I was in PT today, and it finally came to me. I was never afraid of anything. And now With SCA6 I am terrified. I know exactly how you are feeling at the moment. We just have to get back up, and continue with what we love. (Easier said than done) just keep moving. It might be slow, and modified. look for small victories when you have them.
Thankfully I meet with a team of Ataxia experts at Kaiser Sacramento and they are all in support of me pushing on and doing things that I love. Currently, because of the torn ligament in my shoulder thanks to this fall, I am unable to do anything but walk and lower body exercises. As soon as I am healed up I will go out for a run on a smoother surface. I am very scared to run again to be honest. I'm actually afraid to walk sometimes. But like you said we just have to continue on. Thanks for the support. I'm sorry you are dealing with SCA6 as well :(
Ugh! I left a comment on your last vid but I'll leave another here. I'm so so sorry that this disease is getting in your way. As I said before, anytime you fall and get hurt it will most likely advance the disease even faster. So be careful. I'm glad you are active. I know running is your passion, however, maybe this could be vein of fitness you could explore to work around your disease instead of working against it. Try your hardest to keep your head up my dear. I know it can be infuriating and hopeless at times, but you are not alone. You have support and there are people all over cheering you on. Btw I'm NOT saying give up running, I'm simply saying explore tips and tricks with it. 😁
I did not know that about SCA6 advancing faster with falls. Thank you for letting me know. I have felt very tired and scrambled since yesterday. I think I will try flat smooth trails and see how that goes. If I fall on flats I will have to stop running. I really don't like falling. Thanks for the support, I really needed to hear that I'm not alone, though I know it it's still nice to hear.
I was in PT today, and it finally came to me. I was never afraid of anything. And now With SCA6 I am terrified. I know exactly how you are feeling at the moment. We just have to get back up, and continue with what we love. (Easier said than done) just keep moving. It might be slow, and modified. look for small victories when you have them.
Thankfully I meet with a team of Ataxia experts at Kaiser Sacramento and they are all in support of me pushing on and doing things that I love. Currently, because of the torn ligament in my shoulder thanks to this fall, I am unable to do anything but walk and lower body exercises. As soon as I am healed up I will go out for a run on a smoother surface. I am very scared to run again to be honest. I'm actually afraid to walk sometimes. But like you said we just have to continue on. Thanks for the support. I'm sorry you are dealing with SCA6 as well :(
Ugh! I left a comment on your last vid but I'll leave another here. I'm so so sorry that this disease is getting in your way. As I said before, anytime you fall and get hurt it will most likely advance the disease even faster. So be careful. I'm glad you are active. I know running is your passion, however, maybe this could be vein of fitness you could explore to work around your disease instead of working against it. Try your hardest to keep your head up my dear. I know it can be infuriating and hopeless at times, but you are not alone. You have support and there are people all over cheering you on. Btw I'm NOT saying give up running, I'm simply saying explore tips and tricks with it. 😁
I did not know that about SCA6 advancing faster with falls. Thank you for letting me know. I have felt very tired and scrambled since yesterday. I think I will try flat smooth trails and see how that goes. If I fall on flats I will have to stop running. I really don't like falling. Thanks for the support, I really needed to hear that I'm not alone, though I know it it's still nice to hear.
Please be careful, don’t want broken bones, trust me
I managed to get a torn ligament out of the fall. I think broken bones heal faster!