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Wow, what a beautiful story. I share a similar story with you as well. My brother was diagnosed with SMS at a very young age. Multiple specialists didn't know what he had for a long time. It has been a journey. From multiple major spinal surgeries, surgeries on his ears, a shunt installed to drain excessive fluid from his brain, and many many trials.. this story is beautiful and touching. It is very nice to relate to your family in many ways. The melatonin and the early stages were extremely tough! My brother is also non-verbal as well! Your family has so much patience, and its incredible to witness. It doesn't get easier, but believe me when I say... your son has an incredible big sister and the responsibility of caring for him would NEVER be a burden to her! (THE LOVE SHOWS) She is going to grow up and see the care you have demonstrated so well.. he will never go without! He will live many more beautiful years, even after your death, because he has an amazing family behind him! <3

My mom at 70 yrs old found out she had cancer on 3/2/2024. After doing additional tests she found out on 4/3/2024 that she had Stage IV cholangiocarcinoma. She was told on 4/3/2024 that she had a year to live and the pursue getting chemotherapy. She never made it. The day that chemo was supposed to start her body started to fall apart (because cancer had consumed so many other organs). She died 56 days after finding out that she had cancer and a mere 24 days after hearing she had 1 year to live. This cancer is terrible. I feel for everyone else that has or will go through this with a loved one. Cancer is awful.

Thank you for sharing this story!♥️

Hi, Im from Portugal and Iam mother of a 16 years old girl. Im also Family Doctor in OPorto, portugal. What is the name of the medication you talked in the video? Thanks for sharing your story, Loved Ana.

Migraines. New treatment may be? I have around three per year. A few days ago a Migraine started with the eye flashes as usual whilst I was driving. I pulled in to a layby and took two Ibuprofen as normal expecting that they would clear it up in the normal 30 odd minutes. At this time my hay fever was making my eyes sore so I immediately got out my battery operated two-pronged Red Light Therapy nose treatment and started the four minute cycle up my nose and within around a minute my left eye zig zags cleared and a couple of minutes later my right eye zig zags cleared also. No headache and no more Migraine. This was too obvious not to associate the RLT with removing my Migraine as the Ibuprofen had not had nearly enough time to assist. Make of this what you will but these little RLT machines can be sourced cheaply on line and, for me, replaced hay fever drugs completely a couple of decades ago with no side effects at all. For my next Migraine I will try the RLT first to see of it works drug free, meantime why not try it yourself even in desperation perhaps? I hope this helps someone.

thank god she has now free from any cancer god bless her a lot

This sounds incredibly traumatic..... Tumors do love sugar, glucose all processed foods, fatty foods, oils, dairy anything that is processed. scientific research points to water fasting once a week. Intermittent fasting daily. And consuming various types of vegetables and homemade blended vegetable juices. (avoiding ANYTHING TASTING SWEET including sweet fruits) until a person's blood tests improve DRAMATICALLY 😁👍🏻 The stomach secretes different fluids to digest different food... eating food groups 2 hours apart is less work on gastric environment. Organic probiotics prebiotic, enzyme, supplements. Tumors hate oxygen and fiber. The way food is cooked has an effect on weakening or strengthening tumors. Tumors hate boring food ie steamed or boiled veggies, water cooked foods etc. transcendental and visualization meditations , and the exercise of deep breathing into the stomach a few times daily. Detoxing endocrine and lymphatic system. These are a couple of bodily symptoms some tumors hijack. Hope this helps someone 💕🙏🏽

Wonderful, informative, beautiful. Thank you for sharing and informing. From a grandma of a super perfect sms 10 year old.SMS girl

🙏🙏🙏🌹

I lost my friend to this. Awful disease to go through.

God Bless you so much n your family. I know how you feel, God will continue to heal you he is the great physician on high when our doctors don't have the ability to help. I pray you continue to be free from the disease. 🫂🙏🫂🙏

You are a beautiful warrior stephanie.

I've had symptoms since the age of 12 and wasn't diagnosed until 36. Being diagnosed has made an improvement in understanding what is going on with me. The cataplexy can be difficult, I get very dizzy, not vertigo dizzy, but a buzzing in my head. I'm still looking for other narcoleptic's with this symptom, I haven't heard of anyone with narcolepsy type 1 describe this. I would love to be able to find other's struggling with this "dizziness."

Oh those fruits look sooooo good!!! I hv a procedure in July with the Gastrointestinal Specialist to see if I have EoE. I hv so many of the symptoms. Most days I feel so bad. And with Asthma and Sleep Apnea, it makes it worse.😢

My husband who is 45 has just got this diagnosis 2 weeks ago. Unfortunately we didn’t have any warnings, no symptoms no signs,4 th stage spreaded to liver . Hoping some miracle will happen.

Amazing and very motivating Kenny! Got the news 3 weeks ago as well! Your story and results give the spirit to fight this! John, Bangkok, Thailand.

Wow

Thank you

Sounds like going carnivore/ keto would be an option...😊

Cầu mong nhà khoa học nghiên cứu thành công phương pháp phục hồi lại tủy sống để mọi người chấn thương tủy bị liệt đi lại được.

