@@juiceboxbzrk I find yoga and meditation helps a great deal. I notice a difference on the days I do yoga and the days I don't. I do yoga to Yoga with Joelle on RUclips
To everyone suffering from fibromyalgia, aerobic exercises like walking/swimming/cycling as well as meditation, muscle stretching and strengthening..good sleep..healthy diet (Minimal junk, minimal sugar) has helped me massively to keep going through the days..with good energy, good mood..the pain is still there but in very lesser intensity..Live healthy and active..that's the mantra for fibro..I wish healing and happiness to all those suffering through this disease.. Remember Fibro is NOT a progressive disease...and with discipline, some patients have even reported to remission of symptoms.. Yes we can do this!! ❤️
I was thinking the same thing. You get back and have to sit for at least a half hour because your feet hurt and it actually feels like you walked for miles. Hopefully you have left overs for dinner because lets face it, you ain't going to have the ability to stand and cook now. You do some squats (I do this often) while brushing your teeth in the morning and than wonder why 2 day later why the back of your legs are sore. Lets face it, these well meaning people really have no friggin idea what life is really like. We have to plan our whole day out around pain and endurance.
I’ve had fibromyalgia since I was 25. Not at 58 I still suffer from major pain everywhere. I also suffer from degenerative disk disease, chronic cluster/.migraines. I’ve tried bio-feedback, nerve blocks, massage therapy, drugs, acupuncture, herbs, nutrition and reconstructive therapy via an Osteopathic orthopedic specialist referred to me by The Boston Pain Clinic, and 100s of other conventional as well as non-conventional treatments that you can think of. Nothing has ever helped except for deep tissue massages every 2 weeks that allows me to remain partially mobile. While I completely understand the concept of educating an individual on the process and factors involved since I am a retired Special Education teacher that specialized in abnormal behavior/ deviance disorders, I can state this does nothing at all. I’ve experienced a few short periods of remission, but it never lasts long. I’ve spent thousands of dollars on mattresses, massage tables, tens units, herbs, minerals, pillows, creams and special diets with nothing to really promote as being effective. Fibromyalgia can and does cause other conditions that are damaging to the body. Classified as an auto immune deficiency, I can attest to the easy at which I contract viruses, thyroid problems, system, and chronic digestive issues. All which are symptoms of having fibromyalgia. Really wish you guys would do an updated video. Respect!
All thanks to Dr Obinyan on RUclips,he has restored happiness to my aunt life,my aunt recommended treatment from him,to her greatest surprised,it work perfectly 💯💯🌿💚💚...
My heart breaks for you. I have 50 years in now. Exhausting. I would love to shut my nerves off. I recently tried the PTSD shot but it did not help. We have great inner strength.
After reading your comment, I kinda wish YOU would make a video. You seem to know far more through experience and trial and error. I think you can teach others a lot about Fibromyalgia ❤
I was just recently diagnosed. I’m always here in the comments but now I have my diagnosis and I’m so happy to see you have a video on it! You guys truly are the best’
I am so grateful for these guys. I have had both R and L total knee replacements in the past year and their advice and exercises augmented my PT and their videos have been instrumental in my recovery. I also have fibromyalgia and your exercises and advice are spot-on. I am an RN working three 12-hour days per week and I’m doing very well. Their humor is also good medicine! Thank you, guys!
just a note, I have fibro and i have a heart rate from 90-100 just standing still... the other people I've talked to with chronic pain have similar high heart rates.
@@whitekitten05 I also get severe chest pain at rest but worse when walking or inhaling a cold wind ! It took 4 Doctors to finally diagnose me with Fibromyalgia and even Codeine Phosphate doesn't relieve it. I have had numerous ECG's and X-Rays which were negative and satisfactory.
People here comment on walking. I have been living and working with FM all my life, Twenty Nine years since A major flare that has altered my life. Yes I deal with all the symptoms of FM. I was lucky. In 1991, I met a PT that worked with FM patent's and worked with me. I could not function, work any thing. It took over six months of working thru pain. Yes made worse by even walking. Now after nearly three decades, I still walk almost every day even if I feel so bad you just want to die. At least you can smell the air, walk around the block. I walked over four miles yesterday. And yes I came home exhausted. Today ? No flare ups from my activety. If you let FM win. Inactivity makes it worse. I tell you. Just get out and walk. Yes it gets worse before you get better. No walking doesn't cure FM. Just makes your life a little better. Naproxen Sodium helps with the pain. Same thing as with walking. Over the counter 230 mg Taken two pills three times a day. If I can I maintain at two a day, Its the only thing that I found that helps. So just get out of bed and walk.It takes effort,working thru the pain. One day you will look back and say wow. Walking has been a big part of my life. I still feel like crap. Some days worse than others, even so bad I cant walk. I do work also. It can be done, I have met other FM that walk also.
I never even managed to get diagnosed. After going from specialist to specialist, and loosing the job that provided health insurance, I gave up on doctors. I just tried to push through the pain and treat myself. This past year I gave up on even that. Now at least I finally look like I feel. Edit: I'm finally on Medicaid. So, I'm finally seeing doctors again. So far Fibromyalgia is one of the things that is being treated and we are looking into other autoimmune diseases as well. And I did test positive for Lyme disease antibodies. So, I have had it in the past. I think it is very likely that Lyme disease is what initially triggered much of the rest. But at least now I have doctors who are trying to help me. That gives me hope.
I do not eat fast foods,processed foods.fresh vegis,chicken,salmon,turkey,sweet potatoes.hardly any sugar,good grains.this has helped alot.i walk everyday 3 to 5 miles.i force myself to do it.my pain has decreased at least 50%.i also use doterra natural vitamins,omega oils and cell builders.
The deep breathing that I use is to inhale for a count of 8, hold 4 seconds, then exhale for 8 seconds. I have educated myself about Fibro for the entire 21 years, since I was first diagnosed. I find it very helpful to learn about the disease. Progressive Muscle Relaxation videos are free on RUclips.
Not one video tells us really what to do.i suffer from horrible horrible fibermyalgia.my fatigue is devastating.i have been to doctor after doctor.nothing.what do we do.please help us who suffer.
I’m also suffering, but, have herniated disc in my back, and hip bursitis,(amongst other things) and, don’t know if it’s the fibromyalgia, or the back problems, but, I DO KNOW, there is no quality of life anymore 😞
I didn't find this video to be particularly helpful, though I do appreciate the effort. I'm not sure how useful that book is. I've known that fibromyalgia pain isn't causing actual harm to my body since shortly after I was diagnosed, but that doesn't help me to not hurt! I hurt 24/7 - there is not a second of the day that something (usually most of my body) doesn't hurt. A good day means I'm at 2-3 on a scale of 10 - on a bad day I feel like I'm dying. Knowing that I'm not actually dying does not help the pain to go away. In addition (and quite ironically), I actually have a very high tolerance for pain. As a gymnast, I broke bones, sprained muscles and even hit my leg so hard I actually killed part of my muscle (according to my doctor), but would continue practicing without telling anyone until after practice was over. That being said, one issue I face is not knowing whether my pain is real or fibro. Sometimes I can tell the difference, but not always! I have found out that I actually broke my wrist a few years ago, but had just assumed it was fibro and so didn't seek treatment. And the list of things you guys read as causing the pain to flare up are kind of ridiculous. It makes it sound like we're all just head-cases, that if we wouldn't worry we'd just suddenly be healed! I don't really have any of those worries - what causes me the most pain is lack of sleep! The less sleep I get the more I hurt! It just irks me to hear the quotes from that book saying if I just tell myself I'm "safe" and "not harmed" that my pain will be better managed. I have fully understood that for years. In fact, I have had to tell my family and friends that same thing for years - "yes, I hurt like crazy, but it's not like arthritis, it's not actually doing damage to my body, so it's ok for me to......" But does knowing this help to lower my pain level? No, not at all.
Thx for your feed back.i agree with u so much.i suffer terribly.fatigue is terrible.we are not head cases.this disease is devastating.i pray someday we are really helped.thx again.i hope u r doing ok. ❤
So glad you explained about pain. It is usually a signal that something is wrong or needs attention. But education is important in these matters. I had Guillain-Barre Syndrome and experienced some excruciating, exquisite pain that was constant. I usually have a high tolerance for most types of pain and this seemed almost unbearable. My doctor explained there were some meds available, but did not recommend their use. He explained like you did that I was "hurting but not harmed". That became my mantra for several long months. So glad I did not take meds as I learned it can cause short term memory loss. Love your channel! I do some of your exercises and recommend you to my clients as I am a licensed massage therapist.
