I first have to say I am a medical professional. Yes to ultrasound of liver, Yes to rheumatologist, Yes to an Infectious disease specialist, along with a Cardiologist. Your need to build your own team of health care professionals. This is you taking control of your own body and it's care. God speed in your journey.
I see a few specialists since things are related and symptoms are similar. Now to get a good dentist which I think is part of my problems. Wasted 5 years at dentists and worse with other issues that started after.
A wonderful team makes all the difference. I have an autoimmune disease and have had melanoma. It took years to build my team and they have been a blessing. I’m here today because of them. Please don’t disregard any particular specialty they request. You can alleviate the unnecessary ones after they figure things out. Praying for you and positive results🙏🙏🙏
I agree with you. Heavy metal panels? Did you have Covid? Referral to Mayo. Prayers for you & your family for the ultimate healer, God, to provide knowledge for the doctors to find a diagnosis & treatment for you. I always say, "the human body is a very complex machine."
TICKS! Get a FULL TICK PANNEL DONE and test for ALPHA GAL, as well as lyme, rocky mountain spotted fever, and all the others. I have alpha gal (I'm now allergic to mammal) and when im exposed can have hives, shortness of breath, heart palapatations, severe joint pain, swelling, and anaphylaxis. It sent me to the ER. An allergy test won't pick it up, it has to be a tick borne disease pannel. At least to rule it out.
Rachel, test for alpha gal syndrome. Especially knowing that you and Todd have become heavy meat-eaters now - alpha gal, resulting from a tick bite which you could easily have gotten at the cabin or at home - results in your body basically producing an allergy to meat. Alpha gal is a carb found in almost all mammalian meat. Our bodies know how to digest it; our bloodstreams do not. It triggers the immune system to flood with a response and reports the alpha gal carb as an “intruder” - then you have an allergy. Many of the symptoms you have fit the bill!
I agree. Sounds like my experiences before I was diagnosed. It took them 8 years to figure it out. 4 lyme tests came back negative over the years. By the time I was almost in a wheel chair they finally realized it was lyme by my response to a round of antibiotics. I pray you find answers.
As a healthcare professional I am here to tell you, medicine isn’t what it used to be. You MUST take your health care into your own hands. You have started on the correct path!!! Write everything down, ask all the questions, seek advice, don’t allow your health to be pushed aside by a healthcare professional who can’t admit he/she doesn’t know what to do with your symptoms. The best physician is the one who says, I have no idea what is happening but we will find someone who does!!
You’re brave, Rachel, opening yourself up to everyone’s opinions 😊. I have none, but I’ll pray for answers and solutions for you and Todd. We have a good, good God!
Sent this to my brother who is a retired doctor. His expertise was a critical care ICU doctor and good at diagnosis. I asked him to tell me what he thinks and asked what questions would he be asking. Hang in there. The hardest part is the waiting.
Hi Rachel, somebody I know that was doing a keto diet, suffered from some kind of protein overload which resulted in some liver problem or inability to process protein well, leading to some build-up in nitrogen and ammonia in the body... it presented itself as a rash, fatigue and headache. I only mention it as I thought you changed your diet recently... it might be worth looking at your diet for a few weeks and see if it helps, it doesn't cost anything to try... Hope you feel better soon!
I see the reasoning, but I thought opposite. Thinking maybe she made and ate goodies during the holiday and spiked sugar intake. Did anyone catch if she mentioned A1c?
My first husband, of almost 50 years was diagnosed with Lyme disease and later diagnosed with Parkinson’s. I remarried, after saying “never”! My second husband has several medical issues when we married, but then he took Covid! He never regained his health back and his doctors said they thought he may have had Long Covid. God gave us 10 years and for that I’m thankful! I pray the doctors will find out what your problems are and will get you all better. 🙏🏼🙏🏼
Hi, Dual Board Certified Nurse Practitioner here with 25 years of experience in varied specialties. Have them check for Autoimmune Hepatitis. Yes all the tests your daughter in law is saying are good recommendations as well. yes you should see a specialist because tests can be way more in depth with specialists.
I commented already, but I also suggested she request an AMA. It’s such an overlooked test. I had to ask to have mine done and it came back positive. Fortunately, my liver labs are all good so I don’t have any issues with it. But an AMA would definitely be worth it.
I agree 100%, I had same symptoms and was diagnosed with PBC Autoimmune Hep. I was 24 when the hives started, diagnosed at 25, and received a liver transplant at 50. I’m stronger than ever but know the disease is still within me. Great advise and I believe this is what she has based on her symptoms.
The very first signs and symptoms my mother had were numbness in her hands and palpitations and thumping in her kneck. I lost my mother to lung cancer back in 2003. Can I just say Im super proud of you for the curious seeking part of you! No one can ever seek enough opinions.
Yes to the complete liver work-up. My 49 year old daughter had shortness of breath and tenderness and cramping on her right abdomen which started her on her journey the beginning of May, 2021. By the 8th of July she was diagnosed terminal with liver cancer. My Jeannie died on July 29, 2021. She had none of the other symptoms you had in regards to heart palpatations, no hives or severe itching. My sincere wishes for a speedy resolution for you.
Rachel, First I want to say that it is good just to see your face:) And you are brave to show us so much transparency. You don't have to do this for us just because you have this channel. You owe us nothing as far as your privacy, but thank you for sharing so much of this with all of us. Now, I will say that if a doctor or specialist wants to run a test that has already been done by another doctor,,,,let them do it!!! Here is an example of why: In fall of 2020 while hospitals were getting overrun with Covid, I went to the ER because I had been having external bleeding "down there". They ran bloodwork and a CT and came back and told me I had a staff infection and sent me home with 10 day antibiotics. 2 weeks later, I went to a gynecologist ( I am like you and don't like seeing a doctor unless I have to) and upon just a VISUAL, she told me that it was CANCER. She said she would biopsy, but would bet her home on it. Turned out she was right. I then had 4 surgeries in a month for cancer removal and muscle graft. Adn the doctor didn't get it all, because after 6 more months of me asking why I wasn't healing "down there", he told me it was just slow healing. I got a second opinion and found still cancer and started chemo and radiation. Get testing and get second opinions. And I would get another liver panel..again. And keep track of your potassium levels also that can influence the kidney and liver. My potassium levels get high to the point of recommended medication and then come back down months later. Regarding the potassium, we reviewed 3 years of bloodwork ( I get bloodwork every 3 months post-cancer) and saw a pattern that my potassium spikes dramatically when my garden starts producing and I am eating even healthier than usual. All those veggies and potassium. I wish you the best and that what you get diagnosed is easily controllable to get back to normal. I don't have to bring up about appreciating the small things in life - You already do that and that's one of the reasons we adore you and Todd and your family. Prayers Up :)
I would add as the wife of a major heart attack survivor, if you have pain again and suspect heart attack have a troponin blood test 3x, 8 hours apart. This checks troponin which is an enzyme released by the heart (or any major muscle) when there is injury (heart attack). My husband's didn't register until 3rd time (16 hours after admitting to er) and he had a 99% blockage of the lad (widow maker). Also get an ekg which will show up abnormal if damage has been done to heart. I would also recommend a heart echocardiogram. It will show things like the size of your heart, how well your heart is pumping, how your valves are working, and if there is fluid between the heart and the sack around the heart. Also consider a coronary artery calcium ct scan . A noninvasive way as a first step to check for heart blockages. If any are suspected you should then have a nuclear stress test. Maybe also consider a 14 or 30 day heart monitor. They have them now where it's just a stick on electrode that sends info to a phone you carry. No more wires and straps. I do hope you find answers ❤ for your thyroid make sure they check your t3 and t4 not just your tsh. A complete thyroid panel. Praying for you 🙏 uncertainty is the worst. Once you know, you can deal with things mentally much better. Oh also, my husband has severe anxiety since his heart attack 20 years ago. Dr said very normal for someone who faced their own mortality. He does take Valium sometimes but we found on a daily basis that buspar tremendously helps. A very old, reliable, non addictive med. Keep us posted. Rest and lean on Jesus. You call do all things through Christ who strengthens you.
