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Thanks for sharing your experience. I can relate . I hope ur doing well these days .

Is there a way to get in contact with you via email? My husband is starting to show symptoms and his mom and 3 aunts have this disease. Thanks.

Thank you for sharing that

How are you doing now? Are there medications to alleviate this condition? I hope you feel better.

Just finish speaking to a friend of mine who was suffering from Ataxia 🤒🤒for years but after a recommendation of MADIDAHERBALCENTER’s treatment to him, all his symptoms and ataxia was reversed with him completely restored to he normal self🎉🎉…

Thanks for making this video. I was diagnosed yesterday SCA type 6. I am a runner and work out too. This video helped me to know I can still do those things.

Hi, does anyone in your family had similar symptoms?

Haha tongue control.. could be a thing!

Good job justin bieber.

UMM

Great going Girl keep it up!

Super 👍👍👍 I am 99th like

Uhhh this is actually a thing I swear everything exists these days lol it looks tiring bet I would pass out in two seconds

Thank you for sharing. I’m looking forward to your updates and stories. Hope you’re well.

Damnnnnnnnn GET IT!!!!

Hello Manda. I also have SCA , I have SCA type 3. I was diagnosed when I was 2 or 3 if I'm remembering correctly and my older brother was diagnosed when he was 6? I think.... We were both pretty young. I'm 23 years old now. But I haven't really done alot of research myself, because I've been kinda scared in the back of my mind. Your symptoms are very similar to mine. I guess I never really realized it wasn't normal. Growing up running was difficult, walking, so on and so forth and my head constantly shakes. So growing up these were normal to me. I'm currently doing research and trying to learn more

Just want to say that as a queer person who is currently being tested for SCA6 I am so grateful that the first video that popped up in my search is you. One of the first things I thought when I heard how rare this is was - no one who understands what it is like to have this will also understand being queer. Like suddenly I will be so different from my community that I built because I already felt so different. - you have given me some hope here - thanks for putting this up!

I was in PT today, and it finally came to me. I was never afraid of anything. And now With SCA6 I am terrified. I know exactly how you are feeling at the moment. We just have to get back up, and continue with what we love. (Easier said than done) just keep moving. It might be slow, and modified. look for small victories when you have them.

Please be careful, don’t want broken bones, trust me

I’ve had symptoms from birth but they didn’t know what is was back in prehistoric times lol. It didn’t really start to progress until about 2004 so I’ve been lucky. Always had balance problems, bad eyes and pain but no name for it. I don’t have a type but it seems mostly like the symptoms of SCA6 plus I’ve injured my spine from falls over the years so that’s stuffed too.

Ugh! I left a comment on your last vid but I'll leave another here. I'm so so sorry that this disease is getting in your way. As I said before, anytime you fall and get hurt it will most likely advance the disease even faster. So be careful. I'm glad you are active. I know running is your passion, however, maybe this could be vein of fitness you could explore to work around your disease instead of working against it. Try your hardest to keep your head up my dear. I know it can be infuriating and hopeless at times, but you are not alone. You have support and there are people all over cheering you on. Btw I'm NOT saying give up running, I'm simply saying explore tips and tricks with it. 😁

My entire side of my maternal family including my mother and my brother have SCA 6. The more active you stay the more manageable your symptoms can be for some time. If don't use it you lose it. Dr. Ashizawa and Dr. Ondo (in Houston) are Ataxia specialists who are VERY familiar with SCA 6. I wish you the best of luck.

I also have SCA and your symptoms are so similar, but I’ve had mine for a long long time

LoL Salad tossing! I am so happy to hear that I am not the only one who can't process! My wife has a mind that is so fast, when she talks I get lost in it and I get angry at myself for not being able to keep up with her. I haven't tossed a salad... Ok a literal salad. But in my teens I have broken a lot of windows! Couldn't process emotions then. I see a complete parallel between your symptoms and the ones I have now. I'm not violent. But I get very angry when I can't cope with disagreements. It comes off like I'm mad at the disagreements. When in fact I'm mad at myself. Thank you for posting these videos! You are amazing!

Thanks for sharing. My daughter (14y) has SCA 6 or EA2 with interictal symptoms. We go to DC in May to figure which it actually is at an ataxia clinic. She and I both struggle with the emotional side of accepting the limitations or fear of the unknown. I truly appreciate your vulnerability and sharing your journey. I'm going to be sharing your channel with my daughter. I think you two are a lot alike and I love your resilient mindset as an example to her. Keep on Keeping on. Be well. ....Miranda and Lily from Chico, CA.

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Hello!! Thanks for making this video we need to talk about SCA. Both of my sons got the diagnostic of spinocerebellar ataxia type 17 just like their mom. Past year was hard for them and devastating for me. I saw their mom losing balance, not able to eat buy herself, language difficulties….. I though life would be nice to me and let my sons live their lives without this disease. I was wrong!!! I am still at accepting the situation but future is very scary for me. I experience this disease with their mom and now I need to stay healthy and clear of mind to be there for them when they will need me most.

Akate, A recommendation for your RLS symptoms is to ingest more iron. To avoid becoming constipated I recommend polysacheride iron that you should be able to purchase from Amazon.

Thanks for sharing this . I also become depressed and it is something that appears from nowhere , for no real reason , apart from the entire background of having SCA6 . I was diagnosed in 2013 after an accident resulting in a broken leg which i did not recover from fully . The reason was the SCA6 . I find myself switching off in order to cope although anyone close to me ends up suffering due to this. I do this in order to ignore reality because it sucks . I take anti depressants but they just seem to cover up the fact that i'm pretty f*cked . I can still walk , somewhat awkwardly and notice how much i have slowed down , periodically . I used to be a musician but can no longer play very well as my coordination has deteriorated. There is little positive to say about SCA and i have nothing to add . I just hope that you have good friends and family for support . take care

I also was recently diagnosed w SCA6 - I have found NSAID med (Ibuprofen or naproxyn) really helped me, esp. if I am tired.

Really interesting - I've read a bit of research about this in school as well. Makes sense that issues with the brain affect not only the physical but also the emotional / psychological as well. It's all connected!

I went through all of this early - hell on wheels. Pretty much over and I'm so relieved. p.s. you;re hilarious.

Here to support you, my friend!

I wish that Bosu was my belly !

Another good question. It depends on your current fitness level and goals. For general population it's recommended that you do no more than 3 HIIT sessions per week and never back to back. Take at least one day between.

Good question. It really depends on your ability to recover. Recovery is really important thing with HIIT. If you can recover in 1min after a 1min max effort then go again. Sometimes I do have the incline on and sometimes I don't, it just depends on what my goal is for that day. I will switch up my interval times as well. You can do 10 on 20 off or 20 on 10 off (Tabata style). The possibilities are pretty limitless.

Im not trying to be a pest, but how many times a week do you recommend doing HIIT?

is it ok to do 1min max, 1 min rest. Or is it best to do the 30 sec on/off? Also, do you have the treadmill on an incline for the speed intervals? Thanks!

Those are hard to do but very good for balancing the core. Great video. :-)

I sometimes jump rope like this too. I like that it's easier on the knees, involves more muscles and it's less noisy for the people living in the flat behind me. BUT, I prefer to skip without it because I love to skip fast, and with all that absorption it's impossible to be very quick! Thanks for sharing your workout!