Thank you for this video! Love your channel. Just ordered the workbook. Having FM is tough. The pain and exhaustion is unpredictable. I've done a ton of work and pain education courses but I need more. This workbook hopefully can be helpful in getting intimate with my pain. The pain is a protection, I agree. For me, it's all related to trauma and my body is on alert. Unfortunately it's a full time job to manage this.
Hi everyone, you guys are great! Lots of good information. I’m a male in 60’s have AS and fibromyalgia. I did a lot of pt in my life but need to credit a yoga teacher for my best fibromyalgia relief. Get a private class to see what you can do and what is best for you. Don’t be afraid to dump a pt or a yoga teacher , they all mean well but many don’t get it. Yoga with the breathing exercises and spinal opening exercises are great ! If I had known what was going on with me earlier I would have postponed where I am. Not negative,just stating that skip the American idea that yoga or pt is weak, do what is needed. It was best thing for me to do, I still do what I can today and am able to keep fibromyalgia at bay. Bless you all , the journey is fun.
Richard McCombs I never thought about men having fibromyalgia. My sister has chronic fatigue and fibromyalgia. I have been sick with pain all my life . Migraine headaches , chronic fatigue syndrome and likely fibromyalgia. Now I really believe my father suffering with pain, was fibromyalgia. He passed away but so sad ,no one understood his awful pain. Now, I have understanding of men with chronic migraine headaches , chronic fatigue syndrome and fibromyalgia. Hope people understand men can get as sick as women with these debilitating health problems. God bless.
I'm lying in bed but can't sleep due to my fibro pain in my legs. After 17 years of this hell, it seems like some medical pros are getting close to understanding this syndrome. I went swimming tonight which turns up my pain level. Thank you for caring about us.
My FMS symptoms come and do. I can go long periods of time with little to know symptoms and then wham! I'm knocked out and don't want to get out of bed. And its not linked up Depression. I know what Depression feels like.
Just wanted to add, systemic inflammatory fibromyalgia is a thing - whenever I have gone to a physiotherapist for my severe fibromyalgia pain, they have all diagnosed real inflammat and injuries / systemic causes for the pain, due to systemic inflammation not just in my brain - so e.g. my feet roll inwards and my hips rotate outwards too much, which led to me developing quads tendonitis and bursitis in both needs (I was unable to walk for around 10 weeks but had severe pain for 2yrs), weakness in my right glute and quad, iv also torn my rotator cuff in my right shoulder from trying to change some bedsheets! And I also get tennis elbow, costochondritis and have pulled my intercostal muscles twice (from coughing, then from being pregnant 1st trimester), and i used to have severe back pain that caused nerve pain all over my body for about 5yrs (that was back when my fibromyalgia started). Oh yh, and iv also got a fibroid tumour in my uterus, poly cysts and an enlarged ovary, PID and endometriosis. So all of my severe pain is due to real inflammatory issues and injuries, not just my pain signals being hyperactive, which is a common misconception about fibromyalgia for some reason. Just wanted to share. Throughout these injuries, all of which I acquired from trying to do normal day to day activities rather than actual things you'd expect to cause an injury, iv found your videos super helpful! :)
“Try and get your heartbeat up to 95 to 100 beats per minute” 🤣 that’s my resting heartbeat even though I’m taking medicine to slow it down. Part of the reason why I’m here lol. No brisk walking for me.
Hey Bob an Brad👋, I'm so happy I found you guy's. I have learned so much about how to deal with my post car accident trauma an injuries. Primarily neck fracture shoulder an back. You both bring me such delight an joy listening how to improve swollen tight muscles an nerve pain with education an especially doing the technique with seriousness coupled with light hearted humor. I find myself smiling when I'm watching almost like you're just talkin to me in my own personal therapeutic session...I'm a nurse by trade started very young in the 80's at 24 when so called proper body mechanics to lift position an turn heavy patients ultimately has hurt me in my later life. Thanks for all you do it really makes a difference in my life each day😌🦋💕
This is totally amazing!! I'm still in shock, it's so unbelievable!! I've been living with GENITAL HERPES VIRUS for 6 years, I'm so happy I got rid of the virus with Herbal Product.
Finally the author of this book hit the nail on the head! Fibromyalgia Syndrome (FMS) is a neuroplastic condition and yes, the brain sends off false alarm signals to the body that are overkill, but if one scans the body there is no damaged tissue. This is why in order to get rid of FMS people need to "rewire" their brain. Easier said than done, I know, but I managed to do this for another condition with the same mechanism of the brain shooting off false and painful alarm signals to the pelvis, pelvic floor and pelvic organs--the condition is called pudendal neuralgia (PN). And here's the irony, once I started to get better and the PN wasn't that bad anymore, mainly because I got to the point where I truly let go of my fear of this horrible condition, FMS reared its ugly head and now I'm having to rewire the brain again. Wish me luck!
I need a body armor heat pack to warm up all of my lymphatic points. The hypersensitivity happens when I bump into an object there’s so much immediate pain. When I fell and hit the last step recently while holding a 22lb Toddler and my rib area would start to bruise immediately if I didn’t apply any ice on it right away. When my body hurts from being with a Toddler all day long. I find Espom Salt baths with Eucalyptus oil and Arnica help greatly. Also having an anti-inflammation diet, also absolutely no sugary drinks or Sodas of any type. Reduce your carbs as well. The pain still exist but is reduced when I do moment exercise to Prince music with my therapeutic moments along with his music , it is very helpful to begin my day with him. Thanks Bob and Brad your the best.
Guys! I'm shocked that there was no mention of diet in your video here. I have fibro and the biggest game changer for me was cutting out gluten completely, little to no dairy and little to no refined sugar, and small meat portions.
Rob, how many ounces of meat do you eat daily and are they lean? I tend to get worse with ground beef if it has more fat. How about eggs? And do you eat fish? I’m just wanting to make sure I get enough protein daily.
@@jennifer6814 I don't keep track but I try to eat no meat until dinner. At dinner, I will have chicken or beef or fish or pork. Beef seems easiest on me these days.
Vicki Frederick i used to run marathons, so I love running and really miss it. Every now and then when I have a good day I go for a very slow and short run and after that I’m paying for that excursion next five days, it completely knocks me out
Literally all pain exists in the brain. All of it, for everyone. You're watching this video through a wildly cynical and jaded lens. I empathize bc I also have fibro, but misdirecting your anger towards people genuinely trying to help is good for noone.
Have had FM for more than half my life (30+ years); it was manageable until I got a bilateral knee replacement; then something happened and my pain has been off the charts 24/7. Had to take early retirement/disability 10 years sooner than planned. Can’t walk without a walker. Now on oxycodone ☹️. I’m a pharmacist and have tried everything I can think of. It’s more than depress/discouraging. I understand the “why”, but there is no “how”...
I take vD, I’m in Arizona right now and sitting I think he sun for 5 minutes feels good, like a heating pad. Then all my joints lock up and the pain is worse than when I started. Sigh.
The sun helps me too, but walking while in the sun is even better, because it helps with the anxiety that fibromyalgia causes as well as strengthening and stretching muscles and tendons. One of the supplements that helped me the most personally, is taking vitamin D3. I started taking high levels when this pandemic started and as a result, it help with the fibromyalgia pain. Best to get vitamin D levels checked if possible. By the way if exercising hurts, build up and do it anyway. You will be so happy with the results. Not just walking, but things like stretching exercises, Pilates, and weightlifting are extremely helpful. Yes it will hurt but that’s what the muscles want.
THANK YOU! You are a bIessing to people with problems with the body and most do in some way or another, it seems. I have had this among several things, for over 15 yrs ( normally it happens that way, you end up with more and more things happening given time) and it kills me, as I used to be so well.. and the Northeast ''cold weather/dampness'' really makes me worse with the arthritis and yes, stress or overwork or over exercise ,which is hard anyway. But have found the music called something BEATS on You Tube, for Fibromyalgia , Arthritis, back pain etc etc etc.. and it sounds stupid, but it seems to calm the nerves or something ,and it helped something within me? People feel if you 'LOOK alright, you are fine!" That is nice of them, but does not help.If they only knew the whole truth of it and how hard you fight each day. I appreciate the book suggestion, and all the help with physical therapy. I have had it so long , and have read alot about it. But wish I knew where on earth it came from? This pain can depress anyone. I have the ability to make myself look right and act right, in front of people but later fall apart. I have to "pace myself" but my problem is after being so energetic that people at work said I made " them tired just talking about things that I would do as activities director in adult home" But now I cannot keep up with 80 yr old's! But I will survive. I pray.... But people wonder why I look alright and act alright and then I cannot come to all the meetings or do things one day and then do it alright the next? I have to now stop caring' what people think!' But it bothers me. TY!
