PPPD: My journey so far (symptoms, struggles and wins)
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- Опубликовано: 18 сен 2024
- Instagram: Conscioushealing101
Website: consciousheali...
For 1-1 coaching: bookconscioush...
Time stamps:
1:52 - Symptoms
10:11 - Treatment
Hi guys!
I know this is different from my usual videos!
I feel quite vulnerable sharing this.
This is my story in a nutshell... of course there is a LOT more I need to say and I will make other videos, but I wanted to keep this video short.
I hope this will be helpful to those of you in the beginnings of PPPD, or even the middle! You are NOT alone.
I know I make some jokes and I seem pretty lighthearted, but honestly It’s so I don’t slip back into the darkness of it all. I don’t let PPPD define me anymore! So I have my personality back.
I try my best to keep on visualising my future and to be grateful for where I am today, even though I am not fully ‘recovered’.
I’ve come SO far since the beginning and I’ve learned so much about myself along the way. Mainly I’ve learned just how resilient my body is! I’ve had so many good days in the last few months which has been amazing.
I’d say that on the good days I’m 80-85% recovered, and the bad days can dip back to 30%, but not for long! :)
Like I said in the video, please do ask any questions and I’ll get back to you :)
P.S sorry for the light changes I kept wanting to add things. 😅
Other helpful links:
/ @sensingground
/ @balanceyourlifenow1651
#PPPD #PPPDrecovery
My heart goes out to anyone who has been dealing with this I have for 11 months and anyone who has this or experiences these symptoms you will know I’m not being dramatic when I say it has been the worst experience of my life. To anyone who has these symptoms I’m sending you all a virtual hug. It’s so nice to read these comments watch videos like this because when I’ve explained these symptoms to doctors at first friends or family it so sad how dismissed people can be with people who are dealing with an invisible illness.
Lots of love ♥️♥️♥️ you have support here!
@@Megan_Jennifer thank you I appreciate it ❤️❤️
I just want to say Hi... I’m living with PPPD since January and I understand so well your journey ... I already feel better and I think the Rocksteady book helped me a lot . I started to do body scans , meditation and some yoga everyday and I’m already feeling much better even if it’s still there 24/7 . I was not able to walk normally anymore for months but now I can do a small hike and I drive again for 2 months ...
And Music helped me a lot too . Thanks for sharing your journey with PPPD .
Take care ...
That’s so great to hear! ☺️💪🏼 I hope it continues to go well for you
How are you now?
After 11 months of struggling with PPPD I'm actually finally have gotten to the point where I have more good days than bad and/or mediocre days than before! Even though my symptoms are still 24/7, I'm thankfully doing so much better. I'm finally living my life, even though I don't feel 100% "normal" yet and I'm also have relaps from time to time, but they don't last as long as they used to. Guys, we can do this! Thank you very much Megan for your videos that were and still are very helphul to this day! Really appreciate it!
You have how idea how happy this makes me!!
Well done 🙌🏼 don’t give up you got this 😊😊😊
My ear fullness and tightness in my ears and face which I believe is head pressures is what’s really holding me back from moving forward to feeling confident and some what safe in myself to get in the car to drive or to just walk down my street without fearing the worst… it was great to watch this to know I’m not alone and this condition is real and what I’m experiencing each day someone else is or did too
How are u
Thank you for sharing your experience. I’m an emergency medicine physician and began this battle in 2013. It has taken many years and a lot of work to get control of my symptoms. I know there are a lot of patients out there who are frustrated and not getting any answers as this is a very difficult diagnosis to make. Keep up the good work!
I’m really glad you have more control over your symptoms!😊
I’ve had this since December last year. It’s so awful I never thought I would find something so relatable. I’ve been so worried about what it could be and no one can find anything “wrong”. Wondering what’s wrong with me as I knew inside me that something was wrong but everyone just telling me that it’s in my head ! I can’t even describe how amazing it is to find this as every single thing you are saying is what I have been experiencing even down to the randomly waking up with vertigo and the dizzy eyes feeling. Its a feeling people would say to me well what do you feel and it’s like dizziness but I can’t explain because it’s not like I’m gonna fall over all the time it’s an unexplainable just heavy head woozy dizzy feeling in my head and no one can understand what I mean! I would explain it like I feel like I have cotton wool in my brain/head. And don’t even get me started on looking to the side in the mirror when doing my hair 😂. My eyes are so tired all the time and I feel like I have no energy. The only thing that helps me is wearing my glasses (even though my eyesight is not bad at all just distance and it’s actually improved) but it would lessen the dizzy sore eyes feeling but not make it go away. I would love to know more about how you got diagnosed and how you started on treatment. Any help is really appreciated xx
Hey!👋🏼 Yes I relate to everything you just said!!! I know it’s so frustrating when you can’t quite explain it to anyone. I’m so glad you found this video helpful. I promise you nothing is seriously wrong with you. But if you haven’t yet had medical clearance, I recommend you see a functional neurologist. He’s the one who diagnosed PPPD. Since it’s a functional issue (nervous system stuff). It sounds like you have what I have! I highly recommend you look into neuroplasticity ♥️ that’s what’s really helped me the most. It is NOT in your head. What you’re feeling is real, but it’s safe. There are some signalling errors in the brain! But they can be rectified. Your healthy neurons are just firing in a dizzy pattern, so you need to strengthen the stable pathways, which are still there!
@@Megan_Jennifer hey! Ah thank u for replying so quickly. I was seeing an ENT lady in April/May and she mentioned to me about possible vestibular migraine and that she was going to refer me to a neurologist. However for some reason the appointments just stopped. I have made an appointment to see her on Tuesday and I think I might mention PPPD to her as I hadn’t heard of it when I was seeing her before. I’m definitely feeling very positive about it now tho as it finally seems like I can actually label it as something and not have it be “in my head”! Literally everything you said like the heartbeat I completely know what you mean I feel like it’s vibrating my whole body. And I would also cry myself to sleep so often as the dizziness when lying down to go to sleep was so awful to bear I’d be up for hours just crying. I’d love to talk further (u don’t have to if u don’t want to obviously) as I just would love to know more and it’s so great to find someone who understands. If u want to u can dm me my insta is @miacurtisfox , again u don’t have to and thank you so much for this video it’s really helped me so much u have no idea 🙏
mia fox yes the heartbeat thing is so annoying! It vibrates my body too... but I find that if I’m laying down and someone is rubbing my foot for example, I don’t feel the symptoms that much! I messaged you on Instagram
@@miacurtisfox How are you ?
