My husband’s nightmare began with a near fatal brain injury. So it was an instant tragedy and he remained on life support and in facilities four months before being discharged home.Now he has mixed dementia. I have been his caregiver the whole time. This summer will be year fourteen. It’s a long, painful, confusing ,exhausting and heartbreaking road. Bless you and carry on❤
Hi, we're sorry to hear this. We're here for you and your husband. Just call our Dementia Support Line, 0333 150 3456, or visit bit.ly/dementiasupportservices for support and advice. 💙
I'm so very sorry. Yes, you truly can tell Caroline that you've been there. Such a cruel disease. My mother, my mother in law and several aunts and uncles,too. I pray that God will give the doctors a cure. Diane
I was so moved by the film of Caroline and Mark. My husband has exactly the same dementia and was diagnosed when our son was 6. The pain of it is bottomless.
She's clearly not getting enough help. Such a beautiful heart. The toll on caregivers can't be understated. Alzheimer Society and NIH need to do much more to advocate for caregivers too.
@@alexmorgan3435President and CEO of the Alzheimer's Association, had a total compensation of $1,481,516 in 2023......that money should go to help many people not one!!!
Looking after him may need to be soon putting him residential care, not a case of abandoning your vows, but you are going to have to be available for your child emotionally and physically, and that’s not possible when you are past the point of exhaustion. Unfortunately with dementia, sometimes people may become aggressive and you can’t have that around your son. Do what you can to take care of yourself.
My best friend has today been diagnosed with frontotemporal dementia he’s 43 years old has a wife, a nine-year-old son and a 14-year-old daughter. They are finding it extremely difficult. I’m his best friend I’m watching this its really upsetting but your strength is amazing. I can only hope where as strong as you, especially my friends family. ❤
We're so sorry to hear about your best friend. Please remember, we're here for you. Please reach out to our Dementia Support Line if you would like advice and support: 0333 150 3456 or visit bit.ly/dementiasupportservices 💙
Caroline, I hope you get this message! Hats off to you for sure! I am in the same position too. For four years, from 2003-2007 I too looked after my parents. Dad had Vascular Dementia. Mother, my best friend had Alzheimer's Disease too. Mother In Law who also is very close to me, she too has Dementia. It runs rapid in our families lives. Three years, ago, things started changing in my relationship with my husband and I. Lots of strange things going on with him. A lot of our aunts and uncles and grandparents had it too! In January of this year put my husband in an in between place where he could stay as he was unable to live with me. Seven months later, in July I find out he is going to a nursing home. His diagnosis, Front Lo Dementia too! Last October Murray turned 60, I turned 65 in June. It has been one hard year especially 2023. If it was not for a deep relationship with my Savior and Lord Jesus Christ. I do not know how I would have made it without him and the prayers and love and the help and the ears with family I have learned it is what it is. It me hard a couple of weeks, when reality set in that he is not coming home to live with me again. Met the man thirty nine years ago... So, that is all for you, I hear your pain, hear your breaking heart.. My thoughts go out to all of you, I hear you pain, not easy... It will get better! with Love, Cheryl and big hugs to you on the journey like me!
Dear Caroline and William, my heart goes out to you. It is so difficult. My sister has it and I cannot fathom raising a child while taking care of her.
My mother has Alzheimer’s. She sun downs hard and gets aggressive and accusatory. May God bless and comfort all caregivers helping a loved one with this awful disease.
So heartbreaking. She will eventually need to get help. He will forget how to walk, how to eat. And I hate to say it but her son needs her more than her husband. She can’t be a caregiver to both. I hope she has a good support network.
We really need to increase the funding for research & development for Fronto-temporal dementia (FTD) massively. It is illnesses such as these that really piss me off. We need to go on the OFFENSIVE on this disease.
And this wonderful lady recieves the grand total of £70.00 a week Carer's Allowance and our wonderful caring Government want to get the disabled off of PIP and then Carer's lose their benefit too. Its a disgrace!
My husband has dementia was diagnosed in 2012, it’s so hard to watch someone you love with dementia. But it must be so hard being diagnosed as such a young age as Mark. Take care
@@Paulohlsson7 hi Paul, my day was okay thank you so much for asking My husband passed away on 18th January, but I am trying my best to come to terms knowing that he is in a much better place now, hard but for his sake I have to accept and try my best
I'm so very sorry that you and your family are going through this so young. It's just so heartbreaking. I lost my husband to FTD/Alz just a few months ago in July. XX 💔
I've been caring for my husband for seven years. He was diagnosed with FTD in early 2016. He has the behavioral variant, and all his actions are impulse based. I miss the man I married.
