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How ADHD Treatment Is Not ADHD Friendly
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- Опубликовано: 10 авг 2020
- I wasn't sure if I was going to share this because it's very raw and personal, but I decided it's important to. If you resonate, comment. Share. Let's let others with ADHD know they're not alone in this struggle and help mental health professionals understand what we go through. Let's make some change.
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“I should have been asked more than is the medication working and are there any side effects” OMG this!!!!
This is all my psychiatrist asks me. There is zero discussion on adhd management skills or tools or any guidance on how I can better set myself up for some (if any at all) success with my treatment. Medication had the power to relax my brain enough to where I can finally be able to put in the psychological and behavioural work that will help me to better cope with/manage my adhd but without any assistance or what to do or guidance on what I could be improving on I’m at a loss. I keep trying things but I feel so lost and on my own with this. I got diagnosed at 37 and it felt like a life saving revelation in my life to finally have answers. But I need to do something with this knowledge and understanding for it to have any real long lasting value in my life. I need someone to guide me on my journey of learning how to make my brain work in this world or how to beat use my brain to make the most of what I can do. This video touched me so much. I feel your struggle so deeply. I am sending you so much love and a huge hug. You, we and *all* of us are not alone. Even in our loneliness. ❤️
Of all the changes I would like to see, this might be the #1 and also VERY doable. Given that the recommended treatment for ADHD is *multimodal* -- medication for symptoms, behavioral therapy for impairment -- our treatment providers can and should ABSOLUTELY be asking about how we're managing our ADHD besides medication.
Psychiatrist for meds. Psychologist for therapy.
@Indykitty1 Yes the nurse who prescribed my meds a few years ago said she could only ask me those questions about effectiveness and side effects of the meds. I would have to go to a separate psychologist or cognitive behavioral therapist for any deep life discussions. She did offer a little advice but her job was not to talk out the problems.
@@Indykitty1 Agreed, anyone will struggle to get more than medication prescriptions from the vast majority of Psychiatrists, multimodal approaches aren't typically part of their approach. They generally hand over to other practitioners at that point which can make multimodal therpay a bit clunky (which in turn can certainly serve as a disincentive to try that mixed approach for many folk).
Yes, I 100% understand what everyone is saying, but unfortunately on the NHS you only get access to a psychiatrist to check on your medication. Even if there's suspected comorbid conditions (although I understand that you have to work on 1 before seeing if there's more). What I'm saying is, if you can't afford a psychologist/counselling/behavioural therapy then you just end up with someone who asks about your meds.
The last time I saw a psychiatrist it felt more like a police interrogation than a medical consultation.
oof yeah I feel that. Even though I have this whole channel about it, I still get met with suspicion.
Had a change of GP, so I was dreading the controlled drug interrogation. So much anxiety 😫, but a good new GP was good... they do exist, sadly rare
Crane it’s understandable that they would be thorough when trying to diagnose and prescribe a medication, but it’s absolutely unacceptable for a lifelong diagnosis (which is often diagnosed in children, where it would be incredibly unlikely that they sought a diagnosis to get and misuse medication) to be treated like a ploy to feed an addiction. If a person has a standing diagnosis, follow up appointments to get a prescription renewed should be treated like a check-up (ie how are you sleeping? is the medication causing unintended side effects? does your dosage need to be adjusted? etc) not an interrogation.
I had to explain several times to my GP why I thought I needed to try medication and I was still advised to see a psychiatrist first, even though I was already diagnosed by my therapist. When she heard I did not work when I first raised this discussion, GP prescribed me antidepressants (which I needed too) and suggested between the lines that in daily life I'll be ok without meds since I don't have to do hard mental labor. Duh!
@@rizznrita also they could look for signs of addiction or ask u questions abt ppl u know to figure out if they're addicted. For example "does anyone u know seem to be severely lacking in sleep?".
I wish people understood this. Everything you need to do to get meds is made exceptionally difficult by ADHD. It's a nightmare.
It really is. There is so much anxiety trying to navigate all of this, on top of the stigma around even taking stimulant meds in the first place. Thanks for watching
How to ADHD, What you’re going through Jenna, is one of the reasons why I had gotten off of medication.
@@Joy6168 Jenna? Do you mean, Jessica?
It's sad that when I started meds, I deliberately undermedicated for the first month to build up an "emergency reserve" of pills (all of a week worth).
Already, I've needed to break into it twice.
TimTom you have ADHD too!? I guess I'm not too surprised, very true statement.
There's a mantra of "you need to get help, you need to get help." Medical help needs to be available, affordable and accessible. Period.
THIS OMG
“Don’t give up if they dismiss you because you’re smart or because you’ve succeeded so far, when you know what it’s done to you on the inside to make it this far”
I’ve never heard it said better by anyone in my life. Thank you so much. I think you’re the only person in the world who really gets it.
carlmckay9862 My parents and teachers told me "Why are you so smart but cannot master such elementary sciences as arithmetics or algebra. Why are you so dumb but smart at the same time? I cannot predict my own behavior, (ergo-hyperfocus) so how did teachers try to predict my behavior if to the present day I cannot predict my own behaviour? It is still a mystery to me. People with ADHD have strong willpower, but it is directed in a wrong direction. If you direct their willpower a right way, they will achieve many great things.
@@ildart8738yo bro we are in the same boat glad i am not alone!!
Edit:Adhd ruined my life
I couldn’t agree more
Yep. This line broke the dam.
Thank you for posting this video. I've learned to live without medication but most days it's extremely hard.
I finally had to ask the doctor, "Why is this so hard to get you to take seriously?" I think it shook him a little.
Good that you shook him up. Sad that you actually had to ask that question. You asked for the whole tribe. Thank you. You were brave.
@@92RKID I don't know about brave. I was very angry at that point.
Uncle Sunbro good for you! Hope it nudges him to listen more
How did he respond to that?
Honestly, I need to ask this question to a lot of people in my life, really badly, thankyou for helping me identify that need
Well said. ADHD “treatment” boils down to “Don’t have ADHD.” It’s barbaric.
YUP; so true!!!
I had a doctor who told me that being an adult I should be able to handle myself and he offered to put me in psych clinic, I only needed a prescription for my medication.
Substance abusers...
@@St.Raphael... loser
CryptoAUBS...let's unpack that thought.
Why am I a loser?!
I am a therapist with ADHD and this is a real thing. I try to treat my people as best as I can. I hope everyone else can find a therapist that does.❤
@@zackeriahswartz3776 Therapists cannot prescribe medication, only psychiatrists can.
Correct medical doctors
I don't have ADHD, but I can SOOOOOO relate to this!!! I'm diabetic, and my doctor and I have been trying for more than TWO YEARS to get medicine added that my insurance company will approve. My doctor will prescribe something, then the insurance will say no. Then she'll try something else, and they'll say fine, but it's $500 out of pocket (which I can't afford). Meanwhile my blood sugar is out of control, and there's not a damn thing we can do until we hit on their magic formula (which they won't tell me what medicines the doctor IS allowed to prescribe). Anyone who says that the US has the best healthcare in the world is seriously delusional.
Yes, I have had many hassles getting my diabetic meds. As to the ADHD, my doc blew me off first time...then I started seeing a counselor, she sent me back, he tested me and I am now on those meds. None of this is easy.
Can you talk to your state's insurance commissioner? Apparently insurance companies are slightly afraid of them and will listen. They should at least say what drugs are Ok.
@@burtonkent4549 Thanks, that's something I didn't know even existed! Appreciate the info! :)
I am Diabetic too. Lucky my insurance pays, but I looked into a backup plan in case I don't have insurance one day. If you are in the US, diabetic medication (insulin ) is a fraction of the US retail price. It's still more than I pay with the insurance in the US but if I had no insurance I would go there to buy it. I actually went across the border and picked up a coupe of boxes. The pharmacist that I bought it from said that a lot of people come from across the border to get such medications. You may want to look into doing that. That's horrible the insurance company won't pick it up. Our healthcare system is horrible.
Your blood sugar is out of control because you keep adding thi in your mouth that puts sugar in your blood 🤷🏽♀️ it’s not rocket science!! Veggies and meats PERIOD!!! Nothing else and you won’t be killing your self. Type 1 is a different story but no one else has any excuse but greedy and gluttony
I once saw a meme on Reddit where the caption said “what navigating the health care system with ADHD feels like”. The picture was of a dog holding the end of its own leash in its mouth.
why did that make me teary
Brilliant
Add signs showing arrows pointing in opposite directions and that’s it exactly
Unhook the leash from the dog’s collar and let it dangle.
Sound about right , I got adhd and I got as much help as the Africans have got water 👍👌
"I feel like I've been trying my whole life to figure out how my brain works and to do my best" - this hit hard
Legit started crying
Totally agree! The system is broken.
Me too 😢
I'm proud of my effort, but it's exhausting. And people who aren't ADHD just don't get it.
Me too but only got my diagnosis at 36. I wish had had known sooner so my life woulda turned out better.
I'm a pharmacy technician with ADHD and I completely understand. My heart breaks every time I have to tell someone that their med is on backorder or insurance won't pay for it because they're an adult. A few of my own coworkers go on rants about how these days, anyone can go to a doctor and say "I can't focus" and they'll come to us with a prescription for Adderall. Or how when they get upset that they can't get their medication, that it's just because they're addicted and want to keep abusing it.
I completely understand that there are people out there who do abuse ADHD medication, but I get so angry when my coworkers scoff at our patients who are getting meds. How do they know that whoever it is doesn't actually have ADHD? And it is NOT that easy to get a prescription for Adderall. At least not for me. This year I started my own journey for finding a medication that works for me. I had a therapist that knew me really well and believed me, but he couldn't prescribe me anything and then he got a different job. I started seeing a psychiatrist, but even after I came in saying I had been diagnosed by a mental health professional, towards the end he told me that he was still on the fence if I had ADHD. For that and a few more reasons, I started to have anxiety when I see him. He eventually prescribed me one of the meds, but it was a nightmare to actually get it filled. My usual pharmacy told me that they had stopped manufacturing the generic a while ago (a total lie because I knew for a fact that the pharmacy I work at had plenty of it and had no trouble getting it in). So I took the prescription to my work (on my day off) and my coworker told me that my insurance doesn't cover the med for anyone over 18yo without a prior authorization. Because either ADHD magically disappears when you turn 19 or they just want you to suck it up and stop being lazy or just try harder. So I call my psychiatrist's office and ask them to work on the prior authorization. By the time Monday rolls around, they still haven't done it. So I called them again and they just told me to try the store discount card because it would probably be cheaper anyway. It was $98. Next day, I called them AGAIN and the guy I talked to got it done in less than an hour. Even with the PA, I still had to pay almost $70 for a one-month supply. I started taking it and I haven't noticed any effect yet on my ADHD symptoms, but I was short of breath with an increased heart rate and I started to feel nauseous when I tried to eat food I would normally really enjoy. I have enough trouble eating enough as it is without getting nauseous about my food.
