My sister was diagnosed with this during the early 90s. We watched her go from a came to crutches to a scooter and then to a wheelchair and then a power wheelchair. They had clinical trials where she would go into the university of Washington Hospital and get an IV infusion. It really started helping her, but unfortunately her heart was too damaged by them and she did pass away at 54. This woman is incredibly lucky to still be walking.
Thank you. I am blessed. I was diagnosed at age 53 and started receiving infusions right away, so it has helped me tremendously. Every patient's journey is different.
Pompe disease is new to me. I’m glad of this opportunity to learn about it. Sandra is a true joy, a ray of light. I’m glad to know a little about her, too. She is so much more than a woman dealing with disease.
Sandra you’re helping spread awareness by sharing your personal story. Thank you so much for telling us all about this condition that’s so rare . This will help others get a correct diagnosis. My love to you xxx
Sandra, you're such an inspiration to me, and I thank you for sharing this story with us. I have chronic osteoarthritis and it now seems asif I could have Rheumatoid Arthritis too - I await the blood test results. If I shpuld feel sorry for myself from here on, I will watch your story! The Lord bless you and keep you 🙏
Cynthia, I'd just like to add, I have a friend who has MS and some mistakenly assume that I have it as well. Different diseases, but our challenges are all the same.
I've never heard of this disease before. Sandra, thanks for sharing your story/journey. You are such an inspiration and what preserverance looks like!!! Wishing you the very best!❤
Sandra, thank you for sharing. You are an amazing and awesome woman. It is amazing what you can do once you set your mind to it. Keep the faith, I believe in the science of the treatment and cure is sure to follow.
I don't know how I missed this message my dear friend, Norma, thank you! It is the love and care of family and friends like you that drive me to keep living life and pushing through every day. Thank you for being there for me, always.
Sandra thank you for sharing your story and for bringing more awareness to this disease. Thank you for being so inspiring and such a beacon of life. Praying for your stability with this disease and for a cure and better treatments to become available. ❤️🙏🏽❤️🙏🏽 God bless you always. ❤️🙏🏽✝️❤️🙏🏽✝️
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My sister was diagnosed with this during the early 90s. We watched her go from a came to crutches to a scooter and then to a wheelchair and then a power wheelchair. They had clinical trials where she would go into the university of Washington Hospital and get an IV infusion. It really started helping her, but unfortunately her heart was too damaged by them and she did pass away at 54. This woman is incredibly lucky to still be walking.
Thank you. I am blessed. I was diagnosed at age 53 and started receiving infusions right away, so it has helped me tremendously. Every patient's journey is different.
Pompe disease is new to me. I’m glad of this opportunity to learn about it. Sandra is a true joy, a ray of light. I’m glad to know a little about her, too. She is so much more than a woman dealing with disease.
Thank you.
What grace and courage. I’m glad to be aware of Pompe disease, and also to have had the chance to witness Sandra’s heroic life in progress.
Thank you so much!
Sandra you’re helping spread awareness by sharing your personal story. Thank you so much for telling us all about this condition that’s so rare . This will help others get a correct diagnosis. My love to you xxx
Thank you, it was an honor.
Sandra, you're such an inspiration to me, and I thank you for sharing this story with us. I have chronic osteoarthritis and it now seems asif I could have Rheumatoid Arthritis too - I await the blood test results. If I shpuld feel sorry for myself from here on, I will watch your story! The Lord bless you and keep you 🙏
Thank you and stay positive!
I have never heard of this. I have ms, and do a lot of research. Thanks for telling us about it
You're welcome.
Cynthia, I'd just like to add, I have a friend who has MS and some mistakenly assume that I have it as well. Different diseases, but our challenges are all the same.
I've never heard of this disease before. Sandra, thanks for sharing your story/journey. You are such an inspiration and what preserverance looks like!!! Wishing you the very best!❤
Thank you.
Sandra, thank you for sharing. You are an amazing and awesome woman. It is amazing what you can do once you set your mind to it. Keep the faith, I believe in the science of the treatment and cure is sure to follow.
I don't know how I missed this message my dear friend, Norma, thank you! It is the love and care of family and friends like you that drive me to keep living life and pushing through every day. Thank you for being there for me, always.
Sandra thank you for sharing your story and for bringing more awareness to this disease. Thank you for being so inspiring and such a beacon of life. Praying for your stability with this disease and for a cure and better treatments to become available. ❤️🙏🏽❤️🙏🏽 God bless you always. ❤️🙏🏽✝️❤️🙏🏽✝️
Thank you.
Thank You For Sharing, I am your cousin on your father's side of the family ❤
What a very pretty family
Thank you.
Thanks for enlightening us. Sandra is an inspiration! Keep on Enduring Sandra! God's Kingdom is the Solution. Daniel 2:44; Isaiah 9:6,7
Thank you.
🙏🏾🙏🏾🙏🏾
J.C. Father and my mother are 1st. Cousins 😊