Why Isn't This Discussed More?

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  • Опубликовано: 26 дек 2024

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  • @Wheelsnoheels
    @Wheelsnoheels  2 года назад +45

    It was so lovely to see Jessica again, and We really hope you enjoyed this collaboration Watch jessicas video here ruclips.net/video/eEWAy552xiw/видео.html. If you are new here, Wheelsnoheels is all about wheelchair lifestyle. My videos mainly focus on wheelchairs and mobility aids. Disability Travel, and most recently, we have been renovating our house to make it fully wheelchair accessible.
    Feel free to check out…
    How to choose a wheelchair: ruclips.net/p/PLtbcZsZIvZdLuv6_3DugUBAtY7jE-KQ9V
    Accessible house Journey: ruclips.net/p/PLtbcZsZIvZdK3ImYUjp534j3Yz2hCIwPo
    How to travel by plane in a wheelchair: ruclips.net/p/PLtbcZsZIvZdLolmUwllxWzEbIwieX2V3V
    Disney in a Wheelchair:ruclips.net/p/PLtbcZsZIvZdIMhLl1VHRsaA7eJ5iN91DS

    • @megb9700
      @megb9700 2 года назад +1

      Anybody who lives long enough WILL be in a wheelchair and all people need aides to live well! Universal design should be standard.

  • @kristycook9850
    @kristycook9850 2 года назад +145

    Children will adapt to what you need from them. My daughter was 4 so the hardest part was over when I became disabled but I have helped raise nieces, nephews, and grandkids now. All of them would lift their own bottoms for changes from early on, they didn't run from me much, they listened and are all well behaved with me. My G-son has severe ADHD and would run from everybody but I only had him run, once from me, as I chased him in my chair. Luckily we were in a store not outside. I learned to tell him what I needed and he knew what was expected to get to go with me, so he was pretty good.

    • @Wheelsnoheels
      @Wheelsnoheels  2 года назад +15

      Yeah its amazing how they can be like that.

  • @charlespentrose7834
    @charlespentrose7834 2 года назад +58

    I don't think of parenting as hard, I think of it as challenging (partly because the word challenging has more positive connotations). And being disabled gives one a great deal of practice in dealing with challenges.

  • @darthmaule
    @darthmaule 2 года назад +70

    I came over from Jessica's channel. I love how natural the video feels! cant wait to watch more

    • @Wheelsnoheels
      @Wheelsnoheels  2 года назад +9

      Hi Molly, thanks for stopping by. Enjoy my videos 😊

    • @orthianz
      @orthianz 2 года назад +1

      As did I!

  • @cbryce9243
    @cbryce9243 2 года назад +28

    You two are two of the three people I look forward to watching. I am a grandparent of two and due to autoimmune diseases, I didn't start using a wheelchair until recently. It amazes me that anyone who has a disability such are yours, seem to be better at parenting than able-bodied folks. I had one child, and it was the hardest job I ever had.
    You and your partners work together so well. It's refreshing.

  • @TheWheelBry
    @TheWheelBry 2 года назад +3

    I'm not a parent but I have 2 nephews, one is almost 3, the other is almost 1. I used to get sad when the first was born that I wouldn't be able to play with him much as I can barely walk far with crutches and mainly use a chair. But now we have a great time! They've both known no different and both can propel my chair using the wheels! They love having rides and races in their cars. I get scared that I wouldn't be able to manage a family of my own but both of you bring me so much hope and happiness! Disabled parenting is a joy!

  • @spontaneousun
    @spontaneousun 2 года назад +34

    I love this video and the message at the end 💛 As someone who also has EDS and POTS, in addition to craniocervical instability and chronic migraines it’s amazing to see such a positive example of parenting with the abilities we DO have instead of focusing on all the negative challenges. Found you through Jessica and subscribed today!