I just started college and I was trying to get accommodations for my classes. They told me to get a letter from my psychiatrist at my next appointment which, at the time, was a couple of weeks away. When I was finally able to talk to him about accomodations, he questioned if I really needed a couple of them and because I'm a doormat, I gave in and he didn't write those ones down. When he wrote the letter, he didn't do it right and the accommodations center at my college told me he had to rewrite it. So I gave up on accommodations because I didn't feel that I was worth the hassle and there was no way I was going to push for him to write it again because of the anxiety that he's been causing me. So now I need to find a new psychiatrist and I probably also need to try a new med that may or may not be on backorder at every pharmacy in the area and that may or may not even work if I do get it.
I know this is 3 years after the release of this video and probably no one will see this comment. But I'm really frustrated about it all too. I needed to see this video today, thanks.
I just want to share a personal story, so I go to college at Indiana and I have been diagnosed with ADHD when I was 7. More than a decade ago, I’m 18 now. My college’s Disability services straight up told me that because my ADHD was diagnosed a decade ago it’s not valid and therefore I need a new diagnosis. Which for the record costs roughly 3000-4000$ alongside tuition. I have had this condition for as long as I can remember every day was a struggle, and it infuriates me that this part of me was so unexplained for a long time. I’m thankful that I found away around this particular problem but it’s important to address that this is a problem. Later into the first year of college I had a math exam and the professor did something that really impacted me, he pulled me aside and asked me “hey I notice you’ve been struggling but you do every problem and seem to run out of time? Would extended time be beneficial for you?” This surprised me because I had genuinely had no idea that I didn’t need approval to get support. So yeah this video hits close to home and it’s one of the things that I want to change.
So, according to them, ADHD just goes away? 🤬
Only reason I can think for that would be since we're constantly learning new information they might want to be sure your diagnosis was still correct. It's still super sucky of them though, esp knowing how expensive it can be. They should have at least given you some options like "Dr SuchAndSuch works with us and gives students discounts" or something.
I m from India .I have same prblm what shd I do .plzzzzz tell me
@@pranksandcomedyaroundworld7475
To be perfectly honest I do not know. I can't provide guidance but what I can say is if you are financially stable and can get a diagnosis and talk to your school/college about it and dont be too harsh on yourself remember our brains work differently than neurotypical people and it'd not your or my fault. I hope this helps!!!!
I’m tired of feeling like a criminal for asking for meds. Or that others get treated better because ADHD is just lazy
I talked to a doctor a few months ago where I told him that my goal is to eventually get off medications if possible. He told me I was the first one to ever ask him that. Mind blown
@@kevindenney7582 Why would you want to be off med?
@@merturquoise9661 To be able to find ways to manage your ADHD mind without medication. I'm sure everyone would opt to go that route, I'm on medication as we speak. and I'm taking it to make sure I'm "stable" while I'm stable I'm hoping I can find methods and other sources to help me other than being on medication.
I still remember the look on my Dr's face when he realized that I wasn't a drug-seeker and that this ADHD thing has to be real and I have to have it because nothing else would explain me. :P Also....what makes you feel like you have to get off the meds? If you had diabetes would you be trying to get off insulin? ADHD is not a contest. There's not beating it. It's just the way your brain works.
Thank god I'm not from the USA but even here they make it harder on us to get our medication regularly. I have to go in every 3 weeks to get it because I only get one bottle now where I used to get two. I assume they're doing it to keep people from selling their medication on the streets but that's not my responsibility to stop, its the polices responsibility to stop drug abuse.
Flashback to the time my therapist said I didn't have ADHD bc I "wasn't impulsive and inappropriate" enough. That my impulsiveness just "didn't impress her"
Both those adjectives. Let alone the diagnostic strategy. Jesus Christ.
flashback to the time my therapist literally told me I am just a brat and need to grow up
Flashback to the time the therapist shamed my mom for taking me for an adhd intake accusing her of expecting too much from a kid (I was around 20).
And ended up asking us to leave and never come back unless we had something serious to talk about.
Holy- I didn't realise how terrible mental health services are globally.
Hope you guys found the understanding therapist. I'll try my best finding one too.
mine apparently did, my MD knew i had adhd since i was a kid when she was treating my brother
Don't forget that missing appointments is a reason health care professionals will drop you and refuse to treat you. So you are punished for having ADHD instead of helped.
I know this video is old, but it absolutely broke me. It was relatable to the point I was getting pretty emotional. The pain and struggle of dealing with the Healthcare system in regards to these medications is almost as bad as adhd itself. It's always a fight. Always an inquisition, and it does not have to be this way.
To anyone else out there struggling to get their proper meds, my heart goes out to you.
People will sit here and try to tell us that adhd is a lie fed to us to get us to buy meds and yet its this difficult for us to get meds? Make it make sense 🤷
Yep, perfect logic in an illogical world!
Ignorance and flippant treatment of people is a problem...
Hi my name is Austin, I have felt ashamed of myself and dumb my whole life.
I didn't know I had adhd, but once I did I still didn't get the right treatment.
Posted above I listed some facts, I hope they help.
It was painful being alone, come take my hand lets make a communityC:
People who think ADHD isn’t real have never really experienced someone with serious ADHD on and off meds.
U
“[B]ecause I don’t know if my mental health is worth an extra $50 per day” whew, this is too familiar.
Sarah T saaaaaaaame. Hard same.
Only in America. Greetings from Germany.
Sad, but true...
I wasn’t sure mine was worth 800$ to get re-evaluated by a clinic who would want to prescribe me the right meds, but after years of struggling, i decided it was.
Get a loan if u have too ur mental health is worth it by a partical amount until u can get into the drs
It’s such a relief to hear other brains have struggled with this as well. US healthcare system is not ADHD friendly. It’s very difficult to find a doctor or providers that takes the disability seriously. We shouldn’t have to suffer so much just to get help. I have and have heard too many horror stories just for people to get help. Humans shouldn’t be treated less then for needing help.
00:00 ADHD Treatments: Are They Truly ADHD-Friendly?
01:16 Challenges: Missed Appointments & Accessing Medication
02:16 Navigating Health Insurance & Locating ADHD Specialists
03:19 Hurdles in Securing ADHD Medication
04:24 Advocating for an ADHD-Friendly Treatment Process
05:36 ADHD Care: Beyond Just Medication
06:38 Healthcare & Insurance Barriers in ADHD Treatment
07:41 Despite Challenges, ADHD Treatment is Crucial
Thank you for shedding light on these vital issues surrounding ADHD treatment. Your dedication to raising awareness and educating the community is truly commendable. Keep up the amazing work! 👏🌟
Thank you ☺️
Damn, this made me cry.
In Norway we have a "tounge in cheek" -saying: "You have to be healthy to be ill." -Meaning the helthcare bureaucracy is so infuriating convoluted that you won't be able to navigate it when actually ill.
Exactly!! I've often thought this, but have never been able to put it into words, let alone so succinctly. Thank you for sharing.
Wow, that saying is a good way to put it
We have the same saying in Sweden, and even our level of abusive bureaucracy should be criminal to even implement, not to mention the infinitely worse corporate bureaucracy Jessica and other US citizens and inhabitants suffer.
K8 Mae They care so much about mitigating risk and not about accommodating our difficulties. It’s truly infuriating.
😦😭
I feel this so hard. They treat adults with ADHD like we're criminals or addicts. There's a ridiculous amount of hoops to jump through and the doctors don't even care about how you're feeling.
There are very few doctors who care. I have been blessed and fortunate enough to find a Psychologist and Psychiatrist that care.
@@Caramel1806 I’m very glad you found a doctor that actually cares, I haven’t yet, and because of that I’m still on treatment that’s ineffective.
I'm a 59 year old woman. I was diagnosed with, "Hyperactive Disorder," when I was 7. It was new and my doc was sharp. My meds finally work. It's taken so long. I understand and I'm tearing up. Thank you for your channel.
I'm a 22, before get meds I lost my ID, my phone and many, many things, many many times, and in the blink of an eye I forgot where I put my phone. however, meds can treat limitation. when you are young, Is there medicine for the disease, I feel soooo lucky I can buy meds to help me, even if it's a little expensive. I can't imagine rest of my life without meds
Thank you for this video. Currently in my car, crying tears of solidarity and pride in your journey, as I’ve just faced the toughest two weeks in the same position searching for medication during the nationwide stimulant shortage. Two years later, this message still resonates. Thank you.
I hope you have been able to find your meds. I am 64, diagnosed at 34; I could tell you so many stories about not being able to get meds, being afraid of running out, running out and trying to cover at work - it sucks!
I'm glad that I'm not the only one who cries or seems sad when really angry
Omg yes!! I thought I was weird because I did this. Glad someone else does too :)
its actually really common. I'm not sure why the body's reaction to strong emotions is to constrict breathing and burn your eyes, but here we are. Because of my brand of depression, even on medication; every emotion for me is some flavor of crying.
@@xSaraxMxNeffx According to tumblr crying is an emotional release. With mental health emotions are heightened so anything that causes an overflow of emotions could trigger crying.
Oh man, this is my experience, too. One time I was completely disrespected by a surgeon, and although I defended myself, I was on the verge of tears during the entire encounter despite my anger. So frustrating that our "aggressive emotion" can come out as "weakness" (in the eyes of others).
That's my secret....I'm _always_ angry
The biggest thing about being told "you are smart" is that they don't address where you are smart. Sure, you excel at your job, but your personal life matters can be in complete shambles.
So tired of "smart" and "successful" meaning only "Of economic value."
Yes. Or you have fantastic relationships and excelled at school, but can’t hold a job down.