Never feel selfish if you need time for yourself. Everyone does, and specifically someone in your situation. I'm very sorry what has happened to Mark. Disease like this hurts those around the affected person even more than the person themself. Lots of love x
Dear I give you a huge hug. I am really really sad, I wish you you will receive the love and support from all your close ones. I wish to you and your son then best life possibile. This story totally destroyed me.
What a sad video, but beautiful family. I hope people ask the wife how's she's doing, what a hard upsetting time. Hope you really soak up your little boy's time to keep you strong.
While my immediate family has not been touched by dementia, too many of my closest friends have. And while a CNA, most of my clients suffered from this. It’s a devastating disease and it effects the entire family. My thoughts and sincere prayers go out to all who are touched by this disease. If you are a caregiver, I beg you… take care of yourself, find a support group that fills your needs and don’t be afraid to ask for help.
I can’t imagine watching your husband so young anybody going though this my grandad has Alzheimer’s and dementia and it’s not easy of the carer that is looking after them it’s heartbreaking
My good friend of 20 years seems to be in the early stages of dementia at age 80. She gets very frustrated when we are in conversations. Angry at times. I don't believe that I can interact with her much longer. I always seem to say or do the wrong thing.
That is dementia caused by age. We all get that if we live long enough. Early dementia is something else. My dad got dementia at the age of 63 and lived tl 79. He disappeared in front of os. At the end he did not talk, did not understand just wanted to walk walk walk.....
Hi, our support line is available if you or your friend need any advice and support. Do get in contact, even if it's just to talk, 0333 150 3456. All the best 💙
Unfortunately it runs in my family. My great great granny had it, my great granny had it, my granny was one of 11 children & everyone of them got it, now I'm more than petrified my mum might get it. I know I will get it but luckily I don't have anymore family once my parents go. My late granny didn't know her only child - my mum, but recognised me as her granddaughter, she thought my dad was her brother who died during ww2 on HMS Hood. It is a nasty, horrible upsetting disease, very cruel.
Hi Happyndaft, so sorry to hear about your granny and great-granny. If you or your parents need any advice or support, we are here for you. Do get in touch with our support line any time. All the best 💙
My 64 year old hubby was diagnosed with this damn disease last year. So, we're just starting the downward spiral. Big Love to all sufferers and their carers too x
We’re sorry to hear about your husband's diagnosis, Dianne. Please reach out to our Dementia Support Line if you would like advice and support: 0333 150 3456 or visit bit.ly/dementiasupportservices 💙
You will eventually have decide who needs you most , a growing child or a regressing adult. So difficult and sad. Hope you get the right help.Whats the update for 2024
Alzheimer's can be caused by many things including diet, what you drink. Sugar. Sweetners, no social life. When you sleep late? , stressing out n not managing STRESS. This can be REVERSED by Going for walks, reading out loud, writing and reading each day, managing STRESS, hobby, swimming/ crafting/ fishing/, learning something new like a language, new recipe, Word search, puzzles, sudoku, exercise, gardening, reduce sugar, No fizzy drinks, drinking water. STOP alcohol as this dehydrated the body which cause strokes. * walking backwards. * sleep is important- try to sleep early like 9- 9:30pm. * how old are you please? - youngsters are getting memory problems aswell so not to worry. ******* For women:::Memory problems can happen durring grieving/ pre menopausal years as may have 2 periods in 1 month- so eating iron ferritin rich foods as important. * living with an understanding partner helps but you must change diet. Can be REVERSED- more videos from ted talks *
This woman is so selfless in looking after her husband. I hope she has the assistance she so clearly needs. My mother has Parkinson's and LBD but she is 80 this year and now in a care facility. It is tragic that this young man has developed FTD dementia at such a young age and his care has fallen on his wife's shoulders. It is clear she doesn't wish to abandon him in a care home. Awful situation. I hope she and her husband get the support they clearly need.
I hope the wife gets help, especially with a small child to look after
Bless this loving Mum and wife. ❤
My husband’s nightmare began with a near fatal brain injury. So it was an instant tragedy and he remained on life support and in facilities four months before being discharged home.Now he has mixed dementia. I have been his caregiver the whole time. This summer will be year fourteen. It’s a long, painful, confusing ,exhausting and heartbreaking road. Bless you and carry on❤
Hi, we're sorry to hear this. We're here for you and your husband. Just call our Dementia Support Line, 0333 150 3456, or visit bit.ly/dementiasupportservices for support and advice. 💙
Praying for you ❤️❤️❤️❤️
I am so sorry for your extended loss and struggle.
