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Hi I’m 51 years old and I have IPF and I’m on ofev but I’m getting tired I’m still working but lately it’s truly been a struggle gee it’s hard to be like this I was always full of life with much energy What do I do just stop working I make really good money now what I go on disability and not even get half of what I was making I am a true believer in our Lord I actually got a miracle from God . Until I recently got pneumonia for over 10 weeks now everything is back to where I was last march so for almost a year I have been doing great with no problems at all until now I will go back to see my pulmonary doctor in march I also have to have another CT scan next month 9:46 prayers for everyone I do know I will have to get a lung 🫁 transplant I was told that last February and I went to a healing revival 12:54 12:54

Hi I’m 51 years old I was diagnosed with IPF about 2 years ago I’m still working but I’m getting tired I’m on ofev I was doing very well but now my breathing has gotten worse i am just trying to get some more knowledge about this 4:56 Thank you 🙏

Thank you for presentation. My husband had p for 16 years but it was stable. He had CT scans each year and it was not progressing. During the COVID epidemic he had his first vaccine in spring 2021 and 2nd vaccine in July 2021. Within 5 months he had lost a lot of weight…was struggling to breath was was put in intensive care, he sadly died in Feb 2022. I have read studies that say Cvi vaccines exasperate of problems. I am still devastated by the loss of my husband at only 68 years old. Lorna Ferrari Toronto Canada

Thank you. Cancer has been so far not detected per doctor call to day. So now it’s the ‘what is the growing mass?’ Thank you for sharing ❤ your knowledge and so clearly.

My dad lived for 14 yrs with this disease We are in the end stage now he’s 81 .. still no cure in this day and age . Is beyond belief. We got billions for wars but not medical cures .

My dad is in the end stage of this. I hate it . Why does this happen why ? Still not cure in this day and age .

My friend has sarcoidosis in eyes and kidneys. The treatment is not doing much good. Any new treatments?

Thank you so much for the video, Out doctor think My father is having Pulmonary Fibrosis and did a CT Scan recently, during that it was found the situation is worsening recently , he is currently using Pirfenidone and Prednisone, is there any alternatives that may have a better results for his situation

I have been diagonised with IPF after a CTR scan in Cleveland clonic.I am 88 years and a yoga practitioner. I was ok with some breathlessness on exertion till I was laid up with pneumom[a, October 17 to November 2, 2024. I ws on oxygen su[prt, went through rehab and donot need oxygen . Of;late I am getting more breathless on exertion but osygen saturation is good, over 90 even as I am short of breath. Will POC help in my efforts?.

Thank you well said very educating ❤❤

Please look into dr William Davis super gut book. Microbiome is the key to healing all disease. God be with you all 🙏

Is ventolin better than albuterol?

Medicine plz

My brother has pulmonary fibrosis due to chemical inhalation. He starts coughing and passes out. He’s fallen from it. He’s moderate stage of PF. He’s on transplant medicine. Is this normal?

Thank you Stefan great videos watch them all

This was helpful as I was skeptical about mycophenolate and steroids to start and wondered about the treatment of immune suppressants. Thank you

Thank you for these videos. When i was first diagnosed, the nurse's asst told me initially. And then the dr told me I was halfway thru my "journey". I thot, I just had a widow makers heart attack a year ago and now this? And I had a panic attack on my way home. Never want to go through that again. I thot this was the end of my world. But the more i read about this disease, the more i can do for myself. I can do my aerobic exercise like i use to, I just need my oxygen to assist. Im looking at diet and other other too. These videos are very informative and encouraging. Thanks again.

Alongside my consultant and oxygen nurses and watching your invaluable videos I have learnt so much about my disease. I wish I could now find a support group in my home town of Scarborough UK but no luck in doing this. Will continue to watch your videos

Can immunosuppressive medicine cause ILD in transplant patient?

Drink water with Celtic salt prior on tongue.. Immuniology chinese Herbs reflexology lemon water vitamin ACE.

Im in the cayman islands, we took a drive to the queens botanical garden and ended up on a road behind a worktruck. I could tell they had just kowed large amounts of weeds on both sides of roads and it was blowong around everywhere because worktruck kept running over it. Im 48, a doctor toldy mom im allergic to ragweed when i was 9 and i thiught that wasnt true....i was really tired 45 minutes later, 6 hours later my lungs were totally inflamed and my chest was tight. I had horrible body aches and high fever the next day, worsening as day went on. I literally cane back to hotel and wrapped myself in blankets and tried to just give into the fever and give my body the heat it jeeded to fight this. Totally worked and feeling better today, cough is coming. Very strange experience.