YES. Everyone thinks I’m really smart cause I’m good at math but I literally am so dumb in every other way.
100%!
This makes me think of how I would get good grades in school because I was good at guessing and bs-ing my way through tests off of the bits of knowledge I retained, or skimming the textbook chapters for how to do the homework, but I had trouble paying attention in class, and the reason I was skimming the chapters was because I hadn't read them. I hated being praised for how I was being so successful in life when I felt I didn't really deserve it and was just getting lucky. Because I absolutely did not have good work ethic. Thank goodness I'm graduated from college now and don't have to worry about schoolwork anymore
(As well as the personal life being in shambles)
I get this. One of the barriers here in Texas is that you need to schedule an appointment every month due to it being a scheduled drug. If I fail to get my pills it takes months to get back on track. Our system is terrible. My God I've learned more about myself from RUclips then I ever did from a doctor.
I can't thank you enough for creating this youtube channel. I am nineteen and I am 100 percent sure that I have ADHD. Before your RUclips channel everyone my parents thought that I am just lazy and can't complete my tasks and I just don't care after a while when ADHD started affecting me a lot in everything mostly my studies I also thought that maybe I am just useless , lazy and a disappointment so thank-you for creating this RUclips channel. It was so hard for me to tell my mom about this that I have ADHD but she doesn't believe me and thinks that it's just a excuse and my father won't believe me either though he is a child specialist doctors himself. So I won't be able to get meds or anything but your videos help me a lot to cope with my daily life struggles thank you for the support I really wanted it. I started crying in the last part of the video thank you for not making me feel alone. I will go to a doctor when I become financially able because my parents will never agree but I wont give up anymore thank you ❤️❤️❤️❤️❤️❤️❤️
At 19 with health insurance you can go to the doctor. At your age they can’t tell your parents why you are at the doctor.
Same here brother😢. Now here in hostel life I am struggling with it. And I have the inattentive type predominantly. But I guess I will never get the help I need in my country. Mental health is a joke here
This actually describes a lot of the healthcare system - "Oh, you need help for your debilitating condition? Are you sure? Are you really sure? Are you really, really, really sure?" Something here has got to change.
Hahaha :)
And then there are people who are in a depressive mood for a while - not suffering from clinical depression! - whose doctors instantly want to give them anti-depressants. And doctors who earn a reputation for being "trigger-happy" when it comes to describing ADHD meds to a lot of children ... As if it were so difficult to do the right thing based on what you know. No, it has to be either refusing people the meds that might help them or overprescription nonsense.
My ex had a doctor throw his script on the floor and called him an addict when he tried to get his pain meds refilled. No compassion. Now mds are afraid to write scripts for those who truly need them and dope fiends just come up with new scams to trick the system. We are a sad sick country.
It’s because of “The War on Drugs” and government subsidizing a few mega pharmaceutical corporations with billions of dollars, plus a library of arbitrary regulations and fine print.
When I went to a general practitioner, between the Dr and pharmacy the prior authorizations were a nightmare! Once every year, I’d drop off the prescription, and get a phone call saying the insurance company wouldn’t cover it, and prior authorizations usually take a week.
So I put a yearly reminder in my calendar, and a month early, I told the pharmacist it was about to expire; would they please start the process, so I don’t run out completely?
Their answer: “Oh, we never do that until after they’ve refused it.”
Update --
1) My doctor said to have the pharmacy fill the prescription for just 1 week, which was cheaper than paying for the full month, while we waited for the pre-authorization.
2) When the pre-authorization went through, my insurance still wouldn't cover my meds. They aren't in their formulary.
3) I use a discount card now, which helps a bit, but I still have to tell the pharmacy every month that yes, I understand how expensive it is, before they will fill it.
4) I'm considering switching back to a medication that didn't work as well for me because my insurance will pay for it.
I'm a mom to a beautiful Adhd'er like yourself and I just want to give you a virtual hug. I hope that things change soon. You all deserve to live your best lives medication included.
Hey, everything is going to get better :)
@@daniek120 thanks :) it's just frustrating. And expensive.
I really appreciate how honest and transparent you are about your struggles with ADHD. There’s no simple solution or short answer for a lot of the struggles we go through but it really helps to know that there are others that go through the same difficulties everyday. I hope an easier road is paved for us to work out our lives and be successful with ADHD.
I am so upset for you. Legitimately so upset. I wasn't told that my lack of emotional control might have been impacted by my ADHD as well until I found that out mid high school online. You're seriously so important to so many brains and I am so mad at the stupidity here
This struck a chord with me. I have ADHD, but I was diagnosed back in 3rd grade started a medicine, taken off that medicine after a short time, and never treated for it again. When I was 18 I was diagnosed with an autoimmune disease and dealing with the combination of both of these and the medical system that did not believe me or at least thought that I was not as bad was very harmful. I have had agony because I procrastinated calling my pharmacy/doctor/insurance to tell them to call each other and get me the medicine that I needed to just be able to get out of bed so I end up in my bed in pain and agony with huge brain fog on top of ADHD brain that I did not understand calling 2 or all 3 of them to say call the other up to twice a day. This last time that it happened, I spent a month in bed with my boss mad that I was not at work. When I finally got my medicine and went back to work I was given a warning that I could not have any mistakes or I would lose my job. I was just a few minutes late (that was not my fault) and fired. We need to fix the healthcare system and employer attitudes.
I feel ya. We're kind of taught to look up to doctors, psychiatrists and therapists, but honestly, the lack of compassion and sheer ignorance and incompetence on display in these fields can be downright staggering. It really can make you feel incredibly frustrated, lonely, overwhelmed, helpless, and hopeless, because you feel like you have to figure EVERYTHING out for yourself. At least nowadays we have the internet and terrific resources like your channel so we can help each other out and build on the knowledge and experience of others.
Not anymore, not after Covid!
I feel like I know more about some things than the professionals
I feel like when the doctor sayings you don’t have adhd, it’s like “oh you don’t have adhd, you are perfectly normal and functioning well” but obviously you are seeking out treatment, you are not functioning well in some way and you owe to yourself to figure out what’s wrong. I wish there was more support but the healthcare system is very constrained in terms of resources and money.
Ooooh yeah! Omg I wish ppl were more considerate 😖😥
Our daughter has autism, but she has had four psychological evaluations and no one ever found her to be autistic. She is fourteen years old and this last psychiatrists finally saw what we saw and she is now labeled as being on the autistic spectrum. First off, the therapist couldn't understand why the other psychiatrists didn't catch her autism, and then he says she is functioning at a higher level. I get no two autisms look alike, but her functioning is so impaired that it makes day to day living a struggle regardless of how much she is autistic.
Way to much stigma around ADHD. I was diagnosed with ADHD around the same time I was diagnosed with sleep apnea. I mentioned to the doctor at the sleep clinic that I was diagnosed with ADHD and going on Adderall. He told me I didn't have ADHD and that Adderall "helps everyone." Fortunately, I had what I needed from that doctor and never went back to see him ever again.
This would be like making someone with a broken leg walk around to get their cast fitted or get a wheelchair.
@@samarnadra That mentality - to judge people over things you're ignorant about - is most common in conservative states. And conservatives ppl are the main ones who can't accept that ADHD exists. A lot of right wingers are judgmental of poor people, too, and others they don't want to help, but don't want to feel guilty about not helping.
This comment is everything.
@@anarcho-communist11 Don't make this political. I'm an independent leaning to conservative. You do a disservice to many to label in this manner. Humans don't understand. Political party is not part of it.
@@samarnadra These are the kind of people that do everything according to the book, without thinking about common sense.
It's common sense that someone who is injured and had difficulty walking can't travel to get their crutches.
But common sense goes out the window, and they're pretty much just reading the script.
and have to do it again every month, and the leg never gets better.
And x2 a month if you have two separate prescriptions, both controlled substance. And they cant fill one of them for a week or two, so you have to decide whether you dont take one for a couple weeks till you can refill both at the same time or just habe to deal with the pharmacy twice a month.
I am very thankful for these videos that you make. As a kid I always struggled just about everywhere but I couldn’t possibly have ADHD because I was too “smart”. It wasn’t til last spring that my mom got diagnosed after a childhood of my parents telling me that I couldn’t possibly have ADHD that I decided to get evaluated. Doctor after doctor and multiple therapists telling me that I’m “just depressed and anxious” or that “it’s just childhood trauma”, telling me to stay on SSRIs. Like, seriously, take me at my word. I cannot focus no matter how hard I try. Starting stimulant medication completely changed my life, but still, I am stressed for the time that I’m going to eventually move, change doctors, and have to go through that process again. ADHD is a disability and I’m sick of not just doctors, but friends and partners treating it like a quirky disposition that I’m choosing to put on. I am a competent adult and I intend to be treated with dignity and respect.
"I am a competent adult and I intend to be treated with dignity and respect." Love this! I have to start telling myself this too.
"ADHD is a disability and I’m sick of not just doctors, but friends and partners treating it like a quirky disposition that I’m choosing to put on."
It doesn't matter how delicately or carefully I explain it, my partner still seems to think that I chose this, and that I'm trying to drive a wedge between us. At the moment I'm doing everything I can to keep us drifting further apart by educating us both, but I don't think she's really believing any of it yet.
THIS. I was diagnosed about a year ago at 16, So many people have told me that my attempts to explain my behaviour and issues on ADHD (rightfully so!) is me using it as an excuse. It’s Especially when they are also uneducated about ADHD… on top of the fact that NO you do NOT know more about how MY medical condition effects ME than I do?! I know it’s been a while but I hope that the people around you treat you properly now too. It really is frustrating and I really feel for you. Thank you for this comment
Sweetie, I feel for you so much!! I have had a psychologist tell me “it’s learned helplessness.... you need to try harder... it’s anxiety”, when I’ve had multiple professionals say it’s ADHD. After paying out of pocket for that evaluation. Yes, even my university refused to help adapt for me with a referral letter. I withdrew. I am grateful for how I’ve been able to navigate & be resourceful to land my dream job and build off my career to land in instead of struggling through my degree. My wish for the world, is accessibility ❣️🙏🏿
my heart goes out to the americans with ADHD it sounds like it is horrendous there
It is.
Where do you live?
The US definitely has an incredibly sheety health care system! Even in Germany where it's pretty okay normally I experience a lot of the things jess describes. Everybody with adhd probably knows some of these problems and that's so sad, it really shouldn't be like that...
