It can be hard to get any concessions when you're a person with autism who passes as "normal". You can even say the words "I HAVE AUTISM" and theyll still see everything you do from the normal lens because you're not acting in a way that is quite so different. Instead of seeing you have issues processing certain things, they'll think you're stupid. Instead of understanding that your brain has to work overtime to complete simple tasks, and thus you may need more breaks, they'll think you're lazy.
They will definitely call you Lazy .. I’m in pretty good shape physically so most people just cannot figure out why I don’t do much. I get drained so easily especially in social situations
I have the same issue I wasn't diagnosed till I had raised my son who is autistic and I finally had time to get tested and such but I've spend so long masking and stuffing my frustration and all people don't believe me its frustrating
I have Autism myself and with the way Society treats us... I would not be shocked if society created another Adolf Hitler or worse because of how we are treated from school, work and society in general.
@@corentinc.948 turn it into forgiveness, the enemy is winning until you forgive to clear your mind of that negativity you won’t have any space for love and positivity and prosperity and productivity, Godspeed my fellow Egyptian culture enthusiast
I am high functioning autistic aged 54. It happens very fast : I survived a pulmonary embolism but have heart disease & lung cancer . This is quite common. I am terrified of dying and I know I don't have a long time left to live.
I hope you find some peace long before you go away to the other side and make the most out of the time left. Perhaps try some magic mushrooms, ive read articles and heard stories of cancer patients coming to terms with their impending death after taking some psilocybin mushrooms.
I can only wish you peace and encourage you to look at it like an adventure, plan for it in whatever way you like like it’s any other change in life like moving into a new home. Nobody knows what happens next and I know it is terrifying but is life not also terrifying? It’s beautiful too and so death can also be beautiful. There’s no heaven there’s no hell,
What scares me is there is not a painless way to commit suicide, while our lives are becoming hellish over time. My diagnosis did not give me any support at all.
There is a painless way and for a while I considered it, but I'm not going to suggest it because I don't want people to do it. My advice instead is before you take that path do what I'm doing which is leave. Most of the time the issue is the enviroment (not you). So leave, get the hell out, me I'm gonna be homeless. I've saved money for a tent and trying to prepare the best I can. It's better to be homeless and try to rebuild your life from scratch, give yourself a chance to heal. This is obviously a last resort.
This is a vitally important public health issue. I think autism is better understood in the UK than in many other places. Thank you so much for sharing this!
They're just not afraid of talking about death. Everywhere besides the US understands that aging and dying is part of the process of life. It's natural.
I'm autistic. If I was to die young, I believe it would be from these reasons: diabetes/heart problems/starvation and associated problems due to ARFID/ non-specified eating disorder, suicide, lack of general care (not drinking enough water etc) or having other health problems I face passed off as nothing because doctors don't seem to trust my own opinions of myself. But I think suicide is the biggest risk, not just for me, but for most autistic people. Really, it is no wonder we want to die. The world isn't built for us at all, there are no accommodations, and it feels like we fail miserably at everything we do. I hope things change soon for our community.
Same. All good points. If it’s not suicide it’d be ARFID/chronic illness for me. Not just because of the outside world, but mostly because of how miserable it is living inside of my own body. Pain, mental health and sensory issues.
Nah you don't fail at everything people on the spectrum all have their individual talents. Why it might seem your failing people that don't like you aren't going to acknowledge your gifts what comes naturally to you they will ignore brush it off try to play it down while over dramatizing any flaw even if it so small where your still better than most of them they will only single your mistakes out while ignoring same mistakes on NT. Example I noticed this down talking some quickly over talking going on how what I said was no big deal. The funny thing it wasn't all I said was I'm average at math when some other girl was struggling so I suggested working to get her on it could help. And randomly you get that person jumping assuming I think I'm special assuming like I said I was great at it. I was comfortable enough to be able to help someone that didn't get it but never claim to be anything special just average they are so quick to attack put you down but from that example I realized they aren't really paying attention enough to know if your good or bad at something they mostly ignore and assume any mistakes came from you.
Im an Autistic guy from Switzerland, and even nowadays, we are around 5 years behind other countries in this Autism thing. As a child i got bullied, mentally and physically beaten, even my parents did that.....I nearly always told the truth, but no one was and is (Its the same today), believing me.....thats a reason why i got so less positive things from other people and got frustrated. As a child, in the age of 6 to 9, I was suicidal and thought many times about this, but no one believed me here too.....I was also a very sick child, many middle ear infections, kidney inflammations, jaundice, meningithis...... Meanwhile im 42 and can deal with it. A doctor tested my blood a few monts ago and told me, that my immune system is nearly perfect and not many people have this. I get barely a cold today, it might be due to these critical illnesses i had and survived as a child. I also think, that there is barely anything new to learn for me on this planet and I don´t care if i live or die. When I am starting something new, I see many details, then i put these details together and understand the system pretty fast and from then on it bores me out and i search something new. Even we are so many years behind here, im glad to live in Switzerland and can count on the support of our social systems like welfare office and disability insurance, also from social workers here if needed. I also withdrawed from many things, that gives me the time and motivation to chase my special interests. I am not surprised that many Autistics die young, can be depression, frustration, getting sick because of this, suicidal, getting dropped out and living on the streets, etc.
I’m 42 as well, from the US. So many of the same issues you’ve mentioned. I was never diagnosed, but hearing from adults who have dealt with almost the same terror growing up, I finally see context for my own life. It’s odd realizing how much getting bullied in grade school affected me throughout my life. Here I thought I didn’t have any “real trauma” as a kid hahaha. I’m far more sensitive than even I realized. I won’t likely seek much treatment though, all they seem to want to do is label you and feed you meds. I’ve had too many terrors with our healthcare system anyway and don’t trust them. Especially seeing as how autistic people so often see through the lies & bullshit we’re all fed; we’re dangerous to them.
Yeah, it's weird how people don't believe anything you say. I told nuns at a convent there was a coyote outside, they should get their cats in. They wouldn't believe me until a neighbor told them. I had no history of lying. It was more like a 4 year old was telling them this, and nobody takes a 4 year old seriously. It was weird.
Hello from Thailand, I'm an autistic adult from Thailand, diagnosed at 34 and just became a father 2 weeks ago. First time watching this channel and I really enjoy the various roles of people you've interviewed as I am a regular viewer of autistic content worldwide and am planing to have my own content soon. My biggest struggle was people can notice my autistic & Adhd struggles and made ostracized my since childhood til now but somehow can't take the idea of an adult me who has a university degree and can work to be needing autistic adjustments so I keep struggling with staying in a job and retainjng friendships & relationships.
PLEASE DON'T KILL YOURSELF. - TRY AND GO ON A DISABLED JOB SCHEME INSTEAD, AND TAKE UP HOBBIES AND INTERESTS THAT INTEREST YOU. - YOUR LIFE CAN BE WORTH LIVING. - I HAVE ASPERGER SYNDROME AND MY LIFE IS WORTH LIVING.
As someone who grew up in a lower-income family in the USA, the level of care that is offered at large to everyone by systems like the NHS leave me in envy. Obviously there's progress to be made wherever we live, but this was very insightful!
What we need is the education of neurotypicals and the same acceptance that other people with disabilities get. Stop bullying and ostracizing people with autism. It's insane how we're treated just for thinking and processing differently. Treatment should be mandatory education of neurotypicals at work and schools and LSD for autistic individuals. Antidepressants don't work . . .they only numb me and make neurotypicals more comfortable. They don't help me. Since weed is legal and you feel less in control on that, why isn't LSD legal? It's much better and you feel more in control. I guess because the studies out say it help autistic people, and most people don't care about helping us.
I don't think it's a good idea to erase "neurodiversity" by saying "we're all on a spectrum", because we're not. That's why we struggle so much. The world really is designed for neurotypicals and people saying "we're all on the spectrum" is negating all that struggle and taking away from those with autism who aren't even getting the help we need as it is. I think it's a bad idea. However, girls should be assessed the same as boys. If I was a boy, I'd have been diagnosed when I was 5 years old, not 35.
