Part I: Hysterectomy & Excision Surgery for Endometriosis & Adenomyosis
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- Опубликовано: 26 сен 2024
- After years of ‘dealing’ with painful periods, recurring GI issues, and chronic pain, I will be having a hysterectomy and excision surgery for suspected endometriosis & adenomyosis. In today’s video I explain my backstory, the symptoms I’ve experienced along the way, and the procedure(s) I’m undergoing in an effort to heal my body. No two people are alike, but I’ve met many like me who struggle with the pain and frustrations that I’ve experienced. Unfortunately, these chronic conditions are still drastically underrepresented in society, but by sharing and being open about this situation I hope you feel less alone. I’m extremely grateful to the friends, family, and medical professionals who have helped/are helping me navigate this process. Please be patient with us if there is a slight lull in our regular content.
Stick around for Part II if you’d like to see how I go about preparing myself and my surroundings for recovery. Feel free to follow along on Instagram as well / ourtimeofthemonth
I am not a medical doctor; this video contains my experience and opinions.
RESOURCES:
The Endometriosis Center at Mercy mdmercy.com/ce...
The Baltimore Flow Facebook: / thebaltimoreflow
The Baltimore Flow Instagram: / thebaltimoreflow
Nancy’s Nook: nancysnookendo...
Endo Found: www.endofound.org
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Wow, I had no idea about any of this. You brought me to tears, this is my life. I have had all of these symptoms since I started my period and I am 40, and had no idea why, no Dr has helped. They just keep recommending birth control and it’s never helped. My daughter is 14 and has heavy and disabling periods already. Because if this I will get us both seen. Thank you.
Wow! How wonderful! I wish you both the very best. ❤️
May I recommend finding a specialist to go to vs an OBGYN for example. I wasted 4 years of my life in pain, then I went to University of Rochester specialist. They changed my life. Praying for help for you. You are not alone.
💖🙏
I was the same . my doctor just keep giving me birth control pills. UNTILL I WENT TO A GYNECOLOGIST.
My hysterectomy was the best self care I’ve ever done. Happy healing!
How was the recovery
How are you doing these days? Have you experienced any body changes, weight gain?
Adenomyosis is truly awful! I went through the same things, regarding heavy/long periods etc. Having a hysterectomy was the BEST thing I ever did! It went smoothly and I had no complications at all. I have felt so much better! Good luck, Danielle! 😊
Hi, about to get surgery next wk
Uterus & cervix removed. Did you get both removed? How do you feel? Sort of afraid to get both done although my Md suggests it
I did have both removed and did great after! Make sure you have a pillow to hold on your stomach and some ice packs to sit on. I had a few days of discomfort, but nothing horrible. I was exhausted for a long time after. I would start feeling well, and think I was up to doing things….but I wasn’t! So, don’t push yourself. I’m sure you’re going to do great! Best of luck!
@@lisadarst3297 thank you so much 🙏💕 I will get a pillow , did you get one like for pregnant women ?
I just used a memory foam pillow, but the pregnancy type would probably be great.
@@lisadarst3297 thank you so much for the tips🙏💕
I had a hysterectomy at 22, I suffered from the time I was 16 (that’s when I finally started my menstrual cycle)with painful periods, endometriosis, fibroids and random some cysts down my Fallopian tubes. I spent almost every month in the ER when I had a period (very irregular cycles) while I was pregnant I had another major fibroid in my uterus that grew with the baby. My uterus was toast after 9 months of growth. But having a partial hysterectomy at 22 was the best decision I ever made. I have never regretted it and I’m
Now 51. I just had some blood work done and I’m officially post menopausal and I have never taking any HRT’s.
Danielle, I love how open and honest you are! My Mother suffered from endometriosis until she was 40 and said having a hysterectomy was the best decision she had ever made. Good luck with the surgery and God bless.
Did it came back 😢
This made me cry. I’m 24 and sick of dealing with Endo! I feel like no one listens or understands me. Thank you for sharing your story.
OMG!! You recorded this MONTHS ago but I’m JUST watching today! I was recently diagnosed with adenomyosis and will be getting a hysterectomy ASAP…I hope!! My periods have been awful for the past 3 years and have become unbearable in the past 2 months! I have ALL those symptoms..heavy, prolonged bleeding/clots, bloating/fullness, diarrhea/constipation, nausea, headaches. My blood count has gotten so low from all the bleeding/clots that I also have iron deficiency anemia and need iron infusions. I finally have a doctor that is doing something, so I see light at the end of this very long tunnel! So THANK YOU for sharing your story. I WISH I had found you sooner!
How was your surgery and recovery? I've been dealing with Adenomyosis for about 4 or 5 years. I'm scared of surgery but this is mentally and physically terrible so im going to get it done soon.
I had gone undiagnosed for many years and sounded just like you. Finally found a thorough, compassionate Dr. that was willing to listen and investigate. I had adenomyosis and had a hysterectomy 12 years ago. Best decision ever! I was missing out on so much of my life and after surgery and recovery, I was able to enjoy life again. Your honesty and vulnerability will help so many women! Good luck on your journey ❤️
I had a hysterectomy 5 years ago at 36. It was the best thing that happened. I suffered awful periods for ever just like you. The recovery was a breeze. I went back to work after 1 week and started working out after 4 weeks. I only took Advil and Tylenol. I wish I had known and been about endometriosis years ago. I don’t understand why it hasn’t been talked about more. You will be fine and so glad you did it.