Hats off to those individuals who stay faithful through life's challenges without giving up
So sorry I've been there both my hubby and son had it both 42 year old when they died 31 years apart God bless your family .
I'm so very sorry. Yes, you truly can tell Caroline that you've been there. Such a cruel disease. My mother, my mother in law and several aunts and uncles,too. I pray that God will give the doctors a cure. Diane
@@jimmiepatrumActually, Scientists find the cure ! Hard work , funding and intelligence !! God would just eliminate dementia, if God was real
So sorry.
I’m so sorry, that’s truly terrible and heartbreaking and totally unfair, take care x
So sorry to hear that!
I was so moved by the film of Caroline and Mark. My husband has exactly the same dementia and was diagnosed when our son was 6. The pain of it is bottomless.
My heart goes out to you as well.
Bless this Mama and her family ❤
She's clearly not getting enough help. Such a beautiful heart. The toll on caregivers can't be understated. Alzheimer Society and NIH need to do much more to advocate for caregivers too.
Don't you think the Azheimer's Society are doing as much as they can?
@@alexmorgan3435President and CEO of the Alzheimer's Association, had a total compensation of $1,481,516 in 2023......that money should go to help many people not one!!!
Looking after him may need to be soon putting him residential care, not a case of abandoning your vows, but you are going to have to be available for your child emotionally and physically, and that’s not possible when you are past the point of exhaustion. Unfortunately with dementia, sometimes people may become aggressive and you can’t have that around your son. Do what you can to take care of yourself.
Please prioritize some restorative self care sweet woman!!!! And placement is not failing your vows!!! Big hugs!!
Such a brave lovely lady..
It looks absolutely exhausting. 😢
My cousin had this. She was diagnosed in her mid 50's She passed away last year. She was only 61. RIP Ellen. Love and miss you.
I’m so sorry for your loss. ❤️🩹
My best friend has today been diagnosed with frontotemporal dementia he’s 43 years old has a wife, a nine-year-old son and a 14-year-old daughter. They are finding it extremely difficult. I’m his best friend I’m watching this its really upsetting but your strength is amazing. I can only hope where as strong as you, especially my friends family. ❤
We're so sorry to hear about your best friend. Please remember, we're here for you. Please reach out to our Dementia Support Line if you would like advice and support: 0333 150 3456 or visit bit.ly/dementiasupportservices 💙
I am the caregiver for my 43-year-old son with the same disease. It is hard but you make every day count.
Have you tried cannabis oil?
I am praying for you ❤️❤️❤️
This poor family
Oh my she is a living saint. I hope she has strong family support to step in on occasion and help. ❤
Caroline, I hope you get this message! Hats off to you for sure! I am in the same position too. For four years, from 2003-2007 I too looked after my parents. Dad had Vascular Dementia. Mother, my best friend had Alzheimer's Disease too. Mother In Law who also is very close to me, she too has Dementia. It runs rapid in our families lives. Three years, ago, things started changing in my relationship with my husband and I. Lots of strange things going on with him. A lot of our aunts and uncles and grandparents had it too! In January of this year put my husband in an in between place where he could stay as he was unable to live with me. Seven months later, in July I find out he is going to a nursing home. His diagnosis, Front Lo Dementia too! Last October Murray turned 60, I turned 65 in June. It has been one hard year especially 2023. If it was not for a deep relationship with my Savior and Lord Jesus Christ. I do not know how I would have made it without him and the prayers and love and the help and the ears with family I have learned it is what it is. It me hard a couple of weeks, when reality set in that he is not coming home to live with me again. Met the man thirty nine years ago... So, that is all for you, I hear your pain, hear your breaking heart.. My thoughts go out to all of you, I hear you pain, not easy... It will get better! with Love, Cheryl and big hugs to you on the journey like me!
Praying for you and your family Cheryl!
Dear Caroline and William, my heart goes out to you. It is so difficult. My sister has it and I cannot fathom raising a child while taking care of her.
That woman is a true hero - selfless, noble, and brave. But even heroes need help sometime. I hope she's been able to find some help.
My mother has Alzheimer’s. She sun downs hard and gets aggressive and accusatory. May God bless and comfort all caregivers helping a loved one with this awful disease.
So heartbreaking. She will eventually need to get help. He will forget how to walk, how to eat. And I hate to say it but her son needs her more than her husband. She can’t be a caregiver to both. I hope she has a good support network.
You are quite right in what you say, sadly. I hope she gets some help.
Agreed❤
I am sure she is aware of this.
