kid in vr talks about living with rare disease
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- Опубликовано: 8 фев 2025
- Cool kid in VRchat explains what life is like with the "butterfly disease"
Music:
Outgoing Hikikomori - Sweet Melancholy
Lateeya - Lullaby cover by Randy Gapasin
Bees - Loebach Music
Outgoing Hikikomori - The Birthday Party I Never Had
Sundown - Loebach Music
Aaron recommended this source to learn more about Epidermolysis Bullosa: www.webmd.com/...
Aaron's stream: / thatgeekaaron
video edited from original
7:43 - 10:30 of video removed.
![I.N "HALLUCINATION" | [Stray Kids : SKZ-PLAYER]](http://i.ytimg.com/vi/n5B5q1Hwt_U/mqdefault.jpg)
If you wanna go say hi to Aaron or have more questions for him you can watch him stream at www.twitch.tv/thatgeekaaron
Keep up with the channel at twitter.com/SyrmorS and instagram.com/syrmor/
the comments are really kicking in...
Syrmor this is the best channel on RUclips
It makes me happy that people with those sorts of "challenges" do whatever they feel like is their dream in life.
Syrmor hi this was sad but how do you fine this people
@@mrbarneyducks6259 Usually in public vrchat worlds however this time it was because Aaron actually sent me a private message asking if he could talk about his condition so I decided to meet up with him
Thanks everyone for all the support!
Your welcome :)
For those who don't know. ThatGeekAaron got over 2k subs and 14k followers in a single day on twitch yesterday. Hope he can have continued success as a streamer and achieve his dream.
Hi Aaron! 💙 Have a good day can't wait to sub once I get home and see you play some games.
Yo, Aaron, you are literally one of the coolest kids ever.
Keep doing awesome in life, man.
Stay strong, I promise you shall conquer your dreams.
Shout-out to Aaron's dad. So supportive of his son's passions and challenges.
Thanks,btw my dad is dead
@@aaron_kingtana2871 I'm sorry for your loss I hope things get better THE SLOTHES WILL SUPPORT YOU NEVER FAULTER
@@aaron_kingtana2871 Are you Aaron from the video?
@@hirxken7851 maybe lol
@@zephapep6368 thx
This kid has a better vocabulary than most people I know
This comment is way too familiar dude. Oh wait its in the kermit video
Collin Abroadcast the only reason the vid has subtitles is because of the hard words that he knows
Collin Abroadcast he has a better vocabulary than all of us
why did you post it on 2 videos? wow for likes right?
Colin I am dumbfounded that you watch Syrmor!
God damn his dad loves him, you can just hear it.
@funny guy 55 ?
@funny guy 55 I honestly believe you
funny guy 55 lol
@funny guy 55 valid
yes..
i swear to god just toms
i swear to god just toms
1000th like
The dad was really cool. I wish them both the best
The coolest dad
@@syrmor best dad
@UncommonGaming lol troll is jealous of a kid. How sad is your life?
@UncommonGaming here's something productive for you to do, go fuck yourself, alright?
Also credit to that kind girl
"I was built for this" - dad saying his entire life led him to be able to take care of his child is 11/10
Someone who knows what the point of parenting is in it's simplest, purest form.
It was so good to hear him say that.
theonlycatonice 100/10
Parenting 100
actually just cryed
Infinite/10
I couldn’t imagine this rare disease. Go Aaron, tough guy.
Go go
If he gets better ill get a gf
Heck yeah! We believe that he’ll only get cooler and tougher with the years:)
His skin may be fragile but his heart is made of Titanium lol I’ve edited this twice now because I keep putting the wrong thing 😓 sorry😖
@Dodo bird it’s a simile.
Made of gououould
You're wrong. His heart's strong and tough as a diamond! ♥️💎
No not as solid as a rock
But as solid as the strongest materiel ever
I think you used the wrong way to say that. He seems nice
Other parents:GAMES CAUSES VIOLENCE AND RUINS KIDS BRAIN
Aaron's dad:well it makes him happy
:3
ruins*
@@lilbeanp1003 oh u had to do that u grammer teacher
@iron zombie
Oh god, you’re getting it wrong. It’s a *GRAMMAR NAZI*
@@smeaglesmegg1243 EVEN WORSE
5:02
"If I was able to do that, that'd be cool. But I don't really care, to be honest"
"That's even cooler"
Seriously, great answer
His answers are either really good, or suck.
