'Looking after you the best I can' - Mark was diagnosed with frontotemporal dementia in his 40s
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- Опубликовано: 30 авг 2023
- Mark, who lives with wife Caroline and 3-year-old son William, was in his forties when he was diagnosed with Fronto-temporal dementia (FTD). Caroline shares their story, which challenges the huge misconception that dementia is all about memory loss and only happens to old people.
Mark attends our Alzheimer’s Society Singing for the Brain group every week with his carer.
Find out more about Mark and Caroline’s story and Alzheimer’s Society’s vow to support them here.
At Alzheimer’s Society, we vow to help end the devastation of dementia, Britain’s biggest killer. Click here to find out more.
With your help, we can give vital support to those who need it most, hold decision makers to account, and fund ground-breaking research to transform the future for everyone living with dementia.
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Who are we?
We are Alzheimer’s Society. We are a vital source of support and a powerful force for change for everyone affected by dementia.
What is dementia?
‘Dementia’ describes a group of symptoms that include problems with memory, thinking or language, and changes in mood, emotions, perception and behaviour. Dementia is a progressive disease, which means symptoms may be relatively mild at first, but they get worse over time. There are many types of dementia but Alzheimer’s disease is the most common. The next most common is vascular dementia.
If you need dementia support, we’re here for you. Get personalised information, support and advice by calling our Dementia Connect support line on 0333 150 3456 or visit us at www.alzheimers.org.uk/
Alzheimer's Society
She's clearly not getting enough help. Such a beautiful heart. The toll on caregivers can't be understated. Alzheimer Society and NIH need to do much more to advocate for caregivers too.
So sorry I've been there both my hubby and son had it both 42 year old when they died 31 years apart God bless your family .
I'm so very sorry. Yes, you truly can tell Caroline that you've been there. Such a cruel disease. My mother, my mother in law and several aunts and uncles,too. I pray that God will give the doctors a cure. Diane
@@jimmiepatrumActually, Scientists find the cure ! Hard work , funding and intelligence !! God would just eliminate dementia, if God was real
So sorry.
I’m so sorry, that’s truly terrible and heartbreaking and totally unfair, take care x
So sorry to hear that!
I hope the wife gets help, especially with a small child to look after
My cousin had this. She was diagnosed in her mid 50's She passed away last year. She was only 61. RIP Ellen. Love and miss you.
I’m so sorry for your loss. ❤️🩹
My husband’s nightmare began with a near fatal brain injury. So it was an instant tragedy and he remained on life support and in facilities four months before being discharged home.Now he has mixed dementia. I have been his caregiver the whole time. This summer will be year fourteen. It’s a long, painful, confusing ,exhausting and heartbreaking road. Bless you and carry on❤
Hi, we're sorry to hear this. We're here for you and your husband. Just call our Dementia Support Line, 0333 150 3456, or visit bit.ly/dementiasupportservices for support and advice. 💙
Praying for you ❤️❤️❤️❤️
Oh my she is a living saint. I hope she has strong family support to step in on occasion and help. ❤
Hats off to those individuals who stay faithful through life's challenges without giving up
I was so moved by the film of Caroline and Mark. My husband has exactly the same dementia and was diagnosed when our son was 6. The pain of it is bottomless.
So sorry for Mark, and his family. He and they clearly deserved more in life. God please comfort them in their time of need
Bless this loving Mum and wife. ❤
Looking after him may need to be soon putting him residential care, not a case of abandoning your vows, but you are going to have to be available for your child emotionally and physically, and that’s not possible when you are past the point of exhaustion. Unfortunately with dementia, sometimes people may become aggressive and you can’t have that around your son. Do what you can to take care of yourself.
Please prioritize some restorative self care sweet woman!!!! And placement is not failing your vows!!! Big hugs!!
So heartbreaking. She will eventually need to get help. He will forget how to walk, how to eat. And I hate to say it but her son needs her more than her husband. She can’t be a caregiver to both. I hope she has a good support network.
You are quite right in what you say, sadly. I hope she gets some help.
My mother has Alzheimer’s. She sun downs hard and gets aggressive and accusatory. May God bless and comfort all caregivers helping a loved one with this awful disease.
Such a brave lovely lady..
I am the caregiver for my 43-year-old son with the same disease. It is hard but you make every day count.
Have you tried cannabis oil?
I am praying for you ❤️❤️❤️
My best friend has today been diagnosed with frontotemporal dementia he’s 43 years old has a wife, a nine-year-old son and a 14-year-old daughter. They are finding it extremely difficult. I’m his best friend I’m watching this its really upsetting but your strength is amazing. I can only hope where as strong as you, especially my friends family. ❤
We're so sorry to hear about your best friend. Please remember, we're here for you. Please reach out to our Dementia Support Line if you would like advice and support: 0333 150 3456 or visit bit.ly/dementiasupportservices 💙
She looks so exhausted. I feel for her. My spouse has dementia but his condition is not half as severe as what she is dealing with. So tragic,
Bless this incredible woman. Gosh, I hope she gets help. So sad all round.😢
This is so heartbreaking.
