One thing that I have learnt with Alzheimer's - through my father who had it- is that you must not say things in front of them that they would not like to hear, because they can understand a lot more than they can say or communicate. So, please don't talk about them in front of them, unless it's something good and positive
Yes, that bothered me right off. The same rule is true in so many situations, whether it involves someone who is challenged mentally or physically or even simply speaking around children. Always assume you may very well be not only heard but understood and remain positive. ❤️
@@helenmariebellomg I was thinking that but did not want to seem rude because all families and their relationships are different. But I work in this field and supervise several throughout the years. He definitely don't need to be by himself. It's too dangerous 😢!!! He definitely don't need to be using kitchen appliances, bathing unassisted, and for sure going out anywhere by himself. 24 hour care once at this progression of the disease is mandatory for safety and dignity 😢.
That's very nice but not scientifically valid. Even if "hearing is the last to go" the CPU - aka the brain - no longer processes information. Therefore, what's heard is meaningless jibberish. Yes, be kind, of course. But people are kept alive long after their body becomes a shell.
So sad that it’s just be announced tonight that Fiona herself has been diagnosed with Alzheimer’s too aged just 62 - praying we find a cure for this horrible disease soon. x
So sad for her and her family, when I heard this morning, I remembered watching this documentary she made a few years ago, her Mum was diagnosed early 60s too, her Dad at a later age💔 I worked in care of the elderly for most of my working life, so I saw the way this awful disease took its toll on the patients and their families 😔
I’m in the United States. I bought long term insurance just in case. I’m also a caregiver for a company. I find caring for the elderly very rewarding and have for years. I have clients with dementia and Alzheimer’s.This was a wonderful documentary. Thank you.
My sister retired from NBC, as a top journalist at 64. She lived In her house, in Ridgefield, CT, and started forgetting things ,right away. She was diagnosed with Lewy Body Dementia, and the first 4 years, she had round the clock caregivers,, and became like a baby. Her last r, were at an assisted living facility, The Residence, in Darien, Ct She couldnt walk or talk at the end. She died peacefully, on Jan. 28tj, 2021. I salute the medical staff, including the caregivers, and hospice, for taking such great care of my sister.
Please don’t laugh and make fun of them when they are confused.compassion and kindness are the only thing they need.they don’t care whether you are the family members or friends.because they don’t know who you are.thats why caregivers are their guidance Angeles.love,kindness,understanding and compassion are the one they need.so take them seriously
This man can no longer live on his own. Don't ask him when he had a bath, he can't remember! He will soon start making up stories, because he doesn't rember. Your dad either needs to live in your home or a care home. How could it be worse than his being completely alone and confused?
Dont judge her...she had two young children at the time too...life ain't that easy..and people are not always in a situation to do what might seem obvious to you!!
The father needs 24/7 care, he can no longer live by himself. Either move in with family members or is in nursing home or assisted care never alone again. He is an accident waiting to happen. Unfortunately if in a nursing home usually the care is substandard . Because the staff are not emotionally involved. I know because I worked in a nursing home.
I just read an article explaining that one of the alarming causes in the rise of Alzheimer's is the lack of sleep. Apparently, sleep gets rid of toxin buildups in your brain. I have a theory that with the over stimulation and distractions with all of our modern technology(computers, phones, and bedroom tvs) that we are simply not resting our brains enough. We are stressing our bodies out and not getting the rest to repair it. I am just talking from personal experience of insomnia myself but if anyone wants to reduce the risk of developing Alzheimer's make sure to limit the amount of stress in your life and get your rest.
Well, if so then my hubby would say I've been making sure enough of taking as much sleep as I can🤭... I just wanted to share with u all a healing laugh, because I unfortunately know what Alzheimer is since my dad started with his first symptoms more than 10 years ago and having myself anxiety disorder this literally "destroyed" my family and caused very much suffering and sadness. It's such a brutal disease because you loose your loved ones not once but twice in that precise moment when they aren't remembering your name anymore.
I can really relate to this. My grandmother has Alzheimer's too, she lives in a home and has been hurt by the of the residents twice. The first was 3 weeks into staying there. My grandmother is German but when she speaks with me and my mom it's gibberish with a mix of German, Spanish and English. She does most of the same things as in this documentary. She does not remember my name or that I'm her granddaughter most of the time, but she knows we are in some type of relationship and still is very loving. An example was a few days ago she called me her best friend, I was sad and still sad she does not remember but I know deep down in her mind she knows. It makes me cry, when I was a babies she used to stay and babysit me. I really hate that she has Alzheimer's, I really do. Seeing her like this is heart breaking. It's very harder for me since I'm very young and I don't want to see her slowly losing her memory, I love her so much and I really came to look at this documentary to learn more about it. Just writing this comment I'm flooding with tears, she's only in her 70's and I don't want to lose her. A bunch of diseases run in my family, like cancer, Alzheimer's, Cavernous Malformation, And a few more I can't spell. For me I have Cavernous Malformation of the brain, I had brain surgery when I was 3. I think that there should be more PSW's and care for these people. A lot of the hospital's I've been to did not know how to handle my grandmother. I wish it was like when I was younger, the days were so much fun, but now every day I'm worrying and wished that I could have a conversation with her clearly and along with a worry about family problems. I really hate how we all suffer so much pain from all of this and when you look at them there completely unaware of the situation. You don't know how there emotions work that much anymore. I love this documentary, it taught me more than I already know about Alzheimer's. I will keep pushing forward and try to stay positive about this.
