Glad that there are more and more videos of Still’a disease popping up, I’m 26 and got it almost two years ago. It forced an early retirement from the army. I’ve tried different strict diets and many other things and Ive come to notice that for the most part the remissions come and go as they please. Meds definitely make life livable but I wish there was more I could do to not have the constant thought of “will it be bad again tomorrow”. Keep staying strong everyone!
I am always happy to see a video on my life, it's been a hard and lonely battle with a rare and terrible disease. Though, we all have a commonality in it, us few, and thats a beautiful thing.
Your resilience and shared journey with others facing rare diseases is truly inspiring. Keep fighting and know that you are never alone in this battle. ❤️
@@MedicalCentric I appreciate your words! It felt lonely sometimes but I have found some community, it's just hard with so few around that have Still's, though I don't feel alone!
I developed Stills when i was 45 on holiday in the UK in 1995 and I spent 4 weeks in St Mary`s hospital in London along with the usual symptoms I also got double Pneumonia and fluid around the Heart I`m now 71 years old and still suffer continuing attacks of this horrible condition.
I have to start tracking my temperature. I’m pretty sure this is what’s wrong with me. It started with a sore throat, exhaustion, joint pain and inflammation, random patchy splotches of pink rash, hearing loss, swollen glands. I definitely had mono but when it went away all of these symptoms stayed. No one has been able to figure out what’s wrong with me. The inflammation comes and goes as it pleases and NOTHING helps it. This could be a potential explanation for the last eight years of my life.
It’s crucial to track your symptoms closely and share them with your healthcare provider to help uncover the root cause and find an effective treatment ❤️.
My father is also suffering from this deasises he is taking stayroids pedisolan . Now he is ok.Please tell me how many times he will take stayroids and is this deasise is curable?
@@masterayush8590 this disease isn't curable. You can only control it with the medications. And about steroids, you cannot stop them at once, your doctor will reduce the dose basis on the recovery and time. Once it's in control the doctor will stop the steroids and continue the other medications.
Same! My rashes started 2.5 months before. It started small, only on my under arm, everyday the rash became more and now my whole body (except face) has it..
I was diagnosed in January of 2023 I turned 65. I was very active , eat healthy. Don’t drink . No fever , but attacks on my hands , wrists, nd knees . It went away for a complete month nd a half nd now had returned . How long did the meds that were given take to remove symptoms? I’m on prednisone nd the methotrexate ? Just started the M. But have been on prednisone since it restarted.
![Numbness or Tingling in the Feet or Toes? [Morton's Neuroma Treatment]](/img/1.gif)
Glad that there are more and more videos of Still’a disease popping up, I’m 26 and got it almost two years ago. It forced an early retirement from the army. I’ve tried different strict diets and many other things and Ive come to notice that for the most part the remissions come and go as they please. Meds definitely make life livable but I wish there was more I could do to not have the constant thought of “will it be bad again tomorrow”. Keep staying strong everyone!
Sorry about the experiences and thanks for sharing.
Right now am suffering from its since 7th Nov
The most accurate description of the disease on youtube.These are exactly my symptoms except fever.I didn't have fever
Sorry about the condition, I hope you are getting treatment now
Thank you for makin this very easy. Tomorrow is my rheumatology exam. You sir have helped a lot. thanks
Glad it helped, Wishing you goodluck with your exams
I am always happy to see a video on my life, it's been a hard and lonely battle with a rare and terrible disease. Though, we all have a commonality in it, us few, and thats a beautiful thing.
Your resilience and shared journey with others facing rare diseases is truly inspiring. Keep fighting and know that you are never alone in this battle. ❤️
@@MedicalCentric I appreciate your words! It felt lonely sometimes but I have found some community, it's just hard with so few around that have Still's, though I don't feel alone!
I developed Stills when i was 45 on holiday in the UK in 1995 and I spent 4 weeks in St Mary`s hospital in London along with the usual symptoms I also got double Pneumonia and fluid around the Heart I`m now 71 years old and still suffer continuing attacks of this horrible condition.
Sorry about the experience. Please continue to stay strong
U helped me alot….
Thank you so much
Now I can study 👍👍👍
All the best
I have to start tracking my temperature. I’m pretty sure this is what’s wrong with me. It started with a sore throat, exhaustion, joint pain and inflammation, random patchy splotches of pink rash, hearing loss, swollen glands. I definitely had mono but when it went away all of these symptoms stayed. No one has been able to figure out what’s wrong with me. The inflammation comes and goes as it pleases and NOTHING helps it. This could be a potential explanation for the last eight years of my life.
It’s crucial to track your symptoms closely and share them with your healthcare provider to help uncover the root cause and find an effective treatment ❤️.
My mom has this she got really sick and stayed in the hospital for a week but she started getting rashes a few months before she’s ok now
Glad she's okay now. Wishing her quick recovery
My father is also suffering from this deasises he is taking stayroids pedisolan . Now he is ok.Please tell me how many times he will take stayroids and is this deasise is curable?
@@masterayush8590 this disease isn't curable. You can only control it with the medications.
And about steroids, you cannot stop them at once, your doctor will reduce the dose basis on the recovery and time. Once it's in control the doctor will stop the steroids and continue the other medications.
Same! My rashes started 2.5 months before. It started small, only on my under arm, everyday the rash became more and now my whole body (except face) has it..
Very nicely explained the disease)))!.
Glad it was helpful.
I was diagnosed in January of 2023 I turned 65. I was very active , eat healthy. Don’t drink . No fever , but attacks on my hands , wrists, nd knees . It went away for a complete month nd a half nd now had returned . How long did the meds that were given take to remove symptoms? I’m on prednisone nd the methotrexate ? Just started the M. But have been on prednisone since it restarted.
Did you receive a mRNA vaccine?
Helpful ❤
Thank you sir
Welcome
Thank you❤️
Your are welcome
Sir I have this problem please help me. I have all body pain and fever 104 c
Please visit a doctor.
ab ap ki tabiat theek he?
Kindly let me know this disease can be cured from the root or not ?? One of my friends is suffering from this disease i want to see him healthy
Please let me also know because my son who is 17 daigonised with still..i can't see him suffering,he is on steroids. please reply ,is this curable
Iam suffering from it iam taking medi medicine
Sorry about the condition. I hope you get well soon
The rash doesn't itch
Very hot day very problem solution please