More accurately people claiming and self diagnosed autistic - autistic people have serious accompanying health issues that are actually a larger problem than what any of you acknowledge which lends support to autism being exploited by people who are not asd.
You know whats even more terrifying? is how much of our planet is completely unaware of this silent crisis!! Like no one else would bat an eye if we offed ourselves.
I'm autistic. Given that I haven't been able to find employment, I think marriage is unlikely for me. I feel like there's a lot I can get out of life if I live for a long time, but long term goals of getting married, getting a home and so forth just seem to be out of my reach, so even though I am young, my life already feels over in many ways. I don't have the money to go to college either. I guess I just have to find a way to survive on my own and give myself meaning and live in a way that I can enjoy.
No, I haven't been able to find successful work accept through charities. Yet I am still happily married with a family, and have been so for the last 20 years. So please don't give up.
Reaching out to God in prayer has helped me tremendously. I just wish I had started earlier. I just realized that what I needed was a miracle and no drug or therapist could ever help me. Please, just don't isolate yourself. I know how it feels!😢🙏💕
@@essieaku3563 I don't say this out of sadness. I just say this because it's what seems realistic. I honestly think getting married if I had no job would just be irresponsible. I couldn't support a family. I would rather never be married if I can't get a job than get married and be unable to have kids. This is just the reality of our time.
@@spaghettiking7312 When you have kids, it is often necessary for one parent to drop out of work to care for the children. This is particularly true when your children are very young, and can not look after themselves.
I am an adult, I have late diagnoses of dyspraxia, ADHD and Aspergers traits ( now autistic traits ), I got a degree, pgdip . The care is dreadful on the NHS and awareness is dreadful. People who are autistic often have ADHD, dyspraxia etc .
Have you ever lashed out at others or even threatened them? I admit I have and the police 👮 talked to me a few times but fortunately nobody decided to press charges but I don’t want to push my luck 🍀 indefinitely
Girls when they're young have all the same symptoms as boys. I had selective mutism, wrote on walls, didn't understand strange, unwritten rules and why people were mean to me (including adults when I broke these unspoken "rules" no one told me), and I cried a lot/ felt alone and was bullied. But doctors want to cover their butts by saying we "mask" more. We do eventually, because we don't get help and diagnosed when we're young. It's the bias healthcare has against women / girls thinking we are hypochondriacs and the acceptance of boys behaving badly (girls get punished more) that caused us to "mask". If boys were told they can't behave that way and punished nearly as much, they would also "mask"
My son was diagnosed late because his undiagnosed autistic single mother had unwittingly taught him how to mask. Most people argue he can't be autistic. Trust me... he's a member of the club. 😄
"Wrote on walls" Is that an autistic thing? I am autistic and I did that, and got punished for it. As a dude, who learned to mask early and got diagnosed as an adult, I can understand the gender bias, from that point of view, when boys act like girls there are some doubts about autism but I am still certain that it's easier for society to "look for" autism in boys. But in my case it was mostly my parents who didn't know or cared to know about this autist because they themselves managed to make a life despite some traits (and therefore don't reach results for a diagnose), but I think they are just stigmatized like society at large. The shame is to much for them and because of that I got problems since I have to do all the self advocacy (which is mostly too hard). That's from a people pleasing mother who thought I could do whatever I wanted, which meant realizing her dreams of having a successful child she could brag about. Now she can't brag since I don't work, but I think she is starting to see how dumb she was, yet still she can't break out of the old character since it is all she knows. She might even lie about what I do to avoid uncomfort (a recent thought I got). And my god, how many times did I get yelled at from teachers and alike because of doing stuff I didn't know was wrong. There might even have been peers who made me do some stuff since I was easily manipulated. I got bullied by those who I thought were my friends, not all the time, but I didn't understand it then, just felt uneased and in danger. I couldn't understand why some people changed their behaviour around certain other people. It was unpleasant. But I too was not good to some people.
We really need nothing less than self-governance and self-representation. NTs don't have a personal interest in our well-being, and they benefit most from systems that have acceptable losses, margins and edge cases. We need to universally screen people for neurodivergence. We need a total overhaul of our employment system. We need ND schools, doctors, police, juries, etc. I'm one of the "lucky ones:" my special interest in programming, however finding a job in the tech industry is absolutely f'd up. When I do have a tech job... well, I've logged about 20k hours at the keyboard in my life (conservative estimate). I'm also lucky in that I don't deal with NTs on a daily basis, and I avoid it if I can, because it's simply unproductive/inefficient: other NDs understand me just fine, AI models do okay, even my dog does okay, but NTs underperform when it comes to verbal comprehension.
As an autistic adult part of the problem is the focus on kids vs adults. Like even in this, about 80% or higher of it was focused primary on kids. When in reality, none of these changes would help current autistic adults. And autistic adults, have virtually no support. Where kids have some.
Even calling me an autistic person hurts. I'm not autistic, i am me but I have autism. I fucking hate it. I'll never find love, a good job or respect from neurotypical people. I just want to be dead.
please don't say that. Who are neurotypical people anyway? There are so many neurodivergent people out there that you can connect with and who will connect with you.
@@saysHotdogs that's doubtful this world is evil to its core there is no redeeming it but know this neurotypicals are liars but neuro divergents exacerbate every situation dying young is our talent unlike me im never someone anyone gets close too unless they feed my Transylvanian hunger
I have ASD & T1D. I was strongly medicated & not heard or believed at 36yrs old. 15yrs later I still struggle. I don’t want to die yet I’m trying to do What I can in 🇺🇸 to improve my situation. I currently have a Good Friend & Grateful we met 7 yrs ago. I hope to see some information on Elizabeth Weir’s Published info on Health Care soon 🩸🧠🙏🏼 Thank you for this topic.
My boss here in the USA accused me of being a thief because I thought I could take home tips if I report them as a Busser. He then fired me even know I didn't end up taking any tips because my coworker explained I wasn't allowed to. So now I'm out of a job again and this is the 14th job I've lost from misunderstanding or people thinking I'm to slow 🦥 etc. I just want a normal life and to get ahead. If I was not going to be getting social security disability I would be homeless and my mental health I bet would be even worse.