Put your pride aside and do what's best for your dad! It's not about you and what you want it's about what's best for him! And living alone is the very opposite!
The sad thing is, moving someone with Alzheimer’s/Dementia is NOT good...changing their surroundings, totally messes with them! I worked in a nursing home, A/D’s side...I complained to dept heads everytime they moved someone. One little lady was moved, she roamed the halls, which was the shape of a L, back n forth to find her old room, she became exhausted & during the night she fell & smashed he head against the cement/tile, broke her shoulder & her hip...ONLY then did they put her BACK in the room she was looking for 😔😡🙄 she then had to be sedated, sorta of tied to the bed, bed lowered to the floor, just to keep her in bed to heal...she passed away close to 3 months after the fall. I was so angry, she was a semi-healthy, mobile Dementia patient reduced to a broken, heavily bruised, withering away lil lady! Needless to say...please be careful when moving A/D’s patients & their surroundings!
I mean moving is stressful for people without dementia, it takes ages to settle into a new home so it makes sense that people with dementia go downhill once they move
Now Fiona has alzheimers😢poor woman knows exactly what's facing her. My mum had early onset dementia at 55 by the time she was 57 she was in a care home surrounded by people in their 70s and 80s. She died at 63 by that time she was bed bound 😢...heartbreaking
Broke my heart watching this, so powerful and so sad that people with Alzheimer’s don’t get the dugs fast enough and the carers DONT get rest and help!, n when he spoke about his wife that finished me off bless him! I found it hard enough when I lost my mum n dad 6 months apart in 2014, dad first with secondary bowel cancer and then my mum had a massive heart attack 6 months later, n then I lost my step mum 2 years later to bowel cancer again! This was hard, but this! Omfg this is so bad it’s even worse I think, to slowly watch a person y know n love fade away and are still alive but not the same person u once knew, it is so heart breaking, for god sake the people above who hold the power over these drugs that can help in the early start of this horrendous disease! They need to experience this as horrible as that sounds because NO ONE should have to go thru this weather it’s the person who ends up afflicted by this or the family members/carers who have to care for the person who has it, it’s bad enough knowing the person u love is going to die soon but to know this AND to see the person as u knew them disappear is so so sad and heartbreaking, 😔 xxxx
My husband had early onset dementia. Hebwas plagued with memory issues much earlier than we realized. He passed away at 65. We were married 43 years and i miss him. He was fortunate to be able to stay at home until he passed. It is one of the hardest things you have to do. 38:2438:25
All seniors say don’t put them in a nursing home. They become run down and can get sick and cannot be a caregiver or die. Caregivers never think of that.
it truly is a terrible disease. Was the primary caregiver for my grandmother for 8 years. Its heartbreaking watching, but the more I learnt about the disease is the more I cld prepare.
I think with Alheimer's concepts come and go in fleeting moments - moments we cannot even perceive - and they are locked in their own world from where they cannot communicate.
How exhausting. I feel so bad for people that are afflicted with this terrible disease. I feel worse for the caregivers. I am speaking of me now, if I had alzheimer I think I would want the drug cocktail, its over within 5 minutes.
It is exhausting isnt it? The Loved one is in their own world but we are the ones on our last nerve making sure they are safe and looking after them and ourselves last.
Leaving (your dad) an Alzheimer’s sufferer to live alone in a brand new environment is completely irresponsible. No companionship, no connection, no comfort? Visiting once a week is not enough. Every other day is not enough. 1 hot meal a day is not enough. This just dawned on you that living independently is risky for him? Good grief, reach out.
It's said he lives in Independent Supported Accommodation but it wasn't said how he's supported there. Obviously he's not looked after if he managed to get out and wonder the streets in the early hours. I've had much better care and onsite 24 hour caretakers checking on things at an adult residential college.
completely agree the daughter stays in london he was moved to live in portsmouth from wales why did the daughter not let her father stay with her she says she cares dont think so
In Canada he would need to go to a Seniors long term place with attendants to help with day to day things.. I had to do it with my mother. She suffered with Dementia and severe Diabetes and needed 4-5 shots a day of insulin.
This whole report annoys me it’s slanted to just have a moan at the nhs. And the council. I don’t like Fiona Phillips style of reporting she is always like that. Moans about everything and doesn’t give an objective view point.