Rachel, your symptoms rang a bell for me. I was in and out of er trying to figure out what was wrong with me. Without going into detail a woman at my church had had her gall bladder removed. It was making her so sick. I had asked for prayer for my concern and after church she came to me and told me what Dr to go see and to request an ultrasound sound of my gall bladder and a radio active scan of my liver. Gall bladder was full of white spots in the ultra sound …stones and the duct from the gall bladder to the liver was blocked. Acid reflux can cause numbing in the left arm and pain in the neck and palpitations. Didn’t know that until a young friend called me in the hospital to share her experience. Scheduled surgery but didn’t make it to the date, had to go in a day early I was so sick. When they took the gall bladder out it fell apart in their hands as they were removing it. That was 35 years ago before laparoscopic surgeries but if I hadn’t had that surgery at that time I may not have lived. 9 days in the hospital. Blood tests didn’t show much, no bile in my urine. Itching like crazy! I was 36. There will be an answer and letting people know your concerns is a reach out for help. When the right path presents its self you will know it.❤❤❤❤🙏🏻🙏🏻🙏🏻
Wishing you the best Rachel. I think it is really important to have a family doctor who you trust and who is a good diagnostician..that person can help you navigate through the maze that our health care system has become. "Building a good medical team", as many often say these days, is truly daunting and you shouldn't have to do that when you are in the middle of a health care crisis..how would you do that without experiencing failures and disappointments? That is why having a really savvy, well informed and truly caring family doctor as the core of of your healthcare is important. And we should find that doctor and establish that relationship before the need arises. Good luck.
So sorry you are having to go through this. Your symptoms are so similar to a former co-worker of mine who was diagnosed with Alpha Gal Syndrome. It is a meat allergy that develops after a tick bite. It’s become more prevalent here in the south, but it’s worth looking in to … especially with your recent change in diet. She had the heart issues, hives, ER visits, tiredness, fever, etc. that you describe. Not saying that’s it, but if not, it could lead to other potential ideas. I’m praying for you and believing God for a diagnosis soon and treatment that gets you feeling more like yourself again!
I have Alpha Gal, and it sounds so much like it. The reaccuring hives, the heart palpitations, joint pain throat tightness, it's very similar to how I react. I ended up being so sensitive, I couldn't be around someone cooking it or have any mammal in my personal hygiene. It's a wild and rarely known about disease. It's manageable though.
This is my guess rachel! I'm not a doctor but I'm an icu nurse and I think this is definitely worth looking into. Seems like it's a fairly simple blood test that's relatively cheap. Hope you get some answers. Thanks for sharing
I have alpha gal. Hives sent me to the ER but I had no other symptoms. It took some sleuthing by an allergist to find out. Luckily I have no lasting issues. I'm in Minnesota where cases of alpha gal are rising.
@@fourboys_and_afarmhouseso sorry to hear you're so sensitive. I'm able to eat dairy and gelatin thankfully. I also cook red meat for my husband with no issues.
Absolutely agree with Lyme.. I’ve had many patients c/o symptoms during a flare up. Long term symptoms do a number on the body and every one you’re explaining and have exhibited fit . It also loves to alter lab work during a flare up.
Rachel, please pursue a diagnosis. Our 40 year old son began having some similar symptoms in March of 2023. So, so many tests were run-and showed nothing-but the symptoms were getting worse-he was getting sicker and sicker. By the time he was diagnosed with a blood cancer in mid May of the same year, he was VERY sick. Please, please PUSH for a diagnosis. Our son was passed from doctor to doctor and finally the infectious disease dr finally did the test they were all trying to avoid because his blood tests didn’t warrant this test. I’m praying for wisdom for your caregivers and strength for you and Todd. Love and prayers sweet lady.
I had a lone star deer tick attached was dead. Didnt know as it was SO VERY tiny. I was very sick. Liver tests made drs believe I was a heavy alcohol drinker. I have never been. I was given doxycycline before they tested for any of the diseases. But i got better with the antibiotics and drinking a lot of water to flush it out. Good luck Rachel. I know it’s scary. Prayers.
Lone star tic =That’s alpha gal - Alergic to meat mamal beef pork lamb and derivatives geletin, sterate and dairy 🥛 and glycol it’s in everything including first aid. Ointments prescription meds antibiotics vitamins - gel capsules = glyerine Toolpaste shampoo etc ==== certified vegan recheck otc meds and prescriptions cleaners soaps and carrageenan that one is in Oscar Meyer lunch meat == no no no
Watch a video by Home Free Alaska, done about six months ago. She went to doctors for at least a year and none helped her. She finally consulted a specialist in her former state and after many consultations and tests it was determined she had Lyme disease. Whatever she is now doing has helped her immensely.
Hi Rachel! Hope you are feeling better! Wishing the best for you! The symptoms match with NAFLD (Fatty liver disease) the typical ones are: Severe tiredness (fatigue) Pain in the right upper belly (abdomen) Weakness. Weight loss. Yellowing of the skin or eyes (jaundice) Spiderlike blood vessels on the skin Long-lasting itching But it can also cause Hives and Atrial fibrillation (hear palpitations)
Keeping you in my prayers. I know how exhausting this journey can be. Hoping your team of dr.'s can get you some answers soon. For me about 8yrs ago or so I started having crazy severe hives randomly. Was so rough getting a dr to listen to me and help. I finally found an allergist and found out I have something called Cross Reactive Protein allergy. So while I'm not technically allergic to any food, many of the foods I eat have the same molecular protein structure as environmental things (like dust, pine, mold, etc) that I am allergic to. So when I eat these foods my body thinks it's being bombarded with those histamines and I end up with bad hives, severe sinus etc. No where near what you are dealing with for sure, but the frustration to figure it out can be real tough.
**RN with 37 yrs experience and quite a few in liver transplant and clinic nurse to chief of hepatology- please see a hepatologist asap. NOT a gastroenterologist- a hepatologist. Did they do a total bilirubin? Sounds like a really bad virus/viral response which would account for the low WBC count. The itching could be related to an abnormal Total bilirubin, and the extreme fatigue due to the liver issues. You should also see a cardiologist as well due to the symptoms you experienced. No to the Liver US- a hepatologist will most likely order a triple phase MRI for liver imaging if needed. Liver enzymes don’t elevate unless the liver is really inflamed. I’m happy to answer to any questions that i can regarding the liver. I can’t stress seeing a Hepatologist asap enough. please keep us updated. God Bless and prayers for your healing. ( I don’t normally comment on videos but felt this to be very important to comment)
You cant get all this from what Rachel said. All of the symptoms could also be from a leaking heart valve. What Rachel has is a secondary problem which hasnt been verified with primary tests. You know the lady is an over thinker, stubborn, doesnt waste, and super intelligent so stop spitting shit on her that could be very wrong and expensive. You being in medical should be ashamed of yourself. 😡
Can't imagine the courage it took you to take that first step back into the medical world and now the confusion and worry of what it could be. From my experience as a cancer survivor, lab results can be wrong the first time around and multiple opinions are helpful. Sending prayers to you at this challenging time and hope you get an answer soon. 🙏🙏🙏🤗🤗🤗
LOVE House and miss him a LOT ... and where is he when YOU need him???? SOOOOOO glad to see you and will keep praying for you!!!!! (((((gentle hugs))))))
I'm so sorry that you have been ill! Thank you for sharing your story with us. It can be really challenging for those of us who mistrust the western medical system when it concerns us or our loved ones. Personally, I would seek out a functional medicine doctor or naturopath. They are MDs, but they look at the whole person, rather than just their particular specialized field. They also tend to use diet changes and natural supplements to address issues instead of invasive procedures and medication that can have other side effects.
Sending you much love and many hugs and prayers, Rachel. You'll figure this out. Give yourself and the doctors some time and grace. It's HARD to be patient! Wish I could hug you!!
My daughter went though a very similar experience and her Ana was negative and so sill has three autoimmune condiions. Dr is right about Ana not being the only thing to say you have an autoimmune. You should go to a rheumatologist too….completely agree. Don’t give up keep pressing the dr to find the answers….. it took us 1.5years to determine what was wrong with my daughter and about 20 different drs… but we finally found one who listened and tested for everything… now she’s on the right medicine and has her strength back
No matter what it may be, I hope that prayers meet you both and you heal from the ailment! Very interesting to hear the symptoms, looking forward to an update when you do have one!
OH Rachel! Thank you so much for sharing ALL this with us - will be praying for answers - fast, healing, comfort, peace, no itching! Strength and stamina - NORMAL life! These medical mysteries are the worse - especially when medicine/science has a hard time identifying. I’ve seen LOTS of good suggestions here on the medical mystery. Please keep us posted. Glad to hear (but not surprised) Todd is taking such good care of you - and I’m sure his heart is aching that you are going thru all this.
