Live in a 2d floor walk-up apt---I kept, so THAT return was my focus: walking, proprioception, stairs, balance, etc x 6 mos in Rehab. My first morning waking in MY bed, MY room, 10 days before my birthday?? Thrilling--terrifying. Just like in Rehab, I'd laid out my clean sweats night before, dressed slow as usual, & FIRST THING, without 'thinking': Went outside & down the 16 steps, out gate, to front sidewalk & walked 1/2 way round block. I was scared, but I 'knew'--like getting back on a horse, if I'd creatively delayed that 1st time--to have breakfast or call friends? Nope. Now, 7 (Covid interrupted) years later: Steps: STILL my 1st thing. Now, I can walk to park w quad cane. Still working on the stairs. These vids by E, & Comments everyone shares, keep me motivated.
I do all the daily chores at home for the past 2 years since my stroke I can do everything now I just remind myself use it or lose it Every day I see improvement thank you so much for your videos
This is all VERY good advice. Switching lights on and off, buttering biscuits, opening and closing the fridge are all essential tasks to rebuild brain function. Repetitive exercises are good for muscles but without functional tasks they only do half the job. Strength to all sufferers!
Yes. I find holding a knife one of the most challenging things. I works the wrist and finger in strange ways, but washing dishes is another task requiring lost of hand and wrist mobility. It does get easier over time, you just have to keep on keeping on. All the best!
Virtually everything you've said here is completely true (right hemisphere, frontal pareital lobe hemmorhage, 2020). I've found myself 'naturally' doing these things without even being told/advised. I just feel the 'urge' to do them. Which brings me neatly to the biological concept of 'homeostasis'. Not sure if I've mentioned this before? I'm (was) a zoologist/biologist and homeostasis is basically where any living organism will (after damage/injury/trauma) always 'naturally' endeavour to return to a state where it can function normally/optimally within it's natural/given environment. So I base some of my hope in full recovery on this hypothesis. However, that doesn't mean you can just sit back and let nature take it's course. What Elyse is saying/telling/suggesting is highly important as part of your recovery. Don't forget 'diet'. 'You are what you eat', if you eat sh*t then you'll be made of sh*t 😆😉She's (Elyse) is totally right about this being a 'marathon' not a sprint, in fact it's one of the first things I can really remember the OT's saying after I came back to the land of the living. 'Rome wasn't built in a day' etc, etc. Good luck to y'all my little strokie comrades........just don't/never give up!
Thank you for your pragmatic and empathetic advice, so helpful and motivating. I am 2 years post, and things like brushing hair, teeth, light switches have shown results. Also gardening, using shears and brooms with both hands.
It is crazy to see so many people in the same spot. 1 year now post stroke. Can finally remember 2-3 days now, and headaches & pressure are not as sevier all the time. I just find it crazy that recovery for me has been slow and steady. If I over do it in a day it sets me back days, or weeks. Like the brain doesn't know what to do, so just shuts everything but survival down. It's been just over a year, and still have a 2" clot in my sinus vein. But body is amazing and created some alternative routs for blood to flow over the past year. I feel for all of you post stroke people out there. It's not fun, and hope you all have support from somewhere. You all got this!
I had two strokes in one day 2 1/2 years ago. And they were major strokes. I couldn’t talk and I couldn’t move my right side. But right after the stroke I started to feel my right leg. I couldn’t move my arm it was just hanging down for around two months. Then I started to move it. My problem is that I can’t feel my right arm. My feeling is slowly coming back from the top of my right shoulder and down. At first I couldn’t feel hot and cold but now I feel it great. I can’t feel my right hand, I can feel pressure but that’s about it. They told me when I was going to therapy for two years that they can’t help me to regain my feeling. It’s all in my brain. I’m grateful that I can feel hot and cold, and I’m lucky that I’m alive. I had my strokes when I was 54 years old. The doctors say that everybody is different and they can’t tell me if I will ever get my feeling back. Because they don’t know. And there’s not a lot of studies about stroke victims. All my research on the matter says that if you have a major stroke A lot of the times it kills you. Then it says half of the people who have a major stroke, and survive, they usually die within a year. So I don’t know what to believe anymore. I think I just got lucky because I had this event when I was 54 years old. I’m lucky to be alive….✌💙
I think it is helping a lot to work with a rope & pulley to raise my affected arm with the unaffected one. i still cannot lift my affected arm foreward fully but can lift it to the side. Really appreciate your videos.
