Likely, because the B12 tests for blood levels, but NOT absorption, or Active B12 utilized by your body. The Active/Absorption test costs more, therefore NOT done routinely.
I thought I was dying too, possibly experiencing signs of early ALS. My B12 readings were within the normal range, although at the lower end. My neurologist immediately started me on B-12 injections while he investigated other possibilities. I'm over 60 so one item I don't believe they mentioned here is it's not uncommon for our B-12 levels to drop as we age. Have your B-12 levels checked as part of your yearly physicals.
i barely survived 7 years of non diagnosis. Instead I was diagnosed with Intercranial Hypertension. My life has been saved after 5 months of heavy B12 supplements.
i agree 100%....people taking b 12 supp. think tney are filling the gaps....but the human body takes in synthetic b12 vs meat? no way.....no way the human body says " ohhhh yayyy synthetic crap, i could use that very well" lol
GPs ARE failing us. I'm in the US and have not been able to get any help with this for 3 years now. I was diagnosed B12 deficient when I was 20 and took weekly injections and felt great. I've not been able to find anyone willing to test me and prescribe injections for over three years now. I have every symptoms of deficiency including pins and needles in my hands, arms and feet, tinnitus, dizziness, crushing fatigue, memory issues, etc. I have 2 known autoimmune disorders and feel pretty sure I'm not producing intrinsic factor. I can no longer work and don't feel safe to drive due to the dizziness and brain fog. I have a staggering gait like I'm intoxicated. I am barely able to manage day to day functions at home. Most days I feel like I'm dying inch by inch.
It is a horrendous situation and there are SO many people out there with this problem. Doctors can’t/won’t help mostly and if they do they get their wrists slapped regularly too. I do my own injections
For 5 years I've had weird symptoms that seemed so unrelated. Dr's telling me I have an anxiety disorder. So I had to investigate myself. After asking and demanding b12 levels. For 5 years I've had episodes of palpitations, pins and needles in the hands and feet, time periods of severe fatigue. Stomach issues and get GI cleared me of my crohns being active. Glossitis, mouth ulcers and chelitis also a burning mouth. Weakness. For years I've had Dr's call me a hypochondriac, depressed or anxious. And after pushing I finally have an answer. Excited to start seeing changes as I'm adding b12 supplements. My b12 isn't "low enough" to warrant a b12 shot. The Dr's haven't apologized or anything. The only Dr's that's stood up for me is my OB and osteopath.
I pay for private B12 shots because right now that's the only way I can feel better, the docs say my bloods show normal B12 levels. They need to test the active levels not the total levels.
I have chills, confusion, barely can walk. Test results shows borderline. I was told to take b12 vitamin.I had the injection yesterday. I was feeling good.I took the vitamin b12 today and I am feeling the same pain as before
This is literally insane! I had it the same way. I did not want to say anything about it until a colleague of mine told me she wanted to drive her car straight into a rock!
please mention all the people on a omnivore diet that are B12 deficient too. Another way to take B12 supplements is sublingual, which bypasses the digestive system for absoption and injections are not necessary
I was really taken by surprise a couple of years ago when my doctor phoned me and told me I was deficient in B12 because I do eat meat, a lot of it. But I had been getting pins and needles in my feet for about a year and I thought it was caused by something else, I'm in my seventies so I took little notice. My doctor finished up giving me six shots over six weeks. My digestive system has been damaged and that is the reason I had this problem.
did you experince any other symptoms such as dizziness, pins and needles in your legs and arms? i think i am b12 deficiency i have pins and needles constantly in my feet and dizziness and loss of balance. how long did it take for the injections to work for you?
@@toni4729 Yes i am going to the hospital tomorrow to get it checked out. How long did it take for the pins and needles to go away. ans also did you experince any numbness or damage?
I've never been so cold in my life. I didn't know I had very low B12 and couldn't understand the tiredness and coldness. My husband would sit there in a t-shirt and I had a t-shirt a track suit top and a thick cardigan on with a hot water bottle on my lap. Heating on full blast and stove lit. I'm having injections now and am doing better. 😊
I have B12 injections every 3 months and I don't feel any better. I have fibromyalgia and am so tired all the time. The injections don't make any difference but my GP said I should still keep having them because of how B12 is needed for so many other things going on in my body.
Some people need daily or every other day B12 injections. Fibromyalgia is just a set of symptoms, not a diagnosis. Many people are "misdiagnosed' with fibromyalgia but actually improve greatly with regular B12 injections. it may take a year or longer of B12 daily or every other day injections to get better.
