanently rather than suppress outbreaks with Medical pills which Causes serious damage to the body. And you will be happier, healthier, and outbreak free. He also has herbal remedies that can cure HIV, HPV, hepatitis and so on. Contact DR.AVE UDUOGIE on his email Curingstdswithherbs@gmail.com or WhatsApp/Call +1(978)4896010. You can contact him and get a permanent cure to your genital and oral Herpes,HIV Aids, Lungs cancer,HPV,Lupus,Cold sore, Blood Cancer,Diabetics,Herpes virus E.T.C.
It's never lupus
I've been spending lots of money weekly on buying the popular Supplements just to suppress my Lupus outbreaks as prescribed to me in the hospital. Anyone who has LUPUS can attest this, with all the pains and embarrassing symptoms. Unfortunately, I have found out that those hospital recommended products are frequently not effective at taking care of the problem but rather make you spend all your money. Until I met DR.AVE UDUOGIE, the Herbalist. His herbal remedy will get to the root of the cause and cure you permanently rather than suppress outbreaks with Medical pills which Causes serious damage to the body. And you will be happier, healthier, and outbreak free. He also has herbal remedies that can cure HIV, HPV, hepatitis and so on. Contact DR.AVE UDUOGIE on his email Curingstdswithherbs@gmail.com or WhatsApp/Call +1(978)4896010. You can contact him and get a permanent cure to your genital and oral Herpes,HIV Aids, Lungs cancer,HPV,Lupus,Cold sore, Blood Cancer,Diabetics,Herpes virus E.T.C.
Omg...i had a lupus too.. 2017 when i was diagnose..but, i can't accept when doc told me..but the symptoms is coming one by one.. it seems you had a flu.. very tired and all your joints getting painful.. then you asking your self where all of this coming from.. it's very difficult rise up in the bed.. 2018- 2019 i started seeking for real professional help from the doc.. due of my i had a carpal tunnel syndrome, arthritis.. then 3 different hospital i went to ... until all the test i got .. they told me ..i was positive to Lupus.. so, hard cause other people don't understsnd our situation. Telling you that looks fine! But dont knew that you make struggle just to get up into your bed. 😓😓
I've been spending lots of money weekly on buying the popular Supplements just to suppress my Lupus outbreaks as prescribed to me in the hospital. Anyone who has LUPUS can attest this, with all the pains and embarrassing symptoms. Unfortunately, I have found out that those hospital recommended products are frequently not effective at taking care of the problem but rather make you spend all your money. Until I met DR.AVE UDUOGIE, the Herbalist. His herbal remedy will get to the root of the cause and cure you permanently rather than suppress outbreaks with Medical pills which Causes serious damage to the body. And you will be happier, healthier, and outbreak free. He also has herbal remedies that can cure HIV, HPV, hepatitis and so on. Contact DR.AVE UDUOGIE on his email Curingstdswithherbs@gmail.com or WhatsApp/Call +1(978)4896010. You can contact him and get a permanent cure to your genital and oral Herpes,HIV Aids, Lungs cancer,HPV,Lupus,Cold sore, Blood Cancer,Diabetics,Herpes virus E.T.C.
You are so beautiful
My thirty year old daughter was just diagnosed. She’s always a stage 5 kidney damage from the lupus. She’s lost Almaty all her long beautiful hair. They have her in 22 different meds already and that’s just from the kidney doctor. She goes to see her rheumatologist this week. She’s on 80mg prednisone and 100mg of the cancer chemo meds. I’m being worried sick for her. They are checking her liver next. They said she’s probably had it since and been undiagnosed she delivered her stillborn son almost 11 years ago. All I do is watch RUclips videos so I know all I can possibly know any now and the fit for her. Thank you for this video.
Sorry about the typos. I was multitasking. She’s already a stage 4+ with lupus related to her kidneys and the scar damage is a stage 5 already. She’s lost almost all her beautiful hair. Has anyone else had success in getting their hair back after they got regulated on their meds?
Hope shes better..
So sorry for all you have been through. I’ve been similar with chronic pain issues and no support from family and friends. They don’t understand, and unless someone goes through it they do not know.
I've been spending lots of money weekly on buying the popular Supplements just to suppress my Lupus outbreaks as prescribed to me in the hospital. Anyone who has LUPUS can attest this, with all the pains and embarrassing symptoms. Unfortunately, I have found out that those hospital recommended products are frequently not effective at taking care of the problem but rather make you spend all your money. Until I met DR.AVE UDUOGIE, the Herbalist. His herbal remedy will get to the root of the cause and cure you permanently rather than suppress outbreaks with Medical pills which Causes serious damage to the body. And you will be happier, healthier, and outbreak free. He also has herbal remedies that can cure HIV, HPV, hepatitis and so on. Contact DR.AVE UDUOGIE on his email Curingstdswithherbs@gmail.com or WhatsApp/Call +1(978)4896010. You can contact him and get a permanent cure to your genital and oral Herpes,HIV Aids, Lungs cancer,HPV,Lupus,Cold sore, Blood Cancer,Diabetics,Herpes virus E.T.C.
No cure for lupus. Do u have uveitis too?
I've been spending lots of money weekly on buying the popular Supplements just to suppress my Lupus outbreaks as prescribed to me in the hospital. Anyone who has LUPUS can attest this, with all the pains and embarrassing symptoms. Unfortunately, I have found out that those hospital recommended products are frequently not effective at taking care of the problem but rather make you spend all your money. Until I met DR.AVE UDUOGIE, the Herbalist. His herbal remedy will get to the root of the cause and cure you permanently rather than suppress outbreaks with Medical pills which Causes serious damage to the body. And you will be happier, healthier, and outbreak free. He also has herbal remedies that can cure HIV, HPV, hepatitis and so on. Contact DR.AVE UDUOGIE on his email Curingstdswithherbs@gmail.com or WhatsApp/Call +1(978)4896010. You can contact him and get a permanent cure to your genital and oral Herpes,HIV Aids, Lungs cancer,HPV,Lupus,Cold sore, Blood Cancer,Diabetics,Herpes virus E.T.C.