Hi did you feel any change in your body/skin/libido? I am considering to have one but would be good to hear from someone who did it years ago and as young as me ❤️
@@katif9406 Yes, change in all that within the 2 years after. I mentioned this to my doctor and she felt that the changes were due to me approaching 40 not to do with the surgery. I don’t necessarily agree with that but just accepted it. I don’t regret the surgery since it took care of a big problem I was having but I do feel it caused my body to age and change. Age spots started to appear, hair thinned, low sex drive,
@@amandacarpenter3633 thanks for answering god bless ❤️
@@amandacarpenter3633 mine was a success too but now a new symptom chronic pelvic pain...I'm 10 days from surgery
What type of hysterectomy did you get?
I had a hysterectomy 4 weeks ago due to fibroids and was also diagnosed with endometriosis and adenomyosis which I suspected. Still recovering but it's getting better every day. Much luck and speedy recovery to you!
How are you feeling now ?
@@lizhdzloz2306 Good! No more bleeding. Sometimes I forget I even had surgery. Every so often I get a tiny bit crampy which could mean things are still settling inside. I heard it takes 6 months to a year to feel COMPLETELY normal. But I am happy.
hi . My doctor also suggested me total hysterectomy bcoz of my Fibroid, endometriosis and adenomyosis. but still m confused what should i do.. should i go for hysterectomy or not? coz m 35 n hv no kid yet. so my husband is not allowing me for this surgery. But i am in my worse condition with alot of alot of pain in my pelvic, abdomen and everywhere down my lower back, lower hip n legs. 1 if my doctor suggest me ZOLADAX INJECTION, which m not sure this would be helpful or not. i have already done with 2 major surgeries for endometriosis, was also treated so many birth control pills n Danazol. but still suffering from pain. dont know what should i do now....!!!
@@fiashah4171 if you still want children you might have the option to get a myomectomy to remove fibroids. I did that and then had my child at 41. Of course, my fibroids came back but at least it bought me time and gave me the opportunity to have my one healthy child.
@@angellouisesings yes i already tried this option but it didn't work for me, after 6 months of surgery i had fibroid and large endometriotic cysts again.. you were lucky in this regard.. just pray for me dear .
It's so helpful to me to hear I am not alone. For 7 years I avoided leaving my house on day 2 & 3 of my period with exhaustion and so many changes of clothes. Thank you for your honesty
Gosh! I’m in tears right now. I have been dealing with a lot of stomach issues and I have never put together that my painful periods and fibroids are causing me that too. My surgery is in a few days and I’m praying that all of that goes away 🙏 you got me in tears when you said you didn’t want to eat anything while going out with your friends Bc you were afraid. I hope your doing much better! Thanks for sharing your journey!
I am having a hysterectomy in less than 2 weeks due to adenomyosis. Thank you for sharing your story! It has truly ruined my life and I'm hoping I feel like a different person afterwards. ❤
Hola, cómo te fue con la cirugía?
How was your surgery experience?
@@marcela1125 Hola, tu tienes ademoysis?
@@ceciff1357 hola 👋 si la tuve y endometriosis, porque ya me hicieron una histerectomia.
@@marcela1125 tenia las dos cosas? Y como esta? Com se siente despues de la cirugia?
Thank you for posting this! I suffered for years with similar symptoms, the pain was debilitating at times. My periods were so heavy, unpredictable with giant clots. I remember being in math class at college, blood dripping down my leg and onto the floor. I had to sit at the desk until everyone left the room, I'm sure if anyone saw how bad it was they would have called 911. And so many incidents of staining my clothes, i started carrying around a sweater to wrap around my waist because i bled through so frequently. I couldn't use tampons because of the clots & had to carry a bag of overnight size pads with me at all times. There were occasions it was so incredibly heavy, I considered wearing a diaper. I was constantly feeling humiliated & terrified because my bleeding/clotting could happen at any moment without warning. There were also times I bled onto furniture or hotel sheets. So many vacations & special events ruined because of the pain & bleeding. I finally connected with a nurse practitioner who listened & recommended birth control. Eventually hormones stopped working & the symptoms came back. At the age of 43 I was diagnosed with early stage uterine cancer. I also had ovarian cysts & endometriosis, I only wish a partial had been offered to me in my 20s or 30s. My quality of life is so different now!
That sounds so painful! So sad to read you had to go through this for so long...Hope you have a better quality of life now!
@@margaritamaximova4556 thank you for your compassion!
this is so crazy. i was just diagnosed but am just so upset i didnt seek help or get better care from doctors sooner. I was just telling my husband last night about having to wear a hoodie or sweater in highschool to tie around my waist and the incidences of having to either sit and wait for everyone to exit a classroom or flee as quickly as possible because there was no way to conceal or deal with the aftermath of a surge.
I’m going to do SOMETHING I need to see what my options are . I’m soooo tired of bleeding ALL the TIME .
You have described my 35 years of life in this video! I’m on consult for getting hysterectomy 😍
I am now going for a complete abdominal hysterectomy. I watched this video a couple years ago, and now I'm watching to get prepared like you did. I watch you and Kaitlyn all of the time. Your hysterectomy videos are so very helpful. Thank you for sharing.