I’m a StrokeSurvivor from Sweden. I had my Stroke two months ago. And it’s been a tough struggle ever since I “woke up in the hospital”. You videos help a lot! Much love from 🇸🇪
Thank you for reminding me to do little things with my affected arm. It is easy to get out of the habit of doing small things with your lousy arm because it is easier with your good one. Over the years movements have disappeared due to non use. I have Multiple Sclerosis. You have given me many GREAT ides on how to make things better.
8 months post stroke, right side afffected. i try to do everything i can with my right hand and wrist. over time i can find things are working and i can now type again and grasp things. the more i use it the better it becomes. i can finally raise my arm above my head. i appreciate the little things i can do more now than ever.
I remember when my PT explained this to me and why her manipulating my arm/shoulder was going to help reconnect pathways more than me trying to strengthen my shoulder/arm.
Great video! I am three years post stroke and just started using my right hand to turn light switches on and off. I also make attempts with opening and closing doors. It takes time but I have a lot of time on hand😊. Thanks for the reminder of repetition! repetition! Repetition! Thanks for sharing
Thanks Elise - love your helpful sensible informational videos. I am working with my neurophysio on my arm and hand movements. I will supplement his advice with yours. Thank you
my first goal after the ischaemic stroke that affected my left side was to do my own waist length hair. I started by using just my right hand to brush my hair. Then I started dividing my hair into two tails, which I then divided in two and twisted around each other, using my mouth to anchor the piece not currently in my right hand. Then I started using my left hand to hold the end of the tail still while putting in the hair elastic. Now,16 months post stroke, I can loosely plait my hair using a (self) modified technique for the left hand motions. Not only does this keep my hair out of my face, but it also has worked wonders with my finger dexterity and grip strength.
thank you so much maam for your videos... it always make me inspired... can you please do a video about my elbow spasticity... Thank you in advance... GOD BLESS 🙏🙏🙏
I can lift my arm, but it goes up with the arm bent unless I'm laying down. Also, my arm doesn't extend to reach. My arm is still flexed. I'm still working on it. I'm 18 months post.
@hemasookram4655 It is so slow and so frustrating. Ugh, I'm sorry. I am glad to hear about all of your progress though. I hope you're being kind to yourself when you're having rough days ❤️
I had cvtst 4year ago.after 2year i can talk and walk slowly but now my progress become slow because of nero fatigue.i can go upstairs but down stairs its challenging i come downstairs by my bottom 😭 i can move my arm but cant move my hand wrist
Same for me somedays I just wanna scream others I haven't even got the energy to talk let alone scream. Then occasionally I'll get up and 'no problem' can move (not like before obviously), feel energized, can think straight, feel happy to be here so on and so forth. Then next day back to square one (or worse). This really sucks man, but still I truck on!
3 years post stroke. I am doing a lot better but I have regression at times which is scary. My stroke was a basilar stroke and I loss my speech, my right side was paralyzed, I had trouble swallowing, but I did not lose cognitive function. I was 49 years old. Lately I have been having balance issues, I noticed the left side of my face drooping a month ago but then got better. They are not sure what caused my stroke. The doctor's think it was either my Lupus diagnosis or possibly a-fib. I was given a loop recorder a few months after my stroke and it did show a-fib. So maybe that was the cause.
I have reason to strongly believe that I had multiple mini strokes, but my insurance won't cover an MRI because my doctor doesn't believe it. My counselor thinks its hypochondria, psychosomatic, or anxiety. It is not. My brain and body are not working like they used to. I haven't yet been able to see a neurologist. I don't know what to do
Hand spasticity. Isn’t it suppose to get better? I feel after one year after stroke and having got somewhat better it seems that now is getting worse. Why? What can you do about it other than exercises, Hemp cream to alleviate the tip of discomfort…?
I'm a stroke survivor, I have also been affected with ataxia and dysarthria and I am looking for help. I'm a wheelchair user and 10 years pĺus. Diann Challis
I have a question for you please replyme I have shoulder movement but I don't have fingers movement how I can get My fingers movement back I had a stroke before 5 months my left side damaged kindly reply me and how much time required for fingers movement?
