Answering Your Questions About Synkinesis With Facial Paralysis
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- Опубликовано: 10 сен 2024
- Answering your questions about synkinesis with exemple of specific cases and some ideas as yo what to focus on with massages and stretching.
Of course, each cases is different and might not be helpful to you.
Remember you cannot address synkinesis on your own. It is complicated and specific.
You need the expertise of a facial specialist physio.
‼️This post is for informational and educational purpose only. It is not tailored medical advice to your specific condition.
Help is available
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I understand what you're talking about... I've lived with this for over twenty years. It hurts more at times, I do miss my normal face, not pleasant aging with it... You are beautiful, keep trying. Take care!
I had bells palsy in my left side of face since feb.of 2021 during my 3rd trimester pregnancy. I didn't receive steriod medication because of that.. went to physiotherapy in 2 hospitals here in the Philippines, they did electric stimulation, biofeedback, facial exercises and massage, but only soft massage without pressure, they said they do not want to overwork the muscle. I've been diagnosed with synkinesis. They said there is no cure and the therapy will not work anymore. I still can't lift my left forehead, my eyes closes whenever i smile, i have teary eye especially when i eat, i didn't regain my full smile, sometimes i feel my eye is twitching. The neurologist also did not recommend botox for me. I also tried accupuncture but my budget won't allow me to continue anymore. Your insights and massage or stretching techniques are new to me so definitely will try it. Thank you for the new knowledge.
How are you now? 10 months na ako and same Hindi ko magalaw yung kanang kilay ko and Hindi pa din panty smile ko
This was very good info. Funny thing, I have all the symptoms with synkinesis. Eye closes when I eat. My mouth pretty much controls my eye. I still can't smile on my affected side. Nor do I have eyebrow movement. I'm going to try all these muscle stretches.
I feel I wasted almost a year of PT, Acupuncture and EStem time with people who were uneducated and/or guessing.
I hope I can get at least 90% of my smile back.
How are you now?
I have just been diagnosed with BP last night for 2nd time! Last time was 36 years ago. I think worse this time as eye watering badly and sore. I've been prescribed 50mg Prednisolone and eye drops.I will follow your exercises thank you 🙏
The reversal of the effects of bells palsy is a lifetime exercise. I find that with aging and stress factors the area is easily impacted. Can you give me some guidance as to your experience. I find your knowledge and expertise on the subject so helpful and you have given me exercises that I have never thought about which makes perfect sense. Thank u so very much.
I have had Bell's palsy myself, a mild case, but was frustrated to not find proper target therapy info on the topic. And I am a physio...so I can only imaging for other people. I have now been mentored by the best facial therapists in the world and trying to share the knowledge.
Thank you for the info it really help us
I really appreciate your kindness in sharing your own experienced to help other people who are suffering from Bell's Palsy.
Your very welcome
I will try everything I saw in your video. Thanks a lot.
This has been so incredibly helpful! Thank you so much for posting!
I am glad it was Sheri. Thank you.
Many thanks and blessings for educating and helping people who suffered from Bells Palsy. I feel like I lived under a rock, until recently...lol. God bless you! I had Bells Palsy in 2000 on the right side, one week after having a C-section, and I went to the doctor and they advised to take steroids for quick healing, but having a new born I choose to breastfeed and gave up the steroids. I blamed the ice chips I chewed after the surgery, but today I found out in another video that it could've happen from the surgery, from intubation, how they set that mask in my face and damaged the nerve. Now it's besides the point. But it could be a combination of all factors, incuding stress, lack of sleep, working full time up to the last minute. Later, maybe in 2008 or 2009, I went for blepharoplasty surgery, because of droopy eyelids. Right side is still not fully recovered. Now I found the videos about exercises and face massage. Do you think at this stage in my recovery and after the eyelid surgery, I might get the muscles worked, and see improvements? Thank you again!
I can't answer this question with any certainty. I do not have your full medical history, surgery report, have not assessed your current condition. So without having all the details, I can only answer by yes and no. If you do not have any movement in a particular muscles and there is no nerve activity there, you will not get nerve activity since it has been since 2000.
Hi, thank you for wonderful informative videos. I have Bells Pulsy and am on week 19. No movement yet. My eye started closing and is not so dry any longer. My involved side feels like it gets warm every so often. I have discovered that it feels like my muscles are moving ever so slight, but the actual movement is not visible. Is this normal.
Thank you, this is very helpful. I contracted BP on 24 May. I was prescribed PT and advised to start ASAP. I'm in France. It was hard finding a PT who was specialised in facial paralysis but I found one. Or I thought I had. In the first few sessions she taught me some exercises and massages. After that, each session consisted in me showing her a few exercises, then after about 10-15 minutes, the session would end. I made no progress with her at all and stopped going. I also read that exercises should not be started before paresis, whereas I had not been told that. In any event, in the first 2 months of PT, my face remained a block of concrete.
In August I started having some slight movement in the affected side (right side for me). I am now exactly in the stage of sinekinesis mentioned here I the video (eye closing makes my cheek scrunch up). Although my eyelid has more movement than before, my forehead remains completely stiff. I cannot frown or raise my right eyebrow.