Yeah we're not doing great.
The one good thing is that we have access to proper stimulates here. I'd hate to have to survive on Vivanse.
I have a doctor's appointment in 20 minutes. And because I'm uninsured, I get the pleasure of spending $300 on a degrading and humiliating appointment that I am forced to go to to prove that I'm not addicted to adderall. I haven't watched the video yet though because I cried enough on the phone making the appointment and I'm struggling to hold it back now.
I'm so sorry. Sending hugs and support. You got this.
Doc chuckled and tried to make it out that I was unreasonable for thinking that being forced to come in every 3 months to make sure I'm not an addict is degrading. He even had the audacity to tell me that he understood my side of things after I had explicitly asked if he had ever had to do what I was doing, which he hadn't. Doctors just really don't care about us. We're just an addict they control.
forgotn1. Please find a doctor that treats adhd
@@ys-kv3ug Hard to do when you don't have insurance. :/
Its so embarrassing when you can't keep it together and cry on the phone when everything reaches a head. Sorry man. Been there it sucks.
I am just starting my official diagnosis process but I’ve been sure I’ve had ADHD for years. I reached a point in my therapy where I was ready to address it head on this winter. I watched your TED talk and felt like you were telling my biography. Then I’ve been listening to your videos through my RUclips premium subscription. Your information has brought me so much peace. Thank you for your work!
Best of luck! I hope the process goes smoothly for you 😊 And thank you so much for your kind words, we're glad our videos could provide you with some peace. And thank you for watching and supporting what we do! 🧡
45yo man crying here. The only help and support I can afford *is* youtube channels. Diagnosed ADD early 90s, Dex 5mg for a few years, and unmedicated ever since because even in australia I can't afford to be an adult with adhd treatment. Some days its really difficult to not give up.
US "health" care is such a joke. For those of us with any sort of chronic condition it gets exponentially worse. I'm behind you on everything you've said here.
Especially when chronic health conditions wear the patient down and are something we have to deal with and manage daily. For those with chronic health conditions getting the treatment they need can be out of reach because in order to receive treatment they need to do things and stay on top of things that people with their chronic illness can’t do... WITHOUT TREATMENT to help them. It’s so backwards. A complete catch 22 where you need [x] to get [y] but you can’t get [x] without [y] so then you got to get [y] but you can’t get [y] without [x]... etc. I’ve been exceptionally lucky to have people close to me who can help me advocate for the care I need to get but if I was in a less privileged situation with the health conditions I have I would straight up be unable to get the necessary treatment because I wouldn’t be able to get myself to doctors appointments regularly
L from where in Europe are you from?
@L Where, in the world, are you from?...
it's really hard for English people to understand the US health care system.
@L Let's come back to original question: which EU country are you from? :)
So many people see ADHD as a moral failing. So many people think I need to try harder. That’s not even to say how hard it is to get medication, or how hard it is to get psychs to take it seriously. It’s so difficult to find someone who even knows how to treat ADHD. YOU have taught me more about ADHD than ANY of the SIX therapists I have seen.
This channel is my only qualitative source for support. I've tried so many things, so many professionnals. They never gave me info on myself. They never seem to know what to do with me. "Make a to do list" is the peak of their input.
Somehow this video made me want to try again, because at least I live in a socialised healthcare system where the administrative burden is much lower.
@@vincentphilippart4669 I’m sorry friend. I hope you know many people care and are cheering you on. I hope you find the in-person help you need :)
Couldn't agree more! How to ADHD videos are a lifesaver!
Dyslexia is similar in other ways and trying to have help without feeling singled out in a general group is really hard. Hugs.
@@elizabethjanetugby4695 hugs to you friend
I have autism, bipolar, and ADHD. On top of that, I have heart issues. And half the time I can't afford my meds. Right now I'm lucky and can, and I take 'em. But it is so, so, so hard.
Thank you for this video. It's bloody hard. Mental health matters.
As a person (specifically us women)on Medicaid with substance abuse history (sober 3+years) living in the bronx, they will never care to make getting a diagnosis available to us. Let alone medication. Let alone stimulant medication. Which is what actually works. In other words. You have to be a certain kind of person to even have the chance of treatment. Knowing I'm not and never will be "that person" just depresses the hell out of me.
This must be soo difficult, I am sorry to hear this. I do not understand why the medical world has to be soo difficult and annoying.
Wow, I had never even considered what that must be like. I am so sorry. It's been hard enough for me to get treatment as someone without that kind of history, and even I have dealt with doctors who, though they don't say it, clearly think that I can't possibly have ADHD: since I can sit still and seem intelligent, I must be another drug-seeking college student. I have even had doctors send me for drug screenings the moment I even mention medication. I can't even imagine how impossible it must feel for someone in your situation, and my heart truly goes out to you. You deserve medical care just as much as anyone else.
I was amazed that after my diagnosis I wasn't offered anything other than meds. There's zero post-diagnosis support for adults.
Yep. My psychiatrist suggested therapy, but not because of the adhd--for some grief and trauma that came up in the diagnosis convo.
Manda Celestyna same. I was offered psychology appointments only because I I have Anxiety Disorder, none of it was because of my ADHD. I had to TELL my psychologist to help me with my adhd before she even mentioned it.
This was my experience. They just asked me what meds I was in as a kid and prescribed that
And then most insurances refuse to cover adhd coaching...it's ridiculous.
I was given a workbook but no tips on completing it so I powered through the first chapter that day and since then it's been in my ever-growing stack of "things I need to get to". I'm grateful to have it, but it's really hard to focus on
as a medical assistant with ADHD, i am. forever infuriated and devastated by how UNNECESSARILY chaotic, unorganized, and downright greedy the healthcare system in the USA is. because that's what this is. this is a failure of the system as a whole, in every aspect, not just for mental health but for a staggering majority of conditions. it's shameful.
the US healthcare system is not patient friendly. period. and it breaks my heart.
“the US healthcare system is not patient friendly.” omg this. a no-brainer concept and yet we’re holding on to this awful version of a healthcare industry. we need change and i hope it comes within our lifetime. and major kudos to you for being a medical assistant! 💛
Paige, unfortunately I think this is a reality everywhere. I'm a medical physicist from Brazil, and here we have the same problem. I have ADHD too and work with Quality in Healthcare and it's so difficult to see that the health system likes to be chaotic and unorganized.
Like Dr. Don Berwick sad, the healthcare system needs systems thinkers, and we, with our gift, are that naturally.
I was a dental assistant for well over a decade and I left because of a combination of exactly what you're saying and having autoimmune issues along with ADHD.
I just became so disgusted with the field of Dentistry and now over the past few years of trying to take care of my other issues I find that it's not only Dentistry that has fallen apart but pretty much every aspect of Medicine.
The US Medical system is a sham
worse then snake charming medicine men selling holy water.
@@amberdow6218 i wouldn't go that far, if only because the medicine we do practice today can and does save lives, and is backed by science. the main problem within the field is ease of access- both literally, and financially.
I relate to this so much. Not just that, but when you're in this incredibly angering, frustrating situation -- and you DON'T act calm, collected and neurotypical -- they can turn on you and revoke assistance at their whim.
I only learned through your channel that my struggle actually wasnt, what "everyone has to go through in life" as my family and teachers told me. And I only recently understood that no one percieved my struggle as "worth beeing helped" because no one understood it. It was only when my ptsd symptoms got the best of me that I was (finally) diagnosed with adhd, even tho I had much bigger problems then that at the time...
Amen
Don’t even start me on how hard it is to have parents who don’t believe in medication, therapy, but still compare me to their neurotypical children. That didn’t even get me extended time on my highschool placement/entrance exam. I should have been in honors, but instead I was in basics with extreme support.
My parents are like this too!
So sad you both experience this. :(
Hi Nora! Adhd usually runs in the family in some form. My youngest son was diagnosed this year with add and when I talked to the psycologyst, I told her that I was surprised because I am pretty sure my eldest son was more likely to have adhd. She said " your most probably right that he is adhd but right now he can lead a normal life and your youngest can't". I say we are an Adhd household because I believe I probably have add as well. However still, as a parent it is SO SO HARD and heartbreaking. I want my kids to have a good life without too many hardships and we live in a world where different is n't easy. Therefore, parenting my kids to be "normal" is not as easy and maybe not good for their mental health... as a parent I feel lost in accepting my child and trying to prepare him for life...
Elena Marco, my advice as a 15 year old with adhd innatentive, is to accept his challenges, don’t make fun of them, stop your other family members from making fun of your kid, and put their needs before your beliefs on medication therapy or accommodations. With these things ( love, support, acceptance, school accommodations, medication, and therapy) your child is a lot more likely to not develop anxiety and depression disorders as a result from lack of support. The first three are non-negotiable, but your family can make the decision with your school and doctor on what accommodations would be helpful and if medication could help. Get your kid in therapy before it’s needed. Not only would it give him a place to learn techniques and coping skills, but can also “catch” the depression and anxiety early enough it’s not with them the rest of his life. Also, try and be orderly when getting referrals and iep/504 forms filled out. And if he does get in therapy, check in to see if he likes them. I hated my first therapist but my parents didn’t tell her about my adhd until the last session before she moved away.
@@elenamarco4785 I'm going to have to negotiate this train of thought too, but honestly, everyone has something in life that they find especially difficult - ADHD just happens to be something that has a recognizable pattern and we kind of know what to expect. That being said, I know my older son at least will have difficulties with things that other kids find to be easy, but they're the same things I've always had problems with, so here's hoping we can figure it out together!
I dont understand why this is considered a psychiatrist thing in so many countries? Ive been going to a Neurologist for 6 years now and according to him, ADHD is a Neurologist jurisdiction, not a Psychiatrist. As a Psychology graduate, I 100% agree.
I'm a psychology masters student and I have to agree with you. At the very least it's neuropsychology.
What's a neurologist? What makes ADHD a neurologist jurisdiction rather than psychiatric? This is the first I'm hearing about this, so I'm very interested to learn more.
Paraticristi a neurologist is a doctor that specializes in the brain. The thing with adhd is that our brains are different than a normal brain. We have chemical imbalances and other things that make our brains different from everyone else.
@@DjurslandsEfterskole I agree with the question. I had never thought of that. Glad someone thought to ask!