I can relate to having a relative that has Alzheimer’s, my abuela does and she used to be a witty and cunning woman and knew 2 languages and now she’s slowly forgetting her Spanish and it makes me so sad to see her like this, I remember she used to babysit me and my siblings. She helped raise my cousins and made me do math and now she wakes up at 4 am and gets dressed and fights with my grandfather who is trying his best. At least my parents and I live with them
Even at the worst time of my nans dementia, you just had to mention how awful her son's cabbage soup was, and she always came right back to reality and told you all about how dreadful, salty and slimy it was. It really was terrible, the worst thing we ever tasted. I'm honoured that she never forgot my name, I miss her every day. I'm not the only one who wanted to just end it for her and help her move on. Watching people you love struggle and suffer is the most unbearable thing, and being powerless to stop it is true horror. I hope no-one ever feels guilty for wanting to do anything they can to end the pain.
I think that they do have an inkling that something is wrong before the rest of us know - but they don't know what it is. My father spoke of this in oblique terms which I didn't understand at the time, but that were unsettling.
I worked as a cared then decided to do a degree to be a manager. We always battled for more money to give quality care. Unfortunately the money was always not a a available which make huge difference. Working in the community meant not enough staff, time or money. I’m scared as I’m now seventy Care is a lottery.
😳So called 'Affordable Care' in the USA was handed over to Insurance Companies making Billions while the brunt of care is on the backs of families. Truly a sick situation!
Cant watch this. That poor man shouldn't have been on his own. How could they have him living alone insisting heshould be independent. He was past that stage. And asking him when he last had a bath is a no no. He doesn't know. Don't ask them such questions.
All these people are earth angels, such a cruel disease. 😢 My late dad's cousin was only in her 40s took I think, two small strokes then it lead to dementia. I'm in my 40s and I'm very forgetful I'm petrified I hope it's perimenopause. I think my mum's memory is better. ❤
I said to my kids if it happens to me and I have to go into a home, then I have to go into a home. My dad has Alzheimer’s but is able to remain at home, for now, due to home supports such as meals on wheels and council carers.
@@susannovak8263 www.psychologytoday.com/au/blog/advancing-psychiatry/201904/chronic-schizophrenia-put-remission-without-medication ruclips.net/video/kc035QfKZD0/видео.html this is just 2 of them...
My mother developed Alzheimer's quite young and my dad died of a stroke, we just shoved her in an old folk's home and forgot she existed. I sent money each month and paid for her funeral, but never attended.
My dad passed from Alzheimers. Mama was the caregiver, but a nurse came twice a week, to bathe him, for mama could no longer pick him up to do it. I haven't watched the whole story as of yet, but I hope this helps. If he/she tries to leave on his own, put a doorbell inside the home, so you can be alerted, should he try to do so, at a time during Alzheimers, when he shouldn't. Just some advice from experience that I observed, through mama. Ps..my dad had early Alzheimers, he lived for ten years. I understand, mam. Those lil kisses are so sweet! Much love to yall ❤💜❤
I've just finished Fiona's book. It's one thing to read about Alzheimer's, yet another to see it, something altogether different to live it firsthand. Much love and strength to her family and all of the other families affected. ❤️
Its very difficult to meet the criteria for nhs continuing healthcare which is what you need to get free care. I am disabled & half my care is funded by nhs half by social services & despite me being on means tested benefits I have to pay over £70 a week toward care. I know several people who are now struggling without carers as they were expected to pay over £100 a week toward care & could not afford it sp now they struggle & end up in worse health because of the struggle to manage alone
Well, wouldn't it be nice, if the English people didn't have to pay for 'The Royals' such as their expensive , designer clothes, very expensive jewelry, and of course their luxurious mansions, etc. Perhaps then the poor English people would have this and so many other problems resolved !!! Umm!!
I'm in this situation right now, my dad suffered from and died of dementia in 2016 and my mum suffers from it too I was/am carer for both. It doesn't bode well for me as it can be hereditary.
Not even 5 minutes in, and it's VERY clear neither the daughter nor the brother have any clue what this man is going through and just what his diagnosis means, and laughing and pretty much poking fun of him has me seeing red!!
It’s a cruel disease 😢my dad tries to look after her but it’s makes himself ill he’s been in hospital twice this year 2023 I think it’s stress of looking after my mum he’s 80 my mum is 78
So many of these programs I watch seem to show loved ones joking about the deterioration of the person as if they are clowns....It's not funny, it's disrespectful and despicable.
My God, Fiona Phillips.should be ashamed! No way should her dad EVER have been left alone, it was detrimental to his wellbeing and safety. It's not as if she and her husband couldn't have afforded to place him in the best Care Home available! It was dangerous in so many ways, even a fire risk ! This came across as being all about HER needs and wants. Not his...,or his long suffering put upon brother, who should never have been left in a place of Carer responsibility when he has his own family. Bet he never wanted to come home again from that reunion. He should have laid his cards on the table and said his involvement had to stop right there, when he went away.
