My Journey with Pericarditis (thus far)
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- Опубликовано: 16 авг 2020
- A few months ago I was diagnosed with Pericarditis, which is an inflammation of the heart. I made this video to hopefully help people that are looking for answers (as I am looking for new knowledge as well). It's been a 3 month journey up until now and I haven't been able to work. Since then I've been devoting myself to learning as many skills as I can that don't involve setting my recovery back. Watch the video for the full story...
I also have a podcast here's a link:
anchor.fm/canofwormsjk 
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I had a classic presentation. I put up with for 7 hours overnight on New Years. Got my Dad to drive me to the emergency room early that morning. This was 2021. The ECG said heart attack but the pain was worse when laying down and better when sitting forward. They knew instantly it was pericarditis. Colchicne, ibprofen and codeine for 3 months and not a single problem since. Glad you were put on colchicine as its the first line treatment for pericarditis. Rest is everything in this situation. I did nothing for 3 months and it made recovery all the more easier. I was lucky i could work, isolated from home.
Thank you for helping me feel less alone
Thank you for sharing your journey! Like you said, exposure to so many things can cause this (virus like covid, bacteria, fungis, etc). I truly hope you and everyone else watching that is dealing with this, find full recovery and healing! I notice it a lot more when I recline, lay down, push myself or get too tired, and especially when I catch anything respiratory like a cold from someone (pretty sure covid started it all).
I was diagnosed with Pericarditis and Pericardial Effusion November 2023 but was having symptoms for 11 months prior. Doctors would not take it serious or look into it because I'm young (28 now) and waved it off as palpitations. Went to the ER for abdominal/chest pains and a CT scan caught the heart issue. It's been over a year now of Idiopathic Effusion and Pericarditis and finally getting treated with Colchicine and Aspirin for 6 weeks to see if it helps at all. The cardiologist was perplexed that it took so long to get real help but we're still trying to figure out what's causing it to be chronic.
Best wishes to all dealing with this❤ We will get through it!
So much empathy! It’s so painful, this last flare up took 2 months to get a diagnosis, and I hace had it at least 3 other times that went away with me taking ibuprofen thinking I had just strained my muscles or pulled cartliage from my sternum.
Trying to be patient!! It’s a long healing process!
@@moniqueflake2504 It's unfortunate that doctors aren't more proactive doing testing during early stages but it seems like more people are having heart related issues, so maybe there will be more awareness from all of this🩷 Does anything seem to aggravate and cause it to come back for you? I've heard excessive exercise and stress can so I'm avoiding it as much as possible for now.
Thanks for sharing your journey. I got rushed to hospital after experiencing 4 days of severe pain. Couldn’t breathe but the scariest part was my heart went from resting pulse to above 200. Happened 3 times the last one scared me so much I organised an ambulance. Medication drained the fluid around the heart and lung. Was in hospital for 5 days been out a week now and just extremely tired and exhausted. But mostly just scared about my future.
Take care everyone life is too short.
Thanks for sharing. I've had symptoms now for over 2 months. Had an episode like you in the begining and a nasty flu that lasted a long time. Now I feel mild pain, maybe a 0,5 or a 1 on the pain scale every now and then during the day. Im a very active person and it's very hard mentally not beeing able to do any activity's. Im at my breaking point, kinda depressed but your video helped.
Make sure to surround yourself with people that will support you! And don't forget to give yourself grace while going through it!
Do you have a diagnosis?
I got this for some reason due to stressful event and it's reoccurred for me after taking a Pfizer vaccine. It's super annoying how all of a sudden a pain came in through heart and it kept on getting worse. I had back in 2019 and again just last week.
Just be strong.i got this from 2022 after my second Pfizer vaccin.for the last 2years I have been in hospital for about 20times which about once a month.they didn't get any infectio or diseases that cause me this,no autoimmune diseases as well.i am just here with a devastated and anxious life.but I just try to be strong.i am on colchicine ever since but it doesn't stop it to come back again.i have just learn to live with this while hoping for the miracle
Oh that's really sad my friend. Not a good prognosis at all. Make the most of every day.
thanks dude
Dam I think I have this I’ve had those for a couple years I need to get it checked out
Untreated leads to a really poor prognosis. Get checked out NOW.
Did any of the tests (EKG, echo, chest x-ray, blood test etc) reveal any signs of pericarditis at any point? I've had all the tests done but nothing has come up, but the cardiologist diagnosed me with pericarditis based on my symptoms which sound similar to yours. It's been about two months now and I am still waiting for it to clear up
The blood test was the only one to show anything for me. They look for a certain protein (I think) and if it is higher than normal it's normally indicative of heart inflammation
Hi Eli - How you feeling now? Been experiencing a similar issue
Which medicine are you taking?
It can take up to 7 months to heal
@DarkEag1e they look for troponin, which indicates if you have had a heart attack or your cardiac tissue is releasing this chemical.
How would you describe the pain, location, center of chest, on left, underarm area, sharp, dull, aching, etc. Hope you are doing better now, as I see this was post over a year ago.
I'm better! Not sure if it will flair up again but I'm back to normal activities!
It was more dull pain/pressure on my chest at the time. Sometimes sharp
@@DarkEag1e glad to hear you are better now.
@@dragonspirit779 yeah thanks for asking!
How long do they want you to be on the colchicine? Did you have the vax? It is caused by this or a virus.
I think I answer all those questions in the combination of my update video and this one. I'd watch those and then ask if I didn't answer your question. I was on colchicine for 9 months and it was a virus for me.
Did you change your diet while you’ve been going through this?
What for?
@@stephenraynes2148 certain foods trigger it. I was on an anti inflammatory diet when I had it. It helped me. The doctor recommended it
@@chuckmccann8661 oh was that for acute or chronic percarditis?
@@stephenraynes2148 tbh I’m not sure. It was a mild case. But I’m guessing you didn’t change your diet?
@chuckmccann8661 no I didn't change mine as it was a mild case and resolved very quickly with medication but I would consider changes in diet had it been longer lasting.
Did you recover already?
I did! I should make a follow-up video. Took 10 months for me
@@DarkEag1e How did you recover and how long did you take the colchecine? Did you take anything other than that, the Ibuprofen and the prednesone?
Have you recovered from the pericarditis?
Not yet, still healing! Maybe I'll do an update soon.
@@DarkEag1e ah okay. I've had pericarditis on and off for the last two years :\
@@Jack-ns9sz sorry to hear that, is that why you searched for this video? 😔
Hi Jack - Have you recovered? How long did it last?
Hi All. I had it for a long time after thr jab.. was bad. Very active person. Got on methyl blue, within 4 to 6 weeks all healed. Had it once very mild within last year.
❤