It is very, very important to also take all of the B complex vitamins when getting B 12 shots. You need all of the B vitamins to work together. Ask your doctor about methylocobalamin B12 as well.
I'm not vegetation or vegan and I've just been diagnosed with b12 deficiency My great grandmother suffered with anaemia Mine could be due to that or suffering with anorexia at the age of 20 I've collapsed a coupleoc times my son was crying over me as he found me on one occasion Feeling tried aching you name it I ended up having blood test and they found out I'm now on folic acid tablets for 3 months I've been this way for years since about the age of 39 I'm now 45 I've just found out
folic acid supplements can make B9 deficiency worse - which causes B12 issues. I use methylfolate only. Folinic acid would be the next best option for supplements I think.
Never take folic acid, it makes things worse, sadly drs do not know or agree, they're just not educated about it, but you must avoid it and all food fortified with it (eg, most wheat flour, some yeast flakes etc etc) - take it in the natural form methyl B folate - however some people can't take methyl donors so may need folinic acid, (and also - rather than methylcobalamin B12, take hydroxo or adeno B12). Many people have a problem with the MTHFR gene, a polymorphism which reduces absorption of B vits up to 70% less, depending on which variant you have as some are more severe than others. Dr's who know about MTHFR think folic acid taken during pregnancy causes autism symptoms in those whose mothers took it.. I think it is very likely and also that it causes many neurological issues which get progressively worse... Just my opinion.
If anything, it would have to be under your tongue. But your statement is false. But it also depends on how long you have been deficient for. Many people inject daily. A b12 tablet would be useless. You only receive about 10% of b12 from a tablet.
sorry but not true whatever ‘studies’ you are referring to does not bear up witj many peoples personal testimonies, of which I have thousands, plus my own and doctors , the ones who DO know what they are talking about
I've got every symptom going of a b12 deficiency and my b12 levels are normal so my gp refused to believe its anything to do with my b12. I paid for an active b12 test because they wouldn't do it and I'm practically in the red. They still refused to believe my symptoms sre a b12 deficiency. I've left that surgery.
So i had been sick since more than 16 months. I go to doctors and they will just stick it to my hypothyroidism. Any way after one year i had blood in stool and they made a gastro and colonoscopy. They ended up saying that it's autoimmune gastritis which happens due to pernicious anemia. Anyway my doctor doesn't want to prescribe vitamin b 12 because my Vitamin b12 in blood tests is perfect. However when i read through i found that there are some cases that vitamin b12 deficiency remain unrecognisable and you continue having this horrible symptoms without getting a real diagnosis. My stomach is eating itself alife and the doctor doesn't want to prescribe vitamin b12 and he just says sorry i really don't know what is wrong with you
@@luzperez5251 well, I took one shot, I believe it made me better but as the vitamin B12 in blood is 800 pg/ml and the best normal range is from 200-300 for example, I am actually afraid to take it
From my understanding Nitrous Oxide (gas and air during labour) makes the B12 vitamin stop working in your body and actually makes B12 inactive in your body.
Mine is pernicious anemia and I do not feel better at all with a monthly shots - Two weeks out of the month I feel severe fatigue, nerve pain all over - they say they can do more shots, but it’s a temporary fix eventually the b12 will diminish again and all symptoms return.
@@shatteringthematrix6959 I’m just wondering how I developed this in my early 30’s - one neurologist said it could be genetic, but he couldn’t say 💯 percent it was genetic
Feels like my legs melting when walking or just standing. Cant jump or work or run. Have Balance issues also. My d level is is barely sufficient. I have always shielded myself from the sun😢 is this vitamin d deficiency symtoms
@@Ivonne_818 taking only antidepressiv medication now. It has replaced magnesium supplement. The doctors wont prescribe Mestinon:( i still feel like terrible weakness
![B12 Deficiency and Neurological Disease [Explained by Neurologist]](/img/1.gif)
So dumb, why wouldn't they run active b12 test anyway, my gosh we have to be our own researchers.
They told me I was anemic so to eat more red meat take vitamins
Yes we, need to learn medicine by somehow reading and researching, otherwise you know how they do
so true.
Likely, because the B12 tests for blood levels, but NOT absorption, or Active B12 utilized by your body. The Active/Absorption test costs more, therefore NOT done routinely.
