Ankylosing spondylitis - causes, symptoms, diagnosis, treatment, pathology
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- Опубликовано: 1 июн 2024
- What is ankylosing spondylitis? It is a chronic inflammatory disease that affects the vertebral joints and makes the spine really stiff, but can also cause inflammation in other parts of the body like the eyes and blood vessels.
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My mom has this disease for 15 years. She still has it. She is a fighter.
My father got AS at 19 in the army he died 3 days ago at 82,5 he had AS and COPD he closed his eyes at the hospital then he was gone he simply decided that it was his time he didn't want to experience the risk of a wheelchair and oxygen assistance he told me "if i can't walk on my own then i will stop taking my medications" R.I.P. dad you were a warrior 1941-2024
i'm 32 and i have had AS since 20/21 it's hell on earth he had a older son who died at 46 had severe AS it was a heart attack the heart exploded so yeah AS is quite scary...
@@eivindgjengstjohansen9625I'm so sorry for your loss. I've had AS for 14 years, I'm now 60 and it's getting very painful
I went 4 times for lower back pain to a doctor who thought i had to move more or change my mattress.. he said my back was healthy and i trusted him. Took me a few months before finding that doctor weird and deciding to go see a rheumatologist, he immediately diagnosed me. I could've been diagnosed 1 year ago. I still have a hard time accepting that diagnosis, and that I could've treated it a year ago
I've had some specialists state I have this, some say it's just compression of discs. Getting a confirmed diagnosis is harder than the symptoms at times. And I cannot handle dealing with one more patronising specialist.
HLA-B27 can be negative while still having AS..
Yes I don’t have the gene but I have AS. I’m reading about the role that klebsiella has in AS, and gut microbiome theory of ankylosing spondylitis.
That's reactive arthritis
@@Alex-ob1wx don’t make nonsense medical statements on the internet.
@@Nicolaione Lmfao I'm going to fail my exam then
But no seriously look it up
Thank you for this excellent video. I would add for educational purposes the diagnostic criteria for this condition; those being lower back pain present for 3 months relieved by exercise but worsened by rest, restriction of motion of the lumbar spine in the sagittal and frontal planes, and restriction of chest expansion correlated to normal values. Radiologically, there is sacroilitis >grade 2 bilaterally or >3/4 unilaterally.
This video was extremely helpful. I am a female in my mid-50s. I was diagnosed with HLA-B27 in my early 40s after all the cartilage in my knees was destroyed, starting when I was 34. After several knee surgeries that did not help, I had both knees replaced when I was 41. To say it was agonizing is putting it mildly. I still suffer from back, neck and shoulder pain, general stiffness, and frequent tendinitis in arms, legs, and especially, ankles and feet. Another interesting symptom is that expansion of my rib cage when I breathe is restricted. A doctor measured the circumference of my rib cage when I inhaled versus when I exhaled, and the difference between the two is much smaller than it should be. This is the reason the video says the lungs can be affected.
I have been taking sulfasalazine for about two years and it does make a big difference. However, it has often been in short supply due to the pandemic, and when I have to go for weeks or months without it, my illness becomes much worse. I have had to become quite sedentary in recent years because even normal exercise will cause tendinitis flare ups and pain.
wish all the best for you, you are not alone
Thanks for sharing your experience and glad our video was able to help. 🙏🏼
Hi ! Did he tell you how big the chest should be? I have the same restriction and I am waiting for an answer
Thanks for sharing. I suspect I have this as well ( I have all the symptoms ) but they have never tested for the gene mutation and always dismissed when my MRI and x ray look normal. Could they try biologics for you ? It has helped a friend of mine with rheumatoid arthritis
Can you give me info on how you know you have that?.. I'm 30 since I was a lil girl I had this i hv notice that I have short torso I can't sleep 😕
I think this is the best description video I have seen for Ankylosing Spondylitis, thank you. I am an AS Warrior. 💙
Thanks for the feedback, Monica! 🥰❤️🙏🏼
Super informative, as a curious Ankylosing Spondylitis haver in a medical system locally that isn’t much help, this is very much appreciated!
Glad you appreciate it, Chelsea! 😊
Try quitting all grains, I accidently cured mine recently. 🙏🏼🙏🏼🙏🏼
Grains ?! For Spondylitis ?! A joke ? By the way , billions of people eating grains without problems . The problem is you , not grains
there is no enough words to express my gratitude , but thank you for all your work.