Where the daughter talks about her mom I am in same boat cant tell her big things in my life as she forgets and in a couple of months years she forget who I am
As a nurse's aid working in a assistant living memory care unit have dementia contingency plans in place ...3 hits of LSD leathel amount of morphine. Believing in the myth your life is going to be fulfilling and wonderful sorry but you have been braineashed by reading too many long-term care brochures. Early stage does not last long before the rapid decline fermenting in a diaper. Dont be delusional it is rare for family to keep you till the end. Your fate will be worse than merciful dead sitting in urine soaked pants one of 20 others in a circle of wheelchairs hitting a ballon.
Sorry, but I don't get the whining. Yeah, you have to take care of your parents just as they once cared for you. I cared for my parents, and they cared for theirs. Guess you want "the government" to do it? It's called FAMILY...
UK has the worst medical care on the planet earth My x gh,s neighbor had stones in his gallbladder for one whole year she heard him screaming of pain then he died In Lebanon I had a gallbladder attack , that what my doctor told me as I phoned him right away he told me to take opeprazole and fludinuim Next day he managed an Ecco for me there were stones 3 days later I had it removed it the government paid 2vthird of the bill I paid the rest plus one hundred dollars extra to be in suite alone …. Let alone lbd same story goes with my dentist I bring him in the middle of the night if I have pain hope you guys be in good health Ps same story in Canada it took my brother 2 days to get a prescription for fragile for god sake
If Britain is failing these people then so is the rest of the world. Sickens me how people moan endlessly about our healthcare…I’ve had many really positive experiences and feel so lucky I live in a country where my health is looked after. I’ve had private ops and ops on the NHS and I’d choose the latter any day.
Isn’t it supposed to fall on family? Didn’t your dad look after you when you were little. Parents gave up their jobs and money to care for children when they were you, didn’t they?
Liberals in America want single payer healthcare similar to this. A far cry from the excellent care we have now, no matter what your financial means. I wish all liberals would see this.
The UK system has its problems. But people from the US should not paint a rosy picture of their system. I saw a documentary about Alzheimer’s care in the US. Justin Theroux. It isn’t brilliant there either. One man talked about maybe having to divorce his wife and make her a ward of state so that she could get care which he couldnt afford. As in the US, if you have money and/or are willing to pay you can get adequate support.
@@sandranurrington9827 I still wouldn’t want the government making my health decisions for me. Government over reach is already bad enough in the US. We are fighting to maintain our freedom whatever ways we can.
Excellent care in the USA? Ha! Not when a family member has memory problems. You say that you don’t want the government making decisions, but you let the insurance companies make their decisions all based on the bottom line!
One thing that I have learnt with Alzheimer's - through my father who had it- is that you must not say things in front of them that they would not like to hear, because they can understand a lot more than they can say or communicate. So, please don't talk about them in front of them, unless it's something good and positive
Person centred, that hurt the daughter speaking in front her mum like that.
Yes, that bothered me right off. The same rule is true in so many situations, whether it involves someone who is challenged mentally or physically or even simply speaking around children. Always assume you may very well be not only heard but understood and remain positive. ❤️
the daughter is aware of her fathers limitations and she is still leaving him by himself how awaful poor father how can she do that
@@AmyandIrving The mum looked like she understood every word in that moment
@@helenmariebellomg I was thinking that but did not want to seem rude because all families and their relationships are different. But I work in this field and supervise several throughout the years. He definitely don't need to be by himself. It's too dangerous 😢!!! He definitely don't need to be using kitchen appliances, bathing unassisted, and for sure going out anywhere by himself. 24 hour care once at this progression of the disease is mandatory for safety and dignity 😢.
But those moments exist, right up to their dying moments - so, be kind, very kind, and gentle because hearing is the last sense to go.
That's very nice but not scientifically valid. Even if "hearing is the last to go" the CPU - aka the brain - no longer processes information. Therefore, what's heard is meaningless jibberish. Yes, be kind, of course. But people are kept alive long after their body becomes a shell.
And in the process make yourself sick.
So sad that it’s just be announced tonight that Fiona herself has been diagnosed with Alzheimer’s too aged just 62 - praying we find a cure for this horrible disease soon. x
So sad for her and her family, when I heard this morning, I remembered watching this documentary she made a few years ago, her Mum was diagnosed early 60s too, her Dad at a later age💔 I worked in care of the elderly for most of my working life, so I saw the way this awful disease took its toll on the patients and their families 😔
Thats shocking to hear. Bless her
OMG that's just heartbreaking💔
Genetic traits it’s not fair. I remember watching the documentary when she did the documentary about her father. Life is so unfair.
I’m in the United States. I bought long term insurance just in case. I’m also a caregiver for a company. I find caring for the elderly very rewarding and have for years. I have clients with dementia and Alzheimer’s.This was a wonderful documentary. Thank you.
My sister retired from NBC, as a top journalist at 64. She lived In her house, in Ridgefield, CT, and started forgetting things ,right away. She was diagnosed with Lewy Body Dementia, and the first 4 years, she had round the clock caregivers,, and became like a baby. Her last r, were at an assisted living facility, The Residence, in Darien, Ct She couldnt walk or talk at the end. She died peacefully, on Jan. 28tj, 2021. I salute the medical staff, including the caregivers, and hospice, for taking such great care of my sister.