What an amazing woman
Caroline, I hope you get this message! Hats off to you for sure! I am in the same position too. For four years, from 2003-2007 I too looked after my parents. Dad had Vascular Dementia. Mother, my best friend had Alzheimer's Disease too. Mother In Law who also is very close to me, she too has Dementia. It runs rapid in our families lives. Three years, ago, things started changing in my relationship with my husband and I. Lots of strange things going on with him. A lot of our aunts and uncles and grandparents had it too! In January of this year put my husband in an in between place where he could stay as he was unable to live with me. Seven months later, in July I find out he is going to a nursing home. His diagnosis, Front Lo Dementia too! Last October Murray turned 60, I turned 65 in June. It has been one hard year especially 2023. If it was not for a deep relationship with my Savior and Lord Jesus Christ. I do not know how I would have made it without him and the prayers and love and the help and the ears with family I have learned it is what it is. It me hard a couple of weeks, when reality set in that he is not coming home to live with me again. Met the man thirty nine years ago... So, that is all for you, I hear your pain, hear your breaking heart.. My thoughts go out to all of you, I hear you pain, not easy... It will get better! with Love, Cheryl and big hugs to you on the journey like me!
Praying for you and your family Cheryl!
It looks absolutely exhausting. 😢
Bless this Mama and her family ❤
My husband has dementia. It's so hard.
It is, but just do it with love. ❤
Respect. What a remarkable Woman.
And this wonderful lady recieves the grand total of £70.00 a week Carer's Allowance and our wonderful caring Government want to get the disabled off of PIP and then Carer's lose their benefit too. Its a disgrace!
I am so sorry for you. ❤
You are an incredible woman, God bless you and your family.
Caroline, you are an incredible person. Sending you strength sweetheart x.
My husband has dementia was diagnosed in 2012, it’s so hard to watch someone you love with dementia. But it must be so hard being diagnosed as such a young age as Mark. Take care
poor woman, her life is ruined....
Oh this is so sad. My dad had this and it is so so difficult. I pray for them. 💔❤️🩹
God bless you all. You are doing a wonderful job. Keep putting one foot in front of the other.❤
Heartbreaking I hope they can find something to help soon.
Life can be so cruel to the nicest people.
You are doing a great job. Stay strong for your lovely family xx
I've been caring for my husband for seven years. He was diagnosed with FTD in early 2016. He has the behavioral variant, and all his actions are impulse based. I miss the man I married.
We're sorry to hear that Cathie and please feel free to get in touch if we can do anything to help you both. 💙
@@alzheimerssociety Thank you.
💜🙏Bless you dear Caroline! 😔
My good friend of 20 years seems to be in the early stages of dementia at age 80. She gets very frustrated when we are in conversations. Angry at times. I don't believe that I can interact with her much longer. I always seem to say or do the wrong thing.
That is dementia caused by age. We all get that if we live long enough. Early dementia is something else. My dad got dementia at the age of 63 and lived tl 79. He disappeared in front of os. At the end he did not talk, did not understand just wanted to walk walk walk.....
Hi, our support line is available if you or your friend need any advice and support. Do get in contact, even if it's just to talk, 0333 150 3456. All the best 💙
What a strong lady
Never feel selfish if you need time for yourself. Everyone does, and specifically someone in your situation. I'm very sorry what has happened to Mark. Disease like this hurts those around the affected person even more than the person themself. Lots of love x
It’s such an awful disease but even more when someone should be in their prime
So sorry for this lovely family . Especially the mum 🦘🇦🇺
While my immediate family has not been touched by dementia, too many of my closest friends have. And while a CNA, most of my clients suffered from this.
It’s a devastating disease and it effects the entire family.
My thoughts and sincere prayers go out to all who are touched by this disease. If you are a caregiver, I beg you… take care of yourself, find a support group that fills your needs and don’t be afraid to ask for help.
Are they also young onset dementia? So sorry for your friends its horrible as all hell.
This is heartrending. I hope your government offers some help with taking care of your beloved husband. That’s what good governments are for.
My wife has dementia he was diagnosed last seven years back
I’m so very, very sorry.
Sad my prayers to all caretakers to work with patienrs of dementia god bless ui.all
My thoughts are with you. I cared for people with dementia until my retirement. And have had 3 friends with early onset.
Heartbreaking reality for this precious family. May Caroline be given all the support possible.
I can’t imagine watching your husband so young anybody going though this my grandad has Alzheimer’s and dementia and it’s not easy of the carer that is looking after them it’s heartbreaking
Dear I give you a huge hug. I am really really sad, I wish you you will receive the love and support from all your close ones. I wish to you and your son then best life possibile. This story totally destroyed me.
The saddest thing is that he is only going to get worse and she will have to find long-term care. Hard enough to raise a child alone, especially when your spouse has a terminal illness.
Bless their family, what a lovely family and each individual in it.....
This is just heartbreaking 💔 sending all love to the family x
I am so very sorry for your loss.