    • @Wheelsnoheels
      @Wheelsnoheels  2 года назад +2

      Hi, thanks for sharing. And welcome to my channel :)

    • @tazBeaWheelz
      @tazBeaWheelz Год назад

      I have EDS too, but mines the bones and pain route and I’m now 24/7 wheelchair user, as I now cannot walk at all, but I’m getting on with it, now I’ve got my mind to catch up to it all. I have 3, not much info about this illness at the time, ie not knowing it was hereditary, so all of my kids have this, so if you have the option not to use other than your own eggs then yeah absolutely don’t feel bad, as the other side is watching your kids, in pain all the time like I have to. I feel crap that I wasn’t educated enough about it even though there wasn’t the info about it like there is now. But I must say my children have matured into great adults and I love them dearly so we live with no regrets and that’s what we have to say to each other, that they are our children, they may not be perfect, but we will do our best as Parents and accept what’s thrown at us and love Whatever the weather ❤❤

    • @spontaneousun
      @spontaneousun Год назад

      @@tazBeaWheelz I appreciate the honesty, I’m torn. I love children and have worked with kids in education for a decade, but have been on full disability for the last 2 years primarily due to complications from the spinal instability. I don’t want to pass this on, but there is no genetic test for hEDS that is accessible to me (I know they’re developing them) so if I use someone else’s eggs how do I know EDS isn’t a possibility there? Also, I’m not sure my body would survive a pregnancy or if I’d become even more disabled due to one and limit my parenting options further. It makes me seriously consider adoption, but I want to be more stable in my condition before introducing a child or children into my life.
      So, for now it’s a hypothetical I try to educate myself about options for. There certainly are no easy answers, but I also feel like there are a lot of kids out there who need love and homes. If nothing else I feel like that is something I’d be good at giving and after working with hundreds of children from refugees, to outdoor education, to montessori schools, to public schools, to EFL programs. I feel like I understand how much of a responsibility, challenge and joy it is to be responsible for raising a child. I know education and childcare is different than parenting, but I feel like I know enough to know I’d like to be a parent one day if possible.
      EDS is still such an evolving condition in terms of research and what they understand. It took 22 years of pain, dysfunction and injuries to finally get diagnosed at 31. I almost had children before my health issues started to flare really badly 7 years ago and honestly had I gone down that path it would have been with a high level of ignorance around my own condition and certainly around any ability to pass it on. I’m just glad that there seems to be efforts to understand more about it ongoing. I hope you were able to catch it early enough with your kids to help them manage their symptoms to the greatest degree current medical science allows.

  • @jaginaiaelectrizs6341
    @jaginaiaelectrizs6341 2 года назад +4

    My mother isn't disabled, and she always expected us to listen to her voice just like that anyway, because there isn't always time or the physical ability to get from Point A. to Point B. before something goes horribly irreversibly wrong if kids don't listen well(but especially in a family with multiple children). So, honestly, I think that's just a good practical lesson for parents to teach their kids in general too. 🙂

  • @pryor70
    @pryor70 2 года назад +8

    Hello Gem and Jessica, thank you for addressing what we as disabled people go through daily and also as parents. I am a proud parent of a daughter (30) and a son (27) both of which are helthy and still amaze me today I was able to raise them to be who they are today. Like you I had my childern after I became disabled. It's been just about 32 years ago I'm 52 now, that I lost my left leg AK in a railroad accident which put me in a wheelchair at 20 and was scared out of my mind at what I was going to do with my life now. I got married at 21 and found out that we were going to have our first child. Now anxiety really amped up at how am I going to take care of this perfect little girl from a wheelchair or carry her while trying to walk with my prosthesis the logistics became overwhelming. Then here she was and I just knew what I had to do. After my accident I started living by a mantra paraphrased from a movie, Improvise, Overcome, Adapt, and for the past 32 years now this has been my life. Since then whatever challenge has been placed before me I figure out how to solve it. With my daughter she was one of my greatest challenges but she gave me the confidence needed to adapt and overcome and improvise my care for her so when my son was born 2 and a half years later I would have the tools needed to help raise the both of them. As you know having childern is one of the greatest challenges any parent faces but for those of us that are disabled we have the added challenge of our disabilty and trying to raise our kids to be responsible adults. From my perspective the daily challenge of course is a lot less but I'm still their dad and being a parent never stops we just simply Adapt, Improvise and Overcome.
    Thank you again for your channels and bringing light to a world that so many don't understand.