Yeah if I did not know bettter, it almost seems like they intentionally keep info and care from us.
This happened to me.. within a weak . I told my family I was dying. Thank God for the quick responding ER team❤
I felt like I was dying too it's awful isn't it
How r you now ? Wanted to knw how long does it take to recover
Me also was in the hospital for 2 weeks and rehab to strengthen my legs for 2 weeks I'm still getting physical therapy
After eight months of tests and hospital/ doctor’s appointments, I start my B12 injections tomorrow. 🎉
Hi,how's it going?
I thought I was dying too, possibly experiencing signs of early ALS. My B12 readings were within the normal range, although at the lower end. My neurologist immediately started me on B-12 injections while he investigated other possibilities. I'm over 60 so one item I don't believe they mentioned here is it's not uncommon for our B-12 levels to drop as we age. Have your B-12 levels checked as part of your yearly physicals.
I am currently going through this right now
i barely survived 7 years of non diagnosis. Instead I was diagnosed with Intercranial Hypertension. My life has been saved after 5 months of heavy B12 supplements.
Please, How much b12 per day did you take to recover ??
@user-sk2fw8jq3m I recommend to take a supplement and get Injections at the b12 or another location that give injections
Those cereals are complete garbage, trust me. Those fortified additions don't do squat
i agree 100%....people taking b 12 supp. think tney are filling the gaps....but the human body takes in synthetic b12 vs meat? no way.....no way the human body says " ohhhh yayyy synthetic crap, i could use that very well" lol
GPs are failing us. My Level is incredibly low at 132 and basically told to bog off and get on with it.
get shots
GPs ARE failing us. I'm in the US and have not been able to get any help with this for 3 years now. I was diagnosed B12 deficient when I was 20 and took weekly injections and felt great. I've not been able to find anyone willing to test me and prescribe injections for over three years now.
I have every symptoms of deficiency including pins and needles in my hands, arms and feet, tinnitus, dizziness, crushing fatigue, memory issues, etc. I have 2 known autoimmune disorders and feel pretty sure I'm not producing intrinsic factor. I can no longer work and don't feel safe to drive due to the dizziness and brain fog. I have a staggering gait like I'm intoxicated. I am barely able to manage day to day functions at home. Most days I feel like I'm dying inch by inch.
It is a horrendous situation and there are SO many people out
there with this problem.
Doctors can’t/won’t help mostly
and if they do they get their wrists slapped regularly too.
I do my own injections
Are you self injecting?
Contact The Pernicious Anemia Society.
Google -B-12 USA
B-12 in your city
@@cynthiaadkins-zj9uthow are you now?
For 5 years I've had weird symptoms that seemed so unrelated. Dr's telling me I have an anxiety disorder. So I had to investigate myself.
After asking and demanding b12 levels.
For 5 years I've had episodes of palpitations, pins and needles in the hands and feet, time periods of severe fatigue. Stomach issues and get GI cleared me of my crohns being active. Glossitis, mouth ulcers and chelitis also a burning mouth. Weakness.
For years I've had Dr's call me a hypochondriac, depressed or anxious. And after pushing I finally have an answer. Excited to start seeing changes as I'm adding b12 supplements. My b12 isn't "low enough" to warrant a b12 shot. The Dr's haven't apologized or anything. The only Dr's that's stood up for me is my OB and osteopath.
did uou end up getting the injections if so how long did they take to work?
Hi,how's are u now?
This is very me, all the symptoms, also felt like dying.
I pay for private B12 shots because right now that's the only way I can feel better, the docs say my bloods show normal B12 levels. They need to test the active levels not the total levels.
It’s time doctors took vitamins and minerals seriously!
I have chills, confusion, barely can walk. Test results shows borderline. I was told to take b12 vitamin.I had the injection yesterday. I was feeling good.I took the vitamin b12 today and I am feeling the same pain as before
I understand that the best form is Methylcobalamin ... AVOID cyanocobalamin version.
I have all these symptoms and positive b12 defencency results but he said it's fine. No way it's b12 he said.
A Doctor is what you become when you can't do anything else, especially modern GPs
This is literally insane! I had it the same way. I did not want to say anything about it until a colleague of mine told me she wanted to drive her car straight into a rock!