CORTISOL FROM STRESS CANNOT BE UNDERSTATED AS A DRIVING FACTOR in physical issues for people on the spectrum. It is great in small doses but does horrible systemic damage in long-term exposure..to virtually all tissues of the body. After having the typical high-functioning autistic existence (anxious, depressed, overwhelmed, in survival mode), I spent my 30s in and out of a hospital bed.. 21 operations, several of which were touch & go on whether I would survive. I was a single undiagnosed autistic mother of an autistic son, so I HAD to stay alive. You see, I was very ill and had difficulty breathing.. I would get breathless walking from my car into the office. f I had a funny color and looked swollen. I was convinced I would not live to see my 40th birthday. The medical gaslighting I experienced (as well as a surgeon who lost his license) resulted in me losing trust in physicians altogether. I had all the outward symptoms of Cushing's Disease (ultra high cortisol, rapid unexplainable weight gain even on 1000 cal/day), probably a result of that crippling stress we autistics live under, which means I couldn't heal. I had one small, superficial operation which snowballed. My high cortisol levels interfered with healing, resulting in a temporary ileostomy that herniated, gangretized, and nearly killed me. The ileostomy being a disaster, I had a surgeon reverse it and resect my intestines. Following were surgical hernias which became incarcerated, resulting in me losing feet of upper and lower intestine, and having half a dozen very close brushes with death. Add Hashimoto's, which went undiagnosed, ran its course, and completely destroyed my thyroid (it's actually missing now, without having been surgically removed or irradiated). I developed a large sac of water in my chest cavity at 40 (which they mis-diagnosed as congestive heart failure, then again misdiagnosed as sleep apnea..hello... grasping at straws and gross incompetence), which I revealed was a matter of having no thyroid, potassium or magnesium in my blood. I ran my own tests, treated myself and saved my own life. A couple years later I finally received my autism diagnosis as part of my son's. He had avoided detection because his undiagnosed mom had unwittingly taught him how to mask (oops). After much research about why I felt so sickly for so long, I discovered there is a measurable population of autistic people , as well as people with episodic/cyclical Cushing's Disease, whose mitochondria cannot metabolize carbohydrates correctly. Carbs make them feel ill and cause them to pack on weight in a very specific way -- even on a restricted diet. I tried the medical ketogenic diet (sure that I would never be able to stand it) and two weeks later I had to stop on the side of the road and cry. Not from despair but rather nostalgia. An overwhelming feeling of wellness (just not feeling horrible) came over me that I hadn't felt since I was 7 years old. At that moment I transitioned from "trying not to die" to pursuing wellness. I have dropped 85 pounds on keto, and my more troublesome ADHD & autism features have lessened dramatically as the result of a relentless pursuit of answers. It became my area of special interest for nearly 20 years! The other critical factor is suicide. Many of us do not have the financial resources for therapy/counseling if we could actually find someone familiar enough with autism to be beneficial. I learned for myself that therapists/counselors who do not understand autism actually do more damage than good (gaslighting). The most beneficial thing I've been able to do for myself for my emotional well-being was to join a local Celebrate Recovery group (which is FREE and run by volunteers who have already found healing through the program). Their structure ensures that it's safe. Everyone is respected, and everyone has their own hurts, hang-ups, and habits. Nobody there will try to fix you, nobody gets interrupted, and everyone gets equal time. They are there to facilitate you in finding your own answers and insights, grieving past hurts, uncovering the driving forces behind your hangups, and replacing your damaging habits with healthier ones. I've experienced such profound healing and a sense of peace that I now serve on the leadership team and sponsor other women as they pursue their own healing. Ha ha... Me, a "dyed in the wool" introvert! I'm plugged into a social group of mostly neurotypicals and am accepted and sometimes even admired (all while stemming!). Who knew?!? My suicidal ideations, which began at 11, have ceased finally. I have come to terms with my late diagnosis, the inadvertent gaslighting by family, friends and physicians, and have learned to speak my truth in confidence. I have shared my testimony to hundreds, in hopes that, since so many of us go undiagnosed, that perhaps someone else can find their own answers and find hope. I feel like I've been released from prison. My cortisol levels dropped so profoundly (a direct result of the coping tools I learned in CR) and my health turned around so profoundly, that my last intestinal operation 7 years ago (which was open-cavity, being filleted like a fish) was so seamless and uneventful that I was off painkillers the next day, and was back to work the following Monday. The normal healing time is 6-8 weeks! My own experience is the only proof I need of how much difference stress/cortisol makes in my own physical health. Society tends to perceive us as disposables/write-offs, since we do not add to the economy to the degree that neurotypical folks do. That is why it is important that we make our voices heard (self and community advocacy). I feel led to go back to school to help other autistics find their own health answers and add to their years in whatever way they can. In the meantime, one of the most helpful tools I've found is this great publication I've shared with my allergist, primary care physician, and any other health professional willing to read it: nationalautismassociation.org/docs/comorbidities.pdf This is from 2014. If there is an updated version, I have been unable to find it but would appreciate someone sharing it. Blessings!
They receive wrong treatments, false catering for there needs. Do not try to fix them to azt like everyone else. They might madeira to do so only by strugling. Itt therapies and drills than produce all the árverseny outcomes. Stop Carina and we shall have a long life and lots of happiness.
I was also called lazy by my perants as a teenager especially when it came to chores and looking for jobs which I just found stressful and would burn out and shut down ,to which my perants would have a go at me about my effects to sort my life out and keep jobs etc.
I have an autistic son that I love unconditionally. I care about and accept others that have autism. All autistic people have special abilities and gifts.💯
sadly most of them actually dont, even the so called '' highly functional ones'' dont have any real skills, that is why the majority of them are under employed and unemployed, they do not have skills sets , nor do they develop much past that.
@@Shannonbarnesdr1 as an actually autistic adult working as a senior technician in the health service, I have come across a lot of autistic people who have real skills and knowledge (including senior doctors and pharmacists)
I was told l needed male discipline after conventional schooling, sent to boarding school, five years. Did it do me any good? Put down a year in both schools so already had OCD since about seven but these overlapped into suicide attempts. I wouldnt now but dont think much about life enduring solitude until l get to the local to get half-cut. Think is a low dopamine, low self esteem, think my cat needs me l wonder if she was sent for me to rescue her & she in turn rescued me
I have also. In the past I've been medicated for this, which fortunately works reasonably well on me. However, you have to understand that the entire mainstream culture is based around a different and rather silly thing: humans have brains that can track relationships with about 140-150 others and are hard-wired to try to track their social status compared to that of their fellows. Obviously humans live in far greater numbers than this, so what seems to have happened is that much of modern society is designed to be a proxy for social status. Nice car, fashionable clothes, hanging around with the "in crowd"? All things that are considered to be social status trackers, but which actually are not. Heck the entire financial system is designed to be slightly dishonest and to permit lying about status levels. Mainstream culture is therefore loads of people lying some of the time about their status to others who are trying to do the same, and all of them doing all of this subconsciously because they're hardwired to do it. And then there's us autistics, not so hardwired and looking upon it, it is all so very, very confusing...
I feel I'm literally the odd man out in my family because of me being in the spectrum. I'd love to trade my current talents (because of my autism) for a sense of a social life. I'm a goddamn loner
STAY A LONER. - The alternative is worse. If you try to make "friends". They will only bully you, rob you, rip you off and treat you very badly. You are better off on your own.. It's a lonely life but do try and fill it with hobbies and interests you can ideally do on your own.
This is going to be 30 different causes all playing off each other. I imagine there's a lot of child mortality due to neglect and even infanticide. People are REALLY cranked up about having kids with any kind of disability. I'll bet if you live to 20, you're life expectancy goes up dramatically.
Goth Bosch Incarnate March 21st, 1965 to March 19th, 2029 i'm seeing comments like this on every channel that addresses this subject. interesting. This dream?? more real then real?
Keto diet seems to improve energy supply and usage in the suffering brain. Mitochondria in many cells seem to become injured by certain ingredients in foods, e.g. fructose, PUFAs, sugar, agrochemical residues, plant lectins that make intestinal linings porous. The high price of meat is a big discouragement. Our digestive systems are in the proportions of carnivore, with minor starch and plant contribution. Antibiotics also damage the intestinal flora, which has a huge impact on mental landscape/climate.
There's not really one perfect diet for all NDs, but experimenting with different diets can be helpful in general. It seems that neurodivergence also correlates with irregularities in digestion, fauna, soft tissues, etc.
Besides autism, I got Lyme 25+ years ago, not caught in time so it's for life. I went keto/carnivore and got sooo much better. My Lyme is in good remission. I'm amazed. The grains are all GMO now, they are bad for everybody.
Like many girls my autism was overlooked in childhood and never spotted by teachers ,or educational psychologist,probably because I didn't hand flap,or spin round on the spot and my eye contact was perfect although I can accidentally stare too much sometimes and some think I'm staring at them so I learned now not to make eye contact at social events of at least not too much. 1980-1990s people thought autism was a boys thing so I just got palmed off as special education needs which annoyed me so much and yes I got bullied so much for that much worse throughout secondary school which I hated and thought about suicide so much and was ignored and threatened with anti depressants and being locked up in a padded room. I didn't get my diagnosis until I was 34. I was left to struggle for all those years.
I was wondering would it be a good idea for autisc to train people . Especially in education, medical services and services in the community.. It's shocking how bad it is for people on the spectrum. The one big problem is that people think they know what it is . I was 47 and my daughter was 16. Which took me years I was shocked at the lack of knowledge and support . College was terrible and is there funding from govt to train people ?
