As someone with possible MCAS who used to be allergic to and intolerant to the most common foods to the point of causing gastritis, esophagitis, severe rashes, and vomiting (onions, garlic, most vegetables except broccoli, summer squash, pepper, carrot, and tomato, anything raw, all spices that weren't ginger, turmeric, or paprika, any meat that wasn't poultry or fish, eggs, dairy products that weren't fermented) - this content makes me feel less alone. It has only been since reducing work, other pain, and stress severely that it has gotten slowly better. I really appreciate that you are able to show us your life despite being ill. Edit: Watermelon has always been a safe fruit for me and a really big comfort when I couldn't eat all other raw foods. Maybe try other melons like the fancy honeydew varieties like Sun Kiss, Lemon Drop, and tons of others. There are slight differences between all of them that affect taste, texture, and reactivity.
Like, I am literally eating a hot dog right now. My stomach isn't the best but the fact that I can eat a beef hot dog, on a proper bun, which has egg and milk and wheat in it, without throwing up for days is truly astounding to me
You are definitely not alone! It helps me too hearing from people like you who have had similar experiences and who can relate, so thank you! I'm happy to have watermelon and I'm excited for what I can do with it.
I'm supposed to be on an AIP Diet due to fibromyalgia and daily stomach problems but i feel overwhelmed by all I have to do and uncertain that I can stick to the diet itself
When you cook your fish collect all the oil it makes. You can then fry your turkey in it or you can fry your vegetables in it to give them flavor. Don't forget to add olive oil with it too Another idea is making snow cones. Blend up ice. Mash up the fruit and strain the juice in a nut milk bag or juicer. Add your glucose powder to it to add sweetness. Then pour it over the snow like ice and wa la you have a snow cone You can also make popsicles using this same method
Have food intolerances for 15 years now. So I know exactly what you are going through. Never lose hope. Eventhough it might not fully heal it can get better since there is a strong relation to gut health. Since it looks like you can't tolerate a lot of food I would assume the problem is not only histamines. In my case I also can't eat high salycilate, high oxalate and some of the nightshades and dairy. Oh and also high FODMAP of course. So yeah there is only a few foods that I can eat to my satisfaction. I'm glad oatmeal is one of them. I make bread with it. Everything else is either off or in very limited amounts. Also anti-histamines help a lot. It's not very common so people have a hard time believing it. Don't take it personally and ignore them.
You can make a fruit syrup with ur raspberries, limes, grapes or watermelon and ur glucose powder to add to water for a change, u can use regular water or sparkling water, u could freeze some as well with fruit pieces in it to add to ur drinks so as it melts it flavours it
@@jennaxhealth yes explaining what is MCAS, how you discovered, your journey with what you have been able to eat... It's so interesting and educational
For a while, I couldn’t have basic bell peppers after a trip to Europe. I’ve since incorporated them back into my diet, so I believe that I may have been sensitive to a pesticide that they no longer use, or maybe I’ve subconsciously picked up organic varieties. Still, I find the psychological burden of a reaction more debilitating than the prospect of becoming ill. This situation reminds me of some extreme, cult vegans I used to know. They slowly remove all foods from their diets so they can live on a mountain top and photosynthesize. They are currently on a mountain top. I’m also concerned you’ve come across them, which suggests a serious mental block because shame is just that powerful. You’d think there would be a lot of herbs involved, but the leader swore off it around the time I formally met him. This could be a stretch, but “Hello Forever” is the band name. They say music connects us all.
Oh there is a documentary about this guy in Germany who believed he could live off the sunlight. He backpacked a lot and eventually it ended badly for him on one of his travels . I am shocked to hear the cult still exists. How terrible
You mentioned in another video that a new treatment allowed you to eat fruit when you weren't able to before. I have the same issue, so I was wondering if you would be able to share what treatment you tried that worked?
I honestly don't know if it was a mix of things, but I think what made a huge difference was reducing the amount of stress in my body. I know a lot of people with MCAS do various limbic system retraining programs. I tried those as well as EFT which accomplishes some of the same things
@@jennaxhealth I appreciate your reply! As someone who can only eat 9 foods right now, it is so encouraging to see a channel like yours. It's great that you show how you are able to live a normal, happy life with MCAS. It can be really isolating, your videos make me hopeful about getting better!
Still puzzled at your fun foodchoices. What is the reason for not choosing anything in the sghi 0 list? Like all melons, besides watermelon are in that list for example. I love to see you succeed in your journey, thank u for sharing. Trying a new food can be so daunting!
Because they're allergic to them! The food they have are not "fun" or "choices" the food they buy is all they can eat! You wouldn't ask someone who is allergic to peanuts why they're not buying peanuts!