Most welcome, Yousef! 🥰❤️🙏🏼
You found solution ? Thanks to everything ?
this video was really so helpful for my girlfirend, who just got diagnosed. Thank you, it was so valdidating for her to see all the symptoomns and information suymmarized up visually in this way. it makes the condition less scary & she apprciated your video alot!
We're glad that this video helped, Timothy! 🙏🏼
I'm in my early 50s and have been suffering from AS probably since my late teens, although it was only 13 years ago that a doctor could put a name on my condition, which has been a handicap for most of my life. Recently, 3 years ago, besides the medication and other medical treatments, I started to practice indoor rowing, a sport which if it's done properly, with the proper mechanics, can contribute greatly to muscle your back (actually about 76% of your body muscle). I found great benefits in that sports to reduce my pain as well as to get back in shape. A few months ago I was even able to row 100 km in one sitting. I would personally recommend this kind of back muscle reinforcing sport - as well as swimming or yoga I've been told - to fellow people suffering from AS.
My father got AS at 19 in the army he died 3 days ago at 82,5 he had AS and COPD he closed his eyes at the hospital then he was gone he simply decided that it was his time he didn't want to experience the risk of a wheelchair and oxygen assistance he told me "if i can't walk on my own then i will stop taking my medications" R.I.P. dad you were a warrior 1941-2024
i'm 32 and i have had AS since 20/21 it's hell on earth he had a older son who died at 46 had severe AS it was a heart attack the heart exploded so yeah AS is quite scary...
My condolences for your losses. I was in no way minimizing the hindrance that constitutes such a disease @@eivindgjengstjohansen9625
Sorry to hear. Im 40 year old male and I was diagnosed with AS aroun 15-16. Before that I was misdiagnosed with rheumatoid fever first then rheumatoid arthritis. I had the good fortune to become a case study by one of the best immunologist in Australia at the time in mid 90s. At the time it was not common to accept juvenile arthritis, especially AS. Through the immunologists dedication eventually it was confirmed I had AS. But it would have been simple form them to see my grandma had and HLAB27 in young male can trigger onsets. My case went to prove and break the stigma that AS is only an disease for old people and mainly females. I even was taking vioxx from trial stage (honestly it was one drug did give me mobility back). AS at my teen age effected me a lot. I didnt get to participate in activities most kid did, like play sports because I was too sheltered. Only to learn later being active and mobile is best form treatment for AS. I hope you are managing well. I would recommend going to the gym and strengthening muscles around your joints. Going to allowed stop taking drugs like Celebrex and other strong celecoxib family and avoid their side effects. Stay mobile and stay strong.
I should also add hydrotherapy in warm water did wonders when AS very severe for me. It gave mobilty back when I couldnt move due to AS.
Thank you so much for this video! My mum has had this condition for over 10 years and this was a very helpful explanation of it. Hoping I will be able to support her better now understanding what the problem is and what she experiences. God bless!
Glad it was helpful and thanks for sharing! 🙏🏼
Explanations without solutions
@@TNT-km2eg and?
Last year, I was watching this video to study for my Physical Therapy and Rheumatology exam tomorrow. I was 5th year Medical Student. Now for several months i've been having inflammatory back pain symptoms. Today my used to be rheumatology professor diagnosed Ankylosing Spondylitis with me. Very early stage though; cause i was suspecting with the symptoms that i have, for couple of weeks ... You see it's crazy world out there people. Anything can be happen.
Can you help me with the treatment you are having by yourself
@@sangaypakhrin9207 Well its been 40-50 days since i had diagnosed. I've been using drug called Celebrex. Its a nsaid. Symptoms pretty dull right now so just using that drug. Ive trying to swim and doing spesific streching and yoga exercises but its hard to keep up. Changed my diet, i cut the regular flour breads and high starch containing food. Trying to bake my own bread with chickpea flour or bean flour as such. Cut the packaged food and fried things. Not showing the improvement yet but im dedicated for about 6 months, after that i should see the improvement.
@@talhamumcu790 are you still a medical student ??
I got diagnosed a year ago at 17, which has been fun since I’m also afab. Thank for the quality content!!!