I'm sorry you had to see your sister like that. I know that was heartbreaking.
Please don’t laugh and make fun of them when they are confused.compassion and kindness are the only thing they need.they don’t care whether you are the family members or friends.because they don’t know who you are.thats why caregivers are their guidance Angeles.love,kindness,understanding and compassion are the one they need.so take them seriously
This man can no longer live on his own. Don't ask him when he had a bath, he can't remember! He will soon start making up stories, because he doesn't rember. Your dad either needs to live in your home or a care home. How could it be worse than his being completely alone and confused?
Yes she has to decide to have him move in or get a full time caregiver / nurse. He will always feel he can manage, so asking him will not help much.
@@kitty2sweet2b4gottenShe has dementia herself now
Dont judge her...she had two young children at the time too...life ain't that easy..and people are not always in a situation to do what might seem obvious to you!!
@@carinwiseman4309 Sorry you're obviously perfect and have all the answers to everyone's situation. Hate people like you...
As an aged care nurse and specialised with alzhiemers, one thing you don't do is discuss any issues you have in front of them.
Yes indeed. I work with them as well. And I couldn't agree more. Maintaining DIGNITY, is just as important as SAFETY!!!
This is where the NHS Millions needs to go, providing Care for those who need it as well as supporting the Carers who suffer so.
The father needs 24/7 care, he can no longer live by himself.
Either move in with family members or is in nursing home or assisted care never alone again. He is an accident waiting to happen.
Unfortunately if in a nursing home usually the care is substandard . Because the staff are not emotionally involved. I know because I worked in a nursing home.
I just read an article explaining that one of the alarming causes in the rise of Alzheimer's is the lack of sleep. Apparently, sleep gets rid of toxin buildups in your brain. I have a theory that with the over stimulation and distractions with all of our modern technology(computers, phones, and bedroom tvs) that we are simply not resting our brains enough. We are stressing our bodies out and not getting the rest to repair it. I am just talking from personal experience of insomnia myself but if anyone wants to reduce the risk of developing Alzheimer's make sure to limit the amount of stress in your life and get your rest.
I, will try to follow that great advice. I tend to worry about everything, thanks.
Well, if so then my hubby would say I've been making sure enough of taking as much sleep as I can🤭... I just wanted to share with u all a healing laugh, because I unfortunately know what Alzheimer is since my dad started with his first symptoms more than 10 years ago and having myself anxiety disorder this literally "destroyed" my family and caused very much suffering and sadness. It's such a brutal disease because you loose your loved ones not once but twice in that precise moment when they aren't remembering your name anymore.
Well I’m doomed.
I can really relate to this. My grandmother has Alzheimer's too, she lives in a home and has been hurt by the of the residents twice. The first was 3 weeks into staying there. My grandmother is German but when she speaks with me and my mom it's gibberish with a mix of German, Spanish and English. She does most of the same things as in this documentary. She does not remember my name or that I'm her granddaughter most of the time, but she knows we are in some type of relationship and still is very loving. An example was a few days ago she called me her best friend, I was sad and still sad she does not remember but I know deep down in her mind she knows. It makes me cry, when I was a babies she used to stay and babysit me. I really hate that she has Alzheimer's, I really do. Seeing her like this is heart breaking. It's very harder for me since I'm very young and I don't want to see her slowly losing her memory, I love her so much and I really came to look at this documentary to learn more about it. Just writing this comment I'm flooding with tears, she's only in her 70's and I don't want to lose her. A bunch of diseases run in my family, like cancer, Alzheimer's, Cavernous Malformation, And a few more I can't spell. For me I have Cavernous Malformation of the brain, I had brain surgery when I was 3. I think that there should be more PSW's and care for these people. A lot of the hospital's I've been to did not know how to handle my grandmother. I wish it was like when I was younger, the days were so much fun, but now every day I'm worrying and wished that I could have a conversation with her clearly and along with a worry about family problems.
I really hate how we all suffer so much pain from all of this and when you look at them there completely unaware of the situation. You don't know how there emotions work that much anymore. I love this documentary, it taught me more than I already know about Alzheimer's. I will keep pushing forward and try to stay positive about this.
I'm so sorry for your loss, Fiona, it is so difficult and confusing when you lose someone very dear to Alzheimer's
I can't imagine going through all of that :( Alzheimer's is one of my biggest fears.
I want to check out, when I start losing myself. I couldn't bear to become so dependent.
Put your pride aside and do what's best for your dad! It's not about you and what you want it's about what's best for him! And living alone is the very opposite!
It's not about pride. It's about money and the home would have to go the the nursing facility for payment
I remember this documentary well and I'm sorry to hear that Fiona has just announced that she's also been diagnosed with Alzheimer's
The sad thing is, moving someone with Alzheimer’s/Dementia is NOT good...changing their surroundings, totally messes with them! I worked in a nursing home, A/D’s side...I complained to dept heads everytime they moved someone. One little lady was moved, she roamed the halls, which was the shape of a L, back n forth to find her old room, she became exhausted & during the night she fell & smashed he head against the cement/tile, broke her shoulder & her hip...ONLY then did they put her BACK in the room she was looking for 😔😡🙄 she then had to be sedated, sorta of tied to the bed, bed lowered to the floor, just to keep her in bed to heal...she passed away close to 3 months after the fall. I was so angry, she was a semi-healthy, mobile Dementia patient reduced to a broken, heavily bruised, withering away lil lady!
