Medical Gaslighting - It's not in your head!
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- Опубликовано: 22 май 2024
- Episode 123: What is Medical Gaslighting? If you have migraine or another chronic pain condition, chances are you have experienced medical gaslighting. Medical gaslighting can result in a form of medical trauma, and it can alter the manner in which we interact with the healthcare system. It can make you feel sicker, cause you to shut down, or to question yourself and the validity of your pain. It can also make you feel helpless or angry.
In this week's episode Lindsay Weitzel, PhD, asks Melissa Geraghty Psy.D. about the effects of medical gaslighting and what we can do about it.
Follow the National Headache Foundation's podcast HeadWise, as host Lindsay Weitzel, PhD, has informative discussions with headache experts on the latest treatment, research, lifestyle recommendations, and personal stories about living with migraine disease and headache disorders. HeadWise can be found on Apple Podcasts, Spotify, Stitcher, Overcast, or wherever you get your podcasts.
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Every patient should have the right to have a medical advocate with them for appointments whether that be a family member or a professional. Anybody in pain or having a medical emergency, no matter how articulate they may normally be can absolutely struggle to communicate under distress
There is a difference between being assertiveness and aggressive, but unfortunately, as women our assertiveness can be interpreted as aggression.
It does not matter if you are a woman or not. If things do not turn up on standard tests, you have major medication hypersensitivity, etc. then you will be treated like crap even if you a white male. Now, whenever any doctor says it is in your head, my immediate response is what is the neurological interface for the issue. Needless to say the doctors are really ticked-off because they do not know and do not know what to say, because I have called them out. So, I believe even if the majority or all the doctors hate you, that is do to you being a complicated patient they can't help, which makes them basically worthless.
Yes because doctors especially many of the males, are so domineering and power-trippy. They want control
You made me realize I was gaslighted at Mayo Clinic. It was a terrible experience.🤕
Mayo has had three chances with me. Aside from the cost, travel time, accommodations, emotional and physical energy wasted, they all gaslighted me and I will never go back.
That Place is my Last Resort, going there in One Week. I'm Not Hopeful, now Im Really Not Hopeful. Time to pick up some life insurance
@@e.1766 Do you know which departments you’ll be seeing?
@@chainsgirl73 GI dept. To start with. Dr. Megan Bird. Babe, between my abuser Mom & abuser Dr's, I'm so damn scared I think I'm gonna stroke out, no Kidding. I Just looked up Patient Advocates in My area; doing a phone consult today. Didn't find them in time for Mayo, but hopefully moving forward they can help. Any Advice for this appointment to another Joke Clinic?? Sanity saving points even? Hope You're Doing Awesome, please say you are❤️
@@chainsgirl73Me, too. My genetic condition was misdiagnosed as psychosomatic by the neurologist when he only looked at me for 5 minutes! I suffered neurological damage from their gaslighting! Prayers going to you.
This video was very affirming. I was told in my last visit “Are you listening to me?” 4 times. I was told “You don’t have to be here. You can go see someone else.” He told me to put my phone down after he asked me to look up a test result from a different clinic. He was very aggressive. He was rude. I felt dismissed. I felt unheard. I felt crazy. I felt small. When we got into the car I cried. I cannot go back to him. From a different dr, this is in my chart: Given all this, I did suggest that it was possible that there may be at least some amount of psychiatric contribution to her symptoms. This does not mean that she is "making up" her syncopal episodes, but that perhaps her mental health is not currently optimized, and that improvement in this area may also help with her syncopal episodes. How am I supposed to take that? My mental health is making me pass out? I’m angry. Hurt. Sad. Doubting myself. And of course, anxious. Bc now I need a new primary and I’m already trying to devise a strategy where I don’t come off as crazy.
I am so sorry. Dealing with a similar issue. It is so sad that we have to try to figure out what to say and what not to say just to get treatment or feel taken seriously.
