My RLS Journey: Janice's Story
HTML-код
- Опубликовано: 9 сен 2024
- Restless Legs Syndrome (RLS) Foundation presents the 'RLS and Augmentation' series.
In this video, we highlight Janice's RLS story. Janice discusses her journey through her RLS diagnosis and how she provides hope for others struggling to cope with this often misunderstood disease.
For more information about RLS and the Foundation please visit www.rls.org
'RLS and Augmentation' © RLS Foundation 2016
Well that just made me weep. Is there no hope….no cure? I can’t go on like this!
Thanks for sharing your story Janice. I too, have had RLS since I was a child and can remember having behaviors different from the other kids. Our way of self soothing. I'm glad we are all starting to talk about this. Good luck in your journey for relief. I have hope for all of us :-)
I really need help with medications. Thinking of going to Nashville. Where is the best place to go. .
I’m a third gen. RLS my grandma has it the worst and she has to take medication. I get it really bad at night and I found that eating oranges helps but only sometimes. My legs tend to move a lot more at night which I’ve heard is common.
Bad last three nights. Only get to sleep at 5am. Its so awful.
I was 13,for years I never knew what it was also in my arms sometimes. Doctors thought I was just a hypochondriac!!!
What is her solution
I too have had rls since... actually idk when it started I jus know when I noticed it and that was when I was pregnant with my first child and I also remember like it was yesterday when the Dr (neurologist) told me what it was, that I wasn't crazy, and printed me some litterateur on it and prescribed me mirapex (couldn't take it when pregnant tho😢) mirapex is my saviour could not deal without it...thanks for sharing your story...
Wow I got terrible side effects from Mirapix it ruined my life I didn’t realize it was because of the drug . I quit ct and life was terrible for months and months .
I got RLS when I got Lyme . My life was awful when doctor put me on mirapix horrible drug .
I used to have my dad rub my feet as a kid it would hurt for him to stop
I’m 45. I’ve had RLS since I was a kid. Spent most of my life just putting up with it. Then during a MD visit for some unrelated health stuff, I crabbed about it. Been on pramipexole ever since; it mostly keeps the RLS under control if taken daily a few hours for bed.
How long u took pramipexole?
@@danielprose5878 Years. I take it as needed, not daily. My RLS has not been active for a year or two now, which is nice. But it will be back. It always comes back.
I hear you my dear. I got it now in all extremities and I'm going through hell at nights as the drug PRAMIPEXOLE had turned into augmention... I wish
Where is the solution ?