I can't even get a therapist who knows anything about autism and I live in a major US city. They are unsympathetic and don't bother to learn even though it's one of the biggest groups to have suicidal tendencies (after gay and trans kids/teens).
I have hfa but been depressed for almost 13 years everything never looks up to me internet and smart phones exacerbate the situation the cyber world outside world is very abusive towards us i still have plans to end it all all the deviancy and debauchery that goes on makes finding a relationship far beyond hard to have death is my true friend since I have so many scores to settle with this world where I believe I was supposed to be a non corporeal being but exiled into a body where im tortured on the daily
The reason why they do that because they bean through a lot mainly to do with family problems am one of them my grandma didn't get on with me when I was younger I believe in reincarnation because I wish I wasn't autism
My mum brought a book in autism I then said to her that not everything is not on there was late when she brought it should have been better late than never No offers or anything I believe in reincarnation I would be born again as a better person
I think the worse healthcare has a pretty easy comparison. When medical care sucked for fomen, because they didnt thought there is any big consideration in how womens bodies could work different, which obviously sucked, and was a worse healthcare. That is similar. Like is there any destigmatisation that, maybe ther eshould be considerations that doctors learn to aproack people different, like many neurotypical people exist and, that yeah makes healthcare works by ignoring a pretty needed aproach, by medicine, that itrs different and dammit do research and take it serious, like eventually was to woimens medicine factors.
🤔When the personality or neuro diversity is noticed and becomes problematic to handle, it is likely when serious health issues get into the picture or/and when the IQ is lower. 🤔Personality differences, neuro diversity should be valued and respected. However, they frequently are not. The ability to mask and handling of differences is more cleverly managed it seems by those with higher iQ . 🤔It may be that personality traits are linked to health differences. There may be, and seems to be, susceptibility to gut and inflammatory factors, which could increase issues and vulnerabilities. The inflammatory factors are going to make issues more extreme and harder to handle or manage. (My opinion is based on observation. It seems formal studies are suggesting the same. More data and research needed. In the meanwhile it would help to respect, value, each other while considering approach strategies.)
You probably wouldn’t understand it and I can’t explain it anyway. All very contradictory and self-centred, what an obsession. It does seem the logical thing in the end, ultimately, for such is the probability lowered to live on and the futility and emptiness and forlorn desolate nothing… Just stay in this mellow stage, thinking without result, that is all one can accomplish. The true answer is plain!
I don’t think I will die young but live to 117 and continue to be a burden on society and those around me which sometimes I find divinely funny but in actuality it is not funny at all but sad 😔
Suicide is not even in the top 10 of what kills most autistic people ; epilepsy, gastrointestinal intest6, heart failure and cancer. Did you watch the video ? If you are not suffering from some of these conditions in your 40s or 50s you might be improperly diagnosed because this is another symptom , fact about people with autism . Gastro intestinal problems emerged for me in 2nd grade and was considered very unusual , I was autistic before anyone high functioning with autism was even identified as autistic. I was a problem child prone to meltdowns, tantrums , self loathing and stomach aches. Autism is a popular self diagnosis but not always accurate and people who are not autistic are causing the facts and hallmarks of Autism like life expectancy that are of immediate concern for me which is the fact we only live on average to age 58.
Sorry it actually is way up there at about 1/3 I believe. Age ten and up. Thinking about it is common. Trying and failing works into this as well, but it still does not account for what they estimate are 10% of suicides being potentially undiagnosed Autistics.And its not because people don't want to live.
I sometimes think of myself as better than everyone else which further pushes people away but sometimes I don’t care 🤷 one bit and get in other peoples faces when having a bad day and taunt them
🎉 Shame on you for calling the bullies nerotypical !🎉 Cant you see it makes them uncomfortable when you call them names... Only the bullies can call you names to your face and laugh 😂😂😂
If you know one person with autism you know one person with autism. A sample size of ONE is not evidence, it's an anecdote. Have you ever asked him about depression or suicidal thoughts?
@@wickjezek1101 He doesn’t have mental health problems dummy Plus I have autism and I have never said I wanted to commit suicide I do not have mental health problems and my friend does not have mental health problems
@@Aviator50 I AM AUTISTIC. I also have a masters degree in psychology. You don't think that therapy helps people with autism? It's called living in a society not built for your brain. It does cause mental health like symptoms such as depression and anxiety. 80% of autistic people struggle with anxiety. Why would you go around calling people dummy when you've probably heard that your whole life? It's called constructive discussion.
How was he diagnosed ? He is too old to ever have been diagnosed.. This is fact and critical to people with autism like me who have health issues that will end my life. Thank god for this being uncovered, - it has been true for years but not diagnosed or recognized until the 1990s. People like you.can.stop real important research.from being done which.is again the way most people disregard our lives and experiences . Ignorance is no excuse for being.so.irresponsible. Don't dismiss real.autusm because you know 1 person who.msy or may not be autistic.
It can be hard to get any concessions when you're a person with autism who passes as "normal". You can even say the words "I HAVE AUTISM" and theyll still see everything you do from the normal lens because you're not acting in a way that is quite so different. Instead of seeing you have issues processing certain things, they'll think you're stupid. Instead of understanding that your brain has to work overtime to complete simple tasks, and thus you may need more breaks, they'll think you're lazy.
They will definitely call you
Lazy .. I’m in pretty good shape physically so most people just cannot figure out why I don’t do much. I get drained so easily especially in social situations
I have the same issue I wasn't diagnosed till I had raised my son who is autistic and I finally had time to get tested and such but I've spend so long masking and stuffing my frustration and all people don't believe me its frustrating
You don't "have" autism. You ARE autistic.
But isn't having processes issue's means you're stupid. If majority just know something that isn't natural to you then how is that not stupid
I have Autism myself and with the way Society treats us... I would not be shocked if society created another Adolf Hitler or worse because of how we are treated from school, work and society in general.
Yes, we are treated appallingly all the way through our lives, and I still have absolutely no idea why.
The hatred in me is great.
@@corentinc.948 turn it into forgiveness, the enemy is winning until you forgive to clear your mind of that negativity you won’t have any space for love and positivity and prosperity and productivity, Godspeed my fellow Egyptian culture enthusiast
@@koyaikigai horus is my spirit protector for a reason I do not understand.
some speculate that Putin is autistic
Lack of understanding is what shortens their lives. Not only by the families but also from professionals. The shift of attitude is badly needed ASAP.
Overrated comment. I need to personally stop 🛑 threatening other people when they reject me (both genders).
I am high functioning autistic aged 54. It happens very fast : I survived a pulmonary embolism but have heart disease & lung cancer . This is quite common. I am terrified of dying and I know I don't have a long time left to live.
I hope you find some peace long before you go away to the other side and make the most out of the time left. Perhaps try some magic mushrooms, ive read articles and heard stories of cancer patients coming to terms with their impending death after taking some psilocybin mushrooms.
I can only wish you peace and encourage you to look at it like an adventure, plan for it in whatever way you like like it’s any other change in life like moving into a new home. Nobody knows what happens next and I know it is terrifying but is life not also terrifying? It’s beautiful too and so death can also be beautiful. There’s no heaven there’s no hell,
I hope you can find peace
@@Barfigarfi l reaIIy admire your optimism! May God bIess and be with you, my dear friend♥️
Godspeed
What scares me is there is not a painless way to commit suicide, while our lives are becoming hellish over time.
My diagnosis did not give me any support at all.
I swear once i find a way ill do it, i swear I will
@@valleypanda Peaceful pill handbook. I did not use it, because of the need to evolve spiritually. And ... My narc mom died = I feel better overall.
I totally understand
There is a painless way and for a while I considered it, but I'm not going to suggest it because I don't want people to do it. My advice instead is before you take that path do what I'm doing which is leave. Most of the time the issue is the enviroment (not you). So leave, get the hell out, me I'm gonna be homeless. I've saved money for a tent and trying to prepare the best I can. It's better to be homeless and try to rebuild your life from scratch, give yourself a chance to heal. This is obviously a last resort.
