God, I just really want to talk to Jake over the phone/FaceTime. I have CF and I we have a lot in common. Is there’s any way to message or get in direct contact with him?
@40:24 Dude, they’re looking into gene editing and and stem cells. And drugs that help this new drug. This disease won’t be the same for the babies coming up. True dat!
Really good interview and I’m happy to hear jakes life is getting better after trifecta, God bless
great job JAKE! i have CF and am 47 years old. CF will never defeat us! thanks to prayer and medicine life will continue for us!
Orkambi made my weight blow up! I do believe I lost some function. It’s a trade off.
I know jake I’m heart broken 😔 that he’s Going growing Though this pan and he’s a great guy
And god Bless
God, I just really want to talk to Jake over the phone/FaceTime. I have CF and I we have a lot in common. Is there’s any way to message or get in direct contact with him?
@40:24 Dude, they’re looking into gene editing and and stem cells. And drugs that help this new drug. This disease won’t be the same for the babies coming up. True dat!
My wife has Burkholderia cepacia the worst one to have