I'm right there with you! The worst about looking fine is that it's hard to get help... I have the body of an 80 year old yet I can never get carry out help at stores!
Carol - completely get it! My Type A personality is trapped inside a body that just won't listen, and it is very depressing. Wonder if you could post a link to the YT channel you refer to - something BEATS? (Click under "share" and copy and paste the link).
ruclips.net/video/4RGmzXW4SFc/видео.html This is the link. One of the many on pain areas and even any other situations one may have. I hope this helps? Am not so great at this. I just put into the search area,' BEATS Music Fibromyalgia' and just scroll down until you find one you feel will work. Some may work for some and others for someone else, of course.
Fibromyalgia Treatment, Whole Body Pain Relief, Muscle Pain Relief & Healing Music This is copied from the one I have taken the copy and paste from. It is the heading of it, This is something for the future more, but it is coming into use more and more to. I would use it along with physical therapy above, and also talking to your dr but some may go for it some may not understand it, yet. But it cannot hurt anyone. It is not hypnotism,
I don’t have fibromyalgia, but I’ve had good results with using other alternative approaches to 1- diverticulitis: A diet using simple system of food combinations stopped the flairs, and 2) sinus migraines (I found a RUclips video showing simple massages on my face that took 15 minutes). Because sinus meds quit working! Good luck! My cousin’s wife really suffers with that.
Im 47 ex hockey player was super fit... 10 years ago i found i had kidney cancer. Had surgery it worked but later developed Fibromyalgia it's so debilitating and depressing.
I have fibromyalgia, essential tremor with ataxia (that I’ve had my whole life), Hashimoto’s + I get tired very easily. I also have a frozen right shoulder and a deep brain stimulator to help with essential tremor & a lead that goes from my thalamus where the electrodes are on either side of my brain down the right side of my neck to the rechargeable battery on the right side of my chest. I’ve tried p.t. but I get so tired &/or I’m in so much pain I don’t do the exercises. However, I’ve subscribed to your channel & I hope it gets me motivated because your program is on video and not on a piece of paper. I’m sorry Bob has ataxia & I will pray for him. Because of ataxia I’ve fallen a lot my whole life - even at the top of a slide when I was in 4th grade & got dizzy& fractured an arm when I fell. I used to be flexible physically & could do a lot more when I was younger: stretching, walking, hiking dancing, bike riding outside. But I’m 68 now with not much energy, dizziness, plodding heavy footsteps & (mostly) ever present pain). I’ve learned from my neurologist that I may have Parkinson’s staring me in the face 5 years from now because of the ataxia. I learned somewhere on the internet that qigong (pron. chigong) + kimchi might help stave off or quell Parkinson’s symptoms. Do you have ANY SPECIFIC EXERCISES FOR ATAXIA? Thank you so much!🕊
I recently saw a RUclips video by a Dr studying fibromyalgia who reported that he suspected a central nervous issue. They didn't have a lot of money for research, so they took x-rays of the necks and I forget what other part of many patients with fibromyalgia and discovered that in a large portion of them they had neck alignment issues where the nerves were being pinched! If you have it, it might be something to check out. I suspect my daughter has fibromyalgia rather than RA. It's something we can check out.
Dr Weir’s 4-7-8 breathing technique has helped me in SOOO many ways. If you can’t walk, try some squats and arm movements for a min or so at least to get the blood pumping. Arm circles while slowly walking in the morning with my dogs has helped me with both my pain and my anxiety. Watching the sun rose out getting a happy light helps awaken the brain and relieves brain fog and sets circadian rhythm which I have had a huge problem with for many years from my bipolar disorder. Now it’s worse with my fibromyalgia and rheumatoid arthritis. So it’s more important than ever to do it every morning.
Ashley, Thank you so much for your generous, informative comment! I especially love your point about the Circadian Rhythm, as I struggle with that, as well. Also, great reference to Dr. Weir, whom I was just about to look up when I saw your comment! (I greatly respected him years ago, and want to renew that connection, as I’m struggling with more than I can handle, health-wise). Best wishes, Ashley ; please take good care!
Im in pain all the time but live on a farm and things have to be done. My problem is if i sit down for 5 min i cant hardly move much less stand. So i keep going all day long knowing that and only sit down when i know everything’s done.Bad flare ups i can handle about 3 months then it starts effecting me emotionally.
Hi guys, great video...very informative. I was wondering if you would do it video on hiatal hernias , heartburn and acid reflux and how going to a chiropractor is the better alternative.
I’ve had Fibromyalgia since my pre-teens, and am now in my late 60s… Back then, Dr.’s called it “Growing Pains”, and we were supposed to outgrow them. I remember going to my West Coast city’s Teaching Hospital in my late teens, and being diagnosed with Osteo-Arthritis ; while living on my own/having to work by 19. (Years later, I was told it was a mis-diagnosis). I also recall having FLARE-UPS of (what I thought was Arthritic) pain in my early 20s-mostly in my wrists/hands/fingers/arms-as well as a few other spots in my body. Not until I was in my forties (as a college student) was I poor enough to get on Medicaid, and finally find out it was Fibro. On the other hand, I also have Arthritis, which I know nothing about, except that I did not test positive for RA. On days when the Fibro is obviously active, I end up in bed, and eventually fall asleep. It’s still mostly in my hands, fingers, wrists, elbows, shoulders, with lots of fatigue and possible Depression. I say possible because I was diagnosed (in my 40s) with the severe AD/H/D that I long suspected, along with some other Spectrum Disorders, and Dysthemia, which is Chronic, Low-Grade Depression, which I’ve had as far back as I can recall. (Actually, it’s now a deeper Depression, and the deaths of 2 of my 3 siblings, plus one of my 2 grown children, in 2022, didn’t help). My physical Disability is from six Spinal conditions, including Spondylothesis on my L-4/5 vertebrae, just to make things more confusing! My only income is $914 a month in SSI, so I cannot pay for a workbook ; is it something my Dr. could prescribe, perhaps? Thank you for your good work, Bob and Brad.
My browser won’t let me edit, so I’ll self-correct here : Spondylolisthesis is the correct spelling, not what I typed above. P.S. Our temperature is going down today, and I’m feeling the Fibro/Arthritis come on strong, all over… At 12:35PM all I want to do is go back to bed! I’m useless, so that is what I’ll do. Also, the pain affects my ability to type. Take good care, everyone.
All thanks to Dr Obinyan on RUclips,he has restored happiness to my aunt life,my aunt recommended treatment from him,to her greatest surprised,it work perfectly 💯💯🌿💚💚...
This way of thinking I think can be damaging. We don't look at someone with arthritis from joint wear and tear and say so this is hurting because you over used this joint let's look at why you are overusing this joint and delve into the psychology of why you have been doing the thing that has caused the overuse. I agree FM, in part, is brain and hypersensitive nerves or the blocking of the bodies own pain relief response and stress impacts greatly on this. But I also believe it is much more than that and to tell someone who is going through such pain, breathe deeply and remember you're safe is demeaning. Medication has to be at the forefront of this illness along with finding complementary therapies that work alongside. I felt this was a bit like saying "cheer up, it's all in your head" to someone with depression. (I have fibro and am finding the balance between meds and physical therapy)
You sure can, besides the nerve pain. May I suggest you go see a neurologist to rule out essential tremor and ataxia? I’m not trying to scare you, it’s better to know what’s going on with your body than not to know. Trust me, I’ve been there. Blessings to you.🕊
so you're saying it's all in our heads? Get educated? I've been diagnosed with fibromyalgia but it has not put me at ease at all. I still feel the pain so just knowing I have it, has not calmed me or eased the pain. And I am educated on the subject .... done lots of research and it hasn't helped. So no, being educated has not helped. I've also tried 3 different SRI's and am taking Gabapentin which only helps some. Can't take too much of that because it makes you drowsy
I have fibro /and/ peripheral neuropathy so I'm pretty sure telling myself that nothing is damaged will not be helpful. And the two are so frequently comorbid that I wouldn't tell anyone with fibro they definitely no nerve damage without an EMG to confirm it. Doctors discourage it because it's painful, but it hurts much less than fibro
@@Vessenkestrel Feel your pain. Gosh, I have some nerve pain (burning & redness) going on in my feet that started a couple of months ago & has gotten worse (at night--hard to fall asleep). I see dr about it Thurs. Is yours in ur feet or other extremities? What is the cause of your neuropathy, did dr say it was related to fibro? I hope in my case that it's not diabetes.