@@OwenPrescott I prefer to advise people against suicide and pro suicide, because I believe in the people their free will.
This is a vitally important public health issue. I think autism is better understood in the UK than in many other places. Thank you so much for sharing this!
They're just not afraid of talking about death. Everywhere besides the US understands that aging and dying is part of the process of life. It's natural.
You must be joking!
Unfortunately, the UK doesn't understand it well.
I have autism and I was extremely depressed since childhood I remember wanting to die maybe at 6
My God, i too wanted to die many times.
Try smoking weed.
Is it any wonder?! Me too!
Goth Bosch Incarnate March 21st, 1965 to March 19th, 2029
From a year ago..l only found out two years ago at the Autism Show, NEC, that it could be co-morbidities & not depression?
People who are high functioning / highly intelligent maybe be more vulnerable.
Completely agree
I'm autistic. If I was to die young, I believe it would be from these reasons: diabetes/heart problems/starvation and associated problems due to ARFID/ non-specified eating disorder, suicide, lack of general care (not drinking enough water etc) or having other health problems I face passed off as nothing because doctors don't seem to trust my own opinions of myself. But I think suicide is the biggest risk, not just for me, but for most autistic people. Really, it is no wonder we want to die. The world isn't built for us at all, there are no accommodations, and it feels like we fail miserably at everything we do. I hope things change soon for our community.
I'm touched.
Same. All good points. If it’s not suicide it’d be ARFID/chronic illness for me.
Not just because of the outside world, but mostly because of how miserable it is living inside of my own body. Pain, mental health and sensory issues.
the heart might be usually the stress.
The more stories I hear from other autistic people, the luckier I feel!
Nah you don't fail at everything people on the spectrum all have their individual talents. Why it might seem your failing people that don't like you aren't going to acknowledge your gifts what comes naturally to you they will ignore brush it off try to play it down while over dramatizing any flaw even if it so small where your still better than most of them they will only single your mistakes out while ignoring same mistakes on NT. Example I noticed this down talking some quickly over talking going on how what I said was no big deal. The funny thing it wasn't all I said was I'm average at math when some other girl was struggling so I suggested working to get her on it could help. And randomly you get that person jumping assuming I think I'm special assuming like I said I was great at it. I was comfortable enough to be able to help someone that didn't get it but never claim to be anything special just average they are so quick to attack put you down but from that example I realized they aren't really paying attention enough to know if your good or bad at something they mostly ignore and assume any mistakes came from you.
Im an Autistic guy from Switzerland, and even nowadays, we are around 5 years behind other countries in this Autism thing.
As a child i got bullied, mentally and physically beaten, even my parents did that.....I nearly always told the truth, but no one was and is (Its the same today), believing me.....thats a reason why i got so less positive things from other people and got frustrated. As a child, in the age of 6 to 9, I was suicidal and thought many times about this, but no one believed me here too.....I was also a very sick child, many middle ear infections, kidney inflammations, jaundice, meningithis......
Meanwhile im 42 and can deal with it. A doctor tested my blood a few monts ago and told me, that my immune system is nearly perfect and not many people have this. I get barely a cold today, it might be due to these critical illnesses i had and survived as a child. I also think, that there is barely anything new to learn for me on this planet and I don´t care if i live or die. When I am starting something new, I see many details, then i put these details together and understand the system pretty fast and from then on it bores me out and i search something new.
Even we are so many years behind here, im glad to live in Switzerland and can count on the support of our social systems like welfare office and disability insurance, also from social workers here if needed. I also withdrawed from many things, that gives me the time and motivation to chase my special interests. I am not surprised that many Autistics die young, can be depression, frustration, getting sick because of this, suicidal, getting dropped out and living on the streets, etc.
I’m 42 as well, from the US. So many of the same issues you’ve mentioned. I was never diagnosed, but hearing from adults who have dealt with almost the same terror growing up, I finally see context for my own life.
It’s odd realizing how much getting bullied in grade school affected me throughout my life. Here I thought I didn’t have any “real trauma” as a kid hahaha. I’m far more sensitive than even I realized.
I won’t likely seek much treatment though, all they seem to want to do is label you and feed you meds. I’ve had too many terrors with our healthcare system anyway and don’t trust them. Especially seeing as how autistic people so often see through the lies & bullshit we’re all fed; we’re dangerous to them.
Yeah, it's weird how people don't believe anything you say. I told nuns at a convent there was a coyote outside, they should get their cats in. They wouldn't believe me until a neighbor told them. I had no history of lying. It was more like a 4 year old was telling them this, and nobody takes a 4 year old seriously. It was weird.
You copypasted this from another autist YT thread.
@@sarahodom7091 It happens to me all the time. As if people were willingly blind or deaf.
Hello from Thailand, I'm an autistic adult from Thailand, diagnosed at 34 and just became a father 2 weeks ago. First time watching this channel and I really enjoy the various roles of people you've interviewed as I am a regular viewer of autistic content worldwide and am planing to have my own content soon.
My biggest struggle was people can notice my autistic & Adhd struggles and made ostracized my since childhood til now but somehow can't take the idea of an adult me who has a university degree and can work to be needing autistic adjustments so I keep struggling with staying in a job and retainjng friendships & relationships.
This is the only video that was bang on . For myself and my family the whole system is shocking . The awareness of it is terrible . Thank you
PLEASE DON'T KILL YOURSELF. - TRY AND GO ON A DISABLED JOB SCHEME INSTEAD, AND TAKE UP HOBBIES AND INTERESTS THAT INTEREST YOU. - YOUR LIFE CAN BE WORTH LIVING. - I HAVE ASPERGER SYNDROME AND MY LIFE IS WORTH LIVING.
As someone who grew up in a lower-income family in the USA, the level of care that is offered at large to everyone by systems like the NHS leave me in envy.
Obviously there's progress to be made wherever we live, but this was very insightful!
I'd like to see a comparison of life expectancy for autistic people in the US and anywhere else.
What we need is the education of neurotypicals and the same acceptance that other people with disabilities get. Stop bullying and ostracizing people with autism. It's insane how we're treated just for thinking and processing differently. Treatment should be mandatory education of neurotypicals at work and schools and LSD for autistic individuals. Antidepressants don't work . . .they only numb me and make neurotypicals more comfortable. They don't help me. Since weed is legal and you feel less in control on that, why isn't LSD legal? It's much better and you feel more in control. I guess because the studies out say it help autistic people, and most people don't care about helping us.
I don't think it's a good idea to erase "neurodiversity" by saying "we're all on a spectrum", because we're not. That's why we struggle so much. The world really is designed for neurotypicals and people saying "we're all on the spectrum" is negating all that struggle and taking away from those with autism who aren't even getting the help we need as it is. I think it's a bad idea. However, girls should be assessed the same as boys. If I was a boy, I'd have been diagnosed when I was 5 years old, not 35.
YOUR SPOT ON J B. - WE BADLY NEED TO EDUCATE THIS WORLD.
YOUR SPOT ON J B. - WE BADLY NEED TO EDUCATE THIS WORLD.
I tell that 2 my psychiatrist but he says thats crazy😥
I think lsd is legal in the state of Oregon. Magic mush rooms are also pretty easy to get and people swear by microdosing
Damn, absolutely brutal seeing that even in the comments all the fellow spergs are basically suicidal. Just about all the evidence you need...
More accurately people claiming and self diagnosed autistic - autistic people have serious accompanying health issues that are actually a larger problem than what any of you acknowledge which lends support to autism being exploited by people who are not asd.
@@amy792 Are you Autistic?!
You know whats even more terrifying? is how much of our planet is completely unaware of this silent crisis!! Like no one else would bat an eye if we offed ourselves.
I am more self deragatory, but i found absurdism and positive nihilism and to live out of spite helps?