Thank you for posting this! You are really going to help people with this information. I was misdiagnosed- literally blown off and dismissed by many a doctor with 8 years of misery and infertility before landing in the hospital with pain and bleeding so badly I could not sit up without passing out. Even then I was diagnosed with fibroids. After my hysterectomy that took 6 more months, bleeding everyday still, to get approved and scheduled, Finally massive relief- best thing I ever did!!! My surgeon came in hugged me and profusely apologized that my Adenomyosis was overlooked for my entire adult life. It took post surgical biopsy to finally get this diagnosed. How did these specialist I sought out miss this??? They never really listened and I never found the doctor I deserved. I am so happy you did! You got this- I feel AMAZING now, no pain or GI issues.
How are you doing these days? Have you experienced any body changes, weight gain?
OG Yaz-er here! So glad you found a doc who made you feel heard and you feel like you have a path forward. Cheering for you!
Appreciate you sharing your journey. I had my hysterectomy back in 2001. Took a long time for my doctor to diagnose all my symptoms. I was nervous, but it has been one of the best decisions I made.
I wish I had found this to help me ease through the preparation of my hysterectomy! I’m one week post and doing fine! Thank you for sharing.
How are you doing these days? Have you experienced any body changes, weight gain?
Thank you so much for your vulnerability. By being open, you're helping untold numbers of other women. That we are supposed to just carry on with life while suffering is crap and needs to go away. Brave people like you talking about it, and loving doctors like the one you found is a great start to changing the script. The surgery is going to go great! You're used to so much pain and discomfort that you will probably find this pretty simple in comparison. Lots of love coming your way - Cindi
Thank you for sharing your story. I was diagnosed with an ultrasound with adenomyosis, and they found endometriosis underneath my uterus during my hysterectomy. Your video was one of the first ones I saw that helped validate my feelings before seeing the gynaecologist. Thank you, thank you, thank you.
Danielle -- thank you for being so honest, open, and raw about what you have been struggling with. I had a very similar history as you, including the whole Yaz situation. It was like listening to my story, with slight variations. Mine is different in that I would have periods that lasted 2 to 3 months straight -- 60+ days of consecutive bleeding -- even being on the pill. I had difficulty getting pregnant and staying pregnant. I was blessed with one successful full term pregnancy and have a beautiful son. I had so many ultrasounds and sonograms over the years in an attempt to figure out what was wrong. Finally in 2013, with the help of advancements in sonogram technology, they discovered I had a septate uterus-- which means that I basically had two uteruses -- I had a wall splitting my uterus into two cavities and mine was especially rare because it spanned horizontally instead of vertically. So for all those years on the scans when the quality of the photos was not what it is today, the extra wall near the top of my uterus was seen as just a normal uterus -- the clarity, or lack thereof, did not show that there was actually a cavity above. My gynecologist thought that was the only reason for the excessive bleeding. A hysterectomy was my only option if I did not want to suffer any longer. So I had a laparoscopic hysterectomy in 2013 at the age of 43, after suffering since the age of 10 (I still have my ovaries, but she removed everything else). When the tissue was examined by a pathologist, it was discovered that I had adenomyosis as well. I want to assure you that it is worth it to have the surgery! I cannot stress to you enough how dramatically your quality of life will increase. There are no words that can emphasize the degree of the change. The last 8 years of my life have been so different than the previous 33! I don't need to explain how -- you get it because you perfectly described how your cycle ruled your life. It won't anymore. If I could offer some suggestions for your recovery post surgery: 1) make sure you have a heating pad near you -- it can help ease the discomfort as your body heals, 2) have Miralax and apple juice on hand -- the gas bubbles from the procedure can be quite uncomfortable and mixing Miralax with a small glass of apple juice is a game changer (my gynecologist specifically told me to use that brand with apple juice), 3) with assistance from someone, get up and SLOWLY walk for about 5 or 10 minutes a few times a day starting the day you come home - you won't feel like doing that, but it makes such a difference in getting everything moving again and working the gas bubbles out of your system (I walked down to the end of my cul-de-sac and back, roughly 3 houses from the circle) 4) buy some grandma underwear in a size bigger than you normally wear -- your abdomen will be swollen for a bit from the procedure and it takes some time for the swelling and air to calm down; you want the underwear to come up over your belly button so that the elastic is not resting right on the incision area 5) have a pile of comfortable, non-compression leggings to wear during your recovery timeframe 6) consistently take the pain meds on a regular schedule for at least the first week -- don't skip a dose and don't let extra time elapse between doses 7) fatigue will suddenly hit you -- like BAM -- for several weeks after the procedure -- try to limit time out in a store, etc. to about 20 minutes -- you think you are fine and then it just comes out of nowhere and you simply don't have the energy to take another step or stand. ~ Sending you so much positivity! xoxo
I had a hysterectomy at 45. You will love it! No more periods!!! It is so awesome! I had a super duper heavy period my whole life! I had bleeding after I had my twins. Nothing helped. They did the whole procedure through my belly button which in 2008 was new.
I wish my doctor would listen to me and allow me to have one.
Did you gain weight after your hysterectomy?
