Thank you for doing this, Janelle. I've had LEMS for 18 years now. I was only 24 when diagnosed. I was able to show this to my husband and kids so they could maybe understand it a little better. For those of you who may read this, there are a few support groups on FB for people with LEMS.
It is indeed a difficult disease and has impacted the family. I am sorry for Janelle but yet she does have many positives. Excellent healthcare and access to up to date treatments, such a supportive and loving family and good friends. Not all would have these advantages.
Just went to the doctor yesterday and my initial assessment was Lambert Eaton Syndrome. I have been struggling in walking, getting up, and climbing stairs and it affects me so bad. Next month is my schedule for my MRI.
Janelle, I have this disease as well and can relate to your journey and the "new normal" you are learning to accept. Thank you for sharing your story. This disease changes our lives, but you seem to have an incredibly strong spirit, family, and community. Finding support so patients do not feel alone and can navigate the mental health challenges the symptoms can lead to is essential. What a wonderful support group --your husband, family and friends--you are blessed.
I have LEMS and some days it feels like I've experienced the highs and lows of several days in just one day. Each and every moment theres something new. I take Firdaspe and it has improved my strength significantly. Rest is the key. So listen to your body and report all new symptoms.
Thank you for doing this, Janelle. I've had LEMS for 18 years now. I was only 24 when diagnosed. I was able to show this to my husband and kids so they could maybe understand it a little better. For those of you who may read this, there are a few support groups on FB for people with LEMS.
I've had LEMS since 2019 and every day is a new fight. Wishing Janelle the best.
It is indeed a difficult disease and has impacted the family. I am sorry for Janelle but yet she does have many positives. Excellent healthcare and access to up to date treatments, such a supportive and loving family and good friends. Not all would have these advantages.
Just went to the doctor yesterday and my initial assessment was Lambert Eaton Syndrome. I have been struggling in walking, getting up, and climbing stairs and it affects me so bad. Next month is my schedule for my MRI.
This was very educational! I have been diagnosed with MG but it seems I have all the symptoms of LEMS.
Janelle, I have this disease as well and can relate to your journey and the "new normal" you are learning to accept. Thank you for sharing your story. This disease changes our lives, but you seem to have an incredibly strong spirit, family, and community. Finding support so patients do not feel alone and can navigate the mental health challenges the symptoms can lead to is essential. What a wonderful support group --your husband, family and friends--you are blessed.
I have LEMS and some days it feels like I've experienced the highs and lows of several days in just one day. Each and every moment theres something new. I take Firdaspe and it has improved my strength significantly. Rest is the key. So listen to your body and report all new symptoms.
What gorgeous children!
Condition I never heard of. Thx for sharing
May healing rain pour down on all of you.
She is lucky for having this kind of husband
God bless you❤
Autonomic, not automatic.
😔❤️😔
Please look into doing a strict carnivore diet. There are lots of good videos on it and helps autoimmune diseases immensely.