I only need oxygen when I go to pulmonary rehab class & at night when I sleep. I'm on Ofev and it seems to be keeping me stable. I have upper prodominate lung fibrosis. The right lung is my scarred than the left. Cat scan says it's appears to be sarcoidosis. Not going to have a lung biopsy. My pulmonologist put me on Ofev twice a day. I had the scarring for the last 5 years. When I caught COVID in 2020 I was on oxygen 24/7. But when I started pulmonary rehab I was able to be weaned off oxygen. Thank you for all you do for us!♥️
Thankyou Dr Stefan for the excellant videos. I am 75 years old and diagnosed to have hypersensitive pneumonitis and I am on prednisolone 5mg Mycophenolate 500mg bd and nintedanib 150mg bd I do not have any other medical condition Should I be referred for lung transplant I am on ambulatory oxygen at 3 to4 litres Please enlighten me and other listeners on this If the NHS does not accommodate patients like me because of age etc are there any otherways viz private locally or elsewhere Regards
Thank you so much Dr. Just asking, my heart rate goes up in the heat and i feel tightness. Do i have to wait for my S02 to go down to put my Oxygen canule?
You are truly compassionate and genuinely concerned for people who are suffering with lung conditions. I have watched many of your videos in order to help my newly diagnosed father. I am so grateful for your videos. May God bless you. 🙏🏼🙏🏼🙏🏼
Thank you for creating these videos people with Pulmonary Fibrosis and their families who support them. My mother just passed away one week ago (she was nearly 70). She was absolutely fine, but then caught an infection (somewhere?somehow?). She spent one week in hospital on oxygen support and then left due to her oxygen saturations levels falling whilst on the max oxygen support. I can’t believe how quick it all happened. Your videos are wonderful and will support so many. As a patient you only have a short time with your doctor so these videos are so important 🙏🏽 Your genuine care, consideration and communication style is very appropriate to encourage those with Pulmonary Fibrosis. 💞
Dear Dr Stephan, your videos are really of great great help for patients suffering from PF. You explain everything with deep concern. This motivates the patients dealing with this disease. Thank you so much . 🙏
How does a person walk when each time I stand up and walk 15 steps to bathroom, my oxygen SATs fall from 94% to 70% in those 15 steps? By the time I get back to sofa I'm close to fainting.
I am coming up to 85 years of age and have just been diagnosed with Pfibrosis I am worried about it .but listening to your video has made me more relaxed about it thank you so much
Thank you so much for the time you put into your videos and the advice you give. I am 70 years old and have ILD from RA and I am blessed to have a husband who is my best friend and caregiver. We both really appreciate your very helpful videos. Thank you so much, Doctor Stephan. Please don't stop doing these. ❤
Thank you so much for the helpful information you provide on your channel. You always seem to answer the question I forgot to ask my lung specialist when I visit him. Thanks again, I believe once more people discover your channel they also will become more educated about their condition 👍 😊
Hi doctor. I hope you get this question and answer it for me. I'm following your channel now. You seem wonderful. Thank you. My partner just turned 89. He is on 3 L of oxygen 24/7. He had a good O2 level while on the oxygen if he's resting around (95-97). It drops a bit if he walks into the 80's. He takes OFEV. He's very inactive now and shaky on his feet. We just ordered him a walker to help with this for safety reasons. Lately he's sleeping more. And I can't tell if it's his IPF or his age or both. He's eating less too. His doctor is unable to see him for another three weeks. My partner is scheduled for his next lung capacity test at that time. Last time his lungs were working at about 40% it went up to %50 when they gave him an inhaler. Since then I know they got worse. Can you tell me what I should expect? Will he be incapable of exercise exertion for walking or going out? Is his sleeping and eating decline a concern? Tell me whatever you can. Thank you. I'm just full of anxiety over him.
This is valuable information. I have IPF. Dx’d 12/2019. When I walk almost daily my ability to climb stairs without dyspnea improves greatly. Recently I slacked off walking for 6 weeks and now I feel breathless just getting up from my bed. My average overnight O2 saturation has dropped too. Controlling my environment has been difficult during these recent weeks, so exposure to inflammatory irritants may have contributed to my worsening symptoms. But I think that sitting too much has been the most profoundly detrimental to my wellbeing.
I got my pulmonary fibrosis from Covid 2020. I have done exercises one at a time. Conservative. And make my exercises increase little by little. And it helps a lot.
I got COVID-19 on 4th of July, was in the hospital for 60 days, came out of the hospital in a wheelchair, In December I started walking very slow, now a days I am playing golf. I do caught throughout the day and phlems are present when I over do it. How are you feeling now?
Another excellent source of information. Dr. Stefan provides very valuable advice for enhancing my quality of life since my IPF diagnosis. He offers much optimism for those of us with this terminal lung disease. Thank you very much.
You are wonderful. So understanding of the problem. I am 76 and 4 years into it and still hike with friends 3 miles or more every week🎉. Much out of breath weak and slow going uphill, but still plugging on! As I progress into it I will refer to your advice, encouragement and expertees. Thank you so much.