I’ve had this for almost 6 years and have never gotten a diagnosis. I did vestibular treatment for a bit but it didn’t really help (I’m going to commit to doing it more often now). It’s so good to see that other people are actually experiencing this unexplained disorder. I hope I’m on the path to recovery now!
Wow that’s a long time without knowing what’s going on! Hopefully now you have answers you can work on healing! It’s 100% possible :) hang in there
How are you ?
i've had this for almost a year now, started last january 2021. all of your symptoms was similar to mine, it did got better last ber months but now the symptoms came back. i still try my best to distract and alleviate my symptoms tho, but ofc it isn't really easy. i might try to do a video to support other people out there with the same condition, thank you for sharing yours!!
The fact that it got better shows you that it can fully go away! ☺️ you got this 💪🏼
DUDE the heartbeat rocking is so hard to explain. You nailed it. I have all of those symptoms. Just started vision therapy which apparently helps, wish me luck. Also good luck to you!!
It’s just a bizarre thing isn’t it!? The thing that’s helped me with that is to just lay down still and really focus on my legs. Feel how still they are... focusing on my breathing and eventually I can tune out of my heartbeat and I don’t feel the rocking as much. Good luck 😊
@@Megan_Jennifer thanks so much! One more q: did you also do vision therapy? If so did you find it helpful?
P C I am doing VRT which includes vision tracking exercises. I haven’t noticed any difference yet but I haven’t been doing it that long!!
@@Megan_Jennifer neither hopefully it helps is both!! Have you had much luck with vitamins? I hear B2 is helpful. Hope you don't mind all the q's i'm just deep in the PPPD hole and it's nice to have someone to chat to about it
P C of course I don’t mind! And I do take vitamins but I don’t think they’re going to be the cure haha. I think its just good to give the body what it needs, Especially because stress strips the body of important stuff like magnesium etc
Im struggling with this shit since Okt 13, 2020! 3,5 years now! I can’t even believe myself that it’s been so long and it still there, even though it’s also have gotten better. I’m taking medication which might be responsible for dizziness as well but I’m trying to replace them through different ones. It’s PPPD together with other causes my medician concluded. One of the worst things being in this situation is realizing that some people in your environment don’t believe you Aare experiencing this and don’t take you seriously. Thank you Megan for sharing. It also gives me hope, that I will be normal some day again ❤🤗
I’m so sorry it’s been so long! I was the same… it was over 4 years before I recovered.
You’re definitely not stuck this way!!
You're super brave talking about this! So happy that things have improved compared to where you were last year and I really hope they continue to get better 😊
Thank you! That’s so sweet ☺️
Hi Megan another severe PPPD sufferer. I’m reaching out as I am struggling so badly. I have convinced myself it’s not PPPD it’s something else that no one has. Quite a few of your symptoms resonate with me so was after some advice.
My symptoms list
Head feels so heavy like a ton weight and every time I move it I feel like I’m being pulled or pushed or falling feeling
I’ve got 24/7 boat feelings
Floor bouncing a big one if I stand I feel like I’m going down in an elevator or rising up on a plane in fact I feel like I’m in turbulence a lot.
I get the rocking pulsing in back of head which makes me rock and my vision to go shaky.
I get whooshing pulse in right ear
The bouncy feelings worse if standing on one leg
Lots of pulling and pushing feelings.
I get this electrical buzzing feeling in head a lot and when I get a severe off balance pushing feeling out of nowhere it’s like my sinus unblocks in my head.
Had loads of tests MRI, ENT TESTS, audiology tests, blood tests, neuro tests but can’t find anything wrong.
Does this sound like PPPD? I’ve had this meaty 18 months and it’s going worse. I’m scared coz head feels so heavy and like I’m going to tip over all the time.
that's exactly me please megan answer this
Where was this video a few years ago when it was needed! So thankfull you post stuff like this! Bless you!
So glad you found it helpful ♥️♥️
Thank you for sharing. I had vertigo (vestibular migraine) with all the symptoms you mentioned. I did take the medication for depression and anxiety. This worked and have no more vertigo. Some times I do have a feeling of a bubble in my head but it goes away after a few hours. PPPD is horrible.
Crazy how the symptoms went away with anxiety meds! Just shows how anxiety and stress is basically the culprit. So glad it helped you! It really is horrible...
@@Megan_Jennifer It all came because of stress and anxiety. Nothing wrong in my body. All wrong in my emotions
I just got the Rock Steady book! I love it so far. I feel like you explained everything I have and I am so glad i found you! So proud of how far you’ve come:) Mine started in March of this year
Also did you ever have brain fog??
Hey! Aw I’m so glad you found it helpful 🙏🏼 the rock steady book is fabulous. Good luck!! Thank you so much 😘 I’m proud of me too 😇 don’t forget to be proud of yourself too. Also YES! Lots of brain fog, by brain fog I mean like my head physically feeling foggy and woozy and stuff.
I can resonate with the symptoms you listed especially the eyes feeling unsteady and feeling a bowling ball in the head. I hope you’re doing even better now, I can’t imagine how exhausting it must be having PPPD for 2.5 years. I’m about 4 months in and also feeling better than when it started. And it’s definitely not a linear process either. Wishing us to recover
Yeah having it for this long has been crazy... but I’m definitely feeling better thank you ! ☺️
@@Megan_Jennifer By the way, have you tried MBSR as suggested by The Steady Coach?
Elena MBSR? What’s that?
I had this is 2015 and it went away after a few months but now it's returned with avengence. Laying in bed feeling like I'm on a boat and my legs sink into the bed. Sitting in a chair is horrible because I can never feel still. I was starting to have a little hope until yesterday I had a huge panic attack which completely threw me back to square one. So now I'm just glad that there are people like you who make the world feel less lonely.
I’m so sorry to hear you’re going through this! It does get so much better❤ I consider myself recovered now 😊
I went to my Dr who has put me on Propranolol for my panic attacks then I've been having lately because of my symptoms and in two weeks time I'll be having a blood test (which I'm wary of). Today was tough because I never have time to relax since I'm a carer and the pressure/spacey feeling in my head makes me feel like I'm going to faint at any moment I haven't though. Still no MRI though (I've asked several doctors who have all told me since I had this years ago and it went away they don't believe it's anything sinister)and I can't afford to go private.
@@HorrorGirlNatsorry that your doctor won’t take you seriously. Can you ask for another doctor?
@@Megan_Jennifer I've been to three and also A&E but all have said my symptoms don't point to anything sinister since I passed all the physical, sight, hearing tests and that it's been over three months. I have moments were I feel like wow it's almost gone but then when I overthink about it more and more symptoms come along. Hate the head rushes/pressure the most incase I suddenly pass out but luckily I haven't. Also laying in bed trying to sleep but feel like I'm either sinking or floating.