Thanks for the feedback , Remy! 😊
eee,,, only fkin idiots gets inflamation
Been diagnosed since 2012, been taking biologics ever since. I'm lucky that I have two health insurances, one primary and a secondary that covers the biologics because retail, they cost over $6k. I truly feel extreme sadness for folks that have no help financially to pay for the medicine that improves quality of life over this disease. Those folks will just have to suffer and be in great pain until they die off.
go vegan for couple years and ill help you get rid of it,, not even hard lol,, just loads of leafy greens and forced to go vegan minimum,,, nhan not gona say humans are retards they deserve their suffering,,, assholes who dont go vegan deserves to suffer,, fkin love some justice,, dont care about planets and animals,, good,,, people suffer,, dam im very angry right now i prob shuldnt be here
Thank you for sharing this amazing video! ❤️
I'm 24 years old and since two years I'm facing a lower back pain then its developed to another symptoms and I have vistited more than 10 doctors without any result because my blood test and vitamins are normal.
finally before two weeks I have diagnosed with AS as
the HLA-B27 result was positive along with high ESR and CRP.
I'm taking cortisone and antibiotic in order to reduse the inflammation rate and after one month I will do MRI ..
The most thing I hate that everyone was laughing on my pain and keep saying that I'm facing a mental issue !!
Now my company refused to let me work remotely even I have provided them with more than 7 medical reports.. and I don't know what should I do.. now Im active and have less pain, but when I do any movement I fell the pain especially in my hips and knees..
I wish a healthy life for all of us, because this is very painful.
Omg! Hope you get fine soon sister, I'll pray for you♥️🤲🏻allah keep you safe from any disease❤️
I suffer from the same and I’m 29 and married. We are planning to have kids but I’m really scared about how it may go.
Could you please tell me how high was your esr?
I am 23 and I have been going to doctors for the past 5 years, everyone was telling me nothing is wrong with you including family and many doctors have called me obsessive, overthinking it, just spoiled, or that maybe I’m just too emotional / stressed
Thank god I didn’t listen to any of them
@@sondostolba9039 ESR was 81 but I have vistited many doctors and did MRI, finally I discovered that I have stomach inflammation which does the same symptoms of ankylosing spondylitis.
Now I have gastroscopy on March😅
Very helpful indeed. I had a fusion of L4, L5, and S1 nearly 40 years ago because Spondylolistheses had set in. I fear it may have advanced. Would this be possible please?
Thank you very very much.
Very useful!
But therere is smth i would like to listen to.
It's "modic" changes.
would you be kind enough to create smth like that?!
Please share your information I am struggling with AS for almost 10 years and it appears to be getting worst daily. Thank you.
Good luck on PT exams yall
Been waiting for this one because i actually have it
You're not alone 🫂
I was literally diagnosed with it a few days and I’m waiting for a MRI report so that I can start biologics
I was recently Dx w/ psoriatic arthritis, which seems to attack distal as well as proximal areas, organs, eyes, etc.
Very complex, and not fun.
Hope it helped! 🙏🏼
Same here!
Thank you! It was such a helpful video
Glad it helped! ❤️
One of the treatment is a physical therapy it is a very important in AS..
Plzz mention physiotherapy treatment in AS
Definitely helpful !
Thank you so much ♡
You're so welcome, Maryam! 👍🏼
An extraordinary summary as allways! Thank U very much!
Glad you enjoyed it! 😊
Good but missing a lot of information. As an AS sufferer I’ve had to learn all about it thus knowing it’s very complex.
thank you very much Doctors! , it was very good explaine!!
Most welcome! ❤️
Very helpful, I have had this since High School and now I am 40 and still suffering from it. The pain I endured before now I was totally immune by it, it feels like it was normal having back pain. And decided to go into cycling to keep going and ignore this condition.
Glad it helped! 💕
My Dr told me this will last until 40 yrs..... But this pains like hell I can't even walk.... How to deal with this
@@Sweta_thakur711 exercise and stretching regularly,
search the net for more info. Good luck
@@Sweta_thakur711 how r u now? Is there any betterment?
I quit eating all grains just to lose weight, but after only a *few days, it was like it never even happened. And I was getting pretty stiff lol. (and no one in my family believes me lol)
Thank u so much ,u made it easy to understand
You're welcome, Shraddha! 😊
Thank you very much
Thank you for this video. Life with endometriosis and now this, has been complex to say the least. I am only 36, but refuse to give up.