A cat with bread on its head I completely agree with you! That’s I’m going to do my masters in neuro psychology. We need more neuro diverse Heath care providers
Thank you for being vulnerable because I've been facing this issue for months and I'm glad to know that there is a community out there who knows how I feel. It's been a nightmare figuring out the medical system with ADHD. You and your channel are SO SOOO cherished!
I got diagnosed last week with ADHD, I’m 40 tommorow! Your videos have been like a guide for me on what to expect! I know this is an older video but your still appreciated so much because anyone with ADHD watches this it will make more sense because this is real life and real things happening, I have combination adhd and was prescribed with 30mg of elvanse for the first month, day 3 I feel like it’s gonna be ok! Thank you x
I know this will probably get buried, but if anyone who reads this is in the Portland metro area and struggling to find a doctor/therapist who can help, contact NW-ADHD. They're an ADHD clinic that provides diagnosis, therapy, skill building groups, and medication management. They do require you to do therapy exclusively through them if you want to try medication, so that is a possible barrier to entry for someone who already has a therapist that they like. However, the benefit is that they approach therapy for depression, anxiety, and more from the perspective of a patient with ADHD rather than someone without it.
Another possibility in the area would be western psychological in Portland & in Vancouver (WA). They don't specialize in ADHD (although there might be some in the practice who do) but do have some group therapy focused at it and some prescribing professionals too
Does anyone know of a resource like this near coastal North Carolina?
Or one near Cleveland?
I'm a licensed Therapist and unfortunately due to lack of training I only just now started looking at getting myself assessed for ADHD after being frustrated with the hyper-focus on the things that were making it hard to focus on the things I wanted to focus on. There is not enough training for treating ADHD, I'm glad to be a clinician who is going though this experience because I know first hand what it is like to have ADHD and to be undiagnosed with it. The fact that I learned more from RUclips and TikTok about adhd then I did in grad school is alarming to say the least.
I'm also a mental health professional that likely has ADHD. It is definitely difficult to find anyone with expertise in this, it is viewed as a children's disorder, and not something serious enough to warrant intervention in adults. I'm certain that I was able to lean on natural high intelligence in order to mask it for most of my life. I have just gotten away with never doing my work until the last minute for everything, and somehow succeeding. I'm now interested in becoming an expert in it and specializing in it. I think it has become more prevalent in the internet age (at least many of the symptoms), and that we will see numbers for adults seeking intervention go up.
I didn't learn ANY of the information I have collected from grad school. I mastered in Administration for family and Community practice.
@@devinology7 I want to become a coach for ADD/ ADHD.
Thank you to each of you. Reading these things from professionals is going a Long way for me as I work to unpack this experience. It means a lot that you commented here - it's easy to feel pressured to gaslight myself when comparing the education I'm receiving online, to the messages I get from the therapists, doctors, parents and teachers in my life who don't believe it's a big deal, or as prevalent as it is.
The podcast "Are You Sure Doc?" Has an episode on ADHD interviewing specialist Dr. William Dodson - changed my life in the first 15 minutes.
I've been in and out of therapy for 14 years, and only recently come to understand that ADHD can explain a huge amount of my struggle.
@@devinology7 same. My good grades even masked it from myself. Plus my parents would point out my behavior and get on my case about changing it so I was forced to suppress it as much as I could but Lord was it a challenge.
You’re the reason why I subscribed to your channel! I turned 60 on 8/8/24 and still trying to learn how to manage my ADD and learn accommodations for it!
Commenting on an older video here but. . . I’m 52 and just received an ADHD diagnosis. Your channel has been invaluable as a source of education, relief, and hope to be over these past few days. Just here to say that you’ve no need to apologize for demanding that those whose job it is to help do so at the standard at which you’re doing so. Keep doing what you’re doing. You’re one of the good ones.
In one of my ADHD support groups, the moderator asked how many of us have had to educate a mental health professional--someone that was supposed to be treating us--on ADHD, and more than half raised their hands. I think it was ~2/3
It's interesting that in a situation like this, the person who has the authority to decide on the accessibility of treatment for adhd, knows less about what the condition and the treatment than the patient themselves. I think there are new ways of thinking that are emerging in the clinical community that are more conducive to the wisdom of the patient about their own experience, so that is good. Many people with ADHD can be current or future experts who are going to be primary educators of mental-health professionals. The struggle is real AND we are in a powerful position to make the future better for others with ADHD.
It was a breath of fresh air for me to see a new doc for getting on meds without them being standoffish. My new doc said "oh I just went to a seminar on ADHD medications" Then they just said the rules and I had to take a drug test and wrote me a prescription. I'm blessed I had a good doc not assuming I'm a drug user/abuser!
@@ralfwashington1502 why do you need to take a drug test? i mean isn't that already bad or do you have to do that legally in your country? I mean you got diagnosed with ADHD why would you need a drug test?
I *Love* my current psychiatrist, and I just educated him about body doubling and the Pomodoro Technique two days ago. ❤
Where did you find adhd support group?? I have been looking since I was recently diagnosed with adult adhd
This hit hard. I was diagnosed at 11. I'm 20 now, and I've only RECENTLY started to discover just how much ADHD has affected me. For the longest time I just thought it meant I had trouble focusing. Nobody told me that it can also affect so SO much more like cleaning/clutter managment, emotional control, avoiding things, and much more.
And when I say recently started discovering, I mean as in a few weeks ago. I've had to learn on my own through this channel and my own research.
I know exactly what you mean, I was diagnosed at 6 and my parents were a great help teaching me what they knew about the medical side of it. I've been medicated since i was 6, I'm now 26 and only now am I noticing the emotional damage and behavioral problems that make life so much harder than it needs to be. I always just thought that i had a lazy personality, or wasn't motivated enough. But even doing a degree that I love and is a great fit for me isn't enough right now, this has been the hardest year of my life.
Duncan van der Lingen I was never even told what ADHD was and just a few years ago I learned what it even meant, i didn’t know why my brain was this way and I didn’t know what was wrong with me. My mom didn’t even explain it to me other than “there’s something wrong with your brain and you need medicine to fix it”, I never even learned to manage my ADHD because I’ve been on medication for years which I don’t like because I already have problems with eating.
Im 23 and I only recently made the same realization. It affects absolutely every aspect of my life.
i never got diagnosed and im literally older than 11
fluffle demon i was diagnosed at the age of 7 1986. It was horrible on my reflection back on it. The adhd medication an the ones i was on never worked for me. The side effects were always way too overwhelming regardless of the focus an I waited until they wore off an was happy when they were. But this is only me i speak for an since i was 16 i have been off medication an life was what it was until 5 years ago I sought alot of self reflection an understanding an someone to talk to an through that an cannabis i am in a much better place in my life an have the focus I always needed without pharma side effects. But again it was my journey🙂. I do realize therapy does help a-lot.
Hey! I feel you now, but Im just writing to say thank you. I've suspected I might have adhd for years but I finally got evaluation appointments last months, and got a diagnosis. I was so frustrated when I was told before I cant have ADHD because I was a straight A student and trained to be a neuroscientist. I havent been able to hold a job my entire life, my mind is constantly racing, I had to jump through weird hoops just to get through school and I know something is wrong! And when finally someone believed me I was elated. And then...I was lost. No one gave me advice or support or any guidelines. They just tell you that you cant walk, though you a crutch and close the door. And this is where I wanna express my gratitude for your channel! It has done for me something I thought I would never get. I got so much information, so much compassion and so much hope thanks to you. What you didnt have, you gave to others. That is worth a lot...
I’m so sorry that you were put in this position. No one should be forced to evaluate the monetary value of their health. Though it’s difficult sometimes, I and many others cannot express how helpful and important it is that you make content like this. So many people struggle to get help and validation for mental illness, including myself. Though it’s difficult, it’s comforting to see we’re not alone and that eventually we can work through medical intolerance and the hoops we have to jump through as a community.
You have no idea how your channel has helped me❤️
@@blackcat6374 Digo lo mismo, gracias a Danna encontré este canal y me ha literalmente cambiado la vida muchas gracias
Gracias por compartir este canal con nosotros :)
Says the addict of substance...
It’s brave of you to even admit that. It’s wonderful. 😌😘
Robert Brinkley maybe try to open your mind a bit? I totally understand how scary/ painful drug addiction can be for a person and everyone around them. It’s horrible.... it’s like a disease.
I sympathize with every person who is emotionally reacting to stories like this. They think it’s just a buncha drug pushers.
I will never deny the reality of people who do FAKE ADHD.... and only to abuse the medication. That’s a very real problem .
That being said..... it needs to be understood that there are people who are very VERY valid for such therapy/ prescriptions. It isn’t some fake fallacy. This is about people’s live’s..... they are trying to understand themselves and succeeded THE SAME that you are everyday.
my friend suffered the whole ‘you’re too smart thing too’. some people tried to tell me that when I was complaining. why can’t people wrap their head around the fact that you can be smart AND neurodivergent???
A lot of things are honestly just stress inducing and it makes me even more tired that I already always am
Yeah being neurodivergent is already stressful and then having everyone deny it is incredibly stressful
Old stigmas/biases that still seem to be deep-rooted, even in the system.
Unfortunately, degree programs for therapists today STILL teach that a kid or adult CAN'T have ADHD if they did well in school. That is completely untrue. Most people who get diagnosed as adults did fine in school but started struggling once in the work world. I did great in school. That was the one reason my mom did not get me tested, even though she always thought I had it. It's a huge misconception that needs to be broken. I loved school and cared about getting good grades, so I applied myself and could pay attention (somewhat). If something interests you and you have ADHD, you will be able to pay attention to it or hyperfocus. I found a lot of workarounds to do well in school, not realizing that I was actually struggling to pay attention. My biggest memory of school was starting into space and daydreaming every day while the teacher talked. I just read the assignments and studied my butt off.
Do you know what was an option on the form me and my psychologist filled out when I got my diagnosis? "High intelligence hid the problems during school". Being "too smart to have ADHD" is so COMMON they have added it to the official forms!