  • @orthianz
    @orthianz 2 года назад +5

    It's the "but are you sure you're up to it?" Response that I most fear and most expect. That and "oh nooo you're pregnant" 😔😔

    • @Wheelsnoheels
      @Wheelsnoheels  2 года назад +4

      Awwww I hope not. Just shoot them down, Yeah I am :)

  • @ianscash6759
    @ianscash6759 2 года назад +2

    I remember when our son was born (his mum is a wheelchair user) he is now 43, the health visitor decided that Susan could not use nappies but decided at a case conference that we would need to buy disposable nappies ourselves but also decided that as I was a man I would not be able to change a nappy! I was a nurse on a children's ward. we had thousands of disposable nappies delivered every week, we gave away most to other parents.

  • @sheilarough236
    @sheilarough236 2 года назад +1

    Jessica always looks like a Disney Princess

  • @mamoonaa79
    @mamoonaa79 2 года назад +5

    You two are so lovely.

  • @rodentary
    @rodentary 2 года назад +5

    I think my fav part was the cat in the background.

  • @HelloL.G.
    @HelloL.G. 2 года назад +7

    This is brilliant! I love your collaborations, and it brings me so much joy to see your victories with your families. I totally understand that feeling of being useless. For me I think it cuts deep when called lazy or just not trying hard enough. I haven't been able to figure out how to explain to people, well yes I technically can walk a step or two with assistance, and yes I can sit up, but just because I was sitting up for several hours earlier, now I cannot move, and probably won't have any more spoons left until tomorrow. It has nothing to do with me wanting to or being motivated to do something. I just don't have the physical and mental capacity to function enough for that.
    Thank you for sharing your love and enthusiasm for your children and parenting. We need more of this, and I look forward to the next video. Many blessings to you both!

    • @Wheelsnoheels
      @Wheelsnoheels  2 года назад +2

      Thank you for sharing. My trigger word is lazy too. :(

  • @SnowySpiritRuby
    @SnowySpiritRuby 2 года назад +2

    Thank you for the flashing warning at the beginning - much appreciated.

  • @Mary-eo9pd
    @Mary-eo9pd 2 года назад +6

    This is so lovely, love to see such wonderful individuals come together and share their experiences

    • @Wheelsnoheels
      @Wheelsnoheels  2 года назад +4

      Ah thanks Mary. Glad you enjoyed it 😊

  • @cynthieful
    @cynthieful 2 года назад +1

    I would absolutely want to hear more about the joys of being a parent. I feel like the media and the way we talk focuses a lot on the negativity, so it gives a rather grim look on having children. I can hear a lot of my friends, who have stated that they don't want children, go on and on about how they'd never want to be involved in it, listing all the hard and negative things they've heard. I have the absolute same respect for anyone who doesn't want children, but I feel a bit sad if that's all they can see in it. I feel like I will want children, just not yet, and I'm not 100% sure, and all the negative talk is rather discouraging

  • @jennifers5560
    @jennifers5560 2 года назад +5

    What a positively nice video! The two of you really have great energy together.

  • @JennaGetsCreative
    @JennaGetsCreative 2 года назад +3

    I'm so excited that you two collaborated!

  • @rosariovj8513
    @rosariovj8513 2 года назад +2

    Much love to the both of you ! Thank you for sharing your experience 💫💫🌸

  • @williamederveen2532
    @williamederveen2532 2 года назад +2

    thanks for the instructive video, and super clever how you do it, hats off! and clever how you handle this with your situation!