@@HorrorGirlNat well, you have to remember that they won’t let you leave if they think you’re dying!
I relate to every single symptom!! I also have this problem where my vision looks like a fast moving 4K camera and sometimes jolts. Also, when I get lightheaded or if I were to smoke and get lightheaded, I would feel myself come out of my body completely and my vision slow down but speed up at the same tome and I would be floating and now when people smoke or vape next to me I have a panic attack bc of the smell I’m scared that if I inhale it it will worsen my derealisation and make me extremely lightheaded and I’m scared to go skl or outside bc I get that horrible lightheaded floating out of body feeling and I feel like I’m high and there’s a pressure pushing my body to one side and I always feel like o wouod feel better if I wore sunglasses
Damn the 4k thing hit home same thing
This is a really powerful video Meg
Thanks Ollie ♥️
Hi, I'm from Brazil and I'm very relieved to see your report. I have been suffering from dizziness since late 2020, around that time I had a very big emotional breakdown caused by my severe anxiety, hypochondria and OCD. I had a slight improvement in 2021 but my mood started to drop. this year the dizziness became very intense, I have all the symptoms you have, and also some very strange symptoms, there are times when I think my body will shut down, or a feeling of not feeling my body. I take anxiolytics and since I doubled the dosage the dizziness has subsided, I started doing acupuncture too, which helped a lot, but I still suffer from dizziness. there are days when it is impossible to get out of bed even medicated. here in Brazil we have good neurologists but PPPD is still something very new for our health system, practically all the labels are for labyrinthitis. I haven't confirmed anything about my dizziness, so far all the doctors say it's emotional. I'm getting more and more depressed because I'm getting "limited" in my activities because of the symptoms. I would love to see more videos of you talking about your experiences, it helps me a lot. Thanks Megan🙏
I’m sorry to hear that you are suffering!I have 3 other videos that might help you! Definitely check those out😊
How are you?
@@Megan_Jennifer does your hand shake a little from anxiety?
@@sherriquest414 yes it used to do that a lot actually! Sometimes I felt really shaky like I hadn’t eaten enough
Thank you for sharing. Only those who suffer the same will understand. I am one of those
Thank you so much for this video. I’ve had this for 4 months, and I had no idea whats going on.
My pleasure☺️ now hopefully you can start healing right away!
Is there any way I can email you? I have been dealing with this for 2.5 years. I feel validated with hearing someone who understands. I am amazed.
@@Megan_Jennifer omg thank you. I will email you tonight. It would be so amazing to talk to someone who understands. Thank you talk soon!!
Thankyoueagan thats me along with injury to neck lower back and front and ribs diagram and tbi. Following your journey as i to diagnosed pppd "walk on water" is how i tried explaining but ppl just didnt understand. Its expensive to get a vestibular dr and eye dr insurance wont pay even though we were tbone and insured for things like this i have suffered since i awoke from acciden 2019 and still do pandemic has been challenging as well cause no driverslicens no money and just my sweetheart whom is also very injuried. I so hope pppd ends for you and all whom are going thru this.
So sorry to hear! But it IS possible to train your brain out of it ☺️ the RUclips channel ‘the steady coach’ has amazing free resources !!
Thanks for sharing your experience with pppd, I’ve had it for 3 years, just when I think I get it I’m improving some what and I have hope I’ve recently had covid and it’s made me feel like I’m back at square one! It’s really inflamed my ear fullness to the max! But I hope that it will settle with time…
Yes covid made my symptoms unbearable for 2 weeks but then went away again!
I have some of your symptoms, I'm dizzy 24/7, can't even do my usual routine, I feel dizzy when walking,feels like I'm drunk, I have some pressure in my head too, heartbeat that rocks you, jaw numbness sometimes and tingling in my face, sometimes my arms and legs feels heavy I'm afraid I having a stroke too. my eyes can't focus sometimes I have to close it, cant even stare long in my cp sceen. I'm just thankful that my dizziness goes away sometimes when I'm lying in bed. I don't like riding motorcycles now too because I feel more dizzy looking at moving objects, I even have those feelings thinking I may have a brain tumor, it's definitely scary thinking you maybe have a serious health problems but you can't go to a doctor because you don't have the means to. I'm relieved (is it a bad thing?) to not be the only one having this illness, I thought I was alone, I always thought I'm gonna die soon because of this
Well I can say with certainty that I’m not dying! Even though my anxiety convinced me of that sometimes. If I was going to die I’d be dead already. It’s just extremely unpleasant. I’m so sorry to hear you’re going through this hell as well, it’s so hard to deal with. I’m seeing a new physio soon who will hopefully give me some useful info and some VRT!
@@Megan_Jennifer maybe I'm just overthinking things especially when my dizziness is at it's worst, my imagination kicks in and I'll start thinking maybe this is a symptom of something very serious and also because I still have no formal diagnoses too, someday when I have the money and can go to a doctor and have my diagnoses, hopefully this type of thinking will stop. thank you for your reply, I hope you'll get healed soon 🙏 I hope all people who's suffering from this will get healed too
Your Grace you literally sound like me haha! I always think the worst when the symptoms get worse. I highly recommend you at least get the rock steady book! It’s really helpful. Thank you ☺️ we will get through this
@@Megan_Jennifer Hi! can I ask if the Rock Steady book is available worldwide? I'm at the other side of the world, maybe it's not available here. thank you 😊
Your Grace yes I believe it is! Sorry for the late reply I don’t get any notifications when you message again! 😅😅
I remember seeing you post in a group I’m in on fb, you got it pretty much the same time has me. I’m so glad you’ve improved. I remember how bad it was for you in the beginning. I can relate to most of the symptoms you stated. I don’t know if it will work for you but the wim hoff method has pretty much made me symptom free, you should check it out
Yes, hi! Yes it was awful for me before... That’s amazing to hear!!! Wow... the breathing technique?
@@Megan_Jennifer yeah I do the occasional cold shower, but the breath works pretty much all I do and I feel dizzy free all the time. I do still get that eye wobble thing u mentioned sometimes if I look at pea shingle on a drive though
The Wim Hoff method makes me even more dizzy and woozy and symptomatic!lol. Was that the case for you too?
You’re symptoms and story is identical to me!! I’m still in the thick off it. I’d be interested in hearing more about how you got better!😊
I’m still not 100% recovered :) but I’m working on it!! I have faith I’ll be healed soon 🥰 I will definitely update again
How are you ?