Oh Rachel. The unknown is is tricky. I had to have many medical tests 12 months ago. It was scary, and worrying. But ultimately God knew what I needed and I am now doing well. Praying you get answers and help and a solution xx
Oh my goodness! I was so happy to see that you had a made a video today! You sure have a lot of comments to go through my dear! I hope they bring you more information on what to test for. I saw some that talked about Lyme Disease. Kevin at Living Traditions Homestead was very very sick from this about a year ago. I'm praying that an answer will be presented to you ASAP so you can do what needs to be done to get better 🙏🙏🙏 Hang in there!! Love and prayers to you and Todd!!!
I'm thinking the Nov. episode sounds like a possible heart attack. Two years go in Nov. also I had a small brain bleed that caused a stroke(all the women in my mom's side get them). While in the hospital they discovered I've had at least one heart attack I never knew I had. I now have a severley weakened heart. Nothing surgery can repair. I'm at peace and just have the mindset of knowing God is taking care of me and I'll live till I don't. I just prayed for wisdom and guidance for your medical team, and that you find answers and heal if that be God's will.
Rachel, so sorry you’re going through this! Thank you for sharing so we can pray for you and for Todd . Prayers for your patience and for the doctors to have wisdom. Several years ago I suffered some of this and and infectious disease specialist diagnosed me with Histoplasmosis. I had been clearing out and old barn foundation the year before I got sick and this was caused by exposure to bat droppings🤷🏼♀️ just throwing that out there since you guys did all that barn renovation … praying you get answers and a complete recovery 🙏🏼
Your heart palpitations reminded me of something I went through all of 2023 and half of 2024... I'm getting better now, but I was very bad for 16 months. Symptoms included: heart palpitations, rapid heartbeat after doing ANYTHING physical, POTS, shortness of breath, difficulty swallowing, tight throat, exhaustion, brain fog, "post exertion malaise", no ability to do anything but sit and rest... I had dozens of blood tests, CT scans, echocardiograms, stress tests, ECGs... all came back "normal." But one cardiologist finally said, "You're describing Long Covid." I spent hours and hours on Reddit reading about Long Covid and I think some of the things I learned helped me on the road to recovery. The thing about "Long Covid" is there really isn't a test or an official diagnosis and many doctors still don't think it's real. But there is a long list of symptoms that many sufferers seem to share (not all people have ALL, but all have SOME). I hope you figure out what it is!
Prayers to you and your family. The palpations, the carotid artery pain , fevers allot of this is sounding like long COVID. Let God hold your doctor's hands .
Sorry you’re going through this. Prayers lifted for some kind of answer!! So nerve wracking- the not knowing!!! Let’s believe in a miracle! God please give wisdom to medical staff to find answers! Bless you and Todd🙏🙏
I am really sorry for what you are going through. Big prayers for healing. I have a friend who was recently diagnosed with Acute Myeloid Leukemia and is undergoing treatments. Her exhaustion was just like yours. She is a nurse practitioner specializing in cardiac. I do not know if the other symptoms were there for her but your exhaustion is what made me think of her. I pray that they are able to find the root cause and you can start the road to feeling better fast!
Procalcitonin is an indicator for a bacterial infection. The c4 also indicates infection and muscle breakdown-rhabdomyalosis. All of which can lead to liver enzymes elevated
What a mess! I’m so sorry for how horrible you’ve been feeling and all the unanswered questions. PLEASE KEEP US UPDATED on your follow up appts. Praying for something that can be nipped in the bud quickly.
Keeping you in my prayers and know how exhausting this journey may be. I’ve had autoimmune for over 30 years and have had symptoms similar that have gotten better with time. My central sensitivity syndrome subsided once I reduced my inflammation in my body. My naturopath over ALL my specialists is who helped me. Hang in there and be patient with yourself. Reduce all stress.
Old nurse here. I would pull out the stops. Sounds like possible combo of issues. I would request a PET scan and referral to hematologist, rheumatologist, and possible infection specialist. I understand not having PCP. Being a nurse that has become disillusioned with our health care system. Hang in there and advocate for yourself and never be afraid to question medical professionals ❤
Hi Rachel, I'm so sorry to hear about your health issues. My hubby had your symptoms many years ago, he ended up in the hospital for a week before finally being treated for Mononucleosis. Prayers for you and hope you find out very soon what's troubling you. hugs, Ingrid B
My thoughts when you described all your symptoms was autoimmune or Lyme. I have had Lyme 3 times, and have an autoimmune (Hashimotos). It was a naturopath dr that discovered my Hashimotos. Every body is different and will present differently. I know you don't want it to be autoimmune but the test for it is not always accurate, same for Lyme. There are often false negatives so don't take the negative test results for autoimmune as you are in the clear, it can still be lurking in your body. Do NOT fake it till you make it. REST as much as your body needs, make that your priority. I know how hard it is, especially when you feel ok while resting. When i was at my worst even crocheting was too much for me to do. I am now doing much better. The Drs won't treat my Thyroid because my TSH isn't high enough. I tried a dessicated Thyroid supplement and it has changed my health so so much. I am able to be active again. I don't do drs either and most of the ones that i have went to have basically said yeah your sick but not enough for me to help you. So i have researched and tried different herbs and supplements to figure out what will help. It has taken me 10 or so years but i am much better now. You have to be your own advocate and push to find the answers you need. I hope you are able to find a solution faster than i was able to. Hugs and prayers.
Praying for you Rachel. The liver is remarkable and can recover well. All of your symptoms made me think of cytokine release syndrome. Praying God will guide your doctors and you will have some answers and feel better soon.
Oh you sweet girl! I'm so sorry you're going through this. I've only had one auto immune "event". My immune system turned on for a virus and forgot to turn off. I was covered in hives and I'll never forget that horror. Even the soles of my feet were involved. I've been under the care of energy based healers for years(some would call them naturopaths but that sure is an open label). I'm so thankful for them. (by the way, I'm from Alberta). They've helped me through so many issues I haven't seen a doctor in years either. Then, this summer, I ended up in ER which turned out to my own self neglect. But I got primary doctor and since I'm post menopausal and haven't seen a doctor in so long, he's sending me for lots of tests. In Alberta, we can sign up online and see out own test results. Doctor didn't even mention it but I have several small cysts in my liver. So, back to the energy healer I went! I'm getting her to work on that for a while then I'm going to ask for a follow up ultrasound. The only reason I found out was the ultrasound I got post ER to make sure my intestines were clear ended up with an older tech teaching a brand new one. She asked permission to do my entire abdomen for teaching purposes and if I hadn't said yes, I would have never known about the cysts. My liver has been weak all my life and no one was able to tell me anything and no doc sent me for test. I've never been able to consume alchohol. Sometimes, the good Lord sends us the people in our lives that we need. My best wishes for your diagnosis and recovery.
Looks like my comment got deleted with comparable symptoms. It would be good to get a western blot lyme disease test , lyme co infections test , and mold toxicity test . Praying for your quick recovery 🙏
I’m no healthcare professional, but I have experienced these same symptoms and my diagnosis was congestive heart failure. Mind you not to say or diagnose you, just sharing my findings minus the lump in the throat. Wishing you good health and healing.
Given where you live and your life style my guess would be Lyme disease, it can cause any number of symptoms including affect the liver and cause your white count to go down. Might be a question to ask because you are out on the property working on the land etc
Being an RN I would definitely want a cardiac workup with those palpitations and feelings in your arm. I would also want to have the liver scanned/ultrasound especially with the liver panel elevation levels. I know you want answers and to be on a road to recovery. Our heart and liver have such an impact on how our bodies function. Prayers that you get answers soon. Keep pressing for answers and be an advocate for yourself. You know your body better than anyone else!
I am not a good house player, but I do know with your great attitude about this and your faith, u will tackle this head on and make the best of it! Then your sweet Todd to love on u too! I love you and will keep u in my prayers! Thank you for sharing! 💕🙏💪
Rachel, you might want to contact Jess with Roots and Refuge. She went through something very similar to this for about a year and a half and has finally turned her health around, but every now and then you still will see a facial breakout on her. Autoimmune disease.❤
I had all these symptoms probably 7 years ago. I worked in medical field . I saw ENT, PCP, and they then sent me to dermatologist. Who said looks like strep so he ordered blood tests for it because throat swab had not showed it. He called the next morning and said it was positive for strep B. So he started PCN rash and throat pain improved dramatically within a few days. Next I had UTI frequently cultured positive for strep B and staph. More antibiotics next my appendix ruptured. 3 months of treatment and surgery. Then a mild heart attack. My mouth and eyes had stopped tearing or making saliva early on. Tons of bloodwork and they decided it was ruled I have autoimmune disorder and epilepsy but they have never been able to determine what it is. I hope you get a better diagnosis.