Please I help me, my brother has hemorrhage brain on October 2023, he was paralized right side of the body, about 3 weeks ago he starting to move it, but doesn't enough strength to stand up for himself,
I'm grateful I'm alive. I'm post stroke survivor. 5 months. I'm just taking it slow and stop trying to do everything. My son tries to do things for me. but I let myself ask for help I also can be Independent it frustrating for him . Because he doesn't want me to hurt myself. But we are getting through this. 😵💫😵💫🥹
![[4K] Watch SpaceX Catch A Starship Rocket From Space!!! #IFT5](http://i.ytimg.com/vi/pIKI7y3DTXk/mqdefault.jpg)
This channel yas so helped me. I'm 3 years post stroke. I mourn my old self, but am grateful for the slow but steady recovery. Thank you!!!!
Me 2
I understand exactly how u feel
Amen🙏🙏💯
❤
me.. just three months, but I had a mild stroke
5 years post stroke, still working on trying to get fingers and arm movements. Thanks for the video, Elyse.
@lisaward2562 Of course ❤️
It will be 5 years in June for me. Don't give up.
Thanks for sharing your insights, Elyse! Appreciate it! ❣️
Live in a 2d floor walk-up apt---I kept, so THAT return was my focus: walking, proprioception, stairs, balance, etc x 6 mos in Rehab. My first morning waking in MY bed, MY room, 10 days before my birthday?? Thrilling--terrifying. Just like in Rehab, I'd laid out my clean sweats night before, dressed slow as usual, & FIRST THING, without 'thinking': Went outside & down the 16 steps, out gate, to front sidewalk & walked 1/2 way round block. I was scared, but I 'knew'--like getting back on a horse, if I'd creatively delayed that 1st time--to have breakfast or call friends? Nope. Now, 7 (Covid interrupted) years later: Steps: STILL my 1st thing. Now, I can walk to park w quad cane. Still working on the stairs. These vids by E, & Comments everyone shares, keep me motivated.
I do all the daily chores at home for the past 2 years since my stroke I can do everything now I just remind myself use it or lose it
Every day I see improvement thank you so much for your videos
How do you release anything from your grasp with your affected side.
This is all VERY good advice. Switching lights on and off, buttering biscuits, opening and closing the fridge are all essential tasks to rebuild brain function. Repetitive exercises are good for muscles but without functional tasks they only do half the job. Strength to all sufferers!
i have been doing my wifes favorite exercise doing the dishs itsounds easy but holding a soapy glass or plate is not
Yes. I find holding a knife one of the most challenging things. I works the wrist and finger in strange ways, but washing dishes is another task requiring lost of hand and wrist mobility. It does get easier over time, you just have to keep on keeping on. All the best!
Virtually everything you've said here is completely true (right hemisphere, frontal pareital lobe hemmorhage, 2020). I've found myself 'naturally' doing these things without even being told/advised. I just feel the 'urge' to do them. Which brings me neatly to the biological concept of 'homeostasis'. Not sure if I've mentioned this before? I'm (was) a zoologist/biologist and homeostasis is basically where any living organism will (after damage/injury/trauma) always 'naturally' endeavour to return to a state where it can function normally/optimally within it's natural/given environment. So I base some of my hope in full recovery on this hypothesis. However, that doesn't mean you can just sit back and let nature take it's course. What Elyse is saying/telling/suggesting is highly important as part of your recovery. Don't forget 'diet'. 'You are what you eat', if you eat sh*t then you'll be made of sh*t 😆😉She's (Elyse) is totally right about this being a 'marathon' not a sprint, in fact it's one of the first things I can really remember the OT's saying after I came back to the land of the living. 'Rome wasn't built in a day' etc, etc. Good luck to y'all my little strokie comrades........just don't/never give up!
Thank you for your pragmatic and empathetic advice, so helpful and motivating. I am 2 years post, and things like brushing hair, teeth, light switches have shown results. Also gardening, using shears and brooms with both hands.
Thank you for such detail sharing🙏🏻🙏🏻🙏🏻
It is crazy to see so many people in the same spot. 1 year now post stroke. Can finally remember 2-3 days now, and headaches & pressure are not as sevier all the time. I just find it crazy that recovery for me has been slow and steady. If I over do it in a day it sets me back days, or weeks. Like the brain doesn't know what to do, so just shuts everything but survival down. It's been just over a year, and still have a 2" clot in my sinus vein. But body is amazing and created some alternative routs for blood to flow over the past year. I feel for all of you post stroke people out there. It's not fun, and hope you all have support from somewhere. You all got this!