Thank you for sharing this video!! 🙏🏽 I related to every symptom and doctor experience you described. I have had chronic dizziness symptoms for a year and a half and there really were days (maybe more like weeks/months) of sheer hopelessness. I’ve also found Joey’s Rock Steady book and program (new to it) to be an amazing tool for healing! I’m wondering if you’d be able to share some VRT exercises that you find to be most helpful? I realize this might be unique to each individual, but it sounds like they might still be beneficial for lessening the visual vertigo symptoms. Thanks again! 🥰
I’m so glad you found it helpful! 🥰 I was actually thinking about filming a RUclips video with all my exercises that I do! I was gonna do it this weekend, I think that will be easier than explaining them all here 😅😅
@@Megan_Jennifer That would be amazing! Thank you! 🙌🏽 So happy to have stumbled across your video and channel. You are inspiring!
Georgia Borissov aw 🥺 thank you. I’m really glad I can pass on the info!! You got this 🥰
Georgia Borissov hey! So I realise I never recorded that video lol. But actually... check out ‘the steady coach’ on RUclips! She’s my new coach and I’ve seen lots of improvement since working with her. She has a video on specific VRT !
@@Megan_Jennifer hey, sorry to jump on but can you direct me to which video in steady coach you are on about? I’be been diagnosed with vestibular migraines and need all the help I can get! Xx
I think I have this too. Not sure the difference between it and vestibular migraine, but my best thing I say to get over it is exposure therapy. Like walking and exercising or going to the mall or something. I think mine started around when I was going through a breakup. Seems like I see girls with it more than guys
To be honest PPPD and vestibular migraines basically have the same symptoms except that with migraines there might be food triggers and light/sound sensitivity. Yes they say it’s more common in women! Exposure therapy is very good, it’s really important to not stop moving altogether because the brain will not be able to compensate.
Brain zaps, things extreme light sensitivity; so bad that I had to use sunglassess even at night, horrible stomach butterflies, brain fog 24/7, excessive urination, so bad that my skin was totally dry; feeling low blood sugar every day at 11 AM; ...
If all of your medical tests are normal, these are very common symptoms! I had many of these symptoms as well!! Especially the low blood sugar feeling.
I felt so shaky like I hadn’t eaten, but whenever I checked my blood sugar, it was completely normal, so I know it was anxiety.
Oh my god same thing with music 😭😭😭 i just play piano like 7 hours a day now and its amazing!!
I’m so glad it helps you! Just be sure to take regular breaks and stretch out
Thank you for posting this!!🙏🏼 Did you get like swaying out of balance feeling while moving a bodypart sitting or laying still???
Yes! I got that feeling all the time. Laying and sitting still is the worst for me.
@@Megan_Jennifer Is there a place where I can talk to you??🥺 Im currently doing the rock steady
Tonje of course... my Instagram is mjmusic_xo :)
I also have had the exact kind of symptoms past 4 months. It did get better at one point in time but it has again come back. Hearing your story gave me hope that I might feel ok some day. Did you take any medications or just followed vrt exercises.
Sorry to hear that. I have other more recent videos about my recovery! I only took meds for a month and came off them cause I didn’t want to take it.
Thank you for making this video. I experienced a panic attack 2 months ago and I've had the rocking swaying floating sensation like I'm on a boat 24/7... Lately the rocking seems less yet its more nauseating now like gravity is pushing me down and I get the stomach drops like when you're on an elevator. I know anxiety makes it worse because the dizziness intensifies and you feel like you're bouncing off the ground like you're on a trampoline.... I've had panic attacks like 3 other times where I experienced brain zaps, where you literally feel like your head is being electrocuted and vibrating for a minute... It's absolutely terrifying... I've had a blood test and CT scan my brain and they find nothing... I was afraid it was a tumor because those brain zap experience was not normal... But then I found out that is a symptom of anxiety or medication withdrawal... The biggest thing I want relief is this nauseating rocking boat swaying 24/7... It's really debilitating...
So sorry you’re dealing with this too. Yes, the rocking is the worst symptom for me as well. But I’ve started doing VRT again. Watch my newest video where I share everything I’m doing! (I’m not taking the medication anymore)
@@Megan_Jennifer so anxiety can cause the swaying sensations and flood being bouncing??
@@sherriquest414 Definitely can be a trigger! And the fight or flight state keeps it going
@@Megan_Jennifer was yours triggered by anxiety and stress in life?
@@sherriquest414 yes for sure
So weird. I have been through basically everything you went through. But, I still wave on the couch and toilet mostly.
I experienced the same thing!
they told me I am not ready for the pppd program because I told them it is making it worse...
they give you anxiety questioning you about what you have found works, and teach breathing that I already know as yogic. the pt is familiar with polyvagal theory and is referring me to a psch with that background
Who is “they”? 😊
hospital 3pd program usa, it strikes me as a research program and I think I am actually past what they teach, it maybe for someone who just got this and not who has had it misdiagnosed for years?@@Megan_Jennifer
Hi Megan! Thank you for this video. I’ve been managing VM for the past two years, but since January have had debilitating visual symptoms.
I’m wondering if it’s PPPD - did you have this symptom? Visually, I find it difficult to focus my eyes on anything and have an uncomfortable sensation in my eyes, as if they are weighted or every eye movement is felt and it makes me feel dizzy. The feeling is made worse by anything that I need to focus on. This means that reading is incredibly challenging, whether on a computer or physical paper. Speaking to people in conversation is incredibly difficult. I cannot watch tv either. At its worst, when I look in the distance or close up it's as if my eyes won't let me focus or look at the place I want to look at.
I haven’t found anyone so far describe this and it’s so awful. Thank you!
Hi Louise! I’m so sorry you’re dealing with this 😢
Yes I had very bad visual symptoms too! The symptoms tend to overlap a lot in terms of diagnosis.
Thank you so so much for responding! I have an appointment in April with a specialist so hoping I will get to the bottom of it. Did you find anything specific helped with the visual side? 🩷
@@Louise0703I did a few visual exercises like pencil push ups and eye yoga to help in a physical way.
But the main thing I did was work to regulate my nervous system !
Anyone who goes through this is in my soul tribe. Heart goes out to all.... who suffer from this inimaginable hell. Megan... did making videos help you? I'm thinking of doing them as a creative outlet
I mainly used my singing videos as my creative outlet!
My dizziness videos were there to help other people, but yes it did help me 😊
If you feel like sharing your story, do it! People love to know they’re not alone. It’s important!
@@Megan_Jennifer Thanks! Yes that's
important. I would love
to help anyone with their journey. Finding channels like yours has helped me so much, and I'm very thankful. You're so, so talented in your music. And your Spanish accent is pretty much impeccable from what I've heard. Thanks! Much love.
Ana
Hi
Do u have tinnitus and sleep problems ?
Feel of pressure in One ear or both !
