Internships, Housing, Caregivers: Talking to Rachel--Adult with Severe (Level 4) Cerebral Palsy #4
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- Опубликовано: 31 янв 2023
- I am so excited for you to meet Rachel. She is a 30-year-old with Level 4 Cerebral Palsy (CP) on the Gross Motor Function Classification System. She has quadriplegia with an athetoid component, with significant physical involvement in her arms, legs, and trunk. She needs assistance for bed mobility. She needs to be spotted closely to sit and typically has support. She needs at least her hands held to stand. She can walk short distances with trunk support or in a supportive walker with assistance. She uses a power wheelchair for daily mobility. She had repeated eye and hip orthopedic surgeries. She did not have a rhizotomy or other tone-modifying surgery. She is quite intelligent and delightful. She has a graduate degree in social work and looking for employment in clinical social work so she can help people like her. She lives with her family. I was her physical therapist in her teen years and early 20s. This interview is broken up into 10-15 minute segments.
If you have difficulty understanding her speech, turn on the closed captions. They are accurate.
Watch her playlist for future segments.
• Interview with Rachel ...
My website is www.pediatricPTexercises.com My Facebook page is Pediatric Physical Therapy Exercises. Do not hesitate to contact me at amysturkey@gmail.com with questions, concerns, or favorable reviews! Please note I am unable to provide treatment recommendations for a child I have not personally evaluated.
I also have 6 children's educational books addressing Autism, Down Syndrome, Cerebral Palsy, Attention Deficit Hyperactivity Disorder, Anxiety, and Encopresis and Enuresis. I now also have 3 professional books "Pediatric Physical Therapy Exercises for the Hips," "Pediatric Physical Therapy Exercises for the Knees, and "Pediatric Physical Therapy Exercises for the Ankles." If you have questions or suggestions, feel free to contact me at amysturkey@gmail.com. Please note: I cannot provide treatment suggestions for a child I have not personally evaluated.
I am so honored to have people from all over the world watch my videos. I have reviewed and corrected the closed captions for this video so that you might understand what I am saying even if you don't speak English. I hope the directions below are helpful to you.
To turn on Captions, click CC in the bottom or top right corner of the video
To choose a different caption language:
At the bottom right, click Settings. It looks like a wheel.
Click Subtitles/CC.
Select a language.
If the language isn't listed when you click Subtitles/CC:
Click Auto-translate.
Select a language.
Of course, if the captions are in the way of viewing the details in the video, you can always turn them off in the bottom or top right-hand corner of your video screen.
Here are the links for my books on Amazon:
"P is for Poop and Pee Accidents"
www.amazon.com/dp/B0BLSRJ483
"A is for Anxiety"
www.amazon.com/dp/B09LXQ3W6V
"A is for Attention Deficit Hyperactivity Disorder"
www.amazon.com/dp/B08QH9H5HR
"C is for Cerebral Palsy"
www.amazon.com/dp/B088TSJCYP
"D is for Down Syndrome"
www.amazon.com/dp/B079P8HH49
"A is for Autism"
www.amazon.com/dp/B071F4FFTB
"Pediatric Physical Therapy Strengthening Exercises for the Hips"
www.amazon.com/dp/0998156736
"Pediatric Physical Therapy Strengthening Exercises for the Knees"
www.amazon.com/dp/0998156760
"Pediatric Physical Therapy Strengthening Exercises for the Ankles"
www.amazon.com/dp/B08TX2ZCFD
she is amazing, true hero
Totally agree
I watched Rachel's videos and i really would love to know her. Shes very intelligent and so inspiring. Everything she's been through everything she's dealt with, i said it before and I'll say it again, i can only wish to have her strength and integrity. Such an amazing person. And for people to take advantage of people with a disability, or anyone for that matter is revolting. Its so sad that she had to deal with that and im glad it was able to be prevented. You're an amazing person Rachel. And I truly hope the best for you!
I am so happy you found her videos. She articulates so well her experiences
I tried getting a job at Liberty Resources, and they told me that I was overqualified! I wanted to work for a news station, but they said that I didn't have enough experience. So, I utilize my journalism skills making informative videos on TikTok and RUclips.
Best of luck to you!
Rachel, I worked in a group home in my county for 3 evenings. I witnessed degrading humiliating treatment of the residents there. About 2 hours into my first night there, I saw the guy in charge pick up a resident from his wheelchair and throw him onto a couch and yell some insults at him. I made equally demeaning remarks to the guy in charge about him being severely obese. From that point on , I was gathering evidence. I thought the regional manager would jump on this. There were four male residents in the house and all four had serious issues including mental health, physical disability, intellectual problems and behavior problems. I really couldn’t believe the incidents that I saw. I never treated anyone like that and I worked at a state prison for 24 years. If I had done anything like that, I would expect to be terminated from state employment real quickly. After I made my report and handed it to the regional manager, he informed me that the house manager reported that I threatened to assault one of the residents and I wouldn’t be working there any longer. I guess it was treating them like human beings was the problem. I actually tried to interact with them and not just sit around and watch tv all night.
Rachel, DO NOT go to a group home. You will be sorry. What ever you have to do is what you have to do to not go there. I guarantee you that the residents are still being abused on a daily basis. I tried to stop it but was stopped in my tracks immediately.
I am so sorry to read this. Thank you for posting it. I do believe this behavior happens in some group homes but not all. I think it is critical to be very careful in choosing homes. But all are not bad. I have heard similar stories so I know it does happen
Hello again Rachel and Amy! I am following your every video. As a paraeducator for a 7-year old boy with quadriplegic spastic cerebral palsy in the general education classroom, I gain valuable insights from you both on how to help my student succeed and become as independent as possible. Learning from you both I have been able to get my student the proper walker, wheelchair and stander for his good postural support. My student is in 1st grade and currently being trained in eyegaze. He has some use of his right hand and struggles to talk. As his para, I help him by interpeting his speech and scribe most of his writing for him. How were you able to write and show your knowledge, Rachel, when you were in grades 1-12?
I'll ask her.
She had a reader and scribe accommodation in elementary and middle school. In high school, her aide performed these functions. In college, she had accommodation with her caregiver through disability services. In college, she had acccommadations to go to testing centers to take tests so her tests could be read out loud.
Thank you for your reply! Much appreciated.
@@deborahuhrina6881 You are welcome
What's the name of her case diagnosis ?? cause I have a two years daughter who had a (Brain atrophy),
And I Whant to know if my daughter ever can speaks or understand..??
Her diagnosis is Quadriplegic Cerebral Palsy
Rachel has severe involvement due to cerebral palsy. Make sure with your daughter you talk to her as much as possible. You can explore using gestures to communicate, eye gaze to make choices or touching pictures on a communication app to allow her some communication
What kind of walker does she uses?
I’ll ask her
Movita
❤
She is so good, isn’t she.
其實腦麻是人的大腦中樞神經系統受損及失調，所以差異性大小不同佷大咩！
你是對的
@@pediatricPTexercises 我喜歡主持人和來賓的互動。有一分事實說一分話的正能量用心態度！
感謝您的客氣話。 我希望我們對彼此的感染會顯示出來
please dont called her a hero, you should treat me them like normal people, she will be more happy if you spoke with her normally rather than called her a true hero.
Ok, she is a normal person who is incredibly driven, smart, charismatic, and very fun