Good luck on your surgery 🙏 I promise you, hysterectomy is going to be the best decision you ever made. I had both and all the symptoms you mentioned. I had hysterectomy 2 years ago at 43 and I regretted not having it earlier. Because why ? I felt happy when I woke up from surgery. Good luck once more, you will be fine.
I had Adenomyosis and LORD talk about heavy, painful period, the clots were huge. I was 45 and new I'm not having another kid, and any woman who does in their 40s is out of their mind. Getting a hysterectomy was the best thing ever
Thank you so much for sharing Danielle! I appreciate your transparency and honesty too. I literally had to hold back my tears as I watched/listened to your video. I was diagnosed with endometriosis in 2008 and recently diagnosed with adenomyosis last week. 😔I’ve been crying all weekend. I faith that God will heal me mind body and soul, with the help of surgery. You LITERALLY described my life in this video, which also damn near had me in tears as well. Side Note: I’m an emotional wreck right now! I hope by now you’re in much better shape. #Blessings ❤️🩹
💖🙏
How have you been?
I just had my diagnosis two days ago and it was so liberating!! My surgery could still be 1-1.5 years away, but just knowing that there will hopefully be an end to feeling like this, is amazing. I love that description of the uterus, it's so true.😂👋 For a long time now I've had awful GI symptoms that you described perfectly - being nervous to even eat.. my Endo doc referred me to a different GI doc (previously saw one), so hopefully they'll be able to restore my gut and that part of my life (eating is a big part of life😳).
Thank you for sharing your experience! It really does make a difference.
Have you ever tried out herbal medication it works perfectly with no side effects whatsoever with the the help of Dr Mabosa Herbal on RUclips he can help you I’m a living testimony
I commend you for sharing your story. I wish that there was more information available for me years ago when I struggled with very similar symptoms and experience with uterine fibroids. My doctor tried to convince me for 10 years to get a hysterectomy but I refused because I was very misinformed. I can tell you that I finally got fed up and had surgery 5 years ago and it was the best thing ever. My recovery from a hysterectomy was EASIER than a period. How is that possible?? I'm now living a new normal in which I don't plan around my bodily functions. I feel like I have control. I hope your viewers, if experiencing issues such as this, are encouraged to seek attention from a doctor that will listen to them. Best of luck to you!
I have a depth of understanding that kinda freaks me out. My past experiences with periods are spot in with yours. From day one, horrible pain and bleeding. Throwing up, unbearable cramps, missing school/work/events, suffering through every period. After decades of suffering and progressively getting worse with more symptoms, I finally found a gynecologist who really truly heard me. I knew what endometriosis was but I had never heard of adenomyosis until I was diagnosed. I ended up having a complete hysterectomy 4 years ago. Best thing I’ve ever done. You will have some bumps in the road because it is major surgery and your hormones will need to adjust, but girl you’ve got this!
Wow, I really admire your honesty and openness with what you are going through, and I especially appreciate the realization you have that getting help for your issues is a privilege in this country that not everyone has the option to take. I hope everything works out for you, and I’m sure there are some women watching this who finally feel heard, and know there are others out there suffering the same thing. Thank you so much for this!
I’m so sorry you have lived with this for so many years. Your story sounds exactly like mine was. April 24, 1986 was the greatest day of my life when I had a total hysterectomy. Never regretted it for a minute. I am very thankful I had a GYN who diagnosed me in my early twenties but felt I “needed” to have children. Well, we didn’t want children and after my husband had a vasectomy the doctor finally realized we were serious about the no children issue. So at 39, my life finally changed. I hope you do as well as I did and feel the date of your surgery is your greatest day too. Good luck!
This video made me cry, I had the exact same experience after my first Gyno surgical appointment. The validation and relief that my symptoms were not all in my head did wonders for my mental health. I had the excision surgery and after 4 miscarriages I am at a place I am ready for the hysterectomy
Thank you for the video, iam having my surgery soon, scared,nervous, happy I don't know so many feelings at the same time 🙏 💖.
I have been diagnosed with Adenomyosis as well as the early stages of Endometriosis. I am now 48 and soooo done! The past 7 or so years have been horrible. Thank God my husband is so supportive of the monster this has brought out of me lol. I love your videos and it helps me more than you'll ever know to hear the same stories I have been telling others. I am booked in for surgery in less than 2 weeks and I am just trying to stay calm about it. I know once my vaginal hysterectomy is done I will be able to get on with my life again. No more pain, no more anxiety, noore missing work and not letting this disease run my life. You are hilarious and real by the way and I really, really needed that right now. Thank you for the video.!
I am so glad you did this video. I suffered for years and years. I finally got help but I had a few doctors say some not so nice things. Thank you for letting me know I was not alone.
Im getting a Hysterectomy on 10/01, Keeping my ovaries. Really nervous but im tired of being in pain all the time. Goodbye endometriosis. Thank you for this video!!
I really admire your openness. I can’t talk about body issues, functions, etc with anyone irl much less on the internet. I pray this procedure brings you relief. Please keep us posted.
I had a hysterectomy in October for endo and fibroids. Best decision I’ve ever made!! Also you are giving me Anna Kendrick vibes!
I’ve been moved over the months by your openness about everything. My sister had a hysterectomy years ago, and it was brillant. I have developed illnesses that immediately took away my period, and it’s that silver lining in a bunch of funk. Getting rid of the bleeding is a beautiful thing, and I hope it resolves all your pain.