Plz reply
Hey - yeah I do have tinnitus off and on. But it’s not ringing it’s more like white noise. I don’t feel pressure in my ears
@@Megan_Jennifer did u feel ear pressure when the symptoms started !
Vikas Malhotra no I didn’t! But as I say in this video my ears make squishy sounds every time I swallow. And I also don’t have sleep issues, forgot to mention
What was the cause of your pppd? Also did you have the sensation of being on a trampoline or boat while walking?
No doctors could tell me the exact cause. But the functional neurologist who diagnosed PPPD said that it’s very possible to begin from stress. I know that it was caused from stress and anxiety. Because PPPD is a functional disorder, stress to the nervous system is one of the biggest triggers. And yes! That was the biggest symptom in the beginning but that sensation went away over time :) I get the floor bouncing sensation only very rarely now when I have a bad day. My main symptom is feeling like I’m on a boat when I’m laying or sitting still
@@Megan_Jennifer glad that youre getting better. Do you think socializing and remaining active can help fight pppd?
Choi Samuel I think it’s definitely important to try and not isolate yourself from the world. I’ve been guilty of doing that and it definitely didn’t help. I try to push myself out of my comfort zone every now and then but I make sure I rest a lot as well. I’d say 60% comfort and 40% challenge is probably ideal.
@@Megan_Jennifer I’ve had the boaty symptom for over 20 years. Feels like I’m on a waterbed. Head feels like it is being pulled back or sideways and heavy. Just like a bobblehead. Better when moving and awful when laying down or still. It’s ruined my life. Drs have had no possible explanations for me and I’ve never given up searching for help. No one ever said it could be anything other than anxiety let alone something called PPPD. Drs fed me klonopin for decades saying the Boatiness was just anxiety getting worse but I think it was the klonopin. Ive never found anyone who had the same symptoms this whole time. I’m so sorry you have this but thank you for sharing so I could find other people with the same symptoms and I might find help.
@@Megan_Jennifer hi could u help me please
Hi again Megan sorry you are not 100 % did you have double vision I get headache also..... My docs the same it's always anxiety blah blah blah I feel like i'm dying at times... Paul from Sheffield..... Thank you for this video you are amazing 👍
Hello! It’s been a long time since I created this video and I am recovered😊
I’m sorry to hear that you are suffering. I never had double vision, but I did get headaches sometimes!
I assume you have had your eyes checked? Have you had any other medical testing done?
@@Megan_Jennifer yes Megan I had ct brain scan 3 years ago I'm worried all this started after I'd had the test doc says all OK but I'm 24..7 headache dizziness eyes all done but get alot of burning gritty sensation.. All anxiety doc says glad you sorted though Megan 👍
Hi Megan, I have a weird question and you may have not experienced this but doesn’t hurt to ask. I have pretty much all your symptoms but one I haven’t heard you mention was lights in your eyes and or in the morning when I go to light from my darker room, sometimes I see one the side of my eyes like dark/bright dark/bright really fast. I’ve gotten my eyes checked and said everything is fine so I was curious if you or someone you know experience something similar
I don’t think I’ve experienced the exact same thing… But I have experienced a strobelike effect in my eyes when it’s really dark and my eyes can’t quite adjust! I also got my eyes checked and they found nothing wrong
Hi Megan in terms of diagnostic. Did you ever did the cVEMP test? 🤔
It’s because I’ve just noticed that all my test were good except the cVEMP one and I’m wondering why no doctor is telling me this. I saw the report from last year and there it is said that cVEMP: no registration on left side 95 decibels.
That’s my whole report:
Positional check: No positional nystagmus for the posterior BG or lateral BG.
Caloric VNG: equal excitability of the lateral semicircular canal, side difference after
Jongkees Formula-7.1%
Video head impulse test: gain normal for all semicircular canals, none reliably reproducible,
pathological catch-up saccades
CVEMP: not registerable at 95 dB on the left, well registerable on the right at 95 dB
Recommendation:
The findings suggest a menieriform disorder on the left. differential diagnosis
vestibular neuritis or vestibular schwannoma.
We discussed the findings with the patient in detail and recommended the above
I’m so sorry I have no idea what any of that means unfortunately!! You’ll have to talk to the doctor about that. But if you had vestibular neuritis that would have resolved already, and PPPD can occur as a result
@@Megan_Jennifer to sum it up they said last year that me left side is not getting any stimulate from 95 decibels. There is a weakness on my left vestibular side. And there are three options what can be the reason.
-miniere desease which was excluded.
-vestibularschwanoma like beginning Tumor which also was excluded
Or -neuritis vestibular (but why still there after 2years) doc says it is what it is live with that😅
@@leviackermann188 a neuritis wouldn’t be there 2 years later! That might be the cause of your PPPD (because the brain stayed in threat mode) but I do not believe that the inner ear is still inflamed! Usually those things resolve on their own. But once it resolves, chronic symptoms can persist because of the neural circuits in the brain
@@Megan_Jennifer ah ok I See so what do you think could be the reason my inner ear has no signal on sounds on my left 🤷
@@leviackermann188 I have no idea! I’m not an audiologist so I definitely wouldn’t be able to say. It could be something completely unrelated who knows
Hiya Megan thank you for your honesty and vids they are fab are you symptom free now? Are you going about normal life not thinking about it? I’m scared il always be scared to end up back at the beginning again mine was as intense as yours but the steady coach tracking video calmed my brain and I saw improvements instantly I’m two weeks in to it and already playing football again and so much more able but it’s there I feel it like it’s still very prominent does that ever go away? X
Hello! Yes, I am symptom-free. It does go away, just have faith in your body🙏🏼🙏🏼
Thank you for your encouragement it’s truly needed in a world full of negativity. I have the floaters in my vision and the foggy head now but the pressure has eased I can’t wait for the day that I no longer think about it ever you have a beautiful voice btw x
@@RachaelPanter-yk7cytry your best to shift your attention from the symptoms now, before they have gone.
And thank you 🥰
Hey, thanks fr letting us know the symptoms of this kinda illness , like I've been dealing with the same thing for a month like constantly dizzy for 24/7.i feel like my eyes are making me dizzy and still I'm not diagnosed yet, coz everyone in my home literally saying that's becoz of dehydration or anemia, but u know I'm a kinda of anxious and depressed person, like I overthink a lott becoz of this I'm not enjoying hang outs like I'm trying to do my best by not thinking about it but still it makes me crazy🥲i donno whats the problem is, but i hope to recover soon🥲💖
This dizziness is some kinda badddd ******
Hi 😊 I’m sorry you’re dealing with this! It is horrible. I totally get what you mean with the eyes making you feel dizzy. I used to feel the same way. You could get your iron levels checked definitely to check for any deficiencies. I recommend to go through as many medical tests as you can so you can be reassured. You say you are an anxious person, this can cause dizziness alone! It might be neural circuit dizziness :) get some tests done but also begin the healing techniques to recover!