In this video they were really good.
I lost it when he said that 😭 The waterfalls man!
1200th liker
FelixEA ummm sorry but what did he mean by that?
My heart just plummeted when I heard "butterfly condition."
same
isnt FOP just as bad?
@@DaftPunkSkittle they're both bad in different ways and cause lifelong disability
@@DaftPunkSkittle Whats that got to do with anything though? They're completely unrelated and affect different parts of the body in entirely different ways. I mean AIDS is pretty shitty too but it has absolutely nothing to do with EB.
Glad you gave him a platform to share his story, keep it up
Syrmor might save someone who has a hard time if he keeps this up 😍
THIS IS THE BEST SHIT EVER!!!!! I SWEAR I AM GROWN AND THESE TYPE OF VIDEOS ARE THE BEST
El Kenny Bagnis yeeeeebooii
5:00
"If I was able to do that it would be really cool. But i don't really care"
"Thats even cooler"
i cried.
Umm what did he mean by that?
James Olinares he’s saying that he thinks it would be cool f were able to do something that his disability disallows him too but doesent care, and poo says it’s even cooler that he doesent care.
Oofity
"he was call of dutyin'"
pure. i like the kid's dad
ami mizuno me too my brother
This comment is doing shit
@@That_Random_User but the heart just shaders no blood... oh wait sans... /: oof
We all should like him :>
shut the hell up this is a wholesome comment @machete
"He was call of dutying" is such a dad thing to say lmfao
Dead set, good to laugh in a moment t of tears
For having skin as delicate as a butterfly wing
Kid is tough as steel
Solid fucking line bro. Couldn't have said it better.
nice one dude
U sure I think his as tough as the earths core
The ginger nut the earths core is liquid but okay
CheddarCheese no that’s the outer core
This kid is a legitimate badass. I'm 27 and there's no way in hell I'd be able to handle such a nightmarish disease in the mature and tough way that he does. Nothing will ever stop YOU, Aaron.
Thanks man
@@aaron_kingtana2871 You are a beast among men for doing what you have to do. Don't question it. Embrace it and live your dreams! I don't even know you and I am so proud of you dude. You are inspirational :)
@@aaron_kingtana2871 can't believe 43 people thought you were the real Aaron
@@Metztii 😶🤷♂️
@@aaron_kingtana2871 fucking hilarious
I think I started to cry when he said that his dad was so strong that he could lift a plane ("and other stuff").
Because we can still see just how young and sweet he is and what he's going through is so tough but he's just come so far and seems to be happy playing video games and streaming.
This kid is going thru shit that most adults would kill themselves over
Oh bitch
Lol
@@file2hd6026 what is even funny about it?
7:00 Shoutout to this girl wherever you are, you made his life just every so slightly better.
A LOT better man, imagine what it means for him
ngl i thought he was a girl too until i went to the comments
@@axtra9561 Oh I was talking about the girl that called him cute
That was absolutely adorable.
She made his life 150% better at least
Shoutout to Aaron’s crush, the only girl who would sit next to him at school
I dead ass started crying😭
Id definitely sit next to him
This is so sad
Thanks for not being an asshole, Aaron’s crush 😚
It's almost sad how you have to praise the people who aren't being cruel assholes to others.
that one girl is the real og
She is stronger than shaggy at 100% of his power
@@kagz76 yes!!
@@kagz76 woah that's pretty sTroNG
Daniel Garcia it’s a boy
@@clydedarklord9162 nah, the girl who was his friend
I’ve realized one thing, people use VR chat to escape their life to be in another, they use it to talk with other people without worrying about how they look or how they’ll judge you. and for me I use it to escape my depression and sometimes become a new person around other people.
i wish i had vr chat
Alexa The Zebra Girl I’ve tried it a couple of times and it’s a weird game but it’s awesome at the same time, so I’d recommend it if u have a VR headset and PC.