@@Kez_abi I have the same diagnosises as she has. Until coming across her and her approach to foodreintroduction, I have only been tought by doctors and other patients to follow the SGHI List and when reintroducing food, to go with low histamine food first, her doctor reccomanded foods are high on those histamin lists and we are ususally told to start with foods low on that list, andyes, the foods low on that list tendto be less fun, than those higher up. So it is super interesting for me to see that there is a different approach to it, that her doctor suggests different foods. Especially when from all melons, which are considered los histamine, the doctor choses watermelon, which is the only one considered higher in histamine. As someone who goes through the same Thing, I know how scary but also how fun it is to be finally able to try and taste something else. The foods she can eat are mostly opposite to what is reccomande for mcas. So i am highly interested to see and learn and being encouraged through this to Maybe also stray from the strict guideline list or discuss things differently with my doctors, and to try more stuff. It is clear to me from your comment, that you are not familiar with MCAS and did not understand my initial question. The three diagnosises she and I share are still highly missunderstood, scientists and doctors have very different approaches and concepts. it is always intruiging to learn about different live experiences and different routes of Solution, especially when thereis contradictory information. I am sorry that there are apparantly so many negative People out there, that you where only able to read my comment with a tone of judgment and disbelief. It came from a place of awe and curiosity.
The foods she eats are the ones she doesn't react to. As someone with MCAS myself who used to use the SIGHI list, I recommend you don't limit your diet more than you have to. If something doesn't cause an allergic reaction, it's best not to avoid it. Otherwise, you will likely start getting reactions to those foods. Elimination diets like the SIGHI list or low histamine diet are not meant to be done in the long-term. They're only there to help you figure out what you do and don't tolerate
Oh you said you don't have a drick and don't like carbonated drinks. why not make raspberry and or lime saft or consecrated lemonade i think english word for it.
As someone with possible MCAS who used to be allergic to and intolerant to the most common foods to the point of causing gastritis, esophagitis, severe rashes, and vomiting (onions, garlic, most vegetables except broccoli, summer squash, pepper, carrot, and tomato, anything raw, all spices that weren't ginger, turmeric, or paprika, any meat that wasn't poultry or fish, eggs, dairy products that weren't fermented) - this content makes me feel less alone. It has only been since reducing work, other pain, and stress severely that it has gotten slowly better. I really appreciate that you are able to show us your life despite being ill. Edit: Watermelon has always been a safe fruit for me and a really big comfort when I couldn't eat all other raw foods. Maybe try other melons like the fancy honeydew varieties like Sun Kiss, Lemon Drop, and tons of others. There are slight differences between all of them that affect taste, texture, and reactivity.
Like, I am literally eating a hot dog right now. My stomach isn't the best but the fact that I can eat a beef hot dog, on a proper bun, which has egg and milk and wheat in it, without throwing up for days is truly astounding to me
You are definitely not alone! It helps me too hearing from people like you who have had similar experiences and who can relate, so thank you! I'm happy to have watermelon and I'm excited for what I can do with it.
@@oldasyouromens That is so amazing!! Even just the fact of being able to eat a "normal meal" that you could get anywhere is such a great feeling.
I'm supposed to be on an AIP Diet due to fibromyalgia and daily stomach problems but i feel overwhelmed by all I have to do and uncertain that I can stick to the diet itself
@@atlastarron7634 diets are guidelines and your dignity of risk is yours. You can stretch those guidelines to meet your needs.
When you cook your fish collect all the oil it makes. You can then fry your turkey in it or you can fry your vegetables in it to give them flavor. Don't forget to add olive oil with it too
Another idea is making snow cones. Blend up ice. Mash up the fruit and strain the juice in a nut milk bag or juicer. Add your glucose powder to it to add sweetness. Then pour it over the snow like ice and wa la you have a snow cone
You can also make popsicles using this same method
That's a great idea! I'd never thought of using the oil
@@jennaxhealth Yes
I had pan fried some fish and then cooked my broccoli in it which tasted so good mmm
Have food intolerances for 15 years now. So I know exactly what you are going through. Never lose hope. Eventhough it might not fully heal it can get better since there is a strong relation to gut health. Since it looks like you can't tolerate a lot of food I would assume the problem is not only histamines.
In my case I also can't eat high salycilate, high oxalate and some of the nightshades and dairy. Oh and also high FODMAP of course. So yeah there is only a few foods that I can eat to my satisfaction. I'm glad oatmeal is one of them. I make bread with it. Everything else is either off or in very limited amounts. Also anti-histamines help a lot.
It's not very common so people have a hard time believing it. Don't take it personally and ignore them.
Yes, and same goes to you!! We can still enjoy what we can have and know that things can always get better
You can make a fruit syrup with ur raspberries, limes, grapes or watermelon and ur glucose powder to add to water for a change, u can use regular water or sparkling water, u could freeze some as well with fruit pieces in it to add to ur drinks so as it melts it flavours it
it's nice seeing some long form content
I'm glad you like it! I'll definitely do more. Do you have anything in particular you'd like to see?
@@jennaxhealth not really. maybe a video of you making recipes from commenters?
@@jennaxhealth yes explaining what is MCAS, how you discovered, your journey with what you have been able to eat... It's so interesting and educational
What questions do you have for me? (maybe I'll make a Q&A cooking video...)👀
What made you decide to try watermelon or like what made you think it could potentially work?
Have you tried honey recently? I feel like it'd really add to what recipes you're able to make
You can definitely try watermelon popsicle 😊 I will always support you ❤
Sorry if this is a stupid question, but if you're allergic to sugar, how can you eat fruit and other foods that contain sugar
how come you and your doctor dont follow the sghi list? I love seeing that there are apparantly different approaches to reintrudaction.