I’m so sorry for your health issues. As someone with lifelong allergies and mystery symptoms, I’d like to suggest that you keep a daily journal of everything you have eaten or drank in as much detail as you can. Also of anything you put on your skin, soaps, shampoos, perfumes. Include where you went and what you did, who you were with. I know you use a lot of natural products and it could be a plant or herb or a combination of ingredients that your body is reacting to. Or something in your garden or animals you were exposed to. Then end each day’s page with your physical notes…fever, rash, pain, etc. With a daily journal a pattern can emerge. It sounds like a lot of work but it could be a window on your world to help your doctors with a diagnosis.
Yes totally agree, I live with allergies and done just a little training too. But with dealing with my own and family allergies journalling is a great help toward figuring your allergies and triggers out. It took my mum and I a few years to figure ours out, not serious like yours, but it was a preservative.
So sorry that you are going through this. Definitely ask all the questions you said, do ultrasound of liver and heart and ask if there are any other blood tests that can be done. Not knowing is the worst part. Took me 20+ years to get diagnosed with MS, so keep pushing for tests. Many of your symptoms is the same as lupus but I would ask them to test for Lyme. Lyme is so tricky as it mimics other diseases and symptoms. I hope for the best and sending positive thoughts, prayers and love ❤️
I do think the first event in November was probably a small undiagnosed heart attack. Years ago my bestie had the exact same symptoms and went to the ER (at my insistence) and after a couple of days was diagnosed with having a heart attack. Which was very rare for someone so young, she was only 34 at the time. But later she was found to have a clotting disorder which led to the heart attack. Continued prayers for you and Todd both!
Thank you for being open. I just listened because to me your peeling potatoes the wrong way and it was driving me crazy! 😂 It’s so much faster peeling away from you. 😂 anyways, I was cutting fabric so thank you for keeping me company. Good luck in finding answers. 🤗
I’ll have to watch this again before I can get everything written down! My gosh! Too bad you couldn’t find your own Dr. House to figure this out….prayers and May God bless you and touch and heal you…hugs from Texas!
Rachel...been with you now for several years..was missing my Rach!! I will pray for your health and wishing you a fast recovery..god bless you and todd that precious man...oxox from NH
Rachel, I went through exactly the same things in 2013. Black mold is so toxic. You have probably got some under the cellar or something. With this much and constant response/ reaction, I'd say that's exactly what is happening to you. I am going to continue praying, and hoping you find out soon. The best way to find out if it IS something in your house is to stay somewhere else for a week.
Praying for you Rachel, I am a nurse And agree with the comments that if they haven't done a full tick panel that may be of benefit. And think your family has had good suggestions. 🙏
I’m so sorry you are going through this! I don’t have a clue but the Lord knows so I will definitely be praying for you and the doctors to find the answer!!
My first thought was Lyme disease. Were you ever bitten by a tick? Very hard to get a diagnoses. It presents with multiple symptoms. Second thought and I apologize if this isn’t the case (I don’t know) but breast implant disease is horrific!!!! Symptoms will go away with removal. Prayers for proper diagnosis and complete healing. 🙏🏻🙏🏻🙏🏻
Now I have worked pathology for long time and highly doubt of breast implants if u don't like docs. But you won't believe the number of these things get taken out and the issues they cause when patients reacts to it.
Rachel, I am so sorry you’ve been going through this! I would definitely ask for the liver ultrasound. And if it was me, I’d do the other things your daughter in law suggests. I have fibromyalgia and in the last few years was diagnosed with rheumatoid arthritis. The thing with autoimmune conditions is that the don’t follow the lab book. And it sucks for sure. I don’t love going to the doctor either. I had 3 or my 4 kiddos at home, took them to a holistic pediatrician. I’d just go for the consult and check everything off your list with the specialist. It’ll be worth it in the long run and then once you know what’s going on with your body you can ditch the docs. You could also try a naturopathic doctor. That may sit better with your feelings about the medical side of it all.
Yeah lupus was my first thought until the ANA test was neg. Take a look at RHEUMATIC FEVER. You have ALL the hallmark symptoms. Once rare but making a comeback because of all the legal/illegal ummigration ( like the recurrence of smallpox and polio).
Rheumatic fever is not contagious. And everyone going through legal immigration has to go through a complete physical which includes blood work, X-rays, and proof of vaccination status / titers.
@@manuelablankinship3938 true, but way too many haven't gone through screening which is why we have resistant TB , mumps and whooping cough on the rise.
First thought I had is mold exposure. I think of that because I too live in an old home (1890) and I always worry that maybe there is risk of exposure even though I’ve tried hard to mitigate. Just a thought. Prayers for truth and peace!
I’m sorry you’re not well. Praying you find answers. After I had a heart attack I could not maintain my magnesium and potassium levels. I had many of your same symptoms. I have never felt “right” since then. I moved back to Michigan and started with all new doctors. Unfortunately none of them listen. Praying for you 💜🙏💜
I know recently when I eat processed foods , fast foods my body reacts weird. Hives itching, bumps on fingers that itch. I just went back to my organic foods and symptoms go away. Blessings on your journey and prayers for comfort and knowledge for the medical staff taking care of you. Keep on sharing your faith on this journey God has a plan for you.
Rachel, you may play the guessing game for a little while. In my personal opinion, I would see the rheumatologist, cardiologist, and a liver specialist. Then, see a homeopath who specializes in muscle testing to see if they can help figure it out. I have always relied on my homeopath to confirm what the doctors say!! She has supported me even through a knee replacement!
My 7 year old (at the time) daughter had really strange symptoms a couple years ago. After a bunch of tests, it turns out she had mononucleosis. It started causing symptoms such as neck pain and swelling. She had small fevers with zero symptoms. Once they found out what it was, they sent her for an ultrasound for her liver health and an EKG for heart health. Thankfully her symptoms subsided but it can come back.
I first have to say I am a medical professional. Yes to ultrasound of liver, Yes to rheumatologist, Yes to an Infectious disease specialist, along with a Cardiologist. Your need to build your own team of health care professionals. This is you taking control of your own body and it's care. God speed in your journey.
I see a few specialists since things are related and symptoms are similar. Now to get a good dentist which I think is part of my problems. Wasted 5 years at dentists and worse with other issues that started after.
A wonderful team makes all the difference. I have an autoimmune disease and have had melanoma. It took years to build my team and they have been a blessing. I’m here today because of them. Please don’t disregard any particular specialty they request. You can alleviate the unnecessary ones after they figure things out. Praying for you and positive results🙏🙏🙏
Agree with crystal 100 percent
I agree with you. Heavy metal panels? Did you have Covid? Referral to Mayo. Prayers for you & your family for the ultimate healer, God, to provide knowledge for the doctors to find a diagnosis & treatment for you. I always say, "the human body is a very complex machine."
Nurse here, too. Agree with all Crystal said, and also, TAKE CHARGE OF YOUR OWN HEALTHCARE!
TICKS! Get a FULL TICK PANNEL DONE and test for ALPHA GAL, as well as lyme, rocky mountain spotted fever, and all the others. I have alpha gal (I'm now allergic to mammal) and when im exposed can have hives, shortness of breath, heart palapatations, severe joint pain, swelling, and anaphylaxis. It sent me to the ER. An allergy test won't pick it up, it has to be a tick borne disease pannel. At least to rule it out.
Glad you could share your experience. I could be very helpful to Rachel.
That's what I was going to remark as well!!!
Rachel, test for alpha gal syndrome. Especially knowing that you and Todd have become heavy meat-eaters now - alpha gal, resulting from a tick bite which you could easily have gotten at the cabin or at home - results in your body basically producing an allergy to meat. Alpha gal is a carb found in almost all mammalian meat. Our bodies know how to digest it; our bloodstreams do not. It triggers the immune system to flood with a response and reports the alpha gal carb as an “intruder” - then you have an allergy. Many of the symptoms you have fit the bill!
That’s what I was thinking, too! Tick bite and now allergic to beef.