  • @jwb52z9
    @jwb52z9 2 года назад +26

    II know some people won't like to hear someone say this. I'm glad the two of you are in a nation where you can get what you need, even if it takes time. As an American I could never, in good conscience, tell another American with a disability to have children unless they are also wealthy. Unlike every other first world nation, the US is not great with things like healthcare and the disabled. The general American attitude, unless you're elderly, completely and permanently disabled to an extreme degree like a quadriplegic who can't move or speak alone, or a young child, you're expected to do everything alone and succeed or basically drop dead and get out of the way of everyone else who did succeed alone. There are simply too many problems, if you ask me, for a disabled person's life in the US to bring children into the mix without money and a lot of help. I love seeing stories like the those of the two of you because I know there is at least one place out there where disabled people aren't forced to be destitute forever to get the help they need without going into massive debt and bankruptcy just to stay alive, let alone live day to day.

    • @HelloL.G.
      @HelloL.G. 2 года назад +4

      I can relate to this, which is kind of sad, but that's why it is so important to celebrate these women's victories, and let it be a hope and morale booster not to give up and encourage one another.

    • @Wheelsnoheels
      @Wheelsnoheels  2 года назад +1

      @@HelloL.G. Thank you

    • @Wheelsnoheels
      @Wheelsnoheels  2 года назад +1

      Thank you for sharing

    • @c.c.l.9139
      @c.c.l.9139 2 года назад

      To be fair, Canada is encouraging euthenasia for disabled people. It's awful in a lot of places, even with public medicine.

    • @HelloL.G.
      @HelloL.G. 2 года назад

      @@c.c.l.9139 what? the government in Canada is encouraging euthanasia for people? Because they are disabled? That's like saying because the person didn't kill you and only left you disabled, you (the victim) now have to die and the one responsible for causing you to be disabled gets to live? There has to be something here I am not understanding because this does not make any sense.

  • @tazBeaWheelz
    @tazBeaWheelz Год назад

    I have EDS too, but mines the bones and pain route and I’m now 24/7 wheelchair user, as I now cannot walk at all, but I’m getting on with it, now I’ve got my mind to catch up to it all. I have 3, not much info about this illness at the time, ie not knowing it was hereditary, so all of my kids have this, so if you have the option not to use other than your own eggs then yeah absolutely don’t feel bad, as the other side is watching your kids, in pain all the time like I have to. I feel crap that I wasn’t educated enough about it even though there wasn’t the info about it like there is now. But I must say my children have matured into great adults and I love them dearly so we live with no regrets and that’s what we have to say to each other, that they are our children, they may not be perfect, but we will do our best as Parents and accept what’s thrown at us and love Whatever the weather ❤❤

  • @tinachambers4887
    @tinachambers4887 2 года назад +2

    Grace under pressure makes you resilient, Enjoyed the video have a day love 😍 from TEXAS .

  • @PhoebeFayRuthLouise
    @PhoebeFayRuthLouise 2 года назад +2

    Wow, 2017! I first followed you after I saw that collab with Jessica! Thanks for another brilliant video, Gem! I’ve learned so much from you!

    • @Wheelsnoheels
      @Wheelsnoheels  2 года назад

      Ah thank you. That was when I was just starting out.

    • @PhoebeFayRuthLouise
      @PhoebeFayRuthLouise 2 года назад

      Oh, I had no idea that you were new to RUclips back then! Somehow I missed that! You’ve always been so smooth and professional!

  • @kadindefranza2478
    @kadindefranza2478 Год назад

    It's hard with my twins, they just turned 4 but they also have disabilities. They were born at 26 weeks and even then we were lucky with how healthy they ended up. One of them had started having seizures in the last year while the other is in the process of being diagnosed with autism. They have luckily grown out of their feeding tubes, so it is less to carry around. But with their medical issues plus my own, things are a little harder than it would normally be.

  • @kraz007
    @kraz007 2 года назад +1

    Love Jessica 😍

  • @geneventide5314
    @geneventide5314 2 года назад +2

    Hopefully you two can collaborate again soon!
    Such fun two!

  • @kat1722
    @kat1722 2 года назад +3

    Thank you to the both of you, you’ve given me confidence and ways to advocate for myself and my needs. And I’ve also gotten great advice and tips for what to look at in getting a wheelchair, which I’m now waiting for it to be made/delivered 😸

  • @carolehirsch7315
    @carolehirsch7315 2 года назад +1

    I am very much enjoying this video with the different perspectives on parenting. It’s fascinating to hear how you both parent with disabilities. Just one note: The music is a little too loud; it’s difficult to hear all the dialogue.
    And I want to hear all the dialogue because I love what you two ladies have to say! Thank you for making this video and sharing your personal lives with us.