@@Megan_Jennifer tq for ur reply 💕and I've one more doubt!do u get nauseous 24/7 becoz of the dizzy feel?
zoya battol I have definitely had moments of nausea from the dizziness! I felt like I would throw up a few times but I never did. That wasn’t a big symptom for me however I know people who had it daily! Keep regulating your nervous system 😊
@@Megan_Jennifer so good to know that you had the same 🥺
@@Megan_Jennifer hey megan I wanna tell you that my diziness went off and I'm so good now like 100%
I experience all of these symptoms with nausea some also.
Sorry to hear that 😞 it gets better!
Do you have bouncing floor senstaaion each step?
I used to have that feeling every day! But not now😊
Hi Megan, I have been suffering from the exact symptoms for over years. All doctors just dont feel emotional about it and give antidepressants. I dont want to rely on those. I feel its like swaying from left to right and balance disorders. I wish someone could help diagnose the symptoms and wish to live a normal life
So sorry you relate!! Check out the steady coach on RUclips :)
@@Megan_Jennifer I decided to do analysis on my own as I don't trust the doctors anymore. They just give medicines but do not work on root cause. I know about steady coach channel and have been watching her videos. I now just do analysis on my own and assume that definitely it is related to nervous system disorde. It is not just anxiety like most people believe. I will keep on learning about it and find ways to just make my life back to normal.
@@chasing_mentalclarity yes I did the same thing eventually! Doctors really don’t know much about this kind of thing.
@@Megan_Jennifer ❤️
Hiii Megan did u feel ur symptoms changes ??now ur symptoms going one by one or it feels like u have but it’s mild ??the vision is same as u describe ?
Yes my symptoms used to change all the time. It felt like the symptoms gradually decreased in intensity until I barely felt them.
1 months ago i started feeling vertigo whenever i turned my head on the right side during lying down.the doctor told me that i have bppv in my right ear.after that,docor did few exercises and my bppv gone and i was fine in 1 week.but now i feel dizzy while moving my head, walking,lying down,going to upstairs and downstairs. Also i feel lightheaded and a type of weird sensation in my head.why is it happening? Please give me few suggestions that what should i have to do now?i am so scared of my present condition.
It sounds like the anxiety of the original BPPV has triggered PPPD. The brain doesn’t know how to get back to normal because it was so stressed before. Try to do deep breathing, VRT and body scans. Google Joey remenyi rock steady! It will help you. Nothing serious is going on. But do get medical clearance :) that will help you feel calmer
@@Megan_Jennifer ok.thanks a lot for this suggestion.
@@deepakrajgupta6927 my PPPD was also initially started by BPPV then it healed for 6-8 months and now it has returned as PPPD which I have had since March, after medical clearance I suggest you look into neuroplasticity and as @MJ Music said Rock Steady is a good starting place. best of luck
@@MrTrizzle1982 thanks
I've been dealing with these symptoms since 2015 my doctor recently brought up three 3pd and going to go see a specialist in Rochester it's been a long road I also had a benign tumor in my sinuses removed about 2 years ago ... Honestly I've lived like this for so long that to think of it as a disease or a neurological issue is giving me a lot of anxiety it's making it more real when it should be giving me relief that there's hope does anybody ever feel like this when they get diagnosed?
I totally understand what you’re feeling! It’s almost quite scary because you know that you have to train your brain out of it yourself.
But I hope it also gives you some hope to know that there is a way to get rid of the symptoms!
How are you ?
You said on a good day you were 80-85% recovered!! How did you do it?!!! This video was before steady coach. I want to feel better so badly 😞💔
Percentages mean nothing to other people really because we could all have different meanings for them!
It took me 2 years to get to that point. Trying every single day to get outside for a walk, control the anxiety, meditation, listening to Abraham Hicks and trying to implement the law of attraction etc.
and the good days were very very scarce at that point.
Also a few weeks after this video I had a relapse that lasted for two months straight and I felt worse than ever before! Because I was still so anxious about it.
today I did KT of inner ear and I am so scared that it may be meniere's disease or bppv
I have chronic dizziness for almost 6 month and was having extreme panic attacks for about a year
I am not sure if it's pppd and caused by my anxiety but I hope so:)
BPPV is super easy to resolve!! So don’t worry. Also menieres can be treated as well! PPPD can 100% be caused by anxiety and panic attacks
does your dizziness get worst sometimes? like the dizziness is awful for days weeks or month?
It used to be yes!!
I’m recovering now but during those 3 years… god. Sometimes it would get worse for weeks or months where I couldn’t do anything. Some days I couldn’t even get out of bed
I am 23 years old and I think I also have PPPD+ anxiety I have been dealing with this dizziness for a 1 year now and the doctors say I am fine & I have all the symptoms you explained In the video:(
Do you have this symptom where your heart is beating very fast and when I sleep i feel that my head is beating in the pillow something like that do you feel
Yes I have definitely felt that! Sometimes I’m so focused on my heartbeat that it feels like it’s pulsing all over my body
@@Megan_Jennifer same here I get scared thinking I am getting a heart attack😭
thank you for the reply means a lot I was so scared thinking I am the only person who is having this which made me more scared thinking that I am sick and having a dangerous sickness. Thanks to your video that I know that I have PPPD now
Any way I can get rid of PPPD completely in my life it’s very difficult to manage:(
TrendDot there are many ways to get rid of it ♥️ keep trying! And if you need extra help I’m offering coaching ☺️
@@Megan_Jennifer how can I join?
Is PPPD 100% what you have/had? the reason I ask is I have every single symptom that you do or did and nothing other than pppd makes sense... Except I had an episode of spinning vertigo that I at first thought would rule out PPPD until I heard the steady coach mention that it was possible to have vertigo with it. Then I just heard you mention that you had vertigo as well and I almost wanted to cry in relief. I'm so stuck in analysis paralysis that I cant begin a treatment plan. I would greatly appreciate any response, Thank you so much.
I’d say yes it was definitely PPPD! Neural circuit dizziness, nervous system dysregulation … whatever you call it it’s the same thing really! I have had at least 10 spinning vertigo episodes in the last 3 years! Is entirely possible to have it with PPPD.
