I Have a Rare Kidney Disease | IgA Nephropathy
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- Опубликовано: 9 сен 2024
- I recently got diagnosed with a rare kidney disease called IgA Nephropathy and wanted to share my journey (so far) and how I've been feeling since the diagnosis. Below are some links to learn more about IgAN (or you may hear it referred to as Berger's Disease):
What is IgAN: • What is IgA nephropath...
IgAN Foundation (tons of helpful resources): igan.org/
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Instagram: / balancinglaura
TikTok: / balancinglaura
Contact Me: LauraRoberts414@gmail.com
#kidneydisease #IgAN #CKD
I can really relate with what you’re going through.. I also have a chronic disease, I really get the “freaking out” phase you mentioned, it’s tough. Having to take medication for the rest of our lives is tough. I hope you will find peace with it and keep on living great and healthy and happy life🙌🏼
Hey i am suffering from it do can you guide me how do you cope up with this situation 😅
@@anks3231 I would say we need to understand nothing is too horrible, it’s only horrible in our heads. We need to chill out and live with optimistic perspective
You got this. You're taking it head-on, getting educated, and doing whatever it is you're going to need to do. And you won't be alone. Big hugs and lots of love!!
I just found your channel from videos you have done in the past. Seeing this as your latest video left shocked. Ig I just wanted to leave a message to say that I watched this till the end and like everyone I pray for your well being! Have A Nice Life!
Thank you so much for your support - it means more than you know!
I ask God to grant you guidance and patience ❤ I’ve only ever seen your barefoot shoe reviews and your videos were instrumental for me in making the switch over! Clearly you’re an incredibly brave/ conscientious youtuber in sharing this. Glad your getting support from your love ones 🙌🏾
P.S. Thank you for allowing God to turn your trials into triumphs by bringing awareness to others=)
My husband has IGA Nephropathy too. He was confirmed but the good thing is there is 0% activity. Meaning it wasn't active. That's what on the most important thing to see of how active the disease is. He starter changing his lifestyle. Huuugsssssss
We are living happily. We have 2 y/o . And he is the breadwinner. It freaks me out but i gotta relax.. and cook well food
I have an auto immune syndrome that I was diagnosed with at 16. On medication for life.
For me, it makes me really not want to get any new health issues.
I don't want diabetes, I want to prevent everything that I can.
1 healh issue is enough for me.
Thank you for sharing your experience
Prayers up Laura 🙏
I can totally relate to this Laura as I also have a chronic kidney issue. I went to the doctor one day because my back hurt. They ran all sorts of test/scans and my doctor said I think there's something up with your kidneys, so he sent to nephrologist. All sorts or tests again, you know the drill, and he confirmed my kidneys are jacked. I also caught it early, but the prognosis is the same. Lower blood pressure, drink lots of water, and minimize the damage. Hang in there, it will get easier once it sets in. Nowadays I am only reminded when I go see the nephrologist every 6 months.
Hey Laura. Love your videos. No matter what happens you will be able to handle it. It’s so great you found this early. Good luck (not that you need it) and don’t let fear have a hold !!! As you said, you are going to be ok! 💪
Thank you so much for the support and encouragement! 💜
I'll be 2 months behind by the time blood work comes. Doc is booked for almost 3 months. Thanks for the reminder. 🎗️
Laura my wife has the exact same issue. You are not alone. There are medications as well speak that can reduce the progression. If you are in the early stages of this, this is going to be 15 years minimum to get to a stage of concern or dialysis. You need to consult doctors frequently and make sure you are taking the recommended diet asked by the doctor
i wish you all the best and a lot of health Laura!
Thank you so much!! 💜💜💜
You are so resilient and authentic! God's got you through and through🙏🏻 I thank God your husband is standing beside you through it all! You two make an awesome Team💙
I trust you're already on top of the research and you know your body best! Two things came to mind: 1) Oxalates and 2) because I can tell you love to challenge yourself! Have you explored a Whole Foods Plant Based Lifestyle?
I didnt even know it was rare lol. I got diagnosed in 2016 in my early 20s. I have gone through all the steps since then but i know damn well all about the overwhelming feeling and not being able to accept it or process your sitatuation so I wont let you in on too much details 🙃 hang in there. For me living as normal as possible not thinking about it helps the most!
Be well in body and spirit. I just discovered your wonderful videos today.
Hi Laura,
I’m kind of confused about something. How did you know that there was an issue to begin with? I randomly watch your videos and I appreciate everything you do. I have a issue with frequent urination, but I’ve had every test done. I could’ve done except for a biopsy type of things. I haven’t looked up your condition but I’m afraid to. I will keep you in my prayers.
Blessings ❤
I'll tell you what you do. Enjoy life now and visit every place you want to see before your quality of your life deteriorates. An old many told me one time who was going on a cruise every year with wife to take the cruises while I'm young and see everything while I can because when I'm old I won't enjoy them as much.
Hello! I have iga nephropathy as well and I'm 23 diagnosed at 21 and I also had blood and protien in my urine as well as high blood pressure. I am now on dialysis and awaiting for transplant. How is yours progressing?
Wow so sad to know you are having to deal with this..❤
Highly recommend Dr. Ray Peat, Georgi Dinkov & Danny Roddy for specific health issues like this but also all things health-related.
God Bless you Laura - I’m thankful Gods Blessed us to love in the 21st century where meds are an option at all ❤
You're video randomly showed up on my feed... No idea if this is helpful but I got diagnosed with psoriasis last fall which also "has no cure" and is caused by inflammation. The stuff they prescribed didn't actually do anything. After a while I decided to see what changes I could make and found anecdotal evidence of keto helping. I decided to try and see if it could work and 90 days later my psoriasis is almost gone. Kind of random to find your channel through a barefoot video but I just felt like I should share my story in case it has application here.
Thank you so much for sharing! Really appreciate it and I hope you’re doing well!
@@BalancingLauraI was diagnosed at age 21 now 23 with iga nethropothy. I am now on dialysis awaiting transplant. Hope yours doesn't progress. They caughtmine at stage 3 to almost 4.......
Did you get the vaccine by chance
The vaccine doesn't have anything to do with it. I was diagnosed before I ever got the vaccine
💉
I consider that our present sufferings are not worth comparing with the glory that will be revealed in us. Romans 8:18
Blessed is the one who perseveres under trial because, having stood the test, that person will receive the crown of life that the Lord has promised to those who love him. James 1:12
Be joyful in hope, patient in affliction, faithful in prayer. Romans 12:12
Consider it pure joy, my brothers and sisters, whenever you face trials of many kinds, because you know that the testing of your faith produces perseverance. Let perseverance finish its work so that you may be mature and complete, not lacking anything. James 1:2-4
If you take any adhd medication, it may be a side effect from that over time.