Wow that was enlightening!
please mention all the people on a omnivore diet that are B12 deficient too. Another way to take B12 supplements is sublingual, which bypasses the digestive system for absoption and injections are not necessary
the sublinguals are ok but many people only find injections work if they nave an absorption issue, myself included
I was really taken by surprise a couple of years ago when my doctor phoned me and told me I was deficient in B12 because I do eat meat, a lot of it. But I had been getting pins and needles in my feet for about a year and I thought it was caused by something else, I'm in my seventies so I took little notice. My doctor finished up giving me six shots over six weeks. My digestive system has been damaged and that is the reason I had this problem.
@@Greylobster That's terrible. I'm glad you're better now.
@@Greylobster Oh yes, they're all gone.
did you experince any other symptoms such as dizziness, pins and needles in your legs and arms? i think i am b12 deficiency i have pins and needles constantly in my feet and dizziness and loss of balance. how long did it take for the injections to work for you?
@@ErinMason-x9b If I were you I'd see a doctor. There has to be a reason for those problems. I suppose the only other problem I had was tiredness.
@@toni4729 Yes i am going to the hospital tomorrow to get it checked out. How long did it take for the pins and needles to go away. ans also did you experince any numbness or damage?
Low b12 caused my body to have chills.
Did you get nausea too??
Same
@@Supernerdystrangeryou can get nausea,digestion issues, and many many other issues!
Same here noticed hair loss and premature gray hairs as well
I've never been so cold in my life. I didn't know I had very low B12 and couldn't understand the tiredness and coldness. My husband would sit there in a t-shirt and I had a t-shirt a track suit top and a thick cardigan on with a hot water bottle on my lap. Heating on full blast and stove lit. I'm having injections now and am doing better. 😊
What dosage of B12 were you taking and how often? 0:47
Another indication is to check mcv and hcv after blood test and see if the red blood cells are of normal size or not.
The doctor sounds like Winnie the Pooh
I have B12 injections every 3 months and I don't feel any better. I have fibromyalgia and am so tired all the time. The injections don't make any difference but my GP said I should still keep having them because of how B12 is needed for so many other things going on in my body.
Have u checked ur vitamin D3 I wasn't tired I was exhausted! I had to sleep all day every day my D level was 18 and I feel way better now
Ask your GP about the different types of B12. Cyan, methyl, hydroxycobalamine. Each person might need a certain type.❤
Some people need daily or every other day B12 injections. Fibromyalgia is just a set of symptoms, not a diagnosis. Many people are "misdiagnosed' with fibromyalgia but actually improve greatly with regular B12 injections. it may take a year or longer of B12 daily or every other day injections to get better.
@@catherineweber9039 very true!
It is very, very important to also take all of the B complex vitamins when getting B 12 shots. You need all of the B vitamins to work together. Ask your doctor about methylocobalamin B12 as well.
I'm not vegetation or vegan and I've just been diagnosed with b12 deficiency
My great grandmother suffered with anaemia
Mine could be due to that or suffering with anorexia at the age of 20
I've collapsed a coupleoc times my son was crying over me as he found me on one occasion
Feeling tried aching you name it
I ended up having blood test and they found out I'm now on folic acid tablets for 3 months
I've been this way for years since about the age of 39 I'm now 45 I've just found out
folic acid is also synthetic ,
you need folate.
B12 and folate go hand in hand.
Have a read of Stuart and Sally Patcholok book ‘Could it be B12’
folic acid supplements can make B9 deficiency worse - which causes B12 issues. I use methylfolate only. Folinic acid would be the next best option for supplements I think.
Never take folic acid, it makes things worse, sadly drs do not know or agree, they're just not educated about it, but you must avoid it and all food fortified with it (eg, most wheat flour, some yeast flakes etc etc) - take it in the natural form methyl B folate - however some people can't take methyl donors so may need folinic acid, (and also - rather than methylcobalamin B12, take hydroxo or adeno B12). Many people have a problem with the MTHFR gene, a polymorphism which reduces absorption of B vits up to 70% less, depending on which variant you have as some are more severe than others. Dr's who know about MTHFR think folic acid taken during pregnancy causes autism symptoms in those whose mothers took it.. I think it is very likely and also that it causes many neurological issues which get progressively worse... Just my opinion.
you can also put a B12 on your tongue and let dissolve. this in studies have been found more effective then B12 shots.
If anything, it would have to be under your tongue.
But your statement is false. But it also depends on how long you have been deficient for.
Many people inject daily. A b12 tablet would be useless.
You only receive about 10% of b12 from a tablet.
@@binathere2574 statement is not false. It was in a study that found putting the B12 on the tongue was better. look it up.