We hope that this video was able to help 🙏🏼
thank you for sharing. can you share more about your experience, like when did it start, how did it progress? thanks
Knowing what medicines are effective and what you're up against I hope makes a difference for you. For me getting the inflammation under control with NSAIDs (naproxen), stretching, and finding good sleeping positions (flat on my back or in a recliner of all things) makes it manageable. I can't go for a jog, but at least I'm not holding onto the wall to try and take a step.
This is helpful for studying and also for explaining to less medical-literate what someone I or they love is experiencing
Good luck in your studies 😅
@@cheesball96 thank you! I've already graduated (for now) but my husband was recently diagnosed with Ankylosing Spondylitis and this is really helpful for him and our families to understand his condition better, because when I'm worried for a loved one I tend to talk like an episode of House 🤦🏻♀️not helpful at all
Glad to be of help, Bella! 🙏🏼
Hi Bella! 👏🏼
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trying to find recent content thanks for this.50 waiting for specialist diagnosis got that gene feel like I been in a car crash for 30 years tired sore flare ups getn longer and way more painful
Glad our video was able to help, Peter. 🙏🏼
Just watched it before my exam thanku so much osmosis 😌
Most welcome! 😊
Loved it! ❤️
Thank you!! ❤️
Thank you!! I just was diagnosed today and this has helped me to better understand what the heck is going on 😂 I appreciate this content
Thanks for letting us know, Eliza. 🙏🏼
So , what are you going to do about it , now that you understand it so well ?
Thank you 🙏
The conventional DMARDS like methotrexate and sulfasalazine are not effective for axial spondyloarthropathis like ankylosing spondylitis, rather the biologics are used.
Illustrations👌.
32 years old, got this dieses when I was 28 years old, took 4 years to get it on paper
Thank you it's very helpful
You're welcome! 😊
On 2:09 you said that the gas come out the solution -and that what causes the noise?
Thanks a lot for you videos!
Well i have aortic regurgitation qnd a painful back for four years since a hip op andnat some time w as told it wasankylosing spondilitis but nothing was done. I am bedridden most of thr time and have all the symptoms 3xcept the eye you describe. My son has just had ozone therapy is there any chance it might help.? I still take depalgos for my hip replacement but take it for depression and anxiety
Will this always show up in an autoimmune panel?
Hi all, I am 54 year old male , just diagnosed with this after years of much pain , however upon reading your posts from this and other sites I think I may have had this much longer probably mid-teens my problems started , cartilage exploded in my right knee then 2 years later massive bone spur removal same knee , I was born with both feet broken and remember wearing special shoes , not quite Forrest Gump...... but over the years I've had 5 procedures on my knee as well as surgery on both shoulders full tear rotator cuff and at present have a thickened achilles which is rather painful and have binocular diplopia , can any of you guys say if this condition messes with your blood sugar ?? I am and have always worked hard at my job and am reasonably fit but not so sporty !
When my neurologist showed me my mri results I have to say I felt alarmed on the slides he showed me my neck and lower back degeneration disc pushing inward toward spinal cord , he did want to discuss surgery but I didn't ,not ready for that !!
my rheumatologist doctor said that i have AS, on / off inflamation in SI joint (bilateral) common in right side, NEGATIVE TO HLA-B27 , and negative to RHEUMATOID FACTOR, any second opinion for my case?
I came across this video by accident, whilst browsing, and noticed, for the very 1st thing, something called Enthesitis in the outer ankle ball 😳.
I've been suffering with this chronic pain which affects my legs so much, I often cannot walk well or properly. It feels increasingly like preclampsia without the pregnancy (I know the experience as suffering with this before birth of my son for several weeks prior to his birth).
What I would like to know more, in detail, what I can do, if possible, to decrease its overall affect on my mobility problems which, without spelling it out, affects my balance on a daily basis. I'm consistently having to use a clutch or two to get about, particularly during hospital or town visits. I know this isn't helping my gait but feel more confidence in using this more due to the upper arm/body support clutch 'offers' compared to a walking stick(s).
Any advice/suggestions would be great 👍.
And thank you for your useful video ❤.
Good presentation
Glad you think so! ❤️
I was diagnosed with this 35 years ago from xrays.
It was devastating.
