Hi Lauren, I have MG and it started in 2012. I had the symptoms you describe. My symptoms started to go away after I started a vegan diet and after four months I am now 95% symptom free. I am still taking Mestion for slight jaw voice impairment. Info on autoimmune disorders can be found in the book The China Study. I also improved other health parameters as weight loss, cholesterol down 40 pts, BP down to 110/60. This is a life style change but eliminating animal protein from my diet was essential to my recovery. There are no bad side effects with the change to vegan diet. Be sure to take a B12 supplement.
Hi it feels great to see other women with the same condition I was diagnosed with MG when I was 9 yrs of age it's been a rollercoaster I was in remission about 4 yrs after I had my kids and while being pregnant it flared up my youngest is 2 yrs old and it's like my mestine isn't working my kids have Autism my pregnancy was very high risk I'm thankful to god they are here I just hope god keeps me around to at lest see them grow prayers to u and everyone withMG much love
How was it being pregnant and having MG? I think the symptoms of MG started happening in 2009, but i wasn't diagnosed until 2013. I think a year after I had my son, it just became so bad all at once.
Hey thanks for response I was pretty good pregnant with both kids until I got like 7 months with them really when I got heavier it start flaring up both my kids I had to have csections with being I was high risk and my drs did not want me pushing due to the Mystenia both my kids are Autistic though aftee my son who is 2 now my symptoms are out of remission ang I believe I need a bigger dosage in taking 60 mg my right eye drops, fatigue , shortness of breath all of the above and the stress with all the kids appointments make it worst . Stress ,weight gain ,drinking , smoke , anything over exzert the body makes Mg flare up , ur energy is restored through sleep so sleep we have things to do but our health is more important
I did em' all (plasma, thymectme, meds). I had the catheter in my chest (6months), didn't help, but like the other person said, "Worth the risk." My left eye has been completely closed for 3 months now... Only, "snowflakes," understand. Even my neurologist seems as if he thinks I'm not as bad as I lead on. Oh well! We that have it, KNOW THE TRUTH!
+Jazz Washington I've had a lot of change over the past summer: No thymectomy as of yet though.... If you haven't subbed yet, please do, I'm going to be doing an update on the MG and Diabetes
+Lauren Jones You have to research and find what works for you. As for as me, I was tired of being 50 plus pounds overweight (which made the disease worse (mentally and physically). My right eye was closed for 6+ months. I converted to vegan and it opened within 4 weeks. Then I had double vision afterwards and now that's gone. Remember most auto immune and other diseases THRIVE on sugars, junk food, and animal meats that more than likely have hormones, unknown and undocumented things. #SomethingToConsider
I've had MG since 05. I had the surgery done in 06. Did it help me? I don't think but it was worth the try. The last time I've had any flare ups was in 2010. The last one was the worst. I had every symptom. I was basically paralyzed. My muscles felt like mashed potatoes. If you ever get to the point where your throat swell up in the morning, instead of putting you meds in your mouth first try to drink a drop of water to make sure it goes down. I damn near died from a drop of water. Trust me in time it all will pass. The only thing I take now is prednisone 5mg and one a day vitamins. I started praying everyday since then instead of just when it happens.
That's great about your remission, I haven't had any serious flare ups since doing this video, just the general fatigue, lazy eye lid, and a little bit of hand weakness.... Thanks for watching and I will be doing a follow-up video this week... please stay tuned for that
My niece has MG and is taking 120 mestinon every 4 or 5 hrs and 180 for nite dosage…also takes presinone and when had a crisis in hospital had IVIG for 5 days in a row. Is stable now….have not heard of cellcept yet. Does you medical plan cover all the medications, here in PR it is extremely expensive…how do you manage that?
Hi Lauren,
I have MG and it started in 2012. I had the symptoms you describe. My symptoms started to go away after I started a vegan diet and after four months I am now 95% symptom free. I am still taking Mestion for slight jaw voice impairment. Info on autoimmune disorders can be found in the book The China Study. I also improved other health parameters as weight loss, cholesterol down 40 pts, BP down to 110/60. This is a life style change but eliminating animal protein from my diet was essential to my recovery. There are no bad side effects with the change to vegan diet. Be sure to take a B12 supplement.
Thanks for sharing, I'm still in the diagnostic process but they suspect MG...
oldtimefreedom Well thanks for watching, What symptoms are you having now?