I am glad I found you guys. You are very informative. Please tell us where we can find this book. and the heating pad ( the name) and where I can order this. I have had fibromyalgia over 25yrs when most people were ignorant of this disease and people thought you were just a complainer because no one could see anything. sincerely. From Boston
Excited to see a more convenient infrared device. I was thinking I was going to have to break down and get one of those modular saunas. Do you have any experience with those? I’ve heard they are great for chronic pain.
Is there any study where people share their experiences. I have learned so much more from other sufferers and what they tried.. I can tell myself that I'm not being injured by the pain but when I'm hurting like hell it does not make me feel any better. Avoiding inflammatory foods can help. Therapudic massage can release the knots and adhesions that form but hurts your wallet. Increasing anti-inflammatory supplements may help. We all seen to suffer the same common pain and fatigue but other things differently. I am sensitive to chemicals, strong smells, light, fabrics can be intolerable if not very soft, a firm touch is painful, strong changes in barometric pressure can set off flare ups. Of course it is much worse during flare ups but this stuff is everyday. Ask me if I get depressed. Who wouldn't. I go to sleep with ice packs. Maybe that can help someone.
If fibromyalgia cannot be diagnosed how can you write a book on it. Only a sufferer can try to explain what it’s like and we all have different severity of pain. You can only tell us what we can tell you. I have fibromyalgia, rheumatoid athritis, polymyalgia rheumatica and osteoarthritis. I’ve yet to find a doctor who can differentiate from where my pain is coming from and how to treat it. If you can’t see it, then it’s not there painkillers do zip, aerobics, waste of time and physio does more harm than good. So, like all of us sufferers out here, instead lining your pockets by selling books that give false hope and no relief, try investing in something that will help.
🙄 Nonsense I would expect from anyone who does NOT have fibromyalgia.🙄 That’s not it. That may be an example “brain scan” but it’s not “All in your head”. It’s also not a generalized hypersensitivity to pain in general. I know first hand. I still have a much higher than normal tolerance to almost all external sources of pain. I will literally cut the end of my finger off or accidentally stab my self and the only thing I feel is annoyed because now I have to stop what I’m doing and tend to the blood and open wounds.🙄 It’s random pain for no reason. I’m literally sitting on the couch doing nothing. Then boom! It feels more like the exhausted sore muscles I got the day after the 1st day of basketball camp. Deep muscle pain and cramps. Like the toxins accumulated from over exertion have not been released from the body. But I have done nothing to over exert them. It’s crazy.
Since I started taking a med for fibromyalgia I find that so far its not helping my pain much and I have developed headaches. My physician says its a side effect. There are days that I don't get out of bed!
This is totally amazing!! I'm still in shock, it's so unbelievable!! I've been living with GENITAL HERPES VIRUS for 6 years, I'm so happy I got rid of the virus with Herbal Product.
I suffered for 30 yrs. Before accidentally finding a cure for my pain !!! If you are NOT caffeine sensitive try drinking coffee all through the day. I drink cold brew from 7am to 6pm but you can try a different schedule. After doing this I checked to see if any studies proving this reduces pain were documented and they have been! Also proven to reduce amount of pain meds needed. Look it up !!! Try a little at a time to find your dosage & increase a bit❤
Had fibromyalgia for 30 years. Have appt to get a spine stimulator. Not much faith in other treatment helping after this long. Almost bed ridden at this point
I saw many if your videos for various things and not one thing ever helped me. I see a physical therapist in Australia weekly for a year and nothing helps my constant 24,7, excruciating fibromyalgia pain.
I have tried supplements, oils, creams, cbd, stretching, walking, some yoga and Tai chi... I have tried antidepressants, Fiorcet. food limitations, pain meds. I have tried melatonin and magnesium. I found slight relief when I was put on prednisone 60mg and dose down. 4 days after the end of it I am almost right back to where I was...
Have you tried herbs,my aunt got cured from fibromyalgia after receiving treatment from Dr Obinyan herbal home,he has the pamarnent cure for fibromyalgia,and other disease and virus...
@@maralee3329 I understand how you feel dear, I'll advice you recommend assistance from Dr Obinyan herbal home,if he can cure my aunt from fibromyalgia,am very sure he can cure you too💯💯
I’m back bob and brad, I threw out my back and now I’m diagnosed with Fibromyalgia, POTS and RA so in one sense I absolutely love your advice, but in the case of RA it’s degenerative (is that the right word?) so sometimes my pain is harming me (RUclips comment section is my therapy today I guess) and LOL I have a 150 heart rate from just standing. Hey I wish that meant anything good. Sigh. I gotta get that book though.
I mean you dont have to have your legs chopped to understand its hard to walk. This emphatetic understanding is at the basis of medicine. Would you want your cancer surgeon to have cancer as well? :D
my doctor helps. he doesn't have it :) but he has experienced pain in other areas of his life ... I think as long as someone is sympathetic it does the job.
This doesn’t make any sense. If I am pinched it feels the same as it always has. This widespread muscular pain is not a sensitivity to pain. It’s actual pain. Aerobic activity makes things worse for me. I can walk long distances and it just causes a lot of pain. I’m not anxious. I live in acceptance of the pain.
Some days I could just die it hurts so bad. And to think in the beginning it was all in my head and then it was i was drug seeking. I don't take pain killers so neither was it.
The pain sometimes is almost unbearable.
Really sorry to hear that. I’m in the same boat and I hope you find something that helps (I haven’t yet lol)
@@kiraelton439 same but I'm hearing yoga can make a big difference
Msm in large doses can fix that. Look up the msm miracle book
Agree
@@juiceboxbzrk I find yoga and meditation helps a great deal. I notice a difference on the days I do yoga and the days I don't. I do yoga to Yoga with Joelle on RUclips
To everyone suffering from fibromyalgia, aerobic exercises like walking/swimming/cycling as well as meditation, muscle stretching and strengthening..good sleep..healthy diet (Minimal junk, minimal sugar) has helped me massively to keep going through the days..with good energy, good mood..the pain is still there but in very lesser intensity..Live healthy and active..that's the mantra for fibro..I wish healing and happiness to all those suffering through this disease.. Remember Fibro is NOT a progressive disease...and with discipline, some patients have even reported to remission of symptoms.. Yes we can do this!! ❤️
A "good brisk walk" feels good and helps feelings of well-being, yes--until 24 to 48 hours later when the horrible pain sets in. ???
Personality Manager for me it’s almost immediately the pain sets in.
I was thinking the same thing. You get back and have to sit for at least a half hour because your feet hurt and it actually feels like you walked for miles. Hopefully you have left overs for dinner because lets face it, you ain't going to have the ability to stand and cook now. You do some squats (I do this often) while brushing your teeth in the morning and than wonder why 2 day later why the back of your legs are sore. Lets face it, these well meaning people really have no friggin idea what life is really like. We have to plan our whole day out around pain and endurance.
I take diet supplements and my fibro is gone!!! No more flare ups
@@shelliewebb1631 can you please suggest your diet supplements?
Chandan Saud look me up on Facebook😊
I’ve had fibromyalgia since I was 25. Not at 58 I still suffer from major pain everywhere. I also suffer from degenerative disk disease, chronic cluster/.migraines. I’ve tried bio-feedback, nerve blocks, massage therapy, drugs, acupuncture, herbs, nutrition and reconstructive therapy via an Osteopathic orthopedic specialist referred to me by The Boston Pain Clinic, and 100s of other conventional as well as non-conventional treatments that you can think of. Nothing has ever helped except for deep tissue massages every 2 weeks that allows me to remain partially mobile. While I completely understand the concept of educating an individual on the process and factors involved since I am a retired Special Education teacher that specialized in abnormal behavior/ deviance disorders, I can state this does nothing at all. I’ve experienced a few short periods of remission, but it never lasts long. I’ve spent thousands of dollars on mattresses, massage tables, tens units, herbs, minerals, pillows, creams and special diets with nothing to really promote as being effective. Fibromyalgia can and does cause other conditions that are damaging to the body. Classified as an auto immune deficiency, I can attest to the easy at which I contract viruses, thyroid problems, system, and chronic digestive issues. All which are symptoms of having fibromyalgia. Really wish you guys would do an updated video. Respect!
Msm in large doses fixes that look up msm miracle book
Ko
All thanks to Dr Obinyan on RUclips,he has restored happiness to my aunt life,my aunt recommended treatment from him,to her greatest surprised,it work perfectly 💯💯🌿💚💚...