I'm on that kind of pill. Under the tongue. It's written sublingual on the pocket.
That is only true for regular b12 deficiency, but not pernicious patients
sorry but not true whatever ‘studies’ you are referring to does not bear up witj many peoples personal testimonies, of which I have thousands, plus my own and doctors , the ones who DO know what they are talking about
I've got every symptom going of a b12 deficiency and my b12 levels are normal so my gp refused to believe its anything to do with my b12. I paid for an active b12 test because they wouldn't do it and I'm practically in the red. They still refused to believe my symptoms sre a b12 deficiency. I've left that surgery.
So i had been sick since more than 16 months. I go to doctors and they will just stick it to my hypothyroidism. Any way after one year i had blood in stool and they made a gastro and colonoscopy. They ended up saying that it's autoimmune gastritis which happens due to pernicious anemia. Anyway my doctor doesn't want to prescribe vitamin b 12 because my Vitamin b12 in blood tests is perfect. However when i read through i found that there are some cases that vitamin b12 deficiency remain unrecognisable and you continue having this horrible symptoms without getting a real diagnosis. My stomach is eating itself alife and the doctor doesn't want to prescribe vitamin b12 and he just says sorry i really don't know what is wrong with you
Did you take b12 and started feeling better
@@luzperez5251 well, I took one shot, I believe it made me better but as the vitamin B12 in blood is 800 pg/ml and the best normal range is from 200-300 for example, I am actually afraid to take it
Sublingual methylcobalamin would work better than just eatting more foods with b 12 so to pass the digestive system and get straight to your blood
I thought I had low sugar but it's anemia and my dr thinks I'm b 12 deficient. Getting another lab done
May I ask your symptoms
@flowers3036 umm good question I don't fully remember
ok wait. at 2:20 ish she mentions having so many hours of nitrous oxide.. huh? what is that about? pls and TU
From my understanding Nitrous Oxide (gas and air during labour) makes the B12 vitamin stop working in your body and actually makes B12 inactive in your body.
I thought she said during pregnancy?
Yes, nitrous oxide cancels B12
My theory- the cause of postpartum depression.
Mine is pernicious anemia and I do not feel better at all with a monthly shots -
Two weeks out of the month I feel severe fatigue, nerve pain all over - they say they can do more shots, but it’s a temporary fix eventually the b12 will diminish again and all symptoms return.
B6 and B9 active forms are required for B12. You might also want to look at copper deficiency symptoms as they mimic B12. Also B1.
@@shatteringthematrix6959 I’m just wondering how I developed this in my early 30’s - one neurologist said it could be genetic, but he couldn’t say 💯 percent it was genetic
For some people, the early 30s is when the symptoms start developing
Here i was 15 when i got symptoms😢 @@ditavalerio615
What about intermittent fasting. I heard that can help
Antidepressant such as Sertraline deplete B12.
Seems a lot of drugs do. Must be due to the serotonin function within the nerves?
This was me
Are you still taking b12
im neither vegan or veggie iv just been diagnosed
Done a vitamin dna swab test and not surprised am low in b12 I knew I would be and also vitamin d
Feels like my legs melting when walking or just standing. Cant jump or work or run. Have Balance issues also. My d level is is barely sufficient. I have always shielded myself from the sun😢 is this vitamin d deficiency symtoms
Have you seen improvements if you are taking supplements?
@@Ivonne_818 taking only antidepressiv medication now. It has replaced magnesium supplement. The doctors wont prescribe Mestinon:( i still feel like terrible weakness
What’s considered low enough to feel symptoms?
@@neith7308 I was 270 and took first shot. I have three monthly scheduled
Many people will test with in normal range but have many symptoms. Always go by symptoms not numbers
@@binathere2574 yea. Thanks . My level was border so I’m doing shots
My levels are at 406 and I feel severe neurological symptoms I'm literally dying
What should level be and what is low
Lovely affects of Alcohol. Dying brain cells??
This is me.
Funny enough my mums bloods came back with B13 deficiency
Hope your getting the care you need
You don't have blonde hair in the video.
@@sudhakar7889think she means that the lady’s symptoms are similar to hers
@@James-b7p2k oh okay. I got it.
Is she still taking the b12 or was it just once?
i don't think b 12 defeciency can just go away
i hv this problem in during pregnancy 😢
Too bad Drs are like 🙈 🙉 🙊 Definitely not something Drs want to look at
the majority no
Vegans :)))))))))))))