My lips on the right are flaccid, and will not close tightly (air still escapes when I try to puff my cheeks). I cannot whistle. My affected cheek feels thick and lumpy. I can also feel a thickness and tension going down the right side of my jaw into the neck.
When attempting a smile, I hear a single vibration-like sound in the right ear. The ear generally feels "full."
An MRI scan showed nothing abnormal. I'm now waiting for an EMG in November.
This is such a frustrating thing to have. Doctors just have no idea. I had to beg for an MRI and the EMG was my suggestion too.
Thanks again.
Sandra, sorry to read you are going through all this. Sadly, your story is not rare amongst people struggling with facial paralysis.
Where are you located in France? I might have some name to give you.
"exercises should not be started before paresis," Unless you call stretching and massage exercises. These should be started right away. Not until the paresis stage you want to practice movement. And that has be performed most often with guidance from a facial therapist as most people exaggerate way to much and need cueing to perform in a slow, controlled manner.
@@ButheauPhysiotherapy Hello, thanks so much for replying. I'm near Marseille, so if you have any names, they'd be welcome. At this point I'm willing to try almost anything: monter jusqu'à Notre Dame de la Garde à genoux / mettre des épingles dans une poupée vaudou...
very very valuable video.. many thanks for kind support ..
Greetings sir .l have facial paralysis three years ago and l have not yet recover my smile.my affected keeps paining me
Before I was so afraid in doing stretching of my muscles because I thought I am worsening or damaging my affected nerves.
I learned it a lot from you. Thank you so much.
Amazing content! Thank you for sharing. God bless you.
Thank you, your welcome
Thank you very much for your advises🤗🤗
Yes you are spot on....❤❤❤
Hello, thanks for your video!
what do you think about Crystal touch clinic in Rotterdam?
don't have an opinion. I just know our techniques differs
You are flipping Amazing 😁
Hello Pierre,
Haalo again, today is day 4 of my Bell's Palsy and seems like mine is Lower Motor Neuron affected, most likely at the level of Stylo-Mastoid foramen and beyond. So, today, as I am waiting in my truck at school, I felt current flowing thru my RT cheek muscles and it came from behind the RT ear and came down to the mid-level of cheek and it went up and did that running around at least 8-10 times and it stopped. I have been doing exercises since Tuesday morning and today is Wednesday afternoon. My Acyclovir and Prednisone is round the clock. Heat, massage, exercises of various cheek-groups...all of that. But to feel that random current flow in my cheek muscle, is phenomenal to me. What would you consider this?
I cannot answer this. I have not evaluated you fully. You are on day 4… take your meds, massage… DO NOT “exercise” your face.
It sounds interesting your topic Sir Pierre. Thanks a lot for having such a beautiful tips because the truth it's quite hard to handle Bell's Palsy. I tried a lot of facial exercises but still cannot fully recovered. There is a slight progress especially from affected eyebrow, eyelid, half side of the nose, affected side of lip, cheekbone and the muscle under the clip chin.
There could be other thing going on that are delaying progress. Always consult with a professional trained in facial paralysis if no significant changes are seen after 3-4 weeks from onset
@@ButheauPhysiotherapy Yes I will do your advice.
Thank you so much 🙏
Please I have facial palsy and is two months now for some time now I do share crocodile tears when eating or chewing on my affected eyes
Why please?
Большое спасибо за Ваше видео! Я болею 10 месяцев, первое движение появилось только на 100-й день пареза, а через неделю уже стали появляться первые синкинезии. Думаю, что большую роль в их появлении играет, что каждый врач, у которого я была, заставляли делать мимическую гимнастику, хотя у меня ещё даже намёка на движение не было. Я сейчас страдаю от синкинезий и у нас нет врачей, кто знает, что с этим делать, кроме ботокса. Начну делать, как Вы советуете, хочу вернуть своё лицо.
It would be extremely hard to treat your synkinesis only from the video I am publishing. Each case is different , each presentation is different and you need to find out what exactly you need to work on... Which muscles is hyperactive, creates the unwanted motion and need to be stretched and calmed down to prevent interfering with the antagonist muscle that creates the wanted motion. SO stretching and the neuromuscular muscular reeducation with slow, controlled movement to target only the wanted movement.
If smile is left wards how do I focus the massage. The affected side is the right
I also have snkyness my eye and my mouth no cure full 5 years old its cure or no
I developed Bells Palsy as a complication of surgery. I’ve have it since July 29, I have gotten better it’s my right eye and my mouth. It’s difficult recovering from a TKR.
It’s mainly my eyebrows that are not symmetrical.
You developed BP as a complication from meds after surgery? A total knee replacement is not related to facial paralysis. BP always happen has a perfect storm of several factor... Most of the time, Fatigue/ stress/ illness , which all lead to a less robust immune system, which then allows a virus to attack the nerve.
@@ButheauPhysiotherapy As I researched a side effect of Celebrex is Burning Mouth Syndrome and Bells Palsy. I was taking Celebrex for my knee after the total knee replacement..
@@MissNMayette gotcha. how much have you recovered?