We really need to increase the funding for research & development for Fronto-temporal dementia (FTD) massively. It is illnesses such as these that really piss me off. We need to go on the OFFENSIVE on this disease.
So sorry for Mark, and his family. He and they clearly deserved more in life. God please comfort them in their time of need
She looks so exhausted. I feel for her. My spouse has dementia but his condition is not half as severe as what she is dealing with. So tragic,
God bless you all. You are doing a wonderful job. Keep putting one foot in front of the other.❤
You are an incredible woman, God bless you and your family.
You are doing a great job. Stay strong for your lovely family xx
And this wonderful lady recieves the grand total of £70.00 a week Carer's Allowance and our wonderful caring Government want to get the disabled off of PIP and then Carer's lose their benefit too. Its a disgrace!
My husband has dementia. It's so hard.
It is, but just do it with love. ❤
Heartbreaking I hope they can find something to help soon.
Life can be so cruel to the nicest people.
This is so heartbreaking.
😢
My husband has dementia was diagnosed in 2012, it’s so hard to watch someone you love with dementia. But it must be so hard being diagnosed as such a young age as Mark. Take care
Hi Juliana, how's your day going with you?
@@Paulohlsson7
I am good thank you, thanks for asking. Hope you are okay
@@julianablanc6278 I'm doing great and thanks for asking, how are you spending your spare time?
@@Paulohlsson7 hi Paul, my day was okay thank you so much for asking
My husband passed away on 18th January, but I am trying my best to come to terms knowing that he is in a much better place now, hard but for his sake I have to accept and try my best
What an amazing woman
Bless this incredible woman. Gosh, I hope she gets help. So sad all round.😢
💜🙏Bless you dear Caroline! 😔
What a strong lady
Sending you lots of love - you're awesome.
Sad my prayers to all caretakers to work with patienrs of dementia god bless ui.all
Respect. What a remarkable Woman.
Heartbreaking reality for this precious family. May Caroline be given all the support possible.
I’m so very, very sorry.
I'm so very sorry that you and your family are going through this so young. It's just so heartbreaking. I lost my husband to FTD/Alz just a few months ago in July. XX 💔
So sorry for you and your family
Bless their family, what a lovely family and each individual in it.....
I am so sorry for you. ❤
Caroline, you are an incredible person. Sending you strength sweetheart x.
I've been caring for my husband for seven years. He was diagnosed with FTD in early 2016. He has the behavioral variant, and all his actions are impulse based. I miss the man I married.
We're sorry to hear that Cathie and please feel free to get in touch if we can do anything to help you both. 💙
@@alzheimerssociety Thank you.
This is heartbreaking 💔
Oh this is so sad. My dad had this and it is so so difficult. I pray for them. 💔❤️🩹
My thoughts are with you. I cared for people with dementia until my retirement. And have had 3 friends with early onset.
Anazing lady lots of love to you ❤
This is devastating, I can’t even imagine going through this as either the sufferer or the carer. Caroline, you are amazing ❤
You are absolutely amazing so much love you give I do hope you are getting some support ❤
GOD BLESS YOU AND YOUR FAMILY!
I’m single and choose to be.,,
It’s very sad to see our loved ones suffer!❤❤❤
So sorry for this lovely family . Especially the mum 🦘🇦🇺
What an incredible woman... god bless you
My heart breaks for you, you are doing amazing job on both never give up.
That must be so hard to cope with, a very difficult path for all and so sad ! ❤
Never feel selfish if you need time for yourself. Everyone does, and specifically someone in your situation. I'm very sorry what has happened to Mark. Disease like this hurts those around the affected person even more than the person themself. Lots of love x
Dear I give you a huge hug. I am really really sad, I wish you you will receive the love and support from all your close ones. I wish to you and your son then best life possibile. This story totally destroyed me.
What a sad video, but beautiful family. I hope people ask the wife how's she's doing, what a hard upsetting time. Hope you really soak up your little boy's time to keep you strong.
God bless you ❤
You make a great job, 💪👏
This is what it’s all about❤❤
I’m so sorry 😢
This is heartrending. I hope your government offers some help with taking care of your beloved husband. That’s what good governments are for.
Hugs mommy!
This is very traumatic for both Caroline and her child!
This is just heartbreaking 💔 sending all love to the family x
I am so very sorry for your loss.
Bless the awesome wife 2:09 many otters might probably have gotten misdiagnosed..you need an advocate in the medical system 😢😢😢
While my immediate family has not been touched by dementia, too many of my closest friends have. And while a CNA, most of my clients suffered from this.
It’s a devastating disease and it effects the entire family.