You are so strong! It's so great to see you have support of your hubby! Keep sharing I have learned a lot from your videos. :)
Thank you cousin and thanks for watching, love you!!!
Hi it feels great to see other women with the same condition I was diagnosed with MG when I was 9 yrs of age it's been a rollercoaster I was in remission about 4 yrs after I had my kids and while being pregnant it flared up my youngest is 2 yrs old and it's like my mestine isn't working my kids have Autism my pregnancy was very high risk I'm thankful to god they are here I just hope god keeps me around to at lest see them grow prayers to u and everyone withMG much love
How was it being pregnant and having MG? I think the symptoms of MG started happening in 2009, but i wasn't diagnosed until 2013. I think a year after I had my son, it just became so bad all at once.
Hey thanks for response I was pretty good pregnant with both kids until I got like 7 months with them really when I got heavier it start flaring up both my kids I had to have csections with being I was high risk and my drs did not want me pushing due to the Mystenia both my kids are Autistic though aftee my son who is 2 now my symptoms are out of remission ang I believe I need a bigger dosage in taking 60 mg my right eye drops, fatigue , shortness of breath all of the above and the stress with all the kids appointments make it worst . Stress ,weight gain ,drinking , smoke , anything over exzert the body makes Mg flare up , ur energy is restored through sleep so sleep we have things to do but our health is more important
Wa'na B hi I have mg I live in California is there a support group
I did em' all (plasma, thymectme, meds). I had the catheter in my chest (6months), didn't help, but like the other person said, "Worth the risk." My left eye has been completely closed for 3 months now... Only, "snowflakes," understand. Even my neurologist seems as if he thinks I'm not as bad as I lead on. Oh well! We that have it, KNOW THE TRUTH!
+Jazz Washington I've had a lot of change over the past summer: No thymectomy as of yet though.... If you haven't subbed yet, please do, I'm going to be doing an update on the MG and Diabetes
+Lauren Jones Subbed? Not sure what that is but I have went on a vegan diet and have had MAJOR result changes. Just something to consider..
Jazz Washington it's short for subscribed to my channel, lol; but I like meat!!!! what do you like to eat as a vegan?
+Lauren Jones You have to research and find what works for you. As for as me, I was tired of being 50 plus pounds overweight (which made the disease worse (mentally and physically). My right eye was closed for 6+ months. I converted to vegan and it opened within 4 weeks. Then I had double vision afterwards and now that's gone. Remember most auto immune and other diseases THRIVE on sugars, junk food, and animal meats that more than likely have hormones, unknown and undocumented things. #SomethingToConsider
Great video..18 year warrior here, sharing
Thanks, please check out my other MG vids; It will be 3 years for me in December
18 years in July..my twins are 19
I've had MG since 05. I had the surgery done in 06. Did it help me? I don't think but it was worth the try. The last time I've had any flare ups was in 2010. The last one was the worst. I had every symptom. I was basically paralyzed. My muscles felt like mashed potatoes. If you ever get to the point where your throat swell up in the morning, instead of putting you meds in your mouth first try to drink a drop of water to make sure it goes down. I damn near died from a drop of water. Trust me in time it all will pass. The only thing I take now is prednisone 5mg and one a day vitamins. I started praying everyday since then instead of just when it happens.
That's great about your remission, I haven't had any serious flare ups since doing this video, just the general fatigue, lazy eye lid, and a little bit of hand weakness.... Thanks for watching and I will be doing a follow-up video this week... please stay tuned for that
im a MG patient combined with RA. i was just wondering whats your update on your MG symptoms. thank you and take care
I'm uploading a video update for this, please check it out
+Lauren Jones okay thanks
Hi I also have MG have you tried pyrostigmine med. It works for me.
I've already been on and tried that, it doesn't work for me
I'm so sorry my goodness... I'm praying for you.
What medication are you taking?
Right now I'm taking Cellcept 1,000/day, ocassionally Mestinon, and IVIG every week for maintenance.
My niece has MG and is taking 120 mestinon every 4 or 5 hrs and 180 for nite dosage…also takes presinone and when had a crisis in hospital had IVIG for 5 days in a row. Is stable now….have not heard of cellcept yet. Does you medical plan cover all the medications, here in PR it is extremely expensive…how do you manage that?
+val255 Thankfully I do have really good insurance that covers all of my expenses, so I don't have to worry.