Begin trusting your doctors when they rule out serious conditions, and begin to believe that it’s PPPD and start to heal🥰
In 30 years I have had 3 episodes of labyrinthitis / vestibular neuritis with acute vertigo., followed by periods of what I now know is PPPD. Each time , over approx 6 months, I fully recovered. Maybe I was just lucky. I had no treatment at all from my GP apart from anti sickness medication when I had acute vertigo. I think your video is great as it's from such a personal perspective rather than a medical professional one. Hope you are feeling much better.
I have no idea who or what I am suppose to be. I change personalities daily and whatever my surroundings are. I feel like an actor in this movie called Earth. Nobody gets me not even myself. Iure people in at the same time I push people away. I feel like I will never know and meet the real me. I am just walking around in this so called person suit.
I hear you. Sounds like despite all of this, you are very self aware. I think you’d be surprised what you can figure out about yourself once you take a deep dive.
@@Megan_Jennifer Oh yes I surprise myself all the time. That is the major issue. Never know my true self so I surprise myself when I make out of world choices.
@@andrewrodriguez7465 hey could u help me please
Did your hands twitch as well? Or move involuntarily?
No i never had that! Some parts of my muscles twitched every now and then but rarely
@@Megan_Jennifer gotcha
What would you recommend for sleep problems? I feel the darkness turning and moving when you close your eyes? Also, I feel like there is a rod inside me that moves up to my legs. I have a feeling of fluctuation with my breathing, is this normal? Sometimes, even though I feel sleepy, I can't sleep because of anxiety.
When you work on the nervous system, you’ll be working on every symptom you have.
Perhaps you could use a meditation when you sleep to help you ignore the symptoms for now?
I know what you mean about not being able to sleep because of anxiety… Definitely utilise parasympathetic breathing. This really helped me overcome the anxiety.
@@Megan_Jennifer Do you ever feel the spinning sensation more when you close your eyes?
@@eceaksoy1619 No I never feel spinning when I close my eyes unless I have BPPV.
@@Megan_Jenniferis this a sign of bbpv?
@@eceaksoy1619 BPPV is often triggered with positional movements like rolling over in bed. If you have spinning when you do that, you may have BPPV.
You can easily check for BPPV with the Dix-Hallpike manoeuvre which you can look for on RUclips!
Did you ever feel movements in your head? Like chills or some kind of movement
Yes! I felt movement all the time. I still get that at times but less intense
Wow!!! Ok thank you for your reply!! When I hear your story I feel like I’m listening to me talking almost to the t! It’s been two years for me as well. Just started to do what you have recommend. I had started some improvements but right now I’m really really bad!! I re-watch your videos just to remind myself that I can get better. Every time I’m feeling hopeless I will just watch your videos again and I feel so much better. So thank you!!!
Did u ever have when you were listening too say like a song or someone talking on the phone you would get crackling in your ears?? Xxx
Can’t say I ever had that! But I do have popping in my ears when I swallow
@@Megan_Jennifer yes like crackling it's so weird I've had this pppd for months but only got diagnosed couple of days ago im scared too drive everything even though I know im. Not going too pass out its so scary
Megan what is somatic tracking xxx
@@tashalynas8748 Somatic tracking is basically when you watch your symptoms with curiosity and interest without fear or trying to change them. I highly recommend the track by “the steady coach“. It’s a really great one! Helped me not be so afraid
Is that the one somatic tracking for chronic dizziness xxx
wow you pretty much described what I am doing through! how are you feeling now?
Mostly the same! I’ve just started a new diet though. Migraine diet, low histamine diet and also avoiding all foods that include glutamate! I’ve noticed a difference already :)
@@Megan_Jennifer whats your diagnosis? And glad you’re feeling better!
Dino K well I don’t feel ‘better’ overall haha but I have some better days! My diagnosis is vestibular migraines and PPPD
@@Megan_Jennifer mine too! I hate the vestibular migraine diagnosis though 😞 What has helped you with the vm? And do you have Ig?
Dino K hey yes my IG is mjmusic_xo! Btw I don’t have VM I only have PPPD. And I’m almost healed 😊😊
What helps me to reduce it
Check out my other videos! Plus my website 😊 conscioushealing.uk
@@Megan_Jennifer thanks but i am a student i am not affordable for payed contents I really liked your videos will see in future when I have a work
@@SanuPresanu I didn’t suggest any paid content :)
My website has lots of free information! So does my Instagram conscioushealing101
Megan when ur visuals symptoms start to decline and u felt better
Once I started working on the nervous system and putting myself out there into situations that used to trigger me, working on the anxiety… All of it helped gradually! Took months of dedication
how are you doing now? how did you manage pppd?
I’m doing much better! I have another video where I explain more of what I’ve been doing to help 🥰
Were you on dr yos channel
Yes I was 😊
Hi Megan - I have had Pppd for about 10 months - just got diagnosed in February though. I have just started vestibular rehab exercises and hoping so much that they will help. How long has it taken to to get better ? I am trying not to be scared about it but it is so debilitating - thank you for this video - I have the rock steady book and have been doing body scans x
Hi! I started my proper treatment in November 2021 and it took 2 months to feel way better! (Not 100% but better) so just continue every day and I promise you’ll see improvements. I highly recommend ‘The Steady Coach’ on RUclips. She has amazing videos and she is my vestibular coach.
@@Megan_Jennifer thank you for getting back to me to quickly Megan. Life is ‘on hold’ for me just now and I feel like I’m living in someone else’s body. Not been working either and have basically stopped all activities which I know is the worst thing I can do. It is so reassuring to speak to someone else who has had a similar experience. I will let you know how I get on with the exercises, I have everything crossed that they will work 🙏🥰take care of yourself too x
@@Megan_Jennifer Megan how long vrt did you make per day? In minutes
Hello, i’m italian and i suffeR about it since december 2020. I have same symthomps that u describe and same fears… so i would like to talk with u and exchange more information, if u agree
Sure! Feel free to message any question here :)
@@Megan_Jennifer do u believe we may get better? Is any doctor following u?
Prof. Ernesto 100% we can get better! Have a look at ‘rock steady’
When you first felt these symptoms did you ever think it was your heart ? Also do your legs ever feel like jello and or weak/ tired after standing to long specially in one spot ?
8-10.5 ish months After having my son (he’s 20 months ) I starting feeling almost all these . They thought it was low sugar which it wasn’t . I’ve done test after test . Ekg , stress test , ultrasound, catscan of my chest , blood work etc . All came back good (which I’m greatful for !) but still no doctor can tell me what the heck is wrong with me . I came across your video and was like omg I feel all this . It’s sooo hard to explain how you feel to someone specially a doctor they think you’re crazy
I 100% had jelly legs! Fatigue was a big symptom for me back then. And I never thought it was my heart but I did get it checked! Honestly back then I thought it was a brain tumour or something
Have you not tried therapy for the PPPD?