Dr Thanks a lot for this video. It not only educate but brings back light in life of unfortunate one. I m 81years. I was heavy smoker and left smoking altogether 26 yrs ago. During my service period of 33years , iwas exposed to CO2, chemical vapours, heat, contacts with heavy metals for first 15 years. I suffered 2~3 time from bronchitis. I am BP patient for last 25+ years and is I
Hi! I have PPFE, a very rare form of lung fibrosis. What are your advice about having this in one’s life as a lungfibrosis patient: Pets Being out in the woods for instance picking mushrooms (rummaging in the ground were there is a lot of fungus etc…) Being active in an agricultural setting with wood (our farm is farming mostly trees) both fresh wood but also “cleaning up old wood that has been partly broken down/composted”. I can see on old woods that they have signs of fungus on them 😬. Being active in hunting with dogs? When we train my kind of dogs (three hunting cockers), we use small dead animals like ducks, pigeons, pheasants, crows, rabbits, hare to get the dogs to retrieve them. In handling dead birds outdoors like this, do I risk getting sensitized and getting additional serious bird-lung disease (cant remember the name just now…), or is it just when being indoors in the buildings were birds live the risk for this disease is elevated? I’m not allergic to anything. Is it stupid of me to walk in parks and areas where there are lots of wild birds and bird poo? I’m living on a farm, but the only animals we have is the three dogs. How do I now if you have responded to this comment…?
I only need oxygen when I go to pulmonary rehab class & at night when I sleep. I'm on Ofev and it seems to be keeping me stable. I have upper prodominate lung fibrosis. The right lung is my scarred than the left. Cat scan says it's appears to be sarcoidosis. Not going to have a lung biopsy. My pulmonologist put me on Ofev twice a day. I had the scarring for the last 5 years. When I caught COVID in 2020 I was on oxygen 24/7. But when I started pulmonary rehab I was able to be weaned off oxygen. Thank you for all you do for us!♥️
I'm new to this. I just stopped smoking. I use oxygen sometimes. But short winded a lot. Do you attend other group cookie?
Thank you Dr.
Thankyou Dr Stefan for the
excellant videos. I am 75 years old and diagnosed to have hypersensitive pneumonitis and I am on prednisolone 5mg Mycophenolate 500mg bd and nintedanib 150mg bd I
do not have any other medical condition Should I be referred for lung transplant I am on ambulatory oxygen at 3 to4 litres Please enlighten me and other listeners on this If the NHS does not accommodate patients like
me because of age etc are there any otherways viz private locally or elsewhere
Regards
Where are you located please? I am not a doctor but 500 mg of M that is very low.
Thank you so much Dr. Just asking, my heart rate goes up in the heat and i feel tightness. Do i have to wait for my S02 to go down to put my Oxygen canule?
Why does clubbing happen to the fingers? I noticed my moms nails were changing & my gut told me something was wrong.
Honestly I don't know. I don't think there is a very good explanation, but it's a well known clinical sign. I would also like to know
You are truly compassionate and genuinely concerned for people who are suffering with lung conditions. I have watched many of your videos in order to help my newly diagnosed father. I am so grateful for your videos. May God bless you. 🙏🏼🙏🏼🙏🏼
Thank you for creating these videos people with Pulmonary Fibrosis and their families who support them. My mother just passed away one week ago (she was nearly 70). She was absolutely fine, but then caught an infection (somewhere?somehow?). She spent one week in hospital on oxygen support and then left due to her oxygen saturations levels falling whilst on the max oxygen support. I can’t believe how quick it all happened. Your videos are wonderful and will support so many. As a patient you only have a short time with your doctor so these videos are so important 🙏🏽 Your genuine care, consideration and communication style is very appropriate to encourage those with Pulmonary Fibrosis. 💞
Dear Dr Stephan, your videos are really of great great help for patients suffering from PF. You explain everything with deep concern. This motivates the patients dealing with this disease. Thank you so much . 🙏
How does a person walk when each time I stand up and walk 15 steps to bathroom, my oxygen SATs fall from 94% to 70% in those 15 steps? By the time I get back to sofa I'm close to fainting.
I'm reading these comments and I'm in my 40's
I am coming up to 85 years of age and have just been diagnosed with Pfibrosis I am worried about it .but listening to your video has made me more relaxed about it thank you so much
Thank you so much for the time you put into your videos and the advice you give. I am 70 years old and have ILD from RA and I am blessed to have a husband who is my best friend and caregiver. We both really appreciate your very helpful videos. Thank you so much, Doctor Stephan. Please don't stop doing these. ❤
Thank you so much for the helpful information you provide on your channel. You always seem to answer the question I forgot to ask my lung specialist when I visit him. Thanks again, I believe once more people discover your channel they also will become more educated about their condition 👍 😊
Is there treatment for lung fibrosis & pleural thickness due to pleural tuberculosis& pleural effusoin
Thanks. I walk around the house for 2 minutes using Washington Post March! My favorite. Noah Greenspan on RUclips is great. Pulmonary Wellness channel
This is a very encouraging blog. Walking with IPF (and Emphysema) is almost impossible for me.
