How People Treat Rachel, An Adult with GMFCS Level 4 Cerebral Palsy-The Good, Bad, and the Ugly: #3
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- Опубликовано: 6 сен 2024
- I am so excited for you to meet Rachel. She is a 30-year-old with Level 4 Cerebral Palsy (CP) on the Gross Motor Function Classification System. She has quadriplegia with an athetoid component, with significant physical involvement in her arms, legs, and trunk. She needs assistance for bed mobility. She needs to be spotted closely to sit and typically has support. She needs at least her hands held to stand. She can walk short distances with trunk support or in a supportive walker with assistance. She uses a power wheelchair for daily mobility. She had repeated eye and hip orthopedic surgeries. She did not have a rhizotomy or other tone-modifying surgery. She is quite intelligent and delightful. She has a graduate degree in social work and looking for employment in clinical social work so she can help people like her. She lives with her family. I was her physical therapist in her teen years and early 20s. This interview is broken up into 10-15 minute segments.
If you have difficulty understanding her speech, turn on the closed captions. They are accurate.
Watch her playlist for future segments.
• Interview with Rachel ...
My website is www.pediatricPTexercises.com My Facebook page is Pediatric Physical Therapy Exercises. Do not hesitate to contact me at amysturkey@gmail.com with questions, concerns, or favorable reviews! Please note I am unable to provide treatment recommendations for a child I have not personally evaluated.
I also have 6 children's educational books addressing Autism, Down Syndrome, Cerebral Palsy, Attention Deficit Hyperactivity Disorder, Anxiety, and Encopresis and Enuresis. I now also have 3 professional books "Pediatric Physical Therapy Exercises for the Hips," "Pediatric Physical Therapy Exercises for the Knees, and "Pediatric Physical Therapy Exercises for the Ankles." If you have questions or suggestions, feel free to contact me at amysturkey@gmail.com. Please note: I cannot provide treatment suggestions for a child I have not personally evaluated.
I am so honored to have people from all over the world watch my videos. I have reviewed and corrected the closed captions for this video so that you might understand what I am saying even if you don't speak English. I hope the directions below are helpful to you.
To turn on Captions, click CC in the bottom or top right corner of the video
To choose a different caption language:
At the bottom right, click Settings. It looks like a wheel.
Click Subtitles/CC.
Select a language.
If the language isn't listed when you click Subtitles/CC:
Click Auto-translate.
Select a language.
Of course, if the captions are in the way of viewing the details in the video, you can always turn them off in the bottom or top right-hand corner of your video screen.
Here are the links for my books on Amazon:
"P is for Poop and Pee Accidents"
www.amazon.com...
"A is for Anxiety"
www.amazon.com...
"A is for Attention Deficit Hyperactivity Disorder"
www.amazon.com...
"C is for Cerebral Palsy"
www.amazon.com...
"D is for Down Syndrome"
www.amazon.com...
"A is for Autism"
www.amazon.com...
"Pediatric Physical Therapy Strengthening Exercises for the Hips"
www.amazon.com...
"Pediatric Physical Therapy Strengthening Exercises for the Knees"
www.amazon.com/...
"Pediatric Physical Therapy Strengthening Exercises for the Ankles"
www.amazon.com...
Loved this series both of you! Rachel I’m a powerchair user and can relate to the being patted on the head, spoken to loudly and hugged when you don’t expect it.. why oh why they always hug me on the same side as my joystick which can propel me forward and proceed to nearly run them over. “Can I give you a hug?” Followed by “which side is best?” At least it gives you time to think about it. The intelligence thing I can also relate to. I find it very frustrating when I’m out with a friend and people will talk to my friend before they talk to me as if that person is my care giver!
Wonderful comments. Thank you
I agree with that. I have only met a few people like me who do have the same intelligence as mine. It's very frustrating when people want to put all people with CP in one box but that isn't the case.
Hopefully this video is a step in changing that perception
Hi Amy thanks a lot for introducing us to what a person with CP would think and find annoying. It is really helpful in many ways. One request, can you please include Racheal's mom experiences on how and when she stepped up the therapy? Or realised that Racheal is best comfortable with any particular thing. It will help parents in a big way.
Thank you for that encouragement. I think Rachael’s parents are considering being interviewed.
I believe one of the best ways to help a child with cerebral palsy is to get testimonies from adults like Rachel about what works or what is best and, of course, watch Amy's videos! In future episodes, can Rachel talk about best practices in the classroom and what accomodations help the child with CP with their learning. I am a paraeducator for a child with spastic quadriplegic CP in the general education class and I want to help him the best I can so he, too, can go to college someday. Thank you, ladies, for all your insight!
You are so welcome. I will keep a list of requested topics in case Rachel and I do more videos
Great interview. Thank you.
You are so welcome
Rachel I think that is fantastic advice to look at caregiver who is talking to someone who doesn’t have any communication to see how they interact with that person with knock much communication as they might be as clever as you but Night have no speech
Agreed. Fantastic advice!
@@pediatricPTexercises are you doing any more videos with Rachel
@@kennethfletcher1157 Yes there will be a total of 7
Really enjoy watching your videos of you interviewing Rachel@@pediatricPTexercises
@@kennethfletcher1157 That makes me so happy. Thank you
This is a very good series of videos, thank you. I hope this question comes across the right way (I work as a part-time assistant with someone with spastic quad CP) but does Rachel have to deal with incontinence and wear a brief or diaper? I heard that can be an issue with people with spastic quad CP from time to time.
I spoke to Rachel. She said if you provided contact information, she would be willing to answer your questions directly
@@pediatricPTexercises (edited) Thank you. I sent my contact information through your website. Thank you very much for everything!
@@netamisakima Sorry. My email address is in the description of this video. Glad you found a way to contact me.
Hi! Do you have some videos about asymmetrical posture at babies? Pls🙏
Well, sort of. I have these videos on Torticollis.
ruclips.net/p/PLAkJbMrHyKjOS1oT3rtE8PzHf_KL-dAz9
Real structure
Not sure I understand your comment