An Inside Look at the Cancer Experience Registry & Its Findings on Anxiety in the Patient Population

When examining data on the experience of patients with cancer, experts at the Cancer Support Community (CSC) found the available information to be lacking, particularly around the true patient experience beyond the physical impact of cancer and its treatment.
To better capture patients’ attitudes, beliefs, and behaviors, CSC created the Cancer Experience Registry, a unique online community that allows those facing cancer to share their experience, access resources, and learn from each other.
In an interview with CURE, Heather Badt, Executive Director of the Research & Training Institute at Cancer Support Community, explained how the registry works and went into detail about some of the higher level findings of the 2020 Cancer Experience Registry Report, specifically those in the area of anxiety as it’s experienced by patients and their caregivers.
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