Major pain in lower back and resonating all through my limbs.
Two small children, told to get someone to look after them and lie down for 3 months.
Instead I forced myself to move as much ad possible.
I met a healer who told me, simply stop eating pork.
I being young thought " what monsense"
In the meantime I'm up and down with pain but persevere.
A few years later, again another healer says don't eat pork.
So I did cut out pork.
No pain full mobility.
I decided after 6 months to eat pork.
I was crippled with pain.
Since then I never ate pork and have no problem.
I need to add that I am also highly sensitive to any processed foods so I only eat natural foods, no fast food or processed food.
Description keep it up
I can confirm, it feels like a chronic pain in my ass
My HLA-B27 has come back as positive after months of sacroilliac inflammation and increased pain. It appears i have this condition and am seeing my GP next week. I’m scared as i recently qualified as a nurse and i’m unable to work at the moment and have been off sick for 3 weeks.
Got my hla b27 gen positive in my last blood test…I had horrible pain in my knees for last 13 years (I am 26 so it’s been half of my life in pain) few years ago I developed also lower back pain…Now I am waiting for rheumatologist appointment to get x-rays and diagnosis.
I had so much pain in different parts of my body… No one believed me because I am a young female… My knees, my back, my neck, my chest and sometimes hands… Extreme fatigue…when I was 15-17 I was sleeping most of my free time (still nobody noticed that something could be actually wrong with me)…
This is crazy to after so many years learn that I’ve been living with chronic condition… My GP suspects ankylosing spondylitis but I we will see what the rheumatologist says.
And previous doctors all this time were giving me supplements with glucosamine, stretching exercises and physiotherapy… They would know if they would have done stupid blood test for arthritis with HLA B27… I am So disappointed, tired and angry that for all this time I thought it’s all my fault and I am just lazy and the pain is either my fault or in my head.
I'm facing the same issue exactly Im 24 and no one believed me, I had visited more than 10 doctors, before two weeks the HLA-b27 was positive and I have diagnosed with SA and now im taking cortisone and antibiotic and after one month I will conduct MRI to make sure 100% if this is a ankylosing spondylitis.
I hope you will get better soon, don't forget to do the lower back exercises
It's infuriating. I don't know how fatigued normal people feel, but all I think about is laying down. It's the nicest thing. And sometimes your whole body just aches like it's...IDK, trying to destroy itself from the inside. Bowel pain, ribs, hips, spine. I'm 36 now and felt like geriatric since I was in highschool.
Aip fixes my spinal issues. Autoimmune paleo diet. Leaky gut is the issue
This diseases will try to reduce your Flexibilty and slowly fuse and restrict all your motion, if you let it to do. You have to stand strong and not allow it to progress. Take a pledge that you will win this fight. It will check your patience and courage. stay strong and defeat this. GOD have given you best Opportunity/challenge and this journey will teach you lot.
I needed this brother , thank u
would anybody know what is the data on ankylosing spondyitis and cancer does anyone know
I have had this disease in 24 years now, but the diagnose in 14 years.
I have put this disease in total remission by fixing my digestion, eating healthy and supplementing Betaine HCL (In necessary periods) and Vitamin B1.
I am 3 years without any medication or medical help now and have almost no issues at all.
Please help! My daughter now 21 was diagnosed 3 years ago. No one talks about cures so I am searching. Where do you get the Betaine HCL? Which company do you use for Vitamin B? This is definitely worth looking into with a doctor. I would like to stop this before it goes further. She can't open her mouth fully or turn or lift her head. This came out of nowhere. What diet suggestions do you have that have worked?
Thanks in advance
Would love more insight about what you did exactly sir
@@erenyalcn31 See my answer above. Thats what i did exactly.
@@kickilicoff What do you mean by "fix my digestion"? What kind of a diet do you have?
@@erenyalcn31 See my answer to Karlethia Thomas above. You must open all the answers in the conversation.
Can please give the book refference for this???