My heart breaks for you. I have 50 years in now. Exhausting. I would love to shut my nerves off. I recently tried the PTSD shot but it did not help. We have great inner strength.
After reading your comment, I kinda wish YOU would make a video. You seem to know far more through experience and trial and error. I think you can teach others a lot about Fibromyalgia ❤
I feel the same as you. Ive suffered for 22 years and not much helps. I wish education changed things, but we are stuck with this for ever!
I was just recently diagnosed. I’m always here in the comments but now I have my diagnosis and I’m so happy to see you have a video on it! You guys truly are the best’
Msm in large doses fixes that look up msm miracle book
I am so grateful for these guys. I have had both R and L total knee replacements in the past year and their advice and exercises augmented my PT and their videos have been instrumental in my recovery. I also have fibromyalgia and your exercises and advice are spot-on. I am an RN working three 12-hour days per week and I’m doing very well. Their humor is also good medicine! Thank you, guys!
just a note, I have fibro and i have a heart rate from 90-100 just standing still... the other people I've talked to with chronic pain have similar high heart rates.
U might want to get a tilt table test to c if u have pots syndrome as well as fibro, i have both
Me too .. i didn't know it's related to fibro
@@whitekitten05 I also get severe chest pain at rest but worse when walking or inhaling a cold wind ! It took 4 Doctors to finally diagnose me with Fibromyalgia and even Codeine Phosphate doesn't relieve it. I have had numerous ECG's and X-Rays which were negative and satisfactory.
I have had Fibromyalgia for more than 10 years and I have a very low heart rate. My resting heart rate is around 55-58.
I had the same thought. My resting heartbeat is 110, if I stand it goes over 130. How on earth do I get it to 90-100 without a vasoconstrictor 😝
People here comment on walking. I have been living and working with FM all my life, Twenty Nine years since A major flare that has altered my life. Yes I deal with all the symptoms of FM. I was lucky. In 1991, I met a PT that worked with FM patent's and worked with me. I could not function, work any thing. It took over six months of working thru pain. Yes made worse by even walking. Now after nearly three decades, I still walk almost every day even if I feel so bad you just want to die. At least you can smell the air, walk around the block. I walked over four miles yesterday. And yes I came home exhausted. Today ? No flare ups from my activety. If you let FM win. Inactivity makes it worse. I tell you. Just get out and walk. Yes it gets worse before you get better. No walking doesn't cure FM. Just makes your life a little better. Naproxen Sodium helps with the pain. Same thing as with walking. Over the counter 230 mg Taken two pills three times a day. If I can I maintain at two a day, Its the only thing that I found that helps. So just get out of bed and walk.It takes effort,working thru the pain. One day you will look back and say wow. Walking has been a big part of my life. I still feel like crap. Some days worse than others, even so bad I cant walk. I do work also. It can be done, I have met other FM that walk also.
I never even managed to get diagnosed. After going from specialist to specialist, and loosing the job that provided health insurance, I gave up on doctors. I just tried to push through the pain and treat myself. This past year I gave up on even that. Now at least I finally look like I feel.
Edit: I'm finally on Medicaid. So, I'm finally seeing doctors again. So far Fibromyalgia is one of the things that is being treated and we are looking into other autoimmune diseases as well. And I did test positive for Lyme disease antibodies. So, I have had it in the past. I think it is very likely that Lyme disease is what initially triggered much of the rest. But at least now I have doctors who are trying to help me. That gives me hope.
💙🙏✨
I do not eat fast foods,processed foods.fresh vegis,chicken,salmon,turkey,sweet potatoes.hardly any sugar,good grains.this has helped alot.i walk everyday 3 to 5 miles.i force myself to do it.my pain has decreased at least 50%.i also use doterra natural vitamins,omega oils and cell builders.
LLV has helped me a lot too!
The deep breathing that I use is to inhale for a count of 8, hold 4 seconds, then exhale for 8 seconds. I have educated myself about Fibro for the entire 21 years, since I was first diagnosed. I find it very helpful to learn about the disease. Progressive Muscle Relaxation videos are free on RUclips.
Not one video tells us really what to do.i suffer from horrible horrible fibermyalgia.my fatigue is devastating.i have been to doctor after doctor.nothing.what do we do.please help us who suffer.
patricia david I agree
I’m also suffering, but, have herniated disc in my back, and hip bursitis,(amongst other things) and, don’t know if it’s the fibromyalgia, or the back problems, but, I DO KNOW, there is no quality of life anymore 😞
patricia david meditation helps me a lot
Yes I am more sensitive than ever
I didn't find this video to be particularly helpful, though I do appreciate the effort. I'm not sure how useful that book is. I've known that fibromyalgia pain isn't causing actual harm to my body since shortly after I was diagnosed, but that doesn't help me to not hurt! I hurt 24/7 - there is not a second of the day that something (usually most of my body) doesn't hurt. A good day means I'm at 2-3 on a scale of 10 - on a bad day I feel like I'm dying. Knowing that I'm not actually dying does not help the pain to go away. In addition (and quite ironically), I actually have a very high tolerance for pain. As a gymnast, I broke bones, sprained muscles and even hit my leg so hard I actually killed part of my muscle (according to my doctor), but would continue practicing without telling anyone until after practice was over. That being said, one issue I face is not knowing whether my pain is real or fibro. Sometimes I can tell the difference, but not always! I have found out that I actually broke my wrist a few years ago, but had just assumed it was fibro and so didn't seek treatment. And the list of things you guys read as causing the pain to flare up are kind of ridiculous. It makes it sound like we're all just head-cases, that if we wouldn't worry we'd just suddenly be healed! I don't really have any of those worries - what causes me the most pain is lack of sleep! The less sleep I get the more I hurt! It just irks me to hear the quotes from that book saying if I just tell myself I'm "safe" and "not harmed" that my pain will be better managed. I have fully understood that for years. In fact, I have had to tell my family and friends that same thing for years - "yes, I hurt like crazy, but it's not like arthritis, it's not actually doing damage to my body, so it's ok for me to......" But does knowing this help to lower my pain level? No, not at all.
Thx for your feed back.i agree with u so much.i suffer terribly.fatigue is terrible.we are not head cases.this disease is devastating.i pray someday we are really helped.thx again.i hope u r doing ok. ❤
So glad you explained about pain. It is usually a signal that something is wrong or needs attention. But education is important in these matters. I had Guillain-Barre Syndrome and experienced some excruciating, exquisite pain that was constant. I usually have a high tolerance for most types of pain and this seemed almost unbearable. My doctor explained there were some meds available, but did not recommend their use. He explained like you did that I was "hurting but not harmed". That became my mantra for several long months. So glad I did not take meds as I learned it can cause short term memory loss. Love your channel!
I do some of your exercises and recommend you to my clients as I am a licensed massage therapist.
Thank you for this video! Love your channel.
Just ordered the workbook. Having FM is tough. The pain and exhaustion is unpredictable. I've done a ton of work and pain education courses but I need more. This workbook hopefully can be helpful in getting intimate with my pain.
The pain is a protection, I agree. For me, it's all related to trauma and my body is on alert. Unfortunately it's a full time job to manage this.
Hi everyone, you guys are great! Lots of good information. I’m a male in 60’s have AS and fibromyalgia. I did a lot of pt in my life but need to credit a yoga teacher for my best fibromyalgia relief. Get a private class to see what you can do and what is best for you. Don’t be afraid to dump a pt or a yoga teacher , they all mean well but many don’t get it. Yoga with the breathing exercises and spinal opening exercises are great ! If I had known what was going on with me earlier I would have postponed where I am. Not negative,just stating that skip the American idea that yoga or pt is weak, do what is needed. It was best thing for me to do, I still do what I can today and am able to keep fibromyalgia at bay. Bless you all , the journey is fun.
Richard McCombs
I never thought about men having fibromyalgia. My sister has chronic fatigue and fibromyalgia. I have been sick with pain all my life . Migraine headaches , chronic fatigue syndrome and likely fibromyalgia. Now I really believe my father suffering with pain, was fibromyalgia. He passed away but so sad ,no one understood his awful pain. Now, I have understanding of men with chronic migraine headaches , chronic fatigue syndrome and fibromyalgia. Hope people understand men can get as sick as women with these debilitating health problems.
God bless.
❤️❤️
@@divine1562 well that was nice to come at this season, blessings.
I'm lying in bed but can't sleep due to my fibro pain in my legs. After 17 years of this hell, it seems like some medical pros are getting close to understanding this syndrome. I went swimming tonight which turns up my pain level. Thank you for caring about us.