Please where can I get the right specialist for exercises.
Secondly if your smile is going towards the left while the right side is affected where should the stretching be
You certainly need to stretch the non involved side. It is tight and overactive and pulling your mouth to that side.
As far as an exercise specialist, you are talking to one… and facial therapy is actually not about “exercise”… facial muscles need movement , flexibility and control… not so much to produce strength.
You can email me if you want to discuss further… pierre@butheauphysio.com
And you will find info about booking an online consultation here:
butheauphysio.janeapp.com
Are there differences in your treatment approach if the facial palsy is due to nerve damage from a parotid gland tumor that was removed, rather than Bell's Palsy. Seems like the underlying nerve damage/root cause would be the same.
Most likely yes. Still depends on the full presentation/ symptoms and the extent of the nerve damage
I'm already at the synkinesis stage. I got no advice from any medical professionals. I've been to four doctors and they can't help me. Neither can't physio.
Have you been assessed by a facial therapist specialist? ( they are generally either a physio, occupational therapist or speech therapist) Very different than what a physio would do though. 99% of physio are not trained in facial therapy.
@@ButheauPhysiotherapy I would see one if any doctor would have recommended or referred one. They told me the same answer, there really is any "cure" or therapy than can fix Bell's Palsy .
@@ButheauPhysiotherapy Also, there isn't any OT's in my area that deal with this condition. Their clients are aimed toward children and youth.
@@Canadiana71yes that is what 99% of OT do.
@@ButheauPhysiotherapy Where I live there are no clinics nearby that can help me. I'd have to travel over one hour to get there. I'm just about giving up on help at this point. I was suggested to see a neurologist but that would be a waste of time.
It has been 19 months since onset. I have very little improvement and am in continuous extreme pain with itching and numbness and burning tongue.
and who have you worked with to address these symptoms? Seeing a facial nerve specialist ? Otolaryngologist?
Is it curable? or skynesis is permanent? I had a facelift 4 months ago and i got this issue in my right side. Whenever i blink my right eye my cheek and mouth moves:(
There are different degree of severity of synkinesis. Your case seems different as I presume you had a surgery that resulted in a facial nerve injury.
I got Bells Palsy in December 2018. I’m dealing with Synkines. I get botox but im not sure if i should keep doing the botox. I notice if i don’t get botox my left eye twitches a lot. What do u thing? If i smile my left side can not do a full smile, only half smile.
Botox is one thing to help decrease synkinesis but it is not the cure. Targeted stretching and neuromuscular reeducation is what you most likely need. It sounds like you need to stretch around your eyes and likely need to stretch some key areas in your cheeks.
@@ButheauPhysiotherapy thank you for your reply🙏
My husband have also bells palsy sence july but still now her haft face not recover. And her face getting tight we always do excersize and massage but no improvement. Any adive what to do. Thank you im always wacthing your vedio. By the way he got singles before he got bells palsy.
Any advise what? To do for my case i wanna help may husband what im a doing. For her almost 3mons but no improvement..
There is a correct and specific way to massage and stretch the face, each muscles individually. IF there is no movement still, there should be absolutely no "exercises" ( no attempt at moving the face, making faces, exaggerating facial expressions). Only massage and stretches.
These are all described in the Bell's palsy tutorial:
www.butheauphysio.com/bells-palsy-treatment-at-home.html
I had bellPasley For 5 years and still with me, is there any help?😢😢
There is if you have not been doing all the right thing you need to do. 95
5% of people have not.
I live in Houston tx do you know anybody who can help me?
I can. I am licensed in Texas.
butheauphysio.janeapp.com
Depending on your insurance, I can bill them. Email me with your details and I ll help you from there. pierre@butheauphysio.com
Also, my left eyelid is weak. What can i do?
Me too . And cant smile
@@moradmourad8923 I can't be specific and tell you what to do without an assessment.
@@ButheauPhysiotherapy
identical.
movement is confined to the nose side 60%
And the eyes burn a little
As for the upper lip, when I want to move it, I notice a trembling. . The movement of the tribe was at the smile, but now it stopped. I dont know why
Thank you Sir love your ❤help me
How to get the kiss lips to form?
That depends on your presentation. Is it not happening because it is weak and/or other muscles are tight and preventing pucker from forming?
From being weak I would say
@@Teshateesh Also, How long has it been going on? what stage of Bell's palsy are you in? There is not a simple answer to this that will fix everyone at anytime.
5.5 months smile has come back just not the rest of the muscles to form a kiss or scrunch lips up
I had Bell’s palsy 27 years ago and have had synkinesis since, is it treatable?
it is possible to make changes and improve yes, with the right approach, even after this long. It is tough and time demanding though
@@ButheauPhysiotherapy I had also bells palsy 25 years ago is there a any possibility ?? iam from Nepal How can i contact you
@@ButheauPhysiotherapy I got facial paralysis from herpes virus in the ear on May 20, 2022.
Although I improved a lot, I can now drink without a straw, I don't drool, I can close my eye, chew... I have synkinesias:
when speaking, chewing... my eye closes and when closing the eye the corner of the lip rises a little.
Can they be corrected?. Thanks