Needless to say...please be careful when moving A/D’s patients & their surroundings!
Moving from place to place or even a different room causes them needless confusion.
I mean moving is stressful for people without dementia, it takes ages to settle into a new home so it makes sense that people with dementia go downhill once they move
Now Fiona has alzheimers😢poor woman knows exactly what's facing her. My mum had early onset dementia at 55 by the time she was 57 she was in a care home surrounded by people in their 70s and 80s. She died at 63 by that time she was bed bound 😢...heartbreaking
Broke my heart watching this, so powerful and so sad that people with Alzheimer’s don’t get the dugs fast enough and the carers DONT get rest and help!, n when he spoke about his wife that finished me off bless him! I found it hard enough when I lost my mum n dad 6 months apart in 2014, dad first with secondary bowel cancer and then my mum had a massive heart attack 6 months later, n then I lost my step mum 2 years later to bowel cancer again! This was hard, but this! Omfg this is so bad it’s even worse I think, to slowly watch a person y know n love fade away and are still alive but not the same person u once knew, it is so heart breaking, for god sake the people above who hold the power over these drugs that can help in the early start of this horrendous disease! They need to experience this as horrible as that sounds because NO ONE should have to go thru this weather it’s the person who ends up afflicted by this or the family members/carers who have to care for the person who has it, it’s bad enough knowing the person u love is going to die soon but to know this AND to see the person as u knew them disappear is so so sad and heartbreaking, 😔 xxxx
My husband had early onset dementia. Hebwas plagued with memory issues much earlier than we realized. He passed away at 65. We were married 43 years and i miss him. He was fortunate to be able to stay at home until he passed. It is one of the hardest things you have to do. 38:24 38:25
Barry is so sweet and incredible
Fiona’s two siblings took no responsibility in sharing the care of their father.
That doctor 💊🏥 that spoke to Fiona is a God send.❤
All seniors say don’t put them in a nursing home. They become run down and can get sick and cannot be a caregiver or die. Caregivers never think of that.
it truly is a terrible disease. Was the primary caregiver for my grandmother for 8 years. Its heartbreaking watching, but the more I learnt about the disease is the more I cld prepare.
What about the British elderly that have no family? I was a carer. It almost killed me.
I think with Alheimer's concepts come and go in fleeting moments - moments we cannot even perceive - and they are locked in their own world from where they cannot communicate.
How exhausting. I feel so bad for people that are afflicted with this terrible disease. I feel worse for the caregivers. I am speaking of me now, if I had alzheimer I think I would want the drug cocktail, its over within 5 minutes.
My brother has early onset and it’s obvious that he’s struggling. I wish I could make it stop for him and not see him progressively worse!
It is exhausting isnt it? The Loved one is in their own world but we are the ones on our last nerve making sure they are safe and looking after them and ourselves last.
You need to put signs up and also use colour more. Light switches, toilet seat, bedroom doors, clocks etc.
He's not in a fit state to be living alone
Leaving (your dad) an Alzheimer’s sufferer to live alone in a brand new environment is completely irresponsible. No companionship, no connection, no comfort? Visiting once a week is not enough. Every other day is not enough. 1 hot meal a day is not enough. This just dawned on you that living independently is risky for him? Good grief, reach out.
It's said he lives in Independent Supported Accommodation but it wasn't said how he's supported there. Obviously he's not looked after if he managed to get out and wonder the streets in the early hours. I've had much better care and onsite 24 hour caretakers checking on things at an adult residential college.
completely agree the daughter stays in london he was moved to live in portsmouth from wales why did the daughter not let her father stay with her she says she cares dont think so
In Canada he would need to go to a Seniors long term place with attendants to help with day to day things.. I had to do it with my mother. She suffered with Dementia and severe Diabetes and needed 4-5 shots a day of insulin.
This whole report annoys me it’s slanted to just have a moan at the nhs. And the council. I don’t like Fiona Phillips style of reporting she is always like that. Moans about everything and doesn’t give an objective view point.
no one but carers can understand this. broke my heart to put my mum in to a care home. was doing well till covid.. declining rapidly :(
How’s mom doing?
I can relate to having a relative that has Alzheimer’s, my abuela does and she used to be a witty and cunning woman and knew 2 languages and now she’s slowly forgetting her Spanish and it makes me so sad to see her like this, I remember she used to babysit me and my siblings. She helped raise my cousins and made me do math and now she wakes up at 4 am and gets dressed and fights with my grandfather who is trying his best. At least my parents and I live with them
Pray for your dad and your family
Even at the worst time of my nans dementia, you just had to mention how awful her son's cabbage soup was, and she always came right back to reality and told you all about how dreadful, salty and slimy it was. It really was terrible, the worst thing we ever tasted.