Watching this... its not a sadness i feel. Its an ache. A deep pain. Does that make sense? A feeling of loss and a feeling of injustice about the whole thing. Its just not fair. Not for her, not for their son, and certainly not for Mark.
My husband has dementia, he was diagnosed in March is 2022
Alzheimer's can be caused by many things including diet, what you drink. Sugar. Sweetners, no social life. When you sleep late? , stressing out n not managing STRESS.
This can be REVERSED by
Going for walks, reading out loud, writing and reading each day, managing STRESS, hobby, swimming/ crafting/ fishing/, learning something new like a language, new recipe, Word search, puzzles, sudoku, exercise, gardening, reduce sugar, No fizzy drinks, drinking water. STOP alcohol as this dehydrated the body which cause strokes.
* walking backwards.
* sleep is important- try to sleep early like 9- 9:30pm.
* how old are you please? - youngsters are getting memory problems aswell so not to worry.
*******
For women:::Memory problems can happen durring grieving/ pre menopausal years as may have 2 periods in 1 month- so eating iron ferritin rich foods as important.
* living with an understanding partner helps but you must change diet. Can be REVERSED- more videos from ted talks
*
That must be so hard to cope with, a very difficult path for all and so sad ! ❤
God bless us every one.
What an incredible woman... god bless you
How sad. Very sorry for you.
Hugs mommy!
I’m so sorry 😢
Bless you ❤
You make a great job, 💪👏
God bless you ❤
Unfortunately it runs in my family. My great great granny had it, my great granny had it, my granny was one of 11 children & everyone of them got it, now I'm more than petrified my mum might get it. I know I will get it but luckily I don't have anymore family once my parents go. My late granny didn't know her only child - my mum, but recognised me as her granddaughter, she thought my dad was her brother who died during ww2 on HMS Hood. It is a nasty, horrible upsetting disease, very cruel.
Hi Happyndaft, so sorry to hear about your granny and great-granny. If you or your parents need any advice or support, we are here for you. Do get in touch with our support line any time. All the best 💙
It's Amazing How ❤ Conquers All.
My brother was diagnosed with dementia at 46 its so terrible
Bless you both. You are doing an incredible job. I do hope you get help, though! Los of courage and strenght for the futur!
My mom did that for my dad. ❤❤ That is called love.
Well done you se
Bless you mummy ❤ you need a break ❤❤
Very sad. 😢
This poor family
Life can be very cruel sometimes, I know it’s hard too, my husband was in his late 60s. May god give you strength every day. ❤❤❤❤
💙
*Who* is *caring* for the *caregivers*? Is there a national/nationally funded ‘Caregivers Alliance’ of a sort?
Thank you!
Bless the awesome wife 2:09 many otters might probably have gotten misdiagnosed..you need an advocate in the medical system 😢😢😢
Husband has dementia but don’t know wht kind…now has lost language …. Sleeps abt 21 hours …a day….awake only when eating
She is a trooper
What a terrible predicament to be in 💔
I’m so very sorry. I could not do what she’s doing.
What did Mark say with diagnosis? Did he understand?
I have FTD dementia i started supplements genius mushrooms otc Walmart and MCT oil sublingual works fast and gives quality of life ❤God bless you
I’ve heard good things about the keto
Diet and mct oil. Might be something to look into. God’s blessings to you.
🙏🙏🙏
He’ll stop swallowing,eating, etc. and then she’ll have to find help.
It's like looking after 2 kids...
The additional baby boy that she didn't ask for 😊
Mark was..😢😢😢😢😢😢😢😢😢
Hi team, my father is 62 years and he is suffering from multiple infarct dememtia. Sometimes he behaves very different person like have a lot anger and don't listen to anyone. He has a good long term memory but his short term memory is not good. Please help 🙏 if anything you can suggest related to this disease.
Hi, we're sorry to hear about your Father. Our dementia advisors can provide support and advice should you wish to speak to someone, call 0333 150 3456, or visit our website: bit.ly/dementiasupportservices 💙
Hi team, the number you have provided is saying invalid, actually i am from india, is there any other way through which i can connect with you. 🙏
Hi Sourabh, our Dementia Support Line is for people living in the UK, but we have online information on vascular dementia - including multi-infarct dementia - here www.alzheimers.org.uk/about-dementia/types-dementia/types-of-vascular-dementia#3 We hope that helps as you go through this difficult time.
He needs to be put into full time care. Terrible for this woman to be doing so much at this stage. I’m not sure why she is.
❤🌼🌷🌺🌻🌸🌹
So sad..
Sometimes there are other cuases then Alzheimer like certain vitamins deficiencies or mold etc but none ever talks about it...
There has been info about it but one needs to dig deep
So, she has 2 kids and no husband.
Im surprised a medicine hasnt been found to treat this. So many get it.
I can not think of a harder thing to live with and live through other than dementia (in any form or stage). Forgetting who you are, who your family is, and where you come from is torture. I commend anyone who continues to care for their family and loved ones with dementia. It's got to be one of be hardest tests from God.
Non puoi fare tutto da sola, io lo so, fatti aiurare più che puoi.
Do u get help
Hisband
He son young