I have had Myasthenia Gravis for almost 9 years but just recently found out that I also have Lupus as well. I am currently in my early 60's and probably had Lupus my whole life and didn't even realize it. I was a national class cross country and track athlete when I was in my 20's but always had way more difficulty with workouts and recovering from fatigue than my colleagues. Are you going to post any more videos? I am curious to see how you are doing and what kind of lifestyle changes you have had to make to deal with the heat, sun exposure, and flareups. I am currently on medication. It seems to help but I still have really bad days more often then not. I have a lot of joint pain as well as breathing issues. I work as a system engineer and programmer. It is really tough to meet deadlines when the body is always tired or I am mentally fatigued. It would be nice if you could provide some advise. I'm probably old enough to be your grandfather but I don't have too many people that I can talk to that understand what I am going through so if you can respond, it would really be helpful. Aloha!
I've been spending lots of money weekly on buying the popular Supplements just to suppress my Lupus outbreaks as prescribed to me in the hospital. Anyone who has LUPUS can attest this, with all the pains and embarrassing symptoms. Unfortunately, I have found out that those hospital recommended products are frequently not effective at taking care of the problem but rather make you spend all your money. Until I met DR.AVE UDUOGIE, the Herbalist. His herbal remedy will get to the root of the cause and cure you permanently rather than suppress outbreaks with Medical pills which Causes serious damage to the body. And you will be happier, healthier, and outbreak free. He also has herbal remedies that can cure HIV, HPV, hepatitis and so on. Contact DR.AVE UDUOGIE on his email Curingstdswithherbs@gmail.com or WhatsApp/Call +1(978)4896010. You can contact him and get a permanent cure to your genital and oral Herpes,HIV Aids, Lungs cancer,HPV,Lupus,Cold sore, Blood Cancer,Diabetics,Herpes virus E.T.C.
@@belvinsmith1891 Thank you so much for responding. I certainly appreciate your advice and will get in touch with Dr. Uduogie and see what herbal treatments are available. 😊👍
@@mindright9771 you are welcome
Great.
You are funny! Great outlook!
In 2014 after having my baby i went to the beach when he was like 4 months old and i was in the sun.. i got a rash on my face, chest arms. I felt so sick like the sun was poisoning me.. i thought i just became allergic after having a baby.. from then on it has just got worse i get so tired my joints hurt so bad and i litteraly just a few days ago had what i figure to be a kidney flair. Hurt so bad. My friend with lupus told me to go to the doctor asap. Hope they can figure it out.
I have autoimmune it gears Lucas looks like Lucas but all my tests come back nebula I have a rash on face and Flare all the time and my skin breaks out in patches that are very red if Iam in sun . What do you take for your Lupus? That works well ? I’ve try? Methotrexate Areva and numerous natural remedies I’m getting ready to start Enbrel.please let me know ?
They can’t cure it so why don’t we need doctors? Useless lot
Check out Dr. Brooke Goldner and GoodbyeLupus.com. She got Lusus at 16 and now is Lupus free
Follow Dr. Brooke Goldner. She cured herself and others of Lupus.
I have been struggling with lupus-like symptoms for 20 years now (since I’m 13). They never found anything and I gave up on medicine. But recent events (permanent damage to the eye) have made me take up the search again, since also medicin has advanced. I had my first appointment with a reumatologist last week and am so disheartened. I fear that they will again not be able to diagnose me, and I fear the diagnosis. It’s been 20 years of picking myself up and pushing through, hoping for the best, hoping everything on the inside still works kinda fine. And I am tired and feel really lonely. As if none of these doctors are listening. Sending my love to all of you out there feeling alone.
Sorry for you Sweety . You are Adorable. take care .
You are doing a great service...as Re the multitude of people with Their lupus who share their journey on RUclips and other social channels. Medical schools should make subscribing and watching and interacting with at least three or four of these channels. The practicing medical community is shamefully I’ll trained to understand and detect these challenging autoimmune complex diseases...even though symptoms and presentation of onset of these conditions can occur in any number of areas of the human body. Unfortunately for the profession and those needing comprehensive services, physicians often do not listen attentively or ask the right questions of their patients, often only five or so minutes at best. Admittedly, time pressures and patient numbers are great, but patient care and medical practice in general suffers even more from lack of communication, coordination and continuity of care between physicians where two or more “ specialists” are treating the same person for what they consider different illnesses because they occur in different anatomical or physiological areas of the body. People with Lupus and other autoimmune based illnesses typically have several physicians involved in their care... a rheumatologist, a cardiologist, a pulmonologist, a dermatologist, sometimes a nephrologist and generally a primary care physician required as a gatekeeper by a health insurance company. should insist that
Sorry, my comment posted before I had a chance to finish by saying that patients with these conditions should insist that communication between their physicians happens. Ask your physicians how you can help them make that happen. It is difficult to achieve in most cases but but one strategy is to begin each office visit by briefly summarizing and describing pertinent results your recent visits with other physicians treating you. Even if you have told the nurse you should summarize for the physician while he is examining you. God bless you all, be strong and learn as much as you can and be a good advocate for your health and medical care.
...and please excuse my many typos,
We all have good and bad days any ways. Yes I understand thanks. Yes I have Lupus too. 🌹🌹
Oh this just breaks my heart!! I can totally understand what you are going through. Thank you for making this video, we are not alone!!
I am lupas pesant 1 years.thanks for video
I was diagnosed 3 yrs ago .