Hi! Here are the sources used:
"Robbins Basic Pathology" Elsevier (2017)
"Harrison's Principles of Internal Medicine, Twentieth Edition (Vol.1 & Vol.2)" McGraw-Hill Education / Medical (2018)
"Pathophysiology of Disease: An Introduction to Clinical Medicine 8E" McGraw-Hill Education / Medical (2018)
"CURRENT Medical Diagnosis and Treatment 2020" McGraw-Hill Education / Medical (2019)
"The ramifications of HLA-B27" JRSM (2003)
"The development of Assessment of SpondyloArthritis international Society classification criteria for axial spondyloarthritis (part II): validation and final selection" Annals of the Rheumatic Diseases (2009)
I just got to know i have it and it just sucks. My dad and his brother also had it. I feel stressed
ty
My father got AS at 19 in the army he died 3 days ago at 82,5 he had AS and COPD he closed his eyes at the hospital then he was gone he simply decided that it was his time he didn't want to experience the risk of a wheelchair and oxygen assistance he told me "if i can't walk on my own then i will stop taking my medications" R.I.P. dad you were a warrior 1941-2024
i'm 32 and i have had AS since 20/21 it's hell on earth he had a older son who died at 46 had severe AS it was a heart attack the heart exploded so yeah AS is quite scary...
Can this cause chronic inflammation in the knees? I have the HLA-B27 gene but I do not have back pain or pain anywhere else but my knees. Celebrex did not help.
Hi Austin. I'm not a medical professional. But I've been living with AS for over 20 years. And I have had chronic inflammation in my knees to the point that it was very difficult to walk. But I' 'm doing really well now and my knees aren't severely swollen anymore.
What about the medication treatment registered in Russia recently?
I have this as well as many other painful diseases such as lupus, cervical discogenic disease to name a few. I cant sleep on my belly i get stuck on my back, and my spine feels like a closed accordian that needs to open up.
Im 35 and i just got the diagnosis for AS on oct 13th 2022 ive had it since i was 12 years old along with fybromyalgia digenerativ disk deseas slight cace of scoliosis . I feel like my back is a closed acordian in the mornins and im stiff when i get out of bed i cant lay on my stomach i get stuck on my back ... i got two epidurals in my lower back one at the end of 2021 and the begining of this year ... it helps my siatica a bunch ... but my lumbar is so messed up i feel like ive beed sawed in half at the hips my upper back mid back are fudged up i cant even wear a bra and im a dubble d .... im on disability since i was 17 years old it took me three years to get approved . . My buttox hurt so bad my hands elbow feet and knees ... ive had left knee surgury from a fall but my knee surgury didnt heal very well ... ive always had bad ankles and knees my knees always went off track and locked up ..... and then swelled up from locking .... sometimes id rather be in beaven than deal with this pain any more but im pushing on . The worst part is family that thinks ur lazy and that nothing isnt really wrong with us because we look healthy ly joints and tendons hurt so bad .... if anyone drinks soda stop its bad for AS ... any suggar or processed food stop ..... i have to stop because i dring soda it makes it worse .... anyway i hope you read my message @MelanieDawn ....Im 35 and i just got the diagnosis for AS on oct 13th 2022 ive had it since i was 12 years old along with fybromyalgia digenerativ disk deseas slight cace of scoliosis . I feel like my back is a closed acordian in the mornins and im stiff when i get out of bed i cant lay on my stomach i get stuck on my back ... i got two epidurals in my lower back one at the end of 2021 and the begining of this year ... it helps my siatica a bunch ... but my lumbar is so messed up i feel like ive beed sawed in half at the hips my upper back mid back are fudged up i cant even wear a bra and im a dubble d .... im on disability since i was 17 years old it took me three years to get approved . . My buttox hurt so bad my hands elbow feet and knees ... ive had left knee surgury from a fall but my knee surgury didnt heal very well ... ive always had bad ankles and knees my knees always went off track and locked up ..... and then swelled up from locking .... sometimes id rather be in beaven than deal with this pain any more but im pushing on . The worst part is family that thinks ur lazy and that nothing isnt really wrong with us because we look healthy ly joints and tendons hurt so bad .... if anyone drinks soda stop its bad for AS ... any suggar or processed food stop ..... i have to stop because i dring soda it makes it worse .... anyway i hope you read my message @MelanieDawn ....
@@10love10me yes i def get it, im 42 and use to be very active but now i feel like im wasting away. Its much harder to do anything. Ive tried so many things to relieve the pain and nothing has worked so far
I just figured out this year that this AS is what I have. I get the pain whenever I eat candy or something with chemicals like aspartame. I fast and it goes away. Now I'm wondering if not eating gluten will help. Have you tried cutting out gluten or the chemicals?