I'm going to die from Dr & caregiver abuse. I wish it would be quicker. Every medical prob I've had, With Obvious symptoms, has been ignored until I become disabled from them. If this is Never going to stop, I have no chance. I just got diagnosed w/ GI cancer after having incredibly dibilitating GI symptoms for over a decade. I have a new aorta now from Factor 5 blood clot condition. But I 'don't Need a Vascular Dr or Hematology'. They're all forcing me to die. I used to Be a professional caregiver, & I couldn't save the patients I saw going thru that. I actually got blacklisted Helping patients, in my opinion, were being abused. Wishing Everybody Here Love, Support, Help & a Pain & Sickness Free Life🙏❤️
Its so frustrating!!! Im sorry!! I go through this every time I go to a doctor and leave crying.
As a woman, now in my 50s, it took 40 years to be diagnosed with Ehlers Danlos syndrome. I LOVE this video...this is soooo validating!
And, there ARE doctors out there that will listen, and when I was diagnosed at 49 years old, my doctor was sooo validating to all of the issues.
Lastly, preventing medical gaslighting NEEDS to be trained to ALL medical staff.
Over the last four years I thought it was me. The total lack of any respect or human decency is appalling . Even though I did all that was required of me made my little list. They're just not interested I am not sick enough for them to make enough money off of their Pharmaceuticals stock
The Dr's Wait Until whatever is wrong is a bigger Payout. I'm being Used as a Payout Now
medic especially male tend to do gaslighting if they are out of knowledge to help the patient and don't want to say it. Often an ego problem. Thinking that helps me if I am being gaslighted
EMT's are the WORST
THIS! "🎤 " blowing me away. So for me over 25 years and finally getting the right dx a few days ago. Love your channel and info and guest. Learning a whole new way of living and treating my symptoms with the right dx. Thank you I'm glad I found you. ☺️ 🤗❤️
I did actually write letters to all the doctors that treated me badly and even sexually abused me. I sent my letters and left those doctors. Gaslighting is so destructive. Were already going through so much already.
I actually got one neuro fired and 1 chiropractor that couldn't practice for a very long time. They need to be held accountable. They cost me years and with so much trauma I was already going through in my relastionships. We need to be our best advocates 💪
Thank You So Much for Posting!!!! Can you please give any sort of advice on the Letter Writing? What did you focus on w/ your reporting, & where did you send your letters? Having some advice on writing letters would make us All do it. Let's Take Down the Gaslighting Dr's w/ Letters✍️❤️👍
I completely “check out” and forget to ask the most crucial questions in Dr. Appointments based on so much medical trauma and gaslighting. It’s really awful :(
Closest i can recall is from a boss i had at a taxi company, who did not understand that when i took a migraine tablet i was not supposed to drive.
Also... i have anxiety and yes there's no such thing as "just a panic attack."
I started having migraine w/ aura, no headache years ago. All doctors were saying "You're too stressed and anxious." Flash forward to November 2020, the auras started coming more frequently and I started bleeding constantly with abdominal pain. First doctor said I had tubal ligation syndrome (non-existent dx). Second doctor said I had Adenomyosis but gave me the option for hysterectomy.
Had the hysterectomy August 2021. Turns out I had silent, extensive endometriosis and ovarian/fallopian tube cancer.
Watch those migraine symptoms. They were my only warning for excess estrogen output that likey caused the ovarian cancer.
My experience has been that if I'm on the chubby side, I'm told to "eat less and exercise more." That old chestnut. When I'm thin, I hear, "Your tests are normal, there's nothing wrong with you." So clearly it's all in my head.
It's very rare that I've been in a doctor's appointment where I didn't have a migraine. Just getting to an appointment is exhausting, never mind trying to be coherent and have to communicate. I give them my medical history notes written out--which they may or may not actually even read. So then, this is what I did: I made a video of myself when I was feeling functional and start with, "If you are watching this video, it means I have a migraine."
The first thing I tell them is how to communicate with "Migraine Me", which is to speak softly and SLOWLY, and WAIT for a reply. Also, jokes are wasted on me because I won't get them. Then, I give a summary of migraine symptoms, triggers, what therapies & meds I've tried. The video is about 6 minutes, but is pretty comprehensive.
It's one thing to have an advocate, but even they might not be effective in their communication about what's going on with your condition. Video provides a clear contrast of "Normal Me" vs. "Migraine Me." It allows you to advocate for yourself.
That is an excellent strategy 👏
Absolutely brilliant idea!!! I will do a video too! 6min...that sounds like pretty good lenght!