I agree. Sounds like my experiences before I was diagnosed. It took them 8 years to figure it out. 4 lyme tests came back negative over the years. By the time I was almost in a wheel chair they finally realized it was lyme by my response to a round of antibiotics. I pray you find answers.
As a healthcare professional I am here to tell you, medicine isn’t what it used to be. You MUST take your health care into your own hands. You have started on the correct path!!! Write everything down, ask all the questions, seek advice, don’t allow your health to be pushed aside by a healthcare professional who can’t admit he/she doesn’t know what to do with your symptoms. The best physician is the one who says, I have no idea what is happening but we will find someone who does!!
I agree whole heartedly. It's scary out there.
Thank you for giving her this advice
Total agreed be the sneaky wheel and don't take no for an answer
Exactly true… the squeaky wheel gets the grease!!!
You’re brave, Rachel, opening yourself up to everyone’s opinions 😊. I have none, but I’ll pray for answers and solutions for you and Todd. We have a good, good God!
Amen
Amen ❤
Sent this to my brother who is a retired doctor. His expertise was a critical care ICU doctor and good at diagnosis. I asked him to tell me what he thinks and asked what questions would he be asking. Hang in there. The hardest part is the waiting.
Hi Rachel, somebody I know that was doing a keto diet, suffered from some kind of protein overload which resulted in some liver problem or inability to process protein well, leading to some build-up in nitrogen and ammonia in the body... it presented itself as a rash, fatigue and headache. I only mention it as I thought you changed your diet recently... it might be worth looking at your diet for a few weeks and see if it helps, it doesn't cost anything to try... Hope you feel better soon!
Good thought!
That was my first thought maybe keto related
I see the reasoning, but I thought opposite. Thinking maybe she made and ate goodies during the holiday and spiked sugar intake. Did anyone catch if she mentioned A1c?
Great suggestion!!!
My first husband, of almost 50 years was diagnosed with Lyme disease and later diagnosed with Parkinson’s. I remarried, after saying “never”! My second husband has several medical issues when we married, but then he took Covid! He never regained his health back and his doctors said they thought he may have had Long Covid. God gave us 10 years and for that I’m thankful! I pray the doctors will find out what your problems are and will get you all better. 🙏🏼🙏🏼
Hi, Dual Board Certified Nurse Practitioner here with 25 years of experience in varied specialties. Have them check for Autoimmune Hepatitis. Yes all the tests your daughter in law is saying are good recommendations as well. yes you should see a specialist because tests can be way more in depth with specialists.
I commented already, but I also suggested she request an AMA. It’s such an overlooked test. I had to ask to have mine done and it came back positive. Fortunately, my liver labs are all good so I don’t have any issues with it. But an AMA would definitely be worth it.
I agree 100%, I had same symptoms and was diagnosed with PBC Autoimmune Hep. I was 24 when the hives started, diagnosed at 25, and received a liver transplant at 50. I’m stronger than ever but know the disease is still within me. Great advise and I believe this is what she has based on her symptoms.
The very first signs and symptoms my mother had were numbness in her hands and palpitations and thumping in her kneck. I lost my mother to lung cancer back in 2003. Can I just say Im super proud of you for the curious seeking part of you! No one can ever seek enough opinions.
I wish House was on the case. I love that show too! Seriously praying for your completely restored health.
Yes to the complete liver work-up. My 49 year old daughter had shortness of breath and tenderness and cramping on her right abdomen which started her on her journey the beginning of May, 2021. By the 8th of July she was diagnosed terminal with liver cancer. My Jeannie died on July 29, 2021. She had none of the other symptoms you had in regards to heart palpatations, no hives or severe itching. My sincere wishes for a speedy resolution for you.
Oh my… so sorry… parents should NOT have to bury their children..:🩷… she was too young!!! Prayers for extended comfort 🙏
Rachel, First I want to say that it is good just to see your face:) And you are brave to show us so much transparency. You don't have to do this for us just because you have this channel. You owe us nothing as far as your privacy, but thank you for sharing so much of this with all of us. Now, I will say that if a doctor or specialist wants to run a test that has already been done by another doctor,,,,let them do it!!! Here is an example of why: In fall of 2020 while hospitals were getting overrun with Covid, I went to the ER because I had been having external bleeding "down there". They ran bloodwork and a CT and came back and told me I had a staff infection and sent me home with 10 day antibiotics. 2 weeks later, I went to a gynecologist ( I am like you and don't like seeing a doctor unless I have to) and upon just a VISUAL, she told me that it was CANCER. She said she would biopsy, but would bet her home on it. Turned out she was right. I then had 4 surgeries in a month for cancer removal and muscle graft. Adn the doctor didn't get it all, because after 6 more months of me asking why I wasn't healing "down there", he told me it was just slow healing. I got a second opinion and found still cancer and started chemo and radiation. Get testing and get second opinions. And I would get another liver panel..again. And keep track of your potassium levels also that can influence the kidney and liver. My potassium levels get high to the point of recommended medication and then come back down months later. Regarding the potassium, we reviewed 3 years of bloodwork ( I get bloodwork every 3 months post-cancer) and saw a pattern that my potassium spikes dramatically when my garden starts producing and I am eating even healthier than usual. All those veggies and potassium. I wish you the best and that what you get diagnosed is easily controllable to get back to normal. I don't have to bring up about appreciating the small things in life - You already do that and that's one of the reasons we adore you and Todd and your family.
Prayers Up :)
So well said 🫶
I would add as the wife of a major heart attack survivor, if you have pain again and suspect heart attack have a troponin blood test 3x, 8 hours apart. This checks troponin which is an enzyme released by the heart (or any major muscle) when there is injury (heart attack). My husband's didn't register until 3rd time (16 hours after admitting to er) and he had a 99% blockage of the lad (widow maker). Also get an ekg which will show up abnormal if damage has been done to heart. I would also recommend a heart echocardiogram. It will show things like the size of your heart, how well your heart is pumping, how your valves are working, and if there is fluid between the heart and the sack around the heart. Also consider a coronary artery calcium ct scan . A noninvasive way as a first step to check for heart blockages. If any are suspected you should then have a nuclear stress test. Maybe also consider a 14 or 30 day heart monitor. They have them now where it's just a stick on electrode that sends info to a phone you carry. No more wires and straps. I do hope you find answers ❤ for your thyroid make sure they check your t3 and t4 not just your tsh. A complete thyroid panel. Praying for you 🙏 uncertainty is the worst. Once you know, you can deal with things mentally much better. Oh also, my husband has severe anxiety since his heart attack 20 years ago. Dr said very normal for someone who faced their own mortality. He does take Valium sometimes but we found on a daily basis that buspar tremendously helps. A very old, reliable, non addictive med. Keep us posted. Rest and lean on Jesus. You call do all things through Christ who strengthens you.
I will be praying for you too. You have a great group of prayer warriors here. We all care about you so much. God Bless you Rachael.
Rachel, your symptoms rang a bell for me. I was in and out of er trying to figure out what was wrong with me. Without going into detail a woman at my church had had her gall bladder removed. It was making her so sick. I had asked for prayer for my concern and after church she came to me and told me what Dr to go see and to request an ultrasound sound of my gall bladder and a radio active scan of my liver. Gall bladder was full of white spots in the ultra sound …stones and the duct from the gall bladder to the liver was blocked. Acid reflux can cause numbing in the left arm and pain in the neck and palpitations. Didn’t know that until a young friend called me in the hospital to share her experience. Scheduled surgery but didn’t make it to the date, had to go in a day early I was so sick. When they took the gall bladder out it fell apart in their hands as they were removing it. That was 35 years ago before laparoscopic surgeries but if I hadn’t had that surgery at that time I may not have lived. 9 days in the hospital. Blood tests didn’t show much, no bile in my urine. Itching like crazy! I was 36. There will be an answer and letting people know your concerns is a reach out for help. When the right path presents its self you will know it.❤❤❤❤🙏🏻🙏🏻🙏🏻
Prayers that you continue to heal and get answers!
Wishing you the best Rachel. I think it is really important to have a family doctor who you trust and who is a good diagnostician..that person can help you navigate through the maze that our health care system has become. "Building a good medical team", as many often say these days, is truly daunting and you shouldn't have to do that when you are in the middle of a health care crisis..how would you do that without experiencing failures and disappointments? That is why having a really savvy, well informed and truly caring family doctor as the core of of your healthcare is important. And we should find that doctor and establish that relationship before the need arises. Good luck.
I will continue to be praying for answers and healing. Thanks for your honesty.