Please try gentle stretches and walking for 20 minutes daily..helps me massively
BUT we have to find WHY our nerves are heightened..mine is the worst in morn .and night.
CBD oils helped me as well as using Colloidal silver ( Natural Antibiotic ) @ 20 ppm available on Amazon for around $19 and Vitamin D3
Have you had your vitamin d.levels checked? It's one of the possibilities
ruclips.net/video/n1Qm5x7Lxgc/видео.html
My FMS symptoms come and do. I can go long periods of time with little to know symptoms and then wham! I'm knocked out and don't want to get out of bed. And its not linked up Depression. I know what Depression feels like.
Just wanted to add, systemic inflammatory fibromyalgia is a thing - whenever I have gone to a physiotherapist for my severe fibromyalgia pain, they have all diagnosed real inflammat and injuries / systemic causes for the pain, due to systemic inflammation not just in my brain - so e.g. my feet roll inwards and my hips rotate outwards too much, which led to me developing quads tendonitis and bursitis in both needs (I was unable to walk for around 10 weeks but had severe pain for 2yrs), weakness in my right glute and quad, iv also torn my rotator cuff in my right shoulder from trying to change some bedsheets! And I also get tennis elbow, costochondritis and have pulled my intercostal muscles twice (from coughing, then from being pregnant 1st trimester), and i used to have severe back pain that caused nerve pain all over my body for about 5yrs (that was back when my fibromyalgia started). Oh yh, and iv also got a fibroid tumour in my uterus, poly cysts and an enlarged ovary, PID and endometriosis. So all of my severe pain is due to real inflammatory issues and injuries, not just my pain signals being hyperactive, which is a common misconception about fibromyalgia for some reason. Just wanted to share. Throughout these injuries, all of which I acquired from trying to do normal day to day activities rather than actual things you'd expect to cause an injury, iv found your videos super helpful! :)
A lot of PT’s done believe in Fibro. I’m glad you guys do and are willing to help who are suffering.
“Try and get your heartbeat up to 95 to 100 beats per minute” 🤣 that’s my resting heartbeat even though I’m taking medicine to slow it down. Part of the reason why I’m here lol. No brisk walking for me.
Same for me
Msm in large doses fixes that look up msm miracle book
Gh
I can't say enough how great you guys are for all your help...Thank You
Hey Bob an Brad👋,
I'm so happy I found you guy's. I have learned so much about how to deal with my post car accident trauma an injuries. Primarily neck fracture shoulder an back. You both bring me such delight an joy listening how to improve swollen tight muscles an nerve pain with education an especially doing the technique with seriousness coupled with light hearted humor. I find myself smiling when I'm watching almost like you're just talkin to me in my own personal therapeutic session...I'm a nurse by trade started very young in the 80's at 24 when so called proper body mechanics to lift position an turn heavy patients ultimately has hurt me in my later life. Thanks for all you do it really makes a difference in my life each day😌🦋💕
This is totally amazing!! I'm still in shock, it's so unbelievable!! I've been living with GENITAL HERPES VIRUS for 6 years, I'm so happy I got rid of the virus with Herbal Product.
Hii.. are u feeling nerve pain on head, forehead and eyes..plz respond
Finally the author of this book hit the nail on the head! Fibromyalgia Syndrome (FMS) is a neuroplastic condition and yes, the brain sends off false alarm signals to the body that are overkill, but if one scans the body there is no damaged tissue. This is why in order to get rid of FMS people need to "rewire" their brain. Easier said than done, I know, but I managed to do this for another condition with the same mechanism of the brain shooting off false and painful alarm signals to the pelvis, pelvic floor and pelvic organs--the condition is called pudendal neuralgia (PN). And here's the irony, once I started to get better and the PN wasn't that bad anymore, mainly because I got to the point where I truly let go of my fear of this horrible condition, FMS reared its ugly head and now I'm having to rewire the brain again. Wish me luck!
I need a body armor heat pack to warm up all of my lymphatic points.
The hypersensitivity happens when I bump into an object there’s so much immediate pain. When I fell and hit the last step recently while holding a 22lb Toddler and my rib area would start to bruise immediately if I didn’t apply any ice on it right away. When my body hurts from being with a Toddler all day long. I find Espom Salt baths with Eucalyptus oil and Arnica help greatly.
Also having an anti-inflammation diet, also absolutely no sugary drinks or Sodas of any type. Reduce your carbs as well.
The pain still exist but is reduced when I do moment exercise to Prince music with my therapeutic moments along with his music , it is very helpful to begin my day with him.
Thanks Bob and Brad your the best.
purplecat confetti His purple majesty, may he rest in peace 💜💔🎶🙏🏻
Thank you so much for taking the time to educate people on this subject. Great information! God bless you both! 🙏❤️
So interesting. I got fibromyalgia at the same time I was being diagnosed with lupus. I’m seeing the connections between the two now.
My friend had a similar connection.
So...the book is still saying, as most doctors do, that FM is psychosomatic. That's very frustrating for those of us with it.
No way no how. How insulting! I had a virus and came away with Fibromyalgia for the last 36 years!
Guys! I'm shocked that there was no mention of diet in your video here. I have fibro and the biggest game changer for me was cutting out gluten completely, little to no dairy and little to no refined sugar, and small meat portions.
Hey, my mum has fibro and trying to help her with her diet. Are you basically on keto?
Try the keto diet along with eliminating vegetable oils.
Rob, how many ounces of meat do you eat daily and are they lean? I tend to get worse with ground beef if it has more fat. How about eggs? And do you eat fish? I’m just wanting to make sure I get enough protein daily.
@@jennifer6814 I don't keep track but I try to eat no meat until dinner. At dinner, I will have chicken or beef or fish or pork. Beef seems easiest on me these days.
I go easy on eggs....once a week-ish
How can you run if you are so fatigued and in pain that you can hardly get out of bed?
Vicki Frederick i used to run marathons, so I love running and really miss it. Every now and then when I have a good day I go for a very slow and short run and after that I’m paying for that excursion next five days, it completely knocks me out
I have pain from exercising . Rest helps me more. Stress is my enemy.
Love you guys‼️ Needed this 🙏🦋
So basically this book says it’s all in my head and I’m lazy. Haven’t heard that before. Great.
Literally all pain exists in the brain. All of it, for everyone. You're watching this video through a wildly cynical and jaded lens. I empathize bc I also have fibro, but misdirecting your anger towards people genuinely trying to help is good for noone.
Msm in large doses fixes that look up msm miracle book
Lk
Your cells are fucked up clean your body with the healing mineral
Love you guys!! Thanks for all you do!!
Have had FM for more than half my life (30+ years); it was manageable until I got a bilateral knee replacement; then something happened and my pain has been off the charts 24/7. Had to take early retirement/disability 10 years sooner than planned. Can’t walk without a walker. Now on oxycodone ☹️. I’m a pharmacist and have tried everything I can think of. It’s more than depress/discouraging. I understand the “why”, but there is no “how”...
One of my daughters has fibromyalgia. I'm sending her a few of your videos! Thanks!
Thank you for this information Ive been suffering from Fibromyalgia for years and it has been horrible.
Msm in large doses fixes that look up msm miracle book
Uy
The sun is the only thing that helps w. My pain!
If thats the case with the. S. U. N. Try vitamin. D 3 for relief. Try 2000 milligram a day for a month you ll get relief.
I take vD, I’m in Arizona right now and sitting I think he sun for 5 minutes feels good, like a heating pad. Then all my joints lock up and the pain is worse than when I started. Sigh.
The sun helps me too, but walking while in the sun is even better, because it helps with the anxiety that fibromyalgia causes as well as strengthening and stretching muscles and tendons. One of the supplements that helped me the most personally, is taking vitamin D3. I started taking high levels when this pandemic started and as a result, it help with the fibromyalgia pain. Best to get vitamin D levels checked if possible. By the way if exercising hurts, build up and do it anyway. You will be so happy with the results. Not just walking, but things like stretching exercises, Pilates, and weightlifting are extremely helpful. Yes it will hurt but that’s what the muscles want.
I love the spirit of "Be an encourager, the world has enough critics already."
These guys are great. Very informatuve and intertaining as well. Funny. !! They give alternative treatments a try and let you know how to try them.