Thank you❤️❤️🙏💯🥲🥲
Hello my brother has hemorrhage brain affected right side of the body, speech, he has tube feed, not walking, not moving arm,
I had two strokes in one day 2 1/2 years ago. And they were major strokes. I couldn’t talk and I couldn’t move my right side. But right after the stroke I started to feel my right leg. I couldn’t move my arm it was just hanging down for around two months. Then I started to move it. My problem is that I can’t feel my right arm. My feeling is slowly coming back from the top of my right shoulder and down. At first I couldn’t feel hot and cold but now I feel it great. I can’t feel my right hand, I can feel pressure but that’s about it. They told me when I was going to therapy for two years that they can’t help me to regain my feeling. It’s all in my brain. I’m grateful that I can feel hot and cold, and I’m lucky that I’m alive. I had my strokes when I was 54 years old. The doctors say that everybody is different and they can’t tell me if I will ever get my feeling back. Because they don’t know. And there’s not a lot of studies about stroke victims. All my research on the matter says that if you have a major stroke A lot of the times it kills you. Then it says half of the people who have a major stroke, and survive, they usually die within a year. So I don’t know what to believe anymore. I think I just got lucky because I had this event when I was 54 years old. I’m lucky to be alive….✌💙
Thank you so much for the advice. I watch all of your videos and appreciate your help. 2years post stroke and I'm still recovering
Very true I try to force my arm/hand to brush my hair😅😅😅😅 what a mess but I keep doing it. It is getting better and better.
I'm 7 months post stroke.... this channel is my premier channel I've been watching... totally greatful for it's content.
Awesome information, thanks mam. I had stroke thalamic bleed in right brain affecting left limbs,in oct 2023...I can relate to what u say.
Thanks for the encouragement
I think it is helping a lot to work with a rope & pulley to raise my affected arm with the unaffected one. i still cannot lift my affected arm foreward fully but can lift it to the side. Really appreciate your videos.
I do all the suggestions you've put across and there's quite a big big change on my arm and fingers.
@josephinegithinji5400 That's great to hear!
This one was Great! Thank you for being here!
I’m a StrokeSurvivor from Sweden. I had my Stroke two months ago. And it’s been a tough struggle ever since I “woke up in the hospital”. You videos help a lot! Much love from 🇸🇪
Spot on
Thank you for reminding me to do little things with my affected arm. It is easy to get out of the habit of doing small things with your lousy arm because it is easier with your good one. Over the years movements have disappeared due to non use. I have Multiple Sclerosis. You have given me many GREAT ides on how to make things better.
@ernestreid9296 So glad you've found the tips helpful! 😊
therapy is very helpful! Thank you!🙏🏼
@bpboy9462 I'm so glad!!
8 months post stroke, right side afffected. i try to do everything i can with my right hand and wrist. over time i can find things are working and i can now type again and grasp things. the more i use it the better it becomes. i can finally raise my arm above my head. i appreciate the little things i can do more now than ever.
This is so helpful thank you! My Mum is 18 months post-stroke (pretty much 50% brain damage) and your videos give us so much hope x
I remember when my PT explained this to me and why her manipulating my arm/shoulder was going to help reconnect pathways more than me trying to strengthen my shoulder/arm.
Great video! I am three years post stroke and just started using my right hand to turn light switches on and off. I also make attempts with opening and closing doors. It takes time but I have a lot of time on hand😊. Thanks for the reminder of repetition! repetition! Repetition! Thanks for sharing
This channel have been a great help since my stroke April of 2023🥰🥰 Thank you so much❤️❤️❤️❤️🙏🥲💯
Thanks Elise - love your helpful sensible informational videos. I am working with my neurophysio on my arm and hand movements. I will supplement his advice with yours. Thank you
Thank you so much. God bless us all.❤🙏🏻
@DaddyMyk ❤️
Love that look of determination in the thumbnail 😍💪🏽💖
Fantastic video...keep them coming. Thanks.
my first goal after the ischaemic stroke that affected my left side was to do my own waist length hair. I started by using just my right hand to brush my hair. Then I started dividing my hair into two tails, which I then divided in two and twisted around each other, using my mouth to anchor the piece not currently in my right hand. Then I started using my left hand to hold the end of the tail still while putting in the hair elastic. Now,16 months post stroke, I can loosely plait my hair using a (self) modified technique for the left hand motions. Not only does this keep my hair out of my face, but it also has worked wonders with my finger dexterity and grip strength.