So sorry you are having to go through this. Your symptoms are so similar to a former co-worker of mine who was diagnosed with Alpha Gal Syndrome. It is a meat allergy that develops after a tick bite. It’s become more prevalent here in the south, but it’s worth looking in to … especially with your recent change in diet. She had the heart issues, hives, ER visits, tiredness, fever, etc. that you describe. Not saying that’s it, but if not, it could lead to other potential ideas. I’m praying for you and believing God for a diagnosis soon and treatment that gets you feeling more like yourself again!
I have Alpha Gal, and it sounds so much like it. The reaccuring hives, the heart palpitations, joint pain throat tightness, it's very similar to how I react. I ended up being so sensitive, I couldn't be around someone cooking it or have any mammal in my personal hygiene. It's a wild and rarely known about disease. It's manageable though.
This is my guess rachel! I'm not a doctor but I'm an icu nurse and I think this is definitely worth looking into. Seems like it's a fairly simple blood test that's relatively cheap. Hope you get some answers. Thanks for sharing
I have alpha gal. Hives sent me to the ER but I had no other symptoms. It took some sleuthing by an allergist to find out. Luckily I have no lasting issues. I'm in Minnesota where cases of alpha gal are rising.
@@fourboys_and_afarmhouseso sorry to hear you're so sensitive. I'm able to eat dairy and gelatin thankfully. I also cook red meat for my husband with no issues.
Absolutely agree with Lyme.. I’ve had many patients c/o symptoms during a flare up. Long term symptoms do a number on the body and every one you’re explaining and have exhibited fit . It also loves to alter lab work during a flare up.
Yes I agree
Rachel, please pursue a diagnosis. Our 40 year old son began having some similar symptoms in March of 2023. So, so many tests were run-and showed nothing-but the symptoms were getting worse-he was getting sicker and sicker. By the time he was diagnosed with a blood cancer in mid May of the same year, he was VERY sick. Please, please PUSH for a diagnosis. Our son was passed from doctor to doctor and finally the infectious disease dr finally did the test they were all trying to avoid because his blood tests didn’t warrant this test. I’m praying for wisdom for your caregivers and strength for you and Todd. Love and prayers sweet lady.
I had a lone star deer tick attached was dead. Didnt know as it was SO VERY tiny. I was very sick. Liver tests made drs believe I was a heavy alcohol drinker. I have never been. I was given doxycycline before they tested for any of the diseases. But i got better with the antibiotics and drinking a lot of water to flush it out.
Good luck Rachel. I know it’s scary. Prayers.
Lone star tic =That’s alpha gal - Alergic to meat mamal beef pork lamb and derivatives geletin, sterate and dairy 🥛 and glycol it’s in everything including first aid. Ointments prescription meds antibiotics vitamins - gel capsules = glyerine
Toolpaste shampoo etc
==== certified vegan recheck otc meds and prescriptions cleaners soaps and carrageenan that one is in Oscar Meyer lunch meat == no no no
Watch a video by Home Free Alaska, done about six months ago. She went to doctors for at least a year and none helped her. She finally consulted a specialist in her former state and after many consultations and tests it was determined she had Lyme disease. Whatever she is now doing has helped her immensely.
Hi Rachel! Hope you are feeling better! Wishing the best for you!
The symptoms match with NAFLD (Fatty liver disease) the typical ones are:
Severe tiredness (fatigue)
Pain in the right upper belly (abdomen)
Weakness.
Weight loss.
Yellowing of the skin or eyes (jaundice)
Spiderlike blood vessels on the skin
Long-lasting itching
But it can also cause Hives and Atrial fibrillation (hear palpitations)
Praying for the right Doctor and all the answers to come your way 🙏
Keeping you in my prayers. I know how exhausting this journey can be. Hoping your team of dr.'s can get you some answers soon. For me about 8yrs ago or so I started having crazy severe hives randomly. Was so rough getting a dr to listen to me and help. I finally found an allergist and found out I have something called Cross Reactive Protein allergy. So while I'm not technically allergic to any food, many of the foods I eat have the same molecular protein structure as environmental things (like dust, pine, mold, etc) that I am allergic to. So when I eat these foods my body thinks it's being bombarded with those histamines and I end up with bad hives, severe sinus etc. No where near what you are dealing with for sure, but the frustration to figure it out can be real tough.
I believe in the power of prayer! I will keep you in my prayers.
Ditto 🙏🙏
**RN with 37 yrs experience and quite a few in liver transplant and clinic nurse to chief of hepatology- please see a hepatologist asap. NOT a gastroenterologist- a hepatologist. Did they do a total bilirubin? Sounds like a really bad virus/viral response which would account for the low WBC count. The itching could be related to an abnormal Total bilirubin, and the extreme fatigue due to the liver issues. You should also see a cardiologist as well due to the symptoms you experienced. No to the Liver US- a hepatologist will most likely order a triple phase MRI for liver imaging if needed. Liver enzymes don’t elevate unless the liver is really inflamed. I’m happy to answer to any questions that i can regarding the liver. I can’t stress seeing a Hepatologist asap enough. please keep us updated. God Bless and prayers for your healing. ( I don’t normally comment on videos but felt this to be very important to comment)
Rachel, please listen to this one. A liver thing absolutely could do all this.
Interesting
You cant get all this from what Rachel said. All of the symptoms could also be from a leaking heart valve. What Rachel has is a secondary problem which hasnt been verified with primary tests. You know the lady is an over thinker, stubborn, doesnt waste, and super intelligent so stop spitting shit on her that could be very wrong and expensive. You being in medical should be ashamed of yourself. 😡
@@CarinaHilbertNO
@@kimberleyjane2338, what are you saying no to?
Can't imagine the courage it took you to take that first step back into the medical world and now the confusion and worry of what it could be. From my experience as a cancer survivor, lab results can be wrong the first time around and multiple opinions are helpful. Sending prayers to you at this challenging time and hope you get an answer soon. 🙏🙏🙏🤗🤗🤗
All I can offer are prayers for a diagnosis and a full recovery! 🙏
LOVE House and miss him a LOT ... and where is he when YOU need him???? SOOOOOO glad to see you and will keep praying for you!!!!! (((((gentle hugs))))))
I'm so sorry that you have been ill! Thank you for sharing your story with us. It can be really challenging for those of us who mistrust the western medical system when it concerns us or our loved ones. Personally, I would seek out a functional medicine doctor or naturopath. They are MDs, but they look at the whole person, rather than just their particular specialized field. They also tend to use diet changes and natural supplements to address issues instead of invasive procedures and medication that can have other side effects.
Yes to functional ornaturopath.
Sending you much love and many hugs and prayers, Rachel. You'll figure this out. Give yourself and the doctors some time and grace. It's HARD to be patient! Wish I could hug you!!
You are in my prayers Rachel. I hope they figure this out and you get treatment.🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼
My daughter went though a very similar experience and her Ana was negative and so sill has three autoimmune condiions. Dr is right about Ana not being the only thing to say you have an autoimmune. You should go to a rheumatologist too….completely agree. Don’t give up keep pressing the dr to find the answers….. it took us 1.5years to determine what was wrong with my daughter and about 20 different drs… but we finally found one who listened and tested for everything… now she’s on the right medicine and has her strength back
No matter what it may be, I hope that prayers meet you both and you heal from the ailment! Very interesting to hear the symptoms, looking forward to an update when you do have one!
OH Rachel! Thank you so much for sharing ALL this with us - will be praying for answers - fast, healing, comfort, peace, no itching! Strength and stamina - NORMAL life! These medical mysteries are the worse - especially when medicine/science has a hard time identifying. I’ve seen LOTS of good suggestions here on the medical mystery. Please keep us posted. Glad to hear (but not surprised) Todd is taking such good care of you - and I’m sure his heart is aching that you are going thru all this.
Oh Rachel. The unknown is is tricky. I had to have many medical tests 12 months ago. It was scary, and worrying. But ultimately God knew what I needed and I am now doing well. Praying you get answers and help and a solution xx
Oh my goodness! I was so happy to see that you had a made a video today! You sure have a lot of comments to go through my dear! I hope they bring you more information on what to test for. I saw some that talked about Lyme Disease. Kevin at Living Traditions Homestead was very very sick from this about a year ago. I'm praying that an answer will be presented to you ASAP so you can do what needs to be done to get better 🙏🙏🙏 Hang in there!! Love and prayers to you and Todd!!!