Alexa The Zebra Girl if you have a pc it is free to download on steam (:
@@rain702 me too
@@rain702 i can donate a pc to you
Aaron: can't hug people but wishes to.
the community: gives him a lot of verbal hugs.
Aaron: mission failed successfully
idk seems like an absolute win
Thats fucked up
@@thakidb8 nah its pretty sweet, he managed to work around his weaknesses
@@thakidb8 huh how
when he said "my dad is big and strong" i started to tear up, like he thinks so highly of his dad and that's so sweet
same
Exmeasures
exeasures this is mistic____weasel
A good parent is what really drives these children. A child isn’t strong enough nor developed enough to cope with these things on their own. Or at least for the long term. Beautiful to see such a supportive and caring dad.
how are u talking
we are opl what?
Kinda made me jealous that he had such a caring dad I mean all I had was an addict
Dylan lol
Tell us Dylan. How the fuck are you talking. We need to fucking know.
My dad is honestly a horrible parent... But he's the only one I've got and I love him dearly. I'm still in high School but honestly I view him more a house mate than dad
I can’t really understand how people have the nerve to hate and bully you for how you look or what you do or what disability you have
It is because humans natural reaction to something they dont understand is to be afraid of it, and no understanding of something plus being afraid of it makes your brain rationalize that since you dont get what it is, it must be scary and dangerous and that it is just awful. Thats not how it should be but thats the subconscious human mind for you.
Yeah, I was bullied for a condition called Sensor Remoter Syndrome, where my nerves do not cooperate with my muscles and joints (They do but not as normally as other kids, and that I stutter and twitch) meaning that I was bad at sports and kids yelling at me saying "You're stupid" or "You suck". Which gave me a lot of social anxiety and the recent death of my grandpa really didn't help, but I eventually got better and I moved to a different school which is where I made friends who didnt care about who I was.
EDIT: Thanks for 8 likes!
Well for one thing they were literal children. Hopefully they'll grow out of their asshole behavior.
Yeah, there's one kid at my school names Brady who bullies me for my autism and tells me to get my autism hands away from him and he cusses at me a lot.
@futu. re IKR
“Never let anything stop you”
*I’m not crying, I just got some dust in my eye*
nah bro we were crying it happened
A lot of people are saying “I feel bad” or “poor guy” but I actually feel happy for him, he’s doing what he wants to do despite what’s holding him back, mad respect for this dude
He’s literally accepted what he has and is making the most of his situation it’s beautiful
I don't feel happy for him at all. His condition has him living in pain. He is making the most out of it and I feel proud of his strength but not happy at all. No one should go thru that even if he is making the most of it
if they "feel bad" they should go to his twitch and support, throw a donate.
when he talked about tootsie roll girl I cried
Who's that
Mr Krabs watch the video
@@zanscrabs2070 which video?
@@LeonardoTheMomo This video
he talked about her in past tense. wonder what happened to her?
damn this dude is my mom's patient
he's a great guy irl, my mom just gifted him a steam card
Nikhil Krishnan thats so cool!
@@Upsetdino yeah, my mom's company (Krystal Biotech) works on treating rare diseases, like epidermolysis bullosa and congenital ichthyosis. Was crazy to see this video and be like "wait i know someone working on that.."
do you know how he's doing?
Nikhil Krishnan Damn your mom is legit cool
@@Laura-Yu happy mother's day!
Imagine spitting ok someone’s face, especially when they are quote on quote “ugly” that’s just messed up as hell
That happened to me and I don't even have a condition. People are just dicks.
M L and they wonder why people end up sh
Sadly it seems some people really don't have a sense of morals and empathy.
I was to slap the gurl in the face and break the kid's middle finger that flipped him off
Everything sucks
When he was talking about the girl who he sat at lunch with sounded like a real life movie but it's not a movie it's a process of life
I actually started crying, it is so sad that people judge someone by their looks and not their personality. This girl knew he was a really good person, so she didnt do what everyone else did. She was friends with him and it's happy that he actually had a friend.
