3-5 year survival in Idiopathic Pulmonary Fibrosis (IPF)?
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- Опубликовано: 10 июл 2024
- What is the survival for cases of idiopathic pulmonary fibrosis (IPF). Many resources online quote survival figures for IPF of 3-5 years from diagnosis. This can be very scary for most patients. However, 3-5 years represents a median, or middle number in a very large group of patients.
Therefore survival will depend a lot on individual circumstances and the behavior of the disease.
I would really recommend asking your own healthcare team about appropriate information for your case, as the disease behavior of IPF differs a lot from person to person.
It is important to remember that IPF is a diagnosis of exclusion, and we can only exclude a relatively small number of causes. This makes IPF very different from case to case. Not all cases of IPF are the same.
#pulmonaryfibrosis #ipf #survival
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The opinions presented on this channel are my own and do not constitute medical advice in specific cases. If you are watching/listening to this content as a patient, you must seek personalized advice from your own healthcare team (who can provide you with a consultation and appropriate treatment and advice. This information presented here may not apply in your case. If you are a health professional, please use your professional judgement when treating patients.
I have upper prodominate lung fibrosis. My cat scan has been stable for the last three years. I had mold in my basement & I lived there for over 10 years. Since I moved I been much better! Not requiring oxygen only at pulmonary rehab and when I sleep at night. My pulmonologist put me on Ofev last year & so far my oxygen levels are above 92. Was diagnosed in 2018. Thank you for all you do for us regarding pulmonary fibrosis. Btw, my cat scan said my fibrosis resembles sarcoidosis fibrosis.
My dad passed away a couple weeks ago. It was scary.
He was diagnosed with IPF. Dad’s treating doctor was his close friend and he monitored dad’s condition closely. He would make dad take vaccines and monitor his LFT. Dad was doing fine until he couldn’t survive.
It was 3 years 6 months since diagnosis.
I really miss my dad.
I’m based in India. If you ever want to know what all we evaluated, I’m here.
Thoughts for you! Same happened to my husband ‘s father . Now, my husband has been diagnosed . In the USA our PFF foundation colors are blue and green. So, I send to you 💚💙💚💙💚💙
Thank you for sharing. Was he diagnosed with mild stage?
@@Lizbeth36961 he was diagnosed at a very early stage with almost no symptoms other than a persistent cough for 2-3 weeks.
But the disease progressed way too fast for him.
What is the prognosis difference for occupational pf and familial pf ? Thank you!
If im certain that my fibrosis is caused by scleroderma then it's not Idiopathic right? Thank you so so much for sharing this info, you're an Angel to us. 🙏
exactly
I had severe lung scaring on one lung , after pnemonia and sepsis. I signed to have a lung removed but they said the pneumonia started to heal just after, but left severe scarring in the left lung , they said I will be fine unless I get pneumonia again as it will be fatal. I was supposed to go for scans every six months but it never happened. It’s been just about 5 years and it’s hurting in the cold and competing with my nerve damage in my left arm. Is all lung scaring ipf? 😅
Can a Seronegative arthritis cause ILD?
It really works Ofev?
I have not been told much at all about my ILD.
What does it mean when Ipf impairs mobility like getting out of bed. We were told that her lung function is at 28%. She is getting worse. She is being prescribed morphine sulphate. What dosage should be advised. She was duagnosed in 2020. Please advise thank you.
IPF impairs mobility by making there less oxygen in someone's body, making it harder to perform tasks of daily living. In terms of lung function, it is based on a predicted value, and then an individual's function as seen through tests like peak expiratory flow is compared to the predicted. Any questions about medications relating to the specific patient should be advised by the patients medical team.
How long one has to take medication (Nintib) to stop scarring.
It doesn't stop, it just slows the progression down!
I am 55 years old. I take perfenidone everyday as per advice of my doctor. How much progress ocuur in terms of medicine to reverse or othér better medicine?
what's the meaning of Residual fibrosis ? got mine in right upper lobe based on x-ray results
Hi how are you now, my husband also diagnosed of residual fibrosis
ipf ild life expentancy
What if the person has NSIP ILD... What is the life expectancy
More than 8yr
@@snehasishsahoo6529 are u a doctor... On what basis you are saying this. Thanks