I'm honoured that she never forgot my name, I miss her every day.
I'm not the only one who wanted to just end it for her and help her move on. Watching people you love struggle and suffer is the most unbearable thing, and being powerless to stop it is true horror.
I hope no-one ever feels guilty for wanting to do anything they can to end the pain.
I think that they do have an inkling that something is wrong before the rest of us know - but they don't know what it is. My father spoke of this in oblique terms which I didn't understand at the time, but that were unsettling.
I worked as a cared then decided to do a degree to be a manager. We always battled for more money to give quality care. Unfortunately the money was always not a a available which make huge difference. Working in the community meant not enough staff, time or money. I’m scared as I’m now seventy Care is a lottery.
39:00 - Her fathers case is FAR from mild to moderate.
😳So called 'Affordable Care' in the USA was handed over to Insurance Companies making Billions while the brunt of care is on the backs of families. Truly a sick situation!
I want to die with dignity when and if I get diagnosed
Cant watch this. That poor man shouldn't have been on his own. How could they have him living alone insisting heshould be independent. He was past that stage. And asking him when he last had a bath is a no no. He doesn't know. Don't ask them such questions.
All these people are earth angels, such a cruel disease. 😢 My late dad's cousin was only in her 40s took I think, two small strokes then it lead to dementia. I'm in my 40s and I'm very forgetful I'm petrified I hope it's perimenopause. I think my mum's memory is better. ❤
Horrible disease really. my heart goes out to the families. So,so sad. 🥂🍺 Cheers and beers mates!!
its awful that fiona herself now has alzheimers 😢
I said to my kids if it happens to me and I have to go into a home, then I have to go into a home. My dad has Alzheimer’s but is able to remain at home, for now, due to home supports such as meals on wheels and council carers.
It´s funny that nobody in the video mentions the diet. Because the diet based in low sugar, low carb and high fat, helps with this condition.
That’s interesting. Could you please post your source so that I might read it?
@@susannovak8263
www.psychologytoday.com/au/blog/advancing-psychiatry/201904/chronic-schizophrenia-put-remission-without-medication
ruclips.net/video/kc035QfKZD0/видео.html
this is just 2 of them...
Schizophrenia isn’t the same as Alzheimer’s. Why would you recommend a diet for a different condition?
My mother developed Alzheimer's quite young and my dad died of a stroke, we just shoved her in an old folk's home and forgot she existed. I sent money each month and paid for her funeral, but never attended.
My dad's cousin lasted 2 years. I didn't get to meet her.❤
My dad passed from Alzheimers. Mama was the caregiver, but a nurse came twice a week, to bathe him, for mama could no longer pick him up to do it.
I haven't watched the whole story as of yet, but I hope this helps.
If he/she tries to leave on his own, put a doorbell inside the home, so you can be alerted, should he try to do so, at a time during Alzheimers, when he shouldn't.
Just some advice from experience that I observed, through mama.
Ps..my dad had early Alzheimers, he lived for ten years. I understand, mam.
Those lil kisses are so sweet!
Much love to yall ❤💜❤
That is such a great idea with the doorbell...thank u for the tip.
Wait, how does having an indoor doorbell help?
@@sarcasticallyrearranged It's for when the door is opened, it alerts the caregivers. Its like when you go in a store and it makes a noise.
its not a burden .. its just tough .. ,
I've just finished Fiona's book. It's one thing to read about Alzheimer's, yet another to see it, something altogether different to live it firsthand.
Much love and strength to her family and all of the other families affected. ❤️
Its very difficult to meet the criteria for nhs continuing healthcare which is what you need to get free care. I am disabled & half my care is funded by nhs half by social services & despite me being on means tested benefits I have to pay over £70 a week toward care. I know several people who are now struggling without carers as they were expected to pay over £100 a week toward care & could not afford it sp now they struggle & end up in worse health because of the struggle to manage alone
Well, wouldn't it be nice, if the English people didn't have to pay for 'The Royals' such as their expensive , designer clothes, very expensive jewelry, and of course their luxurious mansions, etc. Perhaps then the poor English people would have this and so many other problems resolved !!! Umm!!
I'm in this situation right now, my dad suffered from and died of dementia in 2016 and my mum suffers from it too I was/am carer for both. It doesn't bode well for me as it can be hereditary.
Very very sad, I really wish a cure could be found or at least more funding to give people help.💔x
Not even 5 minutes in, and it's VERY clear neither the daughter nor the brother have any clue what this man is going through and just what his diagnosis means, and laughing and pretty much poking fun of him has me seeing red!!
My sister has dementia and she did the exact same thing with the tea and coffee.
So heart breaking 💔 😢
A movie 2 watch, My fathers keeper. SAD
It’s a cruel disease 😢my dad tries to look after her but it’s makes himself ill he’s been in hospital twice this year 2023 I think it’s stress of looking after my mum he’s 80 my mum is 78
Why didn’t they sell the house when her dad moved out?