@@Punchhhy I feel like the boy is like another version of the boy in the movie Wonder
SK StrongSadness i hurts when this happens but ppl who judge u by their looks are signs that those are the types u should stay away from and may even be toxic but this however doesn’t reduce the pain one goes through from this situation
Mario Kart
Wonder. A boy with a cleft palate that features a girl-friend of the main character that cares for him
LawJesus ll
Idk cuz I don’t have the disease
syrmor is like a vr therapist. someone u can talk too abt ur personal issues
where is he in my life lmao
But minus the confidentiality. Though, I guess talking as VR avatars is anonymous enough.
but he uploads them
yeah and then they get shared to millions of people on social media
@@monoburger as long as they agree to let their story be known then it fine.
It's 3 am and I'm deep in these VR chat stories, I don't think my heart can take much more than this
first this then the panda and the trees
Daenerys Targaryen same
Daenerys Targaryen literally same 3:20
Same! Like, I just want to give them all a hug!
Same here except it's 5am for me
This made me cry but HIS HEART IS SO FULL AND I LOVE HIM
" I felt like i was built to be aaron's dad...". That got me
Me too
420 likes
*did you say my name?*
It's beautiful, I love it.
I have butterfly skin too but not as bad as his so I understand what it feels like to be there. :(
wishing him the best of luck. amen.
Either way, it sounds horrific and I am sorry
Tyler is Butter amen
U also stay strong uwu
NOBODY CARES
@@kennykaneki254 calm down, if you don't care go away! Like, what's your problem???
I'm crying while watching this. Thanks for the video.
the cutie in your profile pic is my wife
@@BBShuu I-
@@BBShuu Best Waifu Rikka
wajinshu what a fucking baby
wajinshu no ur not
"Call of Dutying"
Yep. That's a dad.
aaron's laugh is the most precious thing in everything ever
10:34 When he said that i legit started crying.
No joke. This kid deserves everything.
👌
:'(
I couldnt handle laughing at his avatar lmao. But it was sad
@@chairmanxina2338 its ok man it was kinda funny
NooziKid it’s fine the animation is just derpy and can’t do anything about it
My friend Leeroy recommended I check this kid out a while ago, so glad he is getting all this amazing support now.
VR Trapman Leroy Jenkins
Hi Tosha! This really is remarkable
It's amazing how vr allows people to speak their truths anonymously
419_Prince 🙏🙏
I was just writing a comment about how his dad seemed so amazing but then I decided to check out his twitch which hadn’t been active for 2 months. I went to his Twitter where he had tweeted about finally being able to escape his abusive father. Wtf. So this incredible kid not only has to deal with this painful condition day to day but he also had an abusive father!?? Man that’s too much for me to really comprehend right now. We all need to show this dude some serious love and support. This has me all fucked up now.
This kid was actually very well spoken in his statements
you age fast when you have to go through shitty things like that.
Why is nobody talking about his sweet story with the girl at school? It really reminds me of the book wonder.
qeachert ME TOO!!! i loved that book
@@bruhhrb7062 same!!
*Wonder. My favourite book of all time
Ngl that book and movie was pretty trash good story tho
I loved that book so much
This kid likes Animal Crossing; he is a man of culture as well.
Wandering Hermit Crab
True
Indeed
Yep
Indeed he is
I am not because i don't understand the appeal of it
The fact that i think my life sucks.
God forgive me.
No no no, this is toxic positivity.
Just because someone has it worse than you, does not mean in any right that you have no reason to be sad or not feel good about your current situation.
I'm not trying to be pessimistic, or say that everything is bad, at all.
This is just coming from someone who grew up being told that I am "lucky". Because, looking back, I was not.
Never ask for forgiveness for simply feeling bad about your life, never say sorry for not being as bad off as someone else.
I don't know if I got my point across in an articulate way, if I didn't make complete sense, please ask and I can clarify.
@@Nic.wolfwood I have been having Breakdowns for a solid 3months.
@@jovanekiii Okay, and that is why you should not be saying anything, ever, about how someone has it worse than you.
There will always be people who have it better than you, and there will always be people who have it worse.
Please focus on yourself, I reccomend reading a bit about toxic positivity, I know that it's something that I struggled with, and once you know what it is, and you stop doing it, you'll feel a bit better.
I hope that you have help if you need it, and that things will get better for you.
And hey, if you don't have someone to talk to, you can contact me on Instagram @internet_crow , if you want, feel free to PM me.