I'm autistic. Given that I haven't been able to find employment, I think marriage is unlikely for me. I feel like there's a lot I can get out of life if I live for a long time, but long term goals of getting married, getting a home and so forth just seem to be out of my reach, so even though I am young, my life already feels over in many ways. I don't have the money to go to college either. I guess I just have to find a way to survive on my own and give myself meaning and live in a way that I can enjoy.
No, I haven't been able to find successful work accept through charities. Yet I am still happily married with a family, and have been so for the last 20 years. So please don't give up.
Reaching out to God in prayer has helped me tremendously. I just wish I had started earlier. I just realized that what I needed was a miracle and no drug or therapist could ever help me.
Please, just don't isolate yourself. I know how it feels!😢🙏💕
@@essieaku3563 I don't say this out of sadness. I just say this because it's what seems realistic. I honestly think getting married if I had no job would just be irresponsible. I couldn't support a family. I would rather never be married if I can't get a job than get married and be unable to have kids. This is just the reality of our time.
@@spaghettiking7312 When you have kids, it is often necessary for one parent to drop out of work to care for the children. This is particularly true when your children are very young, and can not look after themselves.
@@spaghettiking7312 So ideally you find a job working from home.
Stress extreme stress
I am an adult, I have late diagnoses of dyspraxia, ADHD and Aspergers traits ( now autistic traits ), I got a degree, pgdip . The care is dreadful on the NHS and awareness is dreadful.
People who are autistic often have ADHD, dyspraxia etc .
Have you ever lashed out at others or even threatened them? I admit I have and the police 👮 talked to me a few times but fortunately nobody decided to press charges but I don’t want to push my luck 🍀 indefinitely
@@PraveenSrJ01 very rarely , could have appeared on CRB , but nothing happened .
Girls when they're young have all the same symptoms as boys. I had selective mutism, wrote on walls, didn't understand strange, unwritten rules and why people were mean to me (including adults when I broke these unspoken "rules" no one told me), and I cried a lot/ felt alone and was bullied. But doctors want to cover their butts by saying we "mask" more. We do eventually, because we don't get help and diagnosed when we're young. It's the bias healthcare has against women / girls thinking we are hypochondriacs and the acceptance of boys behaving badly (girls get punished more) that caused us to "mask". If boys were told they can't behave that way and punished nearly as much, they would also "mask"
In what world do girls get punished more than boys 😑
My son was diagnosed late because his undiagnosed autistic single mother had unwittingly taught him how to mask. Most people argue he can't be autistic. Trust me... he's a member of the club. 😄
"Wrote on walls" Is that an autistic thing? I am autistic and I did that, and got punished for it. As a dude, who learned to mask early and got diagnosed as an adult, I can understand the gender bias, from that point of view, when boys act like girls there are some doubts about autism but I am still certain that it's easier for society to "look for" autism in boys. But in my case it was mostly my parents who didn't know or cared to know about this autist because they themselves managed to make a life despite some traits (and therefore don't reach results for a diagnose), but I think they are just stigmatized like society at large. The shame is to much for them and because of that I got problems since I have to do all the self advocacy (which is mostly too hard). That's from a people pleasing mother who thought I could do whatever I wanted, which meant realizing her dreams of having a successful child she could brag about. Now she can't brag since I don't work, but I think she is starting to see how dumb she was, yet still she can't break out of the old character since it is all she knows. She might even lie about what I do to avoid uncomfort (a recent thought I got).
And my god, how many times did I get yelled at from teachers and alike because of doing stuff I didn't know was wrong. There might even have been peers who made me do some stuff since I was easily manipulated. I got bullied by those who I thought were my friends, not all the time, but I didn't understand it then, just felt uneased and in danger. I couldn't understand why some people changed their behaviour around certain other people. It was unpleasant. But I too was not good to some people.
Really good point. I often feel terrified of getting too tired to act normal.
It’s hard to tell who masks more- I have masked for so long that I have no idea who I am
Anymore
We really need nothing less than self-governance and self-representation. NTs don't have a personal interest in our well-being, and they benefit most from systems that have acceptable losses, margins and edge cases. We need to universally screen people for neurodivergence. We need a total overhaul of our employment system. We need ND schools, doctors, police, juries, etc. I'm one of the "lucky ones:" my special interest in programming, however finding a job in the tech industry is absolutely f'd up. When I do have a tech job... well, I've logged about 20k hours at the keyboard in my life (conservative estimate). I'm also lucky in that I don't deal with NTs on a daily basis, and I avoid it if I can, because it's simply unproductive/inefficient: other NDs understand me just fine, AI models do okay, even my dog does okay, but NTs underperform when it comes to verbal comprehension.
As an autistic adult part of the problem is the focus on kids vs adults. Like even in this, about 80% or higher of it was focused primary on kids. When in reality, none of these changes would help current autistic adults. And autistic adults, have virtually no support. Where kids have some.
Even calling me an autistic person hurts. I'm not autistic, i am me but I have autism. I fucking hate it. I'll never find love, a good job or respect from neurotypical people. I just want to be dead.
please don't say that. Who are neurotypical people anyway? There are so many neurodivergent people out there that you can connect with and who will connect with you.
I just wish there we're a nuclear war, and the extinction of the human race.
@@saysHotdogs that's doubtful this world is evil to its core there is no redeeming it but know this neurotypicals are liars but neuro divergents exacerbate every situation dying young is our talent unlike me im never someone anyone gets close too unless they feed my Transylvanian hunger
@@JohnDoe-ef3wo oh you seem to have perfect timing
@@mariecait very cool hats off to you
I have ASD & T1D. I was strongly medicated & not heard or believed at 36yrs old. 15yrs later I still struggle. I don’t want to die yet I’m trying to do What I can in 🇺🇸 to improve my situation. I currently have a Good Friend & Grateful we met 7 yrs ago. I hope to see some information on Elizabeth Weir’s Published info on Health Care soon 🩸🧠🙏🏼 Thank you for this topic.
My boss here in the USA accused me of being a thief because I thought I could take home tips if I report them as a Busser. He then fired me even know I didn't end up taking any tips because my coworker explained I wasn't allowed to. So now I'm out of a job again and this is the 14th job I've lost from misunderstanding or people thinking I'm to slow 🦥 etc. I just want a normal life and to get ahead. If I was not going to be getting social security disability I would be homeless and my mental health I bet would be even worse.
I wanted to end my life but the fear wount let me
I wanted to end my life but the fear wount let me
Similar to me.
I thought you could keep your tips?
Probably best to find some way to make money online. Employment for autistic people is usually not working out well.
CORTISOL FROM STRESS CANNOT BE UNDERSTATED AS A DRIVING FACTOR in physical issues for people on the spectrum.
It is great in small doses but does horrible systemic damage in long-term exposure..to virtually all tissues of the body.
After having the typical high-functioning autistic existence (anxious, depressed, overwhelmed, in survival mode), I spent my 30s in and out of a hospital bed.. 21 operations, several of which were touch & go on whether I would survive. I was a single undiagnosed autistic mother of an autistic son, so I HAD to stay alive. You see, I was very ill and had difficulty breathing.. I would get breathless walking from my car into the office. f I had a funny color and looked swollen. I was convinced I would not live to see my 40th birthday. The medical gaslighting I experienced (as well as a surgeon who lost his license) resulted in me losing trust in physicians altogether. I had all the outward symptoms of Cushing's Disease (ultra high cortisol, rapid unexplainable weight gain even on 1000 cal/day), probably a result of that crippling stress we autistics live under, which means I couldn't heal. I had one small, superficial operation which snowballed. My high cortisol levels interfered with healing, resulting in a temporary ileostomy that herniated, gangretized, and nearly killed me. The ileostomy being a disaster, I had a surgeon reverse it and resect my intestines. Following were surgical hernias which became incarcerated, resulting in me losing feet of upper and lower intestine, and having half a dozen very close brushes with death.
Add Hashimoto's, which went undiagnosed, ran its course, and completely destroyed my thyroid (it's actually missing now, without having been surgically removed or irradiated).