Thank you so much! I'm Crying right now as I write this, After finding you just today, over the last couple hours I've watched 6 of your videos And probably cried at least once at half of them. I'm not sad, I'm relieved and a little scared because I've been like you for a long time yet because of my mother's Indoctrination about chemical use she refused to introduce pharmaceuticals to my problem, scratch that, problem's plural. Her motto was " I refuse to drug my child into submission " . For her this position was so strong She Refused to have me treated properly even when one school (there were many) Told her if I wasn't treated and medicated they would have to expel me. Instead of treatment she put me in a private school that she couldn't afford and then my behavioral problems caused me to be kicked out of there. I believe I went to 1 or 2 more schools schools before she finally had me, I don't know if the world is committed or just housed, housed in an In-patient, I believe they call themselves a behavioral care, facility called Charter Baywood in Orange County California. This caused a vicious custody battle between my divorced parents, which saw me taken from my mother and the behavioral center to an abusive father who didn't really want to have to care for me but refused to see me incarcerated. Your words especially in this episode Were very powerful To me and I wish to express to you How important what you're doing is. I know the tendency is to downplay the impact we have and the importance of roles we play But I hope you hear these words. And if you're ever in doubt About the significance Of what you are sharing in your wonderful channel, I hope you can think about messages you probably receive like this And understand that those of us who tell you how awesome you are must be Only a fraction of the people who are being positively impacted by your efforts. I don't know you and have no right to ask anything of you but if I could I would ask for you ask that you keep doing what you're doing As long as you can. I know that at least to me it has been an incredible relief to be validated And you've encouraged me to seek treatment in my adulthood. I believe this is more than significant so thank you.
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In tears as i watch this and it made me rant. I will share what i wrote, I’m not very smart or good at explaining things but i have just been diagnosed at 43 and it is barely a diagnosis, but i have been given new medications that for the first time i felt positive about in over twenty years, they just kept putting me on zoloft or other anti depression meds… i lost my current doctor, i dont explain it properly in my rant, it wasnt just the cost of visits etc, it was how they were telling me which through your videos i think is rejection syndrome, this has wrecked my whole life, i push everyone away because i felt there was something wrong with me and not worth anything… i am ranting again i am sorry… thank you for your videos, they’re changing my life right now and teaching me alot… i wont share my rant, your so so brave too 😅👍
I was part of the “executive team” to co-design Headspace, I advocated for mental health for childrens mental health strategies, I did so many extracurriculars in my school and was even a school leader, I took responsibility for my life to get treatment for ADHD, only to have numberous providers tell me that I don’t have ADHD or that I’ve made it up. I was diagnosed. The medication was working. But no-one believes me either. Jessica ❤️❤️💞Thank you for your videos, you remind me of the fact that I am not alone and that there’s hope. Thank you :)
Hey. I'm a Princeton grad with two master's degrees. People didn't believe I could be ADHD either. BUT I just got very thoroughly evaluated a few months ago by a guy named Dr. Leon Schofield (addexpert.net). He uses the Woodcock Johnson tests, which are really good for getting to the heart of the thing. They're expensive, but I now have solid, data driven paperwork that says 1) Yes, I am definitely combination type ADHD, though I've been masking a long time. 2) I lose around 25% or more of my cognitive capabilities when my ADHD kicks in. 3) I'm really smart (like you) which means that losing 25% of my cognitive capabilities puts me in the average intelligence range, which is why 4) no one ever noticed or believed me. I know it seems like I'm whinging because my disability makes me average. I know that I'm really blessed in the brains department. I also know that I've been struggling just to get by my whole life, and that being smart doesn't make up for the executive skills failures that come with ADHD. And I know that masking is exhausting. I know you've already been diagnosed, but if you haven't already done so, I'd suggest you look into the kind of extensive testing Schofield does, as I think the data will be helpful for convincing the doubters and clarifying to you as your apply your own problem solving skills to your situation. I realize I'm just a voice in the internet, but your words really hit a chord on me. You are definitely not alone.
@@kellydeltoro-white8097 I feel you. YOu're what's called twice exceptional. I was an excellent tester growing up and scored a perfect score on the SAT Writing POrtion. I read somewhere that 1,000 out of every 1,000,000 test takers earn this score. I got tested in college after wondering why I procrastinated on everything and never planned ahead. GOt by because of my high intellgience. Now on medication- my life has changed for the better, and I have breaks for this luxury, Ferrari brain, (Dr. ned hallowell reference).
You’re great. You’ve helped me lots. Good luck.
Why do providers automatically judge that we are making up lies to receive medications that...hello actually help!?
Wow. wow. and, wow.
WHY DO I FEEL LIKE PEOPLE WHO DON'T HAVE ADHD CAN GO TO THE GP AND GET ADDERALL AND SOMEONE WHO WAS ACTUALLY DIAGNOSED CANT
IM MAD
We haven't learned the correct answers to each question
Dennis Yes. So where is a good site or book that will tell me which answers are trending now?
The important thing is to over-exaggerate when describing symptoms to your doctor. Especially if you're a woman or a person of color, because doctors won't believe you (this has been studied and proven). I'll never forget my mom's advice to me, "always tell the doctor that [insert problem here] is RUINING YOUR LIFE".
Yes that what it’s seems like
a lot of ppl with ADHD sell their adderall... that why its so hard
Thank you Jessica, for bearing your soul and your struggles, as a medical provider, I battle with ADHD myself and providing my clients with resources, affordable medications, available medications, and going to war with insurance companies to get it paid for. There are providers who understand, and please anyone reading this, do not give up. I continue to learn in this new career path I and hope to grow stronger in my skills for advocacy. I am so grateful for this you tube channel. When I was first diagnosed in Graduate School I was sure they were nuts to tell me that. My therapist recommended this channel and your TED talk. Your voice gave me understanding and feeling that I was not alone. This diagnosis has changed my entire career path, as I am now striving to learn everything I can to help people not feel as lost and hopeless as I did. I continue you suggest this channel to my clients for support and education.
Rant on!!! Please. I've experienced this through my daughter & many others suffering from terminal cancer. Something is terribly wrong when a system allows so many to suffer without necessary medications. Even a few pharmacy workers would drag their feet when my daughter suffered through days without pain medications. Even as her bones were deteriorating her physician jumped through hoops attempting to give her enough pain relief in order to walk.
Since she also had ADHA there were numerous medications in that category that new psychologists took her off of causing serious problems. Thank goodness she had a great palliative care Dr that helped as much as he could. He ended up handling most of her meds so she could remain simi functional.
I pay higher fees for my excellent care team. I use discount rx companies to offset some of the expenses.
From experience I've found some rx companies will offer help. I've also had to switch out one stimulant for another because of outrageous prices.
This is a sore subject for anyone that has suffered the inferiority of the current system & ignorance of those who allow it to continue as is. Too many entities in charge of our health.
Our doctors also have a tough job when we need more than the system allows.
This is a discussion that needs to continue.
First Dr I saw said I can't have ADHD because "you can focus sometimes if its interesting". How do these people get degrees again!?!? I have another appointment in about an hour so fingers crossed.
That’s so ridiculous, I’m sorry you talked to someone who clearly doesn’t know what they’re talking about. From my understanding of my ADD brain, it’s that we have an interest based nervous system! We can hyper focus if it’s interesting to us, which is a superpower, but has its kryptonite downsides of avoiding what’s not interesting.
@@kinseydesignsbrands fully agreed! Thankfully when I mentioned it to the clinic they put me in touch with someone who was actually really helpful and that original person is no longer there.
Yeah. I was told adults don't take medication for ADD. That was a lie. I wonder how they still have jobs.
@@publicserviceannouncement4777 thankfully this person was getting out of the field and the new person is getting my medication dialed in. Its made a huge difference.
@@ChrisMurrayEWC Love you both. I got a therapist who was a Socialworker not psychologist, and she started by asking "How in the world are you NOT in prison?" And then she explained how people like me wind up in prison because our impulsivity takes over when we're confronted by idiots. She put me in touch with a good doc, a program to help me get a job/stay employed, everything but a support group... which I'm still afraid of. Maybe I'll get there, maybe not.
She also pointed out that a LOT of firemen and paramedics have exactly my issues... but because of my physical limitations I can't do those jobs.
Hang in there. My insurance has a nurseline you can call-in, and a lot of those types of people (nurses) can recommend strategies that they've seen work for people with closed-head trauma or other organic brain damage.
Whenever I go to pick up my meds I jokingly say "I'm going to get drugs", because they treat me like they don't trust me. They treat me like I'm buying drugs, not medication.
Know the feeling
I can’t tell you how many doctors have treated me like a drug addict. I personally have had a lot of good experiences with pharmacists but I know a lot of people haven’t. This is an issue for chronic pain patients too. A lot of people are committing suicide because of it.
I had a pharmacist question me too. It really pisses me off. They aren’t doctors.
Same here. It's ridiculous.
*hugs* it's not right!
I am going to write my A-levels in 2 weeks here in Germany. I do everything I can to maintain focus, but it is so f-cking hard, and what you said is damn relatable. Not only that, but I hope, really hope you’ll get better.
Viel Glück! Alles Gute damit
I just gave my AS levels from April to June. I am beyond exhausted and her situation is so relatable and personally tiring.
Jessica, it's ok to rant, and it's ok to cry. Your mental health is worth it no matter how much the mental health or medical system may make you feel otherwise. You are worth it. You are valuable. I'm on Strattera which is not a stimulant but I wish I didn't have to depend on it, but I do. I get away with the bare minimum of executive functioning. My apartment is often dirty or messy because I struggle to keep up with cleaning, and sometimes I feel shame over that. I have a tendency to spend a ton on takeout, because I struggle to keep up with grocery shopping and cooking. I get your struggle.
"Don't give up if they dismiss you because you're smart and you've succeeded so far, because you know what it's done to you on the inside to get there." Most emotional part of the video for me. I think many people would be surprised to hear I have ADHD because I have a degree in English and Philosophy. And a college degree. But earning them was really, really hard. My ADHD didn't mean I COULDN'T do it, it just meant that it took so much more effort... but I did it, and I'm now an editor. I still struggle every day. But my ADHD doesn't stop me from doing what I want to do and what I'm good at. It just makes it so much more challenging. My ADHD doesn't make it any less worthwhile to pursue my goals. Don't give up. Never, ever give up. ADHD brains know how much other ADHD brains fight for our place in the world. Don't give up.
My daughter is similar to you. She’s been very successful to this point. What people don’t see is her working 5 hours to accomplish what a neurotypical accomplishes in 2 hours. They don’t see her meltdowns resulting from mental exhaustion. Etc.