I want you to be okay :)
@@Nic.wolfwood wow you are very nice
These types of stories from people helps me to appreciate my life better.
With every upload, Syrmor single-handedly creates acceptance movements for complete strangers, it's honestly so cool to watch.
he is slowly becoming a legend
@@idontknowwhereimgoingbutim5238 He already is💖
Oh yeah yeah
Shout out to the girl that sat next to him.
*not all heros wear capes*
some brings tootsie rolls
some lift planes
chimchimie heroes*
Symor, you are saving people's mental state... Well not completely saving, there will have emotional damage, but you are bettering it!! Why? You are listening, not giving any pity words (which "weak" people like us don't like), letting them talk and feel understood/comfortable. We need more unselfish people like you out there. We love you.
Wet Wasabi yea, litteraly i was going through depression because i always thought i was too “fat” and like i’m worthless. watching all these videos just gave me courage to follow my dreams and now i’m here, lost 30 pounds and as happy as i can be.
Wet Wasabi what a fucking loser u are and him
its selfless btw
Hang in there brother! Life is full of surprises, ups and downs, but everyone will reach their goal or aspirations one day, but liker with everything, good things do take time its all up to your weather you are willing to be patient
He’s like a therapist but he does it for free. And he’s a really good one he actually listens
The way he so casually mentions and laughs at the fact he won't have fingers soon! Makes me realize I'm not nearly as tough as I think I am. This kid is a fucking legend for his bravery and positivity. I've literally seen others with this condition admit they would prefer that they weren't born (I'm definitely not saying they're weaker b/c of that), but this kid makes me walk away with hope and a new appreciation for life. Thank you, Aaron
My favorite thing about syrmor vids is I'm either dying of laughter or crying because it's so wholesome thank you so much
"in a fight, a fork would win"
-Charles 2019
Thats nice :)
Ok, this guy is an absolute legend. Keep on keeping on :)
Yeah. We all kind of need this video about now. Inspiring and makes me think that I might be able to find some non-toxic players in vr-chat that don’t blast the ussr anthem over their mic or play their recorder at the top of their lungs.
@Tommy M. *D O U K N O D A W A E ?*
@Dawabvle Okay it would mean a lot if you would read this. So I saw the Syrmor video with you in it, and it really just inspired me. So about two or three weeks ago, I was at school. There's this kid there who has ADHD, no one ever talks to him or really even notices him. he's the shortest kid in high school at 4 feet 11 inches. I'm not gonna go into a while story or anything. But, I started thinking about how he must feel, how no one ever notices him. I decided to talk to him. It was an amazing decision. We instantly became friends. he invited me over to his house one day. Turns out he has AMAZING piano skills and the most beautiful voice ever. the other day he told me he has really bad social skills and it meant so much to him that I talked to him and actually LISTENED to what he had to say. And I if I wouldn't have watched that Syrmor video, I honestly don't think I would have ever talked to him. I lost a couple of friends for hanging out with this "Weird kid", but as my mom always tells me, its better to have a really good friend than a handful of bad ones. Thanks for inspiring me Dawabvle, DO GOOD, DIE GREAT ❤
Hi Dawabvle, the MLG
@@cassidyb3260 holy shit thats amazing, good job. I don't even know you but I'm proud of you haha. I think it's awesome that a story from a video can seriously change someone's life. You may not realise it but you may be the first friend that person has ever had and you may have really set them up to make more friends in life.
Honestly, piglet fits him. I love for how the odds outnumber him, he still stays happy. He may not be able to do a lot of things, but then again, there was steven hawking and look at him. Really wish I could meet this kid and just get to know him.
When Aaron mentioned how cool he thought using chopsticks were at 5:10, that hit me! That made me want to appreciate the little things in life so much more!
The fact that he wants to use chopsticks was like a knife stabbing my heart, and the knife never stops
Same i lovs this kid 😊
Chopsticks would win on a 1 on 1 fight
I actually cried I feel bad for Arron being lonely I just want to say thanks to the nice girl for helping Arron
Aaron*
Same
I never cry on shit but I really did here
the dad part made me tear up
Me also
His dad choked up when he said " older human being" about his son... hes worried his son wont live a long life you can tell.
turns out he was just worried because hes abusing and taking advantage of his son :(
@@forest1144 are you joking ?