My thoughts and sincere prayers go out to all who are touched by this disease. If you are a caregiver, I beg you… take care of yourself, find a support group that fills your needs and don’t be afraid to ask for help.
Are they also young onset dementia? So sorry for your friends its horrible as all hell.
It's Amazing How ❤ Conquers All.
I can’t imagine watching your husband so young anybody going though this my grandad has Alzheimer’s and dementia and it’s not easy of the carer that is looking after them it’s heartbreaking
So many other degenerative diseases such MND or Huntington's Disease or MS.
My heart breaks for this woman. Does anyone know how she is getting on?
My good friend of 20 years seems to be in the early stages of dementia at age 80. She gets very frustrated when we are in conversations. Angry at times. I don't believe that I can interact with her much longer. I always seem to say or do the wrong thing.
That is dementia caused by age. We all get that if we live long enough. Early dementia is something else. My dad got dementia at the age of 63 and lived tl 79. He disappeared in front of os. At the end he did not talk, did not understand just wanted to walk walk walk.....
Hi, our support line is available if you or your friend need any advice and support. Do get in contact, even if it's just to talk, 0333 150 3456. All the best 💙
God bless us every one.
How sad. Very sorry for you.
I’m sorry my ‘husband is got dementia At 62 and now at 71 he’s get hard and harder I hope you have help
Unfortunately it runs in my family. My great great granny had it, my great granny had it, my granny was one of 11 children & everyone of them got it, now I'm more than petrified my mum might get it. I know I will get it but luckily I don't have anymore family once my parents go. My late granny didn't know her only child - my mum, but recognised me as her granddaughter, she thought my dad was her brother who died during ww2 on HMS Hood. It is a nasty, horrible upsetting disease, very cruel.
Hi Happyndaft, so sorry to hear about your granny and great-granny. If you or your parents need any advice or support, we are here for you. Do get in touch with our support line any time. All the best 💙
good heartedwoman
Bless you both. You are doing an incredible job. I do hope you get help, though! Los of courage and strenght for the futur!
I’m so very sorry. I could not do what she’s doing.
My wife has dementia he was diagnosed last seven years back
Life can be very cruel sometimes, I know it’s hard too, my husband was in his late 60s. May god give you strength every day. ❤❤❤❤
💙
My brother was diagnosed with dementia at 46 its so terrible
My mom did that for my dad. ❤❤ That is called love.
My 64 year old hubby was diagnosed with this damn disease last year. So, we're just starting the downward spiral. Big Love to all sufferers and their carers too x
We’re sorry to hear about your husband's diagnosis, Dianne. Please reach out to our Dementia Support Line if you would like advice and support: 0333 150 3456 or visit bit.ly/dementiasupportservices 💙
Bless you mummy ❤ you need a break ❤❤
You will eventually have decide who needs you most , a growing child or a regressing adult.
So difficult and sad. Hope you get the right help.Whats the update for 2024
Bless you ❤
What did Mark say with diagnosis? Did he understand?
My husband has dementia, he was diagnosed in March is 2022
Alzheimer's can be caused by many things including diet, what you drink. Sugar. Sweetners, no social life. When you sleep late? , stressing out n not managing STRESS.
This can be REVERSED by
Going for walks, reading out loud, writing and reading each day, managing STRESS, hobby, swimming/ crafting/ fishing/, learning something new like a language, new recipe, Word search, puzzles, sudoku, exercise, gardening, reduce sugar, No fizzy drinks, drinking water. STOP alcohol as this dehydrated the body which cause strokes.
* walking backwards.
* sleep is important- try to sleep early like 9- 9:30pm.
* how old are you please? - youngsters are getting memory problems aswell so not to worry.
*******
For women:::Memory problems can happen durring grieving/ pre menopausal years as may have 2 periods in 1 month- so eating iron ferritin rich foods as important.
* living with an understanding partner helps but you must change diet. Can be REVERSED- more videos from ted talks
*
Hi Karen, how's your day going with you?
She is very strong
Very sad. 😢
It’s such an awful disease but even more when someone should be in their prime
*Who* is *caring* for the *caregivers*? Is there a national/nationally funded ‘Caregivers Alliance’ of a sort?
Thank you!
What a terrible predicament to be in 💔
Well done you se
This woman is so selfless in looking after her husband. I hope she has the assistance she so clearly needs.
My mother has Parkinson's and LBD but she is 80 this year and now in a care facility. It is tragic that this young man has developed FTD dementia at such a young age and his care has fallen on his wife's shoulders. It is clear she doesn't wish to abandon him in a care home. Awful situation. I hope she and her husband get the support they clearly need.