ADD,ADHD,HSP,INFJ.....
Roller-coaster life
My kid is suppose to be enrolled in Vic rehab program... we still haven’t picked up the paperwork to fill out over a week later.... duhhhh, we have adhd!!!!! Sooo hard!
The doctor dismissed your chances of having ADHD because you're intelligent? Sounds like they've never heard of neurodiversity - it's a hallmark of neurodiverse conditions like ADHD to have big weaknesses, yes, but also big strengths.
I like this Venn diagram from Genius Within - it emphasizes that these conditions can come with many strengths www.geniuswithin.co.uk/infographics-and-literature/neuro-diversity-venn-diagram/
Also, keep up the great work, you're an absolute blessing for newcomers with ADHD. You should feel massively proud of what you've managed to achieve.
Thank you so much for the link!
I have been told I can’t have ADHD because I’m too old and people grow out of it 🤷🏻♀️
Hear! Hear!! 👏
Tali vas Normandy I’ve just been told I have it but am growing out of it and that it’s only mild because I can Hyperfocus on things 🤬🤬🤬🤬 such a joke
My partner got his autism diagnosis torn up by a doc who was cranky about my partner's high IQ. He felt that it negated my partner's autism.... When my partner got it reinvestigated the new one was baffled because the investigation the first doc had done a more in depth investigation than what is the norm now and it was a no-brainer that he should have an autism diagnosis. My partner was also diagnosed with ADHD. I can't imagine how soul killing it must be to have someone in such a position of power tell you that you don't deserve to be acknowledged just because you test well in exams. That you should be able to be normal and that you should feel bad if you are struggling.
It is not a sickness to have a treatment. It is a blessing.
I grew up in the UK. I'd had ADHD symptoms my whole life but nobody picked up on it, despite multiple courses of therapy for depression/anxiety. I wasn't sure myself what was wrong, if it was ADHD or something else, but I was told that, to get a diagnosis, I basically had to guess what was wrong with me, contact the ADHD society, wait for a diagnosis (2 years waiting time), and they would give me a yes or no as to whether I had it. If it wasn't ADHD, but something else, I had to start over with a different department and another wait of several years. I find executive functioning so difficult and daunting that I just gave up trying to get help.
Thank you sooo much for this amazing channel. I'm not kidding, I cried when I watched the first few videos because everything fell into place and it felt like such a huge relief. I live in Norway now, which has a better health care system than the UK, and I'm just building up the nerve to go to my doctor and try to get treatment. After 40 years of totally not functioning, it will be wonderful if they can help!
My psychiatrist told me "if you weren't jumping up and down on tables and disrupting class and getting bad grades as a kid, you don't have ADHD." I feel your pain. It seems impossible sometimes.
Many tests don't cover the inattentive type. So if I'm not bouncing off the walls then I can't possibly have adhd. Frustrating.
@@DeltaCodeGames exactly. So frustrating.
This happened to me!! I'm seeking a second opinion elsewhere and I'm going to stand my ground 100%. It's dangerous how little mental health professionals know about most mental health issues.
This. I was one of the "smart kids". I didn't get diagnosed until sophomore year of college when I couldn't keep up anymore and was having mental breakdowns.
@@hippybecca Heeey a fellow college-crasher! I also found out that having to study "on your own time" reaaaally wasn't working...
Being diagnosed with ADHD was a relief but also a tremendous hit, because of how uninformed society and even some doctors are about ADHD. On one hand my life has improved, on another, in my country adult ADHD meds aren't covered by insurance, and I'm terrified of the exact thing that happened to you - if I move to another place, if I need to find another doctor, if I want to travel somewhere and they take my meds away at the airport. Any change in my life will need that extra step of making sure I get my ADHD treatment.
They can take your meds away in airports??
I am so touched by this.
Thank you for being so open and honest about your struggles and how you feel.
A lot of videos out there today are polished, people putting on an act like a thing…..You are real, this is refreshingly real, as are your other videos - you are a blessing to me.
I am waiting for an autism and ADHD assessment, and I am dying ti understand myself after 39 years of feeling a failure and weirdo. Your videos have given me understanding and much comfort.
Words cannot express my gratitude - thank you!!!
I'm so thankful you finished with "Don't give up." I've been sitting here in tears (yet to get an official diagnosis, have only just realised in the last week or so that this is me! Female mid 40s in Australia and I know, I know, I know, I have ADHD!).
And today I just want to give up. But I won't.
Ex-pharm tech here. SOOOOOO Many issues for us just on the pharmacy side of things. Prior authorizations are the most BS thing to ever happen... especially for ADHD. Most ins companies require one for ANYONE over 18 years of age for ADHD medication. It's absolutely ridiculous.
Going through this struggle right now 😭 it’s not right that the doctors opinion matters less than the pharm tech, of course no offense
At one of my first attempts to get diagnosed, I heard that " I don't have ADHD because I never failed a school year. I'm just lazy, unorganized and capable of only doing things I want, without taking anything else into consideration". Our appointment lasted less than 20 minutes. It's been a year, but this still enrages me till this day. I finally got my diagnosis a week ago, fortunately... I wanted to share this, in case anyone went to a similar experience. You're not alone 💜
Thank you for helping me remember that my phone/Netflix addiction is also related to a stereotype, someone said something to me earlier and I couldn’t place what was wrong with it til now
Did you see a psychiatrist or psychologist for diagnosis? I'm trying to get diagnosed and not having any luck finding which one can help
@@sperth3849 I tried neurologists, neuropsychologists and this "professional" I mentioned was a psychiatrist. None of them knew anything about DSM-5 tests and couldn't inform me the procedures to get diagnosed, they'd dismiss me after 20 minutes... then finally, I met a psychologist that worked into the ADHD field for 17 years, and she gave me a proper and detailed feedback! My point is, you should try to find someone who's really specialized in ADHD, who's able to inform you the right procedures... I don't know if there's a more qualified professional, though. I wish I could help you more, but I too felt lost and didn't know how to find quality treatment. What helped me a lot was to research more about ADHD and seek professionals online, to know if they were gonna be able to truly help! Sorry for the long post, I wish you can find the right person to assist you!
I want to try to get a diagnosis, because I think I have ADHD and it's bad, but things like this scare me.
@@hannahherrmann4921 same for me, and my husband. I am also scared of doctors, so the idea of rejection for my issues or having to break these barriers down to access treatment is paralyzing. I'm sorry this system is so broken. I'm sorry society is pushing neuro-diverse people out. It's heartbreaking.
That was hard to watch but I'm glad you posted the video. I'm very sorry you had to go through this.
I have a mental disorder and I didn't know how good I had it until my provider retired. I too am on a controlled substance and had difficulty as providers (especially the newer generation of providers) are reluctant to prescribe.
Providers are afraid. They hear stories of providers losing their license to practice or even being criminally charged because the meds were mistreated, even if it's a one-off case where gross negligence was involved. The result is that providers put pressure on patients, whether it's short-term refills, drug testing, or simply the words they use during patient visits, all out of fear of losing their license. I get it, but if you are in the mental health field, you shouldn't have to practice in fear and certainly should not make your patients suffer because of this.
I have found a great provider now. I am left with the scars of the war-on-drugs however.
I just want to give you a hug. I feel frustration a lot when things seem overly complicated. I didn't know that I had ADHD until I watched your videos and was very surprised. I am high functioning, but many of the fights I have had with my spouse are related to ADHD symptoms. I finally got medication to help me with my ADHD and I am trying to get over my fear of the medications. I have had CBT, and it works. But when I get bad sleep or am overly stressed, I have a much more difficult time using the techniques.
When I have used the medications, I accomplish a lot and I just feel like me. I don't take it every day, but I have taken it on days I want to wade through one of my messes that I just don't want to take care of. Thank you for putting yourself out there and helping me understand myself that much better. Frankly, I am horrified that I wasn't diagnosed as a kid because I am textbook ADHD, except that school was one of my hyperfoci. Just because I had good grades, didn't mean I didn't need help. I've had to compensate in so many ways. I really did think my symptoms were normal.
me to my psychiatrist - i always can't sit still, and always have trouble focusing on things- I move onto another thing as soon as i start the other. Then i always forget things even if they are really important... As well as me having problems with time management....
my psychiatrist - well don't then... just learn how to manage your time
*this woman just cured adhd ohmygod*
Ugh. There are so many people in the mental health profession who really shouldn’t be. I had a therapist tell me “just don’t think negative thoughts” about my depression. How uninformed, not to mention utterly unhelpful and insulting!!! I really wonder if some of them got their degrees at diploma mills!
@@abigailsmith6977 I think these kinds of people chose their profession due to their parents, if they loved what they did they would absolutely try to help out without being insulting-.
🤦🏻♀️ just learn to manage your time... god i would have raged at this woman if this was me
Yes, please just over medicate yourself until you're a literal fking zombie. 🤭
@@Irisicaaa *literally what they mean by- "we will give you a few pills" and then they give you an infinite amount of pills*
On the topic of being told "You don't have ADHD"...
When I first started looking into treatment as a teenager, I was waiting in a doctor's office reading a favorite book. I was an avid reader. The NP who saw me asked why I was there and I told her that I wanted to seek help for possible ADHD, the first thing she said was "You don't have ADHD. If you did, you'd be bouncing off the walls instead of sitting down reading a book." She tested me for thyroid issues, despite "inattention" being my only symptom of such an issue, and I never heard another thing about it.
It took ten years for me to get a diagnosis. Mostly because I didn't have insurance for ten years. Even then, I had to pay hundreds of dollars just to be evaluated. Another two years before I was medicated because no one told me my next steps.
Y'all.