THANK YOU! You are a bIessing to people with problems with the body and most do in some way or another, it seems. I have had this among several things, for over 15 yrs ( normally it happens that way, you end up with more and more things happening given time) and it kills me, as I used to be so well.. and the Northeast ''cold weather/dampness'' really makes me worse with the arthritis and yes, stress or overwork or over exercise ,which is hard anyway. But have found the music called something BEATS on You Tube, for Fibromyalgia , Arthritis, back pain etc etc etc.. and it sounds stupid, but it seems to calm the nerves or something ,and it helped something within me? People feel if you 'LOOK alright, you are fine!" That is nice of them, but does not help.If they only knew the whole truth of it and how hard you fight each day. I appreciate the book suggestion, and all the help with physical therapy. I have had it so long , and have read alot about it. But wish I knew where on earth it came from? This pain can depress anyone. I have the ability to make myself look right and act right, in front of people but later fall apart. I have to "pace myself" but my problem is after being so energetic that people at work said I made " them tired just talking about things that I would do as activities director in adult home" But now I cannot keep up with 80 yr old's! But I will survive. I pray.... But people wonder why I look alright and act alright and then I cannot come to all the meetings or do things one day and then do it alright the next? I have to now stop caring' what people think!' But it bothers me. TY!
I'm right there with you! The worst about looking fine is that it's hard to get help... I have the body of an 80 year old yet I can never get carry out help at stores!
Carol - completely get it! My Type A personality is trapped inside a body that just won't listen, and it is very depressing. Wonder if you could post a link to the YT channel you refer to - something BEATS? (Click under "share" and copy and paste the link).
ruclips.net/video/4RGmzXW4SFc/видео.html This is the link. One of the many on pain areas and even any other situations one may have. I hope this helps? Am not so great at this. I just put into the search area,' BEATS Music Fibromyalgia' and just scroll down until you find one you feel will work. Some may work for some and others for someone else, of course.
Fibromyalgia Treatment, Whole Body Pain Relief, Muscle Pain Relief & Healing Music This is copied from the one I have taken the copy and paste from. It is the heading of it, This is something for the future more, but it is coming into use more and more to. I would use it along with physical therapy above, and also talking to your dr but some may go for it some may not understand it, yet. But it cannot hurt anyone. It is not hypnotism,
Forgot to mention, that using headphones works even better. www.patientslikeme is a website .
Thank you for such medical information , it is nice to know
I don’t have fibromyalgia, but I’ve had good results with using other alternative approaches to 1- diverticulitis: A diet using simple system of food combinations stopped the flairs, and 2) sinus migraines (I found a RUclips video showing simple massages on my face that took 15 minutes). Because sinus meds quit working! Good luck! My cousin’s wife really suffers with that.
Im 47 ex hockey player was super fit... 10 years ago i found i had kidney cancer. Had surgery it worked but later developed Fibromyalgia it's so debilitating and depressing.
I have fibromyalgia, essential tremor with ataxia (that I’ve had my whole life), Hashimoto’s + I get tired very easily. I also have a frozen right shoulder and a deep brain stimulator to help with essential tremor & a lead that goes from my thalamus where the electrodes are on either side of my brain down the right side of my neck to the rechargeable battery on the right side of my chest. I’ve tried p.t. but I get so tired &/or I’m in so much pain I don’t do the exercises. However, I’ve subscribed to your channel & I hope it gets me motivated because your program is on video and not on a piece of paper. I’m sorry Bob has ataxia & I will pray for him. Because of ataxia I’ve fallen a lot my whole life - even at the top of a slide when I was in 4th grade & got dizzy& fractured an arm when I fell. I used to be flexible physically & could do a lot more when I was younger: stretching, walking, hiking dancing, bike riding outside. But I’m 68 now with not much energy, dizziness, plodding heavy footsteps & (mostly) ever present pain). I’ve learned from my neurologist that I may have Parkinson’s staring me in the face 5 years from now because of the ataxia. I learned somewhere on the internet that qigong (pron. chigong) + kimchi might help stave off or quell Parkinson’s symptoms. Do you have ANY SPECIFIC EXERCISES FOR ATAXIA? Thank you so much!🕊
I'm finally motivated to reduce my sugar and carb intake at 57 yrs old.
Use the sauna in replacement of aerobic exercise and heating pad. Get a sauna blanket if you cannot afford.
I recently saw a RUclips video by a Dr studying fibromyalgia who reported that he suspected a central nervous issue. They didn't have a lot of money for research, so they took x-rays of the necks and I forget what other part of many patients with fibromyalgia and discovered that in a large portion of them they had neck alignment issues where the nerves were being pinched! If you have it, it might be something to check out. I suspect my daughter has fibromyalgia rather than RA. It's something we can check out.
The name of the Dr. would be most helpful!
My husband an athlete says no pain no gain but I have fibro a have the pain with no gain that is I never get better. This is very discouraging.
Thank you soo much sir for educating us about this problem and vital information .
I love your channel. You guys rock. Liked subscribed!
Great job, guys. This is valid advice
Dr Weir’s 4-7-8 breathing technique has helped me in SOOO many ways.
If you can’t walk, try some squats and arm movements for a min or so at least to get the blood pumping. Arm circles while slowly walking in the morning with my dogs has helped me with both my pain and my anxiety.
Watching the sun rose out getting a happy light helps awaken the brain and relieves brain fog and sets circadian rhythm which I have had a huge problem with for many years from my bipolar disorder. Now it’s worse with my fibromyalgia and rheumatoid arthritis. So it’s more important than ever to do it every morning.
Ashley,
Thank you so much for your generous, informative comment! I especially love your point about the Circadian Rhythm, as I struggle with that, as well.
Also, great reference to Dr. Weir, whom I was just about to look up when I saw your comment! (I greatly respected him years ago, and want to renew that connection, as I’m struggling with more than I can handle, health-wise).
Best wishes, Ashley ; please take good care!
My browser won’t let me edit, so I’ll self-correct here… Just realized that I was actually referring to Dr. Andrew Weil, not Weir! My bad….
Im in pain all the time but live on a farm and things have to be done. My problem is if i sit down for 5 min i cant hardly move much less stand. So i keep going all day long knowing that and only sit down when i know everything’s done.Bad flare ups i can handle about 3 months then it starts effecting me emotionally.
Same! My husband always says i need to sit and rest more but he doesn’t understand that I HAVE to keep going or else I will crash hard .
Hi guys, great video...very informative. I was wondering if you would do it video on hiatal hernias , heartburn and acid reflux and how going to a chiropractor is the better alternative.
I’ve had Fibromyalgia since my pre-teens, and am now in my late 60s… Back then, Dr.’s called it “Growing Pains”, and we were supposed to outgrow them. I remember going to my West Coast city’s Teaching Hospital in my late teens, and being diagnosed with Osteo-Arthritis ; while living on my own/having to work by 19. (Years later, I was told it was a mis-diagnosis). I also recall having FLARE-UPS of (what I thought was Arthritic) pain in my early 20s-mostly in my wrists/hands/fingers/arms-as well as a few other spots in my body. Not until I was in my forties (as a college student) was I poor enough to get on Medicaid, and finally find out it was Fibro. On the other hand, I also have Arthritis, which I know nothing about, except that I did not test positive for RA. On days when the Fibro is obviously active, I end up in bed, and eventually fall asleep. It’s still mostly in my hands, fingers, wrists, elbows, shoulders, with lots of fatigue and possible Depression. I say possible because I was diagnosed (in my 40s) with the severe AD/H/D that I long suspected, along with some other Spectrum Disorders, and Dysthemia, which is Chronic, Low-Grade Depression, which I’ve had as far back as I can recall. (Actually, it’s now a deeper Depression, and the deaths of 2 of my 3 siblings, plus one of my 2 grown children, in 2022, didn’t help).
My physical Disability is from six Spinal conditions, including Spondylothesis on my L-4/5 vertebrae, just to make things more confusing! My only income is $914 a month in SSI, so I cannot pay for a workbook ; is it something my Dr. could prescribe, perhaps?
Thank you for your good work, Bob and Brad.
My browser won’t let me edit, so I’ll self-correct here : Spondylolisthesis is the correct spelling, not what I typed above.
P.S. Our temperature is going down today, and I’m feeling the Fibro/Arthritis come on strong, all over… At 12:35PM all I want to do is go back to bed! I’m useless, so that is what I’ll do. Also, the pain affects my ability to type. Take good care, everyone.
Thank you Bob and Brad!
Thank you. Very much appreciated
Thank you guys
You are welcome
Great info video thanks guys.
I have it, no help so far. I wish your site on here would go to site. What is this book??? You 2 explain it perfectly.
All thanks to Dr Obinyan on RUclips,he has restored happiness to my aunt life,my aunt recommended treatment from him,to her greatest surprised,it work perfectly 💯💯🌿💚💚...