Of course I have! :)
Hey dear! I am now having the same experience as you. I feel so lost, you probably know what it feels like. I am doing the VOR exercises, and I did feel lot better in the first 2 weeks. Now I am doing 2 new ones, and now when I am still, I feel this rocking, swaying symptom, that is for me also THE WORST. Its since 2 days like this and I am freaking out. I dont know how it happend, as I did well with the VOR, I just wanna cry because I feel hopeless. I am trying to get bettter mentally, started a therapy also, but today I feel so scared. Can you tell me how your symptoms are now with the rocking and swaying?
I know exactly how you feel! The rocking symptom was the worst for me as well. Definitely continue with the exercises because your brain will begin to learn and adapt. After you do the VRT exercises I really recommend to do some deep breathing to calm your brain back down.
This will also train your brain that the dizziness is not a threat. I have started a new Instagram account where I explain how to heal with Neuroplasticity… Feel free to follow me there. @conscioushealing101
@@Megan_Jennifer could you see your body sway before?
Did you feel the road was bouncing?
@@sherriquest414 I couldn’t see it swaying I could just feel it.
And yes!! The road would bounce when I walked
@@Megan_Jennifer do you understand what causes this bouncing sensation?
What causes the swaying sensation?
@@sherriquest414 I’m not 100% sure, however The Steady Coach has a great video about it!
Does relapses occur??
For me, yes! I’ve had many relapses… But I don’t really like that word because it implies that you’ll never get better again and that you’ve gone back to the beginning. And that’s not true! You are still healing. After the “relapses“ I felt even better than before.
Thanks Megan for this even I do believe the person heal from this even I have bad and good days but every time intensity is low every time and I believe there should be some breakthrough treatment will come which delete the word relapse 😀😀
Hi! Are you sure it’s PPPD and not Mal deDebarquement syndrome that you have? PPPD isn’t present when you are lying down I think. If you never heard about Mal deDebarquement syndrome I suggest you look it up. All your symptoms sound like MdDS. Especially when you say you feel better in cars/buses.
Hey! Trust me I’ve looked up every possible cause lol. PPPD can be present laying down too! ☺️ also a lot of cases of rocking/swaying vertigo are better in the car as the brain knows you’re moving. The symptoms can be very similar! But there was no way I could have gotten MDDS as I wasn’t on a cruise or trip or anything like that. It began from stress which a lot of cases of PPPD do. So many other people with PPPD who I’ve spoken to had the rocking laying down too, and some didn’t! PPPD can have so many different symptoms for different people. The body is weird 🤷🏽♀️ also, either way - the treatment is the same haha. I’m kind of done with labels at this point
@@Megan_Jennifer you are right, fck with the labels! I’m having the same symptoms as you though and I got diagnosed with MdDS. Eventhough I never been on a cruise but it apparently can be spontaneous too..🤷🏻♀️ have you tried any meds? Or it just got better with time? I’m almost two years in this hell and eventhough the symptoms has morphed into slightly different ones I still suffer 24/7. :(
Misha Eli oh that’s really strange! Well, it has gotten better as I lessen the anxiety. You just need to retrain your brain. I did try meds in the beginning like motion sickness ones etc, but never any antidepressants. Joey remenyi has a whole thing about MDDS in her book! Neuroplasticity can work for you as well ♥️ do you also have the visual symptoms? Like when you look side to side at something the object moves as well?
@@Megan_Jennifer no I don’t really have visual symptoms. It’s just this constant false sense of motion in my head…24/7. When I lie in bed I feel like I’m floating, dropping, free falling in an elevator, sinking , or falling down from a big building. It’s crazy. It’s hard to sit on chairs cause I feel like the chair is floating in the air with me. It never goes away not even for a split second. And I’ve got the extreme head pressure too.
Do you feel a back and forth rocking or a side to side swaying sensation? Or it doesn’t have a direction ?
Misha Eli yeah your symptoms are slightly different to mine. I have visual symptoms as well. When I lay down I do have that floating feeling as well though. It doesn’t really have a direction! A lot of the time I just feel like I’m laying on the ocean going over waves. I feel it in my head and in my body.
I don’t think you are dealing with PPPD (anxiety-neurological disorder). The shifting of images while moving the head is due to a real vestibular disorder, an impairment in the vestibular-ocular reflex. Often ENT’s and Vestibular therapists are not familiar with the disorders, and end up giving you a bad diagnosis. Your VOR will go back to normal. You don’t have PPPD.
PPPD includes that symptom! And it has gotten better after the exercises. I definitely have PPPD because the symptoms get worse with anxiety and thinking of stressful situations.
@@Megan_Jennifer PPPD does not include than symptom. Oscillopsia or gaze inestability during head movement is a vestibular disorder, and can be caused by many disorders in the inner ear. PPPD is not vestibular but a neuro-physicological disorder that is often treated with SSRI’s. There are no tests that will come positive for PPPD but there are several tests that will prove a vestibular disorder. If you have gaze inestability during head movement a vHIT test will come positive and will show the VOR gain deficit.
Often therapists and ENT’s are still not familiar with vestibular disorders and don’t even know that there are test for vestibular function.
@@Megan_Jennifer also, anxiety is a common denominator in all vestibular disorders, and no matter if you have vestibular neuritis, Menieres or vestibular migraines, anxiety will always make symptoms worse.
Nuggets con catsun I had numerous tests to rule out any inner ear condition. PPPD does include this symptom! :) not to the scale of what you might be imagining. For me it was only slightly
Thanks you so much for your video , as I am going through PPPD for 2.5 years now, ive been through a huge journey about this and its a nightmare… The floating lightheaded but heavy sensation is the worst- and the feeling of not being there and fogginess and forgetting. Its constant in one way or another. Everything you said I literally said yes in so much things you said…
Im in this same boat with you and im so sorry youre going through this too.. but how are you doing today? And how long have you had this? 🤍
Giving a hug
Hi! I’m so sorry you’re going through this. I have actually recovered now 😊
I consider myself recovered despite a few symptoms every now and then! ❤
@@Megan_Jenniferhow long was your Pppd for? Mine is about the 2.5 year mark
@@NicoletteWolfenfoxit’s been 4.5 years now
@@Megan_Jennifer oh wow.. ive heard and read this terrible problem can have up to a 5 year span.. so it seems to be right… its such an everyday occurrence, I have had days of symptom relief and or lighter days but then it just comes back.. In time and keeping a busy and positive mind I think my recovery will be day by day. Thank you for all your replies. It helps to know there is some light at the end of this dark tunnel..
Wishing you all the very best in your continued recovery from this very troublesome beast. A hug ❤