Hello Brooke. I am glad You have the ability to use a manual wheelchair 😊

Thank you, souch, for sharing your story about difficult experiences... I am 67, and now, I imagine how you felt when you received cancer diagnosis.... Stay healthy and be happy!!!!

I am currently journeying alongside my husband as he walks this same path with metastatic stomach cancer. It is grueling in the extreme and life changing in its impact on the whole family. My greatest respect to you and your support team for the way you continue to get through this and encourage others

I don't think this disease is that rare! We live in a high stressed world and its super hard to get diagnosed. First the Drs don't believe you, then the tests are not clear cut. Its soo frustrating!

Curious as to why Paula Voelker died in 2016?

I just had 3 lymph nodes and a salivary gland removed that had melanoma. We Pray they got it all. But I will be getting Keytruda in case more is in my body

Has anyone tried Dupixent? They are wanting me to start it to control my EOE

Perhaps someday Lori could share recipes & other things that help her along in the journey. Being a chef is there a way for you to show us our enjoyment for food through her creations while on this journey?

Twin sister diagnosed with a GBM 7/2016 & passed away 4/2017. Miss her terribly every day 😢😢

My doctor ignored me as if I was drug seeking. He did send me to a gynecologist. She says things feel fine. I looked like I was pregnant. Back pain, sweating, pain in abdomen. The pain got worse so my plan go to er get problems figured out. They found a football size ovarian tumor. They sent me on a medical jet down to Seattle. They removed the tumor and did a debulking, took out some lymph node’s. Cancer didn’t spread outside the tumor. At the er they told me I would most likely die. I did go visit them when I got home. They were shocked, no chemo, no treatment my decision. That was in May 2011.

I have seen a lot of videos from doctors here on RUclips that explain how to starve cancer.I wish you all the best God bless you

Thank Gosh you caught it.

I want you all to join me thank Dr Madida Sam on RUclips for helping me with their treatment plan to reverse and cure my Parkinson disease🤢 I have been suffering from for 12 years, it is amazing how this I want you all to join me thank Dr Madida Sam on RUclips for helping me with their treatment plan to reverse and cure my Parkinson disease🤢 I have been suffering from for 12 years, it is amazing how this treatment plan has changed my life for the better and I know that he can do same for you all too and that is the reason I am recommending him to you because his treatment works 100%✅.

I have EOE after being hospitalized with aspiration pneumonia and was in the hospital for 5 days and aspirated into the wrong lung. I'm lactose intolerant amongst other things

Best wishes and prayers for this beautiful woman with an amazing outlook on living in the moment. She has a loving and supportive husband and hope for her future. Live life to the fullest, each and every day.

I am writing end April 2024 - I hope Emily that this message finds you recovered or recovering. Thank you for helping others by sharing your story. 🙏🙏

I just came across your story. You are truly an inspiration. My niece just became paralyzed 3 weeks ago. I could only hope she has half the fight you have!

Cough, difficulty swallowing, fatigue, itching, back pain, severe GERD, early satiety, nausea, vomiting, pain in chest and upper abdomen, pain when swallowing....symptoms I've been having

I'm 52 just got diagnosed finally and I've suffered and had surgeries and Dr's. Threw meds at me but I'm now trying humira. I've never been overweight and it's not due to weight but now all my children have it so very sad. I also suffer with severe joint pain

Send me your personal email to coachvidel2023@gmail.com

Back surgery is a scam dont do it!

GOD BLESS YOU BROOKE JI. MAY GOD GIVE YOU STRENGTH TO FIGHT THROUGH AND OVERCOME. MAY YOU RECEIVE ALL THE HEALTH AND HAPPINESS IN LIFE😢😢😢😢😢😢😢😢😢😢😢😢😢😢😢🥲🥲🥲🥲🥲🥲🥲🥲🥲🥲🤝🤝🤝🤝🤝🤝🤝🤝🤝🤝🤝🤝🤝🤝🤝🤝🤝🤝🤝🤝🤝🤝🤝🤝🤝🤝🤝🤝🤝🤝🤝🤝🤝❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤

I have experienced sudden iron based anemia, never been anemic before, and my doctor is also sending me for gastroscopy. Fingers crossed all okay 🙃

My father diagnosed on 25th feb 2024 by stage lV colangio carcinoma, he is on chemo + immune therapy but he is suffering very much. Pls god dont give this type of cancer to any body its very painful for both patient and the family also

Kim thank you for sharing,please never think you are a burden your family love you .good luck be positive

Omgoodness…. How are they treating it??

I know two people with this condition.

you can feel gout when its forming crystals, weird feeling ever. unreal pain.

My husband has this. Don’t take steroids or pharmaceuticals. Go see a holistic doctor and get allergies tested. It’s caused by allergies and inflammation.

What a story, what a person to endure this and be able to carry on, show positivity, and love for his family and kids I going to have some sort of treatment soon It's going to be at home with pills at least to start. The Doctor said there is no cure, just supress it. Really appreciate Kenny making the video and sharing. It means a lot to me. Best to U, Kenny, and Ur beautiful family.🥀