@@10love10me have you tried cutting out gluten or chemicals like aspartame?
Thank youuu
You're welcome! 🙌🏼
i have ankylosing spondylitis for more than 20 years and with bamboo spine the last 4 years i have thoracic scoliosis i went and did the hla-b27 gene test and it was negative is that normal ?
Can you share your experience.
My hlab27 is negative . Esr ,crp and x-rays are normal... I have every symptom of stiffness in my neck 24*7. I can't move my neck in all directions.
What should I do. ?
It might be a neck disc or a muscle strain, you must vist the orthopedist.
The best treatment that can be taken for ( Ankylosing Spondylitis ) is high doses of vitamin D + vitamin K2 and magnesium, in addition to swimming in hot sulfurous waters and practicing stretching and flexibility exercises, especially under the warm sunshine!! Reduce your intake of carbohydrates, sugars, pastries, and white rice
Iam 19 and i have it. What this video forgot to mention is that even if you dont have HLAB27 gene you can still get it. Experience you ask? Really bad. both my knees and both my shoulders have become extremely weak.
🙏🏼🙏🏼🙏🏼
I am also 19 year old and I'm also suffering from this disease 😔 my SA joint,backbone and shoulder were involved,its a rare disease only a good rheumatologist can diagnosed it ,Alhamdulillah i feel better now im still taking medication and injection to prevent it in future
one of the first people to comment
My partner was recently diagnosed with this has anyone got any information on excersize whilst having a.s. thanks in advance
Also very big thanks for the information 👍
What are the treatment given for this disease, is this cure able?
I hope he will get better soon, he must do physiotherapy sessions and Lower back exercises.
@@farahalali931currently he is under chiropractic treatment felt better after 2 session but now his knees are swollen and couldnt walk or do any exercise
@@karthigag9624 Hi. Unfortunately AS isn't curable.
Saviour🙏🙏
Cell lines WI-38 and MCR-5. My life turned into 🔥🔥🔥 after the MMR 💉
I’m being tested for this now after one Covid jab. Perfectly healthy before……
Can it causes height loss even among the young adults😰?
my dad has this
Recently had mri to help diagnose me doctors said I have dna thing called hla b27 positive just waiting on results but I have daily pain in back and and hips and other joint and sometimes chest
Same here, what did they say?
Same thing happening to my husband
What is the remdy 😕?
Perfect
Thanks! 🥰❤️🙏🏼
Can anklosing spondylitis cause foot drop ? Or neuropathy nerve damage?
Yes
I had exertional compartment syndrom/foot drop and I have AS
Im 35 and i just got the diagnosis for AS on oct 13th 2022 ive had it since i was 12 years old along with fybromyalgia digenerativ disk deseas slight cace of scoliosis . I feel like my back is a closed acordian in the mornins and im stiff when i get out of bed i cant lay on my stomach i get stuck on my back ... i got two epidurals in my lower back one at the end of 2021 and the begining of this year ... it helps my siatica a bunch ... but my lumbar is so messed up i feel like ive beed sawed in half at the hips my upper back mid back are fudged up i cant even wear a bra and im a dubble d .... im on disability since i was 17 years old it took me three years to get approved . . My buttox hurt so bad my hands elbow feet and knees ... ive had left knee surgury from a fall but my knee surgury didnt heal very well ... ive always had bad ankles and knees my knees always went off track and locked up ..... and then swelled up from locking .... sometimes id rather be in beaven than deal with this pain any more but im pushing on . The worst part is family that thinks ur lazy and that nothing isnt really wrong with us because we look healthy ly joints and tendons hurt so bad .... if anyone drinks soda stop its bad for AS ... any suggar or processed food stop ..... i have to stop because i dring soda it makes it worse .... god bless all who have this disease -disorder 🙏
Hi Sarah I am 37. I was diagnosed just last month as well. Like you I have always felt the dull lower back pain growing up as a child as well as the fatigue. Before covid I was a very active person. Right now most exercises hurts where I use do most exercise without pain, right now I am having pain. My aunt told me that I am making up the pain that I explained. This was before I was diagnosed. Every day is a struggle I struggle to get out of bed because of the fatigue. If the fatigue lifts I am just in pain. Thank you for writing this. I appreciate it
best animation !!