So happy for you to finally have a solution. I'm two years out from my hysterectomy. Highly recommend the hyster sister videos. Let your body take it slow in recovery. True healing takes time. I can hear all the joy and hope in your voice.
You described me to a T.. including shooting nerve pains in my legs. 7 DAYS POST HYSTERECTOMY!!! Thank God i did it.
I have alot of these symptoms. I have had 4 children each 21 to 24 months apart. Had my tubes tied after #4, after several dr visits, pelvix exams, blood work, ultrasounds, ect.etc. my dr has diagnosed me with angry uterus or uterine inflammation. We have scheduled my partial hysto for October 24th, my gi will also be removing Mt gallbladder during this procedure because after about 15 years of pain in the gallbladder area and multiple hospitalizations for the pain and multiple tests done no dr has been able to figure out my gallbladder pains and issues, I found a new dr who is doing a hydascan on September 19th just to check things out but he said regardless he is going to remove it for me during my partial hysto procedure. I'm very excited to be pain free and healthy and live my best and most normal life after this procedure. I'm so thankful for my amazing Dr's who have listened to me!
Just found you. So thankful. I had a hysterectomy back in 2007. I had numerous cysts and extensively horrible periods. I finally just told my gyno to just take it out. Turns out my left ovary had so much scar tissue from the cysts that it had to be removed as well. It was sent to the lab for testing and was told later I had endometriosis as well as adenomyosis. I still have cysts on the ovary that is left, but was thrown into early menopause. I now have zero libido which causes massive tension between myself and my husband. I’m at such a loss with my body I’ve just given up.
Thank you for this! I am 46. Having a hysterectomy next week and have every symptom you had and more wine 17. I have 1 child who is now 21. My child rearing days are behind me. So glad you did not wait until your 40s to make the best decision for you. Very positive, honest and encouraging
Hi I am going to have mine next 2 weeks please share your experience I’m really worried
I have to say it feels like you read off my symptoms to a tee. Yesterday i had my hysterectomy and I can’t wait to live again
Thank you for sharing, Danielle. Thank you for your honesty. I will all be praying for your speedy recovery. I bet you will read SO many books. I will miss your videos, and look forward to when you are back again. And, I can't wait until you are back and hear your surgery and recovery story.
An MRI showed that I had adenomyosis and endometriosis. I had every single symptom that you mentioned including sibo symptoms. I opted for a uterine artery embolization (UAE) to remove the adenomyosis. I just had my procedure done and it has been a painful recovery for the first week but I am now in my 2nd week of recovery and I hope it gets better. I hope your procedure works for you. Good luck!
Hi
I just had a complete hysterectomy Tuesday. I really appreciate your videos 😍. The only things I have not had issues with are GI. I came home Friday, it's Saturday. You're great. I still can't laugh 😂 properly because it hurts, but you're on point. Thanks so much for being transparent.
I can definitely relate to the situation that you were going through. I am 36 yrs old and I just had a robotic hysterectomy. I am now 2 weeks post surgery. I had painful periods and the bleeding and blood clots was just terrible. I was diagnosed with a condition called adenomyosis several years ago. I had tried different types of birth control pills some of which helps but I was in a different metal state after a while. After speaking to a different Obgyn from the one I had back home in Jamaica, he understood exactly what I was going through. I even showed him a picture of a big clot that dropped out on my pad before I was able to make it to the bathroom . I always hear about the hysterectomy procedure, however I was a little scared but after he explained to me the ins and out of what the procedure entails it was a no brainer for me. For one, I have a 16 yr old son and I’m married. My husband and I spoke about it and he was also relieve for him to hear that I was going to get the procedure done.He was so worried about me and he just never knew what to do to help. He hated to see what I was going through.During my surgery the doctor found out I had fibroids, which was alarming because all the years of going to my Obgyn and running all sorts of test and even biopsies, no one told me I had fibroids but I’m thankful he was able to remove it. It was a big one too. I am already feeling great mentally and physically but a little sore on the inside. I am definitely taking my time to heal.
I hope that you are now in a better place mentally and physically. God bless you.🙏🙏🙏
I am 51 and have struggled with heavy, painful periods since my teens. Because I have been in peri menopause for several years, I always put off seeking treatment, figuring that it would all be over soon enough and then I would just be dealing with changing hormones. That has not been the case, however, and it seems like I get my period every 2 weeks - sometimes it is just a trickle, and other times it is super heavy, clotty, and crampy. I am having surgery in a few weeks to have part of my thyroid removed, but once I have recovered from that I am going to go back to my GYN to see if there is anything they can do for my symptoms. Thank you for sharing your story, and good luck with your surgery and recovery. ♥️🙏🏼
Hi dear have you ever tried out herbal medications it worked for me with no side effects whatsoever with the help of DR MABOSA HERBAL on RUclips he can help you I'm a living testimony
Danielle, you are a WARRIOR and this surgery will be the grand explanation point to a beyond rough, challenging and emotional many many years. Stay strong, healing is just days away. Sending hugs and all the positivity I can to you 💖🌸💖
Suffered for 21 years. Endometriosis, fibroids, polyps, adenomyosis and endometriomas!! Just had hysterectomy 2 weeks ago. Looking forward to the recovery period…..