I developed a large sac of water in my chest cavity at 40 (which they mis-diagnosed as congestive heart failure, then again misdiagnosed as sleep apnea..hello... grasping at straws and gross incompetence), which I revealed was a matter of having no thyroid, potassium or magnesium in my blood. I ran my own tests, treated myself and saved my own life. A couple years later I finally received my autism diagnosis as part of my son's. He had avoided detection because his undiagnosed mom had unwittingly taught him how to mask (oops).
After much research about why I felt so sickly for so long, I discovered there is a measurable population of autistic people , as well as people with episodic/cyclical Cushing's Disease, whose mitochondria cannot metabolize carbohydrates correctly. Carbs make them feel ill and cause them to pack on weight in a very specific way -- even on a restricted diet. I tried the medical ketogenic diet (sure that I would never be able to stand it) and two weeks later I had to stop on the side of the road and cry. Not from despair but rather nostalgia. An overwhelming feeling of wellness (just not feeling horrible) came over me that I hadn't felt since I was 7 years old. At that moment I transitioned from "trying not to die" to pursuing wellness. I have dropped 85 pounds on keto, and my more troublesome ADHD & autism features have lessened dramatically as the result of a relentless pursuit of answers. It became my area of special interest for nearly 20 years!
The other critical factor is suicide. Many of us do not have the financial resources for therapy/counseling if we could actually find someone familiar enough with autism to be beneficial. I learned for myself that therapists/counselors who do not understand autism actually do more damage than good (gaslighting). The most beneficial thing I've been able to do for myself for my emotional well-being was to join a local Celebrate Recovery group (which is FREE and run by volunteers who have already found healing through the program). Their structure ensures that it's safe. Everyone is respected, and everyone has their own hurts, hang-ups, and habits. Nobody there will try to fix you, nobody gets interrupted, and everyone gets equal time. They are there to facilitate you in finding your own answers and insights, grieving past hurts, uncovering the driving forces behind your hangups, and replacing your damaging habits with healthier ones. I've experienced such profound healing and a sense of peace that I now serve on the leadership team and sponsor other women as they pursue their own healing. Ha ha... Me, a "dyed in the wool" introvert! I'm plugged into a social group of mostly neurotypicals and am accepted and sometimes even admired (all while stemming!). Who knew?!? My suicidal ideations, which began at 11, have ceased finally. I have come to terms with my late diagnosis, the inadvertent gaslighting by family, friends and physicians, and have learned to speak my truth in confidence. I have shared my testimony to hundreds, in hopes that, since so many of us go undiagnosed, that perhaps someone else can find their own answers and find hope.
I feel like I've been released from prison. My cortisol levels dropped so profoundly (a direct result of the coping tools I learned in CR) and my health turned around so profoundly, that my last intestinal operation 7 years ago (which was open-cavity, being filleted like a fish) was so seamless and uneventful that I was off painkillers the next day, and was back to work the following Monday. The normal healing time is 6-8 weeks! My own experience is the only proof I need of how much difference stress/cortisol makes in my own physical health.
Society tends to perceive us as disposables/write-offs, since we do not add to the economy to the degree that neurotypical folks do. That is why it is important that we make our voices heard (self and community advocacy). I feel led to go back to school to help other autistics find their own health answers and add to their years in whatever way they can. In the meantime, one of the most helpful tools I've found is this great publication I've shared with my allergist, primary care physician, and any other health professional willing to read it:
nationalautismassociation.org/docs/comorbidities.pdf This is from 2014. If there is an updated version, I have been unable to find it but would appreciate someone sharing it.
Blessings!
Thank you for addressing this.
They receive wrong treatments, false catering for there needs. Do not try to fix them to azt like everyone else. They might madeira to do so only by strugling. Itt therapies and drills than produce all the árverseny outcomes. Stop Carina and we shall have a long life and lots of happiness.
The heart disease and diabetes increased risk is due to picky eating, and their diet favors high-carb, high-sugar foods.
I was also called lazy by my perants as a teenager especially when it came to chores and looking for jobs which I just found stressful and would burn out and shut down ,to which my perants would have a go at me about my effects to sort my life out and keep jobs etc.
Its because we are sensitive and everyone hates us we have no support
I have an autistic son that I love unconditionally. I care about and accept others that have autism. All autistic people have special abilities and gifts.💯
sadly most of them actually dont, even the so called '' highly functional ones'' dont have any real skills, that is why the majority of them are under employed and unemployed, they do not have skills sets , nor do they develop much past that.
@@Shannonbarnesdr1 as an actually autistic adult working as a senior technician in the health service, I have come across a lot of autistic people who have real skills and knowledge (including senior doctors and pharmacists)
I was told l needed male discipline after conventional schooling, sent to boarding school, five years. Did it do me any good? Put down a year in both schools so already had OCD since about seven but these overlapped into suicide attempts. I wouldnt now but dont think much about life enduring solitude until l get to the local to get half-cut. Think is a low dopamine, low self esteem, think my cat needs me l wonder if she was sent for me to rescue her & she in turn rescued me
I have autism and anxiety 🤣🤣🤣🤣🤣🤣🤣🤣
Omg same
Same and not just that I have extreme depression too
@@anonymous-cx7ng I had depression not too long ago. The trick is to convince your mind it’s fake and that you don’t have it.
autism, adhd, depression(dystamia), anxiety
I have also. In the past I've been medicated for this, which fortunately works reasonably well on me.
However, you have to understand that the entire mainstream culture is based around a different and rather silly thing: humans have brains that can track relationships with about 140-150 others and are hard-wired to try to track their social status compared to that of their fellows. Obviously humans live in far greater numbers than this, so what seems to have happened is that much of modern society is designed to be a proxy for social status.
Nice car, fashionable clothes, hanging around with the "in crowd"? All things that are considered to be social status trackers, but which actually are not. Heck the entire financial system is designed to be slightly dishonest and to permit lying about status levels. Mainstream culture is therefore loads of people lying some of the time about their status to others who are trying to do the same, and all of them doing all of this subconsciously because they're hardwired to do it.
And then there's us autistics, not so hardwired and looking upon it, it is all so very, very confusing...
It's our destiny
I feel I'm literally the odd man out in my family because of me being in the spectrum.
I'd love to trade my current talents (because of my autism) for a sense of a social life. I'm a goddamn loner
@Depression Yes. Why?
Are you sure other family members are not also on the autistic spectrum? - Women are particularly good at masking, and autism is highly inheritable.
@@depression6360 26 going 27
@@martinkaczynski8526 As far as I know, I'm probably the only one in my family with the diagnosis.
STAY A LONER. - The alternative is worse. If you try to make "friends". They will only bully you, rob you, rip you off and treat you very badly. You are better off on your own.. It's a lonely life but do try and fill it with hobbies and interests you can ideally do on your own.
This is going to be 30 different causes all playing off each other.
I imagine there's a lot of child mortality due to neglect and even infanticide. People are REALLY cranked up about having kids with any kind of disability. I'll bet if you live to 20, you're life expectancy goes up dramatically.
I have made it to 64 but recently I dreamed that a doctor said I would die at the age of 67
Goth Bosch Incarnate March 21st, 1965 to March 19th, 2029 i'm seeing comments like this on every channel that addresses this subject. interesting. This dream?? more real then real?
But I don’t want my precious daughter to die young. She’s lived such a hard cruel life already with the way society treats her.
Keto diet seems to improve energy supply and usage in the suffering brain. Mitochondria in many cells seem to become injured by certain ingredients in foods, e.g. fructose, PUFAs, sugar, agrochemical residues, plant lectins that make intestinal linings porous. The high price of meat is a big discouragement. Our digestive systems are in the proportions of carnivore, with minor starch and plant contribution. Antibiotics also damage the intestinal flora, which has a huge impact on mental landscape/climate.
Keto diet has helped me
There's not really one perfect diet for all NDs, but experimenting with different diets can be helpful in general. It seems that neurodivergence also correlates with irregularities in digestion, fauna, soft tissues, etc.