Your videos are very helpful! Thanks 🙏🏽
Thank you for creating this channel it is wonderful you are certainly helping me in my recovery process you explain things very well. Thank you again
This video was very helpful. The information given and everyday exercises that were given were great for my daily activity in the house. Thank you!❤
Thanks for all your information. It is really been very helpful for me. I have my stuff on October 1, 2023.
thank you so much maam for your videos... it always make me inspired... can you please do a video about my elbow spasticity... Thank you in advance... GOD BLESS 🙏🙏🙏
I can lift my arm, but it goes up with the arm bent unless I'm laying down. Also, my arm doesn't extend to reach. My arm is still flexed. I'm still working on it. I'm 18 months post.
Great video
5 strokes it's been nothing but fun ! but I"m still rebuilding electric motors..5yrs 4munth ago.
Thanks for sharing this information I find it to be helpful
Thanks!
Thankyou good adv8ce😊
Sorry I hit the wrong button I really like this episode and meant to click I liked it.
It's the level of slowness and walking like a robot that frustrates me. Last two days neurofatigue has been kicking my butt😅
Same problem bless u
@hemasookram4655 It is so slow and so frustrating. Ugh, I'm sorry. I am glad to hear about all of your progress though. I hope you're being kind to yourself when you're having rough days ❤️
Sometime feel like a stone can even move
I had cvtst 4year ago.after 2year i can talk and walk slowly but now my progress become slow because of nero fatigue.i can go upstairs but down stairs its challenging i come downstairs by my bottom 😭 i can move my arm but cant move my hand wrist
Same for me somedays I just wanna scream others I haven't even got the energy to talk let alone scream. Then occasionally I'll get up and 'no problem' can move (not like before obviously), feel energized, can think straight, feel happy to be here so on and so forth. Then next day back to square one (or worse). This really sucks man, but still I truck on!
❤❤❤❤❤
3 years post stroke. I am doing a lot better but I have regression at times which is scary. My stroke was a basilar stroke and I loss my speech, my right side was paralyzed, I had trouble swallowing, but I did not lose cognitive function. I was 49 years old. Lately I have been having balance issues, I noticed the left side of my face drooping a month ago but then got better. They are not sure what caused my stroke. The doctor's think it was either my Lupus diagnosis or possibly a-fib. I was given a loop recorder a few months after my stroke and it did show a-fib. So maybe that was the cause.
I have reason to strongly believe that I had multiple mini strokes, but my insurance won't cover an MRI because my doctor doesn't believe it. My counselor thinks its hypochondria, psychosomatic, or anxiety. It is not. My brain and body are not working like they used to. I haven't yet been able to see a neurologist. I don't know what to do
Hope!!
Hand spasticity. Isn’t it suppose to get better? I feel after one year after stroke and having got somewhat better it seems that now is getting worse. Why? What can you do about it other than exercises, Hemp cream to alleviate the tip of discomfort…?
I'm a stroke survivor, I have also been affected with ataxia and dysarthria and I am looking for help. I'm a wheelchair user and 10 years pĺus.
Diann Challis
I have a question for you please replyme I have shoulder movement but I don't have fingers movement how I can get My fingers movement back I had a stroke before 5 months my left side damaged kindly reply me and how much time required for fingers movement?
Hi Elyse, does lower back take a longer time to get flexible after stroke?
I'm trying to do things alone but not having any progress so what can I do for left sided weakness
It's more of a slow process than you're talking about
Can you pls make video about headache and bluring vision after stroke pls
Please I help me, my brother has hemorrhage brain on October 2023, he was paralized right side of the body, about 3 weeks ago he starting to move it, but doesn't enough strength to stand up for himself,
Im s dtroke patient therre are nights when i feel fuddenovent or jerk on my sfected foot what does it mean
Excellent content Elsey! Endorsed by Stroke TV Media. #stroketv
@StrokeTV Thank you, Aaron! ❤️
As yet I can do almost nothing at all. It us so frustrating
I am from India 🇮🇳
Im ayear post stroke ,cantlift myar andcant move my fingers buthey all movexwhen I'm yawning
Thank you elyse
Thanks
Thank you SO much for your contribution to Post Stroke ❤️❤️
The stroke. Another one of God's little funny ways of showing us how much he "loves" us.
I have stroke sixyearsago
Let me know when you take patients
Love all your videos! Thank you for everything you do ❤
I'm grateful I'm alive. I'm post stroke survivor. 5 months. I'm just taking it slow and stop trying to do everything. My son tries to do things for me. but I let myself ask for help I also can be Independent it frustrating for him . Because he doesn't want me to hurt myself. But we are getting through this. 😵💫😵💫🥹
Thanks!
Thank you SO much for your contribution to Post Stroke ☺️
Can you pls make video about headache and bluring vision after stroke pls