Hola 👋, cómo te sientes?
This is me and I have a period for three weeks straight every month that are super heavy and very painful. I was recently was diagnosed with adenomyosis and will have a hysterectomy in 3 weeks. I am so happy I found your channel.
Yay Tracey! I’m so happy for you. Only another woman with this decease can understand how awful it is. Mine is in two weeks. I had to wait 3 years from the time I got to see the gynecologist to the time I got a surgery date. In total agony :(
My heart goes out to you. Thank you for speaking about this and sharing with us. It’s something that needs to be more spoken about. I suffered from the time I started getting periods until five years ago. I was always told the crippling pain I was experiencing was normal. It wasn’t. The dismissal of women in pain is whole other issue that is just … ugh. I had my first excision surgery for endometriosis and got so much relief but less than a year and a half later I had a cyst rupture (worse pain EVER - worse than childbirth) and that led my doctor and i to ultimately decide to get my hysterectomy. We yeeted everything - cervix, uterus, and both ovaries. It turned out the endo had come back with a quickness as well as more cysts. I was 32 when I got my hysterectomy and it was one of the best things I’ve ever done. I feel indescribably better. It can be challenging emotionally at times due to the hormones but i would donut again in a heart. I wish the same thing for you. Best wishes for your surgery and my thoughts are with you as you heal. 🖤 you got this
*would do it. Would also totally donut.
Oh Danielle! I am so very sorry that you have suffered so much. It must be horrible to put on a happy face when you are in such pain. Now for the hope. You have a great doctor who is going to help you. You are preparing yourself for this major surgery in a warm and supportive way. I’m so very happy for you. I will keep you in my thoughts and prayers. You are a strong woman. You will do fine as long as you let your friends and family take care of you for a bit. Sending lots of love your way. ❤️🥰🙏🏼❤️
My situation was so similar! I also went out to my car and just wept because I finally felt so validated as well. I now have the best team of doctors that coordinate my care for all my medical conditions and that has changed my life. I've had several surgeries, but my hysterectomy was life changing and the best thing I ever did. I'm thinking about you as you navigate this chapter in your journey.
For me it seemed that my periods ALWAYS hit the weekend I worked. I’m a nurse and I would have extra scrubs and underwear in my bag, those giant pads, tampons and of course Motrin. I had clots so bad and would bleed through everything. Several times I was trying to roll someone in bed or help them up off the toilet and when I strained I could feel myself bleed down my leg and I knew I would have to leave the room with blood on my scrubs. I had a uterine ablation about a year after I started working as a nurse and it has been the best decision I ever made. 7 years later and I am still free from periods and pain.
I am 43 and had a hysterectomy because of fibroids 2 months ago. I have no children but I never really wanted any so the decision was not nearly as traumatic for me. I had all the symptoms...bloating, IBS, long and heavy and painful periods with clotting since I was 11. When they did the hysterectomy they found a bit of endometriosis as well so rather than have multiple myomectomies, I had the dreaded surgery...but after getting a 2nd opinion, just to be sure coz we don't want to loose body parts in major surgeries for no plausible reason.
I always had stomach aches. Heartburn, gas. Suddenly 4/20 something happened. I felt like I broke. 6 painful months later I did it. I just had my hysterectomy 10/6/22. Two days post op and I’m feeling really good.
Don’t worry it is not difficult surgery, you will not need to stay in bed for long, your back will ache for about 5 days. I had a radical hysterectomy due to a scare of Ovarian cancer. Because of all the other symptoms constant severe anemia I was going to have my uterus removed but the ovarian scare moved the surgery up to immediate. Luckily for me I had just the cell changes of the ovaries it was caught in time. Actually, I am grateful for the other symptoms because Ovarian cancer is almost a silent killer. Just don’t lift anything past 5 to 10 pounds for 6 weeks. Also, the scare goes away but you will be swollen in that area for awhile. Good luck and I promise you it make your life so much better.
I went to see a doctor myself and she is suggesting a hysterectomy. I have lived with the bad pain too. I go for an ultrasound to see if robotic surgery would be the option to remove my womb. After finding out what my mom and my friends went through, I actually look forward to having the hysterectomy. I was diagnosed with fibroids and an enlarged uterus.
Once again being open and honest with us! ❤️💕 we love you! And we are here for you
Having a hysterectomy at 35yrs after l had 3 kids already am now 63yrs ingood health since then ; it was the best thing l ever done as l had heavy periods & l was on pills for 10yrs then l was put on the Copper T for birth controll ; but my body rejected it 4 times ; then the doc expanded me & put it back ; but it punctured my Cervix & this lead to a cervix.erosion which caused me to be in lots of pain & l got very sick that my kidneys was infected too ; after l got treatment in the local hospital ward ; l.was counciled that l needed surgery to solve my problem ; but our Gynecologis who was assigned to our area health office was not helping us to get in the hospital; even though l was in a lot of pain & my hubby became an alcoholic back then , so no fiancial support only stress ; but l prayed & God helped me that l went back home to my dad's address & got a doc to help me get in the nearest free clinic & l got my surgery after 6 mnts , then l got better ;after 3 months l went back to work to help my kids to have a better future & divorced my hus as he became impossible to live with , when my kids finished colledge , l was 45yrs ; am happy enjoying life now
Thank you for sharing and being so open. I am currently waiting for my surgery date. I am also very nervous. Happy healing!