That's what the day I have . They have mucked around now they are not sure
Thanks doctor for this valuable information which we don't always get. God bless you
Thanks for the helpful information Dr. from Japan.
Hi doctor. I hope you get this question and answer it for me. I'm following your channel now. You seem wonderful. Thank you. My partner just turned 89. He is on 3 L of oxygen 24/7. He had a good O2 level while on the oxygen if he's resting around (95-97). It drops a bit if he walks into the 80's. He takes OFEV. He's very inactive now and shaky on his feet. We just ordered him a walker to help with this for safety reasons. Lately he's sleeping more. And I can't tell if it's his IPF or his age or both. He's eating less too. His doctor is unable to see him for another three weeks. My partner is scheduled for his next lung capacity test at that time. Last time his lungs were working at about 40% it went up to %50 when they gave him an inhaler. Since then I know they got worse. Can you tell me what I should expect? Will he be incapable of exercise exertion for walking or going out? Is his sleeping and eating decline a concern? Tell me whatever you can. Thank you. I'm just full of anxiety over him.
Thanks Doctor. Much appreciated.
You are really great
Helping patients of ILD
This is valuable information. I have IPF. Dx’d 12/2019. When I walk almost daily my ability to climb stairs without dyspnea improves greatly. Recently I slacked off walking for 6 weeks and now I feel breathless just getting up from my bed. My average overnight O2 saturation has dropped too. Controlling my environment has been difficult during these recent weeks, so exposure to inflammatory irritants may have contributed to my worsening symptoms. But I think that sitting too much has been the most profoundly detrimental to my wellbeing.
I got my pulmonary fibrosis from Covid 2020.
I have done exercises one at a time. Conservative. And make my exercises increase little by little. And it helps a lot.
I mean consecutive
I got COVID-19 on 4th of July, was in the hospital for 60 days, came out of the hospital in a wheelchair, In December I started walking very slow, now a days I am playing golf. I do caught throughout the day and phlems are present when I over do it. How are you feeling now?
How do you know that? What evidence is there that Covid caused pulmonary fibrosis?
what do you men, left apex febrosis, pls help 😢
I’m glad you addressed being embarrassed or uncomfortable using oxygen while out walking. It’s good to hear someone talking about it.
my mom is so embarrassed but she’s finally getting over it. The rehab nurse helped her realize how important using oxygen is when she’s active.
I appreciate these videos very much. I was just diagnosed 3 weeks ago. Bless you!
Thanks for this information
Very helpful…thank you!
very useful thank you
Another excellent source of information. Dr. Stefan provides very valuable advice for enhancing my quality of life since my IPF diagnosis. He offers much optimism for those of us with this terminal lung disease. Thank you very much.
You are wonderful. So understanding of the problem. I am 76 and 4 years into it and still hike with friends 3 miles or more every week🎉. Much out of breath weak and slow going uphill, but still plugging on! As I progress into it I will refer to your advice, encouragement and expertees. Thank you so much.
What can I do to stop the coughing when walking?
Dr Thanks a lot for this video. It not only educate but brings back light in life of unfortunate one.
I m 81years. I was heavy smoker and left smoking altogether 26 yrs ago. During my service period of 33years , iwas exposed to CO2, chemical vapours, heat, contacts with heavy metals for first 15 years.
I suffered 2~3 time from bronchitis.
I am BP patient for last 25+ years and is
I
Hi! I have PPFE, a very rare form of lung fibrosis. What are your advice about having this in one’s life as a lungfibrosis patient:
Pets
Being out in the woods for instance picking mushrooms (rummaging in the ground were there is a lot of fungus etc…)
Being active in an agricultural setting with wood (our farm is farming mostly trees) both fresh wood but also “cleaning up old wood that has been partly broken down/composted”. I can see on old woods that they have signs of fungus on them 😬.
Being active in hunting with dogs? When we train my kind of dogs (three hunting cockers), we use small dead animals like ducks, pigeons, pheasants, crows, rabbits, hare to get the dogs to retrieve them. In handling dead birds outdoors like this, do I risk getting sensitized and getting additional serious bird-lung disease (cant remember the name just now…), or is it just when being indoors in the buildings were birds live the risk for this disease is elevated? I’m not allergic to anything.
Is it stupid of me to walk in parks and areas where there are lots of wild birds and bird poo?
I’m living on a farm, but the only animals we have is the three dogs.
How do I now if you have responded to this comment…?
Very very helpful from South Africa 75yrs old female with copd thank you so very much 🎉
Interesting and learning medical stuff I'm pretty sure I don't have it but yeah I'm going to watch it later
I am very much worried with my condition now. Just diagnosed to have this minimal subpleural fibrosis. 😢
Can using a spirometer help a person with interstitial lung disease caused by scleroderma help with shortness of breath?
Thank you for your encouragement.
God Bless you!
Now I understand stand why the hospital is deciding who to pair me up with. Subscribed
Thank you for all the much needed infomation.
Fantastic advice, thank you. Makes so much sense.
Thank you for your help! 💗
Dr .How much we recover from these exercises
Thank you.