@@forest1144 u can’t just comment that and not give any link
this is why vr chat is so fucking important. it's so underrated but kids and people like this who need social interaction but can't get it for various reasons can use this. it's incredible and such a great game . i hate going out and it gives me anxiety and i feel incredibly self conscious, and i often get lonely because of it, but videogames are like a gateway to social interaction and meeting new people. i have so many awesome friends online that i can talk to without leaving my house. it's fantastic and it makes me so happy.
It’s all fun and games until the guy with a anime avatar starts flailing his giant tits around in your conversations...
There's always a disrupter lurking somewhere
Dyvawn Drop or a knuckles shows up and starts talking about Ebola and the wae way past the time It was semi acceptable since it was a spicy new meme
I don't have a vr and only have a couple of friends and like 85% of the day i don't even talk
Wyvern Vulgar do you have a console?
Imagine the thought that anytime you can lose ur fingers... _it will happen_ That will just terrify me
RedDog big process
@@AZWeeklyMCOM well but how would they operate it onto him they would have to be extremely cautious
@@florex9016 The robotics can sense the motions, muscles, tensions, in your arms/hands.
I think they’d just lose the skin from their finger
Whenever there are wounds between his fingers, the heal together forming a web. Eventually his fingers will essentially be healed together into one mass. At least that is my understanding.
The Pigglet skin he has on makes the story so much more heart breaking.
I'd let this kid switch bodies with me for a year to do everything he ever wanted to do. Yeah, I'll get his pain but damn that's worth it because he deserves it! God bless him.
Wow, after he was talking about the girl that gave him a tootsie roll during recess, idk why but I burst out crying. This kid is stronger than I will ever be, he will achieve well in life man. He has such a good heart for being so appreciative of his father and I can only aspire to be as strong as he is, good luck to him and his father. Such a beautiful family.
Tootsie roll whats that?
@@n4riko its a chocolate candy rapped like a cylinder,
Real heartfelt stuff here. Godspeed, little dude. Is this why the Tootsie roll song has been lingering in my head for a week now.
If he’s that stronger then u then ur a pussy man 😂
@@imtoxiq_ You're so ignorant.
Bless for the girl who's always sit next to him, and he had crush on her ❤
Your profile pic fits in your comment xD
10k Subcribers with 0 videos challenge LOLOLOLOLOLOL
@@foreign1066 B- bAkAA ! > / / / /
@@funeralbug6402 ^////^
Oh god this thread went downhill quickly
Wow, this kid. And his dad, too. What a fucking beautiful relationship. His dad's right, there are absolutely challenges there, but that must have made their relationship as a father and son so much stronger. Wish I had that with my dad. He's nearly 70 now. Wish I could go back and change the shithead I was as a teenager. I regret making things as difficult as I did.
Shit, I need a tissue.
Same too bro. Same too..
Talked with ur dad?
That’s why I changed things as a teenager, before I got older
AH Davis so do i
AH Davis I feel this man. My dad passed away just over 3 weeks ago from a bladder infection whilst in the hospital after a Stem Cell Transplant. He was dealing with cancer, which had come out of remission for the third time, over the past three years so he was in and out of the hospital throughout that time. He fell down the night before and had to be put on a breathing machine, because his white blood cell level dropped to zero, and then the next night he had coded, which means they had to use the defibrillator to bring him back which they did. But he coded again 20 minutes before we got to the hospital. So we never got to say goodbye to him. It’s rough because the last memory of him is just being on a machine with tubes everywhere.
I have eczema and when I have a bad flare up it feels so uncomfortable and makes me miserable. I cannot even begin to imagine how this kid feels. Such a strong spirit.
As soon as he said “butterfly syndrome” I was in shock. I’ve watched a documentary about it, and it’s truly insane. and it does cause a lot of pain, i feel so bad for him :( poor kid..I hope it can somehow get better one day...
I remember watching "the boy whos skin fell off and it followed another young man with the disease. I believe he was in the UK
Yea, it's a pretty horrible disease, and a lot of individuals with the condition end up succumbing to various types of skin cancer as adults. 😞
Syrmor, thank you so much for coming in and listening to these peoples stories. You are a blessing to VR chat and I want these stories to grow big. Keep being amazing.