So glad that all of this has fallen into place for you. Wishing you all the best! Your openness and willing to share your story will help so many.
Definitely "evict that bitch!" I love how you said that. Wishing you a successful surgery and great result!
The cost of pads & tampons is diabolical. I’m so over it .
Thinking of you and sending positive thoughts your way! Thank you for sharing this!
You are going to do great through your surgery and put this all behind you with a pain free life. I lived with endometriosis for about 18 years. At its worse I was bedridden with severe pain every month (it even hurt to fart, I kid you not). Never was anyone so grateful for menopause as a solution. All the best. BTW what is talk therapy? Video topic suggestion. And I love your shirt.
Did the Dr give you meds to put you in menopause?
Thanks for sharing. I've gone through all of the same thing. From the planning and counting my supply of tampons to having to cancel plans. I have adenomyosis. I will be scheduling my surgery soon. I hope and pray your surgery was good and you're healing well.
Wishing you healing thoughts as well!
Have you ever tried out herbal medication it worked for me perfectly with no side effects whatsoever with the help of DR MABOSA HERBAL on RUclips he can help you
Last year I had that same surgery. (My endometriosis was preventing my kidney from emptying so for a few months I had a stent in my ureter.) Anyways - having that surgery was the best thing ever. Like you, I never had children. When I think about all of the suffering I experienced, I should have had the surgery years ago. I always joke and recommend everybody gets a hysterectomy. Good luck!
I am going to be talking to my primary care doctor soon about getting a hysterectomy. I'm so tired of the pain, bloating, and being a slave to my uterus
Wishing you a successful surgery and easy recovery. I relate to everything you’ve described. I had a similar experience - years of undiagnosed pain, then surgeries, procedures, drugs, then infertility. It’s so easy to feel like no one understands. Thank you for sharing and best wishes!
Good luck Danielle! Wishing you a safe, successful surgery and speedy recovery!
Hi Caitilin! I just want to say that you took a very good decision and I'm sure this will change your life in a positive way. I have both endometriosis and adenomyosis, 6 weeks ago I had a laparoscopic surgery, they took out the endometriosis, feel good about that but the adenomyosis makes me feel still very bad, especially while the ovulation time. I am thinking about histerectomy as a solution but not yet decided, we would like one more child, I have an 11 years old and I had a miscarriage 2 years ago, don't even know if I can still get pregnant at all. It's pretty tough for women dealing with this health issue. I wish you all the best!
Brilliant. So happy for you. Sending love for a healthy recovery.
I believe that when everything falls into place it is meant to be.good luck with the procedure and recovery,I had a heart ablation thru laproscopic holes and it was a breeze.GOOD LUCK D.
Good luck with your surgery - I’m sure it will go amazingly!!! It’s very courageous for you to face this head-on and rip that bandaid off to finally get yourself some relief - you’re worth it!
Your symptoms you explained are exactly what I go through. I’ve have 4 endo surgeries. My last one was excision and hysterectomy in 2021 but I kept my left ovary and my symptoms are coming back. The bloating is horrible. The pain is worse than my natural home birth.
Great video, this has been me since I was 12 years old . My periods leave me anemic. It’s gotten so bad that I’m on disability. I’m 30 . I’ve missed out on so much life such as school, work , social life, due to painful periods , heavy periods, vomiting, passing out, PMDD , painful sex, gut issues, etc . I’ve been passed around the health system. Searching for a doc that will listen.
I feel like I have reencarnación! I had all of those symptoms and I had the hysterectomy last week. Like you the best decision I have ever made
Oh, Danielle. I'm so fricking sad that you've had to go through this excruciating pain every day. You and Caitlin know about my rheumatoid arthritis and I can honestly say you know what it's like. I'm sitting here crying for you and with you. I hope that the surgery helps you and you get relief cuz daily pain is the shits. You've been thru the worst (including the video a couple of weeks ago). I can't wait to hear how you are. Hang in there. Xoxo gayle
I'm 27 and having my excision surgery in March. So extemely nervous! But also such a long time coming. Thank you for sharing.
I’m 41 and in the middle of this too. Moving towards a hysterectomy as well. All the same symptoms and never any answers. I’m done. Best of luck to you. 💕
Sending you all the love and prayers, Danielle. 💗🙏🏼
I’m supposed to have a hysterectomy dec 17th I am 32 and I’m having major anxiety about it. I have been diagnosed with endometriosis and adenomyosis and had at least 4 laparoscopy’s to burn off the endo. About two months ago I had a sizable cyst on my ovary and my doctor told me my uterus was riddled with adenomyosis. I have been on lupron depot to help stop the development of endometriosis and it help with the crazy pains I was having. Everyone says a hysterectomy is the best thing for adenomyosis but I feel very nervous about this procedure as I am the parent of my two teenage boys. I feel the lupron depot really helped with the pain and I no longer had periods but I hate going monthly to get this shot and I don’t want to depend on this shot for the rest of my life. I’m not sure if I’m really ready for this life changing event. Thank you for sharing your story.
