Real Life Stories: A 25 Year EDS Journey | Finding Your Range Podcast Episode 3
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- Опубликовано: 14 окт 2024
- Please note the information contained in this podcast episode is not designed to be medical advice or to replace any medical advice you may have received.
Dana Carter is a 37-year-old female who lives in Tampa, FL USA. She's married with 2 children, ages 7 and 5. She works part time as a woman's health nurse practitioner, partly to help women of all ages in a way she wishes she was helped. After 25 years of symptoms involving multiple systems, she was diagnosed with Hypermobility type Ehlers-Danlos Syndrome a couple of years after her second child was born. Throughout her medical journey, she researched a lot and learned more than she could imagined and thrives off relaying that information and compassion to women with similar problems.
This episode will discuss and highlight issues surrounding pregnancy and pelvic floor issues with hypermobility. I am very grateful to Dana to sharing her personal journey with us.
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I am very grateful for my fellow Zebra Philip Quigley, a musician from Leyland in Lancashire UK, who wrote the music for this video and just for this channel. Thank you. I am delighted to have my own theme tune.
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The information provided in this video is not designed to replace medical advice or be used as a replacement. Please ask your medical practitioner if you have particular queries on your health.
Several “aha” moments with this podcast. I’ve instinctively know that my pelvic floor was extremely tight and no amount of “exercise” has helped that. I feel like I’m finally learning how to support myself in a way that allows me to relax, through the gentle TZC movements and mindfulness. Thank you Jeannie!
That’s great to hear.
Wow! Thank you so very much for this! It's so helpful to have these kinds of testimonials explaining other people's journeys... It's really helping me to let go of the anger I feel, and is giving me strength to start advocating for myself again! I had lost hope... But these podcasts are helping me to really understand that I'm not alone... And that I can keep moving forward in a positive way. I cannot thank you enough! Xxx
That’s wonderful feedback. Thank you. So glad these are helpful.
Hi, thanks guys! So interesting and I can relate to so much of what you are saying, which is weird for me as I have spent 40yrs feeling like maybe I am just a hypochondriac or a freak! The official diagnosis last year helped, but it is great to hear you just talking about this stuff!
Thank you. So glad you enjoyed this episode.
I have a lot of this same constellation of issues since childhood! I "seized up" about 10 yrs ago and that's when, as an aside, a rheumatologist said I have hypermobility but no one has offered a solution. I've found my way here because I'm seized up again and need help! The gentle lower back exercises are helping.
Sorry to hear. Glad the gentle movements are helping.
Thank you both so much for sharing all of this. You speak of your medical history and pain so beautifully. I was not diagnosed until age 40, very very similar history and it helps to not feel alone or crazy.
Thank you. I’m so glad to hear. It’s important not to feel isolated.
Thank you! Really helpful!
Glad it was helpful!
Just finished up watching and with tears in my eyes and a heart fill of hope and inspiration, I would like to thank you both from the bottom of my heart for sharing your experience and wisdom here. I look forward to going through more of your videos here - and was wondering if you might have an EDS diet/supplement resource you like? Thank You both again!
So glad you enjoyed this. There’s a nutrition episode coming up soon.
Dear both, thank you so much for sharing. You speak right from my heart, but I would never have found the words like that. I am always sad, when I hear how much suffering there is also with others and at the same time so glad to feel I am not alone and there is people that understand. Keep up your great work and good faith. All the best!
Thank you - so glad to hear - you are not alone at all 🦓💪
Great watch and this gives me such confirmation and hope 🙏
I’m so glad to hear.
I’ve been following you for awhile but this video convinced me to join the Zebra Club.
Also, if possible, I am also from Tampa and would like to know the name of the neurologist who diagnosed your guest at Mayo Clinic.
I’m so happy you signed up. You can definitely ask that question in The Zebra Club members chat page.
Gave up on sending my long typed out story because it kept saying contains invalid arguement, something like that, but I looked through it W/a fine tooth comb & its all just my info, my story.
Thanks anyhow for this video.
Sorry to hear that
Wow. So insightful.
Hope it was useful.
The narrations of posture, pelvic floor, core, and needs of constant mindful motion are absolutely descriptive of me. All it takes is a fraction of a second of mindless movement and I'll crack my knee, ankle, shoulder, elbow, back, or something else. My Wife constantly asks me "Where did you get that bruise from" I usually have no idea.... I'm 45 and just now am assembling a lifetime of issues, injuries, and 'bodily features' into something starting to make sense. Not that dissimilar to Dana's path.
❤
Thank you 🙏🏻
I've been diagnosed with HMS and definitely experience balder problems, slow movement of food etc. Do you find people with HMS have the exact same symptoms as people with hEDS? Thank you in advance!
Hard to say, every case is different. Couldn’t say exact same symptoms. Best to look up on EDS Society or HMSA websites to read more.