Kid: "If I was able to do that, that'll be cool. But I don't really care to be honest"
Guy: "That's even cooler"
Me: *cries*
@XxBo3eeDxX ok boomer
@XxBo3eeDxX Who hurt you?
XxBo3eeDxX when you think that being empathetic is a bad thing you have a problem
XxBo3eeDxX Mannn shut up.
🌸Easterpop🌸 shut tf up
This-
*this is the in real life Auggie from wonder*
you'll probably never meet a kid that is so unique like this one.
that's exactly what I was thinking especially after he said "I don't want to be stared at like that, I want to be looked at as a normal person". it must be really tough for this kid to basically live the life of August but with more pain induced in his life
Fierce Gamer same. I’ve read wonder and watched it. It changed me. But, there is a kid in the town who has a weird face, too, and it changes.. everything. It’s so hard not to stare and I want to tell them “SORRY IM STARINNG AHHH” but I can’t. They look like 8 but they’re 15 or something. It’s weird, but I feel sorry for them and definitely don’t think THEIR weird, just how I feel about them is. I don’t know their name.
i was thinking that especially taking about the one girl that was nice to him just like in wonder he truly is an amzing kid and he should know nothing should stop him
Wow so unique😩🙄
hm, i Wonder.
I was just lightly tearing up at Aaron's story but then his dad comes in and then the floodgates opened this is so sweet
This kid's amazing, in many ways.The sheer willpower he has and shows from just talking with you and brushing everything off as "oh, it's a bit tough" and "it hurts a bit when I take a shower" and especially that one sentence where he says "I probably won't have fingers which..kinda sucks." Aaron's admirable and so is his dad.
I feel so bad for this kid, I wish the best for him, he seems like a nice kid.
Alpha Oh Yeah Yeah 10000 Subs? no stop
@@GonkDr01d YOU HAVE 69 SUBS LOL LOL LOL LOL LOL
Don't pity them that's one of the biggest things the hate and makes them feel different
Skitter Ditter i’m not trying to, im just hoping he gets better because he seems to have a lot going for him, he’s just hindered by this disease. I’m inexperienced with stuff like this and i thank you for informing me about this.
Scp 173 when did you escape?
I really want to be his friend.
This boy could write a good book.
He probably has no finger by now
Letˋs raid area 51 E he does I’m his brother
Well could he write?
I would buy thousands of copies
This kid deserves everything
Yes he is so inspirational
I feel bad for him I wish him the best and he's got an awesome dad!
don’t feel bad, this kid’s living his best life and making the most of it! as long as he’s happy, we should be too :-)
Lol look at the comment above you
Isaac Lee Isaac lee
@@malloryminx oh my god thank you
Relevan Relevan
This kid is so young, and yet is doing the all things he wants to do regardless of his challenges. I'm an adult who lets things hold me up too easily. This sort of thing makes me reflect on where I could actually be now if I'd take some steps forward, even if they're hard, to reach the goals I want.
"Shout out to my dad...he's really big and strong...he can lift a plane off the ground..and other stuff.."
I know that's how every little boy sees his dad, but I believe him.
Technically, his dad CAN. Just not a real one.
My heart melted and my eyes started to leak
bruh no one cares about this dumbass kid LMAO XDDDDDDDD
Red paint you should be quite what if we made fun of you XDDDDD this isn't funny you could tell how has this is why do you need to be mean he's a little kid bet your like 16 so shut up
He's a really cool kid, I would sit with him at lunch too.
:'( hes so innocent. I wish him the best ;-; he shouldn't have to go through all that pain
These interviews are such a freaking amazing view into every day people. Thanks for holding these Syrmor, you always are a great host!
The girl who spat on him should meet me at the park at 12.
Im gonna fucking [WORDS REDACTED]
Right we’re going to have some issues if I see her
Kinda want to know how it feels to get female saliva on my face
Kristy Msp send me that location so I can go too
@@somethingrosario9587 believe me it feels fucking nasty
When the dad came on I cried, how he isn’t worried the future because in the now he’s still happy for his son who is clearly great at what he chooses to be great at. Amazing.