Hi dear before you make that big decision have you ever tried out herbal medications it worked for me with no side effects whatsoever with the help of DR MABOSA HERBAL on RUclips he can help you
3 week post op follow up….. as I said I was nervous going into this hysterectomy but let me tell you this was a walk in the park! I stayed the night just to be able to relax and get all the gas out of my body and it was a very good decision. I ended up Christmas shopping after leaving the hospital and the pain was very manageable. This recovery has been great and I started work this week and haven’t had any issues. My doctor was very happy with this decision because there was a lot going on with my uterus that was not noticeable until it was examined outside my body. A lot of cysts fibroids and some erosion of my cervix so it was a good thing we did this surgery. I had a robot assisted laparoscopic hysterectomy so maybe that’s why I’m doing amazing and feeling normal but idk. I haven’t had too many emotional spats but there was at least 2 but nothing severe. Just wanted to update for everyone that seen my comment.
ur the best , love ur honesty this surgery will be the best thing u ever did !!
So grateful to hear you say that hormonal BC was hard on you emotionally. I had never had PMDD until I tried BC in my late teens and again in my 20s and both times I became suicidal, was depressed and anxious to a point where I could barely leave the house and I ate like food would never come across my plate again. I called it Chicken Little Syndrome: my body and my mind thought the sky was falling / world was ending / and my body's nesting instince was so intense, my appetite was never satisfied. I always feel odd explaining these symptoms because every other woman I knew said they never experienced this. You and Jena Friedman have described what I've been through. Of course, I have alwasy been able to notice when my friends went back on their hormonal BC becaise they did become more anxious, moody, irritable, etc., but I also felt like it wasn't my place to say. It isn't as if there are a ton of great options for women for BC. we have more than we used to, but truly there still isn't much. Thank you for your channel!
This list of symptoms is so similar to mine but I feel like my gyno has never even suggested this for me. It’s so strange that it’s not even an option that doctors throw on the table but I’m definitely going to ask her about it. I am currently living my life the same- pain and anxiety over how many tampons and pads I’m going through and not even wanting to leave the house. Thank you for sharing, as always. Good luck with your surgery and I’ll be thinking about you!
I had a hysterectomy as well. I’m glad i did it. I was 49 when i had it done. I had my ovaries left, but unfortunately i started menopause as soon as i hit 50!
Wow! Your story is my story too. I understand your struggle! Wow..
I'm having hysterectomy in 3 weeks. My life has been hell for 10 years with fatigue, heavy periods and anemia that I wasn't aware of. And I also thought I had colon cancer at some point. I could have solved my problem so much earlier lol. But I also just went on and ignored it. Bleeding volume increased so much that I took a sick day on first day of periods and wanted to use adult diapers for periods. Then went for a good checkup and they found my super enlarged uterus.
Wow. 1st of all, I am so sorry you have had to experience this pain. I have somewhat of a similar experience. I'm 42 now but at age 14, I was put on bc pills in an attempt to shrink the ovarian cysts that were diagnosed due to my horrible pain. Well the pills didn't do anything they continue to grow one of them was the size of a softball so they ended up doing surgery to drain the cyst they kept me on birth control pills even though it never did anything.
Had about three more surgeries until age 21 approximately due to more cysts and a development of endometriosis. The endometriosis was only discovered through laparoscopic surgery. Which was done when I was probably 16 or 17. I think my fourth surgery was done when I was around 20.
Then I was told I may not be able to get pregnant if I ever wanted to.
At age 23 I tried to get pregnant with my husband of 5 years I got pregnant on the second month of being off the pill.
Was SHOCKED.
After I had the baby I didn't really have any other symptoms for a few years. I had my migraine headaches, but that was it for a while.
But I've always always had painful intercourse I don't know what that feels like to have a pleasurable intercourse experience. Talk about frustration!
Fast forward to mid to late 30s. Painful periods- can't get up out of bed to walk to the bathroom without holding on to things to get there. Heating pad in the front and the back taking 800mg ibuprofen every cycle. By age 39, I get a vaginal ultrasound to find uterine fibroids. 3 years later- only have one but it has slowly grown. Not every cycle thank God but sometimes I get such a horrible pain on my cycle sometimes in the middle of the night that I feel like I am being stabbed and pinned down to the bed with a knife in lower right pelvic area.
Because of an insurance change I had to go to a few different doctors in the last couple years.
My doctor now wants to put me on an IUD. The ultrasound I did a couple weeks ago showed that I now have Adenomyosis.
Which I've never heard of before and that's why I started searching RUclips videos and found your video.
My doctor says that it's probably what is causing my stabbing pain and that it's possible that I also have endometriosis again but she doesn't want to do a laparoscopy until I've tried the IUD (Morena)for 3 to 6 months. She's also saying last step possible after exhausting all other things is hysterectomy. I'm wondering after you get your uterus removed, will you still have your ovaries then? And is there any possibility of having a problem still with your ovaries and also are they telling you that you have to do any kind of HRT? Hormone replacement therapy after your surgery?
Thank you for sharing. These were my symptoms since about age 12 til a partial hysterectomy at 40. BEST choice. Wish it had been sooner. Just didn't know...
Girl just went thru all this.
It’s amazing not having a period!!!
Appreciate you sharing your journey! Sending prayers that everything goes well for you (it will 😊)!
Ha !! Omg yesss to Yaz why did it have to work so well?!
Danielle you got this - I am rooting for you xx
Loved the humour in this. thank you.