Besides autism, I got Lyme 25+ years ago, not caught in time so it's for life. I went keto/carnivore and got sooo much better. My Lyme is in good remission. I'm amazed. The grains are all GMO now, they are bad for everybody.
Like many girls my autism was overlooked in childhood and never spotted by teachers ,or educational psychologist,probably because I didn't hand flap,or spin round on the spot and my eye contact was perfect although I can accidentally stare too much sometimes and some think I'm staring at them so I learned now not to make eye contact at social events of at least not too much.
1980-1990s people thought autism was a boys thing so I just got palmed off as special education needs which annoyed me so much and yes I got bullied so much for that much worse throughout secondary school which I hated and thought about suicide so much and was ignored and threatened with anti depressants and being locked up in a padded room.
I didn't get my diagnosis until I was 34.
I was left to struggle for all those years.
I was wondering would it be a good idea for autisc to train people . Especially in education, medical services and services in the community.. It's shocking how bad it is for people on the spectrum. The one big problem is that people think they know what it is . I was 47 and my daughter was 16. Which took me years I was shocked at the lack of knowledge and support . College was terrible and is there funding from govt to train people ?
I can't even get a therapist who knows anything about autism and I live in a major US city. They are unsympathetic and don't bother to learn even though it's one of the biggest groups to have suicidal tendencies (after gay and trans kids/teens).
Autistic people are not animals There humans and they don’t die young
'They don;t listen.. We need to get into the research and mental health fields.
YES!! FOR us BY us.
Unironic, anyone self advoicating and feeling qualified and confident to. Thats an unironic good idea.
Maybe cos it’s the logical thing.
I have hfa but been depressed for almost 13 years everything never looks up to me internet and smart phones exacerbate the situation the cyber world outside world is very abusive towards us i still have plans to end it all all the deviancy and debauchery that goes on makes finding a relationship far beyond hard to have death is my true friend since I have so many scores to settle with this world where I believe I was supposed to be a non corporeal being but exiled into a body where im tortured on the daily
MY TRUE FRIEND IS MY HOBBIES AND INTERESTS. THEY NEVER MISTREAT ME, AND THEY KEEP ME BUSY; AND MY MIND OFF MY DIFFICULTIES.
@@emily.k3703 lucky for you
I understand
@@amy792 I hope so
l know that doesn´t seem Iike it now, but you peopIe, autistics, are much stronger than you think!
I have autism 🐒🐒🐒🐒🐒🐒🐒🐒
cuz i don't matter?
Of course we don't matter the words you matter is always a huge lie
The onIy person who shouId convince you that you matter is yourseIf❤️
The reason why they do that because they bean through a lot mainly to do with family problems am one of them my grandma didn't get on with me when I was younger
I believe in reincarnation because I wish I wasn't autism
To be honest if there was a huge break like a care home I'll live there till I get better
Just came out till the time is right
My mum brought a book in autism I then said to her that not everything is not on there was late when she brought it should have been better late than never
No offers or anything I believe in reincarnation I would be born again as a better person
I think the worse healthcare has a pretty easy comparison.
When medical care sucked for fomen, because they didnt thought there is any big consideration in how womens bodies could work different, which obviously sucked, and was a worse healthcare.
That is similar. Like is there any destigmatisation that, maybe ther eshould be considerations that doctors learn to aproack people different, like many neurotypical people exist and, that yeah makes healthcare works by ignoring a pretty needed aproach, by medicine, that itrs different and dammit do research and take it serious, like eventually was to woimens medicine factors.
Taken and read as places searing order of things
I found out Satoshi Tajiro (The creator of Pokemon) is in his 50s and is still going well.
Thanks for sharing
🤔When the personality or neuro diversity is noticed and becomes problematic to handle, it is likely when serious health issues get into the picture or/and when the IQ is lower. 🤔Personality differences, neuro diversity should be valued and respected. However, they frequently are not. The ability to mask and handling of differences is more cleverly managed it seems by those with higher iQ . 🤔It may be that personality traits are linked to health differences. There may be, and seems to be, susceptibility to gut and inflammatory factors, which could increase issues and vulnerabilities. The inflammatory factors are going to make issues more extreme and harder to handle or manage. (My opinion is based on observation. It seems formal studies are suggesting the same. More data and research needed. In the meanwhile it would help to respect, value, each other while considering approach strategies.)
Endless wars for Israel. But nothing for us on the spectrum. :(
You probably wouldn’t understand it and I can’t explain it anyway. All very contradictory and self-centred, what an obsession. It does seem the logical thing in the end, ultimately, for such is the probability lowered to live on and the futility and emptiness and forlorn desolate nothing… Just stay in this mellow stage, thinking without result, that is all one can accomplish. The true answer is plain!
ADHD in mid 40s so I wonder how long I'll make it
I don’t think I will die young but live to 117 and continue to be a burden on society and those around me which sometimes I find divinely funny but in actuality it is not funny at all but sad 😔
Goth Bosch Incarnate March 21st, 1965 to March 19th, 2029
39 nuerodivergent and suicidal
Suicide is not even in the top 10 of what kills most autistic people ; epilepsy, gastrointestinal intest6, heart failure and cancer. Did you watch the video ? If you are not suffering from some of these conditions in your 40s or 50s you might be improperly diagnosed because this is another symptom , fact about people with autism . Gastro intestinal problems emerged for me in 2nd grade and was considered very unusual , I was autistic before anyone high functioning with autism was even identified as autistic. I was a problem child prone to meltdowns, tantrums , self loathing and stomach aches. Autism is a popular self diagnosis but not always accurate and people who are not autistic are causing the facts and hallmarks of Autism like life expectancy that are of immediate concern for me which is the fact we only live on average to age 58.
your saying if you don't have a heart attack or have GI tract issues in your 40s+ then you're not autistic? that is so dumb
Sorry it actually is way up there at about 1/3 I believe. Age ten and up. Thinking about it is common. Trying and failing works into this as well, but it still does not account for what they estimate are 10% of suicides being potentially undiagnosed Autistics.And its not because people don't want to live.
Stop spreading health anxiety
My daughter has bad stomach issues
Apparently DROWNING is a common cause of death for autistic people 😮
I sometimes think of myself as better than everyone else which further pushes people away but sometimes I don’t care 🤷 one bit and get in other peoples faces when having a bad day and taunt them
Just heard that the average age is 36 from what I saw from. I probably 12 years left to live based on this, 24 now
#ActuallyAutistic
🎉 Shame on you for calling the bullies nerotypical !🎉 Cant you see it makes them uncomfortable when you call them names... Only the bullies can call you names to your face and laugh 😂😂😂
My friend is 72 years old and he literally still lives that’s how I know this is fake and he has ASD
Doesnt mean he hasnt dabbled with the idea of ending it all
If you know one person with autism you know one person with autism. A sample size of ONE is not evidence, it's an anecdote. Have you ever asked him about depression or suicidal thoughts?
@@wickjezek1101 He doesn’t have mental health problems dummy Plus I have autism and I have never said I wanted to commit suicide I do not have mental health problems and my friend does not have mental health problems
@@Aviator50 I AM AUTISTIC. I also have a masters degree in psychology. You don't think that therapy helps people with autism? It's called living in a society not built for your brain. It does cause mental health like symptoms such as depression and anxiety. 80% of autistic people struggle with anxiety.
Why would you go around calling people dummy when you've probably heard that your whole life? It's called constructive discussion.
How was he diagnosed ? He is too old to ever have been diagnosed.. This is fact and critical to people with autism like me who have health issues that will end my life. Thank god for this being uncovered, - it has been true for years but not diagnosed or recognized until the 1990s. People like you.can.stop real important research.from being done which.is again the way most people disregard our lives and experiences . Ignorance is no excuse for being.so.irresponsible. Don't dismiss real.autusm because you know 1 person who.msy or may not be autistic.
100 years of autisim research... 🎤 And they finally asked an Autistic 😂😂😂 ...