"Never let anything stop you,"
I'm... not crying.
*crying intensifies*
Lie down, try not to cry, cry a lot
i'm not crying! you are!
The real tragic thing is, these poor kids have short lifespans on top of everything else...
It breaks my heart.
@Nathan Hoffman
Tbh idk if i even wanna live even half of that
@@ghosty3034 you want him to live to the highest Span he can? Are you ok I’m the kind?
@@ghosty3034 thats not his point, once he reaches an certain age like 40-80 he’ll have to suffer through more pain so his point is that unless theres a cure to his condition him living that long will only be getting worse.
I've seen this disease on TV & it looks so painful 😪 I feel so bad for him. I'm glad that there's adaptive equipment so he can continue to play video games.
He seems to use a normal mouse and keyboard, and he's pretty good at Fortnite, in fact better than anyone that I know, what a champ.
@@slim7306 i think he said he uses his feet
@@WeGotTurboGaming Oh yeah he does instead of numbers on his keyboard since he needs to move his hand
That's an odd choice of emoji
Sometimes I wished I had the magic ability to heal people. So I can heal these hero's.
(,T -T,)
cure my testicular pain ;_:
Just pray. It might not work, but if it does, it’ll do great things. Nothings going to hurt you if you don’t.
Josuke has joined the chat
they’re heroes because they’re like this and no one healed them before
@@Lauren-vf4ft Then I hope one day they can stop being heroes and finally be themselves for the first time.
I have a friend who has this condition. My hope is medical science can do something in the future. Kids like Aaron deserve it.
Yup. Cried at the story about his time in school, deserves so much better.
VORTER what a fucking loser
420
@@DaMarshmellow Oh you... Your going through your teenage years. If you're not, stop being toxic.
@@hahe4487 ye he bum
Best of luck kiddo, can't imagine how tough it's been for you but you've pulled through so far, keep your head up, I might be 2years late on this video but as soon as im posting this imma go look for your stream!
And dad, keep being you! You're obviously doing a great job!
Best of luck to you 2, cheers!
there's a kid in one of my classes with this condition, and now I understand what he's going through so much more! Thank you for this
Nicole Lennon now do gooder bih
You know Nicole you could have just talked to the kid to better understand him... you know like a regular human being. You don't need a video of a kid of the same condition to understand him better. I understand though. So don't take it as an attack on your character.
@skankhunt42 yeah I realize that. Thanks.
Shout out for that dad!
Situation must be tough, but he embraces the situation because he truly loves his son. I respect that.
Why am i actually tearing up?
When he said "Never let anything stop you" I actually just started to cry. It's crazy how a video about a kid in vr chat can effect your feelings so much.
"A little kid can touch you so much"
*The FBI would like to know your location*
Me too
@Thegoattamer427 You know what I meant
Grayson Paris reword that
Me too! At that moment I suddenly realized how privileged I am to have my health and all the opportunities that it comes with. If Aaron can do what he does, I should not be allowed to mope around feeling bad for myself fully knowing that my body is capable of so many things.
Dude, this is probably the most inspirational video on RUclips
*Here before Aaron becomes the best twitch streamer that ever lived*
"Soon I won't have fingers which kinda sucks." BRO KINDA?! THAT REALLY SUCKS. NOT JUST KINDA.
ikr he's so strong like wtf
That's so sad we all get worried when our devices almost die and this kid says he's gonna loose his fingers and it *kinda* sucks 😣
@@Aboutah50342 what a savage
I mean he basically doesn't have any fingers right now.
He has been through a lot. His mentality is so strong and brave, losing his fingers is just another fight, maybe harder than the others, but that will not make him give up
Nothing but respect for you Syrmor. Thank you for giving these people a platform to speak freely.
TiffanyLockheart this funny ikr 😂😂😂
@@DaMarshmellow stfu idiot
This kid Is unbelievable Just for being the way he Is but i feel like we really Need to appreciate and value the girl who had been so nice to him. May life always be bright and good on these people! We have to learn and remember so much from this video ❤️
this kid and his dad are so sweet my heart hurts
A lot of love there.😊