😂
I have AS. I started when I was 21 year old. Pain is unbearable and it’s keep getting worse and worse. Even though I’m on medication. Now i think I won’t able make my 30.
Hi, I've been living with AS for over 20 years. I have found it takes a lot of experimenting with food, medication, and exercise to find a process that can work to reduce pain- which I have done successfully. Stay strong. Words are mighty so use words to make yourself feel better.
Brother what medicines do you take
I'm suffering with this 👍
Sorry to hear this. What's your biggest issue in dealing with AS?
Thank you for explaining this so simply. I like to be informed so that I can speak to my doctors on a higher level.
Edit: It would be good to mention that the pain can be extremely severe and flare ups can be VERY sudden. TMJ is common with AS (you didn’t mention that). In my case, the TMJ pain is so severe that it causes excruciating pain & sudden vomiting (literally no warning). I take Omeprazole but most of the time the pain is so severe that even that drug does literally nothing to stop the vomiting. It genuinely feels like I’m dying when the pain is that bad. Unfortunately the ER is useless because they don’t seem to grasp that, so they treat you like you’re drug-seeking when you just want to not feel like you’re dying. GP’s are afraid of giving out *realistic* pain prescriptions because the College of Physicians are afraid of opioid addiction -but they don’t seem to worry about suicide because of extreme pain. Most patients just want to suffer less (tolerable level), and it doesn’t really matter how that happens; we would rather be cured/ “fixed” than take medications for our whole lives, so medications are just a means to an end.
In my experience, I try to take the least amount of meds possible because I know they’re bad for my organs long term, but I often have to take them anyways because of that dying feeling. I wish that doctors would understand that medication is not the first choice for everyone; it’s a last resort, but if people like me who are responsible with our meds are saying we need something stronger *occasionally*, PLEASE listen. It’s really unfair to under-medicate us because your College says so. Im so tired of being depressed because of always being in pain. That’s unfair to me and others like me. We just want to try and enjoy our lives but we can’t if we aren’t being helped properly.
Btw: My pain clinic suggested taking Magnesium regularly to help with the pain btw.
U take magnesium? Like m suffering from same and don't know wat to do.... In my case even pain killers are not helping me....
@@Sweta_thakur711 yes, I take magnesium. I also use CBD & THC for moderate to severe pain. I have Tramacet from the dr for days where the pain is unbearable
Does the magnesium help?
I have ankylosing spondylitis and rheumatoid arthritis.
😅
The gene runs in my family, and just found out I have it too..
bamboo spine or in fact any radiographic evidence of AS/fusion is WAAAAAY toooo late to treat. New gold standard s/b MRI of SI joints with Gadolinium contrast, looking for subtle signs of bone marrow edema, then treatment can be specific, targeted and timely.
15 feb
I m 25 yrs old and suffering from AS... Don't know wat to do... This pains like hell.... Drs only provide pain killers.... Please help me if anyone knows any cure for this....
Same here!!🥺
Try Ayurveda treatment ,
I m 26 yrs old and suffering from AS , I m taking tofactinib 5mg daily , and exercise is only gonna help you , please do exercise and yes regular walk .
Well i was also suffering from AS. I Was not able to sit or walk. But now I am perfectly fine. I had done 2 years of treatment from DR. CP Manwani and got well. If you want I can share the prescription. Or else I am thinking to upload a video on how I had overcome this disease.
@@ShoaibShaikh-sb2lg can you please help me brother by giving this doctors information
It’s the most painful disease known to man
If you get AS, choose martial arts as your way of taking care of your body. Do this and my will live a perfectly, or at least close to a normal life.
It is "Spondylitis ankylosans". Ankylosyng ? Losing ? Joking ...
Trust me, It Sucks!!!
Yep It does suck, having it when I was 18 years old very strong pain in my hips Unable to walk or sleep or do anything went several doctors mostly neurologist and they give just pain killers after having it from more than one year I have done a MRI prescribed by An ortho doctor which shows sacroilits and Hlab27 Postive I m just 19 whole life is left Too many works and dreams left ,
Hope almighty Help me
@@Envy.1234 any update
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This diseases is curable and it will make you better human.
How so?
How???
Really I do NOT understand this presentation, some but not all 😢
Lucky me 😁🔫
would anybody know what is the data on ankylosing spondyitis and cancer does anyone know
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