Prayers to you Rachael. You will get answers. Let them take their time and do it right.
I'm thinking the Nov. episode sounds like a possible heart attack. Two years go in Nov. also I had a small brain bleed that caused a stroke(all the women in my mom's side get them). While in the hospital they discovered I've had at least one heart attack I never knew I had. I now have a severley weakened heart. Nothing surgery can repair. I'm at peace and just have the mindset of knowing God is taking care of me and I'll live till I don't. I just prayed for wisdom and guidance for your medical team, and that you find answers and heal if that be God's will.
Rachel, so sorry you’re going through this! Thank you for sharing so we can pray for you and for Todd . Prayers for your patience and for the doctors to have wisdom.
Several years ago I suffered some of this and and infectious disease specialist diagnosed me with Histoplasmosis. I had been clearing out and old barn foundation the year before I got sick and this was caused by exposure to bat droppings🤷🏼♀️ just throwing that out there since you guys did all that barn renovation … praying you get answers and a complete recovery 🙏🏼
Your heart palpitations reminded me of something I went through all of 2023 and half of 2024... I'm getting better now, but I was very bad for 16 months. Symptoms included: heart palpitations, rapid heartbeat after doing ANYTHING physical, POTS, shortness of breath, difficulty swallowing, tight throat, exhaustion, brain fog, "post exertion malaise", no ability to do anything but sit and rest... I had dozens of blood tests, CT scans, echocardiograms, stress tests, ECGs... all came back "normal." But one cardiologist finally said, "You're describing Long Covid." I spent hours and hours on Reddit reading about Long Covid and I think some of the things I learned helped me on the road to recovery. The thing about "Long Covid" is there really isn't a test or an official diagnosis and many doctors still don't think it's real. But there is a long list of symptoms that many sufferers seem to share (not all people have ALL, but all have SOME). I hope you figure out what it is!
your also describing lymes
@ I was negative for Lyme.
My son .... Same thing same exact things still fighting his way threw. Cardiologist and pulmonologist said long COVID.
Prayers to you and your family. The palpations, the carotid artery pain , fevers allot of this is sounding like long COVID. Let God hold your doctor's hands .
I had long Covid for a year, then ended up with kidney cancer. I think the long Covid caused inflammation, which lead to the cancer.
Sorry you’re going through this. Prayers lifted for some kind of answer!! So nerve wracking- the not knowing!!! Let’s believe in a miracle! God please give wisdom to medical staff to find answers! Bless you and Todd🙏🙏
Praying for you. Bless Todd for being there for you...
I am really sorry for what you are going through. Big prayers for healing. I have a friend who was recently diagnosed with Acute Myeloid Leukemia and is undergoing treatments. Her exhaustion was just like yours. She is a nurse practitioner specializing in cardiac. I do not know if the other symptoms were there for her but your exhaustion is what made me think of her. I pray that they are able to find the root cause and you can start the road to feeling better fast!
Procalcitonin is an indicator for a bacterial infection. The c4 also indicates infection and muscle breakdown-rhabdomyalosis. All of which can lead to liver enzymes elevated
What a mess! I’m so sorry for how horrible you’ve been feeling and all the unanswered questions. PLEASE KEEP US UPDATED on your follow up appts. Praying for something that can be nipped in the bud quickly.
I pray that someone in your following can give you wisdom. Gods blessings on you and Todd too!
Keeping you in my prayers and know how exhausting this journey may be. I’ve had autoimmune for over 30 years and have had symptoms similar that have gotten better with time. My central sensitivity syndrome subsided once I reduced my inflammation in my body. My naturopath over ALL my specialists is who helped me. Hang in there and be patient with yourself. Reduce all stress.
Old nurse here. I would pull out the stops. Sounds like possible combo of issues. I would request a PET scan and referral to hematologist, rheumatologist, and possible infection specialist. I understand not having PCP. Being a nurse that has become disillusioned with our health care system. Hang in there and advocate for yourself and never be afraid to question medical professionals ❤
Hi Rachel, I'm so sorry to hear about your health issues. My hubby had your symptoms many years ago, he ended up in the hospital for a week before finally being treated for Mononucleosis. Prayers for you and hope you find out very soon what's troubling you.
hugs, Ingrid B
My thoughts when you described all your symptoms was autoimmune or Lyme. I have had Lyme 3 times, and have an autoimmune (Hashimotos). It was a naturopath dr that discovered my Hashimotos. Every body is different and will present differently. I know you don't want it to be autoimmune but the test for it is not always accurate, same for Lyme. There are often false negatives so don't take the negative test results for autoimmune as you are in the clear, it can still be lurking in your body. Do NOT fake it till you make it. REST as much as your body needs, make that your priority. I know how hard it is, especially when you feel ok while resting. When i was at my worst even crocheting was too much for me to do. I am now doing much better. The Drs won't treat my Thyroid because my TSH isn't high enough. I tried a dessicated Thyroid supplement and it has changed my health so so much. I am able to be active again. I don't do drs either and most of the ones that i have went to have basically said yeah your sick but not enough for me to help you. So i have researched and tried different herbs and supplements to figure out what will help. It has taken me 10 or so years but i am much better now. You have to be your own advocate and push to find the answers you need. I hope you are able to find a solution faster than i was able to. Hugs and prayers.
I thought some sort of naturopath, herbalist etc just as she said they look differently than a regular doctor.❤️🙏 they look at the whole person.
Praying for you Rachel. The liver is remarkable and can recover well.
All of your symptoms made me think of cytokine release syndrome.
Praying God will guide your doctors and you will have some answers and feel better soon.
Oh you sweet girl! I'm so sorry you're going through this. I've only had one auto immune "event". My immune system turned on for a virus and forgot to turn off. I was covered in hives and I'll never forget that horror. Even the soles of my feet were involved.
I've been under the care of energy based healers for years(some would call them naturopaths but that sure is an open label). I'm so thankful for them. (by the way, I'm from Alberta). They've helped me through so many issues I haven't seen a doctor in years either. Then, this summer, I ended up in ER which turned out to my own self neglect. But I got primary doctor and since I'm post menopausal and haven't seen a doctor in so long, he's sending me for lots of tests. In Alberta, we can sign up online and see out own test results. Doctor didn't even mention it but I have several small cysts in my liver. So, back to the energy healer I went! I'm getting her to work on that for a while then I'm going to ask for a follow up ultrasound. The only reason I found out was the ultrasound I got post ER to make sure my intestines were clear ended up with an older tech teaching a brand new one. She asked permission to do my entire abdomen for teaching purposes and if I hadn't said yes, I would have never known about the cysts. My liver has been weak all my life and no one was able to tell me anything and no doc sent me for test. I've never been able to consume alchohol. Sometimes, the good Lord sends us the people in our lives that we need.
My best wishes for your diagnosis and recovery.
Thank you for sharing this update. Sending best wishes for your health!
My two guesses are Lyme disease or rocky spotted mountain fever.
Prayers for wellness.
My 1st guess as well
Oh Rachel, i am so sorry you are going through this. I hope you get some answers soon. X
Looks like my comment got deleted with comparable symptoms. It would be good to get a western blot lyme disease test , lyme co infections test , and mold toxicity test . Praying for your quick recovery 🙏
I was thinking of the cabin stay last summer. Lymes can present this way.
@@drewblack749thank u
Thank you for posting this. It is helping me, too.
❤ prayers for you getting well again, and finding answers
I’m no healthcare professional, but I have experienced these same symptoms and my diagnosis was congestive heart failure. Mind you not to say or diagnose you, just sharing my findings minus the lump in the throat. Wishing you good health and healing.
Given where you live and your life style my guess would be Lyme disease, it can cause any number of symptoms including affect the liver and cause your white count to go down. Might be a question to ask because you are out on the property working on the land etc
Like Justin Rhodes and his health issues.
@@user-kq7fc5id2y I thought the very same thing. Justin Rhodes has had quite the health journey as well.
Keeping you in my prayers and hope you find answers soon
Being an RN I would definitely want a cardiac workup with those palpitations and feelings in your arm. I would also want to have the liver scanned/ultrasound especially with the liver panel elevation levels. I know you want answers and to be on a road to recovery. Our heart and liver have such an impact on how our bodies function. Prayers that you get answers soon. Keep pressing for answers and be an advocate for yourself. You know your body better than anyone else!