For a while, I couldn’t have basic bell peppers after a trip to Europe. I’ve since incorporated them back into my diet, so I believe that I may have been sensitive to a pesticide that they no longer use, or maybe I’ve subconsciously picked up organic varieties. Still, I find the psychological burden of a reaction more debilitating than the prospect of becoming ill.
This situation reminds me of some extreme, cult vegans I used to know. They slowly remove all foods from their diets so they can live on a mountain top and photosynthesize. They are currently on a mountain top. I’m also concerned you’ve come across them, which suggests a serious mental block because shame is just that powerful. You’d think there would be a lot of herbs involved, but the leader swore off it around the time I formally met him. This could be a stretch, but “Hello Forever” is the band name. They say music connects us all.
That's interesting. I agree, psychologically it is very difficult knowing that you could have a reaction.
Oh there is a documentary about this guy in Germany who believed he could live off the sunlight. He backpacked a lot and eventually it ended badly for him on one of his travels . I am shocked to hear the cult still exists. How terrible
You mentioned in another video that a new treatment allowed you to eat fruit when you weren't able to before. I have the same issue, so I was wondering if you would be able to share what treatment you tried that worked?
I honestly don't know if it was a mix of things, but I think what made a huge difference was reducing the amount of stress in my body. I know a lot of people with MCAS do various limbic system retraining programs. I tried those as well as EFT which accomplishes some of the same things
@@jennaxhealth I appreciate your reply! As someone who can only eat 9 foods right now, it is so encouraging to see a channel like yours. It's great that you show how you are able to live a normal, happy life with MCAS. It can be really isolating, your videos make me hopeful about getting better!
What are the 9 foods you eat? @@Emily_Epler
I am sure you've mentioned it before. But do you think there are more foods you could possibly eat, but just can't risk it at this time?
It’s definitely complicated figuring out what I can and can’t eat and when that changes. I can go into more detail in a video
That would be super interesting
mango that's my guess
good guess, close but not it
Still puzzled at your fun foodchoices. What is the reason for not choosing anything in the sghi 0 list? Like all melons, besides watermelon are in that list for example. I love to see you succeed in your journey, thank u for sharing. Trying a new food can be so daunting!
Because they're allergic to them! The food they have are not "fun" or "choices" the food they buy is all they can eat! You wouldn't ask someone who is allergic to peanuts why they're not buying peanuts!
@@Kez_abi I have the same diagnosises as she has. Until coming across her and her approach to foodreintroduction, I have only been tought by doctors and other patients to follow the SGHI List and when reintroducing food, to go with low histamine food first, her doctor reccomanded foods are high on those histamin lists and we are ususally told to start with foods low on that list, andyes, the foods low on that list tendto be less fun, than those higher up. So it is super interesting for me to see that there is a different approach to it, that her doctor suggests different foods. Especially when from all melons, which are considered los histamine, the doctor choses watermelon, which is the only one considered higher in histamine. As someone who goes through the same Thing, I know how scary but also how fun it is to be finally able to try and taste something else. The foods she can eat are mostly opposite to what is reccomande for mcas. So i am highly interested to see and learn and being encouraged through this to Maybe also stray from the strict guideline list or discuss things differently with my doctors, and to try more stuff. It is clear to me from your comment, that you are not familiar with MCAS and did not understand my initial question. The three diagnosises she and I share are still highly missunderstood, scientists and doctors have very different approaches and concepts. it is always intruiging to learn about different live experiences and different routes of Solution, especially when thereis contradictory information. I am sorry that there are apparantly so many negative People out there, that you where only able to read my comment with a tone of judgment and disbelief. It came from a place of awe and curiosity.
The foods she eats are the ones she doesn't react to. As someone with MCAS myself who used to use the SIGHI list, I recommend you don't limit your diet more than you have to. If something doesn't cause an allergic reaction, it's best not to avoid it. Otherwise, you will likely start getting reactions to those foods. Elimination diets like the SIGHI list or low histamine diet are not meant to be done in the long-term. They're only there to help you figure out what you do and don't tolerate
Love long form videos!
I am curious if you can eat watermelon rinds as well? They are perfectly edible when cooked and there are some Indian vegetable dishes
loved the video!
Have you always had this many allergies? Or did they develop over time? Love your videos ❤
I have Mast Cell Activation Syndrome which has caused these reactions to develop and they have developed over time. 🫶
I’m thinking the new food is coconut or blueberries 3:26
Watermelon
yessssss
How did you pay with your palm?
Right?! I came here to ask this!
Watermelon?!?
Nailed it! Went back to the frame where you were picking it at the store and saw the fresh cut juicy fruits around😂
YESSSS
@@playc.holder6432 smart!!
Oh you said you don't have a drick and don't like carbonated drinks. why not make raspberry and or lime saft or consecrated lemonade i think english word for it.
You can freeze it in cubs to have stocked
Did you just pay with a microchip in your palm !!??
The machine is probably taking a scan of what her palm looks like. Palm prints are unique like finger prints.