This way of thinking I think can be damaging. We don't look at someone with arthritis from joint wear and tear and say so this is hurting because you over used this joint let's look at why you are overusing this joint and delve into the psychology of why you have been doing the thing that has caused the overuse. I agree FM, in part, is brain and hypersensitive nerves or the blocking of the bodies own pain relief response and stress impacts greatly on this. But I also believe it is much more than that and to tell someone who is going through such pain, breathe deeply and remember you're safe is demeaning. Medication has to be at the forefront of this illness along with finding complementary therapies that work alongside. I felt this was a bit like saying "cheer up, it's all in your head" to someone with depression. (I have fibro and am finding the balance between meds and physical therapy)
With fibromyalgia can you get wobbly and shaky inside?
You sure can, besides the nerve pain. May I suggest you go see a neurologist to rule out essential tremor and ataxia? I’m not trying to scare you, it’s better to know what’s going on with your body than not to know. Trust me, I’ve been there. Blessings to you.🕊
so you're saying it's all in our heads? Get educated? I've been diagnosed with fibromyalgia but it has not put me at ease at all. I still feel the pain so just knowing I have it, has not calmed me or eased the pain. And I am educated on the subject .... done lots of research and it hasn't helped. So no, being educated has not helped. I've also tried 3 different SRI's and am taking Gabapentin which only helps some. Can't take too much of that because it makes you drowsy
I have fibro /and/ peripheral neuropathy so I'm pretty sure telling myself that nothing is damaged will not be helpful. And the two are so frequently comorbid that I wouldn't tell anyone with fibro they definitely no nerve damage without an EMG to confirm it.
Doctors discourage it because it's painful, but it hurts much less than fibro
@@Vessenkestrel Feel your pain. Gosh, I have some nerve pain (burning & redness) going on in my feet that started a couple of months ago & has gotten worse (at night--hard to fall asleep). I see dr about it Thurs. Is yours in ur feet or other extremities? What is the cause of your neuropathy, did dr say it was related to fibro? I hope in my case that it's not diabetes.
Thank you for the heads up on the infra-red heat!
I am glad I found you guys. You are very informative. Please tell us where we can find this book. and the heating pad ( the name) and where I can order this. I have had fibromyalgia over 25yrs when most people were ignorant of this disease and people thought you were just a complainer because no one could see anything. sincerely. From Boston
Excited to see a more convenient infrared device. I was thinking I was going to have to break down and get one of those modular saunas. Do you have any experience with those? I’ve heard they are great for chronic pain.
Is there any study where people share their experiences. I have learned so much more from other sufferers and what they tried.. I can tell myself that I'm not being injured by the pain but when I'm hurting like hell it does not make me feel any better. Avoiding inflammatory foods can help. Therapudic massage can release the knots and adhesions that form but hurts your wallet. Increasing anti-inflammatory supplements may help. We all seen to suffer the same common pain and fatigue but other things differently. I am sensitive to chemicals, strong smells, light, fabrics can be intolerable if not very soft, a firm touch is painful, strong changes in barometric pressure can set off flare ups. Of course it is much worse during flare ups but this stuff is everyday. Ask me if I get depressed. Who wouldn't. I go to sleep with ice packs. Maybe that can help someone.
If fibromyalgia cannot be diagnosed how can you write a book on it. Only a sufferer can try to explain what it’s like and we all have different severity of pain. You can only tell us what we can tell you. I have fibromyalgia, rheumatoid athritis, polymyalgia rheumatica and osteoarthritis. I’ve yet to find a doctor who can differentiate from where my pain is coming from and how to treat it. If you can’t see it, then it’s not there painkillers do zip, aerobics, waste of time and physio does more harm than good. So, like all of us sufferers out here, instead lining your pockets by selling books that give false hope and no relief, try investing in something that will help.
🙄
Nonsense I would expect from anyone who does NOT have fibromyalgia.🙄
That’s not it. That may be an example “brain scan” but it’s not “All in your head”. It’s also not a generalized hypersensitivity to pain in general. I know first hand. I still have a much higher than normal tolerance to almost all external sources of pain. I will literally cut the end of my finger off or accidentally stab my self and the only thing I feel is annoyed because now I have to stop what I’m doing and tend to the blood and open wounds.🙄
It’s random pain for no reason. I’m literally sitting on the couch doing nothing. Then boom! It feels more like the exhausted sore muscles I got the day after the 1st day of basketball camp. Deep muscle pain and cramps. Like the toxins accumulated from over exertion have not been released from the body. But I have done nothing to over exert them. It’s crazy.
Bingo!
Brisk walk? Impossible
Hello
Thank you so much for this! I have f.m and found this very helpful
Since I started taking a med for fibromyalgia I find that so far its not helping my pain much and I have developed headaches. My physician says its a side effect. There are days that I don't get out of bed!
Love you guys
Best guys ever
Thank you 🙏🏾
Read book What Your Doctor May Not Tell You About Fibromyalgia by R. Paul St. Amand, MD, and Claudia Craig Marek
Can't find the book you are referring to on your website about Fibromyalgia .. Where can I get it? What is the name of it?
This is totally amazing!! I'm still in shock, it's so unbelievable!! I've been living with GENITAL HERPES VIRUS for 6 years, I'm so happy I got rid of the virus with Herbal Product.
I suffered for 30 yrs. Before accidentally finding a cure for my pain !!! If you are NOT caffeine sensitive try drinking coffee all through the day. I drink cold brew from 7am to 6pm but you can try a different schedule. After doing this I checked to see if any studies proving this reduces pain were documented and they have been! Also proven to reduce amount of pain meds needed. Look it up !!! Try a little at a time to find your dosage & increase a bit❤
Hey how is your pain now?
I live with fibromyalgia for 18 year and I survived
Oh I have lived with it for 6years now
Had fibromyalgia for 30 years. Have appt to get a spine stimulator. Not much faith in other treatment helping after this long. Almost bed ridden at this point
can you guys P L E A S E do a video on hip labral tears? been ASKING for weeks now! thanks
Fabulous this
So good
I saw many if your videos for various things and not one thing ever helped me. I see a physical therapist in Australia weekly for a year and nothing helps my constant 24,7, excruciating fibromyalgia pain.
I have tried supplements, oils, creams, cbd, stretching, walking, some yoga and Tai chi... I have tried antidepressants, Fiorcet. food limitations, pain meds. I have tried melatonin and magnesium. I found slight relief when I was put on prednisone 60mg and dose down. 4 days after the end of it I am almost right back to where I was...
Have you tried herbs,my aunt got cured from fibromyalgia after receiving treatment from Dr Obinyan herbal home,he has the pamarnent cure for fibromyalgia,and other disease and virus...
@@goddyricch4317 part of the supplements, now I have tremors, and so bad I have trouble walking.
@@maralee3329 I understand how you feel dear, I'll advice you recommend assistance from Dr Obinyan herbal home,if he can cure my aunt from fibromyalgia,am very sure he can cure you too💯💯
@@maralee3329 hello dear,how are you doing?
💙🙏✨
I’m back bob and brad, I threw out my back and now I’m diagnosed with Fibromyalgia, POTS and RA so in one sense I absolutely love your advice, but in the case of RA it’s degenerative (is that the right word?) so sometimes my pain is harming me (RUclips comment section is my therapy today I guess) and LOL I have a 150 heart rate from just standing. Hey I wish that meant anything good. Sigh. I gotta get that book though.
Msm in large doses fixes that look up msm miracle book
Mn
Do you two even have fibromyalgia. How would you know what someone with this is actually going through.
I mean you dont have to have your legs chopped to understand its hard to walk. This emphatetic understanding is at the basis of medicine. Would you want your cancer surgeon to have cancer as well? :D
my doctor helps. he doesn't have it :) but he has experienced pain in other areas of his life ...
I think as long as someone is sympathetic it does the job.
Thanks broskis
Where. can I get the book?
This doesn’t make any sense. If I am pinched it feels the same as it always has. This widespread muscular pain is not a sensitivity to pain. It’s actual pain. Aerobic activity makes things worse for me. I can walk long distances and it just causes a lot of pain. I’m not anxious. I live in acceptance of the pain.
Thank you
Some days I could just die it hurts so bad. And to think in the beginning it was all in my head and then it was i was drug seeking. I don't take pain killers so neither was it.
Thank you!! I have fibro too
The link for the book doesn’t work anymore.
Essentially it’s all in my head? And education could have alleviated all this time. Damn…
What is name of book? The link isn’t working
I am 50 male FB is worst while in lying and sitting only. If i walk for an hour no issues very strange?
The link to the book does nt work
👍🏾EducationExercisebreathing.
Many thanks