I am not a good house player, but I do know with your great attitude about this and your faith, u will tackle this head on and make the best of it! Then your sweet Todd to love on u too! I love you and will keep u in my prayers! Thank you for sharing! 💕🙏💪
Rachel, you might want to contact Jess with Roots and Refuge. She went through something very similar to this for about a year and a half and has finally turned her health around, but every now and then you still will see a facial breakout on her. Autoimmune disease.❤
❤ absolutely ❤
I'm so sorry you have gone through this. I pray that you get answers soon. 🙏🙏🙏
I had all these symptoms probably 7 years ago. I worked in medical field . I saw ENT, PCP, and they then sent me to dermatologist. Who said looks like strep so he ordered blood tests for it because throat swab had not showed it. He called the next morning and said it was positive for strep B. So he started PCN rash and throat pain improved dramatically within a few days. Next I had UTI frequently cultured positive for strep B and staph. More antibiotics next my appendix ruptured. 3 months of treatment and surgery. Then a mild heart attack. My mouth and eyes had stopped tearing or making saliva early on. Tons of bloodwork and they decided it was ruled I have autoimmune disorder and epilepsy but they have never been able to determine what it is. I hope you get a better diagnosis.
i agree.
Sending healing prayers for you Rachel.🙏❤️
I’m so sorry for your health issues. As someone with lifelong allergies and mystery symptoms, I’d like to suggest that you keep a daily journal of everything you have eaten or drank in as much detail as you can. Also of anything you put on your skin, soaps, shampoos, perfumes. Include where you went and what you did, who you were with. I know you use a lot of natural products and it could be a plant or herb or a combination of ingredients that your body is reacting to. Or something in your garden or animals you were exposed to. Then end each day’s page with your physical notes…fever, rash, pain, etc. With a daily journal a pattern can emerge. It sounds like a lot of work but it could be a window on your world to help your doctors with a diagnosis.
Yes, R please journal ALL.
Took me 3 years to figure out my chemical triggers and how to fix.
Yes totally agree, I live with allergies and done just a little training too. But with dealing with my own and family allergies journalling is a great help toward figuring your allergies and triggers out. It took my mum and I a few years to figure ours out, not serious like yours, but it was a preservative.
So sorry that you are going through this. Definitely ask all the questions you said, do ultrasound of liver and heart and ask if there are any other blood tests that can be done.
Not knowing is the worst part. Took me 20+ years to get diagnosed with MS, so keep pushing for tests.
Many of your symptoms is the same as lupus but I would ask them to test for Lyme. Lyme is so tricky as it mimics other diseases and symptoms.
I hope for the best and sending positive thoughts, prayers and love ❤️
I do think the first event in November was probably a small undiagnosed heart attack. Years ago my bestie had the exact same symptoms and went to the ER (at my insistence) and after a couple of days was diagnosed with having a heart attack. Which was very rare for someone so young, she was only 34 at the time. But later she was found to have a clotting disorder which led to the heart attack. Continued prayers for you and Todd both!
That was the first thing that I thought. ❤️🙏 so glad it didn’t take your life. 🙏🙏🙏🙏
Thank you for being open. I just listened because to me your peeling potatoes the wrong way and it was driving me crazy! 😂 It’s so much faster peeling away from you. 😂 anyways, I was cutting fabric so thank you for keeping me company. Good luck in finding answers. 🤗
I can’t peel potatoes like that either. LOL
I’ll have to watch this again before I can get everything written down! My gosh! Too bad you couldn’t find your own Dr. House to figure this out….prayers and May God bless you and touch and heal you…hugs from Texas!
Prayers
God bless you Rachael. He has you in his hands!
Rachel...been with you now for several years..was missing my Rach!! I will pray for your health and wishing you a fast recovery..god bless you and todd that precious man...oxox from NH
Rachel, I went through exactly the same things in 2013. Black mold is so toxic. You have probably got some under the cellar or something. With this much and constant response/ reaction, I'd say that's exactly what is happening to you. I am going to continue praying, and hoping you find out soon. The best way to find out if it IS something in your house is to stay somewhere else for a week.
My thought exactly.
My thoughts and prayers are with you. Stay strong 💪 ❤
I’d start researching taking ivermectin and or fenbenzodal. Prayers for answers and a complete recovery.
Praying for you Rachel, I am a nurse And agree with the comments that if they haven't done a full tick panel that may be of benefit. And think your family has had good suggestions. 🙏
Praying for you, Rachel. ❤
Im a RN who has been working since 1984..love Dr G..medical examiner
My daughter had very similar symptoms and it was Rocky mountain spotted fever
I’m so sorry you are going through this! I don’t have a clue but the Lord knows so I will definitely be praying for you and the doctors to find the answer!!
My first thought was Lyme disease. Were you ever bitten by a tick? Very hard to get a diagnoses. It presents with multiple symptoms. Second thought and I apologize if this isn’t the case (I don’t know) but breast implant disease is horrific!!!! Symptoms will go away with removal. Prayers for proper diagnosis and complete healing. 🙏🏻🙏🏻🙏🏻
Me too
My thoughts too!
I’ve never heard of breast implant disease.😮
@@cynthiafisher9907my sister has it. She is getting them removed. It has taken 20 years of not knowing what was wrong with her.
Now I have worked pathology for long time and highly doubt of breast implants if u don't like docs. But you won't believe the number of these things get taken out and the issues they cause when patients reacts to it.
Rachel, I am so sorry you’ve been going through this! I would definitely ask for the liver ultrasound. And if it was me, I’d do the other things your daughter in law suggests. I have fibromyalgia and in the last few years was diagnosed with rheumatoid arthritis. The thing with autoimmune conditions is that the don’t follow the lab book. And it sucks for sure. I don’t love going to the doctor either. I had 3 or my 4 kiddos at home, took them to a holistic pediatrician. I’d just go for the consult and check everything off your list with the specialist. It’ll be worth it in the long run and then once you know what’s going on with your body you can ditch the docs. You could also try a naturopathic doctor. That may sit better with your feelings about the medical side of it all.
Yeah lupus was my first thought until the ANA test was neg. Take a look at RHEUMATIC FEVER. You have ALL the hallmark symptoms. Once rare but making a comeback because of all the legal/illegal ummigration ( like the recurrence of smallpox and polio).
Rheumatic fever is not contagious. And everyone going through legal immigration has to go through a complete physical which includes blood work, X-rays, and proof of vaccination status / titers.
@manuelablankinship3938 NOT TRUE!! I work in school administration, and many of the children coming to us DO NOT HAVE proper vaccines, if any!!
@@manuelablankinship3938 true, but way too many haven't gone through screening which is why we have resistant TB , mumps and whooping cough on the rise.
My prayers are with you and your family!❤❤🎉🎉❤❤
I love most of the medical shows! 😌 Dr House was sassy and funny. Awe so sad you don't feel well!
I hope you feel better and will be praying for you 🙏 ❤️
First thought I had is mold exposure. I think of that because I too live in an old home (1890) and I always worry that maybe there is risk of exposure even though I’ve tried hard to mitigate. Just a thought. Prayers for truth and peace!
Praying for you, and Todd! God bless you both!
I’m sorry you’re not well. Praying you find answers. After I had a heart attack I could not maintain my magnesium and potassium levels. I had many of your same symptoms. I have never felt “right” since then. I moved back to Michigan and started with all new doctors. Unfortunately none of them listen. Praying for you 💜🙏💜
I know recently when I eat processed foods , fast foods my body reacts weird. Hives itching, bumps on fingers that itch. I just went back to my organic foods and symptoms go away. Blessings on your journey and prayers for comfort and knowledge for the medical staff taking care of you. Keep on sharing your faith on this journey God has a plan for you.
Rachel, you may play the guessing game for a little while. In my personal opinion, I would see the rheumatologist, cardiologist, and a liver specialist. Then, see a homeopath who specializes in muscle testing to see if they can help figure it out. I have always relied on my homeopath to confirm what the doctors say!! She has supported me even through a knee replacement!
Whatever is going on, I hope you find answers and relief soon. God bless.
Good grief Rachel! How frightening. I hope the mystery is solved soon and you return to good as new! PS...I love House!
My 7 year old (at the time) daughter had really strange symptoms a couple years ago. After a bunch of tests, it turns out she had mononucleosis. It started causing symptoms such as neck pain and swelling. She had small fevers with zero symptoms. Once they found out what it was, they sent her for an ultrasound for her liver health and an EKG for heart health. Thankfully her symptoms subsided but it can come back.