Wow! Amazing!
A friend photographed her daughter’s very severe allergic reaction before she got the help needed. Until then she was labeled as a neurotic mother exaggerating her daughter’s condition.
I’m so happy I found this channel, I get terrible cluster migraines. Just wanted to say thank you for this channel and this topic . Makes me feel like I’m not alone.
It makes you lose faith in all medical practice. Makes it really hard. I've been caught up in this mess since COVID and I finally found a doctor I can trust!
So glad to hear there's at least one doctor out there that can be trusted
Wow thanks for bringing attention to this.i hope more medical personell become aware of this .I have a panick attack only when I have to go to the doctor😢
Oh the labs are fine!! I didn't realize this all had a term when I was younger. Family can be super challenging! Great conversation. Thank you!
It’s kinda funny. I get told that I’m having migraines when they want to put off looking for a brain mass. If they are not gaslighting one thing, they are gaslighting another. The problem is that they are always gaslighting until the problem gets too big. I did have a brain tumor and now it’s inoperable. Thank you, doctors.
Have experienced this with having mesh implant reactions. Can write a book. Crazy 🤪
Oh my goodness, I really appreciate this validating and educational video! I’ve been going through 5 years of psychiatric trauma with this stuff. I moved to a different state, and I would have never moved if I had ever imagined any state would be so uniformly uneducated, inhumane, and harmful in their medical gaslighting. I actually went into emotional shock for a week. It’s torn my life and physical health to shreds. Great to hear your story and know it can be different. I almost forgot what anyone on my team might say. 🎉
They think they know your body and experience and you don't, crazy
Agreed,. Extremely annoying telling Me how I Feel or acting as if I don't know my own Body.! Especially coming from a Damn Man... Ugh.!
Appreciate this Discussion. It applies to myself as well. Thank you.
Excellent, excellent talk! I write for a couple of different medical sites, I was wondering if I could write a synopsis from this video to share? I would absolutely give credit and link to your video. Thanks!
Yes, please do!
Now Elder, but Medically INFORMED, have HAD TO Put some Doctors and RN- NP .s ,ON NOTICE.
Brilliant video!!! Thank you!!! 😊😊😊
After you leave the OR, the surgeon could care less about you. You are on your own with bad outcomes, new chronic pain.
My doctor said to me when are you going to stop chasing this EDS diagnosis despite my mother having veds father Marfan's!
Polypharmacy..Most of her diagnoses is withdrawals and ADR's ... (adverse effects) that gets passed off as another condition... causing Polypharmacy which is extremely dangerous and most doctors don't want to admit they did something wrong or their medications did something wrong so they continue to push their dangerous drugs causing more and more conditions... instead of Holistically healing you and looking at the root the the problems.. which is mainly chronic stress.. high adrenaline fatigue... emotional stress.. conditioning ... etc etc... which can be re-wired and healed.. but most doctors want us conformed and to obey and listen to them as if they are God.. and know it all and never do anything wrong.. and when you figure things out be advised how quick they will try their best to diagnose.. some psychiatric issues.. creating more gaslighting etc.. just be careful.. do your research.. critically think.. have another person advocating for you.. and also just try to realize its rare to find doctors who care and want to listen.. i prefer the holistic ones.. but listening to her story definitely sounds like Polypharmacy..
As patients we see doctors when we are not well. We are in need and are in a subservient or regressed role. Doctors then can be real bullys. It may be that patients need to be prepared for this. Prepare yourself psychologically, so that you are not so stunned and shocked when the doctors attacks you with demeaning comments.
The state needs to take their medical license and never practice medicine again, ever! I need to be president! Universal health care would be introduced! That would help! Corporate needs to go! Now!
Gas lighting id a form of abuse
My doctor told me which he his a nurse practitioner not toworry about my test keep coming back stage three kidney ixsues not to worry about it that it will go away mind all this two test before this same results and my last doctor test for my kidneys had called me and wanted me in the office i made the appointment and he was nolonger there so thisdo do tor read the results said my doctor read the report wrong
Doctors treat bloodwork and diagnostic films. They don't treat you.
Just a bunch of liars
My favorite is, "you're a drug seeker".