Oh man, I'm glad I got diagnosed early then for my mostly inattentive type. My cousin is hyper active dominant and his ADHD is obvious. My ADHD was only discovered because I would be so focused on the TV that I would not register my mom calling my name, who was sometimes a few feet away. She thought I had a hearing problem and got me checked out, but my hearing was fine which of course lead to my diagnosis.
i'm also a bookworm. they don't seem to understand it's a focus PROBLEM, not a total inability to do so :( it doesn't go where we NEED it to people. i think one sign for me was the fact i could not put the book down until it was finished.
and since the executive dysfunction is such a huge part of it, just focusing on hyperactivity is nuts imo. i don't get why they do that. even for the people with that symptom, it probably doesn't affect them as much as the overall inability to stop one task and initiate another. i need a lot of self bribery and trickery and mental acrobatics just to get basic things done each day. no one sees that until i'm late, but i feel it constantly
i only "sat still" because my mom was horrible lol. if sneakily repositioning my legs 302874298 times counts as sitting still, sure. oh gosh when i had a creaky chair. i'd rather die from whatever i was sick with than sit by my mom for an hour in a silent waiting room :P
@@Ocelot80524 Dude. The fact that I finished Order of the Phoenix in a single day should have been some kind of clue!!!
I’ve been diagnosed with Hypothyroidism, despite me going into for a ADHD test. My doctor did say it’s likely that I have both. But my mom won’t believe me because the it can only be 1 thing. No mom, I’ve also done research about this, I have symptoms of adhd that aren’t listed as hypothyroidism. As well the combine symptoms that worsen the two conditions combined. But I guess my mom knows my inside of my brain better than I do.’\°_°/’
@@curevolcano4501 when you get treatment for the thyroid, and its better. But you still have other problems. Point that out to mom. And also lookup adhd morbidity. Very common.
I'm so sorry you had to go through that. Thank you for being so honest and vulnerable. I only recently found your channel, and have begun showing them to my daughter who is 9. She was diagnosed 2 years ago. I watched your video on ableism and it really shifted my thinking as a neurotypical mom of a kid with ADHD. We've recently had some honest discussions about how she experiences the world and me realizing she must feel like she has to be fixed in order to be functional. Because of you I am starting to change the language I use when we talk about strategies to help her function and learn. And because of you I pulled out her bath toys again, and she LOVED it! Many people can change the world, but those with highly creative brains have such a special way of doing it. Keep rocking on.
It doesn't help that there is currently a national shortage of ADHD medication
Is it just me, or does everyone else suddenly feel motivated to take on the world when Jessica gets upset? Am I the only weird one here?
No I got super defensive too, I hope she doesn't think it's weird if any of us ever meet her and treat her like she's already one of our best friends!
@@elfrog98 I have actually met her, she is exactly the same person in real life. I was at an event she did with Rick Green in Toronto :)
So true. My heart's breaking
Ready with torch and pitchfork
Jessica is such an amazing and honest person that when the world treats her this way, it makes you feel like you just watched someone stepping on a kitten. I feel especially ashamed that she got this in my city. Seattle is super friendly but unfortunately has a story with substance abuse. Not an excuse though for the jackassery she's been subject to.
Just today I got accused of manipulating my psychiatrist. I was recently diagnosed and started meds, but had some complications when I realised that the only brand of the med available here in Australia has both gluten and dairy in it, both of which I can't have because of an autoimmune condition. So I had to return the meds, and then jump through hoops to get a new script for a compounding pharmacy to get them to make the medication without these very common allergens, which costs 8 times as much as the regular brand. And somehow me advocating for my own health so I don't take a med containing ingredients that flare my other condition amounts to me manipulating the psychiatrist...
Idk, I'm honestly so disheartened, this journey has been challenge after challenge, and now I'm going to have to find a new psychiatrist, because there's no way I'm going back to this one who I don't trust, and who clearly doesn't have my best interests at heart. Tired and upset.
+
That's so disheartening, and I'm sorry. But you are amazing for doing the hard work of trying to find another psychiatrist, and also good job recognizing that psychiatrist was being a jerk. If it helps to have strangers on the internet validate you and root for you, I am here for it.
I am sorry you had this experience my friend. I am training to be a psychiatrist and I hope to never let my ego get in the way of my patients’ care like this.
I'm so sorry. Honestly it's heartbreaking to hear that. I thought that this was a particularly American problem. But knowing that someone on the other side of the world is having the same issues we are is really disheartening.
But now you've got me wondering about medications ingredients because I also have autoimmune problems.
Why does medicine contain dairy?
I discovered my ADHD after having my first child at 31 years old. All the little coping mechanisms that I had created throughout my life to seem normal were actually a house of cards that very quickly blew over in the presence of my baby. I was back to forgetting to put bills in my calendar, late utility payments, Careless mistakes at work... It all balled up into anxiety. I was so confused on what was happening. Then I got educated on ADHD and it was a relief! But now it's also kind of a nightmare... I got diagnosed with depression on top of my ADHD because I'm post partum. I got put on antidepressants not medication for ADHD... I have to get "happy" before my doctor will consider ADHD treatment.
This is why I won't start any new medication to help my adhd. Now I'm self medicating in a negative way with other things. Your videos are my opening to adhd coping mechanisms. After my stay in a psychward I can't be open with doctors about my struggles. I am currently struggling to even be able to get my anxiety medication on time most months. There are many chains in America's health care system that are fundamentally broken, so many people are scared from it.
My husband and daughter have ADHD. In March, he went to his doctor to get his Rx renewed. His doctor told him that he did not believe that adults can have ADHD and told him he would not prescribe him his medication (this was the start of the pandemic when getting a new provider was no small feat). It took until May to get him in to see a psychologist at the northwest ADHD clinic. A full evaluation was done but he still cannot see the nurse practitioner who will prescribe medication until the end of this month. That’s nearly 6 months of no treatment. This has had real and lasting impacts on our whole family. On Friday, he was fired from his job because of symptoms and behaviors directly related to his untreated adhd. It is Not okay.
Girl, tell me about it. Sometimes I wonder “what if I had dementia or more severe mental illness - if I am struggling to take care of myself, how do people who are worse off get help??!!”
I have a friend with schizophrenia. He can't get a job because if he earns too much money they'll take away his disability payments, and he can't afford treatment without it.
I have another friend with bipolar. He won't get a diagnosis because if he does, he'll lose his job and with it his insurance.
I have anxiety, OCD, and ADHD. I have had good insurance for 15 years. I'm able to function most of the time. But that's only because my wife does the paperwork. Without her, I would be completely unable to navigate the health care system, and I'd probably lose all support for managing my conditions.
Exactly! At one psychiatrist's office, they charged high fees for missing appointments. I know it's up to me to try and make the appointments but...they did realize that they treat mental illness, right??? My GP didn't even do that, and she treats colds!
@@Octa9on I have schizophrenia like your friend also. It is terrible how the mental health field treats it's patients especially those with severe debilitating mental illness like schizophrenia. I was very lucky though that there was a psychosis intervention program in my town for free. I am very well because of it. Sadly those programs are extremely rare😞
Thats a really scary thought. I already can't navigate it well its why I'm 29 and untreated for anything and barely functioning. No wonder mental illness and homelessness have such a correlation
In blunt honesty, I barely cope. I have suspected ADHD (again, yay for the difficulties of getting any diagnosis!/s), multiple mental health problems and an endocrine disorder. I'm approaching 30 and I feel as though I've watched my life leak away from me, and I currently receive almost no health care at all (and for reference, I'm in the UK. Yes, you can be left largely without healthcare in the UK). I'm persistent, but it's hard.
I don’t wish the pain and frustration you were feeling when you posted this video for anyone… But I am very thankful that you posted this.
Hi I live in Penrith NSW, Australia, if that is any benefit. But really I don’t know what to say, only that we have only scratched the surface of Mental Health. I have lived with Dislexia, Deslexia, Dislexcia, Dexlexsia! See even pretext doesn’t work. Having a disability isn’t who I am but what can I do differently then anybody else. You (forgot your name) have an amazing way of expressing yourself and I have been deeply touched by your honesty. ADHD is so complex and individual that no one is the same. Here in Aussie land Autism is final being recognised and not punished like I used get for spelling or speaking wrong. But like you who has inspired me to speak out, so bouldly use social media and break open the box!
Absolutely adore your work!
my teachers act like i don't have ADHD. They're always like: "why aren't you paying attention!! YOU NEED TO PAY ATTENTION!!! It ISNT that HARD!!!"
they don't even take into consideration that i have a way harder time than other kids. it really annoys me and hurts me. they act like it isn't even a thing. its almost like they think that the label of ADHD is a joke to them. and they give me bad report card grades for my work habbits grades. I do get good grades, but my work habbits aren't the best.
can anyone relate?
I'm sorry this happening to you. I'm a mom with a child with ADHD and it hurts my heart you go through this because I imagine my daughter in the same place. I am continuously advocating for my daughter to make sure she gets the support she needs. I hope you have an advocate on your side.
stay aware and do what you do no more no less these unconsidered teachers deserves 0 %respect for there ignorance that is around there land of work
Our teachers and doctors need to be better educated on ADHD. I've always felt bad about how badly I did in school and now I know more about ADHD I believe that's why I struggled so much.
I can relate a lot. My teacher would get annoyed with me whenever I fiddled with my fingers, she even started getting more mad at me more then the people that were actually not paying attention. Hardly anyone in my class knows about my ADHD and ASD problems. It’s terrible and whenever I ask someone to not scratch a paper as it is extremely uncomfortable for me they just..... stare..... with a confused expression and then go back to scratching paper.
As a child growing up in the 80s when ADHD didn't seem to be as common as now: I was always in trouble because I couldn't pay attention, sit still, or be quiet. Since I was always in trouble, I was always the scape goat. Since I was always in trouble, no one ever believed my side. I got blamed for things I didn't even do, and no one believed my side.
STILL to this day, even in my 30s, I feel I can never do anything right and I'll always be a disappointment💔💔💔💔
You know when you have to sit down and cry a little because you're just so tired of how debilitating your ADHD (or your treatment) can be?
Yup. I feel that way right now. Just so totally exhausted, defeated and so stressed. I need to cry but nothing's coming out. :'(
Uh....YES!!!😭
That's me every day. I cry alot because I'm so frustrated. My ADHD is exhausting as with treatment.
Crying with you 🤷♀️💋
I don't feel like meds are 100% the best solution to neurological and behavioral disorders. I have bipolar ADHD and Autism and the only way I have been able to do well with my bipolar has been through holistic with mental exercises and having a dog. Also having my dog has helped me so much with my ADHD and Autism. Our doctors are not specialized in understanding each individual but rather they treat us as "you have this so you must do this" but that doesn't work. Each human being is different each one needs to be treated with respect in regards to their struggles because of their dignity. Thank you for sharing, I'm glad to know that I'm not the only one feeling like this.