Sir can check my xray film?

What is kind and thoughtful person/Dr you are, thank you for all your information, very helpful. God Bless you.

Too much talk about alternatives and almost nothing on IPF.

Thank you! Another great video!

Thank you! I always watch your extremely helpful videos and keep referring back to them as well.

Wish you were my consultant

I have Saciodosis Pulmonary Fibrosis. I'm on Steroids. Blood Thinners for Pulmonary Embolism. I'm 67 and enjoying life as much as I can. Cyra xxxx

Your information in your videos is Extremely helpful . It has helped me understand the fibrosis better and how it effects my lung function. I have explained to various Doctors over long periods of time that I'm breathless.They do an O2 test and it is high.They don't believe that l am gasping for air-Thank you so much for your explanation!! I recently had pneumonia and the scan showed up fibrosis...so now I am grateful for having the pneumonia because a scan has never been considered....

Your style of telling things is marvellous, very useful information.

Can u please tell about paraseptal empysema

Well explained

Thank you very much

Sir my mom is suffering from ild

I have a pulmonary fibrosis as well as primary pulmonary artery hypertension. I wish an inhaler like this would help but it doesn’t. I’m on the waiting list for a double lung transplant.

I love watching all your awesome videos, but they really don't help much for my husband. He has been sick since the of April 2024. He caught a cough that just wouldn't go away. That bad cough turned into pneumonia. I took him to the hospital and they did a CT and sent him home with antibiotics. Well this happened twice at the hospital closest to our home. After about another week I took him to the big hospital about an hour away. As soon as he got there they admitted him. They started running test right away. He has several lung doctors and they diagnosed him with ILD. Well he was in the hospital about 10 days when I got the call that my husband was unable to breath on his own. At this time they had to intubate him. Praise God he's still here. But he's been in and out of the hospital almost every month. My husbands disease has rapidly progressed. He has fibrosis on almost all of his lungs. So with that said, his breathing isn't very good. He's on high flow oxygen and requires 8 to 10 liters of oxygen at all times. We're waiting for hospice to come soon. That's my husband's choice. Please pray for him. I believe that God is his last chance not some medication call OFEV. He's been on it for almost a month now and still feels the same. So sad😢. God bless you all🙏🥰🙏

Read that coffee can give pulmonary fibrosis . I on a coffee free diet 3 day .

Thanks for taking the time to share your experience and knowledge. Its inspiring. I have not been diagnosed but ever since I had covid my lungs have not been the same… so I have been looking for advice and suggestions to improve…

Thank you so much for all the information and giving me hope with your explanations!

I have sarcodosis of my lungs 🫁

Treat your body like a job. Very well said. The benefits are not money but a longer life.

I just got diagnosed with HP 2 weeks ago. I'm on oxygen as my oxygen levels were 2 low. 70 per cent of my lungs on both sides are scare tissue. 😢

54 and just returned from the hospital with this l diagnostic. Better die than spend another week in there. For me idiopatic is mental. If i divorce might get rid of this as it happened with my former problems when i divorced first time

Informative thanks

Hello Dr Stefan. I have been following a fellow pulmonary fibrosis sufferer on RUclips called Lee Fogle who has written a short book about his journey with this disease. His latest treatment is the use of a class 4 medical laser that is used to suppress the inflammation in the lungs. Do you have any opinion or advice about laser therapy for pulmonary fibrosis? Thanks Paul 🏴󠁧󠁢󠁳󠁣󠁴󠁿👍

Great information . It’s such a serious disease, but you still can do most things you want to do… just hav to be careful a know how long your tanks, a portables last. An a lil determination!

I don't know English please translate in Kannada i am in Bangalore

I was diagnosed october 2020 and in November diagnosed with emphysema at 62yr I am now 66yr.. I had to leave my job a year later.. I have now been on oxygen since 2022.. now at 5 and just recently put on 24hrs a day.. I constantly get chest infections.. I have great nurses keeping close eye on it.. my daughter is a great help to me and works full time ( she lives near me).. this is a very debilitating condition and very frightening.. I wish all the best to anyone living with this disease.. please pray for a cure..

My sister-in-law is in the hospital right now she does have COPD she has had bladder cancer in the past and she has a blood disease that they say is causing the scarring to her lung. Are you familiar with any blood diseases that causes a scarring to the lung

Just found my father is diagnosed with subtle interlobular thickening. Im devastated know this. He is 69.5 years and is fit with no sugar or BP. Im worried about his health post medication. Please help to find out ways to keep him healthy.