  • @adem6371
    @adem6371 2 года назад

    What wonderful advice!!! Thank you both!! ❤️❤️❤️ Everyone talks about how difficult it is, and the judgement about ‘how are you going to do it?!’ or the you should reconsider parenthood because of your disabilities or chronic health conditions is intimidating and not at all helpful, it is helpful however to be reminded that this is really just more prejudice and not helpful for people, it can be done and is rewarding! And- go team!- the partnerships we have are more important than other peoples opinions. Thank you very much for this vid!

  • @laviniasnow4494
    @laviniasnow4494 2 года назад +1

    Such a lovely, positive video! 😌💜

  • @audreyd859
    @audreyd859 2 года назад

    So nice to meet you Gem! I have since subscribed!! Thank you so much for your vids and information. I love your energy and perspectives! :)

  • @javierbarrucz7755
    @javierbarrucz7755 2 года назад

    Congratulations 🍾🎈🎉 17:43

  • @edspace.
    @edspace. 2 года назад +1

    I hope everyone is having a wonderful day.
    This is the first time I think I've seen one of your videos.

    • @Wheelsnoheels
      @Wheelsnoheels  2 года назад +2

      Welcome. I hope you enjoy my vids :)

    • @edspace.
      @edspace. 2 года назад +1

      @@Wheelsnoheels Thank you very much, I hope so to.

  • @princesskayla1994
    @princesskayla1994 2 года назад +9

    Do people with disabilities have difficulty adopting/fostering from stereotypes and able bodied people such as social workers deeming them incapable?

    • @Wheelsnoheels
      @Wheelsnoheels  2 года назад +2

      This is something that I dont have experience in, so I wouldnt like to comment.

    • @nyxskids
      @nyxskids 2 года назад

      Not officially but yes

    • @scifirocks
      @scifirocks 2 года назад

      Where I live you have to pass a fitness assessment, I'm not sure but I think my health conditions would make a big difference. But if I got pregnant, I would be given any support needed to help with raising children.

  • @MusingsFromTheDen
    @MusingsFromTheDen 2 года назад

    This was a really interesting video. Disabled parenting still isn't talked about enough, even in 2022. 😊
    Can I make a suggestion? If you could stop the music when the talking starts, that really helps those of us with sensory processing issues, and makes what you're saying easier to follow. 😊 ❤️

  • @emmaeriksson7155
    @emmaeriksson7155 2 года назад

    The last advice really touched me 😭

  • @BCSchmerker
    @BCSchmerker 2 года назад +2

    +Wheelsnoheels *Concur on preplanning parenting as a team effort.*

  • @MicheMoffatt
    @MicheMoffatt 2 года назад

    I love this! Great to see you both, and I love your story of having your little man now too! 😘

  • @fishfish7985
    @fishfish7985 2 года назад

    Yup pepole are like covid was so difficult for me the easiest part of 2020 was being at home all the time because I "became/realized" my disability with about 3 near death experiences I'm 16 so haven't had any kids and don't plan on it but it feels like a similar comparison , but also following both of you is helping me heal my own rubish childhood:))

  • @arianaarmenta1335
    @arianaarmenta1335 2 года назад

    Observation: the people that complain the most often are the ones that have kids to satisfy expectations and not personal desire to have them and it always makes me sad.

  • @georgetatrai7308
    @georgetatrai7308 2 года назад +2

    I like your Kitty😻

  • @oiqueleria
    @oiqueleria 2 года назад

    Them: Oh yeah, last time was 2017, that’s a long time ago
    Me: It’s not that much…
    Jessica: 5 years ago!
    Me: 👁👄👁

  • @ClaireCaoimheRaeMoonshadow
    @ClaireCaoimheRaeMoonshadow 2 года назад

    I follow your instagram, but now here and TikTok too.