Thank you so much for this video. Was recently diagnosed with Bilateral vestibular loss and 3PD . I’ve had intermittent vertigo due to menopause for many years and I also have noise sensitivity, ME/CFS and Central sensitivity. Would vestibular rehabilitation exercises work for my 3pd or is it likely to make it worse? And does 3pd cause a bounce when you are walking? I have constant rocking & swaying 24/7 l. I do get some relief when I’m laying my head back or my husband supports my head. I feel like my head is on a spring and it’s rocking in every direction and also a lot of motion sickness when moving my head..
@@judithwhitelaw2684 Hi, May I know did you have the feeling of floor moving or bouncing when walking ? Like walking on the boat or ice ? If yes did it go away ? Really appreciate 🙏🏻🙏🏻
@@eshghedelameshghedelam1727 hi, yes I had all of these feelings . I still get it most days but am working on calming down my nervous system , which in turn should keep these sensations low and eventually eliminate them altogether. It’s our scared brains which are creating these symptoms and a messaging error between our brains and our nervous systems. There is nothing physically wrong. Getting over the fear of the symptoms is a huge first step - and if you can’t get rid of the fear altogether then try and increase the bravery a little bit and do things that you enjoy , and which make you feel happy. It’s hard when you feel weird , I know, but doing things which make you feel happy is really important because the happy chemicals help to calm down the amygdala and the area of the brain which produces the stress chemicals. Try and relax and find things that you love doing . Take care
@@judithwhitelaw2684 thanks for the reply. You gave me much hope. I’m trying to go for walk everyday and not being afraid of that. But it’s been 6 months I have this problem. May I ask how long did you have it 24/7?
Hi... I believe I have this condition. My crystals went out of place few months ago and things never were the same even if they went back in place with the Epleys maneuver. I get now some kind of weird sensations when I scroll my phone, or whatch TV and something moves really fast panning or zooming in or out. I feel like fear in my stomach and that I move with the scroll. I had a second episode of the crystals just a week ago after just 3 months of the first one. Unfortunately the health system is so bad where I am that I didn't find a doctor to do the maneuver as soon as possible, and I ended doing myself at home and it actually seemed to have worked out well. But this unusual visual vertigo keeps happening very often. I'm in Lisboa, Portugal. Is there anyway I can reach out to a doctor doing what you do to help your patients there? Or maybe are there some exercises you can teach me to rewire my brain properly with this? I've been thinking it was a PTSD from the first episode because I got so scared that I got traumatized by the event, so all these months I've been thinking maybe it's a PTSD response. But maybe is what you're e describing here. What can I do? I'm only 46. I don't want to live with this random sensation for life. Thanks for reading.
You can contact our clinic and set up a virtual consult. Or you can try looking for Dr. Russ Hornstein. He used to practice in Malta but I believe he is currently in Portugal. Hope that helps.
You really need to check out Seeking balance on RUclips, her name is Joey Reminey I am sure I am spelling her name wrong. She teaches you how to heal dizzyness with neuroplasticity.
Hi Dr. Thanks for the video. I’ve had 3PD about 9 months. Took me 3 months to diagnose it myself. It has changed and evolved from strong swinging sensations that were very scary for me to a strong headache to now very subtle ongoing head swing or shifting sensations in my head. It can be created by thought alone now that my head knows it so well. Sadly with anxiety it can manifest. I’m 41 an athlete which I believe my training in the gym is great it very similar to what my Vestibular Physical Therapist had me do. I know the longer I have this the least likely I can hea myself from it. I’ve done my best by taking busiprone a mild anxiety medicine I do not believe in SNRI they re-wire your brain and is only a band aid. I live in Texas and just want to volunteer myself my head case 😅 for any studies you may have. Sadly the doctors I work with is me teaching them about it. My email is beth @ beth dot tv thanks!!
I have also had pppd for 9 months. I feel swaying and rocking but like you it has gotten more subtle but still there all the time. What triggered yours or how did yours start? Do you have any other symptoms along with the swaying?
I have had pppd on and off since 2013, with my first long bout lasting 2015-17, then again 2020-21. And now again starting a few weeks ago. Retraining the vestibular system is possible at any time with this condition. But relapse does happen. And for me, it's pretty much directly correlated to my anxiety levels. Each start of my pppd has started during a time of high anxiety and some actual vestibular symptoms. In this current case, I was drinking too much alcohol and I experienced some very acute bppv symptoms while looking at my phone. Well what do you know. Now every time I look at my phone, my symptoms get worse. Look into VRT exercises. My pppd is obviously vision related so I am more mindful on focusing my eyes. I also have very high anxiety atm, from the heavy drinking and everything else going on in my life. So, reducing my anxiety is key. I take the antidepressant Mirtazapine, which has no negative side effects for me other than increased appetite. I started off with a low dose, and have increased my dosage throughout the years. Each time I have increased it, my pppd symptoms have completely gone away. I started in 2017. My pppd symptoms were gone the same year. Then increased my dosage in 2020 after having symptoms for 9 months. My pppd resolved mid-2021. Now I may increase my dosage again, since I'm still not at the standard dosage yet. I am confident I will be able to make my symptoms go away. If you come across this comment months to years later, ping me and I can give you an update.
Would love a video about vestibular paroxysmia. I've also been diagnosed with VM and PPPD, but there isn't much info about VP. Thanks!
Thank you so much for this video. Was recently diagnosed with Bilateral vestibular loss and 3PD . I’ve had intermittent vertigo due to menopause for many years and I also have noise sensitivity, ME/CFS and Central sensitivity. Would vestibular rehabilitation exercises work for my 3pd or is it likely to make it worse? And does 3pd cause a bounce when you are walking? I have constant rocking & swaying 24/7 l. I do get some relief when I’m laying my head back or my husband supports my head. I feel like my head is on a spring and it’s rocking in every direction and also a lot of motion sickness when moving my head..