I HATE WHEN THEY SAY THR BURDEN.....AFTER THEY HAVE TAKEN CARE OF YOU TILL GROWN..ITS NOT A BURDEN~~~~~
Dont Speak Till U Have Walked In A Caregivers Shoes,Its Really Sad And Draining And U Feel Helpless😢
One accepts unreasonable statements from one’s parents from the very beginning. The jolt is realizing that it’s different now.
So many of these programs I watch seem to show loved ones joking about the deterioration of the person as if they are clowns....It's not funny, it's disrespectful and despicable.
My God, Fiona Phillips.should be ashamed! No way should her dad EVER have been left alone, it was detrimental to his wellbeing and safety. It's not as if she and her husband couldn't have afforded to place him in the best Care Home available! It was dangerous in so many ways, even a fire risk !
This came across as being all about HER needs and wants. Not his...,or his long suffering put upon brother, who should never have been left in a place of Carer responsibility when he has his own family. Bet he never wanted to come home again from that reunion. He should have laid his cards on the table and said his involvement had to stop right there, when he went away.
Where the daughter talks about her mom I am in same boat cant tell her big things in my life as she forgets and in a couple of months years she forget who I am
Where is the other two kids of the first fellow in the video..arnt they responsible for their dad in anyway ?
It's so saddened by away DMp
This is so sad to watch
People need to keep doing math to ward off this problem. It's not a cure all but it is another tool.
He should have been in a home really. He cant be on his own.
As a nurse's aid working in a assistant living memory care unit have dementia contingency plans in place ...3 hits of LSD leathel amount of morphine. Believing in the myth your life is going to be fulfilling and wonderful sorry but you have been braineashed by reading too many long-term care brochures. Early stage does not last long before the rapid decline fermenting in a diaper. Dont be delusional it is rare for family to keep you till the end. Your fate will be worse than merciful dead sitting in urine soaked pants one of 20 others in a circle of wheelchairs hitting a ballon.
he means well but its not working
Don't want bloody ads
So sad yet so inspiring!!Btw do people in Wales have a Welsh identity or do they feel completely British/English?
We are Welsh
Didn't think about heart gets help, but brain doesn 't!
I'm surprised there's no live in carer.
It's I'm so sad
This hs scarey to me age 66 my husband Jim age 70..
Sorry, but I don't get the whining. Yeah, you have to take care of your parents just as they once cared for you. I cared for my parents, and they cared for theirs. Guess you want "the government" to do it? It's called FAMILY...
UK has the worst medical care on the planet earth My x gh,s neighbor had stones in his gallbladder for one whole year she heard him screaming of pain then he died In Lebanon I had a gallbladder attack , that what my doctor told me as I phoned him right away he told me to take opeprazole and fludinuim Next day he managed an Ecco for me there were stones 3 days later I had it removed it the government paid 2vthird of the bill I paid the rest plus one hundred dollars extra to be in suite alone …. Let alone lbd same story goes with my dentist I bring him in the middle of the night if I have pain hope you guys be in good health
Ps same story in Canada it took my brother 2 days to get a prescription for fragile for god sake
her chances of being next are very high
If Britain is failing these people then so is the rest of the world. Sickens me how people moan endlessly about our healthcare…I’ve had many really positive experiences and feel so lucky I live in a country where my health is looked after. I’ve had private ops and ops on the NHS and I’d choose the latter any day.
the money , the system.
Very sad 😢😢😢😢😢😢 the government don't have money to help this people but have money for wars an Ukraine...
Medical doctor explains how to improve Alzheimer's: @
Isn’t it supposed to fall on family? Didn’t your dad look after you when you were little. Parents gave up their jobs and money to care for children when they were you, didn’t they?
Why? We didnt choose to be born!! They chose to be parents!!
There are a bunch of psychopaths in this documentary.
❤❤❤❤❤😢😢😢😢😢😢😢
Sadly she has the same as her dad now
Really?
Typo 3
and what about you? Alzheimer's run in families.
I do not like it
5th
Sandwich
Liberals in America want single payer healthcare similar to this. A far cry from the excellent care we have now, no matter what your financial means. I wish all liberals would see this.
The UK system has its problems. But people from the US should not paint a rosy picture of their system. I saw a documentary about Alzheimer’s care in the US. Justin Theroux. It isn’t brilliant there either. One man talked about maybe having to divorce his wife and make her a ward of state so that she could get care which he couldnt afford. As in the US, if you have money and/or are willing to pay you can get adequate support.
@@sandranurrington9827 I still wouldn’t want the government making my health decisions for me. Government over reach is already bad enough in the US. We are fighting to maintain our freedom whatever ways we can.
Excellent care in the USA?
Ha! Not when a family member has memory problems.
You say that you don’t want the government making decisions, but you let the insurance companies make their decisions all based on the bottom line!
Excellent care? For who? The rich who can afford it? Lmaooooooo
❤❤❤❤❤❤😢😢😢😢😢😢😢