I have this as well as vestibular migraine. This is all new to me. Took me a long time to get diagnosed. I just want to be better again. 😔
I hope you find an expert in dizziness and PPPD and can prescribe the appropriate treatment for you to start feeling better.
Try The Steady Coach on RUclips 😊
@@judithwhitelaw2684 Hi, May I know did you have the feeling of floor moving or bouncing when walking ? Like walking on the boat or ice ? If yes did it go away ? Really appreciate 🙏🏻🙏🏻
@@eshghedelameshghedelam1727 hi, yes I had all of these feelings . I still get it most days but am working on calming down my nervous system , which in turn should keep these sensations low and eventually eliminate them altogether. It’s our scared brains which are creating these symptoms and a messaging error between our brains and our nervous systems. There is nothing physically wrong. Getting over the fear of the symptoms is a huge first step - and if you can’t get rid of the fear altogether then try and increase the bravery a little bit and do things that you enjoy , and which make you feel happy. It’s hard when you feel weird , I know, but doing things which make you feel happy is really important because the happy chemicals help to calm down the amygdala and the area of the brain which produces the stress chemicals. Try and relax and find things that you love doing . Take care
@@judithwhitelaw2684 thanks for the reply. You gave me much hope. I’m trying to go for walk everyday and not being afraid of that. But it’s been 6 months I have this problem. May I ask how long did you have it 24/7?
What helps for bppv
How do I get my neurologist to take me seriously I get sent back and forth from ENT to neurologist and I still have issues.
Thats me Doc on Maui. Since 2018 til now. What can I do to find treatment.
I have had this dizziness since
I had COVID 19. When I stand I get light headed.
Mostly I st ay seated.
Hi... I believe I have this condition. My crystals went out of place few months ago and things never were the same even if they went back in place with the Epleys maneuver. I get now some kind of weird sensations when I scroll my phone, or whatch TV and something moves really fast panning or zooming in or out. I feel like fear in my stomach and that I move with the scroll.
I had a second episode of the crystals just a week ago after just 3 months of the first one.
Unfortunately the health system is so bad where I am that I didn't find a doctor to do the maneuver as soon as possible, and I ended doing myself at home and it actually seemed to have worked out well. But this unusual visual vertigo keeps happening very often.
I'm in Lisboa, Portugal. Is there anyway I can reach out to a doctor doing what you do to help your patients there? Or maybe are there some exercises you can teach me to rewire my brain properly with this?
I've been thinking it was a PTSD from the first episode because I got so scared that I got traumatized by the event, so all these months I've been thinking maybe it's a PTSD response. But maybe is what you're e describing here. What can I do? I'm only 46. I don't want to live with this random sensation for life. Thanks for reading.
You can contact our clinic and set up a virtual consult. Or you can try looking for Dr. Russ Hornstein. He used to practice in Malta but I believe he is currently in Portugal. Hope that helps.
You really need to check out Seeking balance on RUclips, her name is Joey Reminey I am sure I am spelling her name wrong. She teaches you how to heal dizzyness with neuroplasticity.
Try The Steady Coach on RUclips 😊
What are the best exercises to treat visual dependency? Optokinetic exercises?
Does Videonystagmography test shows pppd?
Hi Dr. Thanks for the video. I’ve had 3PD about 9 months. Took me 3 months to diagnose it myself. It has changed and evolved from strong swinging sensations that were very scary for me to a strong headache to now very subtle ongoing head swing or shifting sensations in my head. It can be created by thought alone now that my head knows it so well. Sadly with anxiety it can manifest. I’m 41 an athlete which I believe my training in the gym is great it very similar to what my Vestibular Physical Therapist had me do. I know the longer I have this the least likely I can hea myself from it. I’ve done my best by taking busiprone a mild anxiety medicine I do not believe in SNRI they re-wire your brain and is only a band aid. I live in Texas and just want to volunteer myself my head case 😅 for any studies you may have. Sadly the doctors I work with is me teaching them about it. My email is beth @ beth dot tv thanks!!
I have also had pppd for 9 months. I feel swaying and rocking but like you it has gotten more subtle but still there all the time. What triggered yours or how did yours start? Do you have any other symptoms along with the swaying?
I have had pppd on and off since 2013, with my first long bout lasting 2015-17, then again 2020-21. And now again starting a few weeks ago. Retraining the vestibular system is possible at any time with this condition. But relapse does happen. And for me, it's pretty much directly correlated to my anxiety levels. Each start of my pppd has started during a time of high anxiety and some actual vestibular symptoms. In this current case, I was drinking too much alcohol and I experienced some very acute bppv symptoms while looking at my phone. Well what do you know. Now every time I look at my phone, my symptoms get worse. Look into VRT exercises. My pppd is obviously vision related so I am more mindful on focusing my eyes. I also have very high anxiety atm, from the heavy drinking and everything else going on in my life. So, reducing my anxiety is key. I take the antidepressant Mirtazapine, which has no negative side effects for me other than increased appetite. I started off with a low dose, and have increased my dosage throughout the years. Each time I have increased it, my pppd symptoms have completely gone away. I started in 2017. My pppd symptoms were gone the same year. Then increased my dosage in 2020 after having symptoms for 9 months. My pppd resolved mid-2021. Now I may increase my dosage again, since I'm still not at the standard dosage yet. I am confident I will be able to make